Howdy! Thanks for visiting Josie's Weblog page, and for being here. We appreciate your support. We really want to hear from you all,
Soooo...Please sign her visitor book and write as much as you want!

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Messages from our Visitors:

	
Thanks to everyone who has signed Josie's book!

From Chris Marshall,
Josie,

We want you to know that we think about you daily and we are so proud of you for fighting this disease. Your courage is a true inspiration! Stay strong little lady and fight on!

Love,

Chris, Rachelle & Abigail Marshall

Sent on Wednesday, August 10, 2005 at 12:18:25 AM
CRMarshall27@Comcast.net

From The Arnolds,
Hang in there, Josie!

Things will definitely get better, and hopefully soon!

We are thinking of you and your family -

Bob, Sarah, and Jillian Arnold

Sent on Wednesday, August 10, 2005 at 11:14:05 AM
rja@teemaster.com

From Katy LeBarron,
This 'dime-store' psychologist says give in to her every whim for now! My guess is that you wouldn't do it if it didn't feel right and she really needs you now! Let me know if there's anything I can do to help out with either Josie or Henry, Trip and Evie!
Sent on Wednesday, August 10, 2005 at 1:16:52 PM


From Jan guenther,
Wow Josie, someday you'll look back at this log and wonder how your parents handled it all. Hopefully any other little person who might have this disease can learn from this weblog and advances in treatment can be made. Meanwhile all these friends of your parents whom you don't know are sending you get well thoughts...we want you to feel better Josie!~
Sent on Wednesday, August 10, 2005 at 2:02:40 PM


From Leslie McKeown,
HI there Adam's family! This is Leslie and I was just checking in on you all... I am hurting so much for all of you and can't imagine what you must be going through. Please know you are in all of our prayers and the boys talk and pray about Josie alot. Of course we all want to help but don't know how best to do it. Do you think it would help if I came and took the "night shift"? I know I wouldn't be Josie's first choice:) but at least it could give you a break and being a nurse I feel confident that we'd be okay. (I am a night nurse you know!) If that doesn't work then I could just come and relieve you for a short while...We love you all and hope and pray that Josie makes a full recovery and that these big gun meds do the trick fast. Hand in there and God bless you all-The McKeowns
Sent on Wednesday, August 10, 2005 at 2:08:12 PM


From leslie mckeown,
Here's my email that I left off the last address...
Sent on Wednesday, August 10, 2005 at 2:08:54 PM
lesliemckeown@mn.rr.com

From Lisa Heilman,
Josie and Family, We are sending our prayers your way! Let us know how we can help.
Love,
Lisa Rich Lucas and Isaac

Sent on Wednesday, August 10, 2005 at 2:10:12 PM
lheilman@frontiernet.net

From Tami and Dan Greenshields,
I am so sorry to hear about Josie. Dan and I will keep her in our prayers. Dan will be in Mpls this weekend and will try to stop by.
Love, Dan and Tami Greenshields

Sent on Wednesday, August 10, 2005 at 3:21:34 PM
tgreenshields@qwest.net

From The Madsen's,
Hi Josie and the Adam's Family-

Thanks for the update about Josie. We all hope she feels better soon!!!

Love
Tom, Karen, Sarah, Emily and, Paul

Sent on Wednesday, August 10, 2005 at 4:12:15 PM
madsen@mcleodusa.net

From Rick and Ramona Friederich,
Hi Josie,
We just found out that you are not feeling well. We just read the entire website your parents made about you. We are so sorry that you are having to go through so much. We are thinking of you and hoping for the best for you. Tell your mom and dad, brothers, and sister they are also in our thoughts.

Sent on Wednesday, August 10, 2005 at 4:29:30 PM
SeamsRight@comcast.net

From Nona Bergh,
As a mother of a child that had leukemia, you are allowed to give in to her every whim. Please ask friends to take the other siblings to do special things and remember all the children when sending cards, gifts, etc. My son did not suffer because of giving in to his whims but my daughter was angry because everyone asked about Geoff not her. Josie and your family are in our thoughts and prayers. Thank you for doing such a great job on the website.
Sent on Wednesday, August 10, 2005 at 5:06:07 PM
nbergh@mn.rr.com

From The Nelsons,
Hey Josie! We love you and hope that you had a good day today. If you ever want to come and play (or your brothers and Eve want to come and play), give us a call and we'll come pick you all up. Take care sweetie, we're praying for you - your Mom and Dad too!
Love always, Shelly, Mark, Max and Sam

Sent on Wednesday, August 10, 2005 at 7:03:59 PM
shellymarknelson@yahoo.com

From Jill Saastad,
Hey Josie, We are so sorry that you have to fight this disease-- we know you can do it, you are such a strong little girl! Hang in there Deb & Jay and Trip, Henry & Eve. We love you all and are sending you a big, enormous --HUG--. Love, The Saastads
Sent on Wednesday, August 10, 2005 at 8:14:48 PM
Saastad@mn.rr.com

From Sue Pearce,
You guys are in our thoughts and prayers.
Sent on Wednesday, August 10, 2005 at 9:39:32 PM
spearce7@msn.com

From Paul and Shelly Doran,
HI Adams, We just want you to know that we are thinking about you and praying for you. We can't imangine what you are going through. Please let us know if there is anything that we can do!! We would love to help. Keep fighting Josie!!

Love,

Paul, Shelly, Joe and Sarah Doran

Sent on Thursday, August 11, 2005 at 7:55:42 AM
doran-home@mn.rr.com

From Anisa Carlson,
Josie - I hope you feel better today. How is your little Hippo doing? What did you name her? Here is a joke for you. Why did the dog climb the latter? To get to the Wroof?

Hang in there Josie! We are thinking about you.

Anisa and family

Sent on Thursday, August 11, 2005 at 11:33:30 AM
emilyjimcarlson

From Nancy Cullen,
Dear Deb abd Jay,

Sue Dornfeld called and told me about your lovely little daughter and the rare disease that she has. I am so sorry to hear the sad news.

Please let us know if there is anything we can do to help. Sue and I could certainly come over and help with the childen so that you may have a break.

You are in our thoughts and prayers.

Nancy and James Cullen

Sent on Thursday, August 11, 2005 at 4:53:03 PM
ncullen@mn.rr.com

From Dave and Sue Dornfeld,
Deb and Jay, I just wanted to let you know that we are thinking of you guys and praying for Josie everyday.

Take care,
Dave, Sue, Shannon, and Nicholas

Sent on Friday, August 12, 2005 at 8:42:35 AM
ddornfeld1@yahoo.com

From Jim & Wanda Hollensteiner,
Thank you for the weblog update, though Lisa has been keeping us informed. Last Sunday our little church in Dayton, MT, added their prayers for Josie's healing. We look forward to Josie and family returning to Flathead Lake... with love from J&W
PS who cares about what the psychologist say? Mom's intuitions are better. X

Sent on Friday, August 12, 2005 at 6:25:38 PM
wandahollensteiner@centurytel.net

From leslie mckeown,
Hi Josie and family-Just saw your update-I just stare at that CPK and will it to go down...You too, I'm sure. Glad to hear your nights are improving slightly. I have my sister and her family here and have shared your journey with Riley's folks. Let's just say you have many very powerful prayers coming your way. God Bless you all and much love. Leslie, Riley, Ben and Sam
Sent on Friday, August 12, 2005 at 11:11:53 PM
lesliemckeown@mn.rr.com

From Caroline & Ed Gaiser,
We are so sorry to learn of Josie's illness and the struggle she is going through now. We will keep her and all of you in our prayers. Thanks so much for these updates.

With love,
Caroline & Ed

Sent on Saturday, August 13, 2005 at 3:52:43 AM
c_gaiser@hotmail.com

From Paul and Shelly Doran,
Hi Guys,

We have been checking Josies updates everyday, thank you for keeping us all informed. We are all praying for the best. She is such a strong little girl. I hope she knows how many people are thinking of her everyday!! Let us know if we can do anything!!

Love,

Paul, Shelly, Joe and Sarah Doran

Sent on Saturday, August 13, 2005 at 9:34:42 AM
doran-home@mn.rr.com

From Maria Marshall,
Dear Adams Family,

Gary and I are thinking of you daily and remembering our fun trip to Florida. We truly love each and every one of you and we keep you in our prayers.

Sent on Saturday, August 13, 2005 at 9:02:19 PM
gmarshal@tds.net

From Katie Marshall,
As the youngest of 4, Josie Jo has always had to be a fighter... All the Adams kids do, whether it's Evie attempting to overpower a dog 3 times her size, Hen fighting for the privlage of playing with his big bro, or Trip BEING the big bro; they're all strong kids, and I believe that Josie's sweet spirit is stong enough to get through this, even though her body may be weak right now. Know that my prayers and thoughts are with you all in such a horrible time, and PLEASE call on me if there is anything I can do to help you guys through this ordeal. It breaks my heart to see such a genuine, generous, and loving family be dealt such a strange hand... But remember that God never gives us more than we can handle. All my love to each one of you and give Josie an extra kiss from me! ~Katie
Sent on Saturday, August 13, 2005 at 9:51:44 PM
thekatiemarshallproject@hotmail.com

From Jena Hollensteiner,
Hi,
I just spent two weeks with sister Lisa in Montana and virtually each day we'd get an update from her about Josie progress. We've all kept her in our individual and family prayers. Our thoughts and prayers go out to all of you and especially Josie during her difficult time. We look forward to full her recovery and also to seeing you all again in the Flathead. Thinking of you all and God Bless, Jena Hollensteiner

Sent on Saturday, August 13, 2005 at 11:49:58 PM
jena.hollensteiner@cbre.com

From Klara Varady-Bessko,
I'm Aggie Varady's mother. She's told me about Josie last week, also sent me Josie's Weblog.
Ever since my thoughts are with you daily, and I pray for her recovery.
Love,
Klara B.

Sent on Sunday, August 14, 2005 at 10:48:12 AM
bessko@attglobal.net

From DH,
Nice post today. We're glad to hear something might be working...We're all praying for you and your doctors to figure this out.

Love,

M,E,T & A

Sent on Tuesday, August 16, 2005 at 11:17:38 PM
mdhhsu@gmail.com

From Stellons,
We're thrilled to learn of the good news and know that Josie is getting thoughtful expert care.

We keep you all in our thoughts and prayers. Keep fighting, Josie!

Sent on Thursday, August 18, 2005 at 12:45:16 PM
stellone@aol.com

From Virginia Riebe,
Hi, I'm one of Lee's neighbors at Vizcaya. Over the years the proud grandmother has told us about your family..starting when Trey was born. We love Lee and feel for all of you during these dreadful days..although, (dare we hope?)there seems to be light.Every positive thought, with love, is being sent your way.
Sent on Thursday, August 18, 2005 at 7:58:35 PM
ginnahr@msn.com

From Joelle Syverson,
Dear Deb, Jay and Josie...We just learned about Josie's condition from Kris and Jeff. It just breaks our heart to read what Josie has endured so far. It was so fun to meet her and all of you at Fairhills. In fact, I have a couple pictures that I will mail to you.

We just want to let you know that we are praying for all of you!!! We will continue to check in on Josie's progress, you have handled this heartache with such grace! Stay strong and rest in Jesus!
Love, The Syversons

Sent on Thursday, August 18, 2005 at 10:34:32 PM
jsyverson@mn.rr.com

From Tammy Adams,
You, all of you, are in my thoughts daily! It's so hard, somtimes, to watch the struggle of our little ones as they endure the hardships of simply growing up, but this battle of Josie's has been heavy and unyeilding, frustrating and exhausting. This is certaily a time when I wish we were closer so that I may be of some help to you all, but I cannot. I can only send well wishes and pray that things improve with time, good medicine and the love you have for Josie and she for you. These times and this illness are mystifying and bewildering; Have courage Brother and Sister. My love to you and all the little ones.
PS: Dakota says he hopes Josie and things get better soon!

Sent on Friday, August 19, 2005 at 7:51:15 AM
Camprn@verizon.net

From Grampa and Gramma JackieHibler,
Hi, L'il Josie. You're too young to remember Gramma Jackie and me, but we are sending you our very best prayers and thoughts, every day. We will look forward to a visit out here in California sometime soon.

Love and hugs,

Granpa and Gramma Jackie

Sent on Friday, August 19, 2005 at 1:23:04 PM
edhib@sti.net

From John Hibler ,
As a parent who watched his child fight for life, your case and your words bring back so so many memories. Mine was even smaller than Josie. Mine was a premature birth. Michael, now twenty four was an emergency situation. I still remember the days spent on me knees in prayer, sometimes wondering if anyone out there was listening. My son Michael blew a hole in one lung on three different occasions during the first week of life. The doctors and nurses at Valley Children’s Hospital in Fresno California were the cream of the crop. Dedicated to life! I still remember asking what are his chances. They would answer we don’t know, we simply don’t know. We were encouraged to visit as much as possible. The powers that be (the doctors)explained that touch, human contact, with the parents can do miracles. The doctors and there PhD’s could not explain, but they knew it to be true. The days were long. Weeks seemed liked months. My X wife was in another hospital recovering from the emergency C-Section. I was amazed how strong my little childs grip was after being swooped into the world by doctors far ahead of what Michael or his parents would have wanted or dreamed. Finally after about ten days he began to put on weight. His color improved and the day came to take our wonderful little boy home. He is now six feet tall and as buff as the strongest tree! Through this experienced I learned a great deal about myself. My life has never been the same since. In a flash all that was important in my life changed. All the trivial challenges of life no longer mattered All that was important was Michael. It is my belief that children especially very young children are very close to the veil which separates us big people from our heavenly father. I truly believe these tender little people have spiritual wealth far beyond what you and I can understand. So it is with Josie, She is blessed and will be blessed not only by loving parents and family but by a loving heavenly father who is guiding the hands of doctors. Guiding the hands of people with great knowledge. All will be well. John
Sent on Friday, August 19, 2005 at 2:25:50 PM
john@johnhibler.com

From Nancy Busby,
Hi, Chip & Deb - My dear friend Lee sent me a link to Josie's Weblog. Jesus said He'd never leave her or forsake her, so I'm believing that right at this very moment, His angels have surrounded Josie with comfort and healing. God gave physicians their skill and chemists their intelligence to keep on developing new procedures and new drugs and new smarts for taking care of problems like these. He promised, He provided the help, and He'll see this through. Your faith certainly helps! I'll stand in agreement with all those who have already signed your guest book that Josie WILL recover fully and continue to be a blessing to your lives and so many others by her courage and tenacity to life! In Jesus' love and in mine, Nancy
Sent on Friday, August 19, 2005 at 3:54:56 PM
nbusby@advantexmail.net

From The Lunds ,
Checking in on Josie's progress...but no new news...Tom and I are praying for all of you...Love you much, our little family.
Sent on Friday, August 19, 2005 at 3:58:50 PM
lundlink4u@msn.com

From Frank and Toni Caracciolo,
We are friends of your Grammy Lee. We have been praying for you every day,Josie. Your latest test sound encouraging. We will continue to pray for your complete recovery beautiful child. God bless you.
Sent on Friday, August 19, 2005 at 5:25:14 PM
ftcaracciolo@aol.com

From Jackie Dornfeld,
Josie & Family,
Our thoughts are with you as go through this challenging time. We admire your strength and determination in successfully fighting this disease. If there is anything we can do to help, just let us know.
Love,
Jackie, Paul, Kelsey

Sent on Sunday, August 21, 2005 at 10:13:18 AM
jkdornfeld@mn.rr.com

From Tony Marshall and Kristin Adams,
Hello Everyone ! A note to let you know we are following the updates very closely and praying for every inch of improvement for the lil' warrior Josie ! We hope you feel our love and concern although it be from a distance. Keep up the battle Josie ! and Trip, Henry and Evie; we are very proud of all the things you do each day to help your Mom and Dad look after your 'lil sis ! Jay and Deb, we love you and pray for your continued strength !

love, Tony and Kristin

Sent on Monday, August 22, 2005 at 7:47:41 PM
Teespark @aol.com

From Jon,
Josie, you have no idea how many people are concerned about you and praying for your recovery. Hopefully some day you will read these notes and see how many people love you and your family. We know you are a tough little girl and will be well soon.

Love,
The Newberry's
Jon, Andie, Haley, Tyler and Boomer

Sent on Tuesday, August 23, 2005 at 10:22:59 AM
jon.newberry@libertymutual.com

From The McKeown's,
Hey there Josie-we are so glad to hear that you are feeling a little better. Lots of love and prayers are being sent your way. We love you! Ben, Sam, Riley and Leslie McKeown.
Sent on Tuesday, August 23, 2005 at 3:12:02 PM
lesliemckeown@mn.rr.com

From Gammie,
My dearest, darling Josie,

I haven't been able to type a message to you until now, but I've been talking to your Dad and Mom a lot. Always remember that Mrs. Mouse and I are thinking of you many times every day. When I can, I'll be coming to see you (and of course bring Mrs. Mouse along). Always remember how much you are loved.... and with all the prayers and your fighting spirit, you will prevail. With lots of love and hugs,

Your Gammie

Sent on Wednesday, August 24, 2005 at 6:51:24 PM
lee2beach@aol.com

From Sue Pearce,
So good to hear of her progress! She continues in our prayers!
Sent on Tuesday, August 30, 2005 at 7:12:12 AM
spearce7@msn.com

From Donna Abramson,
Dear Adams,
Our prayers are with all of you, I pray that Josie gets stronger everyday. It was wonderful to see her walk today. Please let me know if there is anything that we can do. God Bless you all!

Sent on Tuesday, August 30, 2005 at 5:09:14 PM
donnaabramson@hotmail.com

From Nancy Hanneman,
Hello, I am Donna Abramson's sister. (I was the "aunt in charge" when she and Wally went to Sweden)She had mentioned that Josie had been very ill, and sent me your web address today. What a path your family has been traveling. As an RN (I consult to Fraser's group homes)I know there are some docs out there who are less than lovely, sorry your sweet baby girl had to run into one of them. However, the doc in charge seems like a winner. Your family is in my prayers, Nancy
Sent on Tuesday, August 30, 2005 at 10:08:34 PM
nahanneman@hotmail.com

From Kris, Jill, Trigve and Annika,
Hey Josie and gang,
We have been out here rooting for all of you and hoping the news just keeps getting better every day!
Trust that if you need ANYTHING, we'd be glad to help!!!

Thinking of you and sending lots of healing wishes and thoughts Josie's way.
Glad to hear you are getting away and having some fun. (Iowa??)
Take Care and hang in there!

Sent on Thursday, September 01, 2005 at 9:48:26 AM
kris@teamfriday.com

From lesliemckeown,
Hi Josie and gang-Glad to hear there is some progress with labs and hope lesions start to heal...It was soooo nice to get together up North and see you and the kids. I'm sure things are a whirlwind this week with school starting. Keeping you in our thoughts and prayers. The McKeown's
Sent on Tuesday, September 06, 2005 at 8:02:43 PM
lesliemckeown@mn.rr.com

From The Madsens,
Adams, We are finally getting to the website after vacation and starting school and what wonderful news that levels are improving for Josie! We know you have a lot ahead yet but it is good to see the meds helping her body fight this disease. Way to go Josie!! Of course she is an Adams with a lot of determination and strong will and energy. We will continue to keep you all in our prayers and especially Josie. Glad to hear the other kids are adjusting to her needs. Hope to see you on the soccer fields. -The Madsens

PS: Jay, We'll be thinking of you doing the Ironman this weekend as we are sitting on the couch ;-) You will do great, we know. Best of luck.

Sent on Thursday, September 08, 2005 at 3:57:45 PM
madsen@mcleodusa.net

From June Jepson,
I'm sending wishes to Josie for the best care and healing possible. My thoughts and love are with you all.
Sent on Friday, September 09, 2005 at 9:38:09 PM
SSJepcaide@aol.com

From The McKeown's,
Hey Josie-can I come watch George of the Jungle with you? Can you believe I have not seen it yet? When you are big you will either LOVE or LOATH that movie. You looked so good at soccer the other night and I hope you grow stonger every day. Tell Mom and Dad to hang in there because this is hard on them too. You're so lucky to have such a loving sister and brothers. We love you very much too! Riley, Leslie, Ben and Sam McKeown
Sent on Sunday, September 18, 2005 at 8:40:09 PM
lesliemckeown@mn.rr.com

From Jim, Beth, Tony and Jack Stellon,
Josie:

You're in our prayers. We are hoping for your continued progress but more quickly. Best wishes for a speedy recovery!

Sent on Friday, September 30, 2005 at 3:36:05 PM
stellone@aol.com

From Gammie,
My darling little Josie, I can't wait to see you here in a couple of weeks. I've been waiting for a long time to see you, Trip, Henry and Evie (and of course, Mom & Dad). Don't forget, I'll have Mrs. Mouse with me. Hopefully, she won't be sleeping too much! I love you lots!!!!
Sent on Friday, September 30, 2005 at 7:58:23 PM
lee2beach@aol.com

From Nancy Busby,
Chip & Deb - Just read the latest update on Josie. I truly know how hard it is to pray for healing day after day for your little girl and not see it manifest...YET. I've been having some physical mobility problems too, and some dear people are standing with me on a scripture, Malachi 4:2 which says, "The sun of righteousness will rise with healing in its wings and you will go out and leap like calves released from a stall." I pray that for Josie too and look forward to you seeing her leap again! Love and blessings to you both,
Sent on Saturday, October 01, 2005 at 1:21:41 PM
nbusby@advantexmail.net

From leslie mckeown,
Josie and family-Have a WONDERFUL time in Florida! Forget all about Doctors and diseases and just ENJOY! Much Love-Riley, Leslie, Ben and Sam
Sent on Thursday, October 13, 2005 at 8:42:22 PM
lesliemckeown@mn.rr.com

From Stellons,
Great news about the bloodwork and we're hopeful the skin issues will be getting better soon. You make a very groovy clown, Josie! We miss seeing you at the hockey rink and we miss Trip being on Jack's team.
Sent on Thursday, November 03, 2005 at 11:39:24 AM
stellone@aol.com

From The McKeown's,
Hi there Josie and all-I'm glad to hear you had a good time in Florida and escaped the latest hurricane. Wow-a normal CPK-that's so encouraging! Hopefully you're at the top of the mountain. We've said so many prayers for you Josie and also the rest of your family. P.S. What an adorable clown you make!!Love, Riley, Leslie, Ben and Sam
Sent on Thursday, November 03, 2005 at 5:14:36 PM
lesliemckeown@mn.rr.com

From Katie Marshall,
Just wanted to let you guys know that I'm still thinking of you all daily, and praying for good news on your toughest little cookie! Thank you so much for the kind words about my mom, I don't think I need to tell you how important those kindnesses are in hard times.

Looking forward to seeing you all at Christmas!!

Katie & Lou

Sent on Thursday, December 08, 2005 at 9:22:44 PM
katiemarshall7@msn.com

From The Lotito's,
Hi Josie and Family,
We hope that all is going well we know that you are a little trooper. We miss you very much.
Love, Uncle Rob, Auntie Karen, Rebecca, Rachel and Robyn

Sent on Monday, December 12, 2005 at 9:52:51 PM
klotito@yahoo.com

From June Jepson,
Hi,

I have Josie's site on the toolbar at the top of my AOL screen. I think about you and Josie and your family a lot. Am glad to read your positive comments. I hope that, soon, very soon, all the comments will be positive and Josie can lead a normal and happy life without pain and without a calendar full of doctor's appointments. Much love, June

Sent on Saturday, January 14, 2006 at 8:14:47 PM
SSJepcaide@aol.com

From Scott Schwefel,
You guys and Josie are in our hearts and prayers, its gotta be stressful, and if we can help, call us on it, dinner or watch the kids, or whatever.

Schwef

Sent on Tuesday, February 28, 2006 at 5:30:25 PM
scott@insightstwincities.com

From The Heilman Family,
Adams,
We are always thinking about Josie and her strength in conquering this pernicious disease. The chemo treatments we pray are a promising outcome!
Love From,
The Heilmans

Sent on Wednesday, May 10, 2006 at 11:20:32 PM
rheilman@frontiernet.net

From Mona & Tim Belchak,
Deb and Jay,
We are concerned and saddened to hear about Josie's lack of improvement. We have had our kids in pain for short bits of time, but can't even imagine how little Josie is handling herself through all of this. You both are pillars of strength for her. We'll pray that God continues to give you strength to endure all that you face.
'He gives strength to the weary and increases the power of the weak.' Isaiah 40:29

Sent on Thursday, May 11, 2006 at 8:01:19 PM
tabinabq@comcast.net

From Tammy,
Good luck this weekend!!!!! I am wishing the ABX & surgery will work for a positive out come (quickly), Hope you feel better soon Josie! Hugs to all the kids (Thanks for the card Evie!!)& to you grownups too ~~Auntie Tammy
Sent on Friday, May 12, 2006 at 8:37:10 AM
camprn@verizon.net

From The Nelson's,
Hi guys,

I hope everything went well. You know you can call us for anything.

P.S.
Last Sunday was a P.R. for me.... I know Deb, running with the tubbies is not your speed.

Sent on Saturday, May 13, 2006 at 12:27:03 AM
sammax96@yahoo.com

From Sammy,
Josie - you are the princess of the world! And if you are a princess, you can overcome anything at all. Kick butt Josie! You go girl!

Love,
Sammy and the Carlson gang

Sent on Sunday, May 14, 2006 at 7:26:20 PM
emilyjimcarlson@msn.com

From Priscilla Moreno,
I'm so sad to see that Josie's condition is not much better and that she has to resort to these chemo drugs. I can't help but feel like this will be an intense short spurt of DM that will phase out. I certainly hope so. No child should have to deal with this. Just keep your faith that this can get better. My rashes went away, and my cpk's dropped from 8,000 to 70 over time. I'm even running up to 16 miles a week now when just a few months ago I was nearly crippled an could not stand up. She is young, and her body will go back to normal. Is she continuing ivig? I know it didn't seem to work at first, but they should give her extreme case a chance before canning it.

http://blog.myspace.com/priscillamoreno

Sent on Monday, May 15, 2006 at 11:16:05 PM
priscillamoreno@gmail.com

From Nirvana,
My Dear Josie!
You are such a beautiful little girl.Don't give up.
I'll be praying for you.
God Bless you.

love,
Nirvana

Sent on Friday, May 19, 2006 at 6:47:25 PM
nirvana_lesha@hotmail.co.uk

From Paula Vicker,
Jay & Deb -
Wish I could think of something witty to say, much like you do in your report. Just know we are all thinking of you and pulling for your entire family.
In our prayers...
Paula & Tom Vicker

Sent on Tuesday, May 30, 2006 at 3:48:47 PM


From Cyndi LaMoure,
Hi Josie- My daughter Michelle sees Dr. Vehe- we live in Bemidji. Michelle was diagnosed with JM in June 2004 when she was 5. Maybe someday you'll get a chance to meet.
Sent on Wednesday, June 07, 2006 at 8:00:58 AM
LaMoure@paulbunyan.net

From Chris Marshall,
Hi Josie! "Hello" to the rest of the Adams family too! I was thinking about you guys over this past weekend and just wanted to drop you a line to let you know that you are all still in our thoughts and prayers (especially YOU...Josie!) Fight the good fight little lady, better days will come!

Love you all!

Chris, Rachelle, Abby, & Zach

Sent on Monday, June 19, 2006 at 9:41:43 AM
CRMarshall27@Comcast.net

From Jackie Hempeck,
Hi Deb, this is Jackie (Stoick) Hempeck,
I just talked with Mary the other day and she shared with me about Josie. I am so sorry to hear of her struggles. What a great website you have set up to keep family and friends updated. I will keep little Josie in our prayers. I don't know if Mary shared with you or not, but I was just diagnosied with MS this past winter- another autoimmune disease. We always think it will be someone else, and not us, right!
Keep strong and trust in the Lord always!

Jackie

Did you follow Andrew Vetsch Caringbridge website- Maria and Ricks son? Sounds like he is doing well now.

Sent on Monday, June 26, 2006 at 12:00:53 PM
jhempeck@comcast.net

From christy,
JUST WANTED TO SAY keep thinking well and all things will get better, i just read this story and it is so sad, but just keep your head up high and stay string, you'll get through it, i am 22 and dealing with alot if the same things, not at all like she has though, but nothing they have tried for me has yet to have worked, i wish i could find someone to takj to also,its so hard and i have 2 kids and a husband. sometimes i wonder if i ever will get through it, but i always remeber there is always simeone out there alot worse off than myself, so just keep in being strong ,my prayers are with you all.
christy

Sent on Wednesday, June 28, 2006 at 11:14:14 PM
cnjvarner@aol.com

From Nancy ,
Chip and Deb - I continue to follow the events in your lives and stay believing for Josie's return to perfect, God-intended health. Your attitudes make a great difference in her recovery, there's no doubt...and I know she must see a family who loves her, who stand by her, and who remain hopeful for the physical manifestation of God's healing that will match this perfect little girl's soul! Be blessed, friends. With Love, Nancy
Sent on Sunday, July 09, 2006 at 4:58:36 PM
nancybusby@grandecom.net

From Jim and Joan Wobbleton,
Dear Deb and family
We are very close friends of your sister Karen and the family. We have been keeping track of the illness that Josie has gotten.
We have your family and Josie in our prayers.
I'm a nurse practitioner so I enjoyed the medical information that you provided in your Blog.
We also have met your mom and dad when they came to Marland the year the Karen moved to Calif.
Love and hugs to you all.
We are living in Murrells Inlet,SC. We're retired Air Force so we have a lot in common with Karen and her family.
Joan and Jim Wobbleton

Sent on Tuesday, July 25, 2006 at 1:39:58 PM
JWobb@aol.com

From Lynn Shadle Gabriel,
Dear deb,
My heart just aches for your daughter and the rest of the family. It physically hurts to imagine all that you are going thru. i am so sorry I did not know for i would have begun praying long ago for healing! for at the very least remission and control of and answers for these things. So, you are in my prayers a many number of times per day and also in the kid's prayers-when we pray together we have added Josie-I believe children's prayers are so pure and strong with no agenda.
On to our conversation. I really hope I didn't overstep my bounds at all. i hope you know i am not trying to say she has or doesn't hve something else also, i just really felt all this information and combination of knowledge and people in this week came to me for a reason. If there was anything that could potentially help I would just feel aweful if i thought maybe something and didn't offer it up. As far as celiac goes i'll be curious to hear what your thoughts are when you research it at all. a good place to look is the research center is www.celiaccenter.org it is the U of Maryland. Stanford has good info too. Interesting some have a skin condition as well and some who are not technically 'celiacs' benefit from a gluten free diet for one reason or another. you will see Autistic children benefit in various ways.these autoimmune diseases are so challenging and the wide varieties of symptoms or lak of them. Please just receive it as a thought of love because that is exactly what it is. Maybe something will end up helping, or maybe the connection was simply to meet this other family who has gone thru this. With my little bit of knowledge i think there's was a bit milder but i am just going to pass the Mom's e-mail on to you.She seems to be a type of person you would connect very well with.She gave me 2 addresses in case one didn't go thru but i have had success with her wok one which was the one in question. i'd try them both. Her name is Janet Ceaglske-Muhich Now you understand why i could not tell you what her name was! Anderson would be easier ;-) here they are:
janet.ceaglske-muhich@osteologic.com
HMUHICH@msn.com

Obviously , i did make it back from Duluth. I am very glad i went. It was clearly the right thing, and the kids did great! i did not break down and swing in to Target for a DVD player. that's a good thing! ;-) It was a trip well worth making.

I hope this note finds you at least partially rested and with things going well. I was happy for you to hear at least Josie was home. i can't imagine what it is like for you. After Blake spent 3 days in children's this winter I swore them off for life! That is difficult, so as i said my heart goes out to you.I am sure you hear 100 time, 'if there is anything i can do..." and i am also saying that and i mean it truly. If for some reason you do end up investigating a gluten free diet PLEASE use me as a recource! you would go broke trying to find the palletable items and 'Children's' is ill equipped to provide the food as well, we learned firt hand.Please know that i care and pray for all the best! I am looking forward to seeing you and i will have the "sweet monster" lovingly 'groggy' for you.;-)

Love and prayers
Lynn

Sent on Thursday, July 27, 2006 at 10:24:20 PM
lrshadle@earthlink.net

From Lynn Shadle Gabriel,
i forgot a question in my first e-mail. did you ever determine what the tummy splotches are? I am assuming you did, but to add to my celiac thing, there is a skin condition that can arise with that also. i think it would actually be a blessing if something like changing her diet would at least assist her immune system even a little. I will do my part and pray. and pray. and pray.
Love
Lynn

Sent on Thursday, July 27, 2006 at 10:29:35 PM
lrshadle@earthlink.net

From Priscilla Moreno,
I hope you not having updated yet this month means Josie is feeling much better. You guys are in my thoughts and prayers.

Priscilla

Sent on Friday, July 28, 2006 at 2:49:08 AM
priscillamoreno@gmail.com

From Lynn Shadle Gabriel,
Hi guys.
Lynn again. Dakota sends his love by the way ;-) . Sorry he is such a monster for you, but he really is a love believe it or not.

I can't get you off of my mind. I have been combing thru literature for Celiac and continue to find cross reference to Myocitis. The theory is, where there is one autoimmune, there could very well be another.( I am not implying a misdiagnosis, i am concerned about an aditional one and it is SO missed in the medical field). I pray that the Lord will speak to your heart and for elimination, just do a blood test. it would be such a blessing to maybe find a source and/or at least eliminate 'some' symptoms and gain some comfort for Josie. It literally broke my heart to see you see my kids and notice faith(who is not quite 2)and Josie's size. I hope i didn't add pain to pain. Things must be very busy there I can imagine, as i see you guys haven't updated the site for a while. I want you to know that your family is in our prayers on a regular basis for healing, for more answers, for stregth.
I would love to see you soon..without the monster in tow!
Love and prayers,
Lynn Shadle Gabriel

Sent on Wednesday, August 23, 2006 at 8:30:56 AM
lrshadle@earthlink.net

From Tammy,
HI folks, Tammy and Dakota are thinking of you today, again. Hope it is all as good as it can be. Love to you all~~T & D
Sent on Tuesday, August 29, 2006 at 7:50:04 PM
camprn@verizon.net

From Joan and Jim Wobbleton,
So glad that Josie is enjoying the blanket and the teddy bear we sent her.
I have talked with Karen on a regular basis and understand that Josie is having a rough time.
Our prayers for you and your family.
Love

Joan and Jim

Sent on Sunday, September 03, 2006 at 10:21:58 AM
jwobb@aol.com

From Rod Helm,
We are always thinking of you guys. Let us know if we can help with anything...running kids around, babysitting at our place...dropping everyone off if you want to do a long workout together..anything. I know things will turn out for Josie, but what a hard path for a little one to go through.

Love,
Rod, Jo, Alexa and Charlie

Sent on Thursday, September 07, 2006 at 3:32:24 PM
rhelm@rodhelm.com

From Eric and Kari Lleva,
We hope things will improve soon. We are praying for Josie's speedy recovery.
Sent on Friday, September 08, 2006 at 9:05:03 AM
e-james@msn.com

From Lisa Heilman,
Hey There Adams Family!! Just checking in to see if there was a new Josie update. I left a phone message to see if the other kiddos wanted to play today.

Thinking of you and sending our prayers!
Love
Lisa Rich Lucas and Isaac Heilman

Sent on Sunday, September 10, 2006 at 11:11:44 AM
lheilman@frontiernet.net

From Eric, Kari and Ingrid,
Josie, we hope you get better soon. You are in our thoughts and our prayers, as well as your mommy,daddy, brothers and sister so that they can keep up the great job they are doing.
Sent on Sunday, September 10, 2006 at 8:06:55 PM
e-james@msn.com

From Kathy,
Dear Jay and Deb,
I have met you through baseball as grandparent of Ben Nygaard. My heart goes out to you as you face the daily trials of Josie's condition and the needs of the rest of the family. If I can be a stand-in for grandparents at the house, please contact me. It is more than one family can sustain without the help of others. I can help with meals, transportation, or laundry. Until I hear from you, I will pray that God will be merciful and provide wisdom for those caring for Josie.

Sent on Tuesday, September 12, 2006 at 1:05:48 PM
kjosn@avvidtech.net

From Nona & Rob Bergh,
Our thoughts and prayers are with all the members of your family. Geoffrey had the IV immunoglobulins when he had chemo, it helped considerably. I hope Josie's results are the same. Please call to stay at your home with the kids day or night.
Sent on Tuesday, September 12, 2006 at 4:18:21 PM
nbergh@mn.rr.com

From Jon and Andie,
Our thoughts are with you guys. Hang in there Jay and Deb!

Call us if we can help in any way. Know that we and many others are there for you when needed.

The Newberry's

Sent on Tuesday, September 12, 2006 at 4:44:38 PM
jon.newberry@libertymutual.com

From Kris,
We're still wishing for comfort and relief for Josie and the whole family. I dream and hope for the day that you can look back and be done with all of this that Josie is going through. She will be a strong individual to be sure!
She's probably going to be the greatest MD specialist in the world!
As a parent, it is so hard to hear of her struggles and such a helpless feeling to stand by without answers.
We do stand by with hopes, dreams, wishes on stars and prayers for Josie's recovery.
Hoping to see Josie at a hockey rink/soccer field soon!!!

Sent on Wednesday, September 13, 2006 at 12:01:58 AM
kris@teamfriday.com

From Uncle Rob, Auntie Karen, Rebecca, Rachel & Robyn,
Sweet sweet Josie and family,
We are praying that they will soon find something that will help. We miss you all terribly and wish we could be there to help you in your time of need. We will continue to pray for you all. We love and miss you very much.

Sent on Wednesday, September 13, 2006 at 12:05:46 AM


From Katie Marshall,
still thinking of you all (as always...)

all my love to the Unstoppable Adams Family
-katie and lou

Sent on Wednesday, September 13, 2006 at 10:04:08 PM
katiemarshall7@msn.com

From Jill,
Hi sweet Josie!! I hope you come home really soon- the Richfield gang misses you. You have kept us moms and dads company- many evenings. It was nice to see you enjoy your new coloring book (Leslie is the greatest!) I hope each day is better than the one before!!

We are all thinking of you often- and your family too!

Jill S.

Sent on Thursday, September 14, 2006 at 2:08:14 AM
jill@gofurnitureMN.com

From The Nygaards - Jerry, Lisa, Emily, Sarah and Ben,
Josie,

Hey Josie, this is the Nygaard family. We want you to know how sorry we are that you have to be going through all this yucky stuff and to let you know that we are thinking of you often. You are an amazing little girl! We are praying for you and your family.

Love, the Nygaards

Sent on Thursday, September 14, 2006 at 7:33:06 AM
jerisany@mcleodusa.net

From Mike Nelson,
Josie,

My brother Mark told me about your family last night. We wanted to tell you that we think you are a special little girl and to let you know that you have friends in St. Louis, Missouri. We are thinking about you and praying for you. Stay brave!

Mike, Jenny, Margo, and Tatum Nelson

Sent on Thursday, September 14, 2006 at 7:51:12 AM
nelsonm@webstergroves.org

From The Madsens,
Adams - We can't stop thinking about all of you and we are praying. Keep on fighting Josie!! We are praying for all of the medical staff too. We live in a time when everything should just be able to be fixed so this is a lesson in patience for all of us and to remain strong that God will take care of everything. Love, The Madsens (Sarah's praying in Eau Claire too!)
Sent on Thursday, September 14, 2006 at 4:22:28 PM


From Lisa Heilman,
Hi there all. I'm checking the messages every day and praying for some good news. You are one tough cookie Josie!

Love, The Heilmans

Sent on Friday, September 15, 2006 at 9:24:07 AM
lheilman@frontiernet.net

From Kati and Mike,
Hi Josie and family,
Kati got to ride her bike with your sister Evie today. After a few miles Evie said that her strength was surprising her. Well, Josie, you can say the same thing about yourself! We want you on our team because you're so tough - and cute too!
See you soon,

Sent on Friday, September 15, 2006 at 9:09:50 PM
kcuw@usfamily.net

From Donna,
Deb and Jay,

Our hearts are heavy everytime we drive by your house, we are praying for all of you.

Sent on Friday, September 15, 2006 at 9:57:24 PM
donnaabramson@hotmail.com

From Barb Belchak,
Mona (my daughter-in-law) has been keeping me posted on Josie's on going battle of health issues. Josie has touched my heart and I am praying daily for Our Lord's healing power to touch her. Josie's Prayer - Jesus took my infirmities and bore my sicknesses. Therefore I refuse to allow sickness to dominate my body. The Life of God flows within me bringing healing to every fiber of my being. (Matt.8:17; John 6:63.)


Sent on Saturday, September 16, 2006 at 2:57:03 PM
bbbeulah@means.net

From Haley Newberry,
Hi, im so sorry....we are all here for you and Josie! Keep up with the updates....Happy (really cold) Fall!
Sent on Sunday, September 17, 2006 at 10:24:27 AM
tennisluvya@yahoo.com

From Thor Hsu,
Dear Josie,
I hope your sickness goes away soon and you feel better. That cat-thingy you have is really funny. The way they feed you is kind of cool.
I will say a prayer for you tonight when I go to bed.
Your friend,
Thor

Sent on Sunday, September 17, 2006 at 1:35:12 PM
thor.hsu@gmail.com

From Annika Hsu,
Dear Josie,
I hope you feel better soon and come for a visit.
I also had something like what you have (not really - says mom). It was good to see you and I hope you come home soon.
Love your friend,
Annika

Sent on Sunday, September 17, 2006 at 1:44:54 PM
annika.hsu@gmail.com

From Aggie Varady,
Jay & Deb,
I am devastated to hear that Josie continues to be so very sick. Mark & I discuss news of her progress multiple times daily. I cannot even begin to imagine the despair you must feel watching brave, sweet, innocent Josie suffering so much. There can be no greater test of your faith, not to mention endurance. We are in awe of ALL of you... the Adam's Family strength is an inspiration to everyone. I pray that you're assessment that she is on an upswing is correct, and that the Remicade works quickly & effectively tomorrow. God knows this child deserves a break. Hang in there and know that there are many, many people pulling for you.

P.S. I know that Mark, Bob, Andy & others are working on a plan to help you with some of your time constraints. PLEASE accept their offer without any hesitation. Everyone wem know desperately wants to help in some small way.

Sent on Sunday, September 17, 2006 at 4:32:23 PM
AIV1026@AOL.COM

From Matson family,
Josie, we hope you're smiling again soon. We would be happy to take Evie any time. I work in Edina and can help pick up the boys and transport to soccer. Just let us know what you need.
Marci, Steve, Evan and Emma Matson

Sent on Sunday, September 17, 2006 at 11:31:17 PM
marci@soncom.com

From Bob Marshall,
Dear Jay and Deb--
I am so sorry for all that you and your family, and obviously Josie, have been going through all these many months. I'm sure it has been absolutely heartbreaking for you and my heart goes out to each and every one of you. Good luck as you go forward. I am praying that Josie gets much better soon.
Love,
Bob


Sent on Wednesday, September 20, 2006 at 3:18:11 PM
robertm@rmlawoffices.com

From Amy Alvero,
I read your blog with tears in my eyes. I am amazed at the strength and resilience of Josie and the whole family. Our thoughts and prayers are with you all. Josie is a very determined fighter - keep getting better and better!
Sent on Thursday, September 21, 2006 at 7:55:51 AM
aalvero@mn.rr.com

From Amanda Strini,
Dearest Jay and Family,

I was searching the internet for some answers for something that's going on with my son and by chance happened upon Josie's sight. I read the entire website on the spot. From all of us here at McGuire AFB, NJ, you are in our thoughts and our prayers. We hope for some healing both physically and mentally for your entire family. If there's anything at all that we can do to help in any way, please let us know.

The Strini Family

Sent on Thursday, September 21, 2006 at 5:22:41 PM
strinibunch@yahoo.com

From Kris,
Thanks for the updates!
Wow. No kidding she's due for a break. Kind of puts things in perspective, doesn't it? I suppose you guys have all the perspective you need for a lifetime!
As soon as Josie can have some "dolphin and friends" crackers we'll bring her a basketfull...maybe a truck?
So, did the guy with the radioactive syringe look odd in any way? Seems like a strange way to administer something that the terrorists would like to get ahold of. YIKES.
I'm hoping you all catch a break here pretty soon.
Day or night, give us a call if you need help!

Sent on Friday, September 22, 2006 at 7:44:39 AM
kris@teamfriday.com

From Stellons,
The strength of your whole family amazes me. We offer much love, unconditional support and as many stickers as possible. You are always in our prayers.
Sent on Friday, September 22, 2006 at 5:20:57 PM
StellonE@aol.com

From The Hays Family Zach, Elliott, Wendy,
Dear Amazing Adams Family,
Thanks for sharing Josie's amazing journey with us. Know that you are in our hearts, thoughts and prayers.

Love,
Zach, Wendy and Elliott

Sent on Friday, September 22, 2006 at 11:12:51 PM
wshortha@vischool.org

From Gammie,

Hi Josie, It's Gammie here. I have something in the mail for you. I hope it will make you happy, so think of me when you look at it. I love you so much, and I can't wait until you can come and visit me at the beach again. Give hugs to Evie, Henry and Trip - and of course your mom and dad.

Sent on Saturday, September 23, 2006 at 9:58:04 AM
lee2beach@aol.com

From Joan Wobbleton ,
Reading the blogs and wondering how all of you are managing to cope. Especially Josie.
We think about her everyday and pray for something like a miracle to make the doctors know how and what to use to treat her and make it better.
Hugs and Prayers for all
Joan and Jim Wobbleton
Murrells Inlet,SC

Sent on Sunday, September 24, 2006 at 10:28:13 AM
jwobb@aol.com

From Mona,
Awesome! Glad to hear that you guys are home! Enjoy this little break and just be a family.
Sent on Sunday, September 24, 2006 at 5:52:11 PM
tabinabq@comcast.net

From Nona and Rob,
Jay and Deb, Thank you for your continual updates. No words can express my surprise and moan that happened as I read the latest news. Our Prayers and thoughts are with you and your family.
Sent on Monday, September 25, 2006 at 4:46:48 PM
nbergh@mn.rr.com

From ~Mona and the crew,
Sorry your home visit was so short. So grateful that Deb is maintaining a balanced emotional/mental state and was watching with an investigative eye. A true gift from God -Mom's Intuition! Hang in there!!!


Sent on Tuesday, September 26, 2006 at 10:23:47 AM
tabinabq@comcast.net

From Lori Swetala and Family,
Hello Josie and Family. just catching up on this hard last mohth's activities on the website. There is a fabric heart ornament Deb gave me (and others) once and I hung it by our coats. It's our prayer heart for Josie. Our prayers are with your family, and hopefully some home cooking too...
Sent on Tuesday, September 26, 2006 at 2:42:30 PM
lswetala@yahoo.com

From Kris,
Wow, unbelievable. Hoping for a longer homecoming next time! Thanks for the updates and keep hanging in there!
Sent on Tuesday, September 26, 2006 at 3:53:42 PM
kris@teamfriday.com

From LaMoure Family,
Josie-- its the LaMoure family we met in June with other JM kids - (We live in Bemidji) and want you to know that our thoughts and prayers are with you and we hope you get better so we can see you again.
Sent on Wednesday, September 27, 2006 at 8:52:08 AM
LaMoure@paulbunyan.net

From Jacqueline Krainz,
I just read your story and it breaks my heart -- JOSIE you are the strongest little girl I know-- GOD bless you -- hang in there -- I will be praying for you. I also have a son that has JDMS so I know the battle --you have amazing parents.
Stay strong and we are all looking forward to that cure for JDMS one day-- soon.
Jacqueline Krainz

Sent on Wednesday, September 27, 2006 at 9:08:00 AM
jckrainz@gmail.com

From Dan Anderson,
Jay, thanks for giving me the web address. I have shared this site with a few colleagues at CPC. On days when I cannot get to the hospital or when I do not see Josie, I can stay up to date. I am glad that, (at least as of noon yesterday) Josie was doing better. We will walk this journey with you and your family, praying that God's kindness will strengthen your family
Sent on Wednesday, September 27, 2006 at 9:24:06 AM
danderson@cpconline.org

From Dan Martin,
I found you through the JDM board. We are in the San Francisco area and have a daughter who is about to turn 6. She was diagnosed in mid 2004 and recently entered remission. We feel very lucky and it is beyond heart breaking to see your ordeal. It seems like you are getting the best care...if you ever end up in the San Francisco area and want to get the girls together drop us a line.
Sent on Wednesday, September 27, 2006 at 9:51:59 AM
jakesmyboy@gmail.com

From Doggie Prescott,
Hi JoJo,
I hope youe feeling better and can't wait to see you soon. I miss your pats on my head.

lick, lick
Prescott

B's dog

Sent on Wednesday, September 27, 2006 at 4:14:55 PM
r_anderson33@hotmail.com

From Lori & Emily,
Josie,
We read on the JDM board that you were having a hard time. After reading some of your blog we would say that is an understatement! We will add you to our prayer list for a quick recovery and an easier time with all that has happened to you!
Emily was diagnosed with JDM Sept 20, 2002 at the age of 7. Thankfully she is doing well now, and weaning off the methaltrexate! She had a tough time in the beginning too. Nine weeks after her port was inserted for treatment a hole mysterioiusly appeared and she had to have it replaced. Any side effect you could think of from the prednisone & methatrexate she got:( infections on her toes, sores under her eyes, hair loss, pneumonia secondary to a cold....the list goes on, we too wondered what was going on. There is a light at the end of the tunnel. We hope and pray that you see yours soon!!!
Stay strong and keep that wonderful smile on your face. We will be rooting for you!!!
God Bless!
Lori & Emily:)

Sent on Wednesday, September 27, 2006 at 4:20:45 PM
emmyrocks88@hotmail.com

From Sherri McGurran,
Josie and Family,
Our daughter, Maggie, was diagnosed with JM January 2004. Faith, family and friends have helped us through this difficult journey. From what I have read, you have an abundance of all. We are praying for you.

Sent on Wednesday, September 27, 2006 at 7:56:42 PM
smcgurran@hotmail.com

From Debbie T,
Hello, I just wanted to write you and send my love to Josie and your family. I will keep you all in my thoughts and prayers. I can't even imagine what you must be going through but I felt the need to reach out. I must commend you on your blog. The time you are spending documenting each and every day is inspiring to say the least. I hope and pray that things will improve for Josie. She is such a beautiful little girl. Please send her our love, I will check back in from time to time. I hope that one day there will be a cure, and wouldn't it be wonderful if in any way the blog you are keeping will help to find that cure. With Love and in Friendship; Debbie
Sent on Wednesday, September 27, 2006 at 11:35:08 PM
avarose04@msn.com

From Sharlene,
Our family prays for a speedy and problem free recovery for Josie.
Sent on Thursday, September 28, 2006 at 6:09:46 AM
ballardfamily@bigpond.com

From John and Denise Lueker,
I read the blog and our hearts go out to you. It made us think of the ordeals we went through and the anguish and know that you are not alone. It is tough now but it will get better. Wishing you and your family the best
Sent on Thursday, September 28, 2006 at 8:59:19 AM
JDAVLUKE@consolidated.net

From Jill Mickelson,
Be brave Josie. There are soooo many people praying for you and wishing you the best. My little girl, Gracie, also has the same disease that you have. She is brave just like you and is feeling good right now. You will feel better too!

Hugs,
Jill and Gracie
(Wisconsin)

Sent on Thursday, September 28, 2006 at 9:55:30 AM
jillmickelson@aim.com

From Naomi Larson,
Hi to Josie and your family,

I met you last summer at Jeremy Stalcar's exciting baseball game. (I am Kay's big sister.) As we were talking today she talked about you and she let me know about your 'blog'. She has told me about you, and that she loved to have you sit on her lap, and she loved camping with your family and friends. Well, I want you to know our family will be praying for you. We will be praying that Jesus will be right there with you, to help you heal and to give your mommy and daddy everything they need for each day! It was fun to hear about the big 'purple' visitors you had...maybe relatives to Barney!!

Sent on Thursday, September 28, 2006 at 10:01:52 AM
naomilarson@yahoo.com

From Franklin,
Josie, Today I started reading about your "adventure" and I want you to know that I think you are a strong little girl. I have had polymyositis for 22 years and I have had my ups and downs but your situation is so much more involved than mine. I used to be a first and second grade teacher and I know about children. I will pray for you and I know some day you will overcome all of this. God bless you.
Franklin

Sent on Thursday, September 28, 2006 at 11:55:45 AM
fhg687@msn.com

From Michelle Shewbridge,
Josie and Family - our thoughts and prayers are with you. Our little girl Rachel (6) was diagnosed with JDM in May '04. We truly believe a cure will be found one day. Until then, stay strong and fight!!

Love,
The Shewbridge Family
(Chris, Michelle, Taylor & Rachel - MD USA)

Sent on Thursday, September 28, 2006 at 12:28:20 PM
chrisshew@comcast.net

From Marie Gorham,
Hey Deb, I have been keeping track of you and Josie through the Richfield grapevine. We miss Josie at Fraser and are praying for her complete recovery!
Would a visit from Kathryn and I help?

Sent on Thursday, September 28, 2006 at 2:25:10 PM
mthereseg@aol.com

From Andy, Brigid and Katie Laske ,
Adams Family:

I wanted to let you know that the Laskes have been thinking alot about you all and Josie. I have been reading your blogs but we have struggled to know how we can help out.

If there is anything that we can do for your family please let us know. We would be happy to watch the kids or even take them to one of the gopher games coming up.

I'm glad to see things are looking a bit better. We admire your strength. You are in our thoughts,

Andy

Sent on Thursday, September 28, 2006 at 5:03:20 PM
andrew.laske@target.com

From Scott Olson,
Hello Josie,
My name is Scott Olson,
My wonderful friend JanSport Guenther form GearWest talks about you, and how your fighting the disease.
keep up the fight girl!
When you get well, I would love to have you visit my farm in Waconia and see all the animals, birds, inventions,
Then you can try out my latest invention SkyBike, and we can walk around the chicken coup and find fresh eggs
Thinking postive thoughts of you!
Your new fan,
Scotty Olson

Sent on Thursday, September 28, 2006 at 5:21:31 PM
scott@rowbike.com

From Joce,
Dear Josie and parents ,

Words cant express the overwhelming feeling that I have for you guys. I send prayers and hope for you . My DM has never been anything close to poor Josie's .

Only good thoughts for you .

Joce

Sent on Thursday, September 28, 2006 at 6:01:22 PM
efsjm@hotmail.com

From Darlene Lund,
That was a Berkey bump...he thinks He is a lap dog too, just like SB...what is with these dogs. Thanks for sharing him with us! Josie...get better so I can get those 3 or 4 little kisses I give you...I'm loveing you. (Grandma) Darlene
Sent on Thursday, September 28, 2006 at 6:55:14 PM
lundlink@mac.com

From Becca and Gary,
Josie,
We pray for you and your family everyday. Stay strong, I know that you can fight this latest twist.

Hugs,
Becca and Gary

Sent on Friday, September 29, 2006 at 9:12:23 AM
r_anderson33@hotmail.com

From Kay Stalcar,
Hi, Josie, Deb & Jay
I have been reading and keeping tabs on all that you have been going through. I can't believe what a long road this has been. Just wanted you all to know that I am thinking about you and praying for you all. We love you Josie and hope that you can come home again soon.
Love your pal, Kay (the go-gurt lady)

Sent on Friday, September 29, 2006 at 1:53:38 PM
kstalcar

From Christy Reynolds,
Hello Josie- My little girl Natalie is 3 and also has JDM. She was diagnosed around the same time you were, June 27,2005. I'am sorry to hear that your having such a hard time. Keep your chin up, things will soon get better. I asked Natalie if there was anything that she would like to say to you? Her reply was that she would like to make you a card to mail to you. That would make you feel better! Our thoughts and prayers are with you and your family- Christy and Natalie from Texas
Sent on Friday, September 29, 2006 at 2:33:18 PM
Richard.Reynolds13@verizon.net

From Jacquelyne DenUyl,
Hi Josie! You're one tough little girl, you just keep fighting. Our son has JDM, he's now 19 and strong enough to go to college. We're fundraising through Cure JM foundation for research to help all kids with JM. We are inspired by your courage. May you gain strength every day.
Jacquelyne DenUyl

Sent on Friday, September 29, 2006 at 8:40:39 PM
DenUyl@aol.com

From Scotty Van Eerden,
Hello, My name is Scotty Van Eerden and I am running the Chicago Marathon to help find a cure for JM. I am 14 years old and I absolutely pray that God will perform a miracle on your daughter. Even though you don't know me, I am praying for your daughter, your families, and all lives that have been affected by JM. Blessings to ya'!
Sent on Saturday, September 30, 2006 at 9:19:42 AM
runningtowin1116@yahoo.com

From Marilyn and Gordon,
Dear Chip and Family,

We met all of you at Ed's memorial service, and we've been "visiting" Josie's website fairly regularly. We are truly amazed by all of your strength and courage!! And Josie really deserves a medal of honor! Our thoughts are with you in this latest test of nerves and frustrations. Heads up once again. Better days are definitely coming!

Sent on Saturday, September 30, 2006 at 10:19:35 AM
Marilyn@wilmots.org

From Connie,
We hope that leak will heal without more surgery.
Sending loads of healing thoughts -
Connie and Madeleine
www.caringbridge.org/tx/madeleine

Sent on Saturday, September 30, 2006 at 3:02:26 PM
cgoldtx@aol.com

From Ed & Caroline Gaiser,
Dear Josie,

We are praying for you, your mom and dad & your brothers & sister. We are so happy you are feeling better. You are a very brave girl and are an inspiration to all of us.

We had a great visit with your Grandma Lee out here in California. Get well soon!

Love, "Aunt Caroline & Uncle Ed"

Sent on Saturday, September 30, 2006 at 3:51:40 PM
c_gaiser@hotmail.com

From Tom and Beth Goodchild,
From our family to yours. Josie, what a strong brave little girl you are! Keep up the good work mom and dad! Our thoughts are with you all
Sent on Saturday, September 30, 2006 at 9:29:51 PM
Tbgoody@msn.com

From MCAMBIAR,
Dear Adams's

IT HAS BEEN SOOOO LONG SINCE I HAVE TALKED TO YOU - BUT I HAVE HAD CONTACT WITH LEE AND TAMMY

I AM SO SAD ABOUT JOSIE


THERE IS NOTHING I CAN DO, BUT FEEL FOR YOU

LOVE MINDY

Sent on Sunday, October 01, 2006 at 9:53:30 PM
mcambiar2yahoo.com

From Leslie McKeown,
HI Josie-
When you're older you will read this and marvel at what your little body went through. I hope this time is someday just a faint memory. Isn't it special that so many people care about you and your family? We all just love you so much and want you to be well. There is a funny story that I want to tell you about your "Welcome Home" party after a trip to the hospital. A bunch of your family's friends came over to welcome you home and have some pizza. You were not able to eat anything by mouth and had a bag of TPN infusing-how fun is that? You sat at your kitchen table, surrounded by food, and held onto 2 little packs of M&M's that you were going to eat when your tummy was healed up. You said you were going to keep them in bed with you so no one would eat them. You didn't complain one bit. I kept watch wondering if temptation would get the best of you and you would sneak a taste. You just held onto that candy. You are so brave Josie and we adults who love you say it is just not fair that you have been handed this disease. But, we know that you are so very strong and determined. Hopefully someday soon you will eat those M&Ms!
I have you and your family in my prayers and I love you very much! Leslie McKeown

Sent on Sunday, October 01, 2006 at 11:13:37 PM


From Mari,
My son and I are researching your daughter's struggle. We are torn for words. My daughter, his sister, was diagnoised almost 2 years ago. Our story can not compare to your story, and I have brought the family together to view your blog and although we have suffered through tough times, I can no longer state that they were tough. Our lifes had changed and our family changed. Ariana could not walk, could not climb stairs, could not swallow normally, could not sit up, gained 30 pounds, and grew hair everywhere!

That being said, we have not gone through anything that your family is going through. We were lucky enough to have Loma Linda Childrens Hospital driving distance from us, and through their care and experimenting with my daughter, Quint's sister, she is now one of the best soccer players on my team. Just know that you can fight this disease! I can only advise you that it is all about finding the right doctors, and finding the correct medicine.

Quint is sitting next to me and said you need to give this family some help, what can we do to help? Check out cellcept. Not commonly used for dermatomyosits, it is used for transplant patients to help their body to not reject it's new organ. In our case it was used so that My daughter would not reject her own immune system.

I can go on and on for hours, I just want to let you know that I am so proud of you as parents, I have never seen such a severe case of this darn disease, and the fact that you take time in your lifes to share and educate is amazing! My husband is a documentary film producer, and though we could have filmed and shown our struggle, it was always to close to home- to emotional.

Thank you for sharing your story, and may God Bless you and your family.
I WILL NEVER FORGET YOUR DAUGHTER, AND I WILL NEVER STOP THINKING ABOUT HER.
Mari

Sent on Monday, October 02, 2006 at 9:45:01 PM
mariberkemeier@earthink.net

From The Arnold Family,
Hi Josie -

Jillian can't wait to see you when you get home, and hopefully that will be soon.

Your Mommy and Daddy are pretty incredible people, too!

Our thoughts are with you all -

Bob, Sarah, and Jillian Arnold


Sent on Wednesday, October 04, 2006 at 11:15:03 AM
rja@teemaster.com

From Carlson's,
Wow - Josie - what a month it has been for you! We hope you are home soon and that your tummy gets better in time for Halloween! It sounds like you deserve a truck full of candy!!

Our thoughts and prayers are with you Josie!

Sammy, Nisi, Emily and Jim Carlson

Sent on Wednesday, October 04, 2006 at 11:26:11 AM
emilyjimcarlson@msn.com

From Grandpa & Grandma Lund,
Josie...we can't believe it...we're gone for a few days and we thought you'd be home to greet us...we're so sorry you're not up to snuff...but we know you are made of good stuff and you'll soon leave all this behind. we love you. Tom and Darlene Lund
Sent on Wednesday, October 04, 2006 at 7:15:40 PM
lundlink@mac.com

From Andrew Ferrara,
Hi there Josie! Neither you nor your parents know me but you're such a strong-willed courageous little girl. Hang in there! We're rooting for you here in Rhode Island. You are such an inspiration to me and my loved ones. Let us know what you like/are interested in and we'll send you something ASAP. I have just recently returned from Iraq and I greatly admire your inner strength.
Drew

Sent on Wednesday, October 04, 2006 at 9:12:25 PM
drewferrara@gmail.com

From Sara Ollivia,
Josie's an angel...
all of you stay strong and my prayers are with everyone in this family.

Sent on Thursday, October 05, 2006 at 5:58:14 PM
Sara_o09@yahoo.com

From Tim and Mona Belchak,
It is awesome to see Josie up and painting!
Praying that things continue in this trend!


Sent on Friday, October 06, 2006 at 8:55:38 AM
tabinabq@comcast.net

From Aggie,
Please, please, PLEASE let this be the beginning of better days for little Josie. You are in my thoughts all the time. I pray for you every day...
Sent on Friday, October 06, 2006 at 10:48:08 AM
aiv1026@aol.com

From Kay ,
Josie,
Been thinking about you, I am so glad that you are feeling better. Hope you can come home soon.

Sent on Friday, October 06, 2006 at 2:45:14 PM


From Kay Stalcar,
Josie,
Been thinking about you, I am so glad that you are feeling better. Hope you can come home soon.

Sent on Friday, October 06, 2006 at 2:45:42 PM
kstalcar@cojlbc.org

From Joan and Jim Wobbleton,
We read the blogs and try and understand what all of this means for Josie. It's been so hard for all of you so I guess you must just go hour by hour or minute by minute. It's too hard to plan when dealing with this awful disease.
blessings and prayers for all.
May it all come to healthy ending with a healthy little girl.
Joan and Jim

Sent on Friday, October 06, 2006 at 7:57:59 PM
jwobb@aol.com

From Lynn Gabriel,
Dear Josie,
Hi there Josie. I have never met you, but your Mom takes great care of my dogs! As I know she is taking care of you. I have a little boy who is exactly the same age as you and he, Blake, and his sister Faith and I pray for you all the time to get better! Josie, I know you are going to be healed and feeling better soon. We are looking forward to meeting you!
God Bless You
Blake, Faith, Lynn Stan, Dakota Gabriel

Sent on Sunday, October 08, 2006 at 1:12:18 AM
lrshadle@earthlink.net

From ~Mona and the crew,
Praise God for your awesome day!!!!
Seeing Josie up and around filled my heart with joy!
Keep it up, Josie!

Sent on Wednesday, October 11, 2006 at 7:30:15 AM
tabinabq@comcast.net

From Stellons,
Stickers?! Josie is hunting for stickers?! We can solved that problem! We'll stop by the house this evening with a package. At least there is one problem we can readily cure!

We send much love to you all.

Sent on Wednesday, October 11, 2006 at 10:24:08 AM
StellonE@aol.com

From Aggie,
Dearest little Josie,
We're all hoping that today is just as great, if not better, than yesterday. My heart filled with joy to see you walking with a smile on your face. Fingers crossed that the worst is over.

P.S. Uncle Mark send lots of love from South Africa. He's so worried about you...

Sent on Wednesday, October 11, 2006 at 11:08:03 AM
aiv1026@aol.com

From Sue A. Awes,
Hi, my name is Sue Awes and I am the education coordinator at Fraser School. I was here when Josie was doing so well in Eda's room. I remember when she came she was so weak but then later she was pulling a wagon full of her friends. I know Josie will be doing this again just as soon as she feels better. You can tell she is ready to go from the picture where she is walking down the hall. Tell Josie we are thinking about her all the time at Fraser School and we know she will be back to play in the gym with her friends. I know this must be a difficult time for you and your family. Please let us know if we can help in any way. Our thoughts and prayers are with Josie and the family.
Sent on Wednesday, October 11, 2006 at 4:47:43 PM
suea@fraser.org

From Lynn Gabriel,
Dearest Josie,
Good for you! We are happy to see you gaining your strength! Every day, both at all meal times and bed time when we say grace and bed time prayers and leave an open oportunity for Blake and Faith to pray for whatever they want they both "individually"(at bed time they are not in the same room) they say "and Josie". Faith just began doing this as she is not 2 yet. We are pulling and praying for you! Stickers are the best aren't they? We like them too! do you stick them on your Mom and Dad? We do too. sometimes it makes them sparkly.
Love,
Blake, Faith, Lynn, Stan Gabriel (and Dakota!)

Sent on Wednesday, October 11, 2006 at 10:18:56 PM
lrshadle@earthlink.net

From Bill Hittler,
Josie: I hope that the "Comet's Nine Lives" book is a fun one to read with your mom and dad. We look forward to seeing you soon (at home)!

Sent on Thursday, October 12, 2006 at 11:50:39 AM
whittler@halleland.com

From Kay Stalcar,
Hi Josie,
I am so glad that you had such a good day on Tuesday! Nikki has been asking about you alot, she wants to come and visit you, she has been praying for you. Keep fighting and getting better.

Sent on Thursday, October 12, 2006 at 12:38:30 PM
kstalcar@cojlbc.org

From Darlene Lund,
Hi Josie, just checking in to see how our mouse is...and you look beautiful standing up there. I love you. dj
Sent on Thursday, October 12, 2006 at 7:02:59 PM
lundlink@mac.com

From Jill, Kris, Trig and Annika,
Josie your looking like your almost ready to strap on a pair of hockey skates! Maybe you and your mom can lace them up together this winter - won't be long now with the snow flying. If we have to we could probably put some double runners on that IV stand. I haven't seen your mother skate yet but if she needs double runners we could probably rig that up too! Glad to see you smiling and happy. I'll have Kris send over some dolphin crackers when your up to it. Take care.

Jill, Kris, Trig and Annika

Sent on Friday, October 13, 2006 at 12:16:35 PM
jill@teamfriday.com

From Kris Duryea,
PHEW!!! Two positive posts in a row?!?!
GO JOSIE GO! The photo of the kids is awesome! It's good to see Josie up and smiling!
Can't seem to stop using the exclamation point!!!
Glad to hear Josie is feeling better.

Sent on Saturday, October 14, 2006 at 12:30:42 AM
kris@teamfriday.com

From Maria&Gary Marshall,
Dear Adams Family
We are sending all of you our love.
Wish we lived closer as we would offer more in the way of help with meals and schedules. What an inspiration Josie is to us all. We pray for healing and comfort for you darling. We carry you in our hearts daily and we carry the rest of you too! We deeply,deeply care from afar, feel our love. Maria and Gary Marshall

lease enter a message

Sent on Saturday, October 14, 2006 at 7:58:19 AM


From Dan Anderson,
Dear Jay and Debbie ~ and Precious Josie,
I did not get back to UM this week after Monday. I see this has been another challenging week. I share with you some of the anxiousness and frustrations you must at time be feeling. God says to us, "When you pass through the waters, I will be with you. When you go through the raging river, it will not sweep over you." I pray that God's presence and love will keep you from going under and will carry you to the safety of solid ground. I hope to see you on Monday

Sent on Saturday, October 14, 2006 at 10:24:02 AM
danderson@cpconline.org

From Janis,
Well, Josie, I just got caught up on your crumby sickness. You sure are a brave little girl. Wish I could send down a fairy godmother to make all your troubles go away. I liked looking at all your pictures and seeing your baby doll and stuffed animals. I bet you have a lot of them by now. And, it was very cool to see those Viking players visit you. That must have been very special. I think you are becoming very famous because of how good a patient you are. I don't think I could be as brave. I know they will soon find a good way to treat your illness so you will feel better. I have you in my prayers every day. Say hello to your family from me. They are super special people too. Bye for now. Love you. Janis (I used to work at Southdale Pet Hospital with your Mom) She is the best Veterinarian we ever had!
Sent on Saturday, October 14, 2006 at 3:38:04 PM
marti009@umn.edu

From Joce,
Hi guys , I just want to say how I find that your family is all very special . God's given you incredible fortitude . I find that I cannot check everyday because it upsets me to see all that you are going through. I pray for that little angel of yours .

God bless

Joce

Sent on Saturday, October 14, 2006 at 10:01:15 PM
efsjm@hotmail.com

From Leigh Anne,
Hello Josie!
My daughter's name is Caitlin and she is three! She has JDMS like you. You two would make great friends. You have some things in common. I see you like to color, Caitlin loves to color. Hang in there Angel, we are all praying for you and your family. You are beautiful, strong, amazing and sweet. We here in Maine will be keeping a close eye on you and your recovery!

Thank you for sharing Josie's life with all of us. It's a huge help in so many way's to a family going through the some of the same things that you are. Please know that we are praying for all of you.

Caitlin was diagnosed in January 2006. Although we have not had even half the trials that you have we do know your struggles and heart aches. Please email me if you would like to chat sometime.

Leigh Anne, Caitlin and Justin

Sent on Sunday, October 15, 2006 at 3:20:14 PM
supajut@verizon.net

From Janet Ceaglske-Muhich,
Hi Josie & Family;
You have a friend that wanted me to read your Blog. Lynn Shadle Gabriel...she met me at a R.O.C.K.(raising our celiac kids)meeting in Plymouth, MN. My daughter was diagnosed with Dermatomyositis on November 13, 2000. Her Birthday is December 5. I noticed Josies is December 2. She was almost 4 years old when we found out. Reading your blog has brought back many memories... We also have Dr. Vehe, he is a great doctor!! It is 2006 and Michelle has been medicine free since January of 2004. It took four years for us to get through the JDMS. The only Blog we had was "Julia's" and I'm thankful at the time that we had that one. I noticed there are more Blogs now so you seem to have a greater support group than we did. Michelle had always had tummy issues (constipation mostly and a protruding belly)when we had her JDMS and we assumed that they were because of the medications she was on (prednislone, Methotrexate, plaquenil).... but this past year she was having constipation and diareha every day and missing school(the school said it was anxiety)(and we were medicine free).... after many months, the doctors put it together and gave her a celiac panel (blood test)which tested high and then she had an endoscopy done which proved the celiac disease was correct. She was diagnosed with this in Mid-june of 2006. It is October now and we have gone from stomach aches, constipation & diahrea daily to having it maybe once a month. I realize you're under a lot of stress now, but if they are doing and endoscopy at some point (I know from reading your information that they want to, but can't at this point), you may want them to check for celiac also, it would have saved us many more months of testing and years tummy issues (celiac is another autoimmune disease)!!! The greatest thing about this celiac disease is what my daughter had to say to me when we found out....."Mom, all I have to do is eat different, I don't have to take any shots or medicine". Having already gone throught JDMS made this disease a breeze! If you need anyone else to talk to, just e-mail!! (If you don't want to deal with the celiac issue now, I totaly understand, I know I wouldn't have wanted to the first two years of Michelle's JDMS, but keep it in the back of your mind for when she starts to get better!!) My thoughts are with you!!

Sent on Sunday, October 15, 2006 at 4:09:33 PM
hmuhich@msn.com

From Shelly, Mark, Max and Sam Nelson,
Hi Jo,
Your Dad has put some super cute photos of you up on your blog. The pink PJ pictures of you walking around the hospital and smiling with your brothers and sister are great. I especially love the pink hand up above your head! Hope to see some more pictures like those soon, kiddo!
Love you tons,
Shelly, Mark, Max, Sam and Lucky too.

Sent on Sunday, October 15, 2006 at 8:04:18 PM
shellymarknelson@yahoo.com

From Karalyn, Tallie, Ryan & Bailey,
Dear Josie and family,

Our hearts and prayers go out to you!! My little Tallie (6) has Dermatomyositis as well. Hang in there, Josie; you are one tough little cookie.

HUGE hugs from Tallie, her mom, and her little brother and sister, too.

http://tallie.blog-city.com

Sent on Sunday, October 15, 2006 at 8:10:30 PM
karalynh@gmail.com

From Tracy Caraker,
Dear Josie,
I hope you get better very very fast! I look forward to more web updates! Keep tough and smile and laugh as much as you can. Laughter is the best medicine!

Sent on Sunday, October 15, 2006 at 8:17:26 PM
tcaraker@tampabay.rr.com

From Deanna,
This morning my daughter sent me this link so that I could learn about Josie's battle and say prayers for her. My granddaughter also has this terrible disease. My prayers are with you all. I hope they find out the problem and can fix it. God Bless you.
Sent on Monday, October 16, 2006 at 6:36:41 AM
dlkearns@firstam.com

From Kathleen McJunkin,
I have been trying to keep up with Josie through my occassional calls to SPH. No one ever mentioned surgeries, and now yet another one. My prayers have been with her, but there will be extras tomorrow. I wish you all the best.

Kathleen

Sent on Tuesday, October 17, 2006 at 10:43:38 AM
mcju0002@tc.umn.edu

From The Dorans,
Hi Josie,

We sure miss you!! You look like you are doing pretty well, and have been hard at work coloring lots of pictures. After you are feeling a little better, I will bring you some new nail polish down to the hospital, and we will paint your toenails again, like we did when we were camping this summer. Do you think your dad will let me paint his nails again too? Probably not, huh!! We love you and pray for you everyday.

We will come and see you soon,

Paul Shelly, Joe and Sarah Doran

Sent on Tuesday, October 17, 2006 at 12:40:06 PM
doran-home@mn.rr.com

From Steve, Katy and Sam LeBarron,
Dear Josie, Deb, Jay, Trip, Henry and Evie,
We'll be with you all in spirit tomorrow as Josie jumps over the next hurdle! What a beauty!

Sent on Tuesday, October 17, 2006 at 7:32:02 PM


From Erika,
Love you, love you, love you Adams'! We're constantly thinking about you all and hoping and praying for miracles. We'll keep Josie and the whole medical team in our thoughts tomorrow afternoon. And of course you two amazing parents. Your littlest girl (and your three other cuties) are so very lucky to have you!

Please tell Josie that she looks beautiful in her picture on the 16th and very elephanty in her picture today. What's with the purple donut on the trunk? Part of a cool, new game? Can other people play, too?

Hang in there. People everywhere are sending their love and prayers your way. We look forward to hearing positive news soon. XOXOXOE,M,T&A

Sent on Tuesday, October 17, 2006 at 11:13:01 PM
erika_hsu@yahoo.com

From Kris, Jill, Trigve and Annika,
I am at a loss for words. Josie you have been through more than anyone I know. Your smile in that photograph is beautiful.
There will be countless friends wishing, praying and hoping for the best outcome possible on this day of surgery. Josie, at age three you have brought a community of people together to cheer you on - and an outpouring of love like I have never seen before. We continue to hold you and your amazing family in our hearts and prayers.

Sent on Wednesday, October 18, 2006 at 12:52:23 AM
kris@teamfriday.com

From Wendy Short-Hays,
Good Luck today! We are hopeful that you receive some good news. Keep swingin' for the fences!!!!

Love,
Zach, Wendy and Elliott Hays

Sent on Wednesday, October 18, 2006 at 6:47:24 AM
wshortha@vischool.org

From Lily (Josie's toddler teacher from Fraser),
Hi Deb, Jay and Josie,

Just wanted to let you know you will all be in my thoughts and prayers today. I was hoping to see Josie back at school this fall, but since she's been so sick, I have been following the updates on her web site. She has been through so much - I hope what they are planning works so she can get well and go back to the business of being a kid!! I also hope to see her back at school again!! Miss you Josie!

Sent on Wednesday, October 18, 2006 at 7:47:26 AM
roseflowerbear@comcast.net

From joan and jim Wobbleton,
Thinking of all of you and praying for a successful surgery and finding what is bleeding. Praying for strength for all of you each and everyday that goes by.
The blogs are wonderful information and there is humor in the educational information that either jay or deb have interjected.

God Bless

Joan Wobbbleton

Sent on Wednesday, October 18, 2006 at 8:17:00 AM
jwobb@aol.com

From Amy & Alex Alvero,
Josie, we will have you, your surgeons and your family in our thoughts and prayers today. We wish only good news from the surgery. It has been great to see you looking so much happier in the pictures the past few days!
Sent on Wednesday, October 18, 2006 at 8:59:03 AM
aalvero@mn.rr.com

From Mary Waters-Cryer,
Josie's Fraser School family is so appreciative of this site to keep us updated on her condition. We are keeping all of you in our thoughts and prayers continually. Josie is a strong little girl and seems to be quite a trooper through all of this. We are praying that her strength brings her successfully through surgery today.

If there is anything that we can do to help, please don't hesitate to call.

Sincerely,

Mary Waters-Cryer, Director, on behalf of Fraser School

Sent on Wednesday, October 18, 2006 at 10:40:54 AM
maryw@fraser.org

From Mary Krafft,
Dear Deb,

Thank you for the message this morning about Josie's surgery today. Please know that there are many people at Fraser thinking of Josie, you, your family and the surgical team. It is our hope that the surgery will have a successful outcome.

Your friends at Fraser

Sent on Wednesday, October 18, 2006 at 11:28:31 AM
maryk@fraser.org

From Jocelyn,
Josie- Your mom just told me you had a blog today, so I decided to check it out! I loved looking at all of your pictures. I liked the picture of you, Sheila, and Meghan with the elephant nose! It looks like you were having a lot of fun~ I hope you start feeling better! Say hi to Evie and your brothers for me.
I miss you,
Jocelyn

Sent on Wednesday, October 18, 2006 at 12:18:33 PM
jlian1@fairview.org

From Jim & Carol Larson,
Just wanted to let you all know that you are in our hearts and on our prayer list every day. I am also having our church pray for lttle Josie and your family. You are one brave and touching family. We are Shelly Dorans parents and I have met you and two of your children. Thank you for keeping everyone posted as to Josie's condition. Most of us cannot even imagine what you have all been through. You have definalty taught all of us a big lesson on how to be so grateful for our health and that of our family. Your courage is there for all of us to look at, and we wonder how we might handle such a situation. God gives strenght when needed and you have all certainly shone us that. God be with you all and know that many are praying for you all. With Love, Jim & Carol Larson
Sent on Wednesday, October 18, 2006 at 12:59:56 PM
larsunhome@aol.com

From Aggie Varady,
There are hundreds, maybe thousands, of people saying extra prayers for you today Josie. We're all hoping that your surgery goes well & sometime soon you'll be going home with your family. There is no one braver than you, Angel. You are in our thoughts constantly. We'll be checking the blog later for some good news hopefully...
Sent on Wednesday, October 18, 2006 at 1:23:40 PM
aiv1026@aol.com

From Jean Moore,
Hi there,
I am a MOPS mentor who just got a request to prayer for you all. I just prayed and will keep you in my prayers tomorrow. I can't imagine what you are going thru but I pray for God to heal Josie both after surgery and then to continue on to heal the disease. Love you!
Jean Moore

Sent on Wednesday, October 18, 2006 at 2:12:31 PM
jmmcmoore@earthlink.net

From Jean Moore,
Hi there,
I am a MOPS mentor who just got a request to prayer for you all. I just prayed and will keep you in my prayers tomorrow. I can't imagine what you are going thru but I pray for God to heal Josie both after surgery and then to continue on to heal the disease. Love you!
Jean Moore

Sent on Wednesday, October 18, 2006 at 2:13:34 PM
jmmcmoore@earthlink.net

From Sue A. Awes,
Hi, this is Sue from Fraser School. I looked at my watch all through my meeting wondering how Josie is doing. I can't imagine what you are going through right now but I know she will be fine. Josie is a stong little girl that wants to play,do play dough, and have fun. Josie has alot more to do and she wants to get better and do it. My thoughts and prayers are with all of you. Tell Josie we are pulling for her to get better and come back and play.
Sent on Wednesday, October 18, 2006 at 2:48:13 PM
suea@fraser.org

From Lynn Gabriel,
dear Josie,
we have spent the whole day praying for you and tending to our watches to be aware of and continue praying for your surgery. You are such a beautiful courageous girl. WE hope that very sparkly outfit will bring a smile to your face!Jesus loves you, this we know, for the Bible tells me so.. He is watching over you. we look forward to making fun foam shapes with you!
All our love and prayers!
Lynn, stan, Blake and Faith Gabriel

Sent on Wednesday, October 18, 2006 at 7:46:41 PM
lrshadle@earthlink.net

From Lynn Gabriel,
wow. I just read the post, i have been staying up checking periodically in order to adjust my prayers accordingly. Miraculous healing it has been and miraculous healing it will remain. I Ipray the Lord hold all of you tonight and give you rest and healing as well.
God Bless you and Keep you
Lynn

Sent on Thursday, October 19, 2006 at 12:29:26 AM
lrshadle@earthlink.net

From Ed & Caroline Gaiser,
Dear Chip & Deb,

Ed & I continue to send good thoughts your way tonight, and that Josie will come through this and be better than ever. Our love and prayers to you, Trip, Henry, Evelyn, & especially Josie.

With Love,
Ed & Caroline

Sent on Thursday, October 19, 2006 at 2:46:57 AM
c_gaiser@hotmail.com

From Leigh Anne,
Wow, our first prayer has been answered. She made it through like a champ. We are continuing to pray here in Maine for her and a "miricle" cure. She is in many prayer chains in different churches here as well. Me, my husband and our baby girl Caitlin are thinking of you and your family a lot right now. Josie and your family are in quite a few conversations with others. JDMS is so rare anywhere but especially here that I try and teach the public about our specail girls as often as I can. People don't understand the disease none the less realize how serious this nasty disease is.

Please give Josie a big hug and hello from Caitlin in Maine. She hopes that her boo boo's feel better soon. (exact words from a three year old)Also one from us. God Bless and we will keep on tracking your special girl.


Sent on Thursday, October 19, 2006 at 6:04:07 AM
supajut@msn.com

From Brad, Cheryl, Missy, Jack & Chance,
Josie Girl, Evie, Henry, Trip, Deb and Jay,
Our thoughts and prayers go out to you. You guys have really been troopers. We will continue to pray for healing and strength.

Sent on Thursday, October 19, 2006 at 6:38:44 AM


From Paula Vicker,
Adams family -
Know that you are in our thoughts and prayers daily. Glad to hear everything went well.
Keep strong...

Sent on Thursday, October 19, 2006 at 6:53:27 AM
pvicker@mn.rr.com

From Nona,
Josie is in my heart and prayers.
Sent on Thursday, October 19, 2006 at 7:53:42 AM
nbergh@mn.rr.com

From Jean Stumpf, from PHS,
All the staff at PHS is sending their love and prayers your way -- we've been watching the blog and following Josie's story closely, and are so appreciative of the updates. I'm relieved the surgery is over, and will hold little Josie in my prayers for a full-on recovery.
Sent on Thursday, October 19, 2006 at 8:12:20 AM
jstumpf@pediatrichomeservice.com

From LaMoure Family,
Prayers from Bemidji
Sent on Thursday, October 19, 2006 at 9:35:12 AM
lamoure@paulbunyan.net

From Dawn Wise,
I got to know Josie through this website. Katy LeBarron told me about her and I offered to say prayers and send postitive energy to her and her family and friends. You are all very brave and courageous. I am also going to inform my friends and family of Josie so they can send prayers and good thoughts. Take care, all of you. :-)
Sent on Thursday, October 19, 2006 at 12:42:05 PM
wised@mn.rr.com

From Jim & Diane Deutsch,
Josie,

Hope all goes well in healing after the surgury. We just had our 4 year old granddaughter Natalie from Vermont visiting. Get back to being a fun 4 year old.

Sent on Thursday, October 19, 2006 at 12:43:44 PM
pgajim@pga.com

From Kathleen McJunkin,
You certainly have got my prayers. Dr. Christopher Boys is one of our clients here. All the best to everyone!!!! Kathleen
Sent on Thursday, October 19, 2006 at 12:56:50 PM


From ~Mona,
Deb and Jay,
Thanks for the pictures. The two of you look great! And little Josie looks pretty good too considering all she has been through. Your smiles are so precious! You've been in our prayers all week and will continue to be in the coming days...prayers for a quick recovery and for strength for your family. God bless you all!

Sent on Thursday, October 19, 2006 at 2:07:57 PM
tabinabq@comcast.net

From jacqueline Krainz,
I have to tell you that I think of Josie alot and pray that she will get better very Soon! Josie is one strong little girl -- I know that she will win this battle. She has the strength to make a full recovery. This weekend we will go for the Chicago Marathon like many other parents and families of children with JM. We are all there to raise money and awareness so that our children like Josie can one day have a cure.I can't wait for that day. Love, Jacqueline Krainz
Sent on Thursday, October 19, 2006 at 3:21:25 PM
jckrainz@gmail.com

From Kris, Jill, Trigve and Annika,
It is comforting to see that hint of a smile on Josie's face - even after surgery!!!
What a wonderful gift.

Keep healing Josie! We are behind you all the way!!!
I work with a cheese specialist whos wife is a PICU nurse at the U--do you know LeeAnn? Her husband (joe) works at Kowalski's! We are grateful for all the dedicated and skilled medical personnel, too!!!


Sent on Thursday, October 19, 2006 at 4:12:49 PM
kris@teamfriday.com

From tricia wendorf,
Just read Josie's story on the weblog for the 1st time - tears in my eyes - what a brave little girl. We'll stay strong for you, Josie and we want you to feel better soon!
The Wendorf Family
Steve, Tricia, Kyle, Gavin and Meghan

Sent on Thursday, October 19, 2006 at 4:53:04 PM
tleewendorf@yahoo.com

From Sue A. Awes,
I am glad to hear that she is through surgery. I know from here on you will hear good news. Thank you for the updates. Those thoughts and prayers are still coming to make Josie better.
Sent on Thursday, October 19, 2006 at 6:23:21 PM
suea@fraser.org

From Dan Anderson,
Oh my! I assume the two pictures posted today were not taken today. Picture one (with the three of you( was taken pre op and picture two (Debbie and Josie) post op? Am I correct? You need not reply, I will stop by on Friday and get my answer in person. . . and, I will pray for clear fluids ~ and as you asked, for a miracle for Josie. My love and prayers are with you all!
Sent on Thursday, October 19, 2006 at 6:23:44 PM
danderson@cpconline.org.

From Erika,
Ode to Josie

We know a small girl named Josie;
Whose cheeks are so sweet and rosy;
She is brave, strong and true,
Even silly, who knew?
And she is just as pretty as a posy.

That Josie she's one of a kind;
A better patient you never will find;
She practices her letter(s);
Waiting for her tummy to get better;
This kid deserves a break - we need not remind.

Dear Josie we all love you so;
You're the very best and we want you to know;
As you rest and get well;
Think of M&Ms - their good smell;
And we'll pray to see you with a healthy glow!

Sending happy thoughts your way ... xoxoxoE,M,T&A:)

Sent on Thursday, October 19, 2006 at 9:22:56 PM
erika_hsu@yahoo.com

From RIley McKeown,
Hi guys. Just got back from Mark and Shelly's. We talked about Josie alot. I logged on to see what is new today, but I guess I'm a little early. Leslie, Ben and Sam are in Florida, so I'm bachin' it this week. Tell Josie I'll have my pink toenails until she comes home!!!
Thinking about you guys alot,
Riley

Sent on Thursday, October 19, 2006 at 11:46:10 PM
RMcKeown1@mn.rr.com

From Maria and Gary Marshall,
Dear loved ones
You have the strength of the Ironman and Ironwoman.
Thank you for updating for all of us who love you all
Josie we carry you every minute of the day in pray and loving thoughts.

Love,Maria and Gary Marshall

Sent on Friday, October 20, 2006 at 6:41:31 AM
gmarshal@tds.net

From Jan g,
Deb, Jay Took a look to see what is happening. Hearing words is not like seeing pictures. Wow. What a plucky little sick girl and what strength you both have. There is no one who has kids and doesn't feel a little of the pain and hardships you both are faced with....it's really difficult to know what to do, and I don't know how words can help. Don't be too hard on yourselves...we all are trying to send support and strength and hope. jan
Sent on Friday, October 20, 2006 at 9:55:32 PM


From Aggie & Alexa,
Hoping tomorrow is as good as today, if not better! Everyone is frantically praying that this latest procedure will hold up & Josie will be going home sooner than the doctors expect... we all know that Josie keeps beating everything that is thrown at her. She is truly a miracle. And the strength of the entire Adams' Family is such an inspiration to the rest of us mortals. Along with everything else, witnessing your hardship puts all of our menial complaints into perspective. Sending Josie all the love & healing energy in our hearts as often as we can
Sent on Friday, October 20, 2006 at 10:32:14 PM
aiv1026@aol.com

From The Nesseths,
Anna prayed for Josie tonight.

She said, "Pray for Josie. Make her tummy feel better. God fix her."

We're praying for that too.

All our love,
Vernie, Greg, Anna and Erika

Sent on Friday, October 20, 2006 at 10:41:47 PM
kristin_nesseth@hotmail.com

From Marilou Pederson,

Thinking of you all and praying for the very best results from this surgery. You are an amazing family.

Sent on Friday, October 20, 2006 at 11:07:48 PM
mariloupederson@hotmail.com

From Joan Jim wobbleton,
We look every day for an update on Josie. So glad to have just read the post op report. You do a fine job of recording the information. We do hope and pray that all goes well for Josie. Even though the NG tube is inserted under anesthesia I know that having that thing is a nusiance for her. But I expect she is a trooper and puts up with what ever she has to do to improve. I can't imagine how you and Deb are dealing with your life. Home,kids,job,hospital,meals,etc. I wish we could be there to help. I think having Larry and Suzanne around must be a comfort.

God bless and keep the blogs coming. That is the only way we know what and how Josie is doing. We all worry.

Joan and Jim Wobbleton

Sent on Saturday, October 21, 2006 at 7:51:12 AM
jwobb@aol.com

From Grandma and Grandpa Lund,
Hello, Our Little Family....we keep checking in...we are so grateful for the wisdom that your Doctor's have been blessed with...we continue to pray for their gifts. We love you, Jay, Deb, Trip, Henry, Evelyn, and Josie. Tom and Darlene
Sent on Saturday, October 21, 2006 at 9:07:52 AM
lundlink@mac.com

From Barb Blahoski,
Dear Dr. Deb and Family,
Wow, you guys have been through a LOT! Reading about your ups and downs is heartwrenching.. I'm amazed at your stamina through it all. I guess I shouldn't be surprised, you are always so darn positive! Keep up those good thoughts.. and know that many, many people are praying for you.
Barb and Lily

Sent on Saturday, October 21, 2006 at 1:48:44 PM
bblahoski@yahoo.com

From RIley McKeown,
Hi guys, just got on Josie's blog with Ben,Sam,Max,Sam,Drew and Brady as we are having a big sleep-over tonight. We saw the pictures and Sam said "we are all going to say a big prayer for Josie tonight." She looks great and I hope you are all doing OK as well. Let me know if we can help with the kids or whatever.
Take care,
Riley

Sent on Saturday, October 21, 2006 at 11:09:23 PM
RMcKeown1@mn.rr.com

From Joan &Jim Wobbleton,
Good news from your end of the picture. Josie and mom look like both are feeling improved. Now lets just pray that it continues to go the way it should. Her skin looks good so lets just hope.
Thanks for the update. We look many times a day to see how she is doing.
Will continue to keep you all in our prayers and thoughts.
Josie you go girl!!!!
Joan and Jim Wobbleton,
Murrells Inlet,SC

Sent on Sunday, October 22, 2006 at 7:52:28 AM
jwobb@aol.com

From Erika,
Sweet Josie ... YOU GO GIRL!!!

xoxoxoxoxoxoxoxoxoxoxoxoE,M,T&Axoxoxoxoxoxoxoxoxoxoxoxoxoxo

Sent on Sunday, October 22, 2006 at 9:48:03 AM
erika_hsu@yahoo.com

From Lynn Gabriel,
dear, dear Josie!
Miraculous healing! You truly are receiving a miracle! God bless you Josie, you are a very special girl! we are soooo glad to see you healing and looking so vibrant and beautiful! Blake and Faith are glad you like your bracelets! They had so much fun making them for you. You are just an angel and we are looking forward to seeing you as you are getting better. we keep praying protection over you. We are sending smiles and hugs to you!!!
Lots of Love!
Lynn -Blake Faith and Stan

Sent on Sunday, October 22, 2006 at 9:57:26 AM
lrshadle@earthlink.net

From Leigh Anne,
Go Josie, Go! How cool is that post. Makes me cry...wonderful tears. More prayers coming from Maine...hang in there family. Josie is so lucky to have you all.

Leigh Anne, Justin and Caitlin

Sent on Sunday, October 22, 2006 at 3:42:36 PM
supajut@msn.com

From Olivia Diaz,
Hang in there Josie! We both have the same thing, but I don't have it that rough. You are a really brave girl,and have been a really good romodel for everyone. It will all get better soon.

Olivia Diaz


Sent on Sunday, October 22, 2006 at 5:12:27 PM
diazoe96@hotmail.com

From Jon,
Josie, Deb and Jay,

You have no idea how many people are waiting each of your updates and hoping for even a little positive news for you all. We're so glad to hear this week went well. Let's shoot for many more weeks with improvement.
Love, Jon, Andie, Tyler and Boomer

Sent on Sunday, October 22, 2006 at 7:12:41 PM
jnewberry1@mn.rr.com

From Lisa Heilman,
Dear Josie,

We just got home from Disney tonight. We've been thinking about you the whole time we've been gone. I'm glad that we are hearing good news about your surgery and that you are feeling well.

We brought you home a little something from Disney! Hopefully you can get your self there some time soon! I know that Mickey is waiting to see you!!!

Love you guys!! I'll call this week.
Lisa Rich Lucas and Isaac!

Sent on Sunday, October 22, 2006 at 9:50:38 PM
lheilman@frontiernet.net

From EPH,
Surely in life's dictionary, Josie's picture appears by the words tenacious, brave and strong. And by the word love ... yours and Deb's. You two (plus the amazing Trip, Henry and Evie) are everything this little girl needs. Take care of each other. We are all with you in spirit.

E.

Sent on Sunday, October 22, 2006 at 11:20:30 PM
erika_hsu@yahoo.com

From Vickie Hanson,
Keep your faith and you are a very brave young girl.
Sent on Monday, October 23, 2006 at 7:09:52 AM
pinball@tampabay.com

From Deanna Kearns,
Dear Josie,
You are such a brave little girl. Keep fighting and put this behind you so you can just be a little girl again. Our prayers and thoughts are with you. Stay strong family, we are all trying to help in our own little way. Bless you all.

Deanna Kearns

Sent on Monday, October 23, 2006 at 9:09:02 AM
d.l.kearns@att.net

From Darlene and Tom,
Josie...we love having your Grandma and Grandpa here...they are troopers...just like you...be strong. We love you Grandma and Grandpa Lund.
Sent on Monday, October 23, 2006 at 10:17:53 AM
dlund@lssmn.com

From Jill & Gracie,
We are all praying for Josie to show some improvements. Many of the JM families are keeping close track of how she is doing. Since I live in WI I feel like we are close neighbors.

You are doing such an amazing job being informed on her treatment, surgeries, etc.. Know that you are doing all you can from your end of things.

Working for a cure!!!

Sent on Monday, October 23, 2006 at 11:16:48 AM
jillmickelson@netscape.net

From Franklin,
Josie, We just want to let you know we are thinking of you and praying for you. You are a very strong little girl.

Love from your friend,

Franklin-PM

Sent on Monday, October 23, 2006 at 3:07:30 PM
fhg687@msn.com

From Katie Marshall,
thanks for keeping this blog updated, I'm sure I'm not the only one checking it like it's my job... just wanted to say hi and I'm thinking of you all, have asked friends, coworkers, and strangers on the steet (ok, all but!) to pray for Josie. All my good vibes are with you guys, I know she'll pull through this! If she's feeling up to it, I'd love to come by the hospital and maybe bring my guitar to lighten things up a bit with some tunes!

take care, stay strong~
xoxo

Sent on Monday, October 23, 2006 at 9:44:15 PM
katiemarshall7@msn.com

From bill and donna,
The power of prayer is amazing. Josie's story and brave smile say much about her stamina and spirit. Can't wait to deliver the Notre Dame football shirt, directly from the stadium, to her!

Sent on Monday, October 23, 2006 at 10:31:39 PM


From Grandma Lund,
Hey Josie...want to use my skin to repair that old hole...I'm very tough and I have lots of extra skin just waiting to be put to better use...let me know and I'll give you all you need. Love you, Grandma Darlene
Sent on Tuesday, October 24, 2006 at 8:44:36 AM
dlund@lssmn.org

From Stellons,
Our prayers are always with you and we are using all our leprechan wishes for you, too. (Leprechans are big at the Stellon house, too.) Can't wait to see you at a hockey game soon!
Sent on Tuesday, October 24, 2006 at 10:17:27 AM
StellonE@aol.com

From Sue A. Awes,
I am very sorry to hear about this turn of events with Josie. She has had more than enough to deal with. I hope that the new hole could fix itself so that Josie can get well. We are praying for Josie's recovery and I know it will be soon. Take care.
Sent on Tuesday, October 24, 2006 at 11:05:04 AM
suea@fraser.org

From Becky and Eric (friends of Katie Marshall),
Josie,

We are rooting for you. What a brave girl. Our thoughts and prayers are with you.

Sent on Tuesday, October 24, 2006 at 12:25:35 PM
thefabulousmissb@yahoo.com

From LaMoure Family - Bemidji MN,
Josie - Michelle is requesting to watch you swing on Julias playset again. Let her prayers be heard.
She says Dr. Vehe has made her better and Betty is the best so she will pray for them to find the right medicine for you too.

Sent on Tuesday, October 24, 2006 at 12:38:18 PM
lamoure@paulbunyan.net

From Jill Saastad,
Keep fighting Josie- you can do it. I hope and pray for your healing and for the pain to go away.

We love you very much!

Jill, Steve, Ali, Drew, & Brady

Sent on Tuesday, October 24, 2006 at 12:57:22 PM
ssaastad@mn.rr.com

From Karalyn,
Hang in there, Josie. We are pulling for you, all the way from Seattle. We think about you all the time, sweetie.

All our love, Karalyn, Tallie, Ryan & Bailey

Sent on Tuesday, October 24, 2006 at 12:59:21 PM
karalynh@gmail.com

From Joni Wilken,
Hello Josie - I'm so sorry you're having such a hard time. You are such a strong little girl and I just want you and your mommy and daddy to know that I'm thinking of all of you and praying very hard for you.

Joni / Gracie Jasper's Grandma

Sent on Tuesday, October 24, 2006 at 1:16:44 PM
petewilken@sbcglobal.net

From Kay Stalcar,
Josie,
You hang in there, you are such a sweet little girl! We are praying for you. We know that God will take care of you.

Sent on Tuesday, October 24, 2006 at 1:33:19 PM


From Deanna Kearns,
Hang in there little one. We are all saying big prayers for you and thinking of you.
Sent on Tuesday, October 24, 2006 at 2:48:01 PM
d.l.kearns@att.net

From Shelly and Mark Nelson,
WE LOVE YOU DEB AND JAY!
Sent on Tuesday, October 24, 2006 at 3:11:57 PM


From jan g,
oh guys, my eyes well up reading this. Wishing you all the strength to make it through all this. Jan
Sent on Tuesday, October 24, 2006 at 5:58:48 PM


From Leigh Anne,
Josie the Princess..... You are a tough little girl. You are fighting battles most adults would have lost by now. I pray that you remain stong and so do your parents, brothers and sister, family and friends. You are a special gift and I pray God takes good care of you and see's you through this. I pray he makes you stronger and more healthy than ever before.

Caitlin the Princess say's that she hopes your booboo's feel better and maybe if your mommy kisses them like her's does, than maybe you would feel better. (her words, not mine) She is blowing you big kisses and hopes to color together sometime.

Take care family....
The Gorecki's

Sent on Tuesday, October 24, 2006 at 7:38:04 PM
supajut@msn.com

From All About Children Peds,
We are ALL following your blog and praying for you. We are thinking about you.
Sent on Tuesday, October 24, 2006 at 8:22:07 PM
mariloupederson@hotmail.com

From Sandy Judge,
Deb: This is Sandy Judge, however you may remember me as Sandy Weber. Voni has kinda kept me up to date on your precious Josie. Tonight is the first night I was able to check out your website. (Voni gave me the address last week.) Your little girl is one tough cookie--but you probably already know that. She is adorable and even when she has bad days, she is enduring more than most adults could ever think of. My prayers are with Josie that she recovers as quick as possible from this horrible disease. Also, I am keeping you, Jay and your other children in my thoughts, as you need strength too. Take care, and I will check back to check on Josie.
Sent on Tuesday, October 24, 2006 at 9:25:29 PM
kastju@msn.com

From Bob and Sarah,
Josie -

We think of you daily, and hope that you will feel better tomorrow. You are a strong, brave little girl, and we know you'll get a break soon.

Jay and Deb - your strength is inspirational. We know how hard this must be on you and your family, and you are all in our prayers.

Take care and God Bless,

Bob, Sarah, and Jillian Arnold

Sent on Tuesday, October 24, 2006 at 10:11:37 PM
rja@teemaster.com

From Cary Hopkins,
Hello,

My name is Cary and I found out about you from the curejm site. I have been reading your blog and I want you to know that I will pray for Josie.
I also want to say that I saw your picture, Mommy, and you look like such a strong person. My daughter has not been through the terrible problems that your daughter has had to endure but she has been through some pretty hard stuff. When I look at your picture I just feel like I know what you are going through. It is so hard being the mom of a sick child but it's a special blessing as well. Please know that you are not alone.

Sincerely,

Cary - Texas

Sent on Tuesday, October 24, 2006 at 10:44:16 PM
calvinistcary@yahoo.com

From Lynn Gabriel,
Dear Josie,
You are doing an amazing job at healing and are a wonderful patient! Keep up the good work and "keep the Faith!" Believe Josie, believe. We are praying for you all day and all night long. Your are doing great.
all our love,
Blake, Faith, Lynn and stan

Sent on Tuesday, October 24, 2006 at 11:20:54 PM
lrshadle@earthlink.net

From A,my Alvero,
I pray for a calm, painfree day for Josie so that her insides can heal. It must be terribly, terribly hard to keep having these rounds of pain. We are sending our best healing thoughts your way.

What can we do to help? Give blood? Take the other kids? Clean your house? Bring groceries? We are here and would love to help.

Sent on Wednesday, October 25, 2006 at 6:20:34 AM
aalvero@mn.rr.com

From Grandpa and Grandma Lund,
Josie...we're at loss for words...WE KNOW YOU CAN DO IT...YOU ARE STRONG AND A FIGHTER AND WE'RE COUNTING ON YOU TO BE STRONG...BE STRONG Josie, BE STRONG Josie, BE STRONG! Josie...give those Doctors a chance to show you they can make you better...they can make you better, Josie. I believe it and so does Grandpa Tom!!! We love you, Josie.
Sent on Wednesday, October 25, 2006 at 9:39:01 AM
dlund@lssmn.com

From Julie Aldrich,
Josie,
We are so sorry for all that you are going through. We read about you every day and pray for you every night. Please know that you are in our thoughts and we can't wait for you to come home soon. Ashley wants me to send you kisses and hugs and let you know she misses you very, very much.

Sent on Wednesday, October 25, 2006 at 9:52:46 AM
jaldrich@emtengineering.com

From Kris, Jill, Trigve and Annika,
Keep fighting Josie!
There are better and brighter days ahead - we all keep hoping and praying that this recovery will speed up for you--and your family. You parents are marathon runners and you are too!! They can tell you about that mile that seems impossible to finish and yet they keep putting one foot in front of the other. Hopefully the toughest mile is behind you. In our hearts you and your family are the Gold medal winners - even while you are still running the race! Imagine all of us on the side of the course cheering you on...it's a bright sunny fall day and you have the strength to keep going. We will keep cheering - day and night.
Go Josie Go!!!! You are AMAZING!



Sent on Wednesday, October 25, 2006 at 10:57:52 AM
kris@teamfriday.com

From Ruth Christ,
Dear little Josie,
I just found out about your condition today...I used to take care of you on Sunday mornings in the nursery at church. I am sorry that you aren't feeling well. I have been reading your story that your dad is writing. I have never known anyone so strong and brave. Do you know how much Jesus loves you?

Sent on Wednesday, October 25, 2006 at 1:58:15 PM
ruthc@cpconline.org

From Sue A. Awes,
I am so sorry to hear about your new challenge with Josie. I can understand when Josie says enough with all this. She has been such a brave little girl. Since the fungus is gone Josie has a chance to beat this. And she will. Josie is a fighter and she wants to get better. I pray for Josie every day that Josie sees improvement.
Sent on Wednesday, October 25, 2006 at 4:57:33 PM
suea@fraser.org

From Chris Marshall,
Well Josie...

Looks like it's the bottom of the 9th inning, Josie's at the plate, Mom, Dad and the rest of the family are all on the bases waiting for you to knock one out of the park and bring everyone home! Victory, sweet victory!

Keep fighting little lady...YOU ARE MY HERO~

Hugs, Kisses, and Prayers!

Chris Marshall (and family)

Sent on Wednesday, October 25, 2006 at 5:02:27 PM
crmarshall27@comcast.net

From Marie Gorham,
We send our love and prayers. We are keeping tract of Josie with the blog and Richfield friends. Josie, you are a strong girl! Marie, Mark, Kathryn, Rebecca, Greg, and William Gorham
Sent on Wednesday, October 25, 2006 at 5:12:12 PM
mthereseg@aol.com

From lynne,
hey guys. wow. haven't checked in awhile. sending you lots of love. wishing i could wrap you all in my arms and make everything ok or even slightly better. love, lynne
Sent on Wednesday, October 25, 2006 at 6:12:01 PM
lceciljohnson@yahoo.com

From Tracy Caraker,
Hello Deebers family! I just want you to know that I'm sending all the positive energy I've got to you all. You are truly very strong people (even when you don't feel like you are). You are all my hero's ;) I'll be watching every day to see how Josie's doing. Hang in there! Brightest Blessings!
Sent on Wednesday, October 25, 2006 at 8:45:27 PM
tcaraker@tampabay.rr.com

From jan,
hey deb & jay, amazing postings but so sad a content. I really should read your skating rink blog instead. we are all wishing wishing a positive turn with Jose...deb I just put you in the catalog upside down in your handstand picture and again, I was wishing for Jose, late last night at the Ad agency's office. warm hopes... Jan
Sent on Wednesday, October 25, 2006 at 8:51:42 PM


From bill,
We're praying for everyone.
Sent on Thursday, October 26, 2006 at 7:29:18 AM


From Kris,
Jay and Deb,
My heart goes out to you. As you hold Josie's hand in yours - I hope that you feel some love and support also holding you.

Sent on Thursday, October 26, 2006 at 7:36:22 AM
kris@teamfriday.com

From Tom and Darlene Lund,
Josie, Jo Jo, we love you, Grandpa and Gramdma Lund
Sent on Thursday, October 26, 2006 at 7:36:25 AM
lundlink@mac.com

From Lisa Heilman,
Dearest Adams Family,

We are thinking about you all the time and praying and praying for one of these repairs to work. We are so sad that Josie is in so much pain it is absolutely heartbreaking. Please know that you have so many people sending prayers your way. I check the blog multiple times a day hoping for a little good news. We are here for you whatever you need whenever you need it.

Love - Lisa Heilman

Sent on Thursday, October 26, 2006 at 7:38:47 AM
lheilman@frontiernet.net

From Nona,
I am praying for Josie and your family.
Sent on Thursday, October 26, 2006 at 7:49:47 AM


From Paul & Shelly Doran,
Jay and Deb,

We are so sad to see Josie in so much pain. We love you guys and are praying for Josie, and for you, as you watch her go through this, and have to make all these difficult dessions about her care.

JoJo, The Dorans sure love you!!

Paul, Shelly, Joe and Sarah

Sent on Thursday, October 26, 2006 at 8:00:29 AM
doran-home@mn.rr.com

From Erika,
We're all praying for miracles. Sending you love and hope every minute of the day.

Love, E,M,T&A

Sent on Thursday, October 26, 2006 at 8:04:04 AM


From LaMoure Family,
Josie
We're praying for you, sending our love and strength to you and the doctors your mommy and daddy and the rest of the family. I just got the pictures printed from Julias house last night 10/25 as Michelle wanted to hold the picture of her JM friends while she prayed for you. Josie she's holding you tight and saying the loudest prayers.

Sent on Thursday, October 26, 2006 at 9:37:52 AM
LaMoure@paulbunyan.net

From ,
Deb and Jay I am just at a loss for words-what can go wrong next? Just spoke with Grandpa and glad to hear last night's repair seemed to go well. Please God let it hold! We are just so torn up and God only knows how you must be feeling. We love you all so very much and our hearts are breaking with yours. Whisper in Jose ear that we love her and know she is a fighter. I am praying as fervently as I ever have to bring healing to her body and peace and comfort to you both. I'm wrapping my arms around you all now and giving you a great big hug!!Leslie
Sent on Thursday, October 26, 2006 at 9:38:52 AM


From John Thompson,
Josie,

What an inspiration you are to everyone that your life touches! Keep fighting! Many prayers for strength!! May God find a way to bless you during this difficult time!

John Thompson
Diagnosed with DM in April 1977

Sent on Thursday, October 26, 2006 at 10:00:13 AM
jtsalescom@bellsouth.net

From Sarah Lyman, Chad & Savannah Mellies,
I'm a relatively new Mom of a 7 month old girl and my heart goes out to you all for what you are going through. I can't begin to imagine what you are dealing with. Josie and your family are obviously incredibly courageous and strong-willed!

Take care and good luck. You are in our prayers.

Sent on Thursday, October 26, 2006 at 10:39:26 AM
slyman1972@hotmail.com

From Mike,Jennifer, Drew & Madeline Morgan,
Josie, Deb & Jay,

Rod Helm sent me Josie's page last week and Jennifer and I have been following you these last 10 days closely, Josie is in all our thoughts and prayers. You have a very, very brave little girl there, you must be so proud of her.

Stay strong for her.

Mike, Jennifer, Drew & Madeline Morgan

Sent on Thursday, October 26, 2006 at 11:06:43 AM
mmorgan@ieccovers.com

From Mike and Matthew Sandell,
Deb and Jay, I just read the update and Matthew and I will
be saying prayers tonight for all of you.You Adams' are
incredibly strong, especially you Josie.Let us know if
we can be of any help. Mike and Matthew Sandell

Sent on Thursday, October 26, 2006 at 12:05:06 PM
kitt3@earthlink.net

From Lynn gabriel,
My heart aches for all of you. I last read around 11:30 last night, as it appears surgery was beginning. when I woke and read at 7:30a.m. I cried. I am so sorry for this precious girls path. I am sincerely sorry. Please know we are praying hourly in our house for your family. May God hold you near and tight. sorry , I just couldn't write earlier, instead I have been praying.
All our love and support,
Lynn, Stan, Blake , Faith

Sent on Thursday, October 26, 2006 at 12:14:31 PM
lrshadle@earthink.net

From Kay Stalcar,
Jay & Deb,
Just wanted to let you know that I am praying for you guys. I am so sad that Josie is having to stuggle so much. Thanks again Deb for letting me visit with Josie on Tuesday night we had such a good time with the lip gloss and glittery sun glasses. We love you guys! Tony, Kay, Jeremy, Derek & Nikki

Sent on Thursday, October 26, 2006 at 12:27:35 PM
kstalcar

From Gigi (H.S.) and Eda PS3,
Our thoughts and prayers are with Josie and your family. Eda and I just love Josie and her fine young spirit.
Sent on Thursday, October 26, 2006 at 1:08:21 PM
gigik@fraser.org

From Sue A. Awes,
I am so glad this last surgery went well. I knew Josie was a fighter and this proves it. This is the turning point that we have all been praying for. This is going to be the last tough battle and Josie will get her health back like the doctor says. We are praying now for Josie to get her strength back so she can celebrate her birthday. Take care.
Sent on Thursday, October 26, 2006 at 2:14:10 PM
suea@fraser.org

From Leah Nelson,
Hi Guys:

I'm thinking of you and sending positive thoughts your way. Let me know if I can help in any way with babysitting, etc.

Sent on Thursday, October 26, 2006 at 2:22:09 PM
lnelson55402@yahoo.com

From Tom and Darlene Lund,
Josie...That Birthday Clock is ticking off the hours for us to celebrate your birthday...and I'll bake the biggest cake you can imagine...4 layers with double frosting...so get to eating and using those plates...just a soon as you can!!! Grandpa and Grandma Lund
Sent on Thursday, October 26, 2006 at 2:44:10 PM
djlund@lssmn.org

From Ed & Caroline Gaiser,
Dear Chip & Deb, We just read your latest posting & are so thankful Josie's latest surgery went as well as could be expected. After all the heartbreak she and you have been through, you're more than overdue for this little girl to be on the road to full recovery. Ed & I continue to pray for her AND for you & all of your family. We wish we were closer and could be of some help to you. We send our continued love & prayers from Fresno, California. Caroline & Ed
Sent on Thursday, October 26, 2006 at 3:45:09 PM
c_gaiser@hotmail.com

From Tricia Wendorf,
We are here if you need anything. We will continue to have hope and pray for healing.
Thinking of you all,
The Wendorf Family
Tricia, Steve, Kyle, Gavin and Meghan

Sent on Thursday, October 26, 2006 at 3:47:57 PM
tleewendorf@yahoo.com

From Tammy,
HANG TOUGH GIRL!It's hard, but keep on going. Love to you and the folks, brothers and sis. (MWAH!) Big Kisses to all.
~Aunti Tammy

Sent on Thursday, October 26, 2006 at 4:38:20 PM
camprn@verizon.net

From Lynn gabriel,

There seems to be such a feeling of peace. I am so happy to hear things went as well as they could.there aren't words to express what we wish we could do for you or how much we hope for full recovery and healing every minute. You are an amazing little girl enduring all that you have, with an equally amazing family. Know that we care. On to healing for good this time. God Bless you
Lynn, Blake Faith, and stan

Sent on Thursday, October 26, 2006 at 4:44:03 PM
lrshadle@earthlink.net

From Mary Waters-Cryer,
Jay and Deb -
I just cannot imagine what you are going through minute to minute - Josie has been such a strong little girl through all of this - it's amazing!

On behalf of Fraser School, once again, your family has remained in our thoughts and prayers minute to minute.

Sincerely,

Mary Waters-Cryer
Director, Fraser School

Sent on Thursday, October 26, 2006 at 4:58:10 PM
maryw@fraser.org

From Kevin & Cynthia Benner,
Dear Josie,
I'm a friend of Marks. I recently heard of your situation. My wife (Cynthia) and I are so sorry things have been so hard for you. you are in our prayers. You sound like quite the fighter. Hopefully we'll have a daughter some day with all your spirit. I look forward to her meeting you. Maybe you can babysit.
Love,
Kevin & Cynthia

Sent on Thursday, October 26, 2006 at 5:12:23 PM
kevin.benner@nomadventures.net

From John Hibler ,
Chip,

You and your little treasure are in our prayers daily. I just wish we lived closer so we could be more support. Be strong, with lots of love,

John

Sent on Thursday, October 26, 2006 at 5:52:55 PM
johnhibler@mail.com

From Sharon,
To Josie and Family
I have read your blog a few times and my heart fills with love for you all. You are truely an amazing family.
Sending you prayers from New Zealand.

Kia Kaha(stay strong)Josie.

Lots of Love and bigs hugs
Sharon and Natasha (dx april 2000 at age 4)

Sent on Thursday, October 26, 2006 at 6:35:13 PM
slegge-murray@linz.govt.nz

From Mark Francis,
Jay, Deb and Josie,

You are so couragous. Someone IS listening to the prayers. I believe absolutley that help is on the way. Have faith.
Revelation 21:4 & 5
4. He will wipe away from them every tear from their eyes. Death will be no more; neither will there be mourning, nor crying, nor pain, any more. The first things have passed away."

5. He who sits on the throne said, "Behold, I am making all things new." He said, "Write, for these words of God are faithful and true."

Sent on Thursday, October 26, 2006 at 6:58:18 PM


From Mark Francis,
Jay, Deb and Josie,

You are so couragous. Someone IS listening to the prayers. I believe absolutley that help is on the way. Have faith.
Revelation 21:4 & 5
4. He will wipe away from them every tear from their eyes. Death will be no more; neither will there be mourning, nor crying, nor pain, any more. The first things have passed away."

5. He who sits on the throne said, "Behold, I am making all things new." He said, "Write, for these words of God are faithful and true."

Sent on Thursday, October 26, 2006 at 6:58:19 PM


From Wendy Short-Hays,
Deb and Jay,
Stay strong, take care of yourselves when you can. You are amazing people.

Love,
Zach, Wendy & Elliott Hays

Sent on Thursday, October 26, 2006 at 9:02:30 PM
wshortha@vischool.org

From Jen Weers,
Josie and Family: My heart breaks each day as I read your posts, but can feel the strength and love your family has. Please know the entire Cure JM community is sending love, prayers, and good wishes daily.
Our very very best,
Jen and Julia Weers

Sent on Thursday, October 26, 2006 at 9:22:27 PM
jen@weersconsulting.com

From The Meyers,
Jay,Deb,Trip,Henry, Evie and especially Josie

Just checking in on you and would like you to know that our thoughts and prayers are with you during this very difficult time, please let us know if there is anything we can do for you. Josie, you are a fighter, you keep fighting.

Mary, Mike, Jacy and Johnny

Sent on Thursday, October 26, 2006 at 9:32:57 PM
meyerpainting@msn.com

From Carlson's,
Hello Adams family - what a week it has been for you all!! Especially Josie! Wow - what can a person even say. I am sure no words will make you feel better Josie. O.K.... this is gross but as I am writing now, our dog Brannigan is dragging his butt along the floor and smearing poop remnants on the carpet! NICE! It is really time for a haircut doggy... poop keeps getting stuck in his fur. O.K....time to go clean the carpet. Sorry, I am way off the subject... but thought you might get a checkle out of my mess since you have dogs.

So while I am cleaning up doggie doo, I will be thinking about you Josie and wishing I could wave a magic wand and take all your troubles away. And for the rest of you Adams folks, I am sure watching such a precious, wonderful little girl like your little Josie suffer has got to be the hardest thing you will ever go through in your life!!! So hang in there!! We are thinking about you all and wishing there was something we could do!

Emily, Jim, Sammy and Nisi Carlson

Sent on Thursday, October 26, 2006 at 10:10:48 PM
emilyjimcarlson@msn.com

From Jackie and Kelsey Dornfeld, Paul Perseke,
Dear Josie and Family,
Josie, you are a very strong little girl. We have been reading about your story daily. Our thoughts and prayers are with you and your amazing family. You will pull through this.
Our love,
Jackie, Paul, Kelsey

Sent on Thursday, October 26, 2006 at 10:45:08 PM
jkdornfeld@mn.rr.com

From Manny,
My thoughts are with you I feel that Josie is stronger than most may imagine I pray that she begins to regain her strenght and brings you the miracle your waiting for.
Manny

Sent on Thursday, October 26, 2006 at 11:00:29 PM
vider13@aol.com

From Cynthia Benner,
Dearest Josie!

We don't know each other but we are friends of your dad's friend Mark Gibbon. Although reading through your blog I feel like I have gotten to know the unique, rare and amazing little girl that you are. I am sorry to learn of all this 'sickness stuff' you're having to deal with. Sometimes we have to go through all this 'stuff' for things to be better later on. And sometimes we feel like it's taking forever for things to get better. And sometimes it might even feel like you are trying to run a marathon in a jumping chair and mostly staying in one place. But hang in there because where ever your at and whatever your doing, you mere presence in giving so much love to everybody around you. You are making them smarter to appreciate and love the people around them even more. So when things get tough always remember how much you are loved and the 'sickness stuff' won't feel as bad.

You and your family will be in our prayers for the Lords blessing, strength and speedy recovery!!

Sent on Thursday, October 26, 2006 at 11:20:54 PM
cynthia.benner@medica.com

From Millie Stoick,
I just heard about Josie and will keep her in my prayers and thoughts. She is one strong and brave little girl. I will also pray that you all have the strength to keep up with all of Josie's health problems and know that one day she will be up and smiling at you.
Larry & Sue - give us a call when you can.

Sent on Thursday, October 26, 2006 at 11:46:59 PM
stoickmillie@earthlink.net

From The Grams,
Josie, I hope you can feel the love our family is sending to you and your family right this very minute! You are one amazing kid, and family, and we hope to hear about you getting better very soon.
Lot's of hugs to you!
Tom, Anke, Conner (5) and Sasha (3)

Sent on Friday, October 27, 2006 at 12:46:37 AM
tom@tvgrams.com

From The Neebe's,
Hey Josie, Aggie and Mark told us about your big fight with some nasty bugs! They also told us about your brave mom, dad, sister and brothers. We live far away in South Africa and we know a little bit about tough kids - and we can tell that you are one of the toughest! So from us down South, we pray for you and your family to stay tough and not give up. Our thoughts and faith in goodness are with you all. Love Mike, Pam, Ryan and Micaela
Sent on Friday, October 27, 2006 at 4:47:59 AM
mike@invesme.co.za

From Pam Neebe,
Hi Josie,
I have a beautiful healthy girl of 8. I thank God everyday for her! Today and everyday from now on, when we laugh together, I pray that our joy will find it's way to you and make you whole. God bless.

Sent on Friday, October 27, 2006 at 6:40:24 AM
pjnibs@icon.co.za

From Deanna Kearns,
Hey Josie,

I read your blog again this morning and I am thrilled that things are going as well as they are. Keep on fighting Honey. Our prayers are with you and your family. I know this is very hard on them too. We'll keep the prayers going and know that you are in our thoughts.

Caitlin's Grammy
Deanna Kearns

Sent on Friday, October 27, 2006 at 7:09:16 AM
d.l.kearns@att.net

From Appley Adams,
My Dear Jay & Deb,
I am so pleased that you included me in Josie's web page. My love and thoughts are with you.
What is the reason you have to deal with this sickness? We may never know the answer to this. You are a very brave girl. Wish there would be something I could do!

Sent on Friday, October 27, 2006 at 7:25:58 AM
appley.adams@verizon .net

From Joseph Riley,
Josie,

I hope you will be feeling better. I will pray for you.

Love,

Joseph Riley (age 7)

Sent on Friday, October 27, 2006 at 8:02:07 AM
justpatriley@adelphia.net

From The Riley Family,

Dear Josie,
We are so sorry that you have been sick. It sounds like you have so many friends and such a great family and good doctors. Our family will pray for your healing and for your family's encouragement. God's love to you.

Justine Riley (Erika Hsu's cousin) and family




Sent on Friday, October 27, 2006 at 8:25:23 AM
justpatriley@adelphia.net

From Alycia,
I do not know you. I was sent this blog by someone who does, and am so incredibly grateful that I have had the honor to hear Josie's story.
I am praying for you and for Josie. I am very sorry to hear that your family and Josie are suffering. Josie seems like an amazing little girl. My heart is full of pride for a child that I do not know. I am amazed by her strength and resilience. I am truely humbled.
In the work that I do I see many people give up in the face of much less adversity. To know that there are people like you in the world, gives me such hope.
Stay strong and know that when you need it, you can find love and energy, even from strangers.

Sent on Friday, October 27, 2006 at 10:08:51 AM
alykay74@yahoo.com

From Lori Smith,
Josie, Deb & Jay -
(received by forwarded message - Aggie's Bday wish)
I reviewed your blog & just thought I'd let you know we are thinking of you! Stay strong & always hopeful. I wish you additional courage & happiness. Keep smiling Josie - you are a beautiful girl!
Lori & Ed Smith
Lancaster, PA

Sent on Friday, October 27, 2006 at 11:31:38 AM


From David Lamb,
I have never seen such brave and beautiful young lady. When you are better come to Utah and see the big mountians. I have three little girls who love to make a new friend.

Best of Wishes:

David & Barb Lamb
801-492-9745

Sent on Friday, October 27, 2006 at 12:21:19 PM
dlamb@gopfs.com

From LMcGowan,
Bless you little Josie. You are loved by many.
Sent on Friday, October 27, 2006 at 12:44:06 PM
lamcgowa@hacc.edu

From Jim, Beth, Tony and Jack Stellon,
There are lots of prayers and hopes being sent for you as you rest and work on healing, Josie. You are a strong, brave girl with much love all around you. We're cheering for you, too.
Sent on Friday, October 27, 2006 at 3:56:35 PM
StellonE@aol.com

From Jill Schut,
We met you at the Weer's home at the picnic this summer.
Maddie is our 7 year old, diagnosed when she was 2. She has just officially gone into remisssion, so try to remember that there is liht at the end of the tunnel, even if it seems very far off. We will be meeting with the local KIT group in Maple Grove tomorrow and will share Josie's story with them and ask for their prayers and support. We will all be praying for Josie and youyr family. Feel free to contact me at JSchutMykkanens@aol.com if we can do anything at all. Kevin, Jill, Maddie and Emma Schut

Sent on Friday, October 27, 2006 at 4:20:31 PM
JSchutMykkanens@aol.com

From Sue Dornfeld,
Jay and Deb,
We are sending our love and prayers to Josie.It's hard seeing Josie hooked up to all those tubes,but that is what will make her better. She is a fighter.Lisa and I would like to come and sit with either you of over the weekend,if you would like some company.

Sent on Friday, October 27, 2006 at 5:41:40 PM
sue dornfeld@yahoo.com

From Raffaella Selvaggio,
Dear Josie:
My Mom is in heaven so I asked her to send all the angels to watch over you every second of the day. She promised me they would help you stay strong and overcome this disease. I believe that you will fight back and show the world that you have the gift of FAITH & LOVE and will win the battle.

All of US LOVE YOU Josie!
Raffaella Selvaggio

Sent on Friday, October 27, 2006 at 8:50:58 PM
raff333@comcast.net

From Karen Madsen,
THANK YOU, Jay, for the time you take to update us on Josie's blog with all of the details and at times a little humor too! It is a gift to all of us to be able to keep up with her status and care. Love, Karen
Sent on Friday, October 27, 2006 at 10:04:43 PM
madsen@mcleodusa.net

From Sarah Trombley,
Hi! My name is Sarah Trombley and my sister Carolyn is friends with Mary. She shared your story with me and I just want you to know that I will continue to pray for her everyday and I will keep up to date on the weblog.
Sent on Friday, October 27, 2006 at 10:25:23 PM
bsgtroms@paulbunyan.net

From jeannie,
My 10 year old son was diagnosed 2 mo. ago with jdm. My heart and prayers are with you. I pray that god will place his hands on your precious child and heal her body. I pray that you will know gods presence in these painful times and that he will bring hope and courage to your hearts as you walk through this difficult path.
Sent on Saturday, October 28, 2006 at 11:11:55 AM
jeanine@comteck.com

From Tom and Darlen,
Josie, your Mommie and Daddy are so strong and we pray for you and love you so much. Grandpa and Grandma Lund
Sent on Saturday, October 28, 2006 at 1:54:13 PM
lundlink@mac.com

From Dan Seftick,
Hi!
I learned about Josie from Jill Schut at our support group meeting this evening. I am the Minnesota rep for The Myositis Association. Want you to know that Josie and all of you are in our thoughts and prayers. I would like to encourage our members to send cards or write to Josie in our next newsletter. Is that okay with you? Please let me know how else I can help!

Sent on Saturday, October 28, 2006 at 8:34:08 PM
dseftick@cpinternet.com

From The Whites,
Dear Josie and your wonderful parents,
We received a link to your blog from our friend Aggie who thinks so highly of you. We can certainly see why after reading about your journey and seeing the sometimes difficult pictures of you. We are so touched by you and amazed at your strength. We have faith in God that he will heal you and give you a normal life with your sister and brothers and that you will be running and playing with them soon!
You are God's precious little child and he loves you and wants the best for you. We believe that with all our hearts and will be praying for you all!
Love,
Becca, Bob, Ben, Elise & Anna White
Lititz, PA

Sent on Saturday, October 28, 2006 at 8:49:32 PM
rrbeawhite@dejazzd.com

From Lynn Gabriel,
dear josie,
we pray that your transition back to full conciousness is one of comfort, relief,peace and full healing. May God's healing hands be resting on you. You are absolutely amazing and strong, smart and beautiful!
Love
Blake, Faith, Lynn and stan

Sent on Sunday, October 29, 2006 at 12:45:42 AM
lrshadle@earthlink.net

From Christine DM/ILD,
Dear Josie .....I have read your Blog and I am praying for you to get well soon,and for all the love and strength that everyone is sending to build you up....

Chin up little one,and fight the battle,love to the family too,

Christine and Family in UK. xx

Sent on Sunday, October 29, 2006 at 5:17:41 AM
chrisbrucenixon@blueyonder.co.uk

From Tom and Darlene Lud,
Josie, Jo Jo, we're looking forward to seeing you today, we pray for God's richest blessings to awakefullness and seeing Mommie and Daddy...you are our truest inspiraton. We love you, Grandpa and Grandma Lund
Sent on Sunday, October 29, 2006 at 8:55:01 AM
lundlink@mac.com

From Dan & Tami Greenshields,
Josie, What a tough kid, hang in there, both Tami and I are thinking of you in our prayers. The faith and love that have displayed in the Blog is so powerful and inspiring.

Love always,
Dan & Tami

Sent on Sunday, October 29, 2006 at 10:05:28 AM
dang@sharebuilder.com

From Sandy Judge,
Jay, Deb and Josie: You have had a few trying days. It sounds as though Josie is doing as well as can be expected and we hope that today, Sunday, she is taken off some of those tubes and drugs. Hang in there, Josie! There are lots of people praying for you!
Sent on Sunday, October 29, 2006 at 3:23:07 PM
kastju@msn.com

From Megan Wenaas,
Deb & Jay:
We just found out about Josie's Weblog - please know we're praying for Josie and the entire family. Please let us know if there is ANYTHING we can do.
Hugs, love and prayers,
Megan, Jason, Bridget & Molly Rose Wenaaas

Sent on Sunday, October 29, 2006 at 5:36:47 PM
MMWenaas@gmail.com

From EPH,
We've got everything crossed at the Hsu household ... including four pairs of eyes! We're hoping that today was a good day, and that you two are a little more rested, or at least rejuvenated after maybe some alone time. Okay maybe not alone, but at least away from the hospital at the same time. Sending you lot's of love and encouragement, E,M,T&A
Sent on Sunday, October 29, 2006 at 7:37:25 PM


From Colleen McVaney,
To the Adams family,
My name is Colleen McVaney, I live in Colorado and am a friend of Sue Pearce's. We are praying for Josie, that she would get better and also for your family to hang in there during this difficult time.

Sent on Sunday, October 29, 2006 at 9:50:11 PM
tallcolleen@dgcomputing.com

From Kris, Jill, Trig and Annika,
Josie,
I am amazed that you are still smiling for the camera! (Us photographers LOVE that!)
We are all hoping that the medicine and the nurses and doctors will make your tummy feel better soon.
Your spirit, strength and smile amaze us! Someday you will know how much you have inspired all of us to dream bigger, wish and pray harder, and love and laugh more often!


Sent on Sunday, October 29, 2006 at 10:45:58 PM
kris@teamfriday.com

From Karalyn, Tallie, Ryan & Bailey,
Don't give up, guys. They say it's always darkest before the dawn; there has to be a reason that tired old cliche came to be so widely repeated. Don't give up.
Sent on Monday, October 30, 2006 at 1:13:17 AM
karalynh@gmail.com

From Gigi and Eda,
Hi Josie, we are so proud of you, you are working so hard to get better, keep up the good work! Are you feeling good enough for a little visit? We miss you at fraser and would love to see you if it is o.K.
We (Gigi & I) were wondering if we could visit you on Tuesday October 31st after school (around 4:00 P.m) or some other time this week? We sure love and miss you!!! Eda &Gigi

Sent on Monday, October 30, 2006 at 8:16:30 AM
gigik@fraser.org

From Tom and Darlene Lund,
Josie, we were thrilled to see you and I even got in those funny little kisses...we're praying for you. we love you, Grandma Darlene and Grandpa Tom
Sent on Monday, October 30, 2006 at 8:32:07 AM
dlund@lssmn.com

From John Gamoke and family,
Josie,
You are a strong girl. We are awed by your strength. Our thoughts and prayers will be with you. You and your family are an inspiration to everyone.
God Bless you all.

Sent on Monday, October 30, 2006 at 8:33:35 AM
gamokechrysler@aol.com


Good to see that smile, Josie!

Keep being strong - our thoughts and prayers are with you -

Bob, Sarah, and Jillian Arnold

Sent on Monday, October 30, 2006 at 10:13:27 AM
rja@teemaster.com

From The Christofferson's,


Deb,Jay, and family,
Our prayer for you is that God will give you strength for each new day and that you will feel His presence in all this. We know that God is holding Josie in the palm of his hand.

Sent on Monday, October 30, 2006 at 11:51:14 AM


From Dawn Carpenter ,
I was given this link about Josie by a friend. After reading through the entries, I want you to know that I will be keeping Josie and her family in my thoughts and prayers. What your little Josie has gone through is almost hard to believe, and she is still smiling! Pretty obvious that she has a family that loves her very much... Twenty years ago our daughter was diagnosed with dermatamyositis. I read your account and the memories come back. Elevated enzymes, calcinosis, muscle wasting, the unusual rashes and other symptoms are all familiar to us. Today our daughter is healthy and she and her husband became parents to baby Freddie last March. He is very healthy and our daughter is a very happy mom. We got help from many sources (some non-typical) and would be happy to share any info that might be helpful. Please feel free to contact me.Thank you for sharing Josie's story.My love and prayers to all of you!
Sent on Monday, October 30, 2006 at 11:56:53 AM
dawncarpenter90@hotmail.com

From T. Egger,
Jay and Deb,

Sorry youre having to go through all this. Praying for Josie everyday for over a year now. Still holding out for a miracle.

Tom

Sent on Monday, October 30, 2006 at 1:03:29 PM
tomegger@mindspring.com

From Sue & Ron ,
Please enter a message
Dear Josie,

Please know that we add our thoughts and prayers for you and your whole family.

Ron and Sue (a.k.a. Papa Ronnie and Gramma Suzie to Molly Rose and Bridget W.)

Sent on Monday, October 30, 2006 at 3:20:16 PM
wencomm@usfamily.net

From Verla Atwell,
Sun City, Az.
Dear Josie and family,
I am a church friend (actually their deacon) of the Larson's, Shelly Doran's parents. Carol sent me a note asking me to pray for all of you and I called her and told her I would be praying for all of you, and I am. I just can't imagine how any of you are getting through this but want you to know that you are all an inspiration for all of us that are praying for you. I just couldn't quit reading all of the blogs you have put on your site. I feel so privileged to be a part of the ones praying for you. I cling to Hebrews 13:5 when I am going through trials: I will never leave you or forsake you, so we may say boldly "The Lord is my helper; I will not fear." I know it must be hard for you but keep hanging in there and fighting. We love you and are prayiang connstantly for you.

Sent on Monday, October 30, 2006 at 8:10:20 PM
memaw-v@hotmail.com

From Carlson's,
Mpls.
Just sending some Halloween wishes your way! We are thinking about you and hope things improve soon!

Emily, Jim, Sammy and Nisi

Sent on Monday, October 30, 2006 at 9:54:42 PM
emilyjimcarlson@msn.com

From Leigh Anne,
Maine
Good Evening Josie,

I am sending you the biggest hug from Maine. I had read that your family had visited Maine not too long ago. I really hope that they enjoyed their time here. Maine is a nice place to visit but a much nicer place to live.

Caitlin wanted me to tell you that she liked your Swiper tattoos in some of your pictures. They make her laugh to see them. Caitlin had to go have some blood drawn today for her JDMS. She was brave like you, no tears or anything.

Get well soon Josie, I would love for you and your family to come back to Maine sometime. Maybe than you and Caitlin can play together.

Stay strong Josie, stay positive family and know that we are all thinking of you!

Leigh Anne Gorecki

Sent on Monday, October 30, 2006 at 10:05:51 PM
supajut@msn.com

From Kay Stalcar,
Richfield
Hi Josie, Jay & Deb,
Just wanted to let you know that we are thinking about you. Let us know if there is anything you need.

Sent on Tuesday, October 31, 2006 at 10:36:11 AM
kstalcar@cojlbc.org

From Sue A. Awes,
Fraser School
Happy Halloween Josie from Fraser School. We just had our sing a long and we wish you were here. We made treat bags and walked around to all the classrooms to get candy. We wish we could send you a treat bag full of candy. It sounds like you will be ready soon for something fun to eat. Get well soon Josie!
Sent on Tuesday, October 31, 2006 at 11:22:11 AM
suea@fraser.org

From Kris Tovson,
Golden Valley
Josie, Jay,Deb, and all of the Adams Family,
I just found out about Josie, her serious condition, and your Josie's Weblog website. I am so sorry Josie is so sick, and you all have my thoughts and prayers as you fight through these difficult times until Josie feels better. I will keep in touch through your website. I hope and pray things go well for
Josie and you all get some good news you are so deserving of.
Kris Tovson

Sent on Tuesday, October 31, 2006 at 11:41:39 AM
ktovson@ci.golden-valley.mn.us

From Judy Lewis,
Fort Myers, FL
God bless you all. I cannot start to know what your going through with your little Josie, but I will keep her and your family in my prays.
The disease that we share is hard enough on an adult's like myself and others, but for a child it is a double whammy.
Keep up your courage and know that "this to shall pass", some day soon there will be a cure for this mean disease.

Hugs to you and your family,
Judy DM 2002

Sent on Tuesday, October 31, 2006 at 1:38:43 PM
jbayjudy@aol.com

From Anne,
Chaska
Hello,
I received this link from your neighbor Megan. She is praying hard for you and now I am too. Your story and your strength touch more people than you know. Hope you get some good news soon.

Sent on Tuesday, October 31, 2006 at 2:31:53 PM
anne_farrar3@yahoo.com

From Jill, Kris, Trig and Annika,

Jay, Deb, Trip, Henry, Evie and Josie,

Hang in there - Live Big, Live Strong! May the spirit of love surround you everywhere!

Jill, Kris, Trig and Annika




Sent on Tuesday, October 31, 2006 at 4:20:54 PM
jill@teamfriday.com

From The Heilman Family,
Lakeville MN
Happy Halloween Josie! I was glad I was able to come and visit you on Saturday night. You probably don't remember because you were sleeping. I hope you were able to dress up as a dog eating a cheeto like your Mom said you wanted to!! Lucas was a dementor from Harry Potter and Isaac was a gladiator. You are so brave and courageous!
We love you
Lisa Rich Lucas and Isaac

Sent on Tuesday, October 31, 2006 at 7:56:45 PM
lheilman@frontiernet.net

From the LaMoure Family,
Bemidji, MN
Josie - Just know that we're thinking of you. When you get better you need to request your very own trick or treat day so you can get all the candy and eat it. Now thats a great idea for a welcome home. Tell mommy and daddy and all the neighbors when its your day to go home and you can eat again that all the neighbors need to be prepared for your trick or treat day. You can dress up in your costume and knock on all the doors. Take care Josie.
Sent on Tuesday, October 31, 2006 at 8:16:33 PM
LaMoure@paulbunyan.net

From Verla Atwell,
Sun City, Az.
Verla says:
Hi Josie, Jay, Deb, Trip, Henry, and Evie,
Just wanted to say how beautiful and cute you looked tonight on the blog Josie and it was so nice to see your brothers and sister in their costumes too. I know you aren't feeling good but you are the bravest little girl I know and you have the most loving family. We all appreciate the updates so that we know better how to pray for all of you. I really don't know how you do everything you do but THANK YOU for keeping us updated. We will all rejoice the day we know you are completely healed Josie and home from the hospital. Take good care. We love each and everyone of you. Love and prayers.

Sent on Wednesday, November 01, 2006 at 12:30:40 AM
memaw-v@hotmail.com

From Joan Wobbleton,
Murrells Inlet,SC
What a cute hulla outfit. Josie you look so sweet and it's like you are just waiting to feel better and get right up with the kids and do what ever they are doing. Boy, how hard is it to just not be able to go and do and play? I can't imagine. We pray that God will be merciful and give you healing,and strength,and endurance to stand all of this pain and surgery. It's hard to imagine one so samll having to go through all you have gone through and still wear a smile. God bless you and keep you strong. Keep your family strong.

Love to you to your family.

Joan and Jim Wobbleton
Murrells Inlet,SC

Sent on Wednesday, November 01, 2006 at 7:51:06 AM
jwobb@aol.com

From Patrick Walsh,
Chanhassen
Dear Adams Family,

I was reading Josie’s Blog, as I do most every day, feeling helpless. I wanted to do something to help. But I’m not a clinician, what could I do?

I thought to myself, you could send a get well card. Well that got me thinking, a friend of mine once organized a get well card campaign for his mother and it did wonders for her spirit. Maybe I should ask all of my friends to send Josie a card? Then I remembered that I don’t have that many friends, and some of them don’t even like me (I.e. Kris & Becca).

So I thought that all of these wonderful people leaving wonderful messages for Josie would also like to take part.

I contacted the hospital and they said cards would be welcome (no plants, no flowers, and no latex balloons). Send cards to:

U of M Children’s Hospital
420 Delaware St SE
Minneapolis, MN 55455
Rm. 413 Unit 5C
Josie Adams

I am asking all of my family and friends to send cards in hope of refreshing Josie’s spirit. Please do the same.

(Jay, if this is a bad idea I hope you can delete this entry)

Sent on Wednesday, November 01, 2006 at 7:59:25 AM
pwalsh@pchealthcare.com

From Elaine Bicanic,
Julian, CA.
Dearest Josie, I am your cousin Anna Chapp's kindergarten teacher. Yesterday your Aunt Mary told me all about you and gave me your website. I think you have to be the cutest patient in that hospital! I will pray that you have better days ahead and that you keep fighting! You are in my thoughts and I wish I could meet you! Love, Mrs. "B."
p.s. Your Halloween costume was very cute -- aloha nui loa!

Sent on Wednesday, November 01, 2006 at 9:57:53 AM
ebicanic@sdcoe.net

From The Rynersons ( the whole fam damily) (( as Brad always says...)),
Richfield
Hey there Josie Girl ( the lovely Hula-Hula ray of sunshine ), Evie ( Black Cat, I presume? ), SANTA ??? ( very seasonally appropriate, Hen ) and Trip... Mr. Construction guy - You guys are such a great bunch!! Keep up the good work big bros and sissy- it is very obvious you bring your courageous little sis much strength and joy. Same goes for the rents. May God continue to bless your family with the strength and positive attitude which has been so inspirational for us all. We are praying for you, Josie, and your family. Thanks Jay, for keeping up the updates.
Sent on Wednesday, November 01, 2006 at 10:19:42 AM
Rynersonelectric@yahoo.com

From Tom Doran,
Eagan
Hey, checkin the page for the day. Good Halloween Pic. My mom and cousins in Madison Lake are praying for her.
Sent on Wednesday, November 01, 2006 at 10:27:40 AM


From Jocelyn,
Burnsville Peds Rehab
Josie- Kate and I say hello and we are amazed at what a fighter you are! We miss seeing you here at our clinic.

Mr. Ed hasn't gotten much use lately- he can't wait until you can come back and ride on him! Take care!

Sent on Wednesday, November 01, 2006 at 11:17:06 AM
jlian1@fairview.org

From Kelly,
Bloomington, MN
Hi, I am a co-worker of Jim Hembd and he has been sharing some of Josie's story with me and I've been reading more on the website. I just wanted to let you know that she is such a precious child and her strength is truly amazing. I continue to pray for her, along with so many others, and I know that God has a special plan for her life. KEEP THE FAITH! Many blessings to your family! ~ Kelly
Sent on Wednesday, November 01, 2006 at 11:41:08 AM
kgamble@toplastics.com

From Erin Hilton,
Woodbury, MN
Hi-

You don't know me, but Megan (Wenaas) is my best friend and I spent the day on Sunday with her and the girls while Jason was working. Megan forwarded me your site so I could learn about what is going on after she had mentioned you and I just wanted to let you know that if there is anything I can do to help, please let me know. Your entire family will be in my thoughts and prayers.

Sent on Wednesday, November 01, 2006 at 11:55:40 AM
erinhilton@yahoo.com

From Becca,
Central America
Hey Josie,
You are the most couragous person I know. The Halloween pics are great of you and your brother's and sis. Gary, Prescott and I are thinking about you daily.

B, Gary and Prescott

Sent on Wednesday, November 01, 2006 at 5:37:14 PM
From Crystal,
Milo, Maine

Hi Josie-
Thank you for being so strong. I have never met you, but I want you to know that I love you with all of my heart. You are a gift from God. Please be well!

Love,
Crystal

Sent on Wednesday, November 01, 2006 at 6:32:25 PM
mattandcrystal1@verizon.net

From Sammy,
Minneapolis

Hi Josie - here is a joke from Sammy.

There are 4 copy cats in a tree. One jumps off. How many are left in the tree? NONE. Get it? Because they are copy cats... so when one jumped off... so did all the rest.

We hope your Halloween was fun. It was too cold for us!!

P.S. Happy Late Halloween!

Love Sammy Carlson

Sent on Wednesday, November 01, 2006 at 7:34:52 PM
emilyjimcarlson@msn.com

From Glenda Massey,
Fort Worth, TX

Josie,
I have a little granddaughter that is very much like you. Natalie was diagnosed with JDM on June 27th, 2005, shortly before your diagnosis. She will be four on December 19th. Your pictures remind me a lot of "Na Na." She is in a "flare" right now and is having to take lots of meds too. Natalie and all her family are praying for you and wishing you a speedy recovery.

Sent on Wednesday, November 01, 2006 at 9:11:55 PM
glendamassey@sbcglobal.net

From Alexa & Aggie,
San Francisco

Hi Josie,
I will save some of my Halloween candy for when you are feeling better. Oops my Mom says it will be stale, so I promise to send you a big bag of your favorite candy soon!! I liked your hula outfit alot. I was Medusa, a mean witch who turns people to stone if you stare into her eyes. She has snakes on her head instead of hair!! If you want to borrow my costume one day, I will save it for you. My Mom tells me everyday when she picks me up from school how you are doing. I am waiting for the day she tells me you are all better. Then we will come to visit you in Minneapolis. Or maybe you can come here. I have a trampoline, a dog named Karma, and 2 cats Liam & Jezebel. I also have a beautiful dapple pony with a white mane & tail but it's been kind of yucky cause he's been having bell aches too & some icky diarrhea!! But I will let you ride him when you come to visit. Please get better soon so we can play!
Love, Alexa

Sent on Wednesday, November 01, 2006 at 11:19:57 PM
aiv1026@aol.com

From Aggie,
San Francisco

Hi Josie, Evey, Trip, and Henry,
Loved the Halloween pictures... you guys looked great! We had a good time trick-or-treating in this really cool neighborhood where they have contests to see which yard is the scariest, best-decorated, and even Jack-o-Lantern carving. We carved a bunch of pumpkins over the weekend. Can you believe that was the first time Uncle Mark ever did that? I bought one of those big, white Cinderella Pumpkins. Word of advice... don't try to carve on of these! They are just wayyy too hard!
Alexa had a terrific idea just before she went to bed. She mentioned last year on her spring break we went up to Ely to go dog sledding. It was really, really fun! They come up with these silly names for the dogs... Alexa's favorite was Meathead. Hopefully little Jo-Jo will be feeling better by then and we can all go dog sledding together. What do you guys think? Good idea??
XOXOXOXOXO

Sent on Thursday, November 02, 2006 at 12:04:15 AM
aiv1026@aol.com

From Cynthia Benner,
Minneapolis, MN

Hello Josie,

Just thinking about you and wanted to see how you're doing. Thanks for the update. Hope you're feeling better soon.

Thoughts & Prayers!
Cynthia Benner

Sent on Thursday, November 02, 2006 at 10:09:01 AM
cynthia.benner@medica.com

From Tom and Darlene Lund,
MN

Josie, Jo Jo, we're checking in on you...we think you are about the bravest girl we know...especially one who is soon going to be 4 years old. We're praying the pain will go away the your tum tum will began to get better. We love having Berkey...he is funny...Smokey hiss at him once in a while and then the three of them lay on a blanket in the living room and sleep...We love you JO JO. Get better fast. Grandpa and Grandma Lund
Sent on Thursday, November 02, 2006 at 10:20:35 AM


From Marilyn Wilmot,
Bradenton.

Josie,

I love the hula costume!! You look sooo cute. It's nice that your whole family could be there to help celebrate the event. They must so proud of you--you are an inspiration to all of us, and you are one tough little girl! Keep up the good work.

Sent on Thursday, November 02, 2006 at 11:55:35 AM


From Amber Westerberg,
Edina

Dear Deb and Jay,
I have been thinking and praying for you so often since I heard the news of Josie. I am soooo sorry for all of you. My heart breaks for you. I am thankful that I can read about your journey and know how to pray for Josie specifically.

Sent on Thursday, November 02, 2006 at 2:45:32 PM
awesterberg@usfamily.net

From Deb Gronholz,
Nisswa

Dear Deb, Jay, Josie, Trip, Henry & Evelyn,
Sunday was the first day I went on your website...I'm embarrassed to admit that since I had known about Josie's illness from the very beginning. I spent 2 1/2 hours reading each and every blog. I really had no idea the extent of your suffering! What an inspiration you all are, especially your little Angel, Josie. She is touching many lives. I want you to know that I have been praying for you all along, and will continue to lift you in prayer each day.

Deb

Sent on Thursday, November 02, 2006 at 8:52:22 PM
grizwald@nisswa.net

From Deanna Kearns,
Largo, FL

Hi Josie,

Come on and fight little one. I know you are tired of all of this and you should be, butwe are all praying for you and with the combined strength of all of our prayers we are hoping to take away all of that pain you are in and help you get well again.

Thinking of you,
Deanna Kearns (Caitlin's Grammy)


Sent on Friday, November 03, 2006 at 6:33:14 AM
d.l.kearns@att.net

From jan g,
I have tears in my eyes, I can't stop from crying in my office, my heart is with you guys. J
Sent on Friday, November 03, 2006 at 9:11:04 AM


From LaMoure Family,
Bemidji, MN

Josie,
We hope you got the cards the kids made along with the picture of you and the other JM kids at Julia's house. Know that we continue to think of you very day. God sure did make you and your family with amazing strength and courage.

Sent on Friday, November 03, 2006 at 11:42:05 AM
LaMoure@paulbunyan.net

From tdoran,
She's got grit.
Sent on Friday, November 03, 2006 at 11:43:19 AM


From Kristina,
San Diego, CA

I am praying for you Josie...Don't lose hope. Our Lord Jesus loves her so much! Keep faith in Him and He will come through for you. My church believes in miracles (and have seen people healed!) and I have added you to our prayer list.
"And whatever things you ask in prayer, believing, you will receive" Matthew 21:22

Sent on Friday, November 03, 2006 at 12:39:58 PM
krisl247@yahoo.com

From The Wenaas Family,
Right next door to you! :)

Deb & Jay:

Continued prayers for Josie. We're praying hard! We love you guys!

Megan

Sent on Friday, November 03, 2006 at 1:09:37 PM
MMWenaas@gmail.com

From Jean Stumpf,
Pediatric Home Service

Just a quick note -- know that the staff at PHS are thinking about Josie often and following your blog to check up on her. Thank you, Jay, for your thorough updates. I wish she were having an easier time of it, and am blown away by her steadfast nature and the number of little, elfin smiles she manages in spite of her ordeal. And that hula outfit was absolutely adorable! Anyway, my best wishes to your entire family --
Sent on Friday, November 03, 2006 at 1:14:33 PM
jstumpf@pediatrichomeservice.com

From EPH,
Josie …

Josie you are such a beautiful girl,
When you’re feeling better we’ll go for a whirl…
On a bike, in a car, on a scooter or on skates,
Whatever you choose there’ll be no debates.
You’ll get to pick, you’ll be in charge
Making decisions and living so large!
You look like a princess, so little and sweet
I hope in your dreams it’s a prince that you meet.
And he tells you that you are so brave and so strong
Then he sings you a very princessy-like song!
On the pain in your tummy we don’t want to dwell
We’ll all just be happy to see you feel swell
And bossing around your brothers and sister
Even Monty and Birky (who can be like a twister)
Until then, you just rest,
Mom and Dad know what’s best:)
Every day and at night we all pray for you, Jos,
From the bottom of our hearts to the tips of our toes!

Love, EMT&A

Sent on Friday, November 03, 2006 at 1:15:39 PM


From Kathy Davis Colebank,
Pennsylvania

Dear friends,
Actually we are relatives. I am Ken and Hazel Davis' daughter. Debbie, your father, Larry, is my cousin. I knew Larry well when I was a child, although he is several years older than I am. He and Suzie were at my dad's funeral in April. I always liked Larry and Suzie. I am sorry that I didn't know you better, Debbie, but my mother tells me she always had a real soft spot for you.
My sister, Candie and I, are both ordained Presbyterian ministers. Ken is an ordained Baptist minister. We are all praying for your family and for Josie.
May God surround all of you with his presence, comfort and love during these really tough times.
Josie is one amazing little girl and you are terrific parents. I imagine it is really tough to find all the time and energy you need for work, Josie and her siblings.
Sorry I signed the book without a note earlier. I must have hit the wrong button before I got a note written.
I will continue to hold all of you in prayer.
Kathy

Sent on Friday, November 03, 2006 at 3:25:56 PM
kdcnpa@atlanticbb.net

From Jamie and family,
Honolulu

Prayers and love to Josie and family. Each day I hope to read good news about Josie. Our daughter Jamie presented with JDM at 6 months old and we lived in the hospital for 6 weeks while Jamie lingered, almost dying, while doctors tried to figure out what was going on. She had severe muscle weakness, lots of crazy gastro and liver involvement, edema, cloudy lungs, etc. Each day seemed to bring something else with it. We were in a "fog," too, not knowing where we were headed. Our journey was just a glimpse of what you're going through. After returning home and things 'calmed' down, I realized that it takes a special kind of family to experience and endure these things. Your family is a champion and I truly respect and admire your strength. Thank you for taking the time to share each day with us. By doing so, you pass strength on to our family as well.

Love to you all,
Acoba family

Sent on Friday, November 03, 2006 at 7:51:04 PM
vacoba@hotmail.com

From Karalyn, Tallie, Ryan & Bailey,
Seattle, WA

Still thinking of you, each and every day. Tallie said she wishes she could tell Josie that she knows how much an IV hurts and how it can be really scary in the hospital sometimes and she wishes she could come and visit and tell Josie not to be afraid. She said she wishes she could sing a song for Josie to help her "feel still." She also said that when she's at the hospital, sometimes she likes to pop bubble wrap, and she hopes that Josie will soon feel well enough to pop bubble wrap, too. All of our best thoughts and wishes are with you guys.
Sent on Friday, November 03, 2006 at 9:37:39 PM
karalynh@gmail.com

From Joe Doran ,
Richfield MN

Dear Josie,
I am thinking about you every day and am praying for you. I am coming to see you soon and can't wait to go camping together again. You can paint my nails next year :)

Sent on Friday, November 03, 2006 at 9:42:40 PM
jpd@mn.rr.com

From Lynn Gabriel,
victoria, MN

Dear Josie,
Blake and Faith want to say hi. They like to look at your pictures on your blog that your daddy keeps updated on how you are doing. They love to see you, and even though you can't hear their words, they are saying that "God is healing you". we think you are amazing and precious! We are of course praying for you all the days long. I am sure that when you say your prayers, you know exactly what to ask Jesus for because you can feel your ouies. as your dad says, you really are a champ! You should be very proud of yourself and who you are. You are very special with the most beautiful smile!especially as a beauitful Hula girl! Great outfit!
Take good care
keep on believing and asking Jesus to make you better, He will.
Our love,
Blake Faith Lynn Stan

Sent on Friday, November 03, 2006 at 11:53:40 PM
lrshadle@earthlink.net

From The Arnold's,
Minneapolis

Hi Josie -

Your strength is amazing! We are very proud of you. Keep fighting, and the pain will go away soon. With your birthday coming soon, I'll bet you get lots of presents!

Our prayers and thoughts are with you and your family.

Love,

Bob, Sarah, and Jillian Arnold

Sent on Saturday, November 04, 2006 at 7:03:29 AM
rja@teemaster.com

From Leigh Anne,
Maine

Hello Family,

I can totally relate the noise factor and the activity in Josie's ICU. I work in a NICU with all those tiny baby's and there is never a dull or quiet moment. The good thing with all that activity is that she is where she needs to be. Beeps and alarms and people...they are all there for her.
Please tell Josie that we are thinking of her and wishing her a strong and painless day! I am sorry that she hurts, I wish I could take it all away, we ALL do.
Much love to your family, and most of all Josie.

Leigh Anne, Justin and Caitlin (active JDMS fighter)

Sent on Saturday, November 04, 2006 at 7:58:19 AM
supajut@msn.com

From lynne,
bloomington

hang in there guys. we are with you in spirit out here. reading everything everyday, keeping you with us throughout our days. appreciating your courage and strength. and yes, jay, i would be crying "uncle" long ago. josie is amazing as are you and deb. love, lynne
Sent on Saturday, November 04, 2006 at 8:53:18 AM
lceciljohnson@yahoo.com

From Michelle Shewbridge,
Aberdeen, MD

Josie & family,
I read your story everyday..and everyday I say a prayer for you. My little girl Rachel (6) has JDM too. I wish so much I had a magic wand and could make everything better. You are such a strong and beautiful little girl. You are in our thoughts everyday. Stay strong and god bless you and your family.

Hugs,
The Shewbridge Family

Sent on Saturday, November 04, 2006 at 6:06:26 PM
chrisshew@comcast.net

From Joan and Jim Wobbleton,
Murrells Inlet,SC 29576

Have been wondering if you or a family member have thought about starting a Josie fund that we as friends could send contributions.
I'll bet that grandma Suzanne would know about how to start one.
If there is one started it would be helpful to have the address so we could do something.
Please let us know if there is one or will there be one in the future.

God bless all of you but especially that wonderful little girl Josie.


Sent on Saturday, November 04, 2006 at 7:22:59 PM
jwobb@aol.com

From Mary Doran,
Haiti

Hi Josie. I am writing to you from Haiti. I hope your tummy feels better real soon. I am praying for you. I love you. Mary Doran
Sent on Saturday, November 04, 2006 at 7:31:19 PM


From Verla,
Sun City, Az.

Dearest Josie, Jay, Deb, Trip, Henry, and Evie,
I just can't believe what is happening with you but you are all amazing. Just thought I would send a prayer: Dear Heavenly Father, we don't understand what is happening or why your precious little Josie is going through this but we know that you are with her and her family. We lift her up right now and ask for complete healing soon. Let each one of them feel your loving arms around them and please comfort and strenghten them and give them your peace. You are an awesome God and Father and I know you will anser this prayer, not because of who I am or who they are but because of who YOU are. By your Son's stripes we are healed. Praise god!!!! Bless them and we give you all of the glory in advance. In His precious name we pray beleiving. Amen

Sent on Sunday, November 05, 2006 at 1:40:36 AM
memaw-v@hotmail.com

From Leslie,

So nice to hear Josie is taking an interest in her surroundings. It is amazing to see those younger pictures of her. Please know that you are surrounded by prayers and hugs. Riley and I both talk about how we just think about Josie constantly and we are praying so fervently for time and healing. I actually bought special music that the kids and I listen to in the car as we think and pray about Josie. She's on our minds all of the time and is so dearly loved. Please be reassured about the narc dependence/weaning. If done right it really is not traumatic and she needs those narcs now. I'm sure they are very skilled at it and will go super slowly as they wean one and bump an alternate up. It's actually a "sick" things we nurses take pride in doing well because it is a tricky manuever to be sure. Hang on and hang in...Love you all!
Sent on Sunday, November 05, 2006 at 7:05:44 AM


From Lily (from Fraser),
Hi Deb, Jay and Josie,

Just wanted to let you know I am still checking back each day to see how Josie is doing. Thank you Jay for taking the time to write and let us all know how she is doing. I still think of and pray for Josie many times each day. I love the new (old) pictures of Josie - I remember the days of duct taping her diaper so she wouldn't take it off!! Praying for good things to come for all of you!!

Sent on Sunday, November 05, 2006 at 8:15:38 AM


From lynne,
bloomington

wow. another tough night. thanks jay for the old pictures of josie - that was refreshing. glad to hear she was coloring last night.

i love that you have your own room. thanks for the update. josie, you are amazing. love, lynne

Sent on Sunday, November 05, 2006 at 8:32:19 AM
lceciljohn

From Gabos Family,
Plymouth

Hello Jay and Deb and Josie,

We heard about Josie's illness from DH yesterday and have been reading through your blog since then. We are so amazed at what you have been going through. We understand a little how it feels to struggle through something like this - our daughter Kendall was diagnosed last year at age 2 1/2 with what is called a Giant Cell Fibroblastoma - basically a cancerous tumor that she has had since birth on her buttocks. In February, two weeks after the birth of our son, Cole, she had four surgeries to have it removed - about a fist size hole in her butt cheek! I have to agree with you that it is amazing to see how strong our children are when we all know that as adults we wouldn't be able to handle all the pain and the tests and the hospital stays! Kids are definately more courageous than we think they will be and they are the reason that we have to stay strong. I'm sure Josie is your inspiration and each day is one that will make her and your family stronger. We will be praying for Josie and for your family that the struggles you are going through will soon turn into triumphs over this illness. Please let us know if there is anything that we can do to help.

Love and prayers,

Mark, Julie, Kyle, Kendall and Cole Gabos

Sent on Sunday, November 05, 2006 at 11:28:45 AM
mngabos@comcast.net

From Karalyn, Tallie, Ryan & Bailey,
Seattle, WA

Sweet girl, stay strong. You are amazing.
Sent on Sunday, November 05, 2006 at 12:23:49 PM
karalynh@gmail.com

From Tom and Darlene,
US

We're home josie...and we're so worried about you, the first thing Grandpa and I did was read about you...Mon and Dad...we'd love to serve you...612/861-5519, Iove you all Grandpa and Grandma Tom
Sent on Sunday, November 05, 2006 at 5:54:53 PM
lundlink@mac.com

From bill,
We are continuing to send positive wishes and prayers your way. Donna and I had a chance to see our daughter at school this weekend and offered some special prayers for Josie and family at the Dominican Chapel at Providence.
Sent on Sunday, November 05, 2006 at 7:10:28 PM


From The Heilmans,
Lakeville

We just want you to know that we are checking in on you and continuing to send prayers your way. Jay, we so appreciate that you share with us all the details about Josie. It is such a loving gift to her and to all of us. We especially loved the pictures of Josie so healthy and happy! Glad to hear that in spite of all the things going on that she felt like coloring and chatting again.
Love to all.
Lisa Rich Lucas & Isaac (and Murphy)

Sent on Sunday, November 05, 2006 at 9:06:04 PM
lheilman@frontiernet.net

From Amina,
Chanhassen, MN

Josie,

You are one beautiful and brave precious child.

A friend from Westwood sent a link to your web paged and asked me to pray for you. You are such an inspiration and your family is so loving.

I pray that things go well for you and that God heals you.

God bless you and your family.

Amina Rinkes

Sent on Sunday, November 05, 2006 at 10:42:20 PM
amgharbi@yahoo.com

From Jamie & family,
Honolulu

Hooray for a good day! Hoping for more to follow!
Sent on Monday, November 06, 2006 at 12:53:24 AM
vacoba@hotmail.com

From Lynn Gabriel,
victoria, MN

HALLELUJA!!! You go girl! You keep confusing those doctors in a good way. they'll figure out that it is Jesus. It's a good thing those nurses have you to tell them how it is all done over there. Keep an eye on them. ;-) I think you will be ready to graduate from med school after this ordeal, it's an education beyond what they get in med school for sure. Keep believing Josie! God is healing you. Sass away, look out world here comes Josie!
Love
Blake, Faith, Lynn, Stan

Sent on Monday, November 06, 2006 at 1:29:39 AM
lrshadle@earthlink.net

From Riley McKeown,
Richfield, MN

Hi Josie, It's soooooo good to hear you had such a good day yesterday. I'm going to come see you soon. I need a new coat of polish on my toenails. Hope your days keep getting better and better. We love you Josie.
Riley and family

Sent on Monday, November 06, 2006 at 4:00:41 AM
RMcKeown1@mn.rr.com

From Mike Hotz,
Minneapolis

So happy to see Josie's smile and read the news of the day!
Bless you all!

Sent on Monday, November 06, 2006 at 6:45:19 AM
mikeh@cpconline.org

From lynne,
blmgtn

yeaaaa! so glad for a better day. so so happy to read that this morning. hope today is a good one too. i love to see her coloring and think of hearing her ordering everyone around. just love it. hang in there. love, lynne
Sent on Monday, November 06, 2006 at 7:11:04 AM
lceciljohnson@yahoo.com

From Janis and roger,
minneapolis

The first thing I do everyday is read about our beloved Josie. Today the sun was shining and the news was heart warming and positive. I feel I have been given a special gift. It is so wonderful and helpful for all of us out here to read Jay's blog. I am sure you are very tired when you write it, Jay, but it is so appreciated by us. It is amazing how this little girl has touched so many by her feisty battle against such a nasty disease. I hold in prayer this beautiful Adams family, each one by name, and feel your strength will prevail. I continue to live by the rule, "don't bring the future into the present", and will be grateful for this good news all day.
Sent on Monday, November 06, 2006 at 7:56:24 AM
marti009@umn.edu

From The Rynersons,
Richfield

Dear Josie and Family, and staff at Childrens- Thanks for " MAKING OUR DAY! " Keep it Up! Halleluia!! Thank you God !
Sent on Monday, November 06, 2006 at 8:07:09 AM
rynersonelectric@yahoo.com

From Gigi &Eda,
Fraser

It is wonderful that Josie is feeling so much better!!
Go Josie go!! Eda and I were wondering if Josie would like us to visit on Tuesday again. We would like to be on a regular schedule of every Tuesday around 4:00 for 10 or 15 minutes or so. Maybe Josie would enjoy the predictablility of it?. What ever you think is right or good is fine with us. Thank you so much for your daily updates they are the Best- really well writen and so informative. Josie is always in our prayers and on our minds. We so want to see Josie back at Fraser having fun. Please let us know if it is o.k. for Tuesday. H.S.phone (Gigi) is 612-798-8325. I am in the classrooms from 9-12:30.

Sent on Monday, November 06, 2006 at 8:15:16 AM
gigik@faser.org

From Jill & Gracie,
Wisconsin

Way to go Josie!!! You are a fighter aren't you. We are an amazing little girl! We will be sending you a box of fun things that will keep you busy while you get better.

BIG HUGS,
Jill and Gracie(dx 11/2000)

Sent on Monday, November 06, 2006 at 8:19:02 AM
jillmickelson@aim.com

From Leigh Anne,
Maine

My Dear Josie,

How amazing you are! Good for you. Fight, fight, fight! Your dad really made our day here by telling us about your day's. I dare say that you are my hero Miss Josie! I hope today brings you an even better day than before. Don't do too much though, keep your strength to heal. Caitlin wants me to put you on a plane so you can come to our house. She wants you to see the snow. When we woke up this morning the ground was covered with that beautiful white fluffy stuff. I knew it was the start of a really great day!
Hang in there, the positivity and prayers are doing what we had hoped. So are you...keep up the good work.

Much Love,
Leigh Anne, Justin and Caitlin (current JDMS fighter)

Sent on Monday, November 06, 2006 at 9:17:50 AM
supajut@msn.com

From Kris,
Richfield

Way to go Josie!!!
We have some art stuff to bring to the hospital for you.
I got these cool pens that write on windows--perhaps you can put the nurses orders on the window!
I think Riley and Joe (along with Paul) have started something...perhaps you can paint ALL the boys toenails as soon as you are able! You tell us the colors you want and we'll get the boys to agree! (or else!)
Annika would LOVE to help you paint toenails! I guess you can paint mine, too--since I'm not much of a makeup kind of gal! I would be honored to wear polish for Josie!!!
Keep up the fight! We are still sending constant wishes for healing and relief~

Sent on Monday, November 06, 2006 at 10:01:40 AM
kris@teamfriday.com

From Joan and Jim Wobbleton,
Murrells Inlet,SC

Wow what a girl to be up and coloring and telling the nurses what to do. We can only hope and Pray that each minute of each day the Good Lord is holding you in his hands and making you able to deal with all that you have to endure.
Jay the blogs are wonderful. My husband and I read them each and every day and continue to be inspired by what is going on in your life. The blogs are so informative and with some humor.
Prays for the whole family and especially Josie and the doctors who have to make the right decisions.

Joan and Jim Wobbleton

Sent on Monday, November 06, 2006 at 10:06:22 AM
jwobb@aol.com

From The Camerons,
Chaska, MN

Josie and Family,
We have heard about you through Lynn Gabriel and have been very moved by the trial you are going through. My girls, Annika (4) and Kiera (3) pray for Josie often--at dinner, bedtime, just now as we looked at your updated pictures. I just wanted you to know that we are one of many families praying for you!
The Camerons

Sent on Monday, November 06, 2006 at 10:25:19 AM
taria@chaska.net

From Carol Larson,
Arizona

Good Morning from Arizona..I arrived home last night and I can't stop thinking about your little angel, and your whole family. You people are so amazing. I prayed for Josie most of the night on Saturday, as I knew it was a horrific day. Wow..I'm so glad she has had a better day and you can try to relax a bit. She looks much better. Thank you Jay for all the updates. What a great thing for you to do and with such courage and even a little humor. It was such a priviledge to meet you both and little Evie, and Henry and Trip. Evie is adorable and so smart. Shelly just loves you all so much as here own family, and I can understand why. God be with you all and I am praising God for the good news. Lets all pray that it continues. Love Carol
Sent on Monday, November 06, 2006 at 10:31:55 AM
larsunhome@aol.com

From Kay,
Richfield

Dear Josie,
You are making me smile today! I am so glad that you had such a great day yesterday. Keep up the good work. Jay, thank you so much for letting us all know what it going on. We will keep praying for you all. Jojo I am waiting to get my nails painted again too!

Sent on Monday, November 06, 2006 at 10:54:29 AM
kstalcar@cojlbc.org

From Mary Doran,
Haiti

HI Josie. I am so glad you are feeling a little bit better. We are working hard in Haiti. I think of you often. I am praying for you. I love you. Mary
Sent on Monday, November 06, 2006 at 2:48:29 PM


From Stacey Mitchell,
Fort Worth, TX

Hello. I just wanted to first let you know that I'm starting a prayer chain for little Josie, I hope you don't mind. I have friends in Virginia, Idaho, Indiana and here in Texas that will pray for her. My niece, Natalie, is the same age as Josie and was diagnosed with JDM just a few days apart from Josie. I want to thank you so much for keeping such a detailed log of Josie's journey. I realize little is known about this disease and many will benefit from the information you all have shared. I will certainly keep Josie, and all others fighting this terrible disease, in my thoughts and prayers. Bless you all and keep staying strong. You all are an incredible family!
Sent on Monday, November 06, 2006 at 3:08:09 PM
stacey.mitchell@verizon.com

From Sarah Madsen,
Eau Claire, WI

Hi Josie and the rest of the Adam's gang! It's Sarah Madsen, Tom and Karen's daughter. I was home this last Sunday from UWEC and they informed me the severity of Josie! You're all in my prayers- my bible study will be praying for you guys and your day to day lives! Much love, Sarah
Sent on Monday, November 06, 2006 at 3:29:12 PM
madsensl@uwec.edu

From Anita Burg,
Edina

Dear Deb and Jay,
Please let me know if I can help you out in any way! I could pick up your kids from school, bring them to my house, bring them to your house......with all your time in the hospital with Josie it must be so tough. Call me! 952-925-4985. I can leave work as early as 2:30 some days if I know in advance.

Take care....I'm praying for you!
Love,
Anita

Sent on Monday, November 06, 2006 at 4:45:12 PM
aburg@vischool.org

From Jocelyn,
Burnsville

Josie- I read you stood up today! Next time will you count to 10 for me? I'm excited to read you are standing :)
Sent on Monday, November 06, 2006 at 6:00:00 PM
jlian1@fairview.org

From Jennifer Terwilliger,
Edina, Mn

Josie,

I am Tom Lund's daughter (across the street) and I want you to know I have been praying for a miracle for you! I read the information from today (Mon, Nov 6th) and I praise God for the encouraging news. I pray that from this day forward, you will continue to get better and better!

You have a beautiful smile!

I will continue my prayers for you.


Sent on Monday, November 06, 2006 at 8:33:38 PM
nift@comcast.net

From Stellons,
Richfield

Way to go, Josie! We're praying for you!
Sent on Monday, November 06, 2006 at 8:50:43 PM
stellone@aol.com

From Teresa Vortouni,
Irvine, California

Hi,
I read your entries everyday! I hold my breath before I read each one, I am so happy your family is having a good day for once. I have Josie in my prayers with my daughter every night and daytime. She is such a beautiful little girl. My daughter is 7yrs old and was diagnosed on 4-27-06 with jdm, two days before her birthday, it is such a roller coaster for me I can't even imagine what it is like for your family. God bless you all, you will be in my prayers.
Teresa Vortouni (daughter Alyssa Vortouni)

Sent on Monday, November 06, 2006 at 10:14:20 PM
flos4life@cox.net

From Tricia Wendorf,
Richfield

This is the break we were asking for! Great news, Josie - so glad you had a good day. We'll pray for lots more!!
Tricia, Steve, Kyle, Gavin and Meghan Wendorf

Sent on Monday, November 06, 2006 at 11:08:17 PM
tleewendorf@yahoo.com

From Jamie & family,
Honolulu

Tears of joy for another great day!
Sent on Monday, November 06, 2006 at 11:22:08 PM
vacoba@hotmail.com

From Paul,
Richfield

Hey Josie,

You look great!!

We are so relieved to hear you are feeling better these last couple days.

I can't wait for the next fingernail session with you. Will you paint two nails this time?

Keep battling kid. You are an inspiration to us all.

Love,
Paul

Sent on Tuesday, November 07, 2006 at 12:30:35 AM
paulddoran@mn.rr.com

From Verla,
Sun City

THANK YOU GOD!!!!!! PRAISE THE LORD!!!!!! We are praying believing that you will conitinue to heal Josie and comfort the family and give them their strength. Amen.
Dear Josie, Jay, Deb, Trip, Henry, and Evie,
We ae so thrilled to hear that You Josie have had two good days in a row. Continue to fight and get better. You must all be glad to have some good news and see Josie doing better. Thanks Jay for the wonderful updates. Take good care all of you. We love you and are praying for you. You are all an inspiration to the rest of us.

Sent on Tuesday, November 07, 2006 at 12:42:05 AM
memaw-v@hotmail.com

From Paula Vicker,

Jay & Deb -
I was so excited to read the good news over the past couple of days... Even better days are ahead. Be strong!

Sent on Tuesday, November 07, 2006 at 6:05:01 AM


From joan jim wobbleton,
murrells inlet,SC

WOW!!!!! WHAT CAN BE SAID FOR 2 DAYS OF FEELING BETTER? PRAYER IS POWERFUL. KEEP PRAYING!!!
IT'S SO GOOD TO SEE HER SMILING AND BEHAVING LIKE SOMEONE WHO DOES FEEL A LITTLE BETTER.
WE WILL WATCH AND SEE AND PRAY.
JOAN AND JIM WOBBLETON

Sent on Tuesday, November 07, 2006 at 7:22:07 AM
jwobb@aol.com

From The Belchaks,
Albuquerque, New Mexico

Great News!!!!
Keep it coming, Josie!!!

Much Love,
Tim & Mona
Sarah, Jacob & Caleb

Sent on Tuesday, November 07, 2006 at 7:52:44 AM
tabinabq@comcast.net

From Deanna Kearns,
Florida

Hey Josie,

I'm so proud and relieved that you have come such a long way. It is great to see you smiling. I know you aren't out of the woods yet, but you are such a little fighter that I know you will be soon. I'm still praying for you every day and hoping for the best for you. Hang in there parents. You both amaze me.

Thinking of all of you,

Deanna Kearns

Sent on Tuesday, November 07, 2006 at 9:53:00 AM
d.l.kearns@att.net

From Swetalas,
Beautiful Residential Richfield

We're still out here prayin' for your family!
Sent on Tuesday, November 07, 2006 at 10:14:26 AM
dswetala@hotmail.com

From Marilyn,
Florida

Great news!!! We will continue to monitor daily, and hope the trend continues. Looking good!!
Sent on Tuesday, November 07, 2006 at 11:02:08 AM
MCFWilmot@hotmail.com

From Beth Stellon,
Richfield

I'm not entirely convinced this turn around isn't the work of leprechans. Josie just needed to win them over with that great smile!
Sent on Tuesday, November 07, 2006 at 11:41:59 AM
stellone@aol.com

From Aggie & Alexa,
San Francisco

Jo-Jo YOU ARE OUR HERO!!!!
Every morning the first thing I do is check your blog (and pray for you). And every night before I go to bed I check again (and say a prayer for you again). In between, I think about you all day long & hope that you're having a good day. You should have a cape like SuperMan with a big "G" in the middle for SuperGirl!!! I think you have as much, if not more, strength than the old guy!
Please tell your daddy how much we all appreciate his updates. I get so worried when we don't hear anything, even for a day. Oh, I almost forgot... Alexa wants to know what your favorite animal is so that she can draw you a picture & sprinkle it with magic fairy dust to make you all better! She is sure it will help. Whenever she has something difficult to do, she puts some on her head to remind the fairies to stick close to her. She swears it works!

Sent on Tuesday, November 07, 2006 at 11:48:44 AM
aiv1026@aol.com

From Ed & Jackie Hibler,
you know where!

It's Grampa and Gramma Jackie!

Happy for the improvig news. We watch your daily blogs with keen interest and deep anxiety.

No little girl or her parents should have to go though all this incredible stuff.

Our daily prayers are with you all. Hugs to y'all!

Love and hugs,

Gramps and Grams

Sent on Tuesday, November 07, 2006 at 1:00:35 PM
edhib@sti.net

From Wes Browning,
Athens, TX

I am so sorry for what Josie and the family are going through. I'm trying to write but more tears come than words. My daughter has JDM also and I am so encouraged by the story of others. No matter what life throws at us God will always continue to bless. And I pray he continues to bless your family. Sincerely, Wes Browning, father of Gracey
Sent on Tuesday, November 07, 2006 at 3:06:51 PM
wesbrowning@yahoo.com

From Tom and Darlene Lund,
us

YES!! Josie...you're our Miracle...we are looking forward to visiting you. We love you, Grandpa and Grandma Lund
Sent on Tuesday, November 07, 2006 at 5:11:20 PM
dlund@lssmn.org

From Becca(Rebecca Lotito),
Julian,Ca

Hey Josie,

It is Becca in CA.I hope you get better soon. Hope to vist you soon.

Love Becca

Sent on Tuesday, November 07, 2006 at 9:11:48 PM
biloxibaby94@yahoo.com

From Tracy Caraker,
Spring Hill, FL

YEAH JOSIE!

It's so wonderful to see your smiling face again! Hang in there Princess. You're doing WONDERFUL!

Mom & Dad, you've got an amazing little girl. The courage you have shown is amazing to all of us. Not only is Josie an inspiration, but you are too. Take care!

Sent on Wednesday, November 08, 2006 at 6:09:04 AM
tcaraker@tampabay.rr.com

From Lisa Moruzzi,
Saugerties, NY

I just wanted to let you know I've been reading about Josie ever since my daughter Danielle was diagnosed on August 16th, 2006 at age 11. I pray that your little Josie wins her battle with DJM. I know how tough it can be.
God bless your family and stay strong.
Lisa Moruzzi

Sent on Wednesday, November 08, 2006 at 6:13:21 AM
LJMoruzziRN@hvc.rr.com

From lynne,
blmgtn

hi josie, jay and deb. thanks for the good posts back to back. i love the pictures. she looked like a different girl yesterday, sitting up coloring! and your comments, jay, about mothering were so good. keep it up guys. you are doing great. josie, you are amazing. sending love to you. lynne
Sent on Wednesday, November 08, 2006 at 7:02:08 AM
lceciljohnson@yahoo.com

From Shelly Doran,
Richfield

Josie,

I love the picture that your dad posted today. You look just like ET when he was hiding in the closet, only you are much cuter!!
It is good to see you smile, keep up the fight!!

Love,

Shelly Doran

Sent on Wednesday, November 08, 2006 at 10:20:46 AM
doran-home@mn.rr.com

From Leslie Mckeown,
Da-Dada-Daaaa!!!It's SuperJosie!! It's also super that you are feeling well and getting stonger! I wish I could have come to see you last night with Riley but I sure was thinking about you. Did he give you a big kiss like I told him to? I hope he told you it was from ME! I sure love you Josie and your whole family, too. Keep those nurses on their toes (and those doctors too.) Tell Daddy thanks for keeping us up-to-date and tell Mommy that I am really thinking about her and hoping she is getting a little rest.
Sent on Wednesday, November 08, 2006 at 1:23:35 PM


From Lindsay Sumrow,
Minneapolis

Dear Precious Josie and Family,
Little One, you are an inspiration to me and my family as we have kept up with your struggles and triumphs. Our hearts and prayers are with you and your family and we look forward to hearing about the many more triumphs to come!!!
Sending bundles of love your way,
Lindsay

Sent on Wednesday, November 08, 2006 at 2:14:27 PM
lsumrow@moneygram.com

From The Wenaas Family,
Right next door!

Keep up those great smiles, Josie!! We love you and are continually amazed by your strength and gusto!!

Hugs and love,
Megan, Jason, Bridget & Molly Rose

Sent on Wednesday, November 08, 2006 at 3:25:28 PM
MMWenaas@gmail.com

From Cynthia Benner,
Minneapolis, MN

Woo-Hoo! Way to go Josie!
Sent on Wednesday, November 08, 2006 at 5:31:56 PM
cynthia.benner@medica.com

From Ruth Taylor,
Cologne, MN

Deb and Jay,
I attend Westwood and heard about Josie through Lynn Gabriel in our Mops group. My family and I consider it such a privilege to be able to pray for sweet Josie and your family. My kids, Ellie (4) and Logan (2), remind me several times daily that we need to "check on Josie" so off to the computer we go. We have poured over her story and every one of her pictures and have grown to love your beautiful little girl. Thank you so much for sharing her story and pictures. What an incredible journey this has been for y'all thus far! We will continue to pray for Josie and your family and will eagerly watch for new updates.

Just as God told Joshua (many times): "Be strong and courageous! Do not tremble or be dismayed, for the Lord your God is with you whereever you go."

Blessings to you,
Ruth, Mickle, Ellie & Logan Taylor

Sent on Wednesday, November 08, 2006 at 11:22:36 PM
taylornmn@gmail.com

From Aggie,
Hang in there, Josie. I see today wasn't a great day, but I think that nasty old blood blister in your belly is realizing it's no match for you. I think it's getting ready to leave your tummy & then you'll be feeling better again. I wish I was there to give you, your mommy, and daddy big hugs. I know you all are so very tired. But keep fighting the fight little girl, and we'll all keep cheering for you from all over the country. XOXOXOXOXO
Sent on Thursday, November 09, 2006 at 1:14:23 AM
aiv1026@aol.com

From Leigh Anne,
Maine

Hello Josie,

I am sorry that your belly hurts today. I hope that it feels better really soon. Hang in there princess. You are doing just fine.

The snow is all gone here in Maine. Now it is raining. Caitlin is wearing her new footy pajama's, they have snowmen on them. She loves footy pajama's. Do you?

Take care little one, we are thinking of you often. We hope that you feel better soon.

Leigh Anne, Justin and Caitlin

Sent on Thursday, November 09, 2006 at 6:55:54 AM
supajut@msn.com

From Beverly Holsing,
Aberdeen, S D

Dear Friends,
Leslie has kept us informed daily about Josie and her family. Both Gene and my bible study groups are keeping all of you in our prayers. The Lord is gracious and merciful and hears us when we come to Him. We happen to have a cousin (Deb Holsing) who had the same disease and struggled at that same hospital. This was in the late 60's early 70's. She is now a music teacher, married and the mother of two beautiful daughters! Our prayer is that God would give Josie the same healing and restore her to health. Take care and may God hold you close in the shelter of His loving arms.

Bev Holsing (Leslie's Mom)

Sent on Thursday, November 09, 2006 at 10:21:11 AM
bholsing@nvc.net

From Jennie Korsbon,
Minneapolis, MN

Hello Adams family,
I just wanted you to know that your family and Josie are in my thoughts daily. I have been praying for you. Josie I know that we do not know each other but I hope you get better real soon. Stay strong!!!
Jennie Korsbon

Sent on Thursday, November 09, 2006 at 1:28:32 PM
jenniekorsbon@mn.rr.com

From Mira,
Canberra, Australia

Hi there

we read your news daily and pray for the best all the time. With regard to Josie getting a bit more exercise, I thought I should mention, in case it has been overlooked, the need for daily stretching to prevent contractures while she has been sedentary. Our son needed to wear splints to bed to stop his calf muscles contracting (we noticed he had trouble walking normally first thing in the morning and then the physio realised it was his muscles shortening overnight. The splints (we called them 'foot beds' gently stretched the muscles while he slept). Kind regards, and best wishes to you all, Mira, Les and Michael (aged 8)

Sent on Thursday, November 09, 2006 at 7:17:10 PM
lesmira@bigpond.com.au

From Karen, Bill, Jake, Nate and Luke Brown,
Eden Prairie, MN

Dear Josie, Deb and Jay,
I finally logged on to your webpage and have a small glimpse into your lives and Josie's situation. She is so adorable. Your love for Josie just shines right through your webpages. Just wanted you to know that the Brown family is thinking of you and praying for you.


Sent on Thursday, November 09, 2006 at 10:37:33 PM
klebrown@comcast.net

From Rosalie Davis,
Philadelphia

I just want you to know I check your blog everyday and Josie's is in our prayeres. May God give you the strength to get through this.

P.S. Grandmother of Alexandra Hackney - age 11
It will be three years next week for Alex and her
battle with JDM.

Sent on Friday, November 10, 2006 at 11:51:44 AM
JRD1221@aol.com

From Carlson's,
Minneapolis

Glad to hear things are going a litle better! Our thoughts and prayers are always with you.

Love Emily, Jim, Sammy and Nisi

Sent on Friday, November 10, 2006 at 12:45:27 PM
emilyjimcarlson@msn.com

From Lynn Gabriel,
Victoria,MN

Dear Josie and family,
We pray that the CT scan proved an internal miracle. that all is well and gone.We love to see your precious face each day when we check in to see how you are doing! You are a brave and strong girl Josie! Blake is wanting you to play trains with him when you are feeling better. ;-)

God Bless you and keep you.
Love
Lynn, Blake Faith Stan

Sent on Friday, November 10, 2006 at 3:57:14 PM
lrshadle@eartyhlink.net

From Sheryl Brown,
Aberdeen, SD

Josie was brought to our attention in my Bible Study. We are praying for Josie. What a precious little girl. oh, how I pray that God will touch her with his healing hand, give wisdom to the Doctors and give you all strength for this trial you are going through.
A friend in Christ

Sent on Friday, November 10, 2006 at 9:41:51 PM
svb@abe.midco.net

From Tom and Darlene Lund ,
us

Josie, jo Jo...we're pulling for you! Keep up the good work of getting better. We love you...just like that old bumble bees eyes say...he has a great smile to greet you. Grandpa and Grandma Lund
Sent on Saturday, November 11, 2006 at 8:15:08 AM
lundlink@mac.com

From Megan Wenaas,
Right now? Chicago. Normally, right next door!!

Hi Jo Jo!!!

It's Megan from next door!! I'm in Chicago right now taking care of my mommy who also had surgery (not the kinds you've had, but surgery regardless.) My little brother (like Henry and Tripp to you) was nice enough to let me use his computer to check up on you!!!

Please know the prayers are coming fast and furious from all over the Country, and Chicago's got a huge contingent of prayers coming your way.

We love you and your family sweetie!!! Keep on fighting!!

Love,
Megan

Sent on Saturday, November 11, 2006 at 9:42:29 AM
MMWenaas@gmail.com

From Jill and Gracie,
Wisconsin

Hey sweet Josie!

We sent your package out on Thursday so hopefully you should get in soon. Just a little something to keep you busy. Know that we are thinking of you and praying often. Gracie made you a card and put her picture in it so you can see what she looks like. Every time we go to church she says a special prayer for you!!!

BIG BIG HUGS!!
Jill and Gracie (11 yrs. old)

Sent on Saturday, November 11, 2006 at 10:48:46 AM
jillmickelson@netscape.net

From Marilou,
Edina

We are all still reading about you, thinking about you, pulling for you and admiring your sweet pictures and strong family. We pray tomorrow will be a better day.
Sent on Saturday, November 11, 2006 at 9:31:38 PM
mariloupederson@hotmail.com

From Dorans,
Richfield

Hi Josie,

It sounds like you are still in a lot of pain. We are so sad to hear that. You are such a wonderful little girl and have so many people accross this world praying for you and hoping you will catch the break that you so deserve. Just know that we all love you and want you to come home!! We are constantly thinking about you.

Love,

The Dorans!!

Sent on Sunday, November 12, 2006 at 12:41:26 AM
doran-home@mn.rr.com

From McKeown & Doran,
Wacota, SD

Jay, Deb and family
Paul and I are reading your blog at about 3:00am Sunday morning from South Dakota. We are pulling for you and your family; of course. PLEASE let us know if there is ANYTHING we can do for you!!!!! We have been thinking of you on our entire trip.

Riley and Paul

Sent on Sunday, November 12, 2006 at 3:20:05 AM


From Caroline & Ed Gaiser,
Fresno, CA

Dear Chip & Deb,

We're sending loads of love and prayers to you, Trip, Henry, Evie & especially Josie. We pray that Josie will come through this latest crisis and feel better soon. She is an amazing little girl with incredible strength and courage.

Love to you from Fresno, California,
Caroline & Ed


Sent on Sunday, November 12, 2006 at 3:57:33 AM
c_gaiser@hotmail.com

From Leigh Anne,
Maine

Hi Josie!

It's raining here in Maine. Pretty cold too. If it keeps it up, when the temp drops tonight we could get some snow! Caitlin wants to come and see you still. She wants me to tell you that she hopes you feel better. When is your birthday? Caitlin's is in August, on the 26th to be exact. I was just wondering if your day's were near each other.

Hang in there kiddo. I know you hurt and I know you must be tired. Try and think happy thoughts. Caitlin likes a show with charecters named Peep, Quack and Chirp. They make her laugh and when she isn't feeling well, they help to chear her up.

We are thinking of you, take care and hang in there.

Much Love,
Leigh Anne, Justin and Caitlin (current JDMS fighter)

Sent on Sunday, November 12, 2006 at 12:22:10 PM
supajut@msn.com

From Mary Doran,
Haiti

Hi Josie! I have not been able to read about your progress since Wed. I'm sorry your tummy still hurts. I am thinking of you every day, and I send my love and prayers to you. Say hi to Mom and Dad from me. Love you. Mary Doran
Sent on Sunday, November 12, 2006 at 3:47:46 PM


From Mary Doran,
Haiti

Hi Josie! I have not been able to read about your progress since Wed. I'm sorry your tummy still hurts. I am thinking of you every day, and I send my love and prayers to you. Say hi to Mom and Dad from me. Love you. Mary Doran
Sent on Sunday, November 12, 2006 at 3:47:51 PM


From Robin G,
Saint Louis, MO

Dear Josie,

I have had pancreatitis and that is why your info showed up in my mailbox and now I am praying for you. I'm sorry that you have to suffer in this way but am praying for a complete recovery and peace to you and your family. God be with you! -- Robin G

Sent on Sunday, November 12, 2006 at 7:44:05 PM
robbob2930@yahoo.com

From tom and darlen ,
richfield, Mn

Dear Adams you are in our prayers and we want Josie to get better...we know Josie is a blessing to all of us. we love you. tom and darlene Lund
Sent on Sunday, November 12, 2006 at 7:44:24 PM
lundlink@mac.com

From lynne,
blmgtn

hi guys. back from the weekend. sorry to read that josie is slipping. so sorry to hear about her pain, blood and all. sounds like everyone there, and that's quite an amazing team, is doing the best they know to do...
love, lynne

Sent on Monday, November 13, 2006 at 7:33:45 AM
lceciljohnson@yahoo.com

From Gammie,
Bradenton, Florida

My Beloved Josie,

I can't believe it's been a week since I left your bedside. When you picked up little "Horny" that I brought, watching you hold him to your face, seeing how soft he was, melted my heart. It was hard to see you in such pain, but when you squeezed my fingers and held on, looking into my eyes, and I saw your strength, I knew you'd get better ...and you did. A few days later when I saw you sitting up and coloring, I felt all the prayers were being answered. Your dad tells me now you've had a step back, but with all your "moxie" and the continuing prayers, you'll soon be well. I know you will. When you do, you'll be able to come to my house again. This time, maybe we can go and see Mickey and the gang, and of course we can have fun at the beach. Tell Mom and Dad I loved being with them and spending some time with Trip, Henry and Evie, too. Always remember how much I love you....

Sent on Monday, November 13, 2006 at 9:17:11 AM
lee2beach@aol.com

From Andria,
Austin Texas

Hello Deb and Jay,

I just wanted you to know that I am thinking of you all. Josie and your whole family are in my prayers.

Love from Texas,

Andria

Sent on Monday, November 13, 2006 at 12:32:26 PM
akmdvm@yahoo.com

From Anne Coblentz,
Novi, MI

Hi Josie, My name is Anne, I am Ray Alexander's niece. I read how you are doing every morning. I think you are the strongest and bravest little girl I have ever known, not to mention the cutest!!! I know you will be feeling so much better very soon. You are so special Josie and so is your family. Please know that you are in my prayers, and God Bless you.

Get better soon.

Anne

Sent on Monday, November 13, 2006 at 7:53:40 PM
lcoblentz@twmi.rr.com

From Rebecca Lotito,
Julian,Ca

Dear Josie, This past weekend Rachel,Robyn,Anna and myself had a bake sale fund raiser for you. We raised $2,303.00. I hope this will help with anything you and your family need. Don't worry we are not done! We are having a dinner at the American Leagon and we are trying to get a motor cycle ralley ride going over to Arizona. We are praying that you start to feel better soon. You are such a trooper. I can remember when I was in the hospital and know it is not any fun. We miss you and your family very much. Love your cousin Rebecca
Sent on Monday, November 13, 2006 at 9:15:50 PM
klotito@yahoo.com

From Mary Doran,
Haiti

Hi Josie. I am so glad you are finally able to drink a little water. I will be heading back to Minnesota today. I hope your day continues to be a good one. I love you. Mary Doran
Sent on Tuesday, November 14, 2006 at 6:26:34 AM


From Vickie Hanson,
Largo, Florida

I have been following this Angel. She is a gift from Heaven.
Prayers are with you Josie. I work with Deanna Kearns who isCatlin's grandmother

Sent on Tuesday, November 14, 2006 at 6:57:08 AM
pinball@tampabay.rr.com

From Harry Ward,
Crofton, MD

Josie,

Our thoughts and prayers are with you and your family as you struggle daily with these formidable challenges. I'm so proud to read your story and know that there are young people of such great strength in this world. You are a true inspiration to every one of us in our daily approach to life. I'm sure that times will get much better for you in the near future.

Love,

Harry, Brittain and Tayler Ward


Sent on Tuesday, November 14, 2006 at 6:59:58 AM
harrypward@earthlink.net

From lynnnne,
blmgtn

good morning josie. nice to see your smiling face! and i love that you are loving water. wow. how simple is that! thanks for making mesmile this morning. love, lynne
Sent on Tuesday, November 14, 2006 at 7:07:17 AM
lceciljohnson@yahoo.com

From Leigh Anne,
Maine

Dearest Josie,

I am so glad that you are feeling better today. And WATER! How wonderful for you. I hope that your good day continues. We are thinking of you always and are sending you lots of love and happy thoughts. Hang in there kiddo, you are doing a great job!

Love, Leigh Anne, Justin and Caitlin (current JDMS fighter)

Sent on Tuesday, November 14, 2006 at 7:12:53 AM
supajut@msn.com

From Joan/Jim Wobbleton,
Murrells Inlet,SC,

You just never know about Josie. It is wonderful to see her in that pink hat having a drink. I'll bet it is like being in a desert and being so parched and now to have a sip of this liquid necter.
We get up every morning here on the east in SC and go to the computer and read the blogs. It is with fear and anticipation that we read the comments of the day before. Thank you Jay for your willingness to share this time of your families life with the world.
We continue to pray and tell others to do it also.
Looking forward to the name of the fund that we could contribute something to Josie.
Joan and Jim Wobbleton

Sent on Tuesday, November 14, 2006 at 8:09:57 AM
jwobb@aol.com

From Gigi and Eda,
Fraser

Good morning Josie- way to go on the water drinking- I love water;especially cold water! We are so happy you are feeling better! We posted your photo- the one with your
pretty face and all the stuffed animals friends; it says "Go Josie Go!!". Everyone at Fraser loves you.
Eda and I would like to visit you on Wednesday this week if it is o.k. with you. We would like to come 4:00 please have your mommy give us a call if it is o.k. with you.

Sent on Tuesday, November 14, 2006 at 8:27:24 AM
Gigik@fraser.org

From Mary,
Fraser

Dear Deb and Jay,

Just a sugestion...When my daughter, Hannah, was hospitalized at Children's about 11 years ago, a Child Life Specialist suggested her older brother (age 10 at the time) tape record reading Hannah's favorite books. When he wasn't at the hospital, the tapes were played. The sound of his voice and the stories calmed Hannah immensely. Perhaps this is a way Josie's siblings can help in her care.

With continued prayers...

Sent on Tuesday, November 14, 2006 at 10:15:48 AM
maryk@fraser.org

From Kay Stalcar,
Richfield

Dear Little JoJo,
I am so glad you are feeling alittle better. I am so sorry you had such a rough weekend. I love you little pink hat, it's a great color for you. I hope to come and see you again soon, I will bring you some new lip gloss and nail polish.

Sent on Tuesday, November 14, 2006 at 10:48:36 AM
kstalcar@cojlbc.org

From Stellons,
Richfield

Josie, you look super in your pink hat and enjoying your water. We're cheering for you!
Sent on Tuesday, November 14, 2006 at 11:37:13 AM
StellonE@aol.com

From The Farina's,
Florida

Josie,

We think of you often even though we have never met but we have heard of you and think you are so very strong and beautiful. God Bless You and God keep you stronger than anyone could ever expect!

Sent on Tuesday, November 14, 2006 at 6:15:42 PM
dawg_04_98@yahoo.com

From The Madsens,
Richfield

Josie,

We are lifting our water glasses with you to clink a cheers for this upward trend!

Peace, The Madsens

Sent on Tuesday, November 14, 2006 at 10:56:13 PM
madsen@mcleodusa.net


From The Murray Family,
Carver,MN

Josie, We heard about you from Lynn Gabriel / my mops leader at Westwood Church. My daughter Lauren (3 years) and I pray for you every night. We wish you a speedy recovery!

Sent on Wednesday, November 15, 2006 at 12:10:14 PM
jenette_g@hotmail.com


From Sheila Laughlin,
Lynchburg, Virginia

Hi Josie!

You don't know me, but I found you because my aunt, Mary Beth works with your aunt in California.

The day I went to your weblog, you were feeling so very yucky. You are such a brave little girl!

I was glad to see that you have had a couple of days of not feeling so yucky and got some ice chips! Yay Ice Chips!

I will be watching your weblog and praying for you!


Sent on Wednesday, November 15, 2006 at 2:34:27 PM
squeebles@mindspring.com


From Ken Davis,
Franklin TN

Josie,

Somewhere back a generation or two my blood shares a common source with the precious blood that flows in your vains, Josie. Your grandpa Larry is my cousin. Larry's mother is my fathers sister. Josie, I am encouraged by our kinship that I might have even a hint of the fight and spirit you have.

I am sitting in a hotel room, amazed at your beautiful pictures,amazed at your strength and grace, and the strength and grace of your parents and those who love you. One peek at your face and I add my name to that list. I am amazed at the tears that stain my desk, as I pray for all of you. You inspire and humble me. I will visit your site often. I will pray daily.

My love and thoughts and prayers to all of you from a distant relative who is closer now.

Ken Davis



Sent on Wednesday, November 15, 2006 at 3:18:28 PM
ken@kendavis.com


From Ashley Aldrich,

Josie, I miss you and hope that you feel better really soon. We are sending a present to you at the hospital. Hope you get better soon Kisses and Hugs.
Love Ashley Aldrich

Sent on Wednesday, November 15, 2006 at 7:58:54 PM
BugAldrich@yahoo.com


From Lynn Gabriel,
victoria, MN

dear Josie,
You are truly God's child. It is absolutley amazing what you go thru every day. That mom and dad of yours, and all of those wonderful doctors and nurses sure take good care of you.You are such a darling angel and so strong and smart and beautiful. You keep doing your job of healing and resting and laughing and we will keep up our job of praying.
We love you Josie. Blake still want to tell you all about trains! they are his favorite thing. what is your favorite thing?well, you can tell him all about it.Keep smiling!
Love
Lynn, Stan, Blake, Faith

Sent on Thursday, November 16, 2006 at 8:27:09 AM
lrshadle@earthlink.net


From Jenean Erickson,
Surprise, AZ

I am Shelly's aunt and have joined your prayer team for Josie. We have someting in common --- my 48 year old son has polymyositis and sclerodoma - has had a very similar course of illness although muscle and connective tissue (not capilliary) have been attacked. His weight (lost muscle) went from 200+ to 143. Recently he had surgery for ruptured appendix and last week, another surgery for bowel obstgruction. Through it all we are confident God has a plan. Many are praying. We know your pain and still we know God is faithful.
Sent on Thursday, November 16, 2006 at 10:57:40 AM
jeneanerickson@cox.net


From The gang at All About Children,
Eden Prairie

Hi Josie and family, We read your blog almost daily to keep up with how you are doing. Know that you are thought about every day by all of us! Hoping for continued good days.
Sent on Thursday, November 16, 2006 at 2:56:07 PM
sorry, we don't have one


From The Christian's,
Richfield

Hi Josie,

You are quite possibly the bravest little person we have ever known about. We are reading about you every day and are so happy that you are feeling better. God Bless!!

Sent on Thursday, November 16, 2006 at 3:01:37 PM
carmenlchristian@msn.com


From Priscilla Moreno,
San Francisco, CA

Hi Josie!

I just picked up your birthday present today and will be sending it soon! I'm glad to read things are starting to look better. I wanna see some smiles in those pics!

Quick question for the padres...has she experienced any hair loss??? The reason I ask is because as I recovered, I lost about half of my hair (with the exception of the monkey face prednisone hair). The theory is that 'after' the disease, your hair sheds as the body's way of renewing itself.

Tomorrow marks the 1 year anniversary of my diagnosis with dermatomyositis. It's been a long journey, and as painful as it has been, I'm a better person because of it. Josie will get better and grow up with a unique perspective on life -- one that will help her enjoy and live it up to the fullest. Now that I'm back at work in corporate America, I realize just how much I had been missing out on before DM. My problem wasn't that I thought I was dying...it was that I wasn't living. Now that I am doing better, I continuously remind myself of what's important in life and am thankful for it.

Please tell little Josie happy birthday for me! I will be thinking of her.

Sincerely,

Priscilla Moreno

http://blog.myspace.com/priscillamoreno

Sent on Thursday, November 16, 2006 at 5:38:20 PM
priscillamoreno@gmail.com


From Rebecca White,
Lititz, Pennyslvania

Just checking up on the little angel! We are so thankful that she is doing better and will pray hard that things continue to look up!

Rebecca White (friend of Aggie)

Sent on Thursday, November 16, 2006 at 8:03:14 PM
rrbeawhite@dejazzd.com


From jan g,
as always, we are monitoring your site among fitting skis at the store. Or, when it gets too busy shelping skis to schools for the xc ski kick off, I have to check in at night- hoping for a good title on your blog-always. J
Sent on Thursday, November 16, 2006 at 9:25:15 PM



From bill,
plymouth mn

we're thrilled to hear about positive results and good days. when we visit the grotto this weekend we'll light a candle for josie and her amazing family.
Sent on Thursday, November 16, 2006 at 11:13:18 PM



From Lynne ,
bloomington

hi you guys. thanks for the great picture and reasonably good news today. i love to see josie with a smile, and deb and of course, birke. i seem to wake up with you all these days and keep you in me throughout the day. sending big love and hugs. lynne
Sent on Friday, November 17, 2006 at 7:40:41 AM
lceciljohnson@yahoo.com


From The Lotito's,
Julian,Ca

Dear Josie and Family,
We are so happy to hear that you have been doing a little better. We loved seeing the picture of you and Burkie! We will be there to see you two weeks from today. We continue to pray you get alittle stronger each and every day. See you soon. Love and prayers to the whole family. Your cousins can't wait to see you.
Love, Uncle Robert, Auntie Karen, Rebecca, Rachel & Robyn

Sent on Friday, November 17, 2006 at 10:02:04 AM
klotito@yahoo.com


From Jane Brumbaugh,
St. Paul

I have checked in on Josie's blog this week and just had to comment how wonderful I think that a big yellow lab got to prance into the ICU to visit. Josie, you deserve it! My yellow lab is jealous, I'm sure.

It was a privilege to spend a short period of time playing a small role in Josie's care on the GI service. I learned a tremendous amount from Josie and you as parents. Josie could not have better advocates.

Josie, keep up the hard work.

I hope this weekend is a peaceful one and may you have a Happy Thanksgiving.

Gratefully,
Jane (the intern from GI last month)

Sent on Friday, November 17, 2006 at 1:40:43 PM
brum0036@umn.edu


From Kris,
Richfield

"Philosophy, is a walk on the slippery rocks
Religion, is a smile on a dog..." and a happy mom and especially a kid who deserves a smile like Birkie is giving her in the photo! What a great way to end the day--Birkie appears to be the happiest dog in the universe and Josie appears to know why he is! ;-)
You are awesome!!!!
Hooray for good days!!

Sent on Friday, November 17, 2006 at 11:37:19 PM
kris@teamfriday.com


From JOAN WOBBLETON,
MURRELLS INLET,SC

WE HATE THOSE BAD BLACK DAYS.
THAT'S JUST NOT WHAT THE DOCTOR ORDERED.
GLAD THAT SHE HAD THE VISIT WITH THE DOG. PETS ARE GREAT THERAPY FOR EVERYBODY.
PRAYERS FOR ALL INVOLVED IN HER CARE THAT THEY WILL MAKE THE RIGHT DECISIONS. IT'S A CRAP SHOOT AT HOW BEST TO MANAGE THE BLEED. WHAT ABOUT A LAPROSCOPIC LOOK INSIDE RATHER THAN SURGERY? JUST A THOUGHT.
JOAN

Sent on Saturday, November 18, 2006 at 8:08:03 AM
JWOBB@AOL.COM


From Dan Seftick,
Hi Josie,

You are truly a brave and wonderful girl. We continue to pray that you will get stronger and better real soon! Our prayers are with the doctors and nurses who work so hard to make you better. Keep fighting and smiling when you can!!

Dan Seftick

Sent on Saturday, November 18, 2006 at 10:07:06 AM
dseftick@cpinternet.com


From Jane & Tony Myhra,
Lake Shore, MN

Josie, Grandma and Grandpa have been keeping us posted each time they return home. We are thinking of you often and you are always in our prayers.

Burkie looks like he was very happy to see you Josie just as you were happy to see him.

Love,
Jane & Tony

Sent on Saturday, November 18, 2006 at 11:13:12 AM
tony.myhra@cryotech.com


From TOM AND DARLENE,
JOSIE...WE LOVED SEEING THE BERKIE...ISN'T HE GREAT...AND HE'S LOVING YOU!! I'M GIVING BLOOD JOSIE, SO YOU USE WHAT YOU NEED...I'VE GOT LOTS. LOVE YOU, GRANDPA AND GRANDMA LUND
Sent on Saturday, November 18, 2006 at 1:18:25 PM



From Aggie,
San Francisco

Oh Josie,
I am so sad to hear about your awful day yesterday. I know you are so tired of being so very sick. I wish every single person who's out here pulling for you could just take a little bit of your suffering on so that you would get some relief. I'd circle back around to the front of that line a hundred times for you, love. I'm staying up just a little bit more waiting for your daddy to post today's update & hoping that you had a better day. Praying that you're sleeping soundly this very moment...

Sent on Sunday, November 19, 2006 at 1:25:21 AM
aiv1026@aol.com


From Tom & Darlene ,
Hey Josie, Dora is the BEST! And so are you!!
Sugar Bear says Hello too. Loves and Hugs from the Lunds.

Sent on Sunday, November 19, 2006 at 7:25:08 AM
lundlink@mac.com


From lynne,
blmgton

good morning. sorry to hear about the tough day yesterday. sounds so hard. glad to know she was finally better towards evening. and i love that she stayed up late with her dad, especially given the day she had. have fun with more dora! love, lynne
Sent on Sunday, November 19, 2006 at 8:39:20 AM
lceciljohnson@yahoo.com


From MIra,
Canberra, Australia

Hi

does Josie like the Wiggles or Hi 5? Otherwise, what episode of Dora have you not seen yet (sounds like you need something different to watch!) We are forever grateful to Hi 5 for helping to distract our son when he was younger and in pain, but I'm not sure if you know them in the States (yet)?

cheers,
Mira and Les (Michael's parents)

and by the way, its just great to hear things have settled down a bit today!!!!!

Sent on Sunday, November 19, 2006 at 8:15:26 PM
mira.mihajlovic@dest.gov.au


From Kris, Jill, Trig and Annika,
Richfield

Hang in there Josie!!! We all wish you could feel better faster.
Sent on Monday, November 20, 2006 at 7:23:45 AM
kris@teamfriday.com


From Joan / Jim Wobbleton,
Murrells Inlet,SC 29576

You just never know when you sign on to read the day before blog how her day has gone.
All we are asking for is a simple miracle. One that will make it all go away. If only it was that simple.
Tell Josie I've sent her a surprise. She should be getting it any day. Also a little something in the box for the other 3. We hope she enjoys it.
Praers for all.
Joan

Sent on Monday, November 20, 2006 at 7:59:03 AM
jwobb@aol.com


From Leigh Anne,
Maine

Great News!

We are so glad that everything is looking up. We are so sorry Josie that you are feeling pretty crummy. It's no fun to not feel good. Take care sweet heart. You are still on all of our minds every day!

Leigh Anne, Justin and Caitlin (current JDMS fighter)

Sent on Monday, November 20, 2006 at 6:30:14 PM
supajut@msn.com


From Sue Dornfeld,
Edinas

Ded andJay,
Josie is a fighter and a beautiful little girl.She is surround
by her loving family and has the prayers of everyone who knows
and loves her so much!
Our love for all of you
Sue and Dave Dornfeld

Sent on Monday, November 20, 2006 at 9:23:03 PM
sue dornfeld@yahoo.com


From The Melbys,
East Bethel, MN

Hi Josie,
You are an amazing girl - and funny too. We are so proud of you. We will continue to pray for you - for strength, for no more pain, for joy, and for your mommy and daddy as they are very special people who have taught us so much as we follow the blog.
Jay and Deb - is there something practical you need? Let us know please. All our love and prayers - Brad & Connie

Sent on Monday, November 20, 2006 at 10:24:49 PM
bradley.l.melby@ampf.com


From Patrick Murray,
Carver, MN

Josie, my daughter Lauren just celebrated her 3rd birthday yesterday. Although it was a special day for her, all I could think about was how much we would have enjoyed your company for some princess birthday cake and fun. We are glad that you are doing better today and pray for you each and everyday. We wish you and your family the very best, especially over the holidays. Hang in there kiddo. Patrick Murray (Lauren's dad). P.S. We loved your Halloween costume!!
Sent on Monday, November 20, 2006 at 11:34:03 PM
epatmurray@hotmail.com


From The Lotito's,
Julian,Ca

Hey Josie,
I am so happy to see you are having a few ok days in a row. We start our journey home to see you in 5 days. The girl's can not wait any longer. Keep taking those little steps and before you know it you will be taking them down the hall! We love and miss you terribly. Love always, Uncle Robert, Auntie Karen, Rebecca, Rachel and Robyn

Sent on Tuesday, November 21, 2006 at 8:59:22 AM
klotito@yahoo.com


From gigi,
fraser

Hi Josie, nice to hear things are better again! We know where you put your tatoo!! good choice, you rock!
We were planning on visiting today but Eda started getting a sore throat last night and isn't feeling too good. We decided we probably shouldn't risk you getting Eda's bug so we will wait and visit next week instead. I brought some "Over the hedge" stickers for you, I will put them in your front door for your daddy or mommy to bring to you, o.k.? Have you seen the movied "over the hedge" yet? it's pretty funny. I like the cat that lives in the ladies house the best. He reminds me of my 2 little pug doggies; Pebbles and Pearl. They have flat faces and make funny sounds when they breath.Pebbles is the smallest dog but she is the mom, Pearl is more like her daddy and bigger. Pearl is a champion agility dog, she can do tricks and is very smart. I love the photo of you and your dog; he looks like a really good dog!! I hope you have a nice Thanksgiving!! Say Gobble gobble to your family for me.
Love Gigi and Eda

Sent on Tuesday, November 21, 2006 at 9:06:49 AM
gigik@fraser.org


From Lynne and Jamie Swanson,

Deb and Jay,
We want you to know we are thinking about you and keeping you in ours prayers daily. She is a fighter! We'll keep in touch.


Sent on Wednesday, November 22, 2006 at 12:44:30 AM
calwarbird@msn.com


From Leigh Anne,
Maine

Time certainly will tell! We will be waiting patiently to hear the results from today's team meeting.

Josie! You are doing a great job! We are all thinking of you. Take care little girl. Hope you feel better real soon!

Leigh Anne, Justin and Caitlin (current JDMS fighter)

Sent on Wednesday, November 22, 2006 at 7:07:33 AM
supajut@msn.com


From Kay Stalcar,
Richfield

Josie,
Everyday I am thinking of you and you are in my prayers. So many people ask me how you are doing and are praying for you. I hope you have a great Thanksgiving, I hope that it will be a great day for you. I am looking forward to your birthday party, I think that it will be great fun. Keep being strong!

Sent on Wednesday, November 22, 2006 at 9:41:44 AM
kstalcar@cojlbc.org


From Jamie and family,
Honolulu

Josie and family,

Glad to hear things are 'stable' for now. Have a wonderful Thanksgiving knowing you have many friends thinking of you.

With lots of aloha,
Acoba family

Sent on Thursday, November 23, 2006 at 12:30:49 AM
vacoba@hotmail.com


From Lynn Gabriel,
victoria, MN

As I sit and think about our thanksgiving tomorrow, I know that one thing included in our grace, is going to be a prayer for you dear Josie, as it is every day here. We think of you so often and pray for your complete healing. I just want to give you a great big hug! You endure so much each day I know I can't even begin to imagine. So many things to be thankful for, for a wonderful family and friends who lift you up in prayer and hug and loveyou, for doctors and nurses who are amazing every day. Remember the Lord has traveled this road before you and He understands and loves you. Keep believing Josie, keep your faith. We love to see your hats and tattos and things, you must feel like quite a real princess with all the things you receive in love to bring a smile to your face. You are a precious princess. Keep healing.
God Bless you
Lynn,Stan, Blake and Faith

Sent on Thursday, November 23, 2006 at 12:44:32 AM
lrshadle@earthlink.net


From Ed & Caroline Gaiser,
Fresno, CA

Hi Josie,

We keep you in our hearts and prayers as Thanksgiving approaches. We send lots of love and hopes that you feel better real soon. You are a brave and inspirational little girl. Love to you and all of your family.

"Aunt Caroline & Uncle Ed"

Sent on Thursday, November 23, 2006 at 1:59:01 AM
c_gaiser@hotmail.com


From Lisa Heilman,
Lakeville MN

Dear Adams Family,
On this Thanksgiving Day there is so much to be thankful for - Family, Friends, Health...We hope that your day is filled with love and the knowing that so many people are thinking of you on this day and praying for Josie's recovery.
Love,
Lisa Rich Lucas and Isaac

Sent on Thursday, November 23, 2006 at 7:26:12 AM
lheilman@frontiernet.net


From Katie Marshall,
Minneapolis

Happy Thanksgiving, Adams Family! Will Josie get an IV drip of gravy today??! EEEW! Hope you all have a good day, I am thankful for modern medicine and all of its (albeit sometimes limited) wonders.

Love to you all~
Katie and Louise

Sent on Thursday, November 23, 2006 at 9:00:43 AM
katiemarshall7@gmail.com


From Kraft family,
MN

Hello Adams Family and happy Thanksgiving. Hope you get some time today to spend some quality family time. The Krafts, and many others, will be counting you all as one of our blessings today and send our positive thoughts and prayers to Josie and the whole Adams fam.
Sent on Thursday, November 23, 2006 at 9:38:21 AM



From The McKeown's,
at the farm

Happy Thanksgiving Josie and family-As we sit around the table today counting our blessings, we will include you and all of our wonderful friends among them. Wishing you a day of peace!
Sent on Thursday, November 23, 2006 at 11:22:46 AM



From Kathleen McJunkin,
Apple Valley, MN

Hi Deb & Jay,
Happy Thanksgiving! I hope the day is going well for you all. I am not sure if you got my message yesterday so I will repeat it. I have e-mailed my nephew, Brian Gilbertson, who is a magician, to see if he could possibly be at your party on a volunteer basis. Maybe he could make balloon animals to raise some funds. I spoke with my sister today and she said he has to be back from Florida by Dec. 2nd (Josie's special day), so maybe it will work out for him. Just wanted you to know that he is legitamate if you hear from him. Love, Kathleen McJ

Sent on Thursday, November 23, 2006 at 11:46:58 AM
mcju0002@tc.umn.edu


From Christi,
Richfield, MN

Hello Adam's, I work at Fraser, however I don’t know if we have met. I read Josie's blog and think of her often. Keep fighting!

If you are interested, I am a Reiki practitioner and would like to try some energy healing with Josie. Email me if you would like more information or think I could help.

Take care!

Sent on Friday, November 24, 2006 at 5:42:32 PM
campfire1111@gmail.com


From Molly Tereck,
Loveland, Ohio

Hi Josie and family!

We wanted you to know that we are thinking of you and sending healing thoughts and prayers your way! We heard about you from CureJM. Our daughter, Annalise, has JDM. She is 10 and was dx. 2 years ago. She has 2 brothers,8 and 4. We live in Loveland, Ohio (a suburb of Cincinnati). One of our dear neighbors just moved back to Chaska, Minnesota. We miss them but Minnesota's gain!!! It is like spring here today and we put up our Christmas lights outside before it gets cold again. We hope you are feeling lots better soon.

Molly,Chuck, Annalise, Jack and Mark Tereck

Sent on Friday, November 24, 2006 at 9:28:05 PM
mtereck@fuse.net


From cheryl hoeppner,
mission viejo, california

Hi! I have dermatomyositis and I have been keeping up on your daughter and praying for her daily through the board. I saw your note about Charcot Leyden Crystals. I don't know if this helps, but here is a definition:

Charcot-Leyden crystals
Wikipedia, the free encyclopedia - Cite This Source

Charcot-Leyden crystals are microscopic crystals found in people who have allergic diseases such as asthma or parasitic infections such as parasitic pneumonia or ascariasis. They vary in size and may be as large as 50 µm in length. Charcot-Leyden crystals are slender and pointed at both ends, consisting of a pair of hexagonal pyramids joined at their bases. Normally colorless, they are stained purplish-red by trichrome. They consist of lysophospholipase, an enzyme synthesized by eosinophils, and are produced from the breakdown of these cells. They are indicative of a disease involving eosinophilic inflammation or proliferation, such as is found in allergic reactions and parasitic infections.
Friedrich Albert von Zenker was the first to noice these crystals, doing so in 1851, after which they were described jointly by by Jean-Martin Charcot and Charles-Philippe Robin in 1853, then in 1872 by Ernst Victor von Leyden.

References
J. M. Charcot, C. P. Robin: Observation de leucocythémie. Comptes rendus de la Société de biologie, Paris, 1853, 44.
Ernst Victor von Leyden: Zur Kenntnis des Asthma bronchiale. [Virchows] Archiv für pathologische Anatomie und Physiologie, und für klinische Medizin, Berlin, 1872, 54: 324-344; 346-352.


I stand in prayer for you and your family daily. At 53, i am not nearly as ill as josie. I know the Lord must have a huge plan for her little life. God bless!
cheryl H

Sent on Saturday, November 25, 2006 at 1:33:21 AM
choepp@cox.net


From Tom and Darlene Lund,
usa

Josie, we are so proud of your...your body is doing what it can do best and that is heal...as slow as it might be. We love your smile and hope to see it again soon. Berkie wandered over to our house yeterday and decided to stay...he is a good fried for Sugar Bear. Josie...we love you. Grandma and Grandpa Lund.
Sent on Saturday, November 25, 2006 at 6:56:14 AM
lundlink@mac.com


From lynne,
blmgtn

hi. i love you guys. sending love. healing...patience....wow. what a teacher josie is...with the lessons to be revealed when we get them, i guess. love, lynne
Sent on Saturday, November 25, 2006 at 8:30:30 AM
lceciljohnson@yahoo.com


From Lauren Murray ( 3 year old friend),
Carver, MN

Josie,
Hello, I pray for you every night before bed. I hope you feel better! I know your birthday is coming up very soon! I have a little something I am sending for you for your special day! XOXO
Your 3 year old friend,
Lauren Murray

Sent on Saturday, November 25, 2006 at 11:17:58 AM
jenette_g@hotmail.com


From Valerie Carlson,
Burnsville

Hi - I am Darlene Lunds daughter. I have read your entire blog from beginning to end. I am inspired and amazed by your strength and love. I pray for healing and peace to your entire family!
Sent on Saturday, November 25, 2006 at 8:56:44 PM
valerie20c@yahoo.com


From jan,
wow jay and deb, the question also is, where is this journey taking you both as well, I am sure you all will be leaving the ICU someday with profoundly different-ok, maybe slightly altered, priorities and outlooks than you both once had. More than just an outlook on injury recovery. Little Josie, we all are hoping and hoping for the best with you. Look at your mom standing upside down in the catalog. Jan
Sent on Sunday, November 26, 2006 at 8:16:27 AM
gearwest@gearwest.com


From Tanya and Nkki,
Cypress, TX

Josie and Family,
I heard of Josie on Cure JM website.

My 14yr old daughter has JDM. NIkki went thru some bad stuff a year ago when she was first diagnosed. But not anything like you and your family. We can't even begin to imagine. We send you blessings that you get stronger everyday. You are a SPECIAL little girl with a special life ahead of her.

God Bless you and your family.


Sent on Sunday, November 26, 2006 at 2:51:11 PM
tmg1016@yahoo.com


From Leigh Anne,
Maine

Happy Thanksgiving Josie and Family!

When we went around the table asking what we were all Thankful for we spoke about YOU! You are amazing as everyone has told you lately. We said a couple extra special prayers for you and your family and I believe that they will help. Stay strong Josie...we are still here thinking of you in Maine!

Caitlin wants to know what you asked Santa for this year. We all know how good of a girl you have been this year! She is in the living room singing right now. She askes about you every day. She sends a big hug to you and hopes that you feel better!

Love,
Leigh Anne, Justin and Caitlin

Sent on Sunday, November 26, 2006 at 8:23:17 PM
supajut@msn.com


From Karalyn, Tallie, Ryan & Bailey,
Seattle

Still thinking about you guys, and still reading about Josie every day. Hang in there; I can only imagine how difficult all of this is, but truly, you are doing an amazing job of holding it all together. As always, all of our best from Seattle.
Sent on Monday, November 27, 2006 at 9:47:24 AM
karalynh@gmail.com


From Dan Andnerson,
Edina

Jay, you write so well. I hear the exasperation behind your words ~ the frustration of unanswered questions, the uncertainty of Josie’s future, the challenge of not knowing and not knowing how to arrange life, the longing for healing. I wish I could do something to make things better. I wish God would intervene in a miraculous way. I wish the medical team could find solid solutions and directions. I do know that God walks with us through the fiery trials and the turbulent waters. I pray for Josie, and for you and Deb ~ and for all your family members ~ that God’s presence will give you some measure of strength and peace.
Sent on Monday, November 27, 2006 at 10:58:30 AM
danderson@cpconli


From Jennie Korsbon,
Minneapolis

Hi Deb and Jay,
I wanted to wish you a belated Happy Thanksgiving. Please Josie my best. She is so tough, I am sure she is your inspiration! Please let me know if I can do anything,REALLY.
Best wishes,
Jennie Korsbon

Sent on Monday, November 27, 2006 at 12:20:01 PM
jenniekorsbon@mn.rr.com


From The Arnold's,


Hang tough, Josie and Adams Family.

We're all pulling for you.


Sent on Monday, November 27, 2006 at 2:20:38 PM



From Gigi &Eda,
fraser

Hi Josie, Eda and I would like to visit you on Wednesday around 4:00 P.M. Is that o.k. with you? Sorry to hear you had so many tummy aches these last few days. I hope you are feeling better today. See you in 2 days!!
XXO Gigi and Eda

Sent on Monday, November 27, 2006 at 3:26:55 PM
gigik@fraser.org


From Amy & Michael Egan,
Minneapolis

Hello!
We are friends of Michael Hsu's and he just told us of Josie's heart breaking and inspiring story. What an amazing girl she is. Please know that your family is in our thoughts and prayers.
Love,
Amy Matthews & Michael Egan

Sent on Monday, November 27, 2006 at 8:42:52 PM
amy_matthews73@hotmail.com


From The Lotito's,
Julian,Ca

My Dear Josie,
We are so excited to get there tomarrow. Our plane lands late so we will come over first thing Thursday. The girls can't wait to see you. You are such a fighter! We are so proud of you. See you in 2 days. Love, Uncle Robert, Auntie Karen, Rebecca, Rachel and Robyn

Sent on Tuesday, November 28, 2006 at 9:45:04 AM
klotito@yahoo.com


From Cynthia Benner,
Minneapolis, MN

Hey Guys!

Just checking in and wanted to express that we continue to pray for all of you.

Cynthia & Kevin Benner



Sent on Tuesday, November 28, 2006 at 1:05:40 PM
cynthia.benner@medica.com


From Stephanie Zajkowski,
Quakertown, PA

Josie and Family,
We just found our way to your site as our daughter Kaitlyn who is three was recently diagnosed with JDM. Josie is a beautiful girl and sounds like a realy fighter!! Please know that your whole family is in our thoughts and prayers.

The Zajkowski Family

Sent on Tuesday, November 28, 2006 at 8:39:15 PM
szajkowski@comcast.net


From a friend who cares,
Minnesota

My Prayer to you Josie:

I said a prayer for you today,
and I know God must have heard.
I felt the answer in my heart,
although he spoke no word.

I didn't ask for wealth or fame,
(I knew you would not mind)
I asked him to send you treasures,
of a far more lasting kind.

I ask that he be at your side,
at the start of each new day,
to give you health and happiness,
and friends to light your way.

I asked for blessings just for you
in all things great and small.
But it was his care for you,
I prayed most of all

-author unknown

Sent on Tuesday, November 28, 2006 at 10:26:06 PM



From Kris,
Richfield

Hang in there everyone. We are just wishing the patience would result in some better days. We want Josie to feel better and get back to keeping up with (or passing) Evie, Henry and Trip!

Sent on Tuesday, November 28, 2006 at 11:10:18 PM
kris@teamfriday.com


From Tra,
Hi Josie! I'm so happy that you're feeling a little better! I wish I could be there for your birthday so I could give you a big hug & kiss. Hang in there sweet thing!
Sent on Wednesday, November 29, 2006 at 5:49:58 AM



From Jen and Julia Weers,
Rosemount

Just wanted you to know that our prayers continue to be with your whole family.
Sent on Wednesday, November 29, 2006 at 7:29:11 AM
jen@weersconsulting.com


From Paula Vicker,
Deb & Jay -
Just want you to know we are thinking and praying for the entire family... glad to see things are looking up a little!
Thank you for keeping us in the know.

Sent on Wednesday, November 29, 2006 at 7:45:09 AM
pvicker@comcast.net


From Joan / Jim Wobbleton,
Murrells Inlet,SC

Hello to the Adams family.
We've been reading the daily blogs. We talked with your Aunt Karen yesterday and she and the family are real excited to be coming to see you today. They will get on the plane in Calif and be in Minnesoto this evening. I know they'll be glad to see you. Have a nice time with them and tell them all about the hospital and especially the good nurses and the good doctors. I hope that you are feeling well enough to have a little company.
We pray that God will hold you in the palm of his hand and keep you mending. Even though we don't know what is going on inside of your tummy. (That little black box is holding secrets from everybody) When you talk about a zipper why can't they do a laproscopic and take a look see at the innards.? We've come a long way in the medical field and yet we can't do a very simple thing like take a real look inside. Where is NASA when we need them.
Have a better day today than yesterday.
Love Joan and Jim Wobbleton

Sent on Wednesday, November 29, 2006 at 8:04:16 AM
jwobb@aol.com


From Rose Spielman,
Coon Rapids

A friend emailed me your blog site. I have only been reading the blog for a few days and have become interested in your story. I am keeping you in my prayers. I'm wishing Josie a happy birthday and am hoping that next year she will be home for her special day. Josie is a very special little girl with more courage than most adults exhibit.
Sent on Thursday, November 30, 2006 at 6:25:27 AM
egfrose@comcast.net


From Christy and Natalie,
Texas

Hello Josie,

My family and friends are praying for you. My name is Natalie and I was dx with JDM at the same time you were. I'am having a flare now, but nothing like what you and your family are going through. I pray you will get better soon! Happy 4th Birthday Josie. I too will be turning 4 on Dec. 19th.

God Bless You and Your Family-

Christy and Natalie-TX

Sent on Thursday, November 30, 2006 at 11:12:29 AM
Richard.Reynolds13@verizon.net


From Margaret,
Minneapolis

Jay and Family
Josie - I don't know you but I know your dad from work! My prayers are with you!! You sound like a real fighter.

Love, Margaret (formely from Kenwood Park/Reserve Master, MPRB staff)

Sent on Thursday, November 30, 2006 at 3:05:09 PM
mjaeger@minneapolisparks.org


From Susan Casteel,
Shawnee Kansas

I am a friend of Jen & Patrick Murray. Jen told me about Josie and I so sad to see this little girl in so much pain. I look at your blog everyday hoping to see that she is all better. My prayers are with you!!!!!
Susan Casteel

Sent on Thursday, November 30, 2006 at 4:57:19 PM
scasteel@abboptical.com


From Steve,
Eden Prairie

Get well soon, Josie!

Steve from the Sun-Current.

Sent on Friday, December 01, 2006 at 12:33:29 PM
spease@acnpapers.com


From Drew Saastad,
Richfield MN

Hi Josie I hope you have a great birthday!!

I hope you get better and get out of the hospital soon!!

How did you like the Vikings players? I hope I can come see you again!!

Sent on Friday, December 01, 2006 at 12:49:50 PM



From Mark,
Richfield

Happy Birthday Josie!!!
Sent on Friday, December 01, 2006 at 2:25:49 PM



From Mike and Louise Wobbleton,
Jamesville , NC

Just wanted to wish Josie Happy Birthday. And to let you all know we are still praying for Josie and the Doctors that are working with her. Josie Happy Birthday again.

In Christian Love,
Mike and Louise Wobbleton

Sent on Friday, December 01, 2006 at 3:13:59 PM
mlwobbleton@net-change.com


From Sharon Keegan,
7320 York

Dear Deb, Jay and family:

You have all been in my prayers this past month. I am sorry to hear Josie is so sick again. I started working on a portrait of Josie from your neighborhood party on Mike's deck two years ago... happier times. I'll try to send the draft to you, she is such a little sweetie. God Bless you all in this shadow time.

Sharon Keegan (Mike and Matthew's friend)
Little Josie.jpg

Sent on Friday, December 01, 2006 at 4:00:44 PM
keegandesign@comcast.net


From Grandpa and Grandma Lund,
us

Josie, your birthday is tomorrow! Happy Birthday! we are loving you and know that you are in the Great Hands and Doctors, Friends and God. We know God loves you so much. We pray for you and Evelyn, Henry and Tripie...Your Mon and Dad has wonderful strength that God has given to them...and we love them too. Old Birkie says I love you Jo Jo and your tummy rubs. We love our little familiy. Grandpa and Grandpa Lund and Sugar Bear adn Smokey Bear
Sent on Friday, December 01, 2006 at 4:11:50 PM
lundlink@mac.com


From Ed & Caroline Gaiser,
Fresno, CA

Hi Josie,

Even though we can't be there for your special day, we will be with you in spirit. We pray that you will feel better and can enjoy your big day. Your are a very special little girl who inspires us all. Much love, from "Aunt Caroline & Uncle Ed" from Fresno, California

Sent on Friday, December 01, 2006 at 5:20:25 PM
c_gaiser@hotmail.com


From Sue ,David, Stephen(dx94) Rachel and Sarah,
St.Joseph , Michigan

We are surley praying for Josie and your family ... Everyday we visit your site , we appreciate the fact that you are sharing her progress. We want Josie to get better, she is a part of our life. A birthday wish from our family ... Happy Birthday Josie......
Sent on Friday, December 01, 2006 at 8:03:08 PM
dcdean@qtm.net


From Chris Marshall,
Maple Grove, MN

J-ust an awesome little girl!
O-ne heck of a fighter!
S-he's got grit!
I-nspirational beyond belief!
E-veryone is praying for you!

Stay strong little lady and fight on!

Love,

Chris, Rachelle, Abby & Zach Marshall

Sent on Friday, December 01, 2006 at 9:17:30 PM
crmarshall27@comcast.net


From Verla,
Sun City, AZ

Hi Josie and all of the Adams family, Just want to wish you a "HAPPY bIRTHDAY" JOSIE. My prayer for you is that you will be well enough to enjoy your very special day, that it will be filled with God's love and blessings, and that you Jay will be able to tell us all very soon that Josie is on the way to complete healing. You all just amaze me even though I know your strength comes from the Lord. May God bless you all and give you comfort and strength and COMPLETE HEALING TO YOU BEAUTIFUL JOSIE. KEEP UP THE GOOD FIGHT JOSIE. We love you all so much and pray for you constantly. Wish I could be with you for the big party but will be there in my thoughts and prayers. Love and prayers, Verla
Sent on Friday, December 01, 2006 at 10:18:14 PM
memaw-v@hotmail,com


From Jamie & family,
Honolulu

Happy Happy Birthday, sweet Josie. We think of you each day and pray for better days.

Sending you lots of aloha and happiness!

Sent on Friday, December 01, 2006 at 11:31:49 PM
vacoba@hotmail.com


From Teresa and Alyssa and family,
Irvine, California

Happy birthday!! We are praying for you every day....my daughter is 7 years old and had jdm, we read your blog every day and are thinking of you every day, you are a beautiful brave little girl! Love the Vortouni family
Sent on Saturday, December 02, 2006 at 1:09:27 AM
flos4life@cox.net


From Lynn gabriel,
victoria, MN

Happy Birthday Josie! You are 4!!Wow,what a big, big girl you are! We pray for a miracle for your birthday sweet girl. I hope you have a "feel good" day. blake and Faith send their best 'Happy birthday' tune your way today. I pray that this year will be a year of healing and comfort and 'joy'!
Much love,
Blake, Faith, Lynn, Stan, and "the naughty one"Dakota

Sent on Saturday, December 02, 2006 at 1:19:26 AM
lrshadle@earthlink.net


From Riley McKeown,
Richfield, MN

Happy birthday Josie!! We love you very much.
The McKeowns

Sent on Saturday, December 02, 2006 at 4:45:41 AM
RMcKeown1@mn.rr.com


From The Krainz,
Brookfield, Ct

Happy Birthday JOSIE- Being 4 is so much fun --
Our family wants to wish a very special day.

Get well Soon!!!

Jackie, Roland, Austin, Gerard

Sent on Saturday, December 02, 2006 at 8:14:12 AM
jckrainz@gmail.com


From Joe Doran ,
Richfield

Dear Josie,
I hope you have a great birthday and I hope you are feeling better. I can't wait to see you again. We are praying for you.

Joe

Sent on Saturday, December 02, 2006 at 8:23:20 AM
jpd@mn.rr.com


From Kris,
Currently, New Ulm!

Happy 4th Birthday Josie!
We are hoping and praying for a miracle birthday gift to you, and to all of us--lots of healing in your tummy and feeling better. I hope the nurses and doctors are good at singing "happy birthday" to you!
Hang in there Josie! You're everyone's hero!

Sent on Saturday, December 02, 2006 at 8:39:22 AM
kris@teamfriday.com


From Paula,
Happy 4th Birthday Josie! I hope you feel better today and you and your family have a good time celebrating.

Sent on Saturday, December 02, 2006 at 10:09:17 AM



From Joce,
Canada

Dear Deeber Family ,

Our thoughts are with you during these trying times. I send only good wishes to you. I have experienced high heart rates of 250 and I pray for Josie .

May god hear all our prayers and put her on the road to recovery .



Joce

Sent on Saturday, December 02, 2006 at 10:11:55 AM
efsjm@hotmail.com


From Joni,
Aviston, Illinois

Hello Darling Josie. Happy birthday you sweet girl. I am saying extra prayers for you and hope that you will begin to heal very soon.
Sent on Saturday, December 02, 2006 at 12:06:32 PM
petewilken@sbcglobal.net


From Haley Newberry,
Edina

Hey Josie, hope your spagetti dinner goes well! And I hope I can help out, get better soon!
Love Haley Newberry

Sent on Saturday, December 02, 2006 at 2:21:34 PM
-


From The Wenaas Family,
Right Next Door

Happy 4th Birthday Josie!!! Keep on fighting!! We love you and are praying for you!
Sent on Saturday, December 02, 2006 at 2:43:11 PM
MMWenaas@gmail.com


From Jerry, Lisa, Emily, Sarah and Ben,
Richfield, MN

Happy Birthday Josie! You've got more friends than any four year old I know. We are thinking of you today and everyday and lifting you up in our prayers. We praise God for you! What a blessing you are to so many people during this courageous journey! We are looking forward with great anticipation to your big event and feel privileged to call you our friend!

Love,

Sent on Saturday, December 02, 2006 at 2:47:54 PM



From Patrick, Jenette, Lauren & Evan Murray,
Carver, MN

Happy Birthday!!
We hope you are having a good birthday and feeling better!!!!

We are glad you like your Dora doll!!!

Happy 4th Birthday!!!
XOXO
Love,
Lauren Murray

Sent on Saturday, December 02, 2006 at 3:28:37 PM
jenette_g@hotmail.com


From Gracie,
Wisconsin

Dear Josie,

Hi this Gracie!!! HAPPY BIRTHDAY JOSIE XXXOOOOO

I hope you feel better. My prayers are with you.

Love,
Gracie 11 Years old
(Wisconsin)

Sent on Saturday, December 02, 2006 at 4:43:36 PM
jillmickelson@netscape.net


From Emily Kraft,
Edina, Minnesota

Josie, Happy birthday! I hope your birthday was very special. I hope you get well soon!

Love, Emily Kraft

Sent on Saturday, December 02, 2006 at 4:46:30 PM
dlkraft@aol.com


From Kathleen McJunkin,
Apple Valley, MN

Josie,
We hope you are doing better today on your birthday (Happy Birthday in other words). Our prayers are continuing as well as those of the congreation of Grace Lutheran Church in Apple Valley. Love,Kathleen, Jim, Jeremy,Jill, Heather & Steven McJunkin (Cubby & Snickers too)

Sent on Saturday, December 02, 2006 at 8:31:27 PM
mcju0002@tc.umn.edu


From Debra Tryanowski,
Wallington, NJ

Happy Birthday, Josie!!!! I am a mother of a child with JDM who visits your page every day. Even though I do not know you personally, you have a big place in my heart. I pray for your recovery and remission all the time. You will continue to be in my thoughts in prayers always.
Sent on Saturday, December 02, 2006 at 10:16:23 PM
avarose04@msn.com


From Pat Friedberg,
Florida

I live across the lake from Grandma Lee - we share a large heron, a few turtles and a number of geese - I've offered to pay their fare back to where they belong but they seem to prefer Florida to the icey wastes of the northern states.
Lee sends on your blog and sadness and hurt for all your pain follows my every reading. In Israel, just a few months ago, I stood at the Western Wall in Jerusalem and picked up a prayer book which opened on a prayer for those who suffer. I read it and thought of Josie, a child I have not met, but a child, because of your blog, I have come to know. If God lives anywhere he must live there, so now, I think, I know,
he's heard the prayer for Josie.
Happy Birthday Josie

Sent on Sunday, December 03, 2006 at 7:48:43 AM
prfriedbe@gmail.com


From Stephanie Larson,
Minneapolis

Hello, you don't know me but I am on Hether Pfeiffer's email list and she sent a notice. I just had to write. Very recently, our family walked alongside our friend as he went through very difficult, soul-searching 8 months fighting an aggressive cancer, and I learned a lot about how prayer & support is so important during times like these. Most of us just traipse along in our life, making our happy plans for the future, oblivious that just "next door" someone is fighting for their lives.
I just wanted you to know that I am saying prayers for Josie and that you have my true and heartfelt empathy. My son is almost the same age. He is a real praying little guy and I know when he sees this site that he will pray for her. From your blog I can see that you're incredibly brave throughout this battle... but I know that it must seem like a roller coaster at times. God bless you.

Stephanie Larson

Sent on Sunday, December 03, 2006 at 1:35:13 PM
stephlarson@mn.rr.com


From Olivia,
Ilinois

Oh Josie, wish I could go to that benifit but it's my mom's birthday.Any other day I am sure my family would go but your still in our thoughts.Your a little trooper so keep going.

Happy Birthday!!!
From: Olivia


Sent on Sunday, December 03, 2006 at 5:56:10 PM
diazoe96@hotmail.com


From ,
Las Vegas-Wi originally

May God bless your baby Josie with the most beautiful healing angels he has to offer. Dear Josie has been stronger than I would have been through all of this. Mom and Dad you two are amazing people with strength I can only hope to have some day. I check in on Josie's progress from time to time and I pray for you all. I am spreading the word for more prayers. I know God is listening.
Sent on Sunday, December 03, 2006 at 6:22:54 PM



From Shelly and Mark Nelson,
Josie, you looked so sweet on TV tonight. Your Mom was very pretty and your Dad cleaned up pretty nicely too. Their love and admiration for you was HUGE. I'm so glad that your story was on Channel 9 so that even more people can begin to pray for you!!!
Sent on Sunday, December 03, 2006 at 9:34:44 PM



From Judee Dufresne,
Lindstrom Mn.

Josie, you are so incrediby strong and beautiful and so blessed to have such a loving family to be with you while you are going through such tough times. I will be praying the 91st Psalm with your name and my prayers and heart are with you and your family. May God bless and heal you right now, In Jesus name, amen.
Sent on Sunday, December 03, 2006 at 9:51:56 PM
dufresnedesign@frontiernet.net


From Leslie McKeown,
Richfield

Josie-So many of my ICU friends at Abbott have heard about your courageous struggle and we sit down together to check on how your day went. Many of the ICU rooms here had your tv story on and you could hear the comments from room to room about what a beautiful little girl you are. I think by now most of South Dakota is praying for you, too!!! My parents and a sister live there and check on you often. Thank you for sharing your story with so many. God continues to hold you in the palm of his hand. Much love to you and you family. Leslie
Sent on Sunday, December 03, 2006 at 10:04:16 PM



From Paul and Shelly Doran,
Richfield

Josie,

Paul and I watched you on TV tonight, and you looked so pretty with your big pink bow in your hair!! We are thinking about you all the time! Keep up the fight.

Love,
Shelly

Sent on Sunday, December 03, 2006 at 11:05:20 PM
doran-home@mn.rr.com


From Lawrence and Sharon Johnson,
Cottonwood, MN

Our prayers are with you as Josie continues her fight in battling this dreadful disease. We have only one young daughter (4 1/2 years old) and her name is Josie as well. Once we heard your story we hugged her and wouldn't let go.

Larry, Sharon, and Jose

Sent on Monday, December 04, 2006 at 6:23:48 AM
johnsoncats@charter.net


From Lawrence and Sharon Johnson,
Cottonwood, MN

Our prayers are with you as Josie continues her fight in battling this dreadful disease. We have only one young daughter (4 1/2 years old) and her name is Josie as well. Once we heard your story we hugged her and wouldn't let go.

Larry, Sharon, and Jose

Sent on Monday, December 04, 2006 at 6:24:31 AM
johnsoncats@charter.net


From Jen Weers,
Rosemount, MN

Jay and Deb: THANK YOU THANK YOU THANK YOU for being so very very brave and doing the Fox 9 story on Josie. What you did will help MY child, and so many others who need the awareness in order to fight JDM. I can't tell you how grateful I am. I look forward to seeing you again, Deb, and meeting you, Jay on Saturday night.
Our continued prayers,
Jen and Julia Weers and family

Sent on Monday, December 04, 2006 at 8:34:16 AM



From Mike Brunner,
Savage, MN

Deb, Jay and family--

Your wonderful friend, Kristin Smith, told us about your beautiful little girl Josie. We know just a little about what you are going through as our youngest son, Joey, was diagnosed with cancer in May 2005. Now, Joe is doing well after 6 weeks of chemo at Children's Minneapolis. The best thing we can do for you and Josie is to send our prayers and ask our great "support family" to do the same. They've done wonders for us and we'll let them loose to help Josie get better. God Bless.

The Brunner Family www,caringbridge.com/mn/joeybrunner

Sent on Monday, December 04, 2006 at 10:47:47 AM
brunner4192@yahoo.com


From ,
Richfield

Hi Josie,

Glad to hear you are feeling a little better and are helping out your talented crew of caregivers at the U. You are such a smart little girl and a true inspiration! Your mom and dad did such an awesome job sharing your story on TV last night.

Keep fighting Josie- We all love and miss you very much!

The Saastads

Sent on Monday, December 04, 2006 at 10:52:45 AM



From Tricia (Kathner) Thompson,
I just heard about Josie today. I had no idea your family was going through this. I am so sorry to hear about all Josie has been through. I will keep checking your website to find out how things are going.
Sent on Monday, December 04, 2006 at 1:04:18 PM
tricia.thompson@richfield.k12.mn.us


From Kay Stalcar,
Richfield

Josie,
What a little fighter your are! We are all so proud of you, Keep it up. We have been praying for you and your family. Jay and Deb, see you on Saturday!

Sent on Monday, December 04, 2006 at 2:45:01 PM
kstalcar@cojlbc.org


From Amy,
Platteville, WI

God bless you and your little girl! What a trooper. I am praying for you and Josie, she is lucky to have a wonderful group of people in her corner. I will be praying that your fundraiser is a smash hit.
Sent on Monday, December 04, 2006 at 3:12:28 PM
fraileya@uwplatt.edu


From Dena Waskiewicz,
Concord, NC

What a wonderful journal you are keeping. I especially love the hats and colorful costumes! What a little ham she is. :) Hugs to you, sweetie!
Sent on Monday, December 04, 2006 at 4:23:14 PM
waskiewiczrn@carolina.rr.com


From Marie from OH,
Sun Prairie

I hope you are feeling better and Santa brings you all that you ask for. I'm praying for you and your family too have a wonderful holiday season and that you feel good for a while.
Sent on Monday, December 04, 2006 at 4:45:28 PM
bungeem@yahoo.com


From Chris Borgen,
Minneapolis, MN

To the Adam's family,

I am a Sigma Chi and met Jay many years ago when I was still active in the chapter. So when I saw your hardship I wanted to wish you my prayers and wishes for a Happy Holiday season!

My son Josiah, was at Childrens when he was born for over three months due to complications associated with pre mature birth! If there is one word of advice I can give you is to stay strong and have faith that Josie will make it through this hard time! Sounds like the Dr.'s up there have not changed much in 17 years, We were told two different times that Josiah was not going to make it due to his complications, and two times he proved them wrong! Children are truly little miracle machines, it is amazing what they can go through and still find a way to smile! Josiah will be turning 18 in January, and when we do get a chance to see his old Dr.'s, they look at him and say he is a walking/talking miracle! So with that, keep your head up and stay strong!

In Hoc,

Chris Borgen

Sent on Monday, December 04, 2006 at 5:08:26 PM
chrisb@industrialprotectioncorp.com


From Claire,
L.F. M.N

Hi!Josie My name is Claire I have dermatomyositis just like you. My doctors name is Dr. Vehe. I am 9 years old . I realy want to meet you.I am in remission .I am praying for you.I am comming to your found raiser. I hope you will go into remission just like me.
Sent on Monday, December 04, 2006 at 5:49:19 PM
luannsosidesports@hotmail.com


From Anna Bryant,
Roanoke, VA

My heart goes out to you Josie. Big prayers coming your way for you and your family. You have such a strong will sweety, that will carry you through. May God give you and your family the strength you will need. My little boy insisted on seeing all of your pictures, I know you will be in his prayers as well. He is 5 and his name is Logan.
Take care sweet Josie!!

Anna, Tommie and Logan

Sent on Monday, December 04, 2006 at 6:12:25 PM
logansmom612@yahoo.com


From Sheri,
New York

My heart aches for you and your family. I will say some prayers for Josie and her family. I pray that the Lord will give the whole family strength. She looks like a tuff little girl. God Bless you all...
Sent on Monday, December 04, 2006 at 8:31:25 PM
nortyred00@yahoo.com


From Shana,
Queen Creek, AZ

Josie, our thoughts and prayers are with you! You are such a brave gal! My little girl drew you a picture and we are sending it to you tomorrow! Rest up and take each day at a time!

With all our love,

The Millers, Nicholas, Shayna, Cody, Kayla, Olivia

Sent on Monday, December 04, 2006 at 8:56:26 PM
horsecrazed15@hotmail.com


From Margaret Knudsen,
Shoreview, Mn.

Dear Josie, I was just reading your Weblog and understand what you are going through. I too had Dermatomyositis and am now in remission. I did not have the severe case that you have but did suffer about four years with a rash and side effects from medication. I came down with it as an adult so I could understand better what was happening to me. I will keep you in my thoughts and prayers. Hang in there, you will get better. If your parents want to e-mail me I would love to hear how you are doing. Love and prayer to you and your family.
Sent on Monday, December 04, 2006 at 10:17:47 PM
mmmknudsen@yahoo.com


From Lucille Skluzacek,
6320 Vincent

Hello, sweet Josie,
I was at your home tonite to bring you a little present. I hope you will like it. I also sent you a card to tell you that each evening I kneel and pray a rosary for you, my daughter, my granddaughter and myself. I have been begging our Lord for some time, I am sure HE knows I mean business!!! Much love to our sweet Josie,
Lucille

Sent on Monday, December 04, 2006 at 10:20:55 PM
LSkluzacek@aol.com


From Jared Berg,
Boulder, CO

Josie, Jay and family,

My wife and I read every entry from bottom to top today. We hurt, prayed, learned, fell in love, and most of all were truly inspired by the amazing strength of Josie and her family!

With all our heart,

Jared, Sara, Brent Kyle and Kieren

Sent on Monday, December 04, 2006 at 11:36:28 PM
Jared@TriEndurance.com


From Maryann Kieffer,
Rapid City, SD

What a beautiful bright spirit! I pray a hedge of protection around you and your family. That God be at work in your lives and that others see His light shining through in such difficult times. That He ease any worries from family and His will be done in all of your lives. Keep holding strong to each other and may there be a peace come over you knowing that He is in charge and is looking out for you. In His Grip~Maryann
Sent on Monday, December 04, 2006 at 11:48:40 PM
maryannkieffer@yahoo.com


From Natalia Haala,
Woodbury

Hello--

I saw your story last night on Fox9 and I was touched. I too was diagnosed with dermatomyositis three years ago and have been through your difficult journey. As I read the journal I could relate so much with what Josie is going through; the hospitalizations, blood work, uncertainty and fear.

I will be praying for Josie as she goes through this painful disease. I will be praying that one day soon she will be able to do little girl things.

Sent on Tuesday, December 05, 2006 at 12:27:41 AM
natalia_haala@hotmail.com


From Kristin Erickson,
Brooklyn Park, MN

Hi Josie and family,

I just heard about your situation from my friend Heather -- what a journey you have been on! You are all amazing and courageous, from what I have been reading. I will add you to my prayers, and get you into my "prayer chain" (my good friends)... it is the season for miracles! I hope to make it to Josie's party next weekend...

Blessings to you all

Sent on Tuesday, December 05, 2006 at 8:28:18 AM
kplayagirl@aol.com


From Jessica Dahms,
Marshall, MN

Wow...I don't even know what to write! I just read your entire blog...I've smiled with you, cried with you, asked "Why?"...

We are no strangers to the University of MN. Our son was diagnosed with ESRD (End Stage Renal Disease) on Jan. 10th, 2005 at 2 days old. We were at the U from January-June of 2005, came back for a week in August of 2005, and then again in December for Gavin's life-saving kidney transplant. All in all it was 7 months of hell. We will be praying for your family as Josie continues to fight...

Hugs from Marshall,
Tony, Jessica, & Gavin Dahms
www.caringbridge.org/mn/gavindahms

Sent on Tuesday, December 05, 2006 at 9:05:57 AM
jessdahms@hotmail.com


From Gigi &Eda,
Fraser

Hi Josie, did you have a fun birthday? We hope Bella is behaving and not taking up too much of your bed. We are sorry to hear your hurting so much lately. Sounds like your doctors and mommy and daddy are working hard to get the right combination of drugs to help you. Eda and I will keep reading your blog and when you feel better we will come and see you again. We don't want to keep you from sleeping when you need to -because sleeping is very importand for your body to heal. If you still want to see us this week we would love to visit though- so just tell your mommy if you want us to come anyway; she can call us and let us know. Hope you are feeling better real soon.
xxo Gigi & Eda

Sent on Tuesday, December 05, 2006 at 2:16:26 PM
gigik@fraser.org


From June Kuntze,
Edina, MN

I couldn't stop thinking about Josie today after reading her story last night. The information about her benefit was forwarded to me by a friend who attends CPC. I have a special needs son who has had his share of hospital stays and complications. It is extremely exhausting and life-consuming and my heart goes out to your entire family. I will pray for sweet Josie and both of you parents for strength and courage. Don't be afraid to trust your instincts and ask the tough questions doctors may not like to hear. Bless you.
Sent on Tuesday, December 05, 2006 at 7:08:35 PM
Jbkuntze@juno.com


From April Thornburg,
St. Louis Park

Hi Josie
Remember me, April, I babysat you when you were just a few months old. You are quite the fighter, girl! I know you are putting up the fight of your life right now, keep fighting! You are you have a lot of people that love you and your family who are praying for you each and everyday. Those prayers do not go unanswered! Be sure to stay strong Josie, you will WIN!
My Love and Prayers go out to you Deb, Jay, Trip, Henery, Eve, & Josie

Sent on Tuesday, December 05, 2006 at 8:01:57 PM
bigapes@hotmail.com


From Sara & Gumper Carrigan,
Rosemount, MN

Josie-

We have you in our thoughts and wish only the best for you and your family.

Love,
Sara & Gumper

Sent on Tuesday, December 05, 2006 at 8:29:38 PM
sjcarrigan@charter.net


From Ann Aguilar,
Richfield

We are praying for Josie! May God the healer bring you healing here on earth.
Sent on Tuesday, December 05, 2006 at 8:43:48 PM
aaaguilar@usfamily.net


From Sarah Madsen,
Eau Claire, WI

Josie,

I showed some girls from my college your clip from the news and they were all moved by your courage and strength. You're a fighter... keep it up. Much love... you're in my thoughts daily!
<>< Sarah Madsen

Sent on Tuesday, December 05, 2006 at 9:42:33 PM
madsensl@uwec.edu


From aggie,
San Francisco

Hello Jay & Deb,
I am in so much trouble with my daughter for not getting Josie's birthday card out on time! It's en route now, and we hope it will bring a smile to our little angel's face. Saw the very moving Fox 9 segment. I hope it will recruit some new suppporters for Josie's cause. If only Josie could have some pain-free days, my Christmas prayers will be answered. Try to stay strong not only for Josie, but Trip, Henry, and Evie, too. I'm so concerned about the toll this is taking on all of you...

Sent on Wednesday, December 06, 2006 at 12:37:42 AM
aiv1026@aol.com


From Katie Krueger,
Richfield

Josie,
You are in our thoughts and prayers. What a strong, beautiful girl you are. We hope you feel better really
soon!!

Karl,Katie,Zach & Max Krueger

Sent on Wednesday, December 06, 2006 at 11:12:49 AM
kkrueger5@comcast.net


From Karen Herman,
Edina, MN

My name is Karen Herman, and I am Trip's Sunday school teacher. We are thinking and praying for Trip and Josie every day. The 5th grade boys in our group, Nikki Abramson leads also, are praying for Josie and Trip. Nathan, one of our boys, just asked me how Josie was doing. These boys are prayer warriors and are lifting up Josie in God's care and warmth like a cozy blanket!!! We are all praying and thinking of you at this challenging time. We are happy to have Trip in our group and miss him when he is not able to attend. Hello Trip, praying for you too, keep your chin up and keep in God's Word, the Bible and continue being a disciple for God....Big doG for Him!!! Karen And Nikki
Sent on Wednesday, December 06, 2006 at 12:48:02 PM
kbherman@comcast.net


From Kathleen ,
Hi Deb,
This was my nephew's reply. He may show up to do balloon animals so you may want someone to be prepared for an organized way to do this. Kathleen McJ
From:
To:


Date:
5 Dec 06, 12:37am If I'm available that night I might be able to stop by. I'd want to have
them collect some kind of donation for their fund so I don't get mobbed with
too many kids in a line......it looks like they already have a sponsor for
inflatables

Brian

Sent on Wednesday, December 06, 2006 at 12:48:41 PM



From Holly Thiede,
St. Louis Park, MN

Thinking of you today, Josie! You are such a strong young lady!
Sent on Wednesday, December 06, 2006 at 4:51:29 PM
HandThiede@aol.com


From The Murray Family,
Carver, MN

Josie,
We are hoping your surgery went well today!! We are praying for you every day!
Love, Jenette, Patrick, Lauren & Evan Murray

Sent on Wednesday, December 06, 2006 at 8:35:59 PM
jenette_g@hotmail.com


From Jim and Jen Ware,
Rogers, MN

Jay and Deb,

We've been thinking about you and praying for you for a while, but just started reading the blog. We're so proud of the two of you, and even more amazed at Josie's fighting sprit. Our family is praying for all of you every day. May God give you strength, endurance and patience while Josie rebounds!

Love,

Jim, Jen, Lauren and Jonny Ware

Sent on Wednesday, December 06, 2006 at 9:20:56 PM
jimandjenware@yahoo.com


From Kevin & Heidi Barthel,
St. Michael, MN

Hi Deb & Jay and of course Josie. You all sound incredibly strong--I hope messages from friends help to "fuel your engines." Such a tiny little body to endure such "complications.." Jay, you're an incredible writer and I'm sure your story serves as inspiration to many. Deb, I hope you can feel my "HUG" by reading this message. Your family will be in our prayers daily!
Sent on Wednesday, December 06, 2006 at 11:57:38 PM
heidibarthel@charter.net


From Cindy Scriver,
Edina

I only learned about Josie yesterday and have read every entry you have posted. It kept me up late last night. My heart breaks for her!
My son Grant is in class with Tripp and we are praying for all of you as a family. We wish we could be at CPC this weekend but we'll be there in spirit!
Keep fighting Josie...you are a true inspiration to all of us! God bless you!
The Scriver Family
Mike, Cindy, Mitchell, Grant, Chad and Chester

Sent on Thursday, December 07, 2006 at 8:06:48 AM
cmscriver@mn.rr.com


From old friend,
Centreville, VA

Hi Deb,
So sorry to read about Josie's ordeal in the hospital. I have sent you an e-mail. I know exactly what you are going through. I see so many of the same things from when Andrew had his horrible years. You are amazing - taking care of a sick child in the hospital and a family at home - truely amazing. Miss you - I want to help.

Maria

Sent on Thursday, December 07, 2006 at 9:29:10 AM
mariavet@cox.net


From Kevin & Heidi Barthel,
St. Michael, MN

After reading Josies's story and listening to Deb on the Channel 9 newsclip, Josie has "grit + spirit = SPIT!" It's the stuff that can make a mother "cuss" under her breath when your child is healthy, but in Josie's case it's a wonderful blessing! Deb, remember when you'd jump on the uneven bars when the palms of your hands were half-gone -- SPIT made you do it! Dad (Jay) must have passed on a healthy dose too! Our love and prayers for all of you!!!!!!
Sent on Thursday, December 07, 2006 at 10:19:16 AM
heidibarthel@charter.net


From Kathleen McJunkin,
Apple Valley

Couldn't get an evite response through for my parents, Kermit & Shirley Pietz. They are planning on coming even though I can't be there. I will be dropping off 3 French Silk pies and various candy for the bake sale. Dr. Kruse has also donated a gift certificate for a weekend of boarding for the silent auction. Have a great party. I will try to stop by. Kathleen McJ
Sent on Thursday, December 07, 2006 at 2:17:15 PM
mcju0002@tc.umn.edu


From Maria,
Elk River, MN

Jay and Deb,
I'm so sorry I never heard about Josie until now...Scott just sent me his group email. I've read the site and watched the video clips and I'm sitting here in my office crying. I'm so sorry you all have to be going through this pain - I have a little 4-yr old girl, too, and my heart and prayers are with you. I will think about you and send my love to you and her each moment...I admire your strength and know that God is with you and Josie every moment.
With Love,
Maria (Schwefel) Johnson

Sent on Thursday, December 07, 2006 at 2:44:32 PM
maria.johnson@bsci.com


From Charlotte Monmont,
Edina

My son, Max, is in class with Trip and we would be more than happy to help in any way we can. Please don't hesitate. I only read about Josie yesterday (Max had mentioned that Trip's sister was "sick with a disease with a very long name" but we had not realized to what extent and what a long fight this has been for you all). You are all very much in our thoughts - better days have to be just around the corner for you.
Sent on Thursday, December 07, 2006 at 8:51:48 PM
charlottemonmont@msn.com


From Nicole Ensrud,
Edina

Hi - I heard about your beautiful amazing daughter through one of her sibling's teachers at Concord. You all are in my family's prayers now. Thank you for being so willing to share her story so now we can join in praying for her and supporting you.
Sent on Thursday, December 07, 2006 at 9:53:07 PM
nicoleandbruce@msn.com


From Rick Vetsch,
Centreville, VA

Jay, Deb, Josie and family

Wow. Just read the entire blog. You are experiencing life in a tremendous way. It's obvious through your words, photos, and tone you are all giving this one spirited fight. Much of your experience is familiar to Maria and myself with our Andrew. I believe very few are provided the opportunity to be hero's - models for all the rest of us by which to live, act, and learn the value of the gifts we have. Josie is obviously your hero, and now mine also. Our thougths and prayers always.

Sent on Thursday, December 07, 2006 at 11:34:15 PM
mariavet@cox.net


From Fred Clayton,
St. Paul, MN

Josie,
I know the fighting spirit of your parents and trust you are blessed with the same to take you to the end of the battle and into recovery.

Love,

Fred, Trevor & Linda

Sent on Friday, December 08, 2006 at 7:49:17 AM
clayt004@umn.edu


From Angie Rogers - Hockey Mom from the Dynamo Grizzlie Team,
Burnsville, MN

To All of You,

I've read the entire blog and all I can say is "Wow". Your strength is very inspiring. Your family is in my thoughts and prayers.

Sent on Friday, December 08, 2006 at 12:09:38 PM
angie.rogers@pattersondental.com


From Deanna Kearns,
Largo Florida

Hey Josie,

I was really hoping that things would be looking up for you by now. Keep on fighting Little One. Please know that you are in my heart and my prayers.

Deanna Kearns

Sent on Friday, December 08, 2006 at 12:34:27 PM
d.l.kearns@att.net


From The Stattine Family,
Edina

Dear Adams Family,
I have recently heard about Josie through CPC and Concord school. We have watched the news clip and have read Josie’s sight and our hearts and prayers go out to your entire family. We can’t imagine what you all are going through. Josie sure sounds like a fighter and we are sorry that she has to go through all of this! Please know that we are praying for Josie to get stronger and better. You are truly an amazing family! We will continue to visit the website and check on her progress. Once again our hearts and prayers are with you.
Judd, Christina, Olivia, Tommy and Sophia Stattine

Sent on Friday, December 08, 2006 at 3:22:24 PM
christinastattine@mn.rr.com


From Leslie,
Richfield

HI Josie-
It looks like the nurses are taking good care of you...That "spa bed-bath" in your picture looks nice and relaxing. Hopefully the water and towels were really warm!
I think of you so often and hope you have a good day. Jay and Deb-I wish I could make it this weekend to give you a great big hug. Something interesting-not only did my cousin have JDM but another juvenile from my home town also had it when I was growing up (both in the 70's) At the time we couldn't say Dermatomyocytis but knew it was serious. You're doing so much for bringing awareness to a whole lot of people and I'm is praying a cure is close at hand. Love to you all

Sent on Friday, December 08, 2006 at 4:09:33 PM
lesliemckeown@comcast.net


From Nancy Manning,
St. Louis Park

Jay...
My heart goes out to Josie, you and your family. You will be in my prayers from now on. Please know how much I care.
Nancy

Sent on Friday, December 08, 2006 at 6:57:48 PM
nimanning@juno.com


From Sheldon Q Sather,
Stillwater

So much courage and strength. I held my daughter and said a prayer for you and your family tonight. Jay if you see this, it has been a while since we have seen each other. I just found this through Rob F. Words fail me. My 3 year old asked me why I was crying. I told him a little girl his age is very sick. He asked me why. It is not fair Jay. It just is not fair. Find and keep the strength.

Sheldon and Anne Sather, Jackson (3.5), Lili (14mo)

Sent on Friday, December 08, 2006 at 8:22:55 PM
asather@comcast.net


From Janet Meliti,
Anchorage Alaska

Hello there Litte Josie Ijust found out about you today from Sean Foxes Mommy Iguess you two are at the same hospital. Iread about theese rare autoimmune disorders before alot theese past couple of years especially. Autoimune disorders are a very hot topic .

My son Matthew who just turned 4 yrs old last month on Veterans has a rare syndrome known as Prunebelly Syndrome they are born with little or no Abdominal muscle with alot of other anomalies to there gi tract, urinary tract etc. You can go to www.prunebelly.org to learn more about this rare life threatning syndrome. We try to raise more awareness each day so we can get funding for more research for better care options etc. It has another name it is known by also the two dr's names who discovered it but more commonly known as Prunebelly be cause there skin is really wrinkly.

I hope you feel better soon Josie.

Sent on Saturday, December 09, 2006 at 2:58:16 AM
jmeliti11@hotmail.com


From Nisi Carlson,
Minneapolis

Hi Josie - I hope you are feeling a little bit better today. I can't wait for your party and I wish you were going to be there!

Nisi Carlson

Sent on Saturday, December 09, 2006 at 8:52:30 AM
emilyjimcarlson@msn.com


From Tammy & Dakota,
Keene, New Hampshire

Greetings, Josie and all the Adams Family. Way cool glowing thingies! We miss you all and would so very much like to be at the party tonite. Another time!!!!watch for the package (hopefully it will arrive on time). Happy Birthday to Evie! We are keeping the Faith here. Lots of Love, hugs and toothy grins, (between the tears).
Sent on Saturday, December 09, 2006 at 3:59:25 PM
camprn@verizon.net


From Sarah Madsen,
Eau Claire, MN

HI Josie!!!

Thinking of you on your special night... I'm sure it's wonderful. I hope your visit with Goldie was a fun one! Wish I could have been in town to support you, but you're with me in spirit. All my love and prayers go to one special someone tonight-- YOU.

Sarah xoxo

Sent on Saturday, December 09, 2006 at 8:32:49 PM
madsensl@uwec.edu


From Sammy & Nisi,
Minneapolis

Hi Josie - Your party was great! We wish you could have been there. We got a big huge stuffed animal (a Manatee which is kind of like a dolphin). We named her Josie after you - the sweet little girl who inspired us!

Love Sammy & Nisi Carlson

Sent on Saturday, December 09, 2006 at 9:22:46 PM
emilyjimcarlson@msn.com


From Thomas Lund, Tom & Darlene ,
across the street

Josie, we loved your party...it was grand. Matthew played the trumpet for you and Goldie Gopher danced around and the bounce thing was in full blast! We ate spegettie and bought cookies and honey and I don't know what all. Grandpa and I loved it and we prayed for you and sang Joy to the World...because you bring us Joy, Josie. Love and hugs for a good nights sleep. Tom and Darlene Lund
Sent on Saturday, December 09, 2006 at 9:31:29 PM
lundlink@mac.com


From Lisa Heilman,
Lakeville MN

Dear Josie! We are home from your party and it was so fun! The boys had a great time - Isaac got his face painted - he wanted it to be lacrosse - but she misunderstood and painted on a cross. He still liked it and I thought it was fitting! We loved the slide show your Daddy put together and your Mommy did such a fabulous job talking about you. You are really something special and you brought together so many people tonight.
Sleep Well
Love Lisa Rich Lucas and Isaac

Sent on Saturday, December 09, 2006 at 9:48:12 PM
lheilman@frontiernet.net


From Beth Stellon,
Richfield

Josie, you're positively glowing! :)

I didn't get to stay for the party but it was fun to see all the people who care about you and your family so much there working to put it all together. Jack was able to be there to celebrate YOU! We hope you and your family understand how much you are all loved.

Keep glowing!

Sent on Sunday, December 10, 2006 at 12:46:41 AM
StellonE@aol.com


From Tammy Melloy,
Minneapolis

Dear Josie,
Maddy, Albert, Cullen and I attended your beautiful party tonight. I was so overwhelmed with emotion, I couldn't even talk to anyone or I'd start bawling- I'd become completely unglued! It was SUCH a beautiful thing to see all these people come together in support of your family. I felt like the moment I stepped out of my car into the parking lot, I just floated in the building on a sea of love. There really are angels, and they bake cookies, serve spaghetti, and shaved ice in my favorite flavors!What a loving gesture to a loving family. I can't think of anyone more deserving. I have known your Mom since she was 14 and I have always known her to be a champion in everything that she does. She tries to do her best and then she'll do just a little bit more! I admire her so much and strive to be like her! You must have those champion bloodlines yourself, kiddo, from yer Ma and Pa, to get through this ordeal, and get through this you will. Hang tough, ya'll! You are such an inspiration to all of us. I saw your Mom perform her first ariel (a cartwheel with no hands!) and I'll never forget the look on her face! I believe in you and I believe in love. You are so loved. Good health, strength, and comfort to you, little girl and to your family, too! We can't wait to see you at the skating rink again sometime soon! Be well....much love, Tammy, Maddy, Albert, and Cullen

Sent on Sunday, December 10, 2006 at 4:51:03 AM
TMELLOY@mn.rr.com


From Joan /Jim Wobbleton,
Murrells Inlet,SC

Good morning to the Adams family. It's the day after the big JOSIE party. Because we live in SC we couldn't make the party so we are enjoying seeing the blogs and the guest book. Hope the auction went well and raised a lot of money.
Loved seeing Josie and the gopher. I think that PT will be nnecessary to start reeducating those unused muscles in the bbody. Maybe warm whirlpool to the feet and legs would help. It should be nice for her to feel the warm water on her extremities. Keep us informed about the outcome of the aauction and party. We pray for help in understanding what tto do and how to manage all the symptoms that Josie has to ddeal with on a daily basis. We pray for strength to the whole Adams family and friends who are providing help on a daily basis.
Joan and Jim Wobbleton

Sent on Sunday, December 10, 2006 at 7:51:07 AM
jwobb@aol.com


From Shelly Nelson,
Richfield

What wonderful friends you all have. I was amazed at how many people came to not only eat dinner, buy baked goodies and cards, and place bids on the ENORMOUS amount of items in the silent auction, but to also help out in so many ways. Josie, you all, and this event will also stick with many of US for a lifetime, too! We pray for your healing, and wish you home soon, Josie. XOXO
Sent on Sunday, December 10, 2006 at 7:59:18 AM



From JAN,TERRELL,KEN,EMANUEL,
waukon,iowa

SO PRAYING FOR YOU ALL AND WISHING ALL THE BEST. THE NEWS STORY WAS GREAT!! SHE IS A BEAUFAL LITTLE GIRL. I SEND YOU ALL THE PRAYERS YOU NEED.. THE BAUMLER

www.caringbridge.org/ia/terrell

Sent on Sunday, December 10, 2006 at 10:01:52 AM
j_baumler@yahoo.com


From TomKari,
Saint Michael


A simple prayer...
“Father, I ask you to bless Josie and her family.
Show them a new revelation of your love and power.
Holy Spirit, I ask you to minister to their spirit at this very moment.
Where there is pain, give them your peace and mercy.
Where there is self-doubt, release a renewed confidence through your Grace.

In Jesus precious name. Amen.”

Sent on Sunday, December 10, 2006 at 11:54:42 AM
mayberrymn2003@yahoo.com


From Cathy Patterson,
Virginia

We will be praying for you Josie!
You are a brave little girl and your family is very brave too.

Hugs,
Cathy, Jeff, Casey & Dylan

Sent on Sunday, December 10, 2006 at 2:04:46 PM
thrddyfan@yhoo.com


From Patrick McClure, D.C.,
Mariposa


Hi. My name is Patrick McClure. I am Jacklin Hiblers chiropractor. She shared with me what is going on with Josie , so this morning I came to your website. Such a precious child. Her courage and inner strength are so evident in the photos. I want to let you know that my prayers are with you, Josie's parents, with Josie, the medical staff and all the others whose hearts have joined with Josie's. I pray that His peace, strength and healing will bring a miracle to you all. There is no way for me to truely know or understand all that you are going through, but I pray for God's strength in your lives. When our youngest son was in ICU with his life in the balance I firsthandedly experienced the grace and comfort of the Lord. He is with you all.... My warmest regards. Patrick

Sent on Sunday, December 10, 2006 at 2:33:34 PM
pvmcsurf@sti.net


From Francesca Madden,
Chicago

Dear Josie,
I am an oooold friend of your Aunt Megan Wenaas and she told me all about you. I just want to send you a BIG BIG HUG and tell you that you are such a brave little girl. My daughter Sofia is 5 months old and I hope she becomes a strong, beautiful little girl like you. I have a special angel in heaven and I will tell him to give you a very warm kiss tonight so if you see him you know that I sent him to you.
All our love, Matt, Francesca and Sofia Madden

Sent on Sunday, December 10, 2006 at 6:03:27 PM



From Lynn gabriel,
Victoria,MN

Well, 'Dear Josie', wow! the impact you have on so many people's lives and the love and selflessness that you have inspired! I pray that someday you will understand the incredible affect you are having on so many and bringing out the very best in all of them. from family to friends to strangers, you are a very special angel that God has chosen for incredible things.. Keep the faith Josie, the Lord is with you every step of this journey. Thank you for giving us the opportunity to share our love and support with you and your family by having this circle of love party in your honor. Just goes to show that God is so good, and the world really is good too. filled with good hearts. Keep up the fight Josie, we will take you on an awesome train ride as soon as you can go! They will blow their whistle and puff their steam just for you-you can bet that Blake and Faith will make sure of that!
We love you precious girl,
and God loves you the most,
Lynn Stan Blake and Faith Thank you for being you.

Sent on Sunday, December 10, 2006 at 8:55:25 PM
lrshadle@earthlink.net


From Lynn gabriel,
victoria, MN

HI again Josie,
I am sorry that I forgot a very important thing in my last e-mail. I wanted to tell you that I got to talk to Goldy after he saw you at the hospital and of course asked him how you were doing when he was there. Well, Goldy Gopher was VERY HAPPY that he got a high five from you! I just wanted you to know that.
Love
Lynn

Sent on Sunday, December 10, 2006 at 9:43:31 PM
lrshadle@earthlink.net


From Karen Madsen,
Richfield

Josie,

We had a blast celebrating you last night!! There may have been a lot of sweets at the bake sale but they still didn't add up to how sweet you are to us. It may have been named a silent auction but it was not silent at all with all of the cheers for you! The snow cones may have been cold but everyones hearts were warm with the love in that place. Some of our shirts may be stained with spaghetti sauce but we may never be able to wash it out because of the reminder of a warm and wonderful evening. The cards from you and Henry may have been blank but they tell a much greater story than words could ever say. There may have been a lot of sweat on the brows of hot air jumpers but not the as much sweat and grit as you have put into fighting this disease. Your family was amazing in the love they showed for you with what they shared with us at the end of the evening. (Mom said she wasn't the writer in the family but we discovered she is quite the public speaker. Perhaps because of the passion she has for you!) We will keep praying for you, Josie. We know God's timing is perfect but we wish he'd hurry up and start giving you some good days!!! Love, Karen and the Madsens

Sent on Sunday, December 10, 2006 at 9:51:12 PM



From Lori, Jim, Lisa, & Leanna,
Santa Ynez Valley, Calif.

Hi all!

We just want to send your family & Josie a gentle hug!
Our daughter, Leanna, is 9 & has had JDMS since age 4. Our other daughter, Lisa, is almost 17, and had different rare disease call RSD (reflex sympathetic dystrophy) from age 9 to 14. We all wanted to tell you we are thinking of you and praying for Josie's recovery.
The JDMS site & Cure JM have been wonderful for us - glad you are posting there. Your blog is great...no one should have to go through all this. Your (& Josie's) spirit is strong. We will keep you all in our hearts & prayers!
Love, The Thompsons

Sent on Sunday, December 10, 2006 at 9:53:28 PM
dragonmusic1@aol.com


From Lindsey, Craig & Kiley Gorski,
Edina, MN

Sweet Josie, we hope and pray for your little body to heal and feel better. Kiley has missed seeing you in the gym at Fraser. To Josie's family - there is nothing we could possibly think of to say that could sound appropriate. Until we read the flyer at Fraser on Friday, we had no idea what Josie and you are going through. We do not know Josie well, but she would often come up to me when I was picking up our daughter, Kiley, at Fraser. She seemed such a gentle soul. I have to laugh that one of the last times I saw her, she was wearing her favorite Dora sandals on the wrong feet! Having a special needs child, people often tell me that "God never gives you more than you can handle". I'm not sure if its true or not, but I hope (and it appears to be the case from your blog) that God has given Josie and your family extraordinary strength. Bless you all, but especially Josie.
Sent on Sunday, December 10, 2006 at 10:40:32 PM
lindsgorski@hotmail.com


From Leslie McKeown,
Richfield

HI there Josie, Jay and Deb-
Sounds like the benefit for Josie was a huge success! I'm so envious of those who were able to go and share in all the positive energy. Glad to hear Josie was able to have a private audience with Goldie Gopher. Strange thing about the Red Man Syndrome-funny though-when I saw her latest picture that's the first thing I thought of with her red, shiny cheeks and all that Vanco. It used to happen more frequently years ago when all IV's were not on pumps and the rate of infusion "got away from you" (meaning the Vanco infused to fast). I'm sure they are doing this but Benadryl pre-med before Vanco really curbs the discomfort, redness, and itching. Just a thought-I've had a few pt's with Red Man's that say their feet and hands feel like they are "on fire"-do you think this could be some of Josie's foot pain? Benadryl really has seemed to help in those cases. Just my 2 cents-I'd best leave it to the experts. Lots of love to you all! Leslie

Sent on Monday, December 11, 2006 at 2:44:10 AM
lesliemckeown@comcast.net


From Tina Tiliks,
Chicago, Illinois

My thoughts and prayers are with Josie and your entire family. Your little girl is 1 of the bravest people on this planet. Best wishes for a quick and complete recovery!
Sent on Monday, December 11, 2006 at 9:54:37 AM



From Selina Thomas,
Chicago, IL

I was forwarded the e-mail about Josie from a friend. She looks like a sweet and wonderful child. I am so sorry that she has to go through this. No child should ever suffer. Please know that my prayers are with her and with her family. I imagine this is incredibly difficult for you. No parent wants to see their child in pain, and I am sure that you have wished it were you several times. I hope that her recovery comes soon.
Sent on Monday, December 11, 2006 at 10:39:17 AM
sthomas@isba.org


From Megan Wenaas,
Right Next Door

Josie:

We were so honored to be a part of your celebration on Saturday. We wish you could have been there, but we know the doctors are doing everything they can to get you home as soon as possible. Please know we love you very much and we continue to pray for you daily. I've got your song in my car and I listen to it all the time. Bridget & Molly Rose know the lyrics and they sing it too. We hope you can hear our voices. We're singing to you, sweet girl!!

We hope you can come over soon and play with Bridget & Molly Rose like Evie has been. I've got lots of movies and I'll make you whatever your heart desires!!!

We Love You Josie!!!
Megan, Jason, Bridget & Molly Rose Wenaas

Sent on Monday, December 11, 2006 at 11:06:34 AM
MMWenaas@gmail.com


From Linda Schwefel,
Deb and Jay, what an incredible evening on Saturday. The love and support that filled the room was like nothing I've ever seen. You are both so strong and courageous, must be where Josie gets it. I have played Josie's song countless times (and sobbed with every note), what an amazing tribute to your beautiful daughter. We will keep the prayers coming, know that you are in our hearts always and not a day goes by without thinking of you all. Stay strong and keep the faith. Love Linda
Sent on Monday, December 11, 2006 at 1:09:13 PM
lschwefel@aol.com


From Tia,
Maryland

My prayers are with you and your family.
Sent on Monday, December 11, 2006 at 1:09:53 PM
venetiajordan@yahoo.com


From Jess W,
Crystal, MN

Josie you are in my heart and Prayers. You are a very strong little girl.
Sent on Monday, December 11, 2006 at 1:39:13 PM
Jessnjackson@yahoo.com


From The Blood Family,
Tampa, Florida

Josie and Family,

I am praying for all of you and will keep you in my thoughts.

Josie, You are a very brave little girl. You fight this sweetie and get better soon.

Sent on Monday, December 11, 2006 at 1:46:14 PM
bloodgrlak@yahoo.com


From Tammy Bishop,
Buffalo, MN

Josie,
You're a beautiful little girl! I want you to know that I'm praying for you and your family! Stay strong, God is with you!

Sent on Monday, December 11, 2006 at 2:31:23 PM
Tammylynnb2003@yahoo.com


From Shari,
California

Lord, I lift little Josie up to you now. Please have mercy upon her pain and suffering and offer her comfort in this time of trial. Please watch over Josie's family as well, give them strength and hope to see their daughter/sister through this disease and on to better days. Please have a guiding hand upon the souls, hearts and hands of Josie's caretakers. And for those that come in contact with Josie's journey through the media or internet, as I have, please humble our hearts...that we might be thankful for our health. In all these things I pray, In Jesus name...Amen
Sent on Monday, December 11, 2006 at 2:43:16 PM
Sorcha4sca@yahoo.com


From kelliann,
mascote,fl

I pray you are healed very soon...
Sent on Monday, December 11, 2006 at 5:26:11 PM
jsanchez262@cfl.rr.com


From Michelle Brunner,
Detroit Lakes

My heart goes out to your family. I have children myself and can't imagine what you are going through. Even though I don't know you, I truly feel for you and Josie. My thoufhts and prayers are with you!
Sent on Monday, December 11, 2006 at 7:34:49 PM
momuvtwo2002@yahoo.com


From Kathy Santini,
Plainfield, Illinois

To beautiful, little Josie...not a day will go by without you in my thoughts and prayers. Kathy in Illinois
Sent on Monday, December 11, 2006 at 8:18:46 PM
kalsan333@comcast.net


From Ann Schular,
Hello Josie and Family,
I have been reading your journey. You are sure one tough kid. Don't give up Josie!!! You have a lot of people praying for you. I am praying for you too. I miss playing dinosaurs with you and of course our fun squishy ball. When I come back to work which is January 9th, I will stop by to say hi and to show you pictures of my baby girl Madelyn Marie. I am thinking of you Josie. Merry Christmas!!!

Sent on Monday, December 11, 2006 at 8:42:17 PM



From Stephanie Blachowiak (Henry's teacher),
Brooklyn Park, MN

I'm am so touched by your journey, Josie! You are such a stong, brave young lady. You are a fighter and an inspiration to all of us who "sweat the small stuff". I hope you experience pain-free days soon. You are in my prayers.
Sent on Monday, December 11, 2006 at 10:17:36 PM
steblachowiak@edina.k12.mn.us


From Leigh Anne,
Maine

Good Morning Josie,

I hope you are feeling better today. The weather here in the big state of Maine is a little nicer today than it has been. The sun is shinning and the temps are going to be in the 50's! Just when you think winter has arrived. Caitlin is very excited for Santa Clause. She is hoping that there is a lot of snow for him and his sleigh!

We are thinking of you often and hope you feel better soon! Much sooner than later!

Love, Leigh Anne, Justin, and Caitlin

Sent on Tuesday, December 12, 2006 at 6:34:30 AM
supajut@msn.com


From auntie,

A humble request...it would be so wonderful to read the speach Deb made at the benefit, again. Any chance it could be included here? With Love (great), Respect (incredible), and Joy for Jose (always), Katy
Sent on Tuesday, December 12, 2006 at 12:57:07 PM



From Steve, Katy and Sam LeBarron,
Edina

Thank you for allowing us the opportunity to give something back to Josie this weekend as she has given countless things to the rest of us by example. Still in our prayers daily!
Sent on Tuesday, December 12, 2006 at 8:06:52 PM



From Caroline & Ed Gaiser,
Fresno, CA

Hi to you all, Deb,Chip, Trip, Henry, Evie & especially Josie. We were thrilled to see how well the fund raiser turned out. We were so sorry that, because of distance, we couldn't be there. You all have such a wonderful support system around you back there. It helps us out here to feel a little less anxious. You are all such an inspiration to us. We were so pleased to see that, possibly, things are turning the corner for Josie. We pray that they are. You continue to be in our prayers daily. With Love, Caroline & Ed
Sent on Wednesday, December 13, 2006 at 3:44:49 AM
c_gaiser@hotmail.com


From Lori,
West St Paul

I'm keeping Josie and your family in my prayers. She's such a sweet looking girl.
God Bless you all and Happy Holidays~
(I'm a friend of Megan's)

Sent on Wednesday, December 13, 2006 at 9:18:56 AM
ljhansn@pressenter.com


From Joey Benedict,
Albany, Oregon

My dear freind Bev Holsing asked for me to log onto your web to add Josie to my prayer list. I believe you know her daughter Leslie or she is a nurse in the hospital. I have watched Josie's progress daily and am impressed with your reports Dad. Your doing a great job! My heart goes out to Josie and the whole family. I can't imagine what you are going through. Josie is in my daily prayers and God is with her I know. What a precious, brave little gir.
Sent on Wednesday, December 13, 2006 at 2:30:12 PM
joeykb@proaxis.com


From Olivia Diaz,
Illinois

I heared everything went smoothly at the party. Well I wanted to tell you there is a specialist in Chicago who has studied this disese for years. She is the top doctor and I didn't know if you knew anything about it. I deeply hope this helps you out.

Olivia Diaz

Sent on Wednesday, December 13, 2006 at 6:47:31 PM
diazoe96@hotmail.com


From The Bowlby's,
edina

Josie-
Each day as we read more of your story, we realize what an amazing girl you are. Keep up the fight! We have you in our thoughts and prayers!
With love,
The Bowlby Family
(Grace is in Henry's class)

Sent on Wednesday, December 13, 2006 at 8:35:46 PM
mbowlby@comcast.net


From Jo Hendrick,
Thomasville NC

I am a pediatric nurse with 21 years under my belt I received an email from a friend in TX with a part of your blog and Pics of Josie--my namesake! My heart goes out to her and your family. I am emailing everyone I know and asking for prayers for Josie and your family. I recently went through something like this with my husband. He is 49yrs old and the MDs expected him to spend the rest of his life in a NSG home d/t muti system failure set off by a minor surgery(long story) but he is home and doing well. Prayer is a very strong weapon(if you will) against these horrible challenges we face. I want you to know that your family is in the prayers of many people here in NC now. I will be reading your entries daily and praying for good news.
Sent on Thursday, December 14, 2006 at 8:19:44 AM
johendrick@yahoo.com


From Laurie M,
Edina

My mom just told me about Josie's article in the Richfield Sun. She knew we'd be interested in it because my daughter Kelli also had dermatomyositis. She was treated for two years starting when she was 6 years old by Dr. Vehe. (He's the best!) After reading her article I went to Josie's blog and it was startling to see how much we have in common! Up until last year, we were regulars at Fairhills for 6 years. We also attend CPC, and when I looked you up in the CPC directory, found that my parents live less than a block from you. I wonder how this awful and extremely rare disease can affect BOTH of our little girls. Kelli's disease was much less severe than Josi's, and she is now 15 and completely healthy. We pray for the same outcome for Josie. Thank you for sharing your difficult journey. We will be following Josie's progress, and know you are all being lifted up in prayer by our family.
Sent on Thursday, December 14, 2006 at 9:13:38 AM
Lauriekm@comcast.net


From Christy Reynolds,
TX

Josie- I thought you might like to call Santa Claus. Here's his phone number 1.800.972.6242. He counts down the 12 days until Christmas. There's a different message each day!

Merry Christmas Josie!

Christy and Natalie(dx2005)-TX

Sent on Thursday, December 14, 2006 at 11:18:19 AM
Richard.Reynolds13@Verizon.net


From Michelle Darr,
Blaine, MN

Adams family,
For the past 2 weeks I have been reading your journal every day. Josie- you are an amazing little girl. I have your brother, Henry in my PE class at Concord and he gave me a bracelet today that says "Joy for Josie". I will wear it everyday and pray for your recovery.

Sent on Thursday, December 14, 2006 at 1:02:47 PM
micdarr@edina.k12.mn.us


From Maria Vetsch,
Virginia

Hi Deb and family,

I have been reading up on Josie's progress. Celebrate those small signs of progress when they happen. Andrew has had many of the same medications for extended periods of time. We had many of the same worries -- today Andrew is 11 years old and no one would ever know that he endured the months/years of medical issues that he did between the ages of 2 and 5. I have every hope that Josie will make it through this - especially with having you and Jay there to get her through it. Love and prayers,Maria

Sent on Thursday, December 14, 2006 at 1:47:20 PM
mariavet@cox.net


From Team Jacobs,
Mason City, IA

God Bless you and your family. I see that you have an amazing group of supporters pulling for Josie's recovery. I recently stumbled onto your website, and over the course of 2 hours I read your complete weblog of Josie's ordeal. Wow, in that short period of time, Josie crawled into our family's heart. I have cried for her pain, and also for yours. Like you, I am a parent of 4 children (age: 6, 4, 2, 1) and I know how hard the daily grind is of raising 4 healthy children, but you folks have added another dimension to parenting...super-juggling.

My children ask many times a day about Josie's recovery. They have looked at her pictures on the weblog, and have colored her pictures of Dora because it's obvious that girl is a Doraholic! We would love to send some of our creative art if possible...just let us know the address.

There are, I'm sure, so many complete strangers to you in this guestbook, and yet we are all linked by one common thread...your daughter, Josie. She is an inspiration to me and my family, and I hope I can infuse some of her strength and character into my life.

Josie has been added to our preschool, church, kindergarten, and night time prayer lists. We will continue to watch her progress, and pray for her healing. How wonderful it would be to someday see a picture of Josie on a swingset, or swimming at the lake!

One last thing...Your accounting of Josie's daily fight is remarkable. You are very candid, and have a gift for telling her journey through this sickness. I find myself logging on first thing every morning to see what the previous day held for your family. Even in the midst of this trial, you tell her story vibrantly.

We would love to help your family in some way, but are not sure of your needs. Please let me know how we can help.

Every day, we will be watching Josie's progress, and praying for her.
Also praying for your strength to get Josie through this.

Sincerely,

Brenda Jacobs

Sent on Thursday, December 14, 2006 at 3:55:46 PM
rb_jacobs@yahoo.com


From Katie Larson,
St. Paul

I just wanted to let you know that Josie and is in my thoughs and prayers each day. I am a third year medical student who did the pediatric GI rotation back around halloween. I learned a lot about Josie through the four weeks I was on the rotation, but continue to learn each day. I want to say thank you for keeping up the blog. I have learned more from it than any textbook could teach someone. I have learned not just about dermatomyositis, but even more about what it is like to be a patient and to be the family of a patient. This is something that cannot be taught in the classroom. Josie is a fighter and will continue to be in my thoughts and prayers, and I know that throughout my career as a physician (hopefully as a pediatric GI doc) I will always remember her as an inspiration. Thank you and keep fighting -Katie
Sent on Thursday, December 14, 2006 at 5:53:54 PM
lars2698@umn.edu


From Judee Dufresne,
Lindstrom Mn

I hope you all feel lifted up in prayer, because Josie is on my mind frequently. I pray Psalm 91 over your whole family.
Sent on Thursday, December 14, 2006 at 10:04:04 PM
dufresnedesign@frontiernet.net


From Jamie & family,
Honolulu

Hooray for the saucy attitude! If you're gonna have attitude, you gotta show it when you're 4! Aloha!
Sent on Thursday, December 14, 2006 at 10:19:55 PM
vacoba@hotmail.com


From Holly Thiede,
St. Louis Park, MN

Sounds like Josie had a good (crabby!) day today!

Hoping there are many more to come!


Sent on Thursday, December 14, 2006 at 10:33:17 PM
HandThiede@aol.com


From Kris,
Richfield

COOL! Crabby is good! The party was AMAZING!! The only thing missing was Josie--so when the time comes-we are going to throw a big party for Josie so she can boss us around and go on the jumpie thing FIRST!
The response to this story is truly heartwarming! The community of friends, family and complete strangers coming together to help out was a beautiful thing to see. Josie-you sure have a big fan club out here.
For those of you at the party and those of you sending wishes and donations from far off lands--here is the link to the photos that I took at the party. ENJOY and I hope these bring a smile to your corner of the Josie fan club map!

http://picasaweb.google.com/teamfridayPHOTO/JOYForJosiePARTY

(Make sure to copy and paste the whole string of letters!)

Sent on Friday, December 15, 2006 at 12:08:22 AM
kris@teamfriday.com


From Stephanie Blachowiak,
Edina

Hi Adams Family,

I read your updates every morning. This morning, I was so happy to read that Josie was crabby yesterday!! It's great to hear that she's showing signs of her old spunky personality. That determination to get just what she wants (lots of water)demonstrates what a fighter she is. I'm sure that fighting spirit has been serving Josie well throughout her adventure! I pray for continued progress and that Josie's able to move to another floor in the near future.

Even though I've never met Josie, I hope that she can someday come to visit us here in 2nd grade at Concord. All the kids here in our class are thinking about her and sending good vibes your way. We're all wearing the "Joy for Josie" bracelets that Henry brought.

Keep fighting, Josie!!

Stephanie Blachowiak

Sent on Friday, December 15, 2006 at 8:07:21 AM
steblachowiak@edina.k12.mn.us


From Vicky "vix" Risken,
Eden Prairie

Deebers, Jay and Josie,
I want you to know I am thinking of you always - I am so impressed with your strength Josie and all of your fortitude and patience. You guys are so inspiring. I am holding you in my heart and soul always. love, Vicky

Sent on Friday, December 15, 2006 at 9:37:02 AM
risken1@yahoo.com


From The Himes',
Richfield

Hi Adams',

We think about you guys a lot and wish we could've made it to Josie's big party. Sounds like it was a great time. We're amazed at Josie's strength and grit. What a girl she is. Good to see she's crabby now too! :) We hope for the best for all of you.
Love,
Lisa, Adam, Jack, Sam and Lou Himes

Sent on Friday, December 15, 2006 at 11:03:17 AM
lisa_himes@hotmail.com


From Maria Johnson,
Elk River

Jay and Deb,
I'm following your updates daily and just wanted you to know that I'm sending prayers and love your way. It seems like the best way to be dealing with this is tackling it head on, with full grit and participation - which is what you are doing. Your learning and writing of everything is so powerful (for us reading it) I'm hoping it's providing you the same source of strength - conquering each small issue as it comes up. I've read all the entries, and there is a lot of love and energy flowing your way - thank God for giving us all the capacity for changing circumstances through our willpower, love and compassion. My kids (7 and 4) say prayers for Josie at night, and I say a special prayer for you and Deb: God Bless you today and everyday, and continue giving you strength and hope - even when you feel exhausted.
Love,
Maria (Schwefel) Johnson

Sent on Friday, December 15, 2006 at 12:44:03 PM
mariaj@sherbtel.net


From Holly Thiede,
St. Louis Park, MN

Just checking in to see how Josie's day is going. Evelyn passed out the "Joy For Josie" bands in class today, and we are all wearing them!!!
Sent on Friday, December 15, 2006 at 2:57:21 PM
HandThiede@aol.com


From shirley bostick,
boynton beach,fl

Sorry to hear about your daughter. My name is Shirley Bostick, my daughter passed away from dermatomyositis, on October 29, 2006,she was 9 years old. Her name was Pricilla Bostick, she was at Joe Dimaggio hospital, in Hollywood Florida.
Sent on Friday, December 15, 2006 at 6:20:10 PM
louisefowler@bellsouth.net


From Jacquie Schmitz,
Victoria, Mn and Naples Fl

Dear Deebers and Jay,
Jeff Schmitz is our son. We met you at their wedding and have started to look at the blog. We had not known much about Josie.
She and you are our in our thoughts and prayers constantly. May the God of all comfort and mercy help you face these difficult days. Take refuge in Him. God bless you all six. Jacquie and Norm

Sent on Saturday, December 16, 2006 at 5:17:49 PM
jacquieschmitz@yahoo.com


From Bailey,
Cottage Grove, MN

Dear Josie,
My name is Bailey. I also have Dermatomyositis (diagnosed Sept 2006). I call it JDMS (Juvenile DermatoMyoSitis). I am 6 years old. I have three older brothers. I am the youngest sister just like you. Keep up the good work on walking. I understand that it is hard to do. I have prayed for you and I will pray for you tonight. I would like to hear from you. Please send an email. My Mom and Dad's names are Michele and Eric. Mom helped me with this note. I hope you feel better soon. Sincerely, Bailey

Sent on Saturday, December 16, 2006 at 6:40:20 PM
mcraton@com cast.net


From Lauren Murray ( 3 year old friend),
Carver, MN

Josie,
We are thinking of you and praying for you. It sounds like you are on the road to recovery. We pray that this trend of healing continues. Hugs and Kisses, Lauren Murray & Family

Sent on Saturday, December 16, 2006 at 11:17:56 PM
jenette_g@hotmail.com


From Kay Stalcar,
Richfield

Hi Josie,
It was great to see the new picture your dad took yesterday, so fun to see you up and smiling. We missed you at your party last week, can't wait until we can have one with you there! Jay and Deb it was great to spend time with you on Friday...
Kay

Sent on Sunday, December 17, 2006 at 9:59:31 AM



From lundski's ,
us

Dear Josie, we are so please to read that at least for the monent you are doing much better...we are sorry for all of your pain and we are hoping that you will be getting better and better every day. Do you remember the ice rink that Daddy built last winter...he is doing it again! Josie, we don't have any snow yet... and only a few days until Christmas...what would you like Santa to bring you? Santa know's where you are...so are you being naughty or nice? We are anxious to see you. We love you, Grandpa and Grandma Lund
Sent on Monday, December 18, 2006 at 8:33:48 AM
lundlink4u@msn.com


From Rita Juran,
St. Paul, Mn

Your family is amazing, especially Josie. Thank you for sharing your couragous story. Your family is an inspiration to me. Josie is an incredible hero. Peace and love, Rita Juran
Sent on Monday, December 18, 2006 at 9:42:35 AM
rita.juran@ci.minneapolis.mn.us


From Sandy and Chuck Hoyer,
Richfield, MN

Ever since Christ the King I've been following Josie's progress. Chuck and I were responsible for the snow cone machine. I wanted to let you know you've got more prayers here from fellow Richfieldites. Bless you all.
Sent on Monday, December 18, 2006 at 11:03:41 AM
sandy@lightntrax.com


From Lynn Gabriel,
Victoria,MN

Dear Josie,
I try to address these to you so that as you grow up you will know that this was all for you. Miracle. You are truely a miracle in every sense of the word! The Lord ahs been doing his work on you and since the Joy for Josie event you have received a miracle in healling. I wish I could remember where this verse is in the bible at this moment, but i do remember the verse: "Where two or more are gathered in His name..." well there were more than 2...700 ish! That many people, faith believing, the Lord is answering our prayers in a big way! Keep the faith Josie, He is with you and loves you and so do MANY people whom you know and love and those you don't know and have never even met. Now we all say 'thank you'. I am so glad that you are feeling a bit better and we are just one step closer to having that train blow his whistle in honor of you! You keep following Dr.'s and Mom and Dad's orders as they all try to help you on the healing path. You are doing awesome!
Love and Hugs
Blake, Faith, Lynn, Stan

Sent on Tuesday, December 19, 2006 at 12:53:43 AM
lrshadle@earthlink.net


From Joe Sarafolean,
Hastings, MN

I am praying for Josie and your family and I pray that the doctors can cure this disease and get Josie as soon as possible. I was at the Joy for Josie event (with the St. Thomas/Visitation students). I was proud to spend time with so many people who support the cause. I will continue praying and I wish you and your family a blessed Christmas.

Sent on Tuesday, December 19, 2006 at 1:42:45 PM
joesarf1@yahoo.com


From Mira,
Canberra

Hi Jay
I just have to mention that the daily and weekly steroids ma be the cause of Josie's surgery not healing. I was surprised to see she was still getting them as they are notorius for preventing healing. Our son's muscle biospy 'dehisced' ie, split open to the bone and took 3 months to heal (from the base of the wound up). It was not until his prednisolone was down to 15 mgs per day that it started to heal. Cant they give Josie methotrexate instead of the steroids? I know its catch 22 but especially with the whipple surgery coming up, I think assisting (or not preventing) healing may be the priority.

I dont wish to add to your concerns but I am puzzled why the doctor's have kept Josie on the steroids and seemed to have 'crossed their fingers' in a wish that she would heal anyway; healing certainly didnt happen with our son while he was on steroids. Kind regards,
mira

Sent on Tuesday, December 19, 2006 at 10:41:50 PM
lesmira@bigpond.com.au


From The McKeown family,
Richfield

Josie, I was thinking about you so often today. I was looking throught old photos from over a year ago when you came along with all of the adults to Jill's cabin in Nisswa. All of us grown ups got the chance to spoil you and enjoy that special time with you. It made me so sad to think you have been battling for so long and that your family has, too. God's timing is perfect but when we feel down we wish He'd hurry up and give us an answer. He sure is giving us an example of how to live along the way. Keep up the fight Josie! We all love you so very much!
Sent on Wednesday, December 20, 2006 at 1:23:02 AM
lesliemckeown@comcast.net


From Leslie McKeown,
Josie-it's me Leslie again :) I have to tell you a funny story. Sam and I were looking at your webpage like we do every day before school to check up on you. We enlarge your little pictures and smile and talk about you and how funny you are. The other morning Sam disappeared for awhile and when he came back he had painted his thumbnails (badly at that). I didn't get it at first and I told him he needed to remove the polish before school. He said he couldn't because when he folded his hands to pray at chapel that day in school he would see his thumbs and remember to say a prayer for Josie. We're all praying for you, painted fingernails and all! Love, Leslie
Sent on Wednesday, December 20, 2006 at 1:30:53 AM



From Michelle Darr,
Blaine, MN

Hi Josie and family,
I woke up this morning and read your journal and I have had you in my thoughts every since. You have touched my heart and I can't stop thinking about you. I pray for your recovery and look forward to seeing you come to Concord.

Sent on Wednesday, December 20, 2006 at 2:02:28 PM
darrboys@aol.com


From Laryssa,
Beacon,NY

Josie and Family~
Everyday, I follow your courageous journey and battles. I cry, smile and find myself feeling angry at times, that a beautiful young girl has to endure so much.
My father was diagnosed with Dermatomystits and I clearly remember his battle with the flare-ups, meds etc..and he was a grown man (62).
I have forwarded your blog on to many..the more prayers the better. SO many are pulling, praying and thinking of you and your family.
I tucked my three young sons in tonight and hugged them tighter than usual.
You are all in my prayers and I will be following your journey everyday.
Thinking of you,
Laryssa & family

Sent on Wednesday, December 20, 2006 at 7:28:02 PM
galcj3@optonline.net


From Vicky,
Eden Prairie

Deebers, Jay and Josie,
What a picture, little sweetie, heartbreaker. I am so impressed by your love, caring and patience for each other as you press through this - I find myself being able to stay calm in the storm and so much more patient myself by thinking of you all. You are on my mind always, I am praying for you and wishing I could lift some of Josie's pain. You are so amazing, all my best, love, Vicky

Sent on Wednesday, December 20, 2006 at 7:52:03 PM
risken1@yahoo.com


From Janet Meliti,
Anchorage Alaska

Hello there Josie Iam so sorry hear from the newst postings that you are feeling awful and things are really quite serious for you again. It sounds like from reading your history that things have never been really good for you so sorry Josie.

Ican tell and see from your pictures and postings that you are so miserabley not well. Iso hope you can get to and feeling some what better soon. Underneath it all you can tell by the pictures that you are sweet pretty little girl.

Janet Matthews Mom from Prunebellysite www.prunebelly.org.

Sent on Thursday, December 21, 2006 at 2:25:53 AM
jmeliti11@hotmail.com


From Stephanie Blachowiak,
Edina, MN

Hi Josie and Family,

I am so sorry to hear that things haven't been the best these past few days. I read your weblog first thing every morning and keep you in my thoughts all day. I laugh at your Dad's funny words and cry when I imagine all that you go through each day. You have endured so much. I just wish all those smart doctors and experts could solve your mysterious case. I'm sure the answers are right around the corner.

Don't forget, when you get better, you have to come visit us in 2nd grade. We talk about you every day and hope that you are healthy soon.

Take care and keep fighting!!

Sent on Thursday, December 21, 2006 at 8:19:22 AM
steblachowiak@edina.k12.mn


From Amee LiaBraaten,
Edina, MN

We have continued to have you as our daily prayers. We are always in awe of your strength and love. Know your story reaches all of our hearts.
Sent on Thursday, December 21, 2006 at 8:53:54 AM
amee@liabraaten.info


From shirley bostick,
boynton beach,fl

My name is Shirley Bosick, i accidently came across your web site early in the week and i been thinking about your daughter Joise. My daughter Pricilla suffer with dermatomyositis for over two years. She was seven years old when diagnois with the rare disease. Pricilla probably had the disease about two to three months before actually hearing a real name to her symptoms. The doctors at Joe Damaggio Children Hospital, believe the disease could have started about around the time of July 01, 2004. We where told in like the middle of September 04. The doctors at first said vasculitis,at that hospital. We took Pricilla to three hospitals,her doctor,and dermatologist before she made it to JDCH. Everyone of the doctors where diagnois her wrong and treating her for the wrong things. After going to one hospital three times, they finally had her ship to JDCH. Pricilla did pretty good at first,after the first few treatments with chemo-therapy. Later on she began to get weaker and unable to move. I am calling it chemo, but it is the same medicines your daughter is taking or similar. I was looking over her old discharge papers, today and how many times she was in and out of JDCH. Pricilla had several surgeries and had duodenal perfuration. She had stomach complications. Pricilla was very strong, had a great attitude, well like by all the staff members. She was a fighter, was never sick until we received this diagnois. Pricilla was released from the hospital the last time in August 06. Pricilla had to have twelve hours a day nurse at the house with her she had got that weak. This last time Pricilla was home for about a month before complaining about severe stomach pain. We took her back to the hospital JDCH again. She past away on October 29, 2006, she never return home not to live. It is a lot more to this story in order to tell someone all of it i would have to write a book. I can tell you this much Pricilla suffer before she die, she had to take a lot of pain medicines,off and on the ventilator. She had severe dermatomyositis, she would get better but their would also be setbacks. Pricilla's father was their with her 24 hours a day seven days a week, he left only maybe a few times and only for a few hours. He was her nurses, they did not have to change one diaper or do her bandages he did it he did a lot. I the mother was their on weekends with the other two sisters, We where her entertainment she love movies, lots of movies. I believe the medications is what hurt Pricilla, she was doing find at first able to walk move around just a little weak. The medications damage my daughter's stomach. The doctors don't have much experience dealing with this disease. Most only had seen this disease probably onces in their life. I know how you feel. I had to watch my daughter suffer, couldnot do anything about it at all. We are all suffering right now we are in pain, in shock, and total disbelief, i still can't believe she has past. The hospital where Pricilla Damarise Bostick, was at is Joe Dimaggio Children Hospital, i do not know if the doctors where your daughter at could ask questions from the hospital where my daughter was. I wish your daughter only the best, and i also believe that she is not as sick and weak as Pricilla was least at the end of disease. I also believe she has great family support, and lots love.
Sent on Thursday, December 21, 2006 at 3:19:22 PM
louisefowler@bellsouth.net


From Sarah Madsen,
Eau Claire, WI

If God brings you to it, he will pull you through it!

Saw that and thought of you guys... keep trucking!

Sent on Thursday, December 21, 2006 at 6:53:45 PM
madsensl@uwec.edu


From Kathy Weiler,
Minneapolis

JOsie - we check in on you every day. Keep fighting little girl - I just know one of these days we will check in and it will only be good news!!! Our thoughts, prayers and hopes are with you...we think of you often and as my friend likes to say we send "good vibes".

To your mom and dad hang in there we can only imagine how tough this is on you adn your family..Let us know if we can help in anyway. The Weilers (A concord Family from Minneapolis)

Sent on Thursday, December 21, 2006 at 7:53:52 PM
Kathy.weiler@woodburyfinancial.com


From A friend,
Dear Jay,
Thank you from the bottom of my heart for all the work you do to keep us informed with Josie's condition- her day to day ups and downs. However, I understand that as a father and a husband you have many family-man needs to meet... take a break from the website! Update us every other day. We appreciate it, but don't let it keep you boggled down.
James 1:2-4

Sent on Friday, December 22, 2006 at 12:19:11 AM



From Connie Auer,
South Dakota

Josie & family,
Everyday my husband & I pray for a cure for the rare disease of jdm. Next we pray for Josie's healing & daily grace for her family.Then we pray for our own precious daughter & her battle with jdm. I just wish Josie's doctors would consider taking her off the immuno-suppressants for a few weeks while her "insides" are healing. Pancreatitis can be a result of the immunosuppressants. We are praying for divine wisdom for the doctors working on Josie. God bless you all & take away the pain & vomiting from Josie.

Sent on Friday, December 22, 2006 at 11:15:37 AM
cauer@spearfish.k12.sd.us


From jackie krainz,
ct

Hi Josie,

Been reading your blog every day -- just wanted to know if you recieved the doodle bear and card we sent you for your birthday-- Merry Christmas Josie--i'm sure Santa will be visiting you soon

The Krainz family

Sent on Friday, December 22, 2006 at 8:17:52 PM
jckrainz@gmail.com


From Judee,
Lindstrom

Thank God for the improvements, and I am praying you get to move tomorrow. For Christmas more than anything I pray for Josie to completely heal and be moving home. In Jesus name, Amen
Sent on Friday, December 22, 2006 at 11:52:55 PM
dufresnedesign@frontiernet.net


From Britta Bloomquist,
Virginia, MN

Hi. was just surfing the web and came upon your blog. I am 18 and am suffering with Spondyloarthropathy, maybe Sjogren's Syndrome, and now am headed off to the U of MN on Jan 9, for testing for Multiple Sclerosis. Dr. Vehe is also my doctor!!! I see him at Gillette though! I have been seeing him for about two years now, and he is WONDERFUL! I love your blog, it is so detailed esp with the pictures. I hope Josie feels better soon. It is tough to be in pain, but I can't imagine what it is like for someone at such a young age. God Bless and Merry Christmas!
Britta Bloomquist

Sent on Saturday, December 23, 2006 at 12:29:53 AM
bitts75@hotmail.com


From Jenette, Patrick, Lauren & Evan Murray,
Carver,MN


We are delighted that Josie is improving. She is such a fighter. We pray she will be home with her family soon. We want to wish Josie and family a Merry Christmas.

Sent on Saturday, December 23, 2006 at 3:35:07 PM
jenette_g@hotmail.com


From Holly Thiede,
St. Louis Park,MN

Great news....moving to the floor tomorrow! Standing (for 5 minutes) while doing arts and crafts...more good news! We will keep our fingers crossed! Yeah Josie!
Sent on Saturday, December 23, 2006 at 3:46:14 PM
HandThiede@aol.com


From Stephanie Blachowiak,
Brooklyn Park

Hi Josie and Family,
After I read your good news this morning, I had a smile on my face all day. I'm so happy to hear that you're feeling a bit better. It is great that you're moving to another floor - just in time for Christmas! I'll be praying that everything goes smoothly. Keep fighting, Josie!!

I hope you all have a Merry Christmas!
Stephanie Blachowiak

Sent on Saturday, December 23, 2006 at 8:56:55 PM
steblachowiak@edina.k12.mn.us


From Lynn Shadle Gabriel,
Victoria,MN

Dear Josie and family,
Wishing you a Merry Christmas! I pray that you receive a miracle on this miraculous day!. Great job doing your physical therapy! You sure get some cool visitors in the hospital..vikings, Goldy, and then Santa?! They all came to see you?! You are a very special girl Josie! Keep up the fight, you are doing awesome. We are sorry that it is no fun to feel crummy but you sure are smart, strong and beautiful, and precious! We love you and pray for you.
Remembering Jesus' birthday today. Merry Christmas!
Love,
Stan, Lynn, Blake , Faith and Dakota(the monster)

Sent on Sunday, December 24, 2006 at 12:20:52 AM
lrshadle@earthlink.net


From lcecil,
bloomingotn

merry christmas josie,! i love your new room!! wow, now you can watch dora and your dad can watch football? or whatever. it is awesome. hope santa surprises you and that you continue to feel better.much love, lynne
Sent on Sunday, December 24, 2006 at 7:14:06 AM
lceciljohnson@yahoo.com


From Anne Coblentz,
Novi, MI

Merry Christmas Josie, What a great room. And Santa came to visit you!!! How very exciting!! I want you to know that we are thinking of you and wishing you and your family a very Merry Christmas. I am also hoping the New Year brings you a speedy recovery. You and your family are in my prayers.
Ray Alexander' niece, Anne

Sent on Sunday, December 24, 2006 at 7:54:48 AM
lcoblentz@twmi.rr.com


From Michelle Darr,
Blaine

Josie and family,
Merry Christmas!!! What a room. I was showing my 6 year old and my 4 year old the picture of your room and the only word they could say was "COOL". We pray for you and your family every day and we hope you have a joyful holiday.

Sent on Sunday, December 24, 2006 at 8:08:14 AM
darrboys@aol.com


From Tracy Caraker,
Spr

Hooray for Josie! Wow, you've got all the cool stuff! Nice TV :) I'm glad to see you and your parents in a more comfortable setting. Get better FAST little one! We're all pulling for you! Much love and Merry Christmas!
Sent on Sunday, December 24, 2006 at 8:15:44 AM



From Tracy Caraker,
Spring Hill, FL

Hooray for Josie! Wow, you've got all the cool stuff! Nice TV :) I'm glad to see you and your parents in a more comfortable setting. Get better FAST little one! We're all pulling for you! Much love and Merry Christmas!
Sent on Sunday, December 24, 2006 at 8:16:01 AM
tcaraker@tampabay.rr.com


From The ,
Merry Christmas Josie!! We are so happy that you have moved out of ICU into that super cool room!! Hopefully we can come up and visit you soon! I bet Santa is going to want to take a break and hang out for a while tonight with you there!

Lots of love
Lisa Rich Lucas and Isaac!!

Sent on Sunday, December 24, 2006 at 8:26:03 AM



From bill,
plymouth minnesota

We wish all of you the best Christmas ever. Josie's move off the ICU is a big, postive step. Thanks for letting us join in the festivities at Joy for Josie. Josie remains in our thoughts and prayers.
Sent on Sunday, December 24, 2006 at 9:06:05 AM



From THE LUNDS,
US

WOW!!!WAY TO GO JOSIE!! MERRY CHRISTMAS WITH LOTS OF PRAYES AND HUGS FROM THE LUNDS. WE LOVE YOU AND OUR LITTLE FAMILY. TOM AND DARLENE
Sent on Sunday, December 24, 2006 at 10:43:21 AM
Lundlink@mac.com


From Leigh Anne,
Maine

Good for you Josie, a room fit for a queen and you certainly are. Merry Christmas Little Girl. We wish you all the Christmas miricles out there. Get better fast Josie! Can't wait to see you dance!

LOVE,
Leigh Anne, Justin and Caitlin

Sent on Sunday, December 24, 2006 at 1:13:14 PM
supajut@msn.com


From Katie Marshall,
Minneapolis

Congratulations on your fabulous new room!! How exciting! I can't even imagine how big Swiper must look on that TV screen! Merry Christmas to you all!

Love,
Katie & Lou

Sent on Sunday, December 24, 2006 at 1:28:53 PM
katiemarshall7@gmail.com


From Bev and Gene Holsing,
Aberdeen, S D

HI Josie,
We're Sam and Ben McKeown's Grandma and Grandpa! We check on you every day and keep you in our prayers. We're glad you are in a new room. It looks super!
I bet Santa even knows where you are!
Have a Merry Christmas and a Happier New Year

Sent on Sunday, December 24, 2006 at 2:23:38 PM
bholsing@nvc.net


From Ellie,
UK

Wonderful news that you made it onto the ward for Christmas Eve - I stumbled across this blog when another blog I read mentioned Josie, and since then have checked every day to see how she's doing. Thoughts and prayers with you all, God bless and best wishes for 2007, I hope it's a much easier one.
Sent on Sunday, December 24, 2006 at 2:36:21 PM



From Caroline & Ed Gaiser,
Fresno, CA

Dear Josie,

We're so happy that you've moved out of the ICU and to the "floor." You're on your way back! Our prayers continue to be with you. Merry Christmas and love to you and all the family.

"Aunt Caroline & Uncle Ed"

Sent on Monday, December 25, 2006 at 2:28:14 AM
c_gaiser@hotmail.com


From Leslie McKeown,

MERRY CHRISTMAS JOSIE!!! I am sure Santa Claus found you during the night because as I looked out the window at my hospital I could see Rudolph's red nose and Santa's sleigh flying over your hospital! I thought of you so much tonight and hope you have a great day-enjoying your family and all of your Christmas surprises. Now to hurry home and see if Santa left anything in his bag for Ben and Sam... Love you sweetie! Leslie
Sent on Monday, December 25, 2006 at 6:24:04 AM
lesliemckeown@comcast.net


From Judee Dufresne,
Lindstrom

Merry Christmas, I thank God you have been able to move to an awesome room, I still am praying that you will receive a miracle from God and you will be home very soon, Praise God.
Sent on Monday, December 25, 2006 at 4:44:24 PM
dufresnedesign@frontiernet.net


From The Graffts,
Chanhassen, MN

Josie, Deb & Jay and family;
Merry Christmas! Hope your daughter and family had
a nice Christmas. May God be with you. Our thoughts
and prayers are with you.

Sent on Monday, December 25, 2006 at 5:21:44 PM
grafft6726@earthlink.net


From gigi,
fraser

Merry Christmas Josie, Deb, Jay and the rest of the gang!
Wow, What a wonderful Chiristmas present you got!, your new room really rocks!! How cool to have that fancy pants room! I'm so glad you got to leave ICU and that you are feeling better (most of time). Eda and I hope you are feeling well enough for a visit real soon. Probably you will have a busy room with your brothers and sisters home on holiday vacation. Lots of kids at fraser will not be in school this week but Eda and I will work Wendsday -Friday. Maybe we could visit you this week or else next week- please have your mommy let us know when would be best. You will have to show us how great your favorite movies look on your new T.V's. xxo Gigi and Eda

Sent on Monday, December 25, 2006 at 5:35:33 PM
gigik@fraser.org


From Kris, Jill, Trigve and Annika,
Richfield

Merry Christmas to all of you!
A gift you have given all of us out here cheering for you is the gift of appreciation and perspective. Everyday you help us remember what is truly important in this world.
Keep up the healing Josie! We really really really want you to feel better.

Sent on Monday, December 25, 2006 at 7:08:56 PM
kris@teamfriday.com


From ,

Hi Josie!

We know Santa was very good to you - you've been a wonderful and brave little girl this past year.

We hope you and your family had a great holiday.

Keep up the good work - you'll be home in no time -

Love,

Bob, Sarah, and Jillian Arnold

Sent on Monday, December 25, 2006 at 10:37:33 PM



From Jamie & family,
Honolulu

Merry Christmas Josie and family!!! Glad to see you've been "upgraded" to a sweet suite! And just in time for Christmas. When Jamie first presented with dermatomyositis it was during Christmas time. Jamie's first Christmas was spent moving from the ICU to the children's floor. Nothing like spending time in the ICU to really appreciate the precious GIFT of life.
Sending lots of love and prayers your way, Jamie & family

Sent on Tuesday, December 26, 2006 at 12:03:04 AM
vacoba@hotmail.com


From Dawn ,
prior lake

Merry Christmas and I will send you " Good luck" for the new year.
Things will start to turn around and be peaceful for all. Love Dawn (the groomer from SPH)

Sent on Tuesday, December 26, 2006 at 1:46:29 AM
ibdawn@aol.com


From Brad,Cheryl,Missy,Jack and Chance,
Richfield, MN

Dear Josie, Evie, Henry, Trip, Deb and Jay,
As always, we are praying for healing and strength for Jo Jo, she has endured so much. She is an amazing girl and you are an amazing family. Jay, thank you for letting us glean some of your spirit from this blog. Your endurance
has reminded me of a marathon... ( and we all know how fond you are of those, and that you end it with flying colors! ) you told me once that God has blessed you with a good set of knees...keep up the good work. We love you guys.

Sent on Tuesday, December 26, 2006 at 10:23:36 AM
rynersonelectric@yahoo.com


From Kay Stalcar,
Richfield

Merry Christmas Jay,Deb,Trip,Henry,Evie & Josie,
It sounds like you had a very nice Christmas morning. Josie your new room looks great! I am so glad you were able to move. I pray that you guys will soon be able to take Josie home. Have a great New Year!
Love, Tony,Kay,Jeremy,Derek & Nicole

Sent on Tuesday, December 26, 2006 at 11:16:07 AM
kstalcar@cojlbc.org


From Brad Melby,
East Bethel, MN

Hello Josie & family,
We are holding you up in prayer that you will be healed and free from all pain. We pray often and plead that the Lord will heal - in His name.
Loving you all from afar.
The Melby's (Brad, Connie, Trenton, Alexa, Sondra)

Sent on Tuesday, December 26, 2006 at 1:08:32 PM
bradley.l.melby@ampf.com


From julie kunselman,
punxsutawney, pennsylvania

i think about josie all the time. my daughter was dx'd with jdm on sept 24, 06. it is so hard to see children go through something like this. they are supposed to be running around playing and having fun not just sitting around because they can't move. i hope that she makes a turn around and come home soon. i will continue to think and pray for her.
Sent on Tuesday, December 26, 2006 at 1:53:28 PM
julied@windstream.net


From Heather (Schmitz) Larson,
Edina, MN

Hi Deebers and Jay,
Jeff Schmitz is my brother. We met some time ago. I actually first learned about Josie from our friends the Pearce's, Brad and Sue. Although, I didn't put the connection to you, I was just praying for a 4 year old girl, Josie. I have a 4 year old girl, Kate. She spent Christmas and Christmas Eve sick, throwing up, coughing, etc. I know how much it hurts as parents when you see your little girl suffering. I can only imagine what this has been like for you and your family, day after day. Please know you and your family will be in my prayers and let me know if there is any other way I can be of help.

Sent on Tuesday, December 26, 2006 at 9:19:44 PM
heatherlarson3@yahoo.com


From Tom and Darle Lund,
us

Hi Josie...We are so glad you are up and doing some coloring...Maybe we should bring Sugar Bear...she would help you walk around. We love you, Grandpa and Grandma Lund.
Sent on Wednesday, December 27, 2006 at 8:37:03 AM
dlund@lssmn.org


From krissy,
eden prairie,mn

My family is praying for your family
Sent on Wednesday, December 27, 2006 at 3:38:16 PM
mamabear850@msn.com


From Judee Dufresne,
Lindstrom

I am asking in Jesus name for complete healing and for Josie to be home asap. I give God the glory for his answered prayer. By His stripes she is healed. I am so happy for the improvements. God bless you Josie.
Sent on Wednesday, December 27, 2006 at 7:28:53 PM
dufresnedesign@frontiernet.net


From Tom and Darlene Lund,
usa

Good news Josie...keep it up. Love you, Tom and Darlene, Sugar Bear and Smokey Bear
Sent on Thursday, December 28, 2006 at 9:49:10 AM
lundlink@mac.com


From The Wenaas Family,
right next door

Josie:

Your room looks so neat!!! Definitely promotes healing!! We continue to pray for you and hope that you'll be home soon!!!

Love,
Megan, Jason, Bridget & Molly Rose

Sent on Thursday, December 28, 2006 at 10:33:56 AM
mmwenaas@gmail.com


From jodi nelson,
Richfield, MN

Hi Josie and Family

I have been think a lot about you and your family this Christmas season. I have Dermatomysitis also. My is some what in remission, just a little active. I was 36 when I was diagonsised and nothing like what you are going through. My thoughts and Prayers are with you everyday. I would hope that things turn very soon. Take care.

Sent on Friday, December 29, 2006 at 12:25:26 PM
jjnelson@umn.edu


From Lynn Gabriel,
victoria, MN

I have tears of joy in my eyes as I read and see that you got outside Josie! Yea! Good for you , and good for you being strong enough to ask for what you wanted or hoped for-a little trip outside. You are one strong little girl my dear! I took Blake and Faith skating yesterday (since your dad mentioned that you are looking forward to a trip around the rink) and it was Faith's first time with her skates on-she is just barely 2 years old- and she can skate! Can you believe that?! I bed you were standing on your skates too when you were just 2. You girls need to stick together- you're tough! Blake sat out most of it, he isn't too fond of the cold. But I bet that fresh air felt like angel breath on you face. Keep up the great work.we love your new room by the way. We are looking forward to seeing it some day. Blake and faith have colds right now so we wouldn't htink of coming within a mile of you for a long time, but that's why we are sending you a note so that you know we are thinking about you and continuing our prayers!
God loves you in a special way.
Love Blake, Faith, Lynn and stan

Sent on Saturday, December 30, 2006 at 2:22:16 PM
lrshadle@earthlink.net


From Holly Thiede,
St. Louis Park, MN

I am so happy to hear that Josie got outside today!
She is one step closer to getting those ice skates on! :)

Sent on Saturday, December 30, 2006 at 10:20:48 PM
HandThiede@aol.com


From Dee Dee Woodard,
Las Vegas

What a wonderful picture of smiling faces to see on the website this morning! I pray that that smile of Josie's only grows as she gets better. My daughter Brooklynn (2 yrs old) and I pray for Josie every day and will continue to do so.
Sent on Sunday, December 31, 2006 at 9:13:52 AM
deedeelynn1@hotmail.com


From Janis and Roger,
Minneapolis

Dear Friends,

My morning ritual is complete now that I have read about sweet Josie and her family. I love the photo today of the "fabulous four". So many lives to be grateful for. You are all in our prayers every day as your journey to health continues. We will settle for nothing else! Have a blessed New Year's Eve whatever you do. You are loved and admired. Your pals, Janis and Roger

Sent on Sunday, December 31, 2006 at 9:36:54 AM
marti009@umn.edu


From Jen Weers,
What a wonderful sight to see this morning -- your family all together and smiles all around. I pray your 2007 brings healing and health. Happy New Year.
Jen and Julia Weers and family

Sent on Sunday, December 31, 2006 at 10:38:54 AM



From Madsen,
Richfield

Josie, Deb, Jay, Trip, Henry, and Evie,

HAPPY NEW YEAR!! We are praying 2007 is a year of less hospital and more healing. We plan on seeing you climb the backstops at the baseball games this summer!!!

Some may think the ball in New York is the greatest sight today but the picture of the four Adam's kids will be what we remember as special!

Happy New Year, The Madsens - Tom, Karen, Sarah, Emily and Paul

Sent on Sunday, December 31, 2006 at 12:24:01 PM



From Holly Thiede,
St. Louis Park, MN

It was sure nice to see the photo with all of the children together!

Happy New Year!

Sent on Sunday, December 31, 2006 at 9:17:56 PM
HandThiede@aol.com


From The Stattine Family,
Every morning we check out your website and the picture today has made our day!!!We pray for you and your family every day. Josie, you are a fighter and an amazing girl! Stay strong!!

Sent on Monday, January 01, 2007 at 9:45:03 AM



From Leigh Anne,
Maine

Happy New Year Josie And Family! May This Year Bring You Nothing But Positive Things In Your Lives!

Much Love,
Leigh Anne, Justin and Caitlin

Sent on Monday, January 01, 2007 at 10:41:09 AM
supajut@msn.com


From Deanna Welch,
Edina, MN

What a beautiful picture of the four kids, and what a blessing to be able to spend time together. Your family is in my thoughts and prayers daily. May God bring you healing and peace this year!
Sent on Monday, January 01, 2007 at 11:54:05 AM
deawelch@edina.k12.mn.us


From Mark, Shelly, Max and Sam Nelson,
Richfield

What a wonderful gift that room is. We are celebrating with you that all of you are able to hang out with Josie in a more comfortable setting. Josie, you are so amazingly tough to be able to have come this far with your adventure. We love you and are proud of your fighting Adams' spirit. Can't wait to see you biking around Richfield!
Sent on Monday, January 01, 2007 at 1:49:59 PM



From Marilyn Wilmot,
Bradenton, Fl.

A HAPPIER NEW YEAR, to the Deebers! We are glad to see Josie's siblings able to visit with her, and Josie able to venture out in the world(or at least the immediate area)!!Hang in there, everyone!
Sent on Monday, January 01, 2007 at 3:04:38 PM
Mcfwilmot@hotmail.com


From Britta Bloomquist,
virginia, MN

Hey Josie and Family~
Glad to read that you are feeling better and getting out and about and out of bed! I pray that the New Year brings you less pain and more joy to your life. Dr. Vehe is also my rheumatologist-he is a really great doctor. I have a lot of respect for him and for all the great things he has tried on me. I hope you have many more steps forward than back these coming days. Just remember to take one day at a time--that is my motto that I have to live by, as I suffer from another autoimmune disease called Spondyloarthropathy.
Love, Britta

Sent on Monday, January 01, 2007 at 9:36:44 PM
bitts75@hotmail.com


From Verla,
Sun City, Az

Dear Adams family, "HAPPY NEW YEAR 2007"!!!! What a way to start the New Year by taking a ride on a bicycle through the halls without any tubes and no medication Josie!!! It was a wonderful sight to see!! It was great to see you outside for a walk also Josie and to see you with your brothers and sister. I am so glad your family can all be with you more now and that you have such a nice room. Thank you so much for writing the day's activities for all of us Jay. I read it every day and pray for all of you often through each day. You are all a very strong family and we feel very privileged to be a part of your daily lives. It was so nice of the doctor to sit with Josie so that the rest of your family could have an evening out on New Year's Eve. I am praying believing that you wil all be able to spend a lot of nights out as a whole family very soon. May God bless you and hold you tight in His arms. You are very brave Josie and a wonderful and beautiful girl. Keep up the good fight!!! Your whole family is very special!!!!
Sent on Tuesday, January 02, 2007 at 12:36:17 AM



From Kay Stalcar,
Richfield

Happy New Year Adam's Family!
It was so great to see the picture of Josie riding the bike in the hallway! I am so glad she is having some better days! That room is such a blessing for you all, I am glad that you can all spend time together as a family with Josie. I pray that the great days will continue so Josie can come home soon.

Sent on Tuesday, January 02, 2007 at 12:52:57 PM
kstalcar@cojlbc.org


From Dorans,
Richfield

Josie,
It is great to see you riding a bike!! Your hair looks like it is blowing in the wind you are going so fast!! You are such a brave litte girl, and we think about you all the time! We pray that this year brings you less pain and a lot more bike rides!!

Love,
Paul, Shelly, Joe and Sarah Doran

Sent on Tuesday, January 02, 2007 at 10:49:39 PM
doran-home@mn.rr.com


From Stellons,
Richfield

Hi, Josie!

What an awesome room, cool bike and neato Dora the Explorer stuff! You really know how to put it all together!

You are always in our prayers and we miss seeing you. Please get well soon so we can see you out at the baseball fields.

By the way, you might need to explain to your dad that the lip gloss helps your lips so they don't get chapped. Good thinking, Josie! Be sure to keep him on his toes.

Sent on Wednesday, January 03, 2007 at 10:00:37 AM
StellonE@aol.com


From Jo Ellen Smith,
St. Louis, Mo

Dear Josie, My name is Jo Ellen, I have a daughter that has JDM also. Her name is Lyndsie, she is almost 19 years old. We found your web page on CureJm. We have been watching your progress for several months. You are such a strong little girl and very lucky to have such a wonderful and supportive family. You hang in there and get better soon.
Sent on Thursday, January 04, 2007 at 2:51:23 PM
josmith312@aol.com


From Janet Meliti,
Anchorage Alaska

Hi there Josie its been a few days since i wrote anything but i have been reading the latest updattes about your health sounds like a lot has been going on. It is nice to know that you have a found abit of strength again to be up at times. Its been great to see the new photos of you with family and you have had alot of friends family with alot lately.

I sure hope they can get things under control foryou again and you can have that surgery in February and it does noy get delayed again. it sure would be nice if could get better enough to have it sooner. Iknow all about the the thing with high fevers etc that seem to never end sometimes with a child with the rare disorder of Prunebelly syndrome. He is actually not doing to good now as i do this post a fever that just wont go away and a couple of other things that have popped up again theese past fewdays.

You and your family keep fighting may God give you the comfort strength and peace you need to get through this this and become stronger than ever.

Love Janet Matthews Mom from Prunebellysite. www.prunebelly.org

Sent on Friday, January 05, 2007 at 3:40:17 AM
jmeliti11@hotmail.com


From Nancy Hanneman,
Eden Prairie

Josie,
It has been a long time since I have signed into your guestbook. I check your blog almost every day. What a journey! Certainly not a path of your choosing, but I am amazed and awed by the grace in which you are traveling. You are in my prayers every day. (I am Donna Abramson's sister)

Sent on Friday, January 05, 2007 at 6:30:41 PM
nahanneman@hotmail.com


From Deanna Welch,
Edina, MN

Glad to hear Josie's feeling better and great to see her smile in the picture. Sorry about Henry's chicken pox, however! I hope the rest of the kids can somehow escape them. I look forward to seeing Trip in class next week! You are all constantly in my thoughts and prayers.

Sent on Saturday, January 06, 2007 at 8:52:37 AM
deawelch@edina.k12.mn.us


From Sue Moen,
Sumner WA

I cannot imagine the pain and suffering you and Josie have endured. I will be praying for you all daily. God is so good and it's impossible to understand how or why these terrible things happen but keep the faith. Deb, I am a friend of your folks and have known your mom since we were 4 and 5 years old. I heard about Josie in their holiday note. I will be following your daily blog entries. Thanks for keeping all your friends and family informed.
Sent on Saturday, January 06, 2007 at 5:34:21 PM
sumick@comcast.net


From Becca(Rebecca Lotito),
Julian,Ca

HI, Jojo
It is becca in CA. I happy you rode that bike. I told the kids in my class that you rode the bike and they were really happy. Grandpa sent me the JOY FOR JOSIE bands to give to my calss. They all are really loving them. Your new room is the best. Well I have to go to bed for school. Get better JOJO. Love Becca

Sent on Sunday, January 07, 2007 at 8:37:14 PM
biloxibaby94@yahoo.com


From Joan/Jim Wobbleton,
Murrells Inlet,SC

I love seeing Josie hugging the bear and smiling. Can you imagine with all she goes through each and everyday that she is able to smile for the camera. I think most kids would tell Dad to take the camera and stuff it. What a trooper she is. Also what a wonderful thing you are doing for the world. Jay you are recording a case study of how to manage a difficult case. It may go down in the archives of medical history. You can impart a lot of medical jargon that the docs love. You certainly have a wonderful way to make each and everyone of us want to get up in the morning and read your blogs. We worry,smile,have tears,and continue with our prayers for you and the whole family. It's hard to imagine having to get up each and every morning and know that your little one is not at home but in the hospital. You can't get tired. You can't not go to the hospital, you can't call out sick. You just put on your shoes and go. I know God is giving you the strength to do this monumental task. Your blogs are also a way of getting rid of a lot of daily thoughts. It's wonderful. We will miss them when she is better. It's amazing how many of us have this routine with you and Josie and the family.
God bless and keep slowly improving.
Joan and Jim

Sent on Monday, January 08, 2007 at 7:37:45 AM
jwobb@aol.com


From Auntie Tammy,
Keene, NH

EEEEEEEEEEWWWWWWWWWWWWWwww........ Chicken Pox!!! bleckkkk....
Sent on Monday, January 08, 2007 at 7:59:45 AM



From Michelle Darr,
Blaine

Morning Josie,
I wanted to say that I love the last couple of pictures of you!! They make me smile.

Sent on Monday, January 08, 2007 at 10:27:04 AM
micdarr@edina.k12.mn.us


From Chris Marshall,
Maple Grove, MN

Hi Josie & Family:

Well..I'm writing a tad bit late this year but I just wanted to let you guys know that we really missed seeing all of you at Christmas this year. Christmas at Uncle Bob's was fun but it just wasn't the same without the Adams family around! I kept waiting to see little Joise in her latest and greatest princess outfit! I have a big smile on my face right now just thinking about her...

Best wishes to you guys in 2007! We'll keep praying for improvement. One step, one day at a time. You guys stay positive!

Josie: Fight on little lady...fight on!

Love,

Chris, Rachelle, Abby & Zach Marshall

Sent on Monday, January 08, 2007 at 3:05:00 PM
crmarshall27@comcast.net


From Marla Dziedzic,
Arnolds Park, IA

Josie,
You are an amazing little girl. My daughter, Molly, also has JDMS and it is a tough disease. Thank you so much for sharing this website. We are praying for you and your family.
God Bless,

Dean, Marla, McKenzie, Molly & Jackson Dziedzic

Sent on Monday, January 08, 2007 at 8:42:53 PM
dziedzic@mchsi.com


From Melanie Liljenquist,
Minneapolis

My name is Melanie and I am a member of CPC. Just wanted you all to know that I am praying for you all and thinking of you often.
Sent on Tuesday, January 09, 2007 at 1:38:25 PM
toddandmel1@msn.com


From tom and dj lund,
Richfield

Josie, Jo-Jo...we are counting on your to chipper up! You are doing so great and we just love you...we love your bad hair day...can you believe it I have those EVERY DAY! So we're loving you and our little family across the street! Grandpa and Grandpa Lund
Sent on Tuesday, January 09, 2007 at 4:45:13 PM
lundlink@mac.com


From Wendy Kessler,
Edina, MN

Dear Adams,
We are thinking of your family often, we are very happy to have Evie come to play tomorrow and would like to help in any way that we can.
Love,
Wendy, Chuck, Grace & Sophia Kessler

Sent on Tuesday, January 09, 2007 at 7:34:31 PM
wendykessler@aol.com


From Jeff Scramstad,
Bemidji, MN

Hi Josie!

I can only imagine the emotional roller coaster, pain and suffering you and your parents go through on a regular basis; you are much too young to experience this kind of ordeal! One day, you will reflect on all that you experienced throughout your young life, and everything else that you face will seem so "inconsequential." It's wonderful to see all the messages that people have posted! It is a testament to all who pray for you, your family, and your return to a childhood full of love, laughter, and playing in the backyard with friends and siblings!

May God continue to watch over, protect, and bless you and your family!

Jeff Scramstad

Sent on Wednesday, January 10, 2007 at 8:51:35 AM
jdscramstad@prodigy.net


From Cindy Schmitz (Praught),
Albertville, MN

Hi Deb and Jay and family,

I heard about the crisis that you are going through and have been reading your webblog alot lately. Our family has been praying for your family and for Josie's healing. If I can be of any help let me know.

Sent on Friday, January 12, 2007 at 9:55:33 AM
bschmitzfamily@aol.com


From Linda Schwefel,

Hi Jay and Deb, its Linda. I start my day looking at Josies blog, I am hopeful that each day there is some progress and more answers, it is also a reminder of how blessed we are when our children are healthy. Sounds like pretty tight quarters now, hang in there...hopefully you'll be headed home soon. We'll wait a bit until she's out of 'isolation' and then stop by for a visit. You are in our prayers daily. xoxo
Sent on Friday, January 12, 2007 at 10:34:47 AM
lschwefel@aol.com


From Callyn Mack,
Mahtomedi, MN

Josie,

My 6-year old daughter Callyn prays for you everyday! We pray for complete healing for you. God bless you sweetie.

Love,
Alyssa and Callyn Mack

Sent on Friday, January 12, 2007 at 5:53:29 PM
mackalyssa@yahoo.com


From Britta Bloomquist,
Virginia, MN

Glad to hear that Josie is feeling better! Next time Dr. Vehe is in, tell him hi from Britta!!! Or give him a tug on his tie for me!! ;-) Keep your spirits high!

Sent on Saturday, January 13, 2007 at 12:36:52 AM
bitts75@hotmail.com


From Becca, Gary and Prescott,
Utila, Honduras

Hi Josie!
The island has been without internet for the last week and it was painful not to be able to read about your progress every day. I was thrilled to read that you are feeling better today! Gary and I gave Prescott our dog a haircut....hmmmmm not the best cut but it works for the island! I wish I could bring Pressy to see you...he sends his kisses.

Hugs,
Becca, Gary and Prescott

Sent on Saturday, January 13, 2007 at 3:24:56 PM
r_anderson33@hotmail.com


From Holly Thiede,
St. Louis Park, MN

Hi Josie! I LOVE your new photo! What a great smile!
I am sorry that you are not in the cool room anymore. I am keeping my fingers crossed for something even better...home!

Sent on Saturday, January 13, 2007 at 6:39:45 PM
HandThiede@aol.com


From Ava Schneeberger,
Richfield MN

Dear Josie,

Ava and I have been thinking about you a lot lately. Ava has made some pictures for you and would like to bring them to you. We heard about the chicken pox thing and we'll be patient. Please let your Mom and Dad and brothers and sister know that you are they are in our prayers. We will be in touch soon to find out when we can visit you!

Lots of hugs and kisses,
Ava Gina and Steve

Sent on Saturday, January 13, 2007 at 6:51:35 PM
gigi7705@yahoo.com


From The Murray Family,
Carver, MN

Josie & Family,
We are thrilled to see Josie is doing better. We pray she continues this positive trend and can go home soon!

Keeping you in our thoughts and prayers,
Jenette, Patrick, Lauren & Evan Murray

Sent on Sunday, January 14, 2007 at 10:59:28 PM
jenette_g@hotmail.com


From Jennifer Corniea,
Minneapolis

Hi jay and deb-
We are praying for Josie's full recovery. I love watching her progress every day on your her blog! Lots of love!
Jennifer and Jay Corniea

Sent on Monday, January 15, 2007 at 12:19:50 AM
jencorniea@mn.rr.com


From Lyndsie Smith,
St. Charles, Missouri

Hi. I'm really sorry to hear about Josie. I read your blog about her a lot. I was really interested in it after my mom told me about her. I was diagnosed in August 2005, still on medications and monthly hospital visits. Give her a big hug for me, because I want her to know that everyone is thinking and praying for her and I want her to realize that she isn't alone.
Love,
Lyndsie Smith, 19

Sent on Monday, January 15, 2007 at 11:56:39 PM
LyndsieNS18@aol.com


From Becca Anderson,
Utila, Honduras

Josie,
I am praying that you will be able to go home next week!

Hugs,
Becca

Sent on Tuesday, January 16, 2007 at 8:15:44 AM



From Tom and Darlene Lund,
Proud USA

Josie, we are rooting for you, we read your news every day and pray for you and love it see your smiles. That's the way to work at walking...remember the step down into the TV room...it's still there Josie...get strong so you can go up and down...and all around. We love you Josie. Grandpa Tom and Grandma Darlene
Sent on Tuesday, January 16, 2007 at 9:39:47 AM
lundlink@mac.com


From Marilyn,
Bradenton, Fl.

Great news, about the possibility of Josie's return home, next week!!! We will certainly keep our fingers crossed! You are always in our thoughts.
Sent on Tuesday, January 16, 2007 at 4:28:10 PM
mcfwilmot@hotmail.com


From Leigh Anne,
Maine

Hi Josie!

Sorry it's been so long since we last wrote. We are so glad to see that you are doing so well. I see you have up and down days but I hope they become few and far between soon.

Take care darling Josie. We are still thinking of you all the time. Hope all stays well....

Leigh Anne, Justin and Caitlin

Sent on Tuesday, January 16, 2007 at 7:19:28 PM
supajut@msn.com


From Holly Thiede,
St. Louis Park, MN

Hi Josie!

I am keeping my fingers crossed for home!

Sent on Tuesday, January 16, 2007 at 9:56:31 PM
HandThiede@aol.com


From Maria Vetsch,
Centreville, VA

Hi Deb and Jay,

The trend seems to be in the right direction - even talk of possibly going home. Have you asked about doing a day visit to take Josie home for a few hours? We were able to do this with Andrew - after 4 months in the hospital, we got him stable enough to go on a day trip to visit home. I took all the IV meds with me and hooked them up or changed them at home - Andrew was on continuous IV meds as well as the TPN. Once we started the home visits, I notice a much improved mood in Andrew and I swear it helped him recover faster. He had to learn to walk all over again - just like Josie. Going home sped that process also. One thing that still sticks in my brain is that at the end of the 1st home visit he said, "I think it's time to go home" - he meant the hospital. He had been in the hospital so long and we made his room so homey, that he really thought that was home. Hopefully, your home visit will be to stay. We continue to pray that all will work out and the family will be together again soon.

Maria

Sent on Wednesday, January 17, 2007 at 7:33:13 AM
mariavet@cox.net


From Kris,
Richfield

Josie,
You are one amazing kid! Somehow I have a feeling that you are destined for great things in the future--you've already done great things as a kid!

Way to go in PT!!! Keep hanging in there during the tough times...hope they keep getting fewer and farther between!

Thanks to the kids from around the world that have added notes to this BLOG! It's really touching to see people connecting--who are also struggling with JDM or something else--helping and cheering eachother on to better health!
We are hoping the best for all of you.

Sent on Wednesday, January 17, 2007 at 8:50:03 AM
kris@teamfriday.com


From Holly Thiede,
St. Louis Park, MN

Hi Josie!

My name is Mrs. Thiede and I am your sister, Evelyn's
Kindergarten Teacher.

Today, we were listening to some music in class (Pachelbel/Canon and Gigue in D) and Evie got a huge smile on her face! She said that the song made her think of you! Something about watching photos of you while the music was playing in the background...... :)
It must be wonderful to know that you can make someone "light up" like that!

Sent on Wednesday, January 17, 2007 at 3:14:03 PM
HandThiede@aol.com


From Heidi & Kevin Barthel,
St. Michael, MN

Oops -- forgot my message the first time - not unlike me lately!.....at my ripe ole age of 40 (funny that Deb is only 31 today!) Happy Birthday Debbie! We think about your cute little family often! You're in our prayers.
Sent on Wednesday, January 17, 2007 at 5:21:57 PM
heidibarthel@charter.net


From Nicole,
Minnesota

Josie-

Your pictures are beautiful. I used to work at Fraser wih Eda and Gigi...they are so much fun! Stay tough and kick these yucky germs.

Love you and God bless,

Nicole Taylor

Sent on Wednesday, January 17, 2007 at 10:28:35 PM
tayl0965@metnet.edu


From Noelle E.,
Rosemount, MN

Hi. I learned about you and your family from a co-worker of mine and was very interested! I am 31 and was just diagnosed with dematomyosytisis in Aug. of 2006. I have not met or talked to anyone else with this awful disease. I know how tough it can be. Take Care and sent me a e-mail if you are interested in connecting.
Sent on Thursday, January 18, 2007 at 2:53:19 PM
unidiva3@aol.com


From Aggie & Alexa,
San Francisco

Hi Josie! Sorry we haven't written in a while. We really enjoted visiting you in your big, fancy apartment (oops, I mean room) over the holidays. When I told Alexa that you had to be moved out of that room she was VERY upset, "Nobody deserves that room more than Jo-Jo!" She asked me to "call somebody" at the hospital & make them give it back to you. I explained that your mommy & daddy are making plans to take you home soon & she thought that was a really good idea. We hope you'll be back in your own bed very soon. I'll bet you'll be chasing your brothers and Evie around the house in no time. This is going to be a much better year for all of you, I just know it. Keep using that fairy dust to make you feel strong. We're trying to find some in different colors, but so far no luck! But we are not giving up!
Keep getting stronger, Josie...
XOXOXOXO

Sent on Sunday, January 21, 2007 at 4:01:11 PM
aiv1026@aol.com


From Alexa,
Hi Josie.
I am wearing both a red & green Joy for Josie bracelet all the time. I am not going to take them off until you have your big surgery & you are all better. I gave bracelets to my friends Juliet, Ruby, Georgie, and Minna. They all wear them too. They want to meet you when you come to California. I hope that will be soon so you can have a ride on my pony!
Love, Alexa

Sent on Sunday, January 21, 2007 at 4:05:21 PM



From Pete and Kyle,
Grantsburg, WI

Hey Deebs,
Was soooo nice to visit with you this afternoon. Kyle and I have been surfing your site now for a while and are lacking for words but not tears. We watched the news special and can't imagine your grief (wish we had known about the fund raiser). Josie could not be in better hands(yours and Jays) and I wish your family all the best. I'll see you in a couple weeks. Hi to Jay, Trip (JT), Lilly, Henry, and of course Josie.
Love,
Pete

Sent on Sunday, January 21, 2007 at 5:16:46 PM
vtmags@hotmail.com


From Holly Thiede,
St. Louis Park, MN

Hi Josie! I love your picture with all of the cool tattoos!
Stay strong! I am thinking about you. :)

Sent on Sunday, January 21, 2007 at 5:57:06 PM
HandThiede@aol.com


From Holly Thiede,
SLP, MN

Hi Josie!

An indoor snowball fight sounds like so much fun! I hope that you got the nurse nice and wet! I am 41 years old, and still haven't been lucky enough to experience something like that! :)


Sent on Monday, January 22, 2007 at 4:29:07 PM
HandThiede@aol.com


From Andrea Jorgenson,
Red Wing, MN

Deb & Jay,

Wow.

I am so sorry I did not know about Josie's battle sooner. I can't believe it has been so long since we've been in touch. Please know that we are keeping your family in our prayers. With all sincerety, I would like to help in some way. I am not working at the moment and would be happy to take the kids for a day. Jon leaves on Friday to start his new venture, I'll give you a call soon.

Josie, do you like babies? My daughter Lily loves to play babies. Would it be OK if she brought one along to visit you too?

Love,

Andrea Jorgenson

Sent on Monday, January 22, 2007 at 7:33:14 PM
redpumpkin1@redwing.net


From gigik & Eda,
fraser

Hi Josie, you sure are looking good on your blog, you look like you are getting bigger too. Eda and I have to come for a visit before you leave the hospital!
Today Eda had to go home in the morning because she was not feeling good. But we really want to visit you next week.
How does next Wednesday at 4:00 sound, (February 1st)
I am so glad you are walking and roller skating!! looks like you are getting much stronger too!
This week-end is the Roll & Stroll at the Mall of America, did you ever to that with your family?
Tell your mommy my new number is 612-795-8312 and give her a big hug from me. Until next week xxo Gigi & Eda

Sent on Tuesday, January 23, 2007 at 11:07:23 AM
gigik@fraser.org


From Megan Jason Bridget & Molly Rose Wenaas,
right next door!

Keep on fighting sweet Josie! We sure hope that you are able to come home and if you are, we'll be sure to stop by and visit!! We love you lots and lots!!! Hopefully you'll be on the ice next year!!
The Wenaas Family

Sent on Tuesday, January 23, 2007 at 11:15:58 AM
MMWenaas@gmail.com


From Jo Hendrick,
NC

Hi, learned about ya'll thru an emsil. You are all in my prayers. Keep the faith.
Sent on Wednesday, January 24, 2007 at 10:46:15 AM
johendrick@yahoo.com


From The LeBarrons,
Edina, MN

Even though you've still got a bit of ralphing, you look excellent in clothes, my dear. Have your Mom or Dad send me some measurements and I'll whip up a couple of halter tops that don't get caught up in the tubes! Also let me know what kind of fabric (like silk or fleece)and who should be on the material (like Dora or Mickey). Maybe you can do a modeling show for visitors!!!!
Sent on Wednesday, January 24, 2007 at 6:27:12 PM
katy.lebarron@comcast.net


From The Murray Family,
Carver, MN

Josie,
We love your face paint! You look so cute! We continue to think about you daily and pray for you!

Sent on Wednesday, January 24, 2007 at 10:40:21 PM
jenette_g@hotmail.com


From Lisa Heilman,
Lakeville MN

Hi Josie! I loved your picture with your face painted!! It is so good to see you up and around with roller skates on. Good to hear you are cranky - I would be too if I were you!! Mom and Dad - hope you are hanging in there ok. Sorry we have been out of touch since New Years. Just wanted you to know we are checking on you every day.
Love The Heilmans

Sent on Thursday, January 25, 2007 at 8:14:42 AM
lheilman@frontiernet.net


From Barb Zappa,
New Brighton, MN

My name is Barb Zappa. I work at Faegre & Benson lawfirm with Kristin Smith. She may have told you that we have a co-worker (my "cellmate") who was diagnosed with Dermatomyositis in September. Kristin told me about Josie and I've been following your blog every day for months now. I'm amazed at your entire family's strength through this whole thing. Josie is one tough cookie! I keep you all in my thoughts and prayers. bz
Sent on Thursday, January 25, 2007 at 8:43:48 AM
bzappa@faegre.com


From Kay Stalcar,
Richfield

Dear Josie,
I love your picture today, what a great face painting. You look so cute, face paint, hair do and all. It is great to see you and hear of your progress. Keep it up my little friend.
Love Kay

Sent on Thursday, January 25, 2007 at 10:13:43 AM
kstalcar@cojlbc.org


From Stephanie Blachowiak,
Edina, MN

I haven't written in a while - but I still start my days by reading Josie's weblog. The picture of her today brought a huge smile to my face - she's so precious!! I'm glad you have a date for the surgery. It is a big step - and I just know everything will turn out well. You'll all be in my prayers!!

Mrs. B.

Sent on Thursday, January 25, 2007 at 12:41:12 PM
steblachowiak@edina.k12.mn.us


From Michelle Darr,
Blaine

Hey Josie,
I had your brother in my PE class yesterday and he told me that you might make it home next week. Henry seems very excited to have you home. I hope it works out that you can come home for a couple of days. Keep smiling for those great pictures.

Sent on Thursday, January 25, 2007 at 1:07:21 PM
micdarr@edina.k12.mn.us


From Lisa Dow,
Edina, MN

Greetings and blessings from the parents,students and staff of Our Lady of Grace School in Edina. We learned of your condition from the LaMere family. Our thoughts and prayers are with you. Josie you're a cutie!!
Sent on Thursday, January 25, 2007 at 4:34:59 PM
dowsmn@aol.com


From Max Mallory,
Edina MN

Josie,

We hope you get better soon. We would like it if Henry could come over to play.


Henry's friend
Max

Sent on Thursday, January 25, 2007 at 6:26:48 PM
mmallory1@msn.com


From Jack Reddan,
St. Louis park, Mn

Dear Josie,
This is Jack Reddan and I am 8 years old. And I want to say Josie-- I hope you feel better and I hope your surgery helps. God bless ya! You are young child and got a disease that is very rare. Thats not fair. And what I admire about you is your attitude and your parents attitude. Attitude is something you get to choose that. And your hope makes me hope you have a miracle.

Sent on Thursday, January 25, 2007 at 7:11:05 PM
jackandfinn@aol.com


From FINN REDDAN,
SAINT LOUIS PARK, MN

Dear Josie,
This is Finn Reddan and I am 6 years old. And I hope that you will see that you are a good person and I hope their is a special feeling inside your heart and I hope that you feel no pain while you have your surgery. I wanted to write to you because I didn't ralize someone was going through such a terrible thing. I will pray for you and this is my prayer

GOD BLESS HER SHE HAS BEEN A GOOD GIRL SO BLESS HER WITH ALL YOUR LOVE. HELP THE DOCTORS FIGURE THIS OUT SO SHE CAN BE HEALTHY FOR HER LIFE. PLEASE SAVE HER BECAUSE I THINK SHE IS A GOOD PERSON. PLEASE LET HER BE A GRANDMA SOMEDAY GOD. SHE IS BRAVE AND SHE IS USING ALL HER MIGHT TO BE BETTER. LORD HERE MY PRAYER. AMEN

HERE IS A JOKE. I HOPE IT BRINGS SOME LAUGHING : KNOCK,KNOCK. WHO'S THERE? EGG. EGG WHO? AN EGG SALAMI SANDWHICH!! I MADE THIS UP ALL BY MYSELF.

THIS IS ONE I LEARNED FROM MY BROTHER JACK:
KNOCK, KNOCK WHO'S THERE? KNOCK KNOCK! WHO'S THERE!? KNOCK KNOCK THAT'S MY NAME.

THAT'S THE END I AM THINKING ABOUT YOU --FINN

Sent on Thursday, January 25, 2007 at 7:31:05 PM
jackandfinn@aol.com


From Britta Bloomquist,
virginia, MN

Great picture of Josie and Dr. Vehe!!! He is such a great doctor, infact I talked to his nurse today(from Gillette). Hope you can go home soon!!! You are in my thoughts and prayers.
Sent on Thursday, January 25, 2007 at 11:48:51 PM
bitts75@hotmail.com


From Aggie,
Deb & Jay,
So wonderful to see little Josie feeling better each day. Had a thought while reading your blog today... would it be possible to use a hood/vent system that dental technicians use when working with acrylics (mixing liquid monomers & powdered polymers that throw off some noxious fumes)? I just thought that it would likely be cheaper & easier to come by than a "chemo hood" and a dental supply company could probably install one in your home on short notice. Give Jo-Jo a big hug from Alexa & me.

Sent on Friday, January 26, 2007 at 12:34:33 AM
aiv1026@aol.com


From Susan Zachman,
St. Michael

Josie, your story has sincerely touched our hearts since we found out about you yesterday. My name is Susan Zachman (Schwenzfeier). I was a friend of your moms and we went to school together. We all gathered around the computer and spent a little over an hour reading thru your story. Unfortunately news travels a little slow up here. Most people did not know about your story until they saw you on the news one night. I was very surprised to find out that this has been going on for so long.
You have really touched our families hearts. There was a lot of talk and questions asked by our children about who you were and what was happening.
We just want you to know that we have been praying for you and will continue to do so. We will pray for your strength and healing. We will also pray that God will guide the doctors hands and give them wisdom so that they will know how to better care for you! Tell your mommy and daddy that more people are praying as we tell them about you.
You are a beautiful little girl!

Sent on Sunday, January 28, 2007 at 8:19:47 AM
zachfam@usfamily.net


From Jackie Harris,
Albany, Oregon

Warm Winter Greetings, Josie, from your Oregon cousins! Although we have never met, you have shown the Girard strength that your ancestors were very famous for. Keep up your pluckiness and know that you and your family are an inspiration to all. We pray for you and your family everyday... With Love, Jackie, Paul, and Christie
Sent on Sunday, January 28, 2007 at 8:14:10 PM
fordor40@comcast.net


From gigik& Eda,
Fraser

Hi Josie, Eda and I are still planning on our 4:00 visit today. I will call your mommy and confirm the time. I heard you might have a busy schedule today. We really really hope you can go home on Wednesday that would be so cool!!! Then maybe you could come and visit us once in a while!!! See you later Gater! Gigi & Eda
Sent on Monday, January 29, 2007 at 8:26:37 AM
gigik@fraser.org


From Leigh Anne,
Maine

Hello Josie....
Glad to see you are still improving. Those parents of yours are very special and are doing their best to get you home and in your own bed! Good for them!
Caitlin and I check on your blog everyday. She wanted me to tell you that she is going to be a big sister. She is very excited.
Be a good girl and keep getting better.
Love, Leigh Anne, Justin and Caitlin

Sent on Monday, January 29, 2007 at 10:37:35 AM
supajut@msn.com


From Janet,
Anchorage Alaska

Hello there Josie yes it has been a couple of weeks since writing anything to you but Ihave been reading the updates about you and Iam amazed at how well you and your mom and family are still doing through all of this what a long adventure of mysteries you are still going through with the fevers etc. Your updates have been very packed full of events and info etc yikes

I have been on a nother new mission for my son Matthew since December but really stepped it up again the beginning of this month as he has been haveing mystery fevers also but not sure anymore about the specific cause anymore it still could be urolgy kidney related like Iand his dr's thpught in the beginning but now there could be other possibilities man it must be driving your mother crazy not knwoing really whats going on but yet there are all sorts of problems popping up off and on just like with Matthew. When will it end for you and all the rest of us huh to bad we did not have the answer. Hopefully we will soon huh we really must be driving all the dr's and everyone else in volved really crazy by now like we are going huh. Iam sure they are just as bafflled and stumped and want the answers like us because Iam sure as for one of Matthews dr's it is really begin to worry him and it is getting old and tireing for him because he really cares he cares about kids alot and especially those that unfortunately sick seriously sick.

Good luck and wish you well with the up coming surgery.

Janet Matthews Mom from Prunebelly site www.prunebelly.org
Imentioned your stroy a little bit on our site Iplan on passing along this adress for them to check you out.

Sent on Tuesday, January 30, 2007 at 1:32:13 AM
jmeliti11@hotmail.com


From JoAnn L Loch,
Lake Shore, Mn

I visit every day & are amazed at how you all keep going. You are all in prayers every day. I just hope & pray that Josie makes it though the surgery -- I can understand why you want to take her home for a few days in case that she does not -- at least she will spend some time with her siblings in a natural setting. But we will be positive & she will make it & be home again. JoAnn Loch (previous co-worker of Suzanne & good friends of Larry & Suzanne)
Sent on Tuesday, January 30, 2007 at 8:48:41 PM
lochbus@tds,net


From Lindsay Sumrow,
Minneapolis

Dearest Josie,
You precious...the picture of your face is beautiful. Has anyone told you that your eyes look like beautiful stars in the sky? Jesus made you beautiful inside and out, sweet little one. Our prayers and the prayers of so many others are all over you and your family today and everyday. I hope that soon you'll be able to get back into that nice, big room again, and even better yet, back home! We think of you every day. Even though you don't know us, you are a big part of our lives and you help us to fight our little battles because you are a giant fighting yours. Take care, little one. Bear hugs to you,
Lindsay, Kyle and Emma Sumrow

Sent on Wednesday, January 31, 2007 at 8:58:01 AM
lsumrow@moneygram.com


From Tom and Darlene Lund,
MN

Josie, Jo-Jo, you are so beautiful, Grandpa Tom and I love your smiling face! We love your pictures and adventures of snowball fights and roller skates...and knowing that you are getting stronger and better every day!!! Keep up the hard work of walking and walking and walking...it will make you stronger and stronger and stronger. We love you, Grandpa and Grandma Lund
Sent on Wednesday, January 31, 2007 at 10:26:54 AM
lundlink@mac.com


From Jen,
Rosemount, MN

Hello Josie and family: We just wanted you to know that you are still in our thoughts every single day and we continue to fight to raise as much money as we can to find a cure for JDM -- you inspire us to keep fighting because you keep fighting!
Best wishes! Jen, Julia (JDM), and the rest of the Weers family.

Sent on Friday, February 02, 2007 at 6:42:11 AM
jen@weersconsulting.com


From Dan Anderson,
Outer Mongolia

Jay and Deb,
How wonderful to read your posts of Wednesday and Thursday! It feels like, for now at least, the clouds have parted. As you know, you ~ and Precious Josie, have our ongoing love, support and prayers. I hope to see Josie today, Friday.

Sent on Friday, February 02, 2007 at 9:28:12 AM
danderson@cpconline.org


From Sam McKeown,
Richfield, MN

Hi Josie, I'm glad to see that you are doing better and might come home next week. That would be awsome!!! I have to go now and beat my dad at a game of pool. Bye bye

Sent on Saturday, February 03, 2007 at 8:47:31 AM
RMcKeown1@mn.rr.com


From Janet,
ANCHORAGE ALASKA

Hello Josie your really coming along to beable to get to go home for abit before you surgery. That is wonderful especially since been in there for so long now.

You look really great on that bike you look so wonderful happy and healthy again. Even though you are still sick in someways it does not show.

Janet and Mattew from Prunebellysite

Sent on Saturday, February 03, 2007 at 12:58:04 PM
jmeliti11@hotmail.com


From Holly Thiede,
SLP, MN

Hi Josie!

It looks like you had a nice bike ride around the hospital today! You are lucky that they let you ride that thing inside, because it was much too cold for an outdoor ride today! I am so happy to hear that you may be heading home next week. I will be thinking about you!

Sent on Saturday, February 03, 2007 at 5:20:18 PM
HandThiede@aol.com


From The Murray's,
Carver, MN

Josie,
We are so happy that you are doing so well! We hope you can go home Tuesday. We continue to check on you daily and pray the positive progress continues.

Hugs to you,
Jenette, Patrick, Lauren & Evan Murray

Sent on Saturday, February 03, 2007 at 11:08:04 PM
Jenette_g@hotmail.com


From Lynn Gabriel,
Victoria,MN

HI Josie! I hope they cleared the halls for you riding that shiny cool bike! It looks like you are ready for a good race! You are a very special valentine. Keep pedalling and we will keep praying!

Much Love,
Blake, Faith, Lynn , Stan

Sent on Sunday, February 04, 2007 at 12:03:15 AM
lrshadle@earthlink.net


From lynne,
bloomington

hi all. sitting here in my warm house, -13 F, no city of lakes loppet for me, smiling at all your kids in josie's bed smiling back at me. heart warming. hoping that josie makes it home this week. love, lynne
Sent on Sunday, February 04, 2007 at 8:55:24 AM
lynne_cecil@yahoo.com


From Holly Thiede,
SLP, MN

Hi Josie! What a great picture of you and your brothers and sister! I'll bet the next group photo will be taken at your house in Edina!
Sent on Sunday, February 04, 2007 at 3:25:38 PM
HandThiede@aol.com


From Stephanie Blachowiak,
Brooklyn Park, MN

Hi Josie and Family,
I'm so happy to read that you're getting stronger! You are such an inspiration to all of us to keep fighting - even when the going gets tough. You have made such progress over the past few weeks. I just know that progress will continue when you head home for a few days this week. I'll be praying for you and can't wait to hear how it goes!

Take care!!!!

Sent on Sunday, February 04, 2007 at 9:05:06 PM
steblachowiak@edina.k12.mn.us


From Christine Nixon DM/ILD,
England.

I wish you all a Happy Homecoming for Josie....I check your page every day,before I even check my Bank Page ! ! LOL

I am rooting for you,and hope the coming weeks are easier on you all. :)

Sent on Monday, February 05, 2007 at 3:43:27 AM
chrisbrucenixon@blueyonder.co.uk


From The Lunds,
across the street

JOSIE, we are so excited with your happiness and more often feeling so good...and we think you are such a blessing to everyone who knows you!!! Thank you Josie for your courage and. Grandpa Tom and I are anxious to see you again. We love you, Tom, Darlene, Sugar Bear and Smokey Bear.
Sent on Monday, February 05, 2007 at 11:22:24 AM
lundlink@mac.com


From gigik & Eda,
Fraser

Wow Josie I really hope you get to go home on Tuesday!!
You are looking so strong and beautiful! That bike looks like a blast!! Eda and I are cheering for you everyday and you are doing such a great job getting better and better, we are so proud of you!!! xxo Gigi & Eda

Sent on Monday, February 05, 2007 at 11:36:13 AM
gigik@fraser.org


From Janet Meliti,
Anchorage Alaska

Hello Josie Sure hope you get to go home as planned until your surgery. The million dollar question is yeawhat is it with those fevers? why? wouldnt we all like to know. You and my son Matthew share the same mystery right now why the fevers. we keep on looking he shows signs for this and that had certain problems but they went away got better but fevers remain thought it was his normaql urinarytract problems or kidney or gi infection or maybe after all respiratory you name it still wondering the possiblity of some other things.

Maybe in a week we will get closer to some answers there are some other things that dont seem to add up either. Wefinally saw Hematolgy Monday.

Janet from prunebellysite www.prunebelly.org

Sent on Tuesday, February 06, 2007 at 2:12:04 AM
jmeliti11@hotmail.com


From Tom and Darlene,
across the street

Josie...we are so excited for you...we love you, we love you, we love you...tell Mom and Dad what every they need we are there!!! Grandma and Grandpa Lund
Sent on Tuesday, February 06, 2007 at 9:34:15 AM
lundlink@mac.com


From Tom and Darlene,
across the street

Josie...we are so excited for you...we love you, we love you, we love you...tell Mom and Dad what every they need we are there!!! Grandma and Grandpa Lund
Sent on Tuesday, February 06, 2007 at 9:34:27 AM
lundlink@mac.com


From Leigh Anne,
Maine

YEAH! I bet you are so excited to go to your home Josie! Good for you sweetheart. Family, enjoy your sleep deprived time together...it will be pure bliss I am sure of it!

Thinking of you always,
Leigh Anne, Justin and Caitlin....

Sent on Tuesday, February 06, 2007 at 10:28:39 AM
supajut@msn.com


From Lynn Shadle Gabriel,
Victoria,MN

Dear Josie,
we are sitting on pins and needles as we imagine the warm hearts in your home today! Home, home at last. There is nothing more healing than the presence of home, family, friends and love;next to the healing love of the Lord of course. as I imagine what your mom and dad must be feeling in their hearts as they bring their baby girl 'home again' it draws tears of joy to my eyes. good for you Josie! What an amazing girl you are. Truly amazing.
Welcome home,in advance that is,as we all await the writing of this wonderful, special day!
Blake told me this afternoon we might see you on the highway as we were driving, on your way home. God Bless you and hold you tight Josie.
Love
Lynn, Stan, Blake and Faith

Sent on Tuesday, February 06, 2007 at 9:55:16 PM
lrshadle@earthlink.net


From Madsen,
Richfield

Josie,

We are clicking our heals together in hopes that you will go home. And for every click there is a prayer that it will be a good visit.

The gates of Richfield will be open and awaiting your return!

Love, Tom, Karen, Sarah, Emily and Paul Madsen

Sent on Tuesday, February 06, 2007 at 11:32:55 PM



From Janet Meliti,
Anchorage Alaska

Hello Josie checking to se if you did go home an well you made it. It was good to read the latest and see your newst picture of you at home. The time maybe short with still alot going on but atleast your home and the next thing you know the surgery will be done and over with and you wil be on your way to recovery and coming back home again soon afterwards.

WISH YOU ALL THE LUCK AND HAPPINESS YOU CAN HAVE RIGHT NOW FOR AWHILE
May your surgery go well and you really get to enjoy being home before you have to go back to the hospital.

Janet from Prunebellysite

Sent on Wednesday, February 07, 2007 at 1:30:40 AM
jmeliti11@hotmail.com


From Ed & Caroline Gaiser,
Fresno, CA

Josie, it's wonderful that you are home. We know how happy you are to be back in your familiar and safe home with mom, dad and your brothers and sister--and your cats and dog! You look so happy! We pray you continue to feel better. We read your blog every day and always send prayers your way.

With love,
Aunt Caroline & Uncle Ed

Sent on Wednesday, February 07, 2007 at 1:47:02 AM
c_gaiser@hotmail.com


From Stephanie Blachowiak,
Brooklyn Park

Hi Josie and Family,
What great news! I was so happy to read that you made it home!! Hopefully the weather warms up so you can enjoy some time outside.

I'm sending lots of love and prayers your way!!!

Sent on Wednesday, February 07, 2007 at 5:51:06 AM
steblachowiak@edina.k12.mn.us


From Sara Carrigan,
Rosemount, MN

There's no place like home! I hope Josie being home recharges all of you after her long hospital stay. I am so happy for all of you and hope for nothing but the best in the coming weeks. Enjoy being together! Stay strong Josie! Your courage and strength is truly an inspiraton to us all!
Sent on Wednesday, February 07, 2007 at 6:44:45 AM
sjcarrigan@charter.net


From The Belchaks,
Albuquerque, NM

We can only imagine the joy in your home today! May you find courage and strength to watch over all of Josie's needs this week!


Enjoy,Enjoy,Enjoy,
Tim and Mona


Sent on Wednesday, February 07, 2007 at 6:55:35 AM
tabinabq@comcast.net


From Donna,
Richfield

I am so happy that Josie is home...The sign and balloons in the front yard were a joy to my heart when I drove by. How fun for her to watch you all skate. My blessing on all of you and my prayers are always with you.

Love the Abramsons

Sent on Wednesday, February 07, 2007 at 7:01:15 AM
donnaabramson@hotmail.com


From Dan Anderson,
CPC

I cried with joy and the knowledge that you will return. We are praying that God grants you a wonderful and wonder filled week. We love you guys!
Sent on Wednesday, February 07, 2007 at 7:24:50 AM
danderson@cpconline.org.


From Lisa Heilman,
Lakeville MN

How absolutely wonderful that you are home Josie!! Tears of joy today looking at the website and seeing how far you have come. Your strength and that of your family is truly amazing and inspiring.

Love - The Heilmans

Sent on Wednesday, February 07, 2007 at 7:54:00 AM
lheilman@frontiernet.net


From Lynda Braaten,
Roseville, MN

Josie:
I am glad that you are home with your family!! Your courage and happiness is totally Awesome!! My thoughts and prayers are with you and your family during this time!
Keep up the fight...this will soon pass!!
Awesome Rich Blessings!

Sent on Wednesday, February 07, 2007 at 8:53:20 AM
lkbraaten@comcast.net


From Emily Wyse Moore,
Concord, Cornelia and Highlands Band Director

Dear Adams family and Josie,
I have been visiting your weblog for the past few weeks since it was pointed out to me, and I've avoided signing the guest book because I feel I can't say enough. So I know my words won't come close to my feelings, or certainly yours, but I do want to say, despite how it must seem now, you are a very fortunate family. I have rarely seen such "Super Parents" (you should have badges at least) and supportive siblings, not to mention the network of extended family and friends. Josie, you are so loved and you bring joy to so many. I am thrilled you get to be home now. You are truly inspirational. Maybe Trip can play some music for you on his trumpet; he really rocks!

Sent on Wednesday, February 07, 2007 at 8:58:10 AM
emimoore@edina.k12.mn.us


From Tom and Darlene,
across the stree

Josie, it is wonderful to see those pink balloons a flying over the skating rink and to know you are inside. Praise the Lord...you are our little miracle. Love you!
Sent on Wednesday, February 07, 2007 at 10:37:08 AM
lundlink@mac.com


From Sarah Madsen,
Eau Claire, WI

YAY JOSIE!!!
I'm just praising the Lord that you finally get to snuggle up at home and enjoy being with your family (and your furry friends too). I'm so proud of you- you're an outstanding girl with quite the fighting spirit. I hope you continue to get better because I know it's not out of reach. ...hoping also that the painful days are becoming few and far between-
Much love and continuous prayers- Alleluiah!!
Sarah

Sent on Wednesday, February 07, 2007 at 11:44:50 AM
madsensl@uwec.edu


From Beth Richardson,
Huntley, IL

My brother, Pat Walsh, told me about Josie in October. I check on her everyday- hoping and praying for "up" days.
I am thrilled to see you are all enjoying being a family under the same roof.

Sent on Wednesday, February 07, 2007 at 1:42:31 PM
jimrichardson27@comcast.net


From Renee Ludwig,
Roseville

You are such a brave little girl! You are absolutely beautiful! So many people are praying for you!
Sent on Wednesday, February 07, 2007 at 2:21:17 PM



From Holly Thiede,
SLP, MN

Hi Josie!

I am so happy that you are finally home with your family! The first thing Evie told me when she arrived at school this morning was that you gave her a BIG hug before she left. It made her very, very happy!

Sent on Wednesday, February 07, 2007 at 2:58:37 PM
HandThiede@aol.com


From The Arnold's,

Way to go, Josie! Welcome Home!
Sent on Wednesday, February 07, 2007 at 7:11:28 PM



From Jackie,
Albany, Oregon

Congratulations Josie! So wonderful to hear you are at home. We all think about you everyday and wish you renewed energy for the weeks ahead. Love the photo of your snowy yard! All of our snow has gone for now but when the sun came out today, we felt sure you must have made it home!Sending our Love and prayers to you and your family, Jackie, Paul, and Christie Harris and Cousin Jan Crosby from Troy, Oregon, too!
Sent on Wednesday, February 07, 2007 at 7:45:50 PM
fordor40@comcast.net


From Jamie & family,
Honolulu

Welcome Home Josie!!!!!! What a great reunion. Enjoy the brisk weather while basking in the warmth of your terrific family. Lots of aloha, Jamie & family
Sent on Wednesday, February 07, 2007 at 10:38:54 PM
vacoba@hotmail.com


From Kate P,
Peds GI

HOORAY!! One whole day. Deb and Jay, you are awesome. I'm confident you can do this. I'll call re: fluids tomorrow.
Sent on Wednesday, February 07, 2007 at 11:06:23 PM
kporter@umphysicians.umn.edu


From ,

Hi Adams Family,
PRAISE THE LORD!!! So glad you are home and pray your time with all being together will be a wonderful time enjoying each other and being a family!!! YOU ARE ALL SUCH AN ENCOURAGEMENT TO US ALL!!! We pray your surgery will go well and you will be home to stay very soon. Enjoy your time. It was great to see the welcome home signa dn ballons and know you are all enjoying being together in your own home. May God bless each one of you constantly. We pray for all of you and check your blog everyday. Take good care. Bye for now. We love you all!!

Sent on Thursday, February 08, 2007 at 1:29:37 AM



From gigik& Eda,
Fraser

Gee it's great to see home with your family!!! I'm sure everyone has really missed you! I was thinking about your dogs and cats too (because I have two pugs) and I'll bet they are super happy to see you! Your family could visit you in the hospital and know whats going on but it's hard to expain things to animials. I love that photo of you and your dog in the hospital, he looks like a really nice dog and you could tell he really loves you and was happy to be with his girl Josie again.
Would you like us, Eda and myself, to visit you while you are in you house? If you do we could stop by for just a few minutes on Monday or Tuesday at 3:30 next week. Please just have your mommy give us a call if you would like a visit. 612-798-8312. I think of you and your family every day when I drive by your house, knowing that you are in your house with your family makes me smile everytime I see your house. xxo Gigi and Eda

Sent on Thursday, February 08, 2007 at 8:05:25 AM
gigik@fraser.org


From Nancy Hanneman (Donna Abramson's sister),
Eden Prairie

Celebration time on Vincent! I drove down the block on Tuesday afternoon, mini visit with Donna and Alex, and saw the balloons and sign : ) As a nurse, I understand all the "stuff" that needed to be coordinated to make this at home respite happen, your tenacity was key. Embrace this time away from the hospital. Remember, all six of you are in my thoughts and prayers daily.

Sent on Thursday, February 08, 2007 at 8:09:54 AM
nahanneman@hotmail.com


From Pastor Dan,
CPC

"Thanks for Deb." No kidding! I've seen your work. I loved your last line, "Oh yeah, we have three other kids too." I can see that you all are incredibly busy ~ but a new and fresh and good kind of busy. I also know that the journey ahead is fraught with challenges. I think of words from the book of Isaiah, the 43rd chapter: “When you pass through the waters . . . I will be with you . . . for you are precious and honored in my sight . . . and I love you . . .” God's love and our love and prayers continue with you all! Thanks, Jay for the good work you do keeping us all up-to-date (sounds like a contradiction to what I said earlier . . . ). Josie, I love you, precious girl. You are my favorite four year old in the whole world!
Sent on Thursday, February 08, 2007 at 8:19:01 AM
danderson@cpconline.org.


From Jill,
Richfield

Josie, Deb and Jay,

Thanks - you provide me with much needed perspective.

Sent on Thursday, February 08, 2007 at 8:58:00 AM
jill@teamfriday.com


From Kay Stalcar,
Richfield

Josie,
Welcome Home! God Bless you all as you enjoy your precious family at home.

Sent on Thursday, February 08, 2007 at 10:12:07 AM
kstalcar@cojlbc.org


From Stellons,
Richfield

Whew! We're glad you're home and enjoying your family, Josie! Take good care of everyone and enjoy all the fun with your whole family.
Sent on Thursday, February 08, 2007 at 10:30:45 AM
StellonE@aol.com


From Linda Schwefel,
Welcome home Josie, it's been a long road kiddo. Enjoy the conforts of home with your parents and brothers and sister, not to mention pets! Your strength and courage is amazing, keep the faith. Love, The Schwefels
Sent on Thursday, February 08, 2007 at 12:17:31 PM
lschwefel@aol.com


From Tom and Darlene Lund,
across the street

At-a-way, Josie...give that Daddy a good work out...but his marathons don't even come close to the great job he and Mom are doing to take wonderful care of you...we're sure proud of Mom and Dad. Love you, Grandma Darlene
Sent on Thursday, February 08, 2007 at 4:18:49 PM
lundlink@mac.com


From Michelle Darr,
Blaine

Hey Josie,
I am so glad that you have been able to go home. I wake up and the first thing I do is check your webpage to see how your day went. I hope you get to spend many more days at home surrounded by your family and pets. I know you have probably heard this a million times but you have touched my heart and I think of you and your family often. I will continue to pray for your recovery and hope to see you at Concord!!

Sent on Friday, February 09, 2007 at 12:51:04 PM
micdarr@edina.k12.mn.us


From Aggie & Alexa,
San Francisco

Josie,
In the words of Dorothy, "There's no place like home..."
I can only imagine the thousands of people who begin each day checking on you & how thrilled each & every one of us is to know you're home with your family! You are truly a miracle. Deb & Jay, keep up the unbelievable work you're doing. There is a rainbow on the horizon.
XOXO

Sent on Saturday, February 10, 2007 at 12:56:27 AM
aiv1026@aol.com


From ,
Roseville

Josie,

My thoughts and prayers are with you daily. You are such a strong little one, keep on fighting we are all pulling for you and your entire family. Be brave and keep on smiling your smile.

Sent on Saturday, February 10, 2007 at 8:57:04 AM
jenn30@comcast.net


From Patti Epstein,
Madison, WI

Dear Josie and the whole Adams Family, I just happened upon your website and have been reading for over an hour. You are such a brave little girl, and so beautiful too, with a special smile. What a loving and wonderful family. I live in Madison, Wisconsin and am the mother of three. Little Josie, you have touched my heart. I send you and your family more prayers and warm wishes.
Sent on Saturday, February 10, 2007 at 12:59:34 PM
pepstein@bgmlaw.com


From Stellons,
Richfield

We're so glad you spent some time outside and on the ice, Josie! You look awesome out there on your rink and I know time will fly by until the right time for you to be out there skating, too.

Enjoy another day with family and friends at home before you head to the hospital for the "big day." It will be over before you know it and receovering beautifully.

We send much love and prayers to you all!

Sent on Sunday, February 11, 2007 at 7:41:25 AM
StellonE@aol.com


From Virginia Martin,
Houma, Louisiana

I Know exactly what you Josie and your family is going through. I feel for each one of you.You see I have my daughter with this same disease and other disease to go along with all this. She could not eat or swallow liquids for 6 1/2 months. You know her by her name, she is the one who gave me this site. Her name is Darlene Eschete from Bourg, Louisiana. I'm her mother Virginia Martin fr Houma Louisiana. You see I & her husband was the ones who stayed by her side 24/7 untill she got to the point where she could go back to her house and her husband could care for her. She had gotton off the feeding tubes. Was starting to eat and drink, and her strenght has come back. She still has the IVIG each month. Still on lots of medicines. These were rough times for the entire family.Just hang on and do whatever the doctor's suggest. It will take a long time but things will get better. Darlene and I and some of the family members turned to the lord for guidence and love and support. The Lord has helped us all pull through all this. He will help Josie and her family also...Believe in him and the Doctor's. She will pull through. Praying for her speedy recorvery, I Remain her friend for a lifetime. Virginia
Sent on Sunday, February 11, 2007 at 6:16:10 PM
myusacountry@yahoo.com


From Tom and Darlene Lund,
Mn

Josie, it is so good to see you at home and to play a little with you...I hope Mr Tom panda fave you lots of hugs...and you are off the next venture and we are praying for you and all that comes next. Much love, Tom and Darlene Lund
Sent on Monday, February 12, 2007 at 10:57:17 AM
lundlink@mac.com


From The Melby's,
East Bethel

Hi Josie,
We are praying ahead of these next few days and asking the Lord boldly and with great faith that the surgery goes perfectly and that you recover amazingly fast.
Hope you will come to our ranch to see the animals, go for a horse ride, tractor ride or even on the Red-Rider with Trenton as your Chauffer.
BLESS YOU and YOUR WHOLE FAMILY. We love you!
Brad, Connie, Trenton, Alexa, and Sondra

Sent on Tuesday, February 13, 2007 at 3:40:35 PM
bradley.l.melby@ampf.com


From Tom and Darlene,
across the street

Josie, Jo-Jo, we are with you...we are worried and we pray for you and your family...we are asking Jesus to hold you tight and for the doctors to be on their toes and to have the very best wisdom possible, Lord Jesus you know our Josie and how much we love her and want her to be well and lead a full life. Amen. Tom and Darlene Lund
Sent on Wednesday, February 14, 2007 at 10:13:12 AM
lundlink@mac.com


From Jackie Harris,
Albany, Oregon

Hi Josie! We are so thrilled that you had some special time at your home.It's great to know that you're getting stronger, ahhh, the wondrous medicine of home, family and furry friends! We will be sending big loving thoughts to you on surgery day, along with long distance invisible hugs of love to give you more strength. Love and prayers for you and your family, Jackie, Paul, Christie and Jan
Sent on Wednesday, February 14, 2007 at 5:08:42 PM
fordor40@comcast.net


From Britta Bloomquist,
virginia, MN

Josie!!! It is soo good to hear(read), that you got to go home forawhile. Even if it was only a few days, it is always great to be in your own environment. Give Dr. Vehe a tug on his tie the next time you see him from me! Happy Valentine's Day!!!!!! Love Always, Britta
Sent on Wednesday, February 14, 2007 at 9:44:14 PM
bitts75@hotmail.com


From Dornfeld's,
Edina

Josie,
Friday's Race Day! You can do it-your one heck of a fighter!
We'll be pulling/praying for you!!
Our Love The Dornfeld's

Sent on Wednesday, February 14, 2007 at 9:46:56 PM



From Alexa,
San Francisco

Josie,
Will you be my Valentine? I hope so because you are the sweetest little girl I know. I hope you had a Happy Valentine's Day and that you'll be back in your fancy room after your surgery. Me & my mom are going to think about you all day Friday.
Love, Alexa XOXOOXOXO
P.S. We're sending some cool nailpolish back with Mark. Hope you like it! :-)

Sent on Wednesday, February 14, 2007 at 11:29:07 PM



From Tom and Darlene Lund,
across the street

Josie, we are sure you are in the best hands that God can bring to you...we love you, we pray for you...be safe. Tom and Darlene
Sent on Thursday, February 15, 2007 at 8:47:02 AM
lundlink@mac.com


From Stephanie Blachowiak,
Edina, MN

Josie,
It is hard to believe your big day is almost here. I will be thinking of you all day long and sending good vibes your way. You are so strong and have such a fighting spirit. That spirit will carry you through tomorrow and the next few tough weeks. I'll be checking your webpage tomorrow for updates!!

Take care!!!

PS - I met your Grandma yesterday. She was here at Concord for Henry's Valentine's Day party. What a lucky girl you are to have such a nice Grandma!!

Sent on Thursday, February 15, 2007 at 9:01:52 AM
steblachowiak@edina.k12.mn.us


From Kim Lien,
Aberdeen, SD

Josie and family,
You are all a daily inspiration. All of my prayers will be with you. Fight hard and dig deep tomorrow!
Love,
Kim

Sent on Thursday, February 15, 2007 at 9:15:34 AM
jtabinc@nvc.net


From Joce,
Canada

Our prayers are with you .
Sent on Thursday, February 15, 2007 at 9:34:39 AM
efsjm@hotmail.com


From Dornfeld/Perseke,
Minnetonka

Josie,
You are such a strong little girl! Our thoughts and prayers will be with you and your family this Friday during your tummy surgery. You are an inspiration to us all and we know your incredible toughness will help pull you through!
Our love,
Jackie, Paul, Kelsey

Sent on Thursday, February 15, 2007 at 9:42:00 AM
jkdornfeld@comcast.net


From The DeFoes,
Brooklyn Park

Josie, you are in our thoughts and prayers daily. Keep up the fight, and we hope tomorrow's surgery is a success and you are back home with your family soon.
Sent on Thursday, February 15, 2007 at 11:19:30 AM
mjdefoe@hotmail.com


From Vicki Pierson,
Chattanooga, TN

Hi Josie,

I have Dermatomyositis too, except I'm 44 years old. I'm sending all of my love and prayers to you. You are a brave and courageous little girl, hang in there sweetie!
Thinking of you,
Vicki

Sent on Thursday, February 15, 2007 at 11:21:01 AM
vpierson@primusweb.com


From Christine. xx,
England.

Good luck for tomorrow dear Josie,My thoughts are with you and your lovely Family.
Carry on being strong.....

Love Christine DM/ILD England. xx

Sent on Thursday, February 15, 2007 at 12:02:35 PM



From Shannon Luepke,
Eau Claire, WI

Letting you know that I am keeping Josie and all of you in my prayers with her big day approaching -- God can definately work His miracles on each of us and I pray he will show His great Love to you, your family, Josie, the doctors and all their support staff, and that you can share this message with others. I am praying for victory, although I know it has and will be a long battle.
Sent on Thursday, February 15, 2007 at 12:08:33 PM
luepkefamily@sbcglobal.net


From Paula Vicker,

Josie & Gang -
Will be thinking of all of you tomorrow, your big day. I know you have been strong through all of this and will come through with flying colors! Stay strong little one... Godspeed.

Sent on Thursday, February 15, 2007 at 12:13:04 PM
pvicker@comcast.net


From Martin,
Germany

My thoughts and prayers are with you, particularly to-morrow, my little buddy. Keep soldiering on the way you have all along- there will be better days to come

Love

Martin

Sent on Thursday, February 15, 2007 at 12:19:26 PM
martinbames@netscape.net


From Marilyn Wilmot,
Josie, I think everyone in Bradenton, FL. is routing for you. I know Gordon and I are!!!!!!! Keep up your stiff resolve tomorrow (Friday), and prove how tough you can be! We will be thinking about you all day long.
Sent on Thursday, February 15, 2007 at 12:45:20 PM



From Justine Riley,
Fredericksburg, VA

Dear Jay, Deb, Josie(!), and all the Deeber family,
Our family has been following your blog and praying for all of you for the past few months. May God encourage and bless you according to His will. We will be praying tomorrow!!! Love from the Riley family in Virginia

Sent on Thursday, February 15, 2007 at 12:46:24 PM
justpatriley@comcast.net


From Gwynneth,
England


Best of luck for your big day tomorrow. You are a brave little girl.I will pray for you and your family.

Love from Gwynneth DM

Sent on Thursday, February 15, 2007 at 1:12:47 PM



From The Hake's,
Chanhassen MN

Josie -

We've been praying for you, your mom and dad, siblings and doctors since we first learned of your battle with this disease. Today and tomorrow we will very specifically be praying for God's guidance on the doctors and nurses hands during your surgery, for complete healing for you and for strength for your family during this time of surgery and recovery.

Josie, your spirit amazes and inspires us! Keep fighting little lady!

Chad, Jill, Carson and Callin (a fellow Dora lover!!)

Sent on Thursday, February 15, 2007 at 2:00:40 PM
jhake9@mchsi.com


From Ellie,
UK

All thoughts and good wishes with all of you for tomorrow, God bless you {}
Sent on Thursday, February 15, 2007 at 2:13:00 PM



From Lisa,
Hastings, MN

I have been following your website since I saw you on the news. I was really touched by your story. I have a little girl and I started imagining what it would be like to go thru all that you have gone thru. I can't even imagine! You have been and will continue to be in my prayers, especially on Friday. You are a strong little girl Josie and oh so adorable. Keep on fighting the fight and you will be a grand champion.

God Bless your entire family.

Sent on Thursday, February 15, 2007 at 2:27:25 PM



From Mikel, Susan, and Anthony DeFoe,
Brooklyn Park

Hi Josie,
Although we don't know personally you, we feel like we do. My wife, son, and I have been following your weblog page daily for many months now. We have witnessed your ups and downs, good times and bad. We went to your dinner and had a nice time. We continue to admire your great courage and strength in living with this awful disease. Remember to always keep fighting and never give up! We will be praying for you tonight, specifically asking God to guide your surgeon's hands. We hope all goes very well, and that you have a full and speedy recovery! Wishing you many happy and healthy days ahead!!!
We will continue to check your page for updates.
Take Care, and God Bless you and your family!

Sent on Thursday, February 15, 2007 at 4:12:14 PM
mjdefoe@hotmail.com


From Holly Thiede,
SLP, MN

Hi Josie! Happy "late" Valentine's Day! At our Morning Meeting today, Evelyn told the children about your big day tomorrow (Friday). We will all be thinking about you and saying prayers for you. Stay strong young lady!
Sent on Thursday, February 15, 2007 at 4:19:51 PM
HandThiede@aol.com


From JOAN AND JIM WOBBLETON,
MURRELLS INLET,SC

PRAYERS FOR YOU AND YOUR FAMILY FROM THIS SIDE OF THE USA.
JOAN AND JIM WOBBLETON

Sent on Thursday, February 15, 2007 at 6:24:38 PM



From The Brubaker Family,
Minneapolis

Thought and prayers headed your way. We're looking forward to celebrating Josie's recovery with you.

Max Brubaker and the Brubaker Family (RBI)

Sent on Thursday, February 15, 2007 at 7:20:59 PM
KBrubAC@aol.com


From Jill,
San Francisco

Dear Family: I am a friend of Aggie Varady's and have been visiting your website. This record of your family's 'adventure' will be invaluable to all four of your children when they grow up and seek some understanding about the way this experience affected them. It is a record of love, understanding, humor, fear and stress - real life! Be strong tomorrow.


Sent on Thursday, February 15, 2007 at 7:30:27 PM



From Sue and Ralph Harrison and kids,
Minnetrista

Dear Josie,
We are all praying for smooth sailing tomorrow in your big surgery! You are such a courageous and amazing girl!!
You and your family are in our thoughts and prayers, especially tomorrow. Be strong and keep fighting!
Love,
Sue,Ralph,Matthew,Julia and Scott Harrison

Sent on Thursday, February 15, 2007 at 8:11:26 PM
ralph.susan.harrison@frontiernet.net


From Franklin,
Sterling, Kansas

Josie, For one so young you are such an inspiration to me. I will pray for you and your upcoming surgery. Be strong and God bless. Franklin
Sent on Thursday, February 15, 2007 at 8:29:22 PM
fhg687@msn.com


From Lynn Shadle Gabriel,
Victoria,MN

Dear Josie,
The presence of the Lord is all around you. May He wrap his arms around you and hold you tight. I pray He be the guide to the surgeon's hands and wisdom. Amen You can not deny that He has been, is and always will be with you. You are an amazing miracle to get to this incredible place of stregnth. surrounded by you entire family filled with love and laughter for a bit-the best medicine. Those parents of yours sure know what they are doing. and amazing dr.s they are. Have Faith Josie, He has great things in store for you. We will see you soon. There is a train ride with your name on it in which Blake and Faith will save a seat! Looking forward as you heal completely and no more tummy aches!
We Love You!
Blake, Faith,Lynn and Stan

Sent on Thursday, February 15, 2007 at 9:41:05 PM
lrshadle@earthlink.net


From Deanna Welch,
Edina, MN

Josie-
You and your family are in my thoughts and prayers constantly...especially tomorrow. God bless you all.

Sent on Thursday, February 15, 2007 at 9:49:37 PM
deawelch@edina.k12.mn.us


From Kerri Yokubonis,
Eden Prairie

I have just recently heard about Josie from friends at CPC. What an amazing and courageous little girl you have!! Josie and your family will be in our thoughts and prayers as you go through this difficult time. We will pray for a successful surgery and for Josie to be healed completely. May God wrap his loving arms around you and give you strength. God bless all of you.
Sent on Thursday, February 15, 2007 at 10:48:15 PM
kyokubonis@aol.com


From Teresa Vortouni,
Irvine, California

I will be praying for Josie all day on Friday..God bless
Sent on Friday, February 16, 2007 at 12:03:13 AM



From Caroline & Ed Gaiser,
Fresno, CA

We send our heartfelt prayers to Josie as she goes into this new challenge.

With love to you all,
Caroline & Ed

Sent on Friday, February 16, 2007 at 2:47:42 AM
c_gaiser@hotmail.com


From Joan Jim Wobbleton,
Murrells Inlet,SC

It's 7:15 am here in SC and we have been thinking and talking about Josie this morning. We imagine you are in the OR and the skill of the physicans will be needed today to accomplish this very daunting task. The task of taking this little girl and making things better inside of her body. We know that there is another surgeon,healer,that will be guiding the hands and decisons today these surgeons. We hope that the day will provide some beginning of healing and closure to this very long and difficult part of this wonderful childs life. I imagine that mom and dad will be waiting and know that strength will be tested.
Prayers for all of the family.
Love Joan and Jim

Sent on Friday, February 16, 2007 at 7:26:31 AM
jwobb@aol.com


From Nona and Rob,
Minneapolis

Josie, the medical team and your family are in our thoughts and prayers.
Sent on Friday, February 16, 2007 at 7:34:13 AM
nmbergh@comcast.net


From The Shewbridges (Michelle, Chris, Taylor & Rachel),
Aberdeen, MD

Josie & family ~ the first thing I did when I got up this morning was think of you. I'll be checking in all day and saying a prayer. I've been reading your journey everyday since September. My little girl Rachel has JDM also. You are truly an inspiration and such a fighter. You have more strength in that little body then we can only hope to have one day. God bless you and your family. Rachel and our entire family are thinking of you!!!!
Sent on Friday, February 16, 2007 at 7:36:23 AM
chrisshew@comcast.net


From Shelley Danzberger,
Minneapolis

Hi
I haven't ever sent you a note before, but I check Josie's web site everyday. My family and I are praying for you today a whole lot more than we do on most days. I looked at my clock at 6AM and thought all of you getting ready. I hope you can feel the prayers...there are SO MANY of them. I am looking forwrd to having this day OVER. I can't wait to hear that Josie did great and she's in recovery!! Take comfort in knowing that God is with her.

Sent on Friday, February 16, 2007 at 7:48:49 AM
erepeat@aol.com


From Lisa Heilman,
La

Dear Jay and Deb,
We are heading up to Giants Ridge, but know that we have been praying for Josie and the surgeons. You will be in our thoughts throughout the day and hopefully we will be able to get on a computer to check in.

Lisa

Sent on Friday, February 16, 2007 at 7:57:49 AM



From Sara Carrigan,
Rosemount, MN

I'm thinking about you today Josie!
Sent on Friday, February 16, 2007 at 8:11:13 AM
sjcarrigan@charter.net


From the Lunds,
across the street

Josie, it is 8:20 and Grandpa Tom and I have been praying since early this morning. We know that you are leaning on jesus and he is holding you in the palm of his hands. Love to Mom and Dad and Grandpa Larry and Grandma Sue. Tom and Darlene Lund
Sent on Friday, February 16, 2007 at 8:22:29 AM
lundlink@mac.com


From the Lunds,
across the street

Josie, it is 8:20 and Grandpa Tom and I have been praying since early this morning. We know that you are leaning on jesus and he is holding you in the palm of his hands. Love to Mom and Dad and Grandpa Larry and Grandma Sue. Tom and Darlene Lund
Sent on Friday, February 16, 2007 at 8:22:39 AM
lundlink@mac.com


From Nancy Hanneman (Donna Abramson's sister),
Eden Prairie

Josie and family,
You are in my thoughts and prayers today and every day. God bless you and the entire medical team.
Nancy

Sent on Friday, February 16, 2007 at 8:29:40 AM
nahanneman@hotmail.com


From Stephanie Blachowiak,
Brooklyn Park, MN

I'm praying for you, Josie!
Sent on Friday, February 16, 2007 at 8:40:54 AM
steblachowiak@edina.k12.mn.us


From Lindsey Gorski,
Mom from Fraser

Josie and your family is in our thoughts and prayers today. I hope that knowing so many friends and strangers are pulling for her gives you extra strength. With such strong parents, she's got a lot going for her.
Sent on Friday, February 16, 2007 at 8:41:15 AM



From The Belchaks,
Albuquerque, NM

Add us to the list of people praying on your behalf today.
'BE STRONG AND TAKE HEART, ALL YOU WHO HOPE IN THE LORD' Psalm 31:24

Tim & Mona
Sarah, Jacob & Caleb

Sent on Friday, February 16, 2007 at 9:05:09 AM
tabinabq@comcast.net


From Angie Ott,
Eden Prairie

We are fellow members of CPC, and have been following your site and praying for Josie and your family for awhile now. Just wanted you to know today that we are sending up extra prayers for Josie's successful surgery and for your continued peace and comfort through the next difficult days. May God hold you all in the palm of his hand.
Sent on Friday, February 16, 2007 at 9:22:00 AM



From Casey Jasper,
Aviston, IL

Good luck with your surgery today Josie!! I'll be watching for updates. Thinking of you always!
Sent on Friday, February 16, 2007 at 9:26:09 AM
caseyjasp@yahoo.com


From Lynn Shadle Gabriel,
Victoria,MN

Hang in there guys!
thank you for the updates. we're all with you.
Love,
Blake, Faith, Lynn Stan

Sent on Friday, February 16, 2007 at 9:42:23 AM
lrshadle@earthlink.net


From Joey Benedict,
Oregon

My prayers are with you Dad and Mom. What a hearthbreaking ordeal you have been through. The Lord is with you and little Josie. What a trooper! I have been following Josie's progress for months and have shed tears several times. But she's going to make it through this. Jesus loves Josie!!!
Sent on Friday, February 16, 2007 at 9:43:50 AM
joeykb@comcast.net


From Anne Coblentz,
Novi, MI

Hi Josie, You are in my prayers today and always. You are such a strong little girl.

Anne Coblentz

Sent on Friday, February 16, 2007 at 10:07:57 AM
lcoblentz@twmi.rr.com


From leigh Anne,
Maine

How wonderful that is! Our prayers are working...we will continue to pray for that beautiful girl.....


Sent on Friday, February 16, 2007 at 10:24:19 AM
supajut@msn.com


From Maria Vetsch,
Centreville, VA

Your doctor is absolutely right about the anethesiologist - having a great one seems to make all other things go well!!
Sent on Friday, February 16, 2007 at 10:39:47 AM
mariavet@cox.net


From Stellons,
Richfield

We can't be at CPC today but our prayers are big for Josie and the whole Adams family, especially today.

Since the anethesiologist is in charge of the operating room, why not have the best? Sounds like a FANTASTIC team of physicians with big hearts. She deserves nothing less.

You're in our hearts and on our minds "extra" today.

Sent on Friday, February 16, 2007 at 11:35:56 AM
StellonE@aol.com


From Dan Rockers,
CPC

Prompted here by friends Dave and Lisa Hintermeister, to offer our support. MANY people connected through prayer for your beautiful daughter today. It's very powerful - thank you for sharing your lives in this way.
Dan Rockers and Family

Sent on Friday, February 16, 2007 at 12:09:36 PM



From Kay Stalcar,
Richfield

Jay & Deb,
Our hearts and prayers are with you guys and little Josie today. Praise God for this good news so far! Hang in there!
Love Kay

Sent on Friday, February 16, 2007 at 12:25:03 PM
kstalcar@cojlbc.org


From The Rileys,
Virginia

So happy to hear things are going so well! We'll keep Josie and her doctors lifted up in prayer.
Love from the Riley family in Virginia

Sent on Friday, February 16, 2007 at 12:52:17 PM
justpatriley@comcast.net


From Dan Anderson,
CPC

I went down to the chapel at about 11:45 for our prayer gathering and did not have the last three reports. Wow! We have been praying that God will do immeasurably more than we could ask or imagine ~ for God's glory and Josie's benefit. This is more than we could imagine. There were about 40 or so folks who showed up to pray for the surgical team, your family and Josie. You have precious friends and a great God!
Sent on Friday, February 16, 2007 at 12:57:52 PM
danderson@cpconline.org


From Shelly Nelson,
Although God is in the business of miracles, it is always suprising to see one in action. How cool is the no-whipple decision? The wonderful staff at CPC lead an amazing prayer session for all of you at the exact time of the surgeons' decision. Whoa...I am so excited to see what happens next in Josie's saga. We love you guys and celebrate today with you!
Sent on Friday, February 16, 2007 at 1:39:37 PM



From Stephanie Blachowiak,
Brooklyn Park

Wow - what a rollercoaster! I'm so glad to hear that things are going well - even better than expected. See Josie, there are angels taking care of you!

I'm looking forward to reading more positive news!


Sent on Friday, February 16, 2007 at 1:56:16 PM
steblachowiak@edina.k12.mn.us


From Leslie,
All of the prayers being lifted to God must sound like a heavenly chorus! God is holding all of you in the palm of His hand. Thank you for sharing your journey with us. It has allowed us to be witness to God's love for us and see miracles at work. Much love to you all.
Sent on Friday, February 16, 2007 at 2:13:05 PM



From Lynn Shadle Gabriel,
Victoria,MN

Josie, Josie,Josie! What a wonderful day. Make no mistake we recognize that we have seen the glory of the Lord. He has shone His Glorious self upon you and layed His healing hands. It is nothing short of an incredible miracle the healing that your body has! There are so many tears of Joy! It really is Joy for Josie. Seeing all the folks in attendance praying for you this afternoon was very special. we pray for a perfect and quickened healing for you.Amen. God Bless you! big hugs.
Love,
Blake, Faith, Lynn Stan

Sent on Friday, February 16, 2007 at 2:21:20 PM
lrshadle@earthlink.net


From Mark, Aggie, & Alexa,
San Francisco

No Whipple today... hooray!!!! What a relief for everyone who is following little Josie's progress. We are sending you every bit of love & best wishes on this all-important day. Let this be the beginning of a new chapter in all of your lives. No one deserves it more than all of you, especially Josie. Give that little angel thousands of kisses as soon as you can, one from each of her many, many supporters. XOXO

Sent on Friday, February 16, 2007 at 2:22:15 PM



From Joan Jim Wobbleton,
Murrells Inlet,SC

Thank you for all of the updates. We are reading each and every one of them.
Joan and Jim Wobbleton

Sent on Friday, February 16, 2007 at 2:33:35 PM
jwobb@aol.com


From Daniel Reeves,
Saginaw, Michigan

Josie and all,

I hope all is going well and will be saying a prayer for you. I hope everything starts going well for you and you start feeling better. I know this is a bad disease for someone so young, I have PM but I am a 58 yo male.

best wishes to you and your parents,
Dan PM

Sent on Friday, February 16, 2007 at 3:03:25 PM
drrreeves11@aol.com


From Bob, Sarah, and Jillian Arnold,
Minneapolis

Heal, Josie, Heal. We are all praying for you and your family.

Thanks for keeping us updated, Jay.

Love,

Bob, Sarah, and Jillian Arnold

Sent on Friday, February 16, 2007 at 3:15:31 PM
rja@teemaster.com


From Todd and Melanie Liljenquist,
Minneapolis

Josie has truly touched our hearts. We think of you all and pray for you often!

Sent on Friday, February 16, 2007 at 3:28:42 PM
toddandmel1@msn.com


From Holly Thiede,
SLP, MN

Yeah Josie! I am soooooo HAPPY to hear that the surgery went so well! I have been thinking about you all day....

I will be checking in for updates!

Sent on Friday, February 16, 2007 at 3:32:27 PM
HandThiede@aol.com


From Noelle,
Rosemount, MN

Josie-
I have been reading the updates all day!!! I am so glad things are going well! Hang in there and getter better.

Sent on Friday, February 16, 2007 at 3:38:58 PM
unidiva3@aol.com


From Marilyn,
Bradenton, FL.

Congratulations to ALL of you!!!! We are sooo relieved, as are, I KNOW both of you! Three cheers for those doctors! That picture says it all!!!! It is amazing that anyone could figure out what tube leads where, never mind, to what body part it connects!! We are so happy for you and proud of Josie. Keep up the good work!
Sent on Friday, February 16, 2007 at 3:46:28 PM



From Megan, Jason, Bridget & Molly Rose,
Richfield, MN

Hi Josie!!

We're praying for you, and are glad to hear that you're out of surgery. We love you and hope to see you very soon!!!

Sent on Friday, February 16, 2007 at 4:22:20 PM
mmwenaas@gmail.com


From Doran,
Richfield

Jay and Deb and Josie,

We are so happy to see Josie out of surgery. So many people have been praying for you all day!! Only Josie would have a giant smile on her face on her way into major surgery!! What a fighter. I guess that is what to expect from and Adams!!We love you guys!!

Dorans

Sent on Friday, February 16, 2007 at 4:25:51 PM
doran-home@mn.rr.com


From Michelle Darr,
Blaine

Hey Josie and family,
So glad to hear the news. I have been thinking about you since the moment I got up and I will keep praying for your recovery. I was reading update #6 with laughter and then tears. I will keep checking in and thanks so much for all the updates.

Sent on Friday, February 16, 2007 at 4:30:15 PM
darrboys@aol.com


From The Madsens,
Richfield

Jay, Deb & Josie - We're so happy to read the good news!!! We'll continue to pray for Josie and her recovery. Thanks for the updates during the day.




Sent on Friday, February 16, 2007 at 5:20:38 PM
madsen@mcleodusa.net


From Sara Carrigan,
Rosemount, MN

Josie-

You continue to amaze me with your strength and courage. I will be thinking of you during your recovery!

Sent on Friday, February 16, 2007 at 5:27:24 PM



From Donna,
Richfield

Singing praises to the Lord, what wonderful news. I have been thinking of all of you all day. So happy for all of you, blessings to sweet little Josie!
Sent on Friday, February 16, 2007 at 5:40:38 PM
donnaabramson@hotmail.com


From Pete Magnuson,
Grantsburg

Hey Josie,
Awesome to here that your sx went so well. Look forward to visiting you again soon...maybe I can coax a smile from you next time.
Pete

Sent on Friday, February 16, 2007 at 6:25:31 PM



From Alexa,
San Francisco

I told all my friends at class today to cross their fingers for you. Hooray for today!!!!
Sent on Friday, February 16, 2007 at 6:55:34 PM



From EDITH SCHMITZ -PAUL,
MEXICO CITY


HUGS AND KISSES, DEAR JOSIE. I AM SOOOO PROUD OF YOU !!!

Sent on Friday, February 16, 2007 at 7:25:21 PM
edithsp@prodigy.net.mx


From Kris, Jill, Trigve and Annika,
Richfield

Way to go EVERYONE!!! Phew! We continue to send healing thoughts your way and hope the recovery continues without all the setbacks of last year!!!
Is it too early to reserve that nice room again? ;-)


Sent on Friday, February 16, 2007 at 7:25:38 PM
kris@teamfriday.com


From susan zachman,
st. michael

Deb,
We are so glad to hear good news about Josie's surgery! Praise God and all the angels watching over her. Our children all know who Josie is and are keeping her in their prayers. Josie has become a little name that you hear quite often in our house now as we check up with you most every day.
It is hard to know what to say to you, your entire family is going through a very difficult time. Please just know that many prayers are being said for your family from this area.

Love, Susan (Schwenzfeier) and Dale Zachman
Jared, Brandon, Noah, Matthew, Chelsea, Joseph & Thomas





Sent on Friday, February 16, 2007 at 7:45:14 PM
zachfam@usfamily.net


From Jill,
Hi Guys!

We all have big smiles on our faces when we think of Josie today!! Hooray!! She is such a fighter. You guys worked soo hard for Josie to enjoy a few precious days at home and now she is fighting super hard on her big day of surgery. We couldn't be happier... she definately deserved a break. We hope she has a smooth recovery.

Take care!! We are thinking of you all.

Lot's of love and hugs from the Saastads!!!


Sent on Friday, February 16, 2007 at 8:37:14 PM



From Emily Carlsons,
Lake Tahoe

Hey All - just checking in from Lake Tahoe. We have been SO excited reading the good news over the course of the day! What great news!!! Our thoughts are with you all!

Emily, Jim, Sammy & Nisi

Sent on Friday, February 16, 2007 at 8:39:31 PM
emilyjimcarlson@msn.com


From Wendy,
Richfield

Jay and Deb,
I just checked in and read your latest blog. You guys have been in our hearts all day! I am glad to hear that the procedure went well today!!!! Thanks for keeping us all updated. I honestly do'tknow how you do it all.

Bless you, get rest when you can and know that we are all rooting for Josie!!

Wendy, Zach and Elliott Hays

Sent on Friday, February 16, 2007 at 8:48:06 PM
wshortha@vischool.org


From Caroline & Ed Gaiser,
Fresno, CA

We are so thankful that Josie made it through this day as well as she did. Our continued good wishes and prayers go to you all.

With love,
Caroline & Ed

Sent on Friday, February 16, 2007 at 9:06:58 PM
c_gaiser@hotmail.com


From jan,

we've been checking your updates all day, Deb and jay. so glad to see postive news, wow, what a tough gal. Gear West is cheering for you all....
Sent on Friday, February 16, 2007 at 9:20:15 PM
gearwest@gearwest.com


From Cindy Schmitz and family,
Albertville

Our family and a lot of people from the area have been praying for Josie and your whole family. We are very glad that things went so well today. We will keep on praying for a miraculous recovery after this surgery and for strength for the family. God Bless you


Sent on Friday, February 16, 2007 at 10:22:52 PM
bschmitzfamily@aol.com


From Kathy Weiler,
Chicago this weekend

The miracle of medicine, faith and love was surely evident today. We watch Josie's progress with a new hope that things will only get better. Our thoughts and prayers are with you. The Weilers
Sent on Friday, February 16, 2007 at 10:42:35 PM
kathy.weiler@woodburyfinancial.com


From Kit Odom (I'm a "she":),
Dallas, Tex.

Good for you, Josie, for coming through this day with such flying colors! You have my thoughts and prayers for the better days that are to come.
Sent on Friday, February 16, 2007 at 10:42:47 PM
jenningsfarm@earthlink.net


From Debbie Minter,
Roanoke VA USA

Hello, I just wanted to say that Josie is such an incredible girl. I am praying for her recovery both from this surgery and hopefully for a remission from this nightmare of DM. You (meant collectively here) think you have problems and then this makes you literally get on your knees and thank God for all that you really have in your life, the good and the not so good. She, as well as you, her family are quite an inspiration. God Bless, Debbie
Sent on Friday, February 16, 2007 at 10:46:08 PM
cuts2nv@gmail.com


From Sue Dornfeld,
Edina

Today is a day we believe in the power of prayer,parents that will anything for their children,and no doctors are not over paid.
Sent on Saturday, February 17, 2007 at 12:25:05 AM



From DH,
Blaine, MN

Thank God!
Sent on Saturday, February 17, 2007 at 12:52:03 AM
mdhhsu@gmail.com


From lynne cecil,
blmgtn

yeah josie!!! wow, you really are amazing. we are so grateful for your dad's posts so we can be with you in spirit more thru all of this. keep it up. you are an inspiration. love you, lynne
Sent on Saturday, February 17, 2007 at 6:10:06 AM
lynne_cecil@yahoo.com


From Julie,
Punxsutawney, PA

Josie is in my prayers. I always read to see how she is doing. i have an 11yr old who was dx'd in 9/06 with JDM. Right now she is doing well. Keep on the right track Josie and keep up the faith, things can only get better.
I am so glad to hear that this latest surgery went well. Stay strong and keep fighting. That is all we can do.

Love,
Julie & Jade Kunselman

Sent on Saturday, February 17, 2007 at 6:54:03 AM
julied@windstream.net


From The Stattine Family,
Edina

Josie,
We are so happy that everything went well! You are such a stong and brave girl. We are thinking and praying for you!

Sent on Saturday, February 17, 2007 at 7:00:27 AM



From Daniel Reeves,
Saginaw, Michigan

Josie,

Good morning hope all is going well.

Prayers and best wishes,
Dan PM

Sent on Saturday, February 17, 2007 at 7:26:33 AM
drrreeves11@aol.com


From Rhonda & Marty Hutchinson,
South Point, OH

I am compelled to write to this beautiful child. When I received the prayer request thru email, I couldn't tear myself away from reading each day her father has logged. I have 6 grandchildren and one of them is a 4 yr old granddaughter. I want the Deeber family to know I am prayng for JOSIE and for their entire family. God made this beauiful child, and He is a God of miracles. He can touch her and help her through all of this. Let all who hear about Josie JOIN TOGETHER IN PRAYER FOR THIS CHILD AND HER FAMILY.
Sent on Saturday, February 17, 2007 at 9:15:20 AM
hezcoming@yahoo.com


From Thomas Lund, Tom & Darlene ,
across the street

Josie...you look just beautiful!!! We can't wait to see you smiling at us...it won't be long. Praise the Lord!
Sent on Saturday, February 17, 2007 at 9:42:56 AM
lundlink@mac.com


From Jackie Harris,
Albany, Oregon

Good Terrific, Miraculous, Fantastic, Glorious morning!!!!!Thank God, The Adams family, the Skilled and caring Doctors and whole team in surgery and all those prayers for a great job well done!! This is one of those hard-to-beat events of life for sure. I liken it to getting the brass ring on the carousel, it feels wonderful. Thank you Jay for your devotion to keeping everyone so well-informed. Your writings have made us feel as though we have been there with you all along Josie's adventure. We will continue praying for you all and intend to stay with you throughout this unique trip. Congratulations, Josie!!! Love from your Oregon cousins.
Sent on Saturday, February 17, 2007 at 10:32:54 AM
fordor40@comcast.net


From Karen Herman,
Edina

Josie and Family,

We have been praying for you day and night, night and day. You are such a model of patience, love, joy, and diligence. I even told other believers and friends to pray for Josie...my PEO sister in Christ, hockey playing moms, Moms in Touch moms, Trip's Sunday school buddies.....we love you all and REALLY are trying to be prayer warriors for all of you!!! Thanks for keeping us up-to-date with your beautiful blog!!1

Love in Christ,
Karen Herman

Sent on Saturday, February 17, 2007 at 10:36:45 AM
KBherman@comcast.net


From The Melby,
WAY TO GO JOSIE - We have been praying and praying for you!
Sent on Saturday, February 17, 2007 at 11:05:38 AM



From Amy K,
Burbank, CA

I'm so happy to read that Josie's made it through this surgery nicely. I now pray that she heals quickly & it giving you all trouble sooner rather than later, metaphorically speaking of course. For this will mean that she's well on the road to recovery and on to being a little girl again who can play outside with her siblings!

Bless all of you!

Sent on Saturday, February 17, 2007 at 12:13:13 PM
amy@cosabellaevents.com


From Zara King,
Norfolk, Nebraska

To brave little Josie, Our prayers are with you. To see this in an adult would be hard enough, but a little girl. Love her little smiles like nothing is wrong, so resillient at that age. Mum and Dad, my heart goes out to you. Zara
Sent on Saturday, February 17, 2007 at 6:15:57 PM
zara1305@yahoo.com


From Maria Vetsch,
Centreville, VA

Isn't modern medicine amazing? Go Josie! Tubes and all. Deb and Jay, you are truly living all that we have been through with Andrew - I know how it feels to have your child go through these procedures and surgeries. I pray you stay strong and focused on getting Josie back to where she needs to be. The time seems to pass so slowly when you have to wait and watch for signs of progress. I hope the nurses are able to help you touch and hold Josie inspite of all the tubes - touch is very healing.
Sent on Saturday, February 17, 2007 at 9:42:39 PM
mariavet@cox.net


From Lauren Murray,
Carver, MN

Hi Josie,

I just wanted to let you know that I am thinking of you. I hope that your recovery goes well. Your 3 year old friend, Lauren Murray.

Sent on Sunday, February 18, 2007 at 11:15:44 AM
epatmurray@hotmail.com


From madlon glenn,
north carolina

what an incredibly brave little girl. The courage exhibited by the entire family is overwhelming.

You will all be in my prayers.
Madlon

Sent on Sunday, February 18, 2007 at 9:35:19 PM
kglenn@triad.rr.com


From The DeGeorgeos,
Minneapolis

Hi Josie, Deb, Jay, and the gang!

Our thoughts and prayers are with you. Heal strong! May peace be in your hearts as you go forward with each day.

Love,
Mike, Su Ann, Julia, and Joey

Sent on Sunday, February 18, 2007 at 11:41:25 PM
mdegeorgeo@hotmail.com


From Terri & Bailey Peterson,
Ramsey

Josie,
We are so proud of you, sweetie! We're praying for your pain to be managed very well over these next few days and for that temp to produce ZERO infections. That central line is going to be wonderful for you (and your nurses/mom & dad!) and give your little arm some more freedom now. We're keeping you very close in our prayers each and every day. You are one amazing little girl and we are all so proud of you! Say "hi" to the nursing staff and Dr. Saltzman from Bailey for us. They are the greatest and you are in the very best care (but you all already know that). God Bless you all.

Sent on Monday, February 19, 2007 at 7:41:58 AM
terri4design@mac.com


From Sara Carrigan,
Rosemount, MN

Josie-

It is so nice to see your smile! I hope your recovery goes smoothly and quickly!


Sent on Monday, February 19, 2007 at 8:10:05 AM



From Rosemary Finch,
Charlottesville, VA

I have just found Josie's story, but want to add my good wishes to her and all of her family. Having three little granddaughters, ages 4, 2, and 2, with another one on the way, my heart goes out in a special way to your little angel. She is amazing as well as beautiful! I have her as well as her family in my prayers. As a person with Polymyosits for 20 years, I do know a little bit about DM. Some of my doctors actually think that is my disease too. At any rate, may God bless all of you in a very special way.
Sent on Monday, February 19, 2007 at 8:41:28 AM
dcfrhf@aol.com


From Anne Coblentz,
Novi, MI

Hi Josie, What a beautiful smile. God Bless

Anne Coblentz

Sent on Monday, February 19, 2007 at 5:25:27 PM
lcoblentz@twmi.rr.com


From The Thompson's,
Alpharetta, GA

Continued thoughts and prayers are with Josie, parents, siblings, doctors, family, and friends. What a courgeous little girl and family!!! May God Bless you!!!
Sent on Monday, February 19, 2007 at 6:10:57 PM
jtsalescom@bellsouth.net


From Chrisite Adams,
Sharpsburg, GA

Hi Josie,

We are emailing you from Sharpsburg, GA - Gary, Christie, Eric and Brynn. Eric (Age 4) was diagnosed with JDM in March 2006. We want you and your family know that we are thinking about you and sending many prayers your way. Your Mommy and Daddy must be so proud of you !

Wishing You MANY Blessings of Good Health.
Gary, Christie, Eric and Brynn Adams

Sent on Monday, February 19, 2007 at 6:36:38 PM
gandcadams@yahoo.com


From Kathleen,
Irving, Texas

Lord have mercy. I too had the whipple and i am going to have the iselt cell transplant, but I am 37!! Dear lord, my heart ached and poured out to ya'll when I saw this little girl having the whipple. I am enclosing a link t my blog so you can read about my whipple if you want. I had it 2005 Nov. http://badpancreas.blogspot.com/ I am so totally here for you if you have any questions, or just need to talk. It is a long journey. God Bless, Kathleen
Sent on Monday, February 19, 2007 at 7:14:18 PM
katseye1969@yahoo.com


From TOM & DARLENE LUND,
ACROSS THE STREET

JOSIE, WE LOVE YOUR SMILE...KEEP ON SMILING!
Sent on Monday, February 19, 2007 at 7:34:13 PM
LUndlink@mac.com


From Marilou Pederson,
Edina

AMAZING!
Sent on Tuesday, February 20, 2007 at 9:13:32 AM
mariloupederson@hotmail.com


From Kay Stalcar,
Richfield

Josie,
You are totally amazing! I can't believe you are sitting up and coloring! Way to go!! Keep it up.

Sent on Tuesday, February 20, 2007 at 10:56:02 AM
kstalcar@cojlbc.org


From Martin,
Germany

Boy, you are a trooper, little buddy! Thinking of you,

Martin

Sent on Tuesday, February 20, 2007 at 10:59:50 AM
martinbames@netscape.net


From The Melby's,
East Bethel

Josie,
We'll all keep praying - you keep coloring!

Sent on Tuesday, February 20, 2007 at 3:07:02 PM



From Riley, Leslie, Ben and Sam,
Wow-that picture of you just sitting up in bed just makes my tummy hurt to look at it-but not YOU!!! You are certainly our little version of the Energizer bunny with all of the lickins you taken and you just keep tickin. Get stronger every day little Josie and before you know it you will be home and giving your brothers and sister a rum for their money!! Ben and Sam's grandma and grandpa just got off a big ship from Hawaii and the first thing they asked about was little Josie!! So many people are thankful for your slow but steady improvement. We love you!
Sent on Tuesday, February 20, 2007 at 4:09:01 PM



From Rachael,
Vegas

Hi guys!

Just checking in, thinking about Josie, glad things are going well! The conference is going fine! See you soon!

Love,
Rachael

Sent on Tuesday, February 20, 2007 at 7:05:04 PM
rholicky@hotmail.com


From Verla,
Sun City

Dear Josie, You looked so beautiful sitting there coloring. Your hair was fixed so cute and I am so happy for you and your Dad and Mom and all of the family. Glad the surgery is over and went so well. We will continue to pray believing you will be well and home soon to stay. Keep up the good work and hang in there. Keep smiling!! You are sure an inspiration to us all. We love you all. Thank you so very much for keeping up up to date on the surgery and how Josie is doing Jay. We really appreciate your doing this. Bye for now. PRAISE THE LORD!!!
Sent on Wednesday, February 21, 2007 at 1:22:58 AM
memaw-v@hotmail.com


From Lisa Heilman,
Lakeville MN

Hi Josie! You amaze us with your courage and strength!! We are so happy you are already feeling like doing a little coloring! We'll visit soon!!
Lisa

Sent on Wednesday, February 21, 2007 at 7:13:37 AM
lheilman@frontiernet.net


From CINDY,
ST.LOUIS MO

AMAZING IS REALLY ALL i CAN SAY ABOUT EVERYTHING i HAVE READ ABOUT WHAT IS GOING ON WITH JOSIE. YOUR DAUGHTER IS SUCH AN INSPIRATION FOR ANYONE. MY NEICE IS ALSO SUFFERING FROM THIS DISEASE, THAT IS HOW I CAME UPON THIS WEBSITE.THANK YOU FOR UPDATING THIS SITE EVERDAY I LOOK FORWARD TO READING AND HEARING GOOD THINGS. YOUR FAMILY IS IN MY PRAYERS.........CINDY
Sent on Wednesday, February 21, 2007 at 6:27:49 PM
wnder4@yahoo.com


From Sue Moen,
Sumner, WA

Way to go, Josie. We've been out of town for the last few weeks but were thrilled to read how great you're doing. You've been in my prayers daily. Stay strong Mom & Dad.
Sent on Wednesday, February 21, 2007 at 9:03:04 PM
sumick@comcast.net


From Jackie Harris,
Albany, Oregon

Hi, Josie! We're so happy for you and your progress. Being the youngest in my family, I have always held true to my motto "KEEP 'EM GUESSING", just like you! It not only makes things more interesting but the love that shines as a result is Soooo incredible! Love and prayers to all, Your Oregon cousins.
Sent on Thursday, February 22, 2007 at 11:18:50 AM
fordor40@comcast.net


From Kelly Gardner,
Idaho

I have been following Josie's story since October and I just want to say I truly respect and admire Josie and your family's ability to deal with such a trial. After seeing Josie's struggle, I realize that I truly have no problems. Josie's battle, and your family's battle sure puts things into perspective for the rest of us. Thank you so much for being so dedicated to this website to let the public know how Josie is doing daily. I look forward to reading the updates every single evening. Y'all are always in my prayers and I am believing for a miracle. Josie's strength and endurance never fail to amaze me. She is a very special little girl who is truly blessed with a wonderful family who obviously loves her dearly.

God bless,
Kelly Gardner

Sent on Thursday, February 22, 2007 at 12:49:12 PM
busymom6@ida.net


From Donnell,
Lemoore, CA

My 6 yr old daughter, Emily was diagnosed with this on 7/29/06. Our lives pretty much started off the same way, but yours has been much worse. I awoke this morning @ 3:15 am and got on line, much to my suprise meeting you. What a pleasure this has been to hear of you journey. You have been down a very rough road, but I belive that you are well on your way to recovery. I am looking forward to you daily entries to hear of the progress of your little Princess. I will open your site up for Emily to look at today when she complains about having to take her daily meds and let her be thankful that she only has to take 7 pills instead of what you guys go thru on a daily basis. Take care and please continue with the daily entries. You do such a great job that it has truly painted a picture in my head. Give her hugs and kisses from California.....
Sent on Friday, February 23, 2007 at 8:30:00 AM
enicks@kingscoe.net


From Gammie,
Bradenton, Florida

My darling little angel, It made my heart soar to hear your voice on my answering machine wishing me a happy birthday. That was the best birthday present I think I've ever had. I only wish I had been home to hear your voice(almost) in person. I miss you, little one. I love you very much... Hugs, from Gammie
Sent on Friday, February 23, 2007 at 3:27:06 PM
lee2beach@aol.com


From Ella and Lucy,
Canton, GA

Dear Josie, I hope you should feel better because I want you to feel better really soon. I would cry if that happened to me. Love Lucy (4 years old)

Dear Josie, I hope your feeling a little better. I think you're very brave. Love, Ella

Sent on Friday, February 23, 2007 at 5:11:22 PM
ccketron@yahoo.com


From Aggie & Alexa,
Thank you God for listening to our prayers & granting us this miracle. Jay & Deb, I couldn't be any happier for your family. It's so wonderful to read about the good things happening for Josie (and three major good ones in a single day... unbelievable!!!), finally, after so much suffering. But we won't stop praying until she's home & living the life of a happy, healthy four-year-old that's just waiting to get back to the business of being her adorable self! What am I saying?? We will NEVER stop mentioning Josie in our prayers!
Sent on Friday, February 23, 2007 at 11:54:52 PM



From Stellons,
Richfield

Yea, for the three good things! Now we want three MORE! Keep it up, Josie! You rock!
Sent on Saturday, February 24, 2007 at 2:18:01 AM
stellone@aol.com


From Dee Dee Woodard,
Las Vegas

Dear Josie and family,
You are an inspiration! My 2 1/2 yr old askes me to show her pictures of you daily. She knows you by name. She's very sympathetic to what you have been going through. You have provided us with the opportunity to teach her about praying for others. To teach her about God. She and I say a prayer every day for you. And now she can see the miracle of God working in you. Mom and dad, you have been an inspiration to me. Patience like non I've ever seen, faith that things will work out and yet you still have humor about you. Dad you crack me up sometimes. Might I suggest to you.. you get a copy of the dvd "The Secret".. it will show you that you've been living the Secret and look at all the positives that have come your way. May God bless you all. I'm so happy for your successes after so many challenges.

Sent on Saturday, February 24, 2007 at 10:30:52 AM
deedeelynn1@hotmail.com


From Virginia,
Louisiana

Hi Josie, I am so so happy to hear that you are doing so well.Our prayers are with you daily. Hang in there. You will have good and sometimes bad days.The Lord is watching over you along with all the angels in heaven..Really appreciate what your family is doing, with this website.I get up each morning and go to my computer to get an update of how things are going on with you. Stay strong Josie and fight this battle. You will win, but it will take a while. Hugs to you and your family..
Sent on Saturday, February 24, 2007 at 5:12:03 PM
myusacountry@yahoo.com


From Holly Thiede,
SLP, MN

Hi Josie! Happy one week anniversary (after surgery!)

I am so happy to hear how well things are going for you! I'll bet you and your family are happy to be out of the ICU!
I hope that you have had a chance to peek out your window today...there is sooooo much white, fluffy snow! I have a feeling, the way things are going, that it won't be long before you are outside enjoying it! Stay strong and keep up that awesome excersise routine of biking around the hospital. It will pay off!

Sent on Saturday, February 24, 2007 at 8:12:42 PM
HandThiede@aol.com


From Jackie Harris,
Albany, Oregon

Hi Josie! Just read the good news today. Congratulations! You and your family soooo deserve a huge dose of positive results like today's. We're thinking of you with lots of prayers, Your Oregon Cousins.
Sent on Saturday, February 24, 2007 at 9:18:35 PM
fordor40@comcast.net


From Doran's,
Richfield

Josie,
Sorry to hear that you had a bad day. We just want you to know that we are all thinking about you everyday and praying for you to get better soon. We are glad you got out to see all the fresh snow!! There are so many people in this world thinking about you every day. Your life is changing the way we all look at our own lives!! We love you and can't wait for you to come home!! Just think of all the fun we will have camping this summer. Stay strong, and remember that you are loved!

Dorans

Sent on Monday, February 26, 2007 at 12:41:58 AM
doran-home@comcast.com


From Sara Carrigan,
Rosemount, MN

Josie-

I'm so glad you were able to get out and enjoy all of the snow. Hang in there!

Sent on Monday, February 26, 2007 at 6:30:24 AM



From Darren Ruschy,
Mars for the most part

Josie I have to tell you that my daughter Sarah is your age and talks of you often. We look at the pics and talk about being sick and how much it must hurt. Sarah is 5 and draws pictures for you once in a while. She is really looking forward to a play date! Darren
Sent on Monday, February 26, 2007 at 1:59:27 PM
darren.ruschy@us.benfieldgroup.com


From Priscilla Moreno,
San Francisco

Hi Josie and Family!
Do you still have the mermaid I sent you? I have a matching one in my room to remind me of you and pray for you to get all better. My DM friend, Rachel, just saw a specialist at John Hopkins that is supposed to be 'the best there is' for juvenile DM. It may be worth looking into if the Doctors near you are not sure what to do next. Feel free to ask if interested.

{Jay - A couple of weekends ago, I took a coached a team of girls at the USA Cross Country Championships in Boulder, CO. They won first place and I got to warm up and cool down with them (some of the best high school runners in the country). I never imagined I could even run a step (let alone 2 or 3 miles) with those girls...even if it was just a warm up. I may not be ever able to race at that level again, but it was great to see I could still be a part of it}

Getting better is a very long and bumpy process, but it happens...just slowly.

Also, a firefighter at my mom's work told me his mom suffered from a terrible case of DM for 5 years that had her bed ridden...then slowly, it just went away out of nowhere. She's now 60 and has never had a relapse.

I was happy to see the pictures Josie on the PT bike! Keep up the good work! It is very important to keep up the exercise to prevent too much muscle damage. Exercise prevents nasty scar tissue that would end any potential to salvage damaged muscle cells. When this is all over someday, I will buy her a shiny new bike with streamers and training wheels (aerobars to be added later).

Keep up the toughness! You are always in my thoughts!

Priscilla

Sent on Tuesday, February 27, 2007 at 11:18:02 AM
priscillamoreno@gmail.com


From Aggie & Alexa,
San Francisco

Hang in there Adams family...
It just feels like this is the last corner for Josie to turn, then she'll be sprinting for the finish line. She's coming home for good soon, just hang in there a little longer. Josie, all of our love to you sweetie. You are the most amazing gal in the world! XOXOXO

Sent on Wednesday, February 28, 2007 at 12:32:28 AM



From Jackie Harris,
Albany, Oregon

Hey, Josie! Just got caught up on the last few days events. I guess nobody has clued-in that lazy bowel that it's definitely time for some "audience participation" on its part. Well, we'll be thinking "moving" thoughts for you, girl! Lots of Love and Prayers to you, Your Oregon cousins.
Sent on Wednesday, February 28, 2007 at 10:41:23 PM
fordor40@comcast.net


From Tammy,
Keene, NH

Hi Josie, let's think about going skating soon!I was looking back at the photos when you were home and that ice sure looks nice!!Say hi to your folks and brothers and Evie too!
Hugs, Auntie Tammy

Sent on Wednesday, February 28, 2007 at 10:51:40 PM



From Bob Arnold,
Mendota Heirghts, Mn

Way to go Josie! Welcome back to the tube-less, drain-less pooping world! You'll be home in no time.

Have your Dad tell you some good poop stories from his college days - you'll sure get a kick out of them.

See ya soon -

Bob, Sarah, and Jillian Arnold

Sent on Thursday, March 01, 2007 at 6:29:06 AM
rja@teemaster.com


From Donna,
Congrats on a fabulous day, Josie deserves it!
Sent on Thursday, March 01, 2007 at 6:46:52 AM



From Michelle Darr,
Blaine

Hey Josie,
So good to hear the great news of you being able to "POOP". I have had a smile on my face this snowy morning knowing that things are getting better. I hope you get to enjoy the new snow!

Sent on Thursday, March 01, 2007 at 8:41:50 AM
micdarr@edina.k12.mn.us


From Stalcar's,
Richfield

Josie,
It is so great to see you doing so well. I love the picture of you in the car. Keep it up, can't wait until you can go home.

Sent on Thursday, March 01, 2007 at 10:26:46 AM
kstalcar@cojlbc.org


From Jackie Harris,
Albany, Oregon

Congratulations, JOSIE! We are so thrilled to hear of your"MOVING" experience! Keep on Poopin' on! Your Oregon cousins.
Sent on Thursday, March 01, 2007 at 11:05:22 AM
fordor40@comcast.net


From Patrick Walsh,

Buttermilk?
Sent on Thursday, March 01, 2007 at 11:28:56 AM
pwalsh@pchealthcare.com


From Chrisite Adams,
Sharpsburg, GA

Josie,

We have been keeping up with your progress - atta girl !!! Lots of hugs from Georgia. Yeahh! for Mom and Dad too :)

God"s Blessings to All of You,
The Adam's Family in Georgia
Gary, Christie, Eric and Brynn
Eric (4) Dx w/JDM 3/06

Sent on Thursday, March 01, 2007 at 1:57:38 PM
gandcadams@yahoo.com


From Paul Doran,
FL

Hi Josie,

Nice work!!! You are an amazing kid!!

See you soon,
Paul

Sent on Thursday, March 01, 2007 at 5:39:12 PM
paulddoran@comcast.net


From Lynn Shadle Gabriel,
Victoria,MN

Josie, I looked for "poop balloons" but just couldn't find any! Know that we are celebrating anyway! It is soooooooo...nice to hear of your progress. I pray that you are feeling better and better and stronger every day.We love hearing how you are doing and we cheer you on! When you are about 16 and reading back on this particular week,I would pay large sums of money to witness your reactions! It's all good Josie! ;-) you are doing awesome. You are so special.
Our love and prayers,
Lynn, Stan, Blake and Faith

Sent on Thursday, March 01, 2007 at 11:41:19 PM
lrshadle@earthlink.net


From Sara Carrigan,
Rosemount, MN

Josie-

What a fun time in the snow! Keep smiling...you look beautiful!

Sent on Friday, March 02, 2007 at 7:43:27 AM



From Britta Bloomquist,
Virginia, MN

Josie looks so peaceful laying in the snow, it is like she knows things are getting better. There really was an angel watching over her, and she too, is an angel! Happy SNOW day! All the schools including colleges are cancelled up here in St. Louis County, MN! Have a great weekend!
Sent on Friday, March 02, 2007 at 9:35:11 AM
bitts75@hotmail.com


From Beth Stellon,
Richfield

Looks like a perfect angel to me, snow or no snow!
Sent on Friday, March 02, 2007 at 1:02:57 PM
StellonE@aol.com


From Emily,
CA

Hi Josie you are a strong littel gril for a 4 yearold
and i am 7.I hope you get better SOON!I love you Josie!

Sent on Friday, March 02, 2007 at 2:46:46 PM
enicks@kingscoe.net


From Holly Thiede,
SLP, MN

Hi Josie! I love your snow pictures! It is a lot more fun to play in the snow than to just look at it, huh?

Keep up the crazy bike rides and I am keeping my fingers crossed for some poop!

Sent on Friday, March 02, 2007 at 3:41:42 PM
HandThiede@aol.com


From Jackie Harris,
Oregon

Hi, Josie! Oh, I do believe your Snow Angel is by far the most beautiful one I have ever seen! You truly are a special Angel yourself to give us all such a fine example of courage and strength. I will forever think of you as the most inspirational person I know of. Thank You so much for making my day!!! Lots of Love and prayers for Poop, Jackie
Sent on Friday, March 02, 2007 at 5:47:13 PM
fordor40@comcast.net


From Stephanie Blachowiak,
Brooklyn Park, MN

Hi Josie and Family,
You're doing great - it so good to see you out and about enjoying the snow. I'll keep my fingers crossed for gut movement and some poop!!

I loved the picture of the snow angel.

Lots of love!!

Sent on Friday, March 02, 2007 at 8:20:46 PM
steblachowiak@edina.k12.mn.us


From TOM AND DARLENE LUND,
JOSIE, I LOVED SITTING WITH YOU, EVEN THOUGH YOU WERE ASLEEP...OR MAYBE PRETENDING. EITHER WAY YOU ARE BEAUTIFUL. WE LOVE YOU OUR LITTLE FAMILY ACROSS THE STREET.
Sent on Sunday, March 04, 2007 at 11:32:45 AM
LUNDLINK@MAC.COM


From Scott & Kipling Lang,
Waseca, Mn

Dear Josie and Family,

Shannon Luepke let us know of your plight, and we just wanted to let you know you are in our thoughts and prayers.

Sent on Sunday, March 04, 2007 at 3:44:40 PM
stl@mchsi.com


From Christie Adams,
Sharpsburg, GA

Hi,

We read your updates daily. We are all thinking about All of you and sending good thoughts and prayers your way.

Gary, Christie, Eric and Brynn

Sent on Sunday, March 04, 2007 at 7:38:29 PM
gandcadams@yahoo.com


From Chris Marshall,
Maple Grove, MN

Josie:

You continue to amaze and inspire us on a daily basis. You have such a strong spirit. I sure hope you will be able to go home sooner rather than later. So far, it looks like you are making good progress!

Stay strong little lady and fight on!

To the whole Adam's family...we miss all of you and look forward to seeing you all hopefully very soon!

We love you all very much!

Chris & Rachelle Marshall & Family

Sent on Monday, March 05, 2007 at 4:01:40 PM
crmarshall27@comcast.net


From Caty Adams,
Whitefish, Montana

Hi,
I want you to know that my family and I are praying for Josie. My nephew, Eric Adams, has this same disease and his mom gave us your web page. I just wept while I read about all that Josie has endured. Please know that we are praying for you.

Sent on Monday, March 05, 2007 at 8:46:01 PM
catyadams@centurytel. net


From Wyatt Quinlan,
Minneapolis

Hi Josie.
Sent on Tuesday, March 06, 2007 at 6:48:09 PM
aliciasquinlan@hotmail.com


From Scott and Lorrie Mitchell,
Austinville, Virginia

Hi Josie and Family,
My husband and I have been reading Josie's updates for about 2 months now. We just happened upon the site and I have been hooked ever since. I feel like Josie is a member of the family. I go to this site everyday. When my husband arrives home at night he asks me "How is Josie?" Its kinda weird how we have never me each other but my husband and I feel so close to your family. We pray for you Josie and your family everyday. We hope you continue to improve and get home so you can be with the dogs and cats and your siblings. Maybe you will be out on the ice showing the others how it is done. Take care Josie and stay strong!!!!!!!!!!!!!!

Sent on Tuesday, March 06, 2007 at 8:29:22 PM
lorrieemitchell@aol.com


From Jennifer,
Maple Grove

Hi, My name is Jennifer Nygaard, Troy Nygaard's wife!
Josey is such a cute little girl, so special she is! I can not imagine wht you all are going through but we have 2 girls of our own so I can imagine how you feel a little! Your family is in our prayers! I hope you can go home soon!

Sent on Wednesday, March 07, 2007 at 1:34:42 PM
jtknygaard@yahoo.com


From Stephanie Blachowiak,
Brooklyn Park, MN

I also wanted to say - way to go with the eating!! I bet that cottage cheese tasted heavenly!

Lots of prayers!!

Sent on Thursday, March 08, 2007 at 9:12:26 PM
steblachowiak@edina.k12.mn.us


From Verla,
Sun City, Az.

Dear Josie, Jay, Deb, and family,
You looked so beautiful dressed like a surgeon yesterday Josie!!!!!! Praise the Lord!!!!! I am so happy that you were able to go out to a restaurant and have a meal like a normal family. It must have been a thrill for all of you!!! Keep up the good work and we will all keep up the prayers. Just waiting for the day when you can go home and begin a life full of fun and vigor and get back to everyday things. Take good care. We love you all and are really happy for the way things have progressed. We are praying for you constantly. Love and Prayers, Verla

Sent on Friday, March 09, 2007 at 12:21:29 AM
memaw-v@hotmail. com


From Jackie Harris,
Albany, Oregon

HELLO, Josie! So happy to read of your continued progress. Very impressive indeed! It's especially wonderful to see your family got to enjoy a fun time at the restaurant with you. Wishing you more wonderful steps to your recovery with every day. Lots of Love and Prayers, Your Oregon Cousins.
Sent on Friday, March 09, 2007 at 9:58:35 AM
fordor40@comcast.net


From Holly Thiede,
SLP, MN

Hi Josie!

A cruise around the hospital on your bike, a walk outside in the sunshine and dinner with your whole family in a restaurant....sounds like a great day!

Sent on Friday, March 09, 2007 at 10:40:23 PM
HandThiede@aol.com


From The Adams,
Sharpsburg, GA

Hi,

Still cheering you guys on from Georgia. Josie's continued improvement is a miracle - just amazing what she has endured !

Best Regards,
Christie, Gary, Eric and Brynn Adams

Sent on Saturday, March 10, 2007 at 8:46:11 AM
gandcadams@yahoo.com


From Andria,
Austin, TX

Hello,

I just popped in to read the latest, and I am so happy to see all the positives for Josie! It really is miraculous :-) Please know that I keep you all in my prayers, and I have asked the folks at my new church here in Texas to pray for Josie as well.

Take care, Andria

Sent on Sunday, March 11, 2007 at 5:30:21 PM
akmdvm@yahoo.com


From Jackie Harris,
Albany

Hi, Josie! Just got caught-up on your latest news in Nauseaworld. We're pulling for you and feel sure, like the hurdles you've cleared in the past, you'll soon be biking on a smoother track. Hang in there! Love and prayers to you from Oregon.
Sent on Wednesday, March 14, 2007 at 10:44:06 AM
fordor40@comcast.net


From Kris, Jill, Trigve and Annika,
Richfield

Phew, tough to ride out those waves of nausea! I'm glad that at least they are fewer and farther between-we're hoping they go away SOON!! Hang in there! We've got lots of Dolphin and Friends crackers for you, so you can show the GI team that you can eat a WHALE!!!!
You are an adorable little (big) inspiration to us all!

Sent on Friday, March 16, 2007 at 8:22:53 AM
kris@teamfriday.com


From Lindsay Sumrow,
Minneapolis

Dearest Josie,
You look beautiful in the picture with your face in the sun, giving your dad such a lovely smile. God has given you such a wonderful family to be with you during such a tough time (understatment of the century). We are praying that your body will continue to do what it's supposed to and that the wretched throwing up and feeling so icky will stop soon. Hang in there, Little One. We're all cheering for you in this race you're running and winning! Sending much love your way,
Lindsay, Kyle, Emma and baby in my tummy Sumrow

Sent on Friday, March 16, 2007 at 9:25:17 AM
lsumrow@moneygram.com


From thomas Lund, Tom & Darlene ,
across the ice rink

Hi Josie, we are so proud of how hard you work at standing and walking...pretty soon you will be walking Burkey and We'll take Sugar Bear along too. We love you and look forward to seeing you real soon. Much love. Tom and Darlene
Sent on Saturday, March 17, 2007 at 8:13:02 PM
lundlink@mac.com


From Josie's Digestive System,
Your stomach


Dear Josie -

Sorry about all the problems recently. We don't mean to make you throw up so much, it's just that, with all the moving and shaking from the surgeries, it takes us all a while to settle down.

Duodenum say's she's feeling better, and is on the mend. Liver says he's still grumpy, and will continue to be swollen for a while. Pancreas says hello, and small intestine can't wait for some ice cream.

We hope that you can bear with us for a few more months. We promise you will feel better soon, and that we will stop making you throw up.

Tell your Dad to keep the daily blog going - it's tough to hear down here, and that's the only way we can find out what's going on outside.

Say Hi to your Mom and brother's and sister, too.

We can't wait to get home also.

Love,

Your Digestive System

P.S. - Did we tell you that we really like ice cream?

Sent on Monday, March 19, 2007 at 12:07:40 PM
josie's stomach@gmail.com


From Your Oregon Cousins,
Albany

Hi, Josie! Loved to see you "clowning around" with your funny friends for St. Patrick's day. Just goes to show that every day has an improvement, and each and every one, no matter how small, is reason to celebrate! Which it appears that you know how to do VERY well! So celebrate each day in your delightful way! Love and prayers, Jackie.
Sent on Monday, March 19, 2007 at 6:08:00 PM
fordor40@comcast.net


From Stephanie Blachowiak,
Brooklyn Park, MN

Hi Josie and Family,
I'm glad to hear your physical therapy is going well and that you have lots of spunk these days. I hope the icky, pukey times go away soon. You are doing so well - all those prayers and positive vibes must have done some good... along with your fighting spirit.

Keep plugging away!! I think about you and read your blog every single day!!

Sent on Monday, March 19, 2007 at 8:04:10 PM
steblachowiak@edina.k12.mn.us


From Mira Mihajlovic,
Canberra, Australia

Hi, so pleased to see the progress Josie is making.
Just wondered if she is taking pro-biotics (ie 'good' tummy bugs like acidopholous(?) to counteract the effect of all the antibiotics?
best wishes, from Mira and family.

Sent on Wednesday, March 21, 2007 at 12:04:38 AM
lesmira@bigpond.com.au


From Aggie, Mark, & Alexa,
San Francisco

Friday?? THIS FRIDAY???!!! Going home for good??Unbelievable! We are so thrilled for you that words cannot convey our joy (and relief). Josie is living proof that miracles still occur and angels really do watch over our precious little children. Congratulations, Jay & Deb. It's been a helluva year for you guys.
XO

Sent on Wednesday, March 21, 2007 at 12:03:40 PM
aiv1026@aol.com


From Holly Thiede,
SLP, MN

Hi Josie!

I am so happy to hear that your tummy has been feeling better and that you have been having some fun on your feet (walking) and bike! Keep up all the hard work so that your muscles and bones keep getting stronger and stronger.....
Soon you will be home riding your own bike with your brothers and sister!


Sent on Wednesday, March 21, 2007 at 3:10:04 PM
HandThiede@aol.com


From Christie Adams,
Sharpsburg, GA

God Bless You Josie ! I am sitting in the middle of my bed crying tears of joy for you. I read your Dad's postings daily.

Sent on Wednesday, March 21, 2007 at 5:41:12 PM
gandcadams@yahoo.com


From Sara & Gumper,
Rosemount, MN

Josie-

Keep riding that bike and walking! I am keeping my fingers crossed that things continue to go well and you can go home on Friday.

Thinking about you everyday!

Sent on Wednesday, March 21, 2007 at 5:49:07 PM
sjcarrigan@charter.net


From Lynn Gabriel,
victoria MN

Dear Josie,
"wow! you mean she will get to play with her own toys and sleep in her own bed?!" Blake excaimed."I am so happy! that's just great!" beaming with a huge smile. We are so happy for you Josie. Can't wait to race you on a bike. sounds like you are quite a challenge.
Love,
Blake and Faith

Sent on Wednesday, March 21, 2007 at 9:35:38 PM
lrshadle@earthlink.net


From Marilyn,
Bradenton, Fl.

Josie and family,

What GOOD news!! Hope that Friday WILL be THE day, for the excursion home. We will keep our fingers crossed(and toes!) Keep up the good work, Josie!!!!!!! We are in your corner.
Happy Birthday, Henry! It was my husband, Gordon's birthday, also, on Wednesday! Wonderful people were born on that day!

Sent on Thursday, March 22, 2007 at 10:32:55 AM



From Holly Thiede,
SLP, MN

Hi Josie!

It is such a sunny, beautiful Minnesota day today! I hope that you had an opportunity to sneak outside for a couple of minutes to enjoy it! Your big sister,Evie,was soooo excited when she walked into our Kindergarten Classroom this morning! The first thing she said was, "Josie is coming home tomorrow!" Yeah.....Josie!!!

Sent on Thursday, March 22, 2007 at 3:00:27 PM
HandThiede@aol.com


From Thomas Lund, Tom & Darlene ,

HI Josie, we are looking forward to seeing you soon....at home. We love our little family across the street. Tom and Darlene Lund
Sent on Thursday, March 22, 2007 at 7:57:40 PM
lundlink@mac.com


From Jenny,
Louisiana

Hi Jodie, So glad you are feeling better, hope you can go home tomorrow. If only the throwing up would stop.Don't you think it may be the drug========================== Sulfamethoxazole/Trimethoprim (prophylactic(preventive) antibiotic also known as Bactrim)======================
that you may be allergic to. I say that because my son was little he was put in the hospital for test to see why he was throwing up and had fever for over a month. It all boiled down to the Bactrim that he was allergy to, got off and no more fever and no more throwing up. Something to look at and talk to the doctors about.
Will talk again later, hope next time it will be when you are at home.. Hugs and prayers going your way...
Jenny

Sent on Thursday, March 22, 2007 at 8:55:58 PM
myusacountry@yahoo.com


From Maria Vetsch,
Virginia

Hi Deb, Jay and kids,

Great to read the small steps in the right direction. We continue to pray that she will be able to go home soon. By this time your patience is to be idolized. I am amazed what a parent can endure when a child is sick. Then there is the child who continues to amaze by enduring the illness by getting through the bad and enjoying the other times in spite of environment and stuff attached to them. Your family is truely exceptional.
On another note - that is an impressive drug list - one that I am well familiar with. I have worried myself about how long a child can take those potent medications. Having lived through it with Andrew, the body can handle alot. The only long term effect from medication was hearing loss. Looking at the list Josie is not taking that type of medication. Andrew has had most of the others for extended periods of time and his liver and spleen are now in great shape. The one thing that I have noticed on him is that his rib cage is still larger than normal due to his liver being so large for so long. His ribs adjusted to accomadate for the enlarged liver. Hopefully, you will soon be able to start taking away medications rather than adding to the list - it seems everytime one gets added, there is another that is added to help with side effects.

Hang in there!

Sent on Thursday, March 22, 2007 at 9:08:50 PM
mariavet@cox.net


From Paula,
Look at the day gifted to Josie for her departure home!!! What a beautiful Friday ordered just for Josie. Angels will carry you all home safely and watch over her.
Enjoy this day which will be the start of many, many good days for Josie and the family!


Sent on Friday, March 23, 2007 at 8:27:58 AM



From Deanna Welch,
Edina

Happy Homecoming, Josie! I'll be thinking of you and your family as you make your journey home. Keep your big brothers in line!
Sent on Friday, March 23, 2007 at 9:30:32 AM
deawelch@edina.k12.mn.us


From Stellons,
Richfield, MN

Hi, Josie! We're sure your already know this, but "only you can prevent forest fires!" Hope you had fun with Smokey the Bear. He's a friend of Jim's.

Have a great time with your family at home!


Sent on Friday, March 23, 2007 at 10:10:04 AM
StellonE@aol.com


From The Madsen,
Richfilel

My tears at seeing you home would overflow that melted ice rink! What a WONDERFUL BLESSED sight!! We know a lot is ahead for you but this is one FANTASTIC step among many to better days. We are all thrilled for you (I just happen to be the one still up). Love ya, Josie - Karen -- along with Tom, Sarah, Emily and Paul
Sent on Saturday, March 24, 2007 at 1:20:40 AM



From Ed & Caroline Gaiser,
Fresno, CA

Josie,

Congratulations! You're home! You look so happy. It will only get better from now on. Our continued love and prayers for your successful recovery.

With love,
"Aunt Caroline & Uncle Ed"

Sent on Saturday, March 24, 2007 at 2:42:10 AM
c_gaiser@hotmail.com


From Christine Nixone,
England.

Congrats Josie, you are such a brave and strong girl and love to you and your family.

So great to read about your first proper day home.

xx

Sent on Saturday, March 24, 2007 at 2:54:35 AM



From Cindy Schmitz,
Elk River

Welcome Home Josie! All of the prayers said for Josie and your family are certainly helping in Josie's recovery process. We continue to pray that things will go well with your big job of having Josie home. God Bless you!
Sent on Saturday, March 24, 2007 at 9:32:01 AM
bschmitzfamily@aol.com


From Holly Thiede,
SLP, MN

Hi Josie!

It made my morning when I read your update and saw the amazing pictures of you playing outside at your OWN house!!!
Way to go Josie!!! You are home!

Sent on Saturday, March 24, 2007 at 9:38:47 AM
HandThiede@aol.com


From The Heilman Family,
Lakeville MN

Yeah for Josie!!! Welcome home!! How fun to see you on the swing in your own yard. We can't wait to see you and your family.
Lots of love - Lisa Rich Lucas and Isaac

Sent on Saturday, March 24, 2007 at 10:23:31 AM
lheilman@frontiernet.net


From Britta Bloomquist,
Virginia, MN

CONGRATS on coming home JOSIE!!! You are such an inspiration to all. I hope you continue to heal and I hope it gets faster! Even though I do not know you, I have thought and prayed about you often. Many times when you would have procedures done, I would think "oh Josie is in surgery now" etc. You are bookmarked on my internet browser and I check it everyday. I came across it one day when I Google'd my doctor also, Dr. Vehe(I have seen him for about 3 years, I am 19 years old). He is a wonderful doctor! I hope that you all continue to post blog updates on here, as it will be cool to see Josie grow and heal. God Bless Your Family and Friends! :-)
Sent on Saturday, March 24, 2007 at 11:37:45 AM
bitts75@hotmail.com


From Shirley Fryer,
Calgary Canada

Hi Josie
I wish with all my heart that you will get well soon you are so brave and beautiful I also suffer from Dermatomositis
it's not a very nice thing to have so i send you lots of hugs and love

Shirley

Sent on Saturday, March 24, 2007 at 11:40:23 AM
shirleyfryer@hotmail.com


From Kathleen McJunkin,
Apple Valley

Congratulations!!! I am so excited for you. I can't imagine handling all of those medications. It was a celebration day from God for Josie with the beautiful day we had yesterday. Good Luck!

Kathleen

Sent on Saturday, March 24, 2007 at 12:16:13 PM
mcju0002@tc.umn.edu


From Kris, Jill, Trigve and Annika,
Happyfield

Richfield is a brighter and happier place today!
Way to go Josie!


Sent on Saturday, March 24, 2007 at 5:15:00 PM
kris@teamfriday.com


From Stellons,
Richfield

We're happy you are home, Josie! Have fun and keep getting better!
Sent on Saturday, March 24, 2007 at 7:42:13 PM
StellonE@aol.com


From Lynn Gabriel,
victoria,MN

Josie,
welcome home sweet girl! I welled up with tears as i explained to Blake and Faith 'who' that beautiful little girl was in her mother's arms in the pictures. They literally 'squeeled' in delight and disbelief when they realized it really was you, and you were really at home with your family. They cheered so loudly, i assumed you heard them all the way in Richfield! God has so vividly shown Himself thru you Josie. What a special little angel you are. We pray thanks and praise the Lord everyday and ask continued healing. Many tears of joy have been shed out here in Victoria!
Love,
Lynn,Stan,Blake,Faith

Sent on Saturday, March 24, 2007 at 10:44:05 PM
lrshadle@earthlink.net


From Maria Vetsch,
Centreville, VA

Hooray Josie is home!! Andrew and Austin were so excited to see her get out of the hospital. The first thing they said was our prays worked! Now they will pray for her to get completely healthy - kids have such great faith. Enjoy!


Sent on Sunday, March 25, 2007 at 10:36:16 AM
mariavet@cox.net


From Jordan Hill,
Dundas, ON

Josie, I have the same disease as you do. I know it is hard for me so it must be very hard for you. I am, however, 63 years old and a grandfather so maybe I can stand it better than you can at my age. I also had cancer, which is another story. I only can suggest that you get up every day, do you best for that day, be encouraged by little victories and ignore little defeats.

Get lots of hugs from family and friends. Always treat yourself well.

Sent on Monday, March 26, 2007 at 2:15:47 PM
jhill23@cogeco.ca


From Cary Hopkins,
The Woodlands, TX

Hello,

I'm sorry that I have to post this for everyone but I don't know how to email you personally. I was just reading about Josie and I'm sure you already know all the tricks to make her feel better, but just in case... Witch Hazel pads are great for a sore bottom and they might make her feel better. Also, there's a spray you can get that makes sore bottoms feel better too.
My daughter, who has myositis, got Salmenella one time and had the same symptoms that Josie has had with this. Throwing up and blow out diapers with severe cramping every thirty minutes. It was the worst thing we have ever been through and I have never seen anyone that sick. That was just for four days. I'm so sorry that you and your little girl are having to go through this. I will continue to pray for comfort and healing.

In Christ,
Cary Hopkins
The Woodlands, TX

Sent on Tuesday, March 27, 2007 at 2:52:01 PM
calvinistcary@yahoo.com


From Tom and Darlene Lund,

Josie, it is soooooooooooooooooo good to see you home again, playing and wanting to swing on your swing set and to see you smiling and happy! I love it that you are exercising so much too...keep it up and I'll be foot-racing with you soon. We love you and our little family across the street. Grandpa Tom and Grandma Darlene
Sent on Thursday, March 29, 2007 at 9:49:57 AM
lundlink@mac.com


From Lindsay Sumrow,
Minneapolis

Our hearts are soaring with the incredible news of the past two days. We pray that the change continues to stay on this upward path and that Josie and the rest of you can stay encouraged on this road to wellness. Blessings and continued prayer to you all.
Sent on Thursday, March 29, 2007 at 12:37:07 PM
lsumrow@moneygram.com


From Christie Adams,
Sharpsburg, GA

Hi Josie and Family,

We are still cheering for you in Georgia !

God Bless You and Your Family,
Christie Adams

Sent on Friday, March 30, 2007 at 7:59:08 AM
gandcadams@yahoo.com


From Jackie Olson,
Edina

I have been reading Josie's website religously since last fall. I have a 4th grader at Concord (and 2nd grader at Cornelia) at heard about her struggles thru the Crier. I am so happy to hear she is home and on the slow road to recovery.

I was thinking about something after reading the last post about her hesitation in walking. My 2nd grader has special needs and uses a walker for balance issues - he has just outgrown one so we've received a new one. His old one is sitting unused in our basement and if you think it might help sweet little Josie you can keep it indefinetly. Ask your PT - it is a good one (the "Bugsy" made by Otto Bock). It might just give her the confidence she needs and get some of the pressure of those tight heel cords.

I'll be cheering for continued progress!


Sent on Sunday, April 01, 2007 at 10:19:22 PM
gandjolson@aol.com


From Verla Atwell,
Sun City

Dear Josie and family,I am praising the Lord for your being able to be at home now. I know you have been waiting a long time to come home. You have been a very brave little girl and have had so much love and support. What a loving and caring family you have. We have all been so blessed by being a tiny part of all of your lives and watching the drama unfold. We thank you Jay for being so faithful to write the blogs every day so that we would all know how things are going for all of you. We know it hasn't been easy for any of you. Josie we know it is painful and very hard to force yourself to walk and do PT but you have been so brave and been through so much and now we pray and ask the Lord to help you to do the PT so that you will be able to run and play and do all of the things you want to do. We know you should just be able to rest now but you need to be strong for a little while longer and get the PT done so that you will be completely healed. We know that God is walking with all of you and that this phase shall also pass. Hang in there all of you. We will do our part and pray for you everyday. Keep on keeping on Jay, Deb, Trip Henry, Eve and Josie. We love you all and feel so privledged to be able to pray for you. God bless you all. Love and Prayers, Verla
Sent on Tuesday, April 03, 2007 at 2:00:03 AM
memaw-v@hotmail.com


From Bridget Peller,
Hutchinson, MN

I haven't posted a note since Josie's big party, but have been reading along and praying every day.

No doubt, you have thought of everything to encourage Josie to get up and moving. I wanted you to know of our daughter Caitlin's favorite way to get around when it was becoming harder because of her brain tumor. We would load up her dolly's stroller with Goldie and her diaper bag. Caitlin would push it to get to the kitchen for snacks or to the bathroom. The stroller provided something to lean on, but was wobbly enough to ensure that she really had to try hard. Might this work with Josie without her recognizing it as therapy?

Wishing you the best.

Bridget

Sent on Tuesday, April 03, 2007 at 9:24:39 AM
peller6@mchsi.com


From Jackie Harris,
Oregon

Hey, Josie! I hear PT is starting to get a bit boring for you. You know, those people aren't going to get paid for their work if they can't show that you can get around better. How about you do some "quiet" stretching on your own while you watch a movie? And I know that soon you will be able to walk with less owies and the PT folks will feel like they are really helping you! That would be nice to help someone feel good, too, eh? Well, I have faith in you and your strength, so, You go girl!!! Love and prayers for"Josie Stretches" , Jackie
Sent on Tuesday, April 03, 2007 at 2:18:20 PM
fordor40@comcast.net


From Alexa,
San Francisco

Happy Easter Josie! I hope the Easter Bunny brings you lots of candy. I finally took my Joy for Josie bands off now that you are home. I'll keep thinking about you. Bye for now.
Sent on Thursday, April 05, 2007 at 11:41:31 PM
aiv1026@aol.com


From Priscilla Moreno,
San Francisco, CA

Hi Josie,

I am very happy to log on to your blog today to see you looking better than ever. I know looking good and being healthy are not exactly the same thing, but looking good is still a much better sign than looking sick. The IVIG seems like it might be working better, and I'm sure your GI tract will get better over time (it's been though a lot). By next winter, you will be ice skating on that manmade pond of yours. I am doing well except for some small calcinosis on my index finger that I need to get checked out. CPK's good w/ no roids for 6 months, ESR good and IVIG 1x/month going well after over 1 1/2 years on it with little reduction in dosage. Eat your carrots b/c the prednisone is not very nice to your eyes (I just had to buy my first pair of glasses).

To Jay and Deb: PT is tough because it's SO difficult to recover...likewise, the feeling of soreness is the same feeling you get when your muscles are deteriorating. It's really scary when you cannot decipher between getting sick again or getting stronger. Josie's strength will come back gradually.

Have a great Easter Weekend! I hope Josie has a great Easter egg hunt!

Priscilla Moreno
DM, 2 Years & still living a very happy life

Sent on Friday, April 06, 2007 at 12:35:42 PM
priscillamoreno@gmail.com


From Stellons,
Richfield, MN

A certain someone at our house teaches a class called, "Boot Camp." Tell Josie if she doesn't start being more cooperative, you will send her to "Boot Camp." Tony and Jack will testify that he's a task master-- so will his class participants!
Sent on Friday, April 06, 2007 at 2:20:59 PM
stellone@aol.com


From jan guenther,
Hey there parents- so many decisions on how to handle little Jose in addition to treating her disease. What a marathon and I wish I could give you thumbs up from here, or a pat on the back,more patience... I am in big admiration. Jan
Sent on Saturday, April 07, 2007 at 5:00:32 PM



From Terri & Bailey Peterson, www.caringbridge.org/mn/baileygrace,
Ramsey

We love lame news. We're pretty happy to hear it! Have a Blessed Easter all of you. The kids are getting their molars ready for frozen Peeps all over the lawn today for the Easter egg hunt. (And hats and mittens, for sure). Take care, Josie and gang, and have another boring day with baby steps continued in the right direction.
Sent on Sunday, April 08, 2007 at 7:08:28 AM
terri4design@mac.com


From Lynn shadle Gabriel,
victoria,MN

Halleluja for walks and changing clothes, and being sassy!!! sure beats the days of the past! we are unlike the traditional media who believes that bad news makes good and interesting news. we celebrate with tears of joy to hear of a glimmer of a smile or scowl on dear josie's face! Thank you for sharing these milestones, as they far exceed the completion of any race, no matter how challengin it might be, as it is a fight for her life. More than a foot across a finish line is a 'one step forward' in PT. It's a bigger accomplishment for her than anything else in the world that a healthy person might try to accomplish! HIP-HIP HOORAY!!! Josie, you deserve a front page article of accomplishment on the NY Times! Braver and stronger than anyone I know!So,bring on the good news! Just maybe a well deserved break for you Jay to take a day off here and there, but we celebrate the healing more than the hurt. what a perfect Easter Blessing from God. we love you all!
Love,
Lynn, Stan, blake Faith,

Sent on Sunday, April 08, 2007 at 8:57:20 PM
lrshadle@earthlink.net


From Jackie Harris,
Albany

Hi Josie! Good to hear you are having some nearly normal and somewhat "boring" days,( as your Dad puts it!} Hooray for BORING days!!! But I must disagree with dear ol' Dad in that ANY thing you do certainly doesn't make for boring reading for his and your faithful readers. We all understand that Dad needs some fun times too, away from the keyboard, so congrats on the great strides you are making and rest assured that we all keep you in our thoughts and prayers.(And wouldn"t mind reading occasionally about some of your cute clothes-of-the-day selections or fun times with your family anyway!) Love and Prayers, Your Oregon Cousins.
Sent on Sunday, April 08, 2007 at 9:16:56 PM
fordor40@comcast.net


From Someone who loves you,
Minnesota

Happy Easter Adams Family!
Today, we celebrate new and everlasting life. I can't think of a better Easter story than Josie. Thank you so much for sharing your journey with us.

I truly believe we are all blessed by sharing Josie's strength, charm, and Grace with you. Like marathons and triatholons, this is a big challenge. We often can't believe that you thrive so well. We are here for all of you when you can't "power on" any more.

with tremendous love and respect,
KP

Sent on Sunday, April 08, 2007 at 10:45:39 PM
kporter@umphysicians.umn.edu


From Stephanie Blachowiak,
Brooklyn Park, MN

Hi Josie and Family,

I'm glad you're home from the hospital - even though you're probably missing that HD Plasma TV(at least your Dad is). Keep up the PT - even though it is hard.

I'm sending good thoughts your way every day!


Sent on Tuesday, April 10, 2007 at 9:46:32 PM
steblachowiak@edina.k12.mn.us


From Tom and Darlene Lund,
across the street

Josie...how about coming over to Grandpa Toms for a workout....you could be doing chin-up in Grandpas gym! And walking holding onto Sugar Bear...Let's talk! We love you, Grandma.
Sent on Wednesday, April 11, 2007 at 10:09:33 AM
Lundlink@mac.com


From Marilyn,
Bradenton

Bouncy, bouncy, Josie!! Hang in there, all--sounds as if everything is heading in the right direction. The exercise is always, a bummer!! Sorry to hear about the Easter interruption, but alls well that ends well!!
Sent on Thursday, April 12, 2007 at 11:08:24 AM



From Julie and Jade Kunselman,
Ringgold, PA

Josie and Family,

i want you to know that our family thinks about you oftern. You are such a strong little girl and have wonderful strong parents. Things have been so rough for you as i read all the posts from your parents. It is so much for a little girl to have to endure. To Josie's parents, what a rock you have been for her and the rest of your family. It has to be hard to deal with everything with Josie and have other children to make sure that they don't feel left out. My daughter Jade was dx'd with jdms in sept of 06 and she is my only child. I couldn't imagine having other children and make sure that they don't feel ignored trying to keep up with all these kids go through with this disease. My Jade by any means is not going through what Josie is going through. From what I have read about other kids, Jade seems to have a very mild case. Keep your spirits up and know that we think about you all the time. I keep tabs on what goes on with her. I check about every day to see if there is a new post.

Just know that you are in our prayers. Keep your spirits up Josie. It has to get better soon.

Love,

Julie, Jade Kunselman

Sent on Thursday, April 12, 2007 at 10:21:03 PM
julied@windstream.net


From Michelle Darr,
Blaine

Hey Josie & family,
I love the picture of the 4 kids with Grandma and Grandpa. Aren't Grandma's and Grandpa's great to have?

Sent on Friday, April 13, 2007 at 9:56:09 AM
micdarr@edina.k12.mn.us


From Lynn Gabriel,
Victoria, MN

now that is an interesting answer to prayer! oops! the "accident" provides an answer! That is awesome! we have been praying for a 'very obvious answer'for that tummy pain and for it to come to whomever,however, except at any additional pain to Josie.AMEN! Evidence once again that our Lord works in mysterious ways. i think it is fair to say, that to replace those panic explatives with huge thanks is accurate. That is such good news! That is a horrible feeling to be "green" all the time. I am praying that this will give you, Josie, motivation to exercise your precious body to more healing and stregth. You can do it! this is the part you know very well, being an incredibly strong 4 year old. Just play Josie, just play, dance, walk and "reach for the stars"! (otherwise known as 'stretch'!) Gives fresh light to the phrase "everything happens for a reason" ;-) I also have had the pleasure of meeting your most incredible grandparents in your photo. What precious souls you are surrounded by miss Josie. I am sure you already know that as their love for you and your whole family flows out of them like a beautiful waterfall. What a blessing to have loved ones.
If you put those skates on in the house with guards on, to wet your appetite, just in case you have any ideas of skating in the near future ;-), if you do your stretching and walking, we will take you to one of the indoor rinks for a spin around the ice!!! motivated yet? just because winter is gone doesn't mean you can't skate! I have spent may hours on that summer richfield ice...it's nice!
Much love,
Lynn, Stan, Blake, Faith

Sent on Saturday, April 14, 2007 at 12:13:51 AM
lrshadle@earthlink.net


From Kit Odom (I'm a "she":),
Dallas, Tex.

I've been lurking on your well written site since Josie's latest surgery. I'm so, so very happy to know that the vomit has abated since your wise removal of the longer G.I. tube! Yea! Vomiting is so miserable wretching! (BTW, could wretching, which vomiting certainly is, be the origins of "retching?).
Sent on Saturday, April 14, 2007 at 9:20:28 AM
jenningsfarm@earthlink.net


From Mike Hotz,
Minneapolis

Strange how some of those oops things work out. Glad to hear little Miss Josie is keeping things down and the tummy pain is better.
I was laughing though about the comment regarding determination. I can think of two people who are at least as determined as Josie. You and Deb. Seems Josie comes by it naturally. Given where you are I'd say that is a good thing.
Blessings!
Mike

Sent on Saturday, April 14, 2007 at 2:22:00 PM
mikeh@cpconline.org


From Maria Vetsch,
Centreville, VA

Deb and Jay,

You have made another smart decision - stay home with Josie as much as you can. By now your care for her is as good as any staff at the best hospitals AND you have the added bonus of the love from the family, that's better than any medicine available on the market. We hope and pray that the antibiotics will help this situation without having to go back to the hospital. Hang in there -

Maria

Sent on Sunday, April 15, 2007 at 8:26:50 PM
mariavet@cox.net


From Sarah Madsen,
Eau Claire, WI

Hi Josie!
It's supposed to be nicer & sunnier these next few days so I hope you can get outside & enjoy it. Keep working at the simple things like walking around the house & before any of us know it, you'll be running around the backstops at the baseball games.
Much love- the prayers & support continues to you all-
Sarah

Sent on Sunday, April 15, 2007 at 8:52:54 PM
madsensl@uwec.edu


From Lindsey,
Edina

Jay and Deb,
We've never met, but my daughter, Kiley, went to Fraser with Josie. Ever since I learned about Josie's "adventure", I've been following your tear-jerking and sometimes hilarious blog. Everyday, when I pick up Kiley at school, I think about Josie. There are a couple things that Josie is going through that we have some experience in and I thought I'd share it. You guys are probably almost MDs with everything you have learned, so this may just be stuff you already know. There are some things outside of just PT that can help with contraction in Josie's ankles. Of course, you probably would want to wait until Josie's further along in her recovery, but they do this nifty little thing called a serial cast. Basically, they stretch the hamstring and put a cast on for about 3 weeks. Another option is botox injections...it also loosens the muscles (unfortunately, they don't do 2 for 1s!). My daughter has had the cast and is getting the botox in a few weeks. Kiley also has a G-tube and soon after she first got it, she had really loose stools. Like you, we tried everything including flagyl. One thing that seemed to work pretty good was Culturelle Lactobacillus - a probiotic to promote good bacteria in the gut. I could only find it at Walgreens next to the Pepto. You should ask Josie's GI guys. Anyway, I hope some if this could be useful to you. Even though, I'm a total stranger, I can tell from this blog and I wanted to tell you that you guys are superstar parents. The ultimate endurance athletes!

Sent on Monday, April 16, 2007 at 9:14:41 AM
lindsgorski@hotmail.com


From Tom and Darlene,
across the street

Josie...Sugar Bear loved seeing you and having you pet her...she has missed you! And so have we...have nice to see you sitting out on the front step in the sunshine...it's a good feeling to know you are perking right along...try to get more exercise so you can take Sugar Bear for a walk soon. We love you! Tom and Darlene Lund
Sent on Monday, April 16, 2007 at 9:15:22 AM
ludnlink@mac.com


From Linda Cravens,
Edina

Deb - I had no idea what you guys were going through until I saw the video at CPC yesterday morning, so I contacted Rich Phenow's office immediately, and Marti gave me the lowdown. Believe me, "The Ralphster's" geriatric kitty issues majorly pale in comparison. Know that I'll be joining the CPC "legions" praying for Josie's complete recovery - nothing's too hard for Him! Hugs, Linda Cravens
Sent on Monday, April 16, 2007 at 11:02:41 AM
Ldscravens@aol.com


From DeAnne Hild,
Minneapolis

I've been trying to follow you through all of this, crying or being upset with doctors for putting her through all this!
I seem to have the same thing, I've been doing my own doctoring and experiments with these nasty critters. I wish I had seen your site long ago! And then when I did, I couldnt write to you, I thought you'd think I was some crazy person. The best thing you can do is keep her from anything she might be allergic to. Everytime she has any reaction keep track of what she's eaten or around. Believe it or not even some people can affect them! they react to (phermoans)
sp. I take benedryl when they start acting up. Apparently
the histamines that your body give off to allergies also attack these guys too! they then go into motion, drop their eggs and the process starts again.
Whatever you do DONT give her anything but bottled water! Osmosis is best no chlorine no flouride! The water swelling in her legs is them! Ive found that red grapes are the best for thirst, plus they are a great antibotic
since Ive been eating about a pound a day or more, I have noticed that they have cleared up alot!
I've got them on my outer body and so far have kept them to certain locations, but I do know that that they are inside also. When they feel attacked I usually get gas and then have to go to the bathroom. Ive learned so much on how they work, what upsets them, etc... I've had all the different worms infections most of which is fungus ...
I hadnt seen your site til after alot of her surgeries. by that time I had already figured out it was mostly fungus. I couldnt believe it took them all that time! I dont even have a lab.
These things can chew their way through anything it seems. They have different ones that do different things just like ants. The ones that are the worst are the cutters they really bite hard and hurt!!! Without them they cant move. They make trails for the rest to follow if they are attacked. They are blood suckers. Whether they like oxygyn or not is what Im trying to figure out now. Chain smoking to see how they react. Some bacteria thrive on oxygyn some die.
I dont know whats compelling me to do this. Ive always been medically driven, I have people all over ask me what to do. My boyfriend is diabetic, he has alot of problems, he asks me first and goes to the doctor anyway. Usually gets the same diagnosis. Its kind of a joke now because they want to know why he's there instead of listening to me. Or they'll wait and see if they come uo with the same thing. I do use natural medications that I research, and they do work!!! I know GOD has given me this gift!!
I know I'm blabbing alot, I dont mean to, Ive put off writing to you for so long. I thought I should wait til my life was less complicated so if you did want to connect with me Id have time. But unfortunatly I seem to be at a stand still. I cant do anything til I talk to you. I would read at night what youd write ( Im a night owl now also) and it bothered me so much. I didnt know what to do. they would do things to her that I couldve prevented.
I stopped reading for a while and went into depression so bad!! I actually had to get a friend to go on your site to see if she made it through her last operation. I wouldve died if something went wrong!!
You've trusted your doctors and I didnt want to get them mad with outside information, because from experience some dont take it very well. Instead of being glad for the input, Im stepping on toes and they ARE THE DOCTORS!! I just wish that they might look at things from a different angle.
They had a story on the news not to long ago about a women that found that some bacteria is flouresent and glowed under blacklight or that they could transmit information to other locations of your body and to different kinds, some of my friends were over and watched it with me. They didnt think I was so wierd when they knew I figured that out about a year earlier!!
Well, I dont know whether you'll contact me or not maybe Ive scared you off by going on and on, I feel that I should erase most of it now, but it came naturally so I wont. Plus if you do contact me you'll not be surprised, be cause when Im excited when helping someone I tend to do that. I just realized Have'nt emailed much and I dont know how to send this. Plus I wanted it to be private owell here goes. Take care and give Josie a hug and a kiss for me!

Sent on Tuesday, April 17, 2007 at 6:37:52 PM
>DeAnne


From Holly Thiede,
SLP, MN

Hi Josie! Thank you so much for visiting our Kindergarten Classroom this morning! It was nice to finally get to meet you in person! Evie was certainly excited to show off her little sis!

Keep working hard with your exercises! Maybe you can visit us again before school lets out and do the "Chicken Dance" or the "Freeze Dance" with us. We love to move our bodies in Kindergarten, and we would love for you to join us when you get strong enough!

Sent on Thursday, April 19, 2007 at 6:39:46 PM
HandThiede@aol.com


From Tammy,
Keene, NH

Howdy folks!! I'm trying to keep up with all that's going on, thanks for continuing the posts! It stinks being so far away! Any way, glad to hear that the flagyl is a gonner!(eat yogurt) Good job with that monster G-Tube Bro and HOORAY! that PT is coming in!!!! Has anyone mentioned fitting her feet with AFOs to wear overnight (for the contractures)? Hang in there girl(s)! and guys too. LAX is a good substitute, but I wish I could go see a hockey game! I'm already having withdrawl. Love you all!! Hugs! Auntie Tammy (Dakota says hi to each one of you!)
Sent on Friday, April 20, 2007 at 7:03:18 PM
CampRN@verizon.net


From Lynnshadle Gabriel,
victoria, MN

Dear Josie!
we are still here! WE are keeping track of you every day and are so happy that you are getting out on swings, and to the park(are you riding your bike there?). You look just beautiful in your pictures and would like to see you soon! How did you like going to your grandparents house? sounds like a super fun road trip to us! We just went to our grandparent's too and to a water park like you did! We just want you to know that you are a precious angel! Keep up the good work, as hard as it is, to walk and run and pedal. You will have those skates on in no time! You are in our prayers many times a day -good thing we eat and go to bed becasue those seem to be the times that we take to pray for Josie! Big hugs and kisses to you!
Much love, Blake, Faith,Lynn,Stan
(could you warn your mom that we need to bring "the monster" that's our dog, in pretty soon-he's a tough one!)

Sent on Sunday, April 22, 2007 at 11:56:10 PM
lrshadle@earthlink.net


From Ellie,
UK

I'm sorry to hear that the home physio is so hard at the moment - I wondered if sharing these ideas might be of use to you? Some things I've tried before: using favourite sweets or treats to play treasure hunt across a room/garden or up the stairs etc to encourage walking, (treats may need to be very close together to start with to make it easy enough to be motivating), making favourite breakfasts or snacks and taking the child a tiny bit but they need to come to the table independently, having some special play activities at a table surface or in a tray like cornflour and water, dough, etc, that the child can only access by standing up (sensory activities sometimes help distract from that standing is uncomfortable and tiring), having some 'special' dvds chosen by the child and some tokens that the child 'earns' by doing x minutes biking/walking/stretching/whatever they find hard, (initially making it easy to get the token) and each token in the jar can be cashed in for 5 or 10 minutes viewing. If this becomes a game about wow just LOOK how many tokens you're getting today! then sometimes the focus comes off exercise being so nasty and goes to hey Mum LOOK and NOW I get another token! Likewise anything else really special and enjoyed that can be used as a really special treat, although it can be more successful like the dvds to be something in the house that can be an immediate reward for someone as little as Josie. Dancing together with some really good music, bubbles, ribbons, or singing action songs and rhymes might also get her excited enough to do a few minutes little and often through the day. I'm sure you've had great advice from the physios but wanted to mention these in case they help. Thinking of you all and so happy to hear Josie is finally home.
Sent on Monday, April 23, 2007 at 2:07:01 PM



From Janet,
Anchorage Alaska

Hi there Josie it has been several weeks since I have left you a message but Ihave been reading your updates and some of them have left me not knowing what to think or really say except I am glad you were able to have your surgery and it was seeming the fevers etc were pretty much subsiding and you all had things figured out. Same with me and my son Matthew the one Ihave been telling you about we went to Seattle shortly after my Last posting to you.

We were there for three weeks shortly after we arrived they found that he was haveing a problem with his kidney after all and that that was the most likely the whole reason reason for the fevers He got a really high one that lasted high for a fewdays just before we went and was still high when we arrived. Of course there had been the gi and respiratory things also periodically besides his urine and the vesicosotmy the opening where his bladder empties.

Well we have been back for about a month and he has been haveing the whole scenario reoccure again atleast this time the fevers are not constant and not that high unlike before.

There was a problem detected with the duodenum in a ct scan that was done when he spiked a fever again out of the blue.It was just a routine just to make sure there was not anything else going on since he was haveing other stuff going on besides Urology things. He will be haveing an EGD done by his GI Dr this wednesday to look into things further on the ct scan it showed thickening of the duodenum.

It just so happens that the day he spiked the fever they tested his urine again and it did not come back totally normal Ibeleive the most problem stuff is Urology /nephrology but there is an underlying problem this time around to be causeing him to be like this this time. Idont feel its just his underlying syndrome by itself this time.

I am so sorry to hear about the latest with the fevers and you more than likely have to go back to the hospital after you have had to be there for so long allready.

I hope your legs and ankles get better so you feel more comfortable and are able to walk better again. Matthew just started walikng In November he was delayed due to lack of Abdominal wall Muscle caused from his syndrome and plus he is also Severely Autistic.

Will go for now and will write again real soon.
Your friend Janet Matthews Mom from Prunebellysite.

Sent on Tuesday, April 24, 2007 at 2:56:31 AM
jmeliti11@hotmail.com


From Kit Odom (I'm a "she":),
Atlanta, Ga. at the moment

Too cool that you have a "Show and Tell Tummy" Josie! I know your brother was proud of you.
Sent on Tuesday, April 24, 2007 at 5:52:28 PM
wkodom@earthlink.net


From jan g,
hey hey, always fun to read about a postive day! Here's hoping more continue! Jan
Sent on Wednesday, April 25, 2007 at 2:55:12 PM



From Donna,
What an amazing little girl you have! Keep up the good work Josie!
Sent on Thursday, April 26, 2007 at 6:40:57 AM
donnaabramson@hotmail.com


From Lori Rodgers,
Georgia

Hello,

My name is Lori Rodgers. I found Josie's page through a google search. My 5 yr. old daughter, Emily, has just been diagnosed with dermatomysitis. We have been in Egleston hospital in Atlanta for the past week and have just gotten home. I will continue to check your blogs on Josie's progress. I would love to hear from you, if you ever have the time. Keep fighting, and please know that I, too, am battling this disease. I will keep Josie in my prayers.

Sent on Thursday, April 26, 2007 at 10:23:18 AM
mslrodgers@yahoo.com


From ,

Sent on Thursday, April 26, 2007 at 1:16:02 PM
2723@yahoo.com


From Stephanie Blachowiak,
Edina, MN

Hi Josie and Family,
It is great to read about all of your progress! Keep up the walking and eating!!

Sent on Friday, April 27, 2007 at 9:05:24 AM
steblachowiak@edina.k12.mn.us


From Tom and Darlene Lund,
Minneapolis

Josie, We are so proud of you...walk over and see Sugar Bear, she is waiting for you. We love you and all of your family.
Sent on Friday, April 27, 2007 at 9:20:54 AM
dlund@lssmn.org


From Christie Adams,
Georgia

Hi Josie and Family,

We are still keeping up with you and Eric loves it when your Dad puts new pictures of you on your site ! Eric, 4yrs old was dx with JDM 3/06. We continue to pray for your complete recovery and e Believe !

Many Blessing to You and Your Family,
C. Adams

Sent on Saturday, April 28, 2007 at 9:53:14 AM
gandcadams@yahoo.com


From Jackie Harris,
Albany

Hi, Josie! I've been following your progress but it's been awhile since my last E to you. So happy to hear of your great "strides" with PT . I'm praying for your feet to cooperate with your spirit to keep mobile. You are such a strong little lady so keep up that strength and I'm sure you will be back in 'step' in no time!! We're all thinking of you... Your Oregon cousins
Sent on Wednesday, May 02, 2007 at 10:40:26 AM
fordor40@comcast.net


From Holly Thiede,
SLP, MN

Hi Josie! I hear that you lost a tooth! How cool is that!
Most of the children that I know are at least FIVE before they lose any! Lucky girl! I hope that the Tooth Fairy leaves something special for you tonight under your pillow!
You can ask your big sister, Evie, if you can borrow her Tooth Fairy Pillow that she made this year in Kindergarten.

Stay strong and keep working those muscles!!!

Sent on Wednesday, May 02, 2007 at 3:16:30 PM
HandThiede@aol.com


From Tricia Wendorf,
Richfield MN

Hey Josie,
It's been great seeing you at the rink lately! We are glad you're back cheering on the team with the rest of us. Today we saw you walking and using those great legs of yours - suprised they weren't frozen! Burrrr that was a cold rink! Keep that body movin' and groovin'!
Love to you and your fam,
The Wendorf's

Sent on Saturday, May 05, 2007 at 6:39:19 PM
tleewendorf@yahoo.com


From annonymous,

Keep those chins up, Jay and Deb! Fighting with the sibs is one of those developmental things that normal, healthy kids have to do. You're on a tightrope between normal stuff and nightmare stuff...but you are keeping terrific balance and you are wonderful parents for Josie. Pat yourselves on the back, because you are awesome.
Sent on Saturday, May 05, 2007 at 11:37:16 PM



From Holly Thiede,
SLP, MN

Awesome news!!! Keep walking Josie!
Sent on Sunday, May 06, 2007 at 10:51:22 AM
HandThiede@aol.com


From Emily Kraft,
Edina, MN, USA

I really hope you feel better Josie. We are all thinking about you.
Sent on Sunday, May 06, 2007 at 12:23:58 PM
kraft.emily@gmail.com


From Sara Carrigan,
Rosemount, MN

Josie-

I love your pig tails! Keep working hard. I am proud of how well you are doing. Stay strong!


Sent on Tuesday, May 08, 2007 at 6:39:13 AM



From Stephanie Blachowiak,
Edina, MN

Hi Josie and Family,

What a cute picture!! It makes me so happy to see that big smile on your face. Keep up the good PT work!!


Sent on Tuesday, May 08, 2007 at 8:28:56 AM
steblachowiak@edina.k12.mn.us


From Katie Thompson,
5C-PICU

Hi Josie

I just wanted to check your blog to see how you are doing. We miss you here on 5C(PICU), but are sure glad that you are doing so much better and are at home! You look absolutely fabulous and couldn't be any cuter! Say hi to your mom and dad from me! Maybe I will see you and mom running or walking around Lake Harriet sometime, I am there occasionally! Take care, we miss your smile and spunky attitude!

Katie T-PICU nurse

Sent on Tuesday, May 08, 2007 at 3:20:26 PM
kates102001@yahoo.com,


From Verla,
Sun City, Az.

Dear Adams family,
It looks like progress is being made and I am so happy for all of you. I am sure there will be some down days yet but how sweet you looked in your picture yesterday (Monday)Josie. I truly beleive your darling daughter is getting completely healed and will be your sweet little girl once more. We are still praying for all of you each and every day. We love you all. God bless you and keep you always in His loving arms. You are all so brave and precious and what witnesses you have all been through all of this time of sickness for Josie. Keep up the good work.

Sent on Wednesday, May 09, 2007 at 1:43:40 AM
memaw-v@hotmail.com


From Lynn Shadle Gabriel,
Victoria, MN

No Way! Oh Josie,we are sorry to hear of your broken leg! Just can't believe it. Cool cast though! I guess you just get to rest up a bit for more playing and strength building. You have been and are doing so great! It is fun to watch and hear of your life at home. as always, you are always in our prayers every single day. Jesus loves you every day.
Much love,
Blake,Faith,Lynn and Stan

Sent on Friday, May 11, 2007 at 12:41:01 AM
lynnshadlegabriel@yahoo.com


From Christine. xx,
England.

WOW Miss Josie.... whatever next......

I wish you well darling and hope you continue to be the brave girl we all have come to know and love..... You keep me focussed on what to sweat......or NOT,
Love to you and all your Family,

Christine. xx DM/ILD

Sent on Friday, May 11, 2007 at 1:59:36 AM



From Terri & Bailey Peterson, www.caringbridge.org/mn/baileygrace,
Ramsey

Josie, you surely keep life interesting at your house. We are praying for a quick and perfect healing from the spiral fracture and that you will be SO anxious to be playing at the park and in the backyard that you won't skip a beat with your physical therapy once the cast is off. In the meantime, as always, we are sending up prayers for much strength and peace for you all.
Sent on Friday, May 11, 2007 at 6:42:21 AM
terri4design@mac.com


From Bob, Sarah, and Jillian,
Mendota Heights, MN

Cool cast Josie!
Sent on Saturday, May 12, 2007 at 6:23:22 AM
rja@teemaster.com


From Jackie Harris,
Albany

Hi, Josie! I hope you had a good day. I'm sure you and your family gave your Mom a day to remember. It's SOoooo special to have everyone together! I've got some extra prayers and thoughts for you , wishing you a quick, solid recovery. Can't wait to see a picture of your Hot Pink cast on the web! All our best to you and your family, from Oregon with love.
Sent on Sunday, May 13, 2007 at 10:11:24 PM
fordor40@comcast.net


From Lauren Murray ( 3 year old friend),
Carver, MN

Josie,
You looks so pretty in your dress with your flowers. I hope your leg heals quickly! Hang in there! You are such a trooper!
Hugs, Lauren Murray

Sent on Tuesday, May 15, 2007 at 9:14:32 AM
jenette_g@hotmail.com


From jan,
gearwest

Hi, what a wonderful picture of Josie with her flowers, dress and cast...we can only shake our heads at this most recent development and continue to wish you strength, hope and humor. the Gear West Staff...
Sent on Wednesday, May 16, 2007 at 4:20:27 PM
gearwest@gearwest.com


From Kristin Renz,
Granville, OH

Hello, may I list this website on my blog? My blog is a Myositis related blog. www.ktsite.blogspot.com

Thank you and take care!

This is a wonderful blog.

Sent on Thursday, May 17, 2007 at 11:01:22 PM
ktlovesed@aol.com


From Zara1305,
Norfolk, NE

My heart goes out to your lovely little girl who is showing such strength with all she is going through. I pray for a cure for this horrible disease. Thanks for sharing this story. It sure touched my heart.
Sent on Friday, May 18, 2007 at 5:53:53 AM
zara1305@yahoo.com


From Sarah Madsen,
Richfield, MN

Josie!
It was fun seeing you yesterday! Can't wait to see your pretty little face all over Richfield this summer! Hang in there friend!!
Love & prayers,
Sarah

Sent on Friday, May 18, 2007 at 8:58:48 PM
madsensl@uwec.edu


From Kay ,
Richfield

Hey Jay & Deb,
You guys hang in there! Deb I wanted you to know that you are my hero. It's so fun to see you guys out and about at the baseball field etc.

Sent on Tuesday, May 22, 2007 at 10:10:54 AM
kstalcar@cojlbc.org


From Patti Epstein,
Madison, WI

I posted once before. Just to let you know that my daughter Natalie (age 6) son Oliver (age 9) and I check in on your website periodically to see how cute little Josie is doing. So glad she is at least home now with her brothers and sister and parents and pets...My daughter has grown quite attached and wants to check the website every day. You are such a special family and your strength is amazing. If you ever need some friends in Madison, WI, not that far away, we are here. From, The Epstein Family
Sent on Tuesday, May 22, 2007 at 5:28:38 PM
pepstein@bgmlaw.com


From Mary Stasson,
Nisswa, MN

Dear Josie,
I hope this message finds you well and sleeping peacefully this evening after the bad experience you had with your feeding tube yesterday. Both of your parents love you so much and are superheros when it comes to your care!

It was such a pleasure to meet you on April 22, your grandpa's birthday. We pray for your continued strength and happiness, and hope that this terrible disease will go into permanent remission.

Stay strong and keep fighting!

God bless you!!

Mary

Sent on Tuesday, May 22, 2007 at 10:23:39 PM
msnisswa@msn.com


From Anita ,
Edina, MN

Dear Deb and Jay,

I finally had a chance to read Josie's blog today and catch up on how she's doing. Apparently Kaia asks Josie's aunt everyday at Southview how she is doing. I didn't know she had broken her leg! wow, you have been through so much. Hang in there and know that I am praying for you!

Anita Burg

Sent on Wednesday, May 23, 2007 at 7:32:48 PM
aburg@vischool.org


From Tom and Darlene Lund,
Richfield

Josie, that glow in the dark cast is pretty fancy! Grandpa and I hope you are really practicing your walking so you can come and play with Sugar Bear! We love to see you doing great. Love to Trip on his Birthday!
Sent on Friday, May 25, 2007 at 8:05:45 AM
lundlink@mac.com


From Monica Bates,
PA

Dear Josie and family,

After reading all these blogs i wish there was more i could do but the only thing i can think of was to give you my consolation. Little Josie has been through quite a lot, probably more than any of us can relate to and i wish her well. I'll make sure to keep her in my prayers and tell as many people as i can to keep her in theirs too. Stay strong and always remember there's a light at the end of every tunnel and things will get better.

Love,
Monica and family

Sent on Monday, May 28, 2007 at 5:57:36 PM
CloudyGrl1@aol.com


From Ann and Alberto Aguilar,
Richfield

Just wanted you to know that we haven't forgotten, and you will be in our prayers tonight. --Ann and Alberto Aguilar
Sent on Monday, May 28, 2007 at 11:40:30 PM
aaaguilar@usfamily.net


From Marilyn,
R.I./Fl.

Long time no write(but I've been following your progress)! Glad to hear that the pesky cast came off. Keep up the good work, Josie, and keep on healing, keep on healing, da-da, dada, da-da dada-----(have your parents explain the song)
Sent on Wednesday, May 30, 2007 at 12:58:44 PM



From Sara Carrigan,
Rosemount, MN

Keep up the good work Josie!

Sent on Friday, June 01, 2007 at 6:41:17 AM



From Jackie Rust,
Eagan, MN

Josie, you look so beautiful. You have come along way. Your dad sure has some funny stories to tell. You are quite the strong little girl. We look forward to seeing you sometime next year at the ice rink with your brothers and sisters. Take care and laugh alot. Jackie, Rob, Hunter and Brock Rust
Sent on Wednesday, June 06, 2007 at 11:04:25 AM
rlrust.msn.com


From Tammy,
Keene, NH

Happy Birthday Dad!

Sent on Thursday, June 07, 2007 at 7:51:41 PM
camprn@verizon.net


From The Arnold's,

Happy Birthday, Jay!
Sent on Saturday, June 09, 2007 at 6:42:49 AM



From Kevin Grafft,
Jay; hope you had a nice birthday.
The Graffts

Sent on Saturday, June 09, 2007 at 5:33:40 PM
k.grafft@mchsi.com


From Tom and Darlene,

Josie...we are watching you getting stronger and stronger...we are so excited that you are walking and getting stronger...It is so good to have you home and checking on Sugar Bear...we love you and our little family across the street. Be well! Grandpa and Grandma Lund
Sent on Tuesday, June 12, 2007 at 9:10:46 AM
lundlink@mac.com


From Lynn shadle gabriel,
victoria, MN

Dear Josie,
Wow!!! Getting up all by yourself! That is awesome!! You should be very proud! We are sure proud of you! Josie, you are just such an amazing little girl. God sure knew what he was doing when he made you perfectly ,you are His special child. You are incredibly precious! Blake was really sad that you weren't home the other day when we stopped, but I promised we would see you soon. He and Faith think that you are very special-and they are right!
You are doing great, and we are soooo happy to hear it!!
Jesus Loves You!
Our love,
Blake , Faith, Lynn Stan

Sent on Saturday, June 16, 2007 at 11:05:25 PM
lynnshadlegabriel@yahoo.com


From Maria Vetsch,
Centreville, Va

Hello Deb, Jay and kids..

Glad to read things are moving slowly in the right direction and hopefully the skin stuff will improve with the change in medication. I wanted to share the growth issue from experience with Andrew. For 2 years Andrew had very poor nutrition - throwing up, TPN, Lipids and trouble eating in general. He did in fact slow down to about 8-10 percentile on the growth chart, prior to the illness he was in the 75 percentile. I have read and learned from Doctors along the way that poor nutrition does contribute to small stature. The transplant in 2005 once again stunted his growth and he dropped to 3-5%. After 2 years he is now back on the curve at just above the 10%. I have been to an endochrinologist and had Andrew's bone age done and his bones were at an age of a 7 year old (he was 10 at the time). The Endo Dr. credited steroids, meds in general and chemotherapy to be the major cause in the immaturity of the bones. He did say sometimes kids can catch up with growth during puberty. Andrew's growth has increased, but not at a significant amount. He is still one of the shortest 11 year olds in school. We will wait and see if he in fact he catches up on some of the growth.

Hang in there,
Maria

Sent on Monday, June 18, 2007 at 10:28:25 PM
mariavet@cox.net


From Lindsay Sumrow,
Minneapolis

Dear Jay, Deb and kids,

Jay, thanks so much for keeping up with this blog. We continue to pray for Josie and your family and think about you all alot. We appreciate so much you taking the time to give updates on Josie. It's just unreal the road you all have been lead. Your and Deb's steadfast love and perseverance is just amazing. Thanks for the example you give to us.
All our love,
Lindsay, Kyle and Emma Sumrow

Sent on Thursday, June 21, 2007 at 1:26:02 PM
lsumrow@moneygram.com


From Shannon Luepke,
Eau Claire, WI

Hi Deb, I've been checking in periodically since Josie made it through her surgery in Feb. What a time that was! I'm always relieved to see that she's still giving us all reason to hope for a better day. In spite of all the incredibly difficult situations you've had to go through as a family, I feel God is really watching over all of you and some day we will appreciate it as a blessing with praise and glory to Him. I wanted to mention a product name to you in case you haven't heard of it. It's a sunscreen for babies that I use on all my kids because my oldest especially was very sensitive to many things with his skin, and I had trouble finding a sunscreen for him that wouldn't irritate and cause a rash. This product is called "Arbonne" and they sell like Mary Kay so you can't find it in stores. I'd be more than happy to send you a bottle to try if you haven't already. It's really been great, and although it isn't water resistant I've not had a problem with the kids playing in the lake with it on and getting a sunburn. I might reapply it once or twice during the day just to be sure though. Please e-mail me your address and I can get some to you right away if you're interested in trying it. I guess we're all just looking for ways we can be of some small help.
Best Wishes,
Shannon (Turbak) Luepke

Sent on Saturday, June 23, 2007 at 12:07:51 PM
luepkefamily@sbcglobal.net


From Stephanie Blachowiak,
Brooklyn Park, MN

Josie and Family,
I'm so glad to read about your improvement! It sounds like you're getting around like and old pro these days. I hope you're enjoying the nice weather this summer!

Take care and keep up the hard work!

Sent on Monday, June 25, 2007 at 9:08:01 PM
cabigirlsteph@hotmail.com


From The Lund,
across the street

Josie, we hope you are feeling better...how is Grandpa Larry and Grandma Susan? Love you, Tom and Darlene
Sent on Wednesday, June 27, 2007 at 10:25:52 AM
lundlink@mac.com


From jackie harris,
albany

HI, Josie! Well it has been quite a while since my last greeting. Summer has arrived in OREGON and that means the garden needs to be put in and the flower beds need new plantings. Now that those little tasks have been accomplished, I caught up on your news to date. I'm thrilled to see you are more mobile these days and hope you are also outside more enjoying the wonderful colors of summer. And of course playing with your special friends and pets. We all think good thoughts about you often and are sending more Love and prayers your way! All our best to you, Oregon Cousins
Sent on Friday, June 29, 2007 at 4:30:37 PM
fordor40@comcast.net


From gear west,
Just got caught up- hoping for the best! Jan
Sent on Monday, July 09, 2007 at 3:25:27 PM



From Sara Carrigan,
Rosemount, MN

Josie-

What an excellent week! I am so glad you are out and about having fun. Keep working hard and having fun too! I am so proud of how well you are doing.

Sara

Sent on Tuesday, July 10, 2007 at 7:30:57 AM



From Jackie K in MO,
myspace.com.myositisworld

One day I was reading in the message boards at TMA (myositis.org), doing the little boo-hooing for myself as I have DM. I seen reference to someone catching up reading about Josie. I've been hooked on Josie ever since. It leaves much less time for my own moaning and groaning.

I think each of us dreads and feels every needle and sore spot she has and wishes we could wrap protective arms around each of you, so you didn't have to feel the pain either.

Kudoos to your entire family.

Jackie K in MO

http://www.myspace.com/myositisworld

http://myositisworld.blogspot.com/

Sent on Tuesday, July 10, 2007 at 5:01:21 PM
myositisworld@gmail.com


From Blake, Faith, Lynn, Stan,
victoria, mn

wow! what a great time!!! I am so glad you were all able to get away and have a blast!! Good for you. i am just constantly amazed at you Josie! there really aren't words to describe how incredible it is to watch you so strongly forge thru this journey. We just adore you to pieces. Keep up the good work.
Much love and support and prayers,

Sent on Tuesday, July 10, 2007 at 11:46:57 PM
lynnshadlegabriel@yahoo.com


From Tom and Darlene,

Josie...you look so pretty in those pictures...and I saw you walking lots last night, trailing Butters around...it is fun to see you out and about. Much love to you and your family, Tom and Darlene Lund...and Sugar Bear!
Sent on Thursday, July 12, 2007 at 9:08:58 AM
lundlink@mac.com


From Megan Wenaas,
right next door

Hi Josie!!!
It was so nice to see you out and about last night in your beautiful dress!! Molly Rose would LOVE to have a playdate with you soon. Have your mommy call me or email me to set it up!!
Love,
Molly's Mommy (Megan)

Sent on Thursday, July 12, 2007 at 9:59:03 AM
megan.wenaas@thomson.com


From Andria Miner,
Austin, Texas

Hi,

I was just thinking about you all and I thought I'd check the blog for the latest update...WOW! It is so nice to read about Josie's amazing progress, and to see the pictures of family vacation fun :-)

Love from Texas, Andria

Sent on Monday, July 16, 2007 at 8:27:19 PM
akmdvm@yahoo.com


From Amee LiaBraaten,
Eden Prairie

Hi Adams Family!
What an awesome picture to come across seeing the fun water sliding you did! I've been thinking of youa ll summer and am overjoyed to see your summer looks so fun. You show that horse who's boss!
Mrs. LiaBraaten

Sent on Tuesday, July 17, 2007 at 1:25:04 PM
amee@liabraaten.info


From Shannon Luepke,
Eau Claire, WI

Hi again - just wanted to give you a heads up on a package you will hopefully be receiving soon. If you are located at 6338 Vincent Ave. S. there is a bottle of baby wash, lotion, and sunscreen being sent to Josie. It is the Arbonne product I mentioned earlier in a message here. I apologize if my address for you is incorrect, I hope it is not. I hope you try the products. They are formulated to be nonallergenic and now that I've been using them for awhile I really believe we need to be more careful with our skin. Their website is arbonne.com if you want to check it out. Or you could speak with the person I buy from. Her name is Sandy Sorensen. 715-878-4631. As always, good luck, and God bless.

Sent on Tuesday, July 17, 2007 at 4:41:36 PM
luepkefamily@sbcglobal.net


From Marilyn,
Warwick, R.I.

Sounds to me, like your summer is going pretty well! Keep up the good news and progress. Appreciate the updates.
Sent on Saturday, July 21, 2007 at 9:50:45 AM



From Mary,
California

I recently just lost my mother and thought it was the end of the world and then by chance I googled circus coloring pictures to print something for my students and came across your page. It had to be faith. I read every single page of Josie's Website and I am amazed. My heart goes out to Josie and her family. I would like to do something to help or brighten her day. Is there anything that a young lady from California could do?
Sent on Tuesday, July 24, 2007 at 11:55:02 AM
lbgirl2424@yahoo.com


From Mary,
California

I recently just lost my mother and thought it was the end of the world and then by chance I googled circus coloring pictures to print something for my students and came across your page. It had to be faith. I read every single page of Josie's Website and I am amazed. My heart goes out to Josie and her family. I would like to do something to help or brighten her day. Is there anything that a young lady from California could do?
Sent on Tuesday, July 24, 2007 at 11:58:09 AM
lbgirl2424@yahoo.com


From jan g,
gear weswt

I get so impressed with both of you parents, when I read this blog. It makes all my problems look easy. Beautiful pictures of Jose and Deb.
Sent on Sunday, July 29, 2007 at 5:24:30 PM



From The Lunds,

Josie...I see you...you are getting along so well...I check on your site every day and love that you are getting stronger...I'd love it too if Dad would write and say you are eating a whole bunch now as then you could be done with all of those bags you have to carry around!!! That's not asking a lot, Josie...just know that food through your mouth is the best way to eat! Love you Josie, Tom and Darlene Lund
Sent on Wednesday, August 01, 2007 at 11:16:13 AM
lundlink@mac.com


From gearwest,
gearwest

Oh boy- what a day last Wed had to be for you all. What a rollercoaster ride you are on. What can all of us readers say other than we hope for improvement for Josie, for the stress in your lives...hope the other kids are doing as well as can be expected! jAN
Sent on Tuesday, August 07, 2007 at 5:26:04 PM



From Katie Thompson,
PICU

Hi Josie!

I am glad that you are feling better and making progress! WE definately miss seeing your smiling face here on the PICU, but SO glad that you are home!
Often wonder when I am occasionally jogging around Lake Harriet, if I will see you and your mom. I will keep looking. If you are back at the hospital, come to 5c for a visit!

Glad you are enjoying summer!

Katie T.-5C RN

Sent on Sunday, August 12, 2007 at 11:08:52 AM
Kates102001@yahoo.com


From Holly Thiede,
SLP, MN

Hi Josie!

I am so happy to hear how well things are going for you these days! Please know that even though I haven't been signing your guest book, I have been checking in/thinking about you and your family daily. I LOVED the photo of you and your Mom cruising down the slippery slide on your family vacation...that's what summer is all about! The photos of you riding the horse were cool too!

Please say "hi" to your sister, Evie! I miss her a lot, but know that she will LOVE Mrs. Gruen! She is an AWESOME First Grade Teacher!

Mrs. Thiede (Evie's old Kindergarten Teacher)

Sent on Monday, August 13, 2007 at 6:57:57 PM
HandThiede@aol.com


From Katie and Lou Marshall,
Minneapolis, MN

Hey Adams family! I'm so glad Josie is on the right track for recovery! Looks like all those prayers are finally really paying off. I just hope the prayers for continued strength and patience for mom and dad are working too...

Wishing you all the best with all my heart!

Sent on Tuesday, August 14, 2007 at 8:55:30 PM
katiemarshall7@gmail.com


From Katy LeBarron,
Edina, MN

I was feeling a bit bad that I haven't brought any treats or dinner over lately due to the summer rush of my own life. Then I thought...the blog hasn't been updated in awhile which hopefully means that life is returning to the "normal" level of chaos of life with four children. Just let me know of any ground support I can provide! I'm dying to make brownies again whenever I can fire up the oven!
Sent on Tuesday, August 21, 2007 at 6:46:47 PM
katy.lebarron@comcast.net


From Tom and Darlene,

Josie Jo Jo...you are doing great! I see you running around and I know you are a gift and we are receiving the blessings of know that you are gaining ground! Keep on trucking and have a big hamburger on me...when can we go? Darlene Lund...(and Sugar Bear says howdy!
Sent on Friday, August 31, 2007 at 10:42:37 AM
lundlink@mac.com


From jackie krainz,
ct

Are you going to be attending the CUREJM OCtober marathon event---
Sent on Sunday, September 02, 2007 at 8:52:09 AM
tuslibros@yahoo.com


From Erika,
Algonquin Il.

Hi I'm one of Mrs. Richardson's former students and she told us about your daughter. I fell really bad that she has to go through something like this at such a young age. Best wishes to her and your family and hopefully she will get better soon!
Sent on Sunday, September 02, 2007 at 6:05:40 PM
enhuckins@comcast.net


From Kathy,
Denton, Texas

Hope this month is an especially pleasant one for you!

I was diagnosed with PM & DM early in 2005. Life sure changes in a hurry, huh?

Keep up the good work you are doing!

Take Care!

Sent on Tuesday, September 04, 2007 at 9:34:12 PM



From The Hays family,
Richfield

Hi Adamses!
Hope the beginning of school is going well after a busy summer of baseball. I hope Josie continues to progress toward being healthy. She sure is a fighter but then again, she has a great and loving family army supporting her.

Take care and we will be in touch!
The Hayses
Elliott, Wendy and Zach

Sent on Wednesday, September 05, 2007 at 6:17:13 PM
wshorthays@vischool.org


From Britta Bloomquist,
Virginia, MN

Josie! So glad to hear that you are doing sooooo good. I bet you are loving school so much...and keep loving it cuz before you know it you will have homework pilled up and not like it sooo much. That Vehe is a great guy(my doc too!), but I don't see him as often as you do! Too bad I don't live down by you so I could babysit you and your busy sibs. Tonite I was babysitting 3 kids...3, 5 and 7...the 3 year old Lily reminds me so much of you and your cute and funnyness! Hope everything stays under control and hopefully you can get down to little meds as possible(i was on some before that shot my immune system too...not fun!). Sending you love from Northern(chilly, maybe snow on thursday night...ekkk!) Minnesota!!!

Love, Britta

Sent on Tuesday, September 11, 2007 at 10:37:01 PM
bitts75@hotmail.com


From Tom and Darlene Lund,
lundlink@mac.com

So happy to hear you are doing pretty well Josie...I think it's pretty great. Tom and Darlene Lund
Sent on Wednesday, September 12, 2007 at 1:48:06 PM
Richfield


From Jackie Harris,
Albany, oregon

Well, HELLO THERE MISS. JOSIE!!!I just caught up with your latest and greatest news and I am sooooo happy for you! What a wonderful way to welcome an early Fall. It is so nice to know you are back in school. I'll bet you have quite a wealth of information to share with your friends. They are very fortunate to have you in their class. I do wish you continued improvement (steady as she goes!) and look forward to reading about your Winter escapades soon. Happy days to you all, Oregon Love to you, Jackie and family
Sent on Wednesday, September 12, 2007 at 4:53:34 PM
fordor40@comcast.net


From Lauren Murray,
Carver, MN

Hi Josie,
I am going to pre-school too! I am glad you are having fun! I hope you are feeling good! What are you going to be for halloween? I want to be either Dora or a pink poodle. Maybe we can have a playdate sometime! ;)
Take Care..your friend,
Lauren Murray

Sent on Tuesday, October 02, 2007 at 8:20:21 PM
Jenette_g@hotmail.com


From Stephanie Blachowiak,
Brooklyn Park, MN

Hi Josie and Family,
I'm still checking your website every couple of days. It's great to read your progress. I'm glad you're enjoying school. I bet you're just having a blast hanging out with all the other kids. Hang in there and keep fighting!! Say hi to your brother Henry from Mrs. B.

Love,
Stephanie Blachowiak

Sent on Tuesday, October 02, 2007 at 10:05:37 PM
steblachowiak@edina.k12.mn.us


From Chris Marshall,
St. Michael, MN

Hello Josie!

Just wanted to drop you and your family a note to let you know that we are thinking about all of you. I'm thinking you are probably pretty excited for Halloween this year! It won't be long before it's time to trick or treat!

We are so glad to hear that you have been enjoying school. It sounds like a lot of fun!

You stay strong little lady and fight on!

Love,

Chris, Rachelle, Abby & Zach


Sent on Tuesday, October 16, 2007 at 8:45:36 PM
crmarshall27@charter.net


From Sara & Gumper Carrigan,
Rosemount, MN

We're still thinking about you Josie! Keep working hard!
Sent on Thursday, October 18, 2007 at 8:57:01 AM



From Jacquie Schmitz,
Naples Fl

Hi Jay, Josie and special super Mom Deebers,
I am Jeff's mom and have been reading your blog the last two years. I have been praying for Josie all along as has Norm (Jeff's Dad). We are so touched by your perseverence and hopeful attitude. Jay you are an excellent writer.
We will continue our prayers for complete healing and returned strength, wisdom for the doctors and and all med. personnel.
May God bless you all with continued hope and for joy in the little things.
Blessings, Jacquie and Norm

Sent on Thursday, October 18, 2007 at 10:16:52 AM
jacquieschmitz@yahoo.com


From Britta Bloomquist,
Virginia, MN

Josie...I like your dad's humor in his title with using "Strategery"! Kind of sounds like our president...;-) I hope the weather hasn't been as rainy as it has been up here in northern MN. It has rained about the past month! I hope you have a great fall and can dress up for Halloween...potentially as Dora maybe?!
Love, Britta

Sent on Saturday, October 20, 2007 at 12:59:03 AM
brittabitta@gmail.com


From Marilyn,
Bradenton

Sure has been a long time! But sounds like Josie and family are doing well plugging along. Great to hear that Josie enjoys her school and friends there. We'll keep following the saga from here in Fl. and still keep our fingers crossed. Hang in there!!!
Sent on Saturday, October 20, 2007 at 11:21:01 AM



From Michelle Darr,
Blaine

Hey Josie,
I wanted to let you know that I am thinking of you often and hope you are feeling better. I saw you at Concord a couple of weeks ago and I loved your cowboy boots that you had on.

Sent on Tuesday, October 23, 2007 at 12:24:55 PM
micdarr@edina.k12.mn.us


From Lynn shadle Gabriel,
victoria, MN

oh ick. This is such a rough time of the year. we had a similar bug, but with no fever, I totally understand the 'full coverage barf' thing. we are getting our sofa replaced for the second time! for once that stain guard insurance was worth it! (or I should say "for twice"). Just sorry to hear a nasty bug found its way to dear Josi. she has had enough puking for a lifetime! we still remain in prayer for you Josie and the whole family. Compared to one year ago, words , I am sure, can't even explain. I pray one year from now this year too will be a thing of the distant past. We will all pray you thru this. Divine rest, divine health, and steady faith.
God Bless you all,
Lynn ,Stan, Blake and Faith Gabriel

Sent on Tuesday, October 23, 2007 at 11:16:36 PM
lynnshadlegabriel@yahoo.com


From The Wenaas Family,
next door!

Hey Josie!!
We heard you're back in the hospital - lots of prayers and positive thoughts coming your way from next door!!
Love,
Megan, Jason, Bridget & Molly Rose Wenaas

Sent on Sunday, October 28, 2007 at 2:50:25 PM
mmwenaas@gmail.com


From Cathy Morrill,
Bangor, Maine

Good luck to your family. I am Caitlin Gorecki's great aunt. We are very lucky she is doing very well at this time. Your courage is inspiring!!!
Sent on Thursday, November 01, 2007 at 5:58:53 AM
cathy.morrill@midmaine.com


From Patti Epstein,
Madison, WI

Sure hope things get under control with this recent bout of bad luck and bad bacteria. Thinking of you all and sending healing thoughts your way. From your unknown friends in Madison, Wisconsin.
Sent on Saturday, November 03, 2007 at 1:06:26 PM
pepstein@bgmlaw.com


From Mona Belchak and family,
Albuqueruqe, NM

What a beautiful picture of Josie and the dog! So glad to hear your wonderful news!!!!
Keep it up, Adams Family!!


Sent on Tuesday, November 06, 2007 at 4:26:56 PM
tabinabq@comcast.net


From Lynn Shadlegabriel,
victoria,MN

oh my gosh! my heart is just melting, like that Halloween chocolate, looking at this absolutely beautiful picture of Josie! and the dog of course! You just want to eat her up! wow, busy weeks and ultimately, in a good way. Halleluja! a Cat?! what fun you must have had out trick or treating! would love to see the whiskers! and the bros and sis'too, glad you had a super fun Halloween! Blake and Faith did too...faith opted to be a dragon (go figure!) and Blake a vampire. they lost over half of their candy too becuase, you guessed it, gluten, but it's all about the process. enjoy your treats! our favorites are the Hersheys chocolate and new choc. covered tootsie rolls! oh, those are mom's favorite, sorry. the Hershey's are theirs. would love to see you soon!
Love
Blake, Faith, Lynn, Stan(note new e-mail)

Sent on Tuesday, November 06, 2007 at 8:54:22 PM
lynnshadlegabriel@yahoo.com


From Ed & Caroline Gaiser,
Fresno, CA

Hi Josie,

It's so nice to see you looking so well & happy with "Birkie." It sounds like you had a fun Halloween. All our love & prayers for you and your family on your road to recovery.

With love,
"Aunt Caroline" & "Uncle Ed"

Sent on Wednesday, November 07, 2007 at 1:24:43 AM
c_gaiser@hotmail.com


From Jon Anderson,
Sarasota

Greetings from Sarasota. I met with your mother Lee Marshall today and she mentioned Josie's adventure. As a parent with young children who have severe food allergies and have had serious excema issues, I can relate on a very small level to your stress level. Any way, by your blog things seem to have settled down for a brief period. Here's hoping that the next year shows even more improvement. Jon Anderson
Sent on Thursday, November 15, 2007 at 1:38:21 PM
jontanderson@verizon.net


From Carol Klepper,
Rochester, MN

Happy Thanksgiving to a remarkable family! Today my prayer of thanks will include Josie's remarkable improvement over the past year and continued progress for the coming year. Also, for her remarkable immediate and extended family members she has and their unique strength in supporting her through this journey! You are in my prayers.
I love you all,
Carol

Sent on Thursday, November 22, 2007 at 7:40:45 AM
klepperc@msn.com


From The MeyeresGarcia Family,
Tekamah, NE

My Daughter and I were looking up skating rinks to make in our back yard and this site came up... Our Hearts go out to you and your family... Your a strong and Brave little girl.... We will be praying for you... Keep that angelic smile.... Love the MeyeresGarcia's
Laura, Rick, Shareena, Shaylee, Chantel, Elizabeth and Gabriel...From NEB

Sent on Thursday, November 22, 2007 at 2:55:07 PM
meygarfam5@msn.com


From Tammy,
Keene, NH


WOW! Life is Good!!! :-) I want to come skating with all of you! Happy Birthday Josie! Lots'o Hugs! Auntie Tammy

Sent on Wednesday, November 28, 2007 at 8:42:38 AM
camprn@verizon.net


From Julie Kunselman,
Punxsutawney, Pennsylvania

Hi Adams Family,

So glad to hear that Josie is doing so well. I check in about everyother day to see how she is doing and what progress she has made. Even though it is a slow progress it is still progress. My daughter Jade who will be 12 on x-mas eve and was dx'd 09/06 with jdm always asks if there is any new news on Josie. This disease is so frustrating and can turn on you in a second. Thankfully Jade has responded to treatment really well and you would never know that she has this disease at all. Big difference from a year ago. I just wish for you guys that Josie would have done as well as Jade has. Josie is one strong little girl as i think all these kids are. I know i sure wouldn't have been that strong. I hope and pray that Josie continues to head down the right path and that she gets better every day.
God Bless

Sent on Thursday, November 29, 2007 at 6:36:01 AM
julied@windstream.net


From Sara & Gumper Carrigan,
Rosemount, MN

Happy Birthday Josie! I hope you have a really fun day!


Sent on Sunday, December 02, 2007 at 8:51:36 AM



From Jason,
Hi, I'm Jason's dad .. well my son is also having a internal infection of which the doctor that we visited diagnosis with a lot of suspicion dengue & leukemia. All that really makes me & my wife feel sad about the practicing doctor of which they can't give a precise diagnosis. After 3 weeks of waiting & visiting doctors, he is diagnosis with Henoch-Schonlein purpura, it feel better to know what really is happening to him. Josie will always be in our prayer & God Bless (http://360.yahoo.com/julyus_m)
Sent on Tuesday, December 04, 2007 at 3:43:18 AM
julyus_m@yahoo.com


From Britta Bloomquist,
Virginia, MN

Hey Josie! Happy 5th Birthday...you are a big girl now! I visited our favorite doctor today...Dr. Vehe! I had a couple of appointments at Gillette...so hung out with him for a bit...
Hope you are enjoying this snow...
Love, Britta
:-)

Sent on Tuesday, December 04, 2007 at 11:22:44 PM
brittabitta@gmail.com


From Wilfredo Bermudez,
Henderson Nv.

To Josies and her parents: I am sorry that you are sick. But folks never lose Hope and keep at it. God willing there shall be a medication one of these days that will cure Josies illness. It is important to participate in activities and live life as joyful as possible. You cant stop living. Josies must participate, her school must provide her with tutors at home when need it the school must know about her condition , advice the teachers and give her the protection and help that she needs. Your place of employment must give you the papers " Family leave for medical needs" It is a Federal Law when you have to go to the hospital and lose time from work. Don't keep her illness a secret and make it worse that it is. You have to acept REALITY after that evwerything goes easier. Of course she can't go into movies and other crowd gathering It must be acepted those limitations as well as her diet. We, the human race, are prey to a hundred of the must unwanted illnesses and if there is no one thing its another. TRUST IN GOD KEEP PEACE, LOVE AND HARMONY IN THE FAMILY AND IN YOUR COMMUNITY.GOD IS WORKING THROUGH THE DOCTORS AND RESEARCHER . I RECOMEND YOU TO READ"Why Bad Things happens to Good People","When All You've Wanted Isn't Enough" Both by Harold Kusher and "THANKS" bY ROBERT A .....(?)PhD. You can find those books in the library. The last one I forgot the last name of the author, it has helped me to deal with my Veronica Nephrotic Syndrome for 9 years since she 3 years old \. Today she is 13 years old, but she doesnt loose any sleep over it. I do. Also those books have helped me found God and deal with my health problemas, with people, with my co-workers. I am mellow now no as angry as I used to be. We must be Grateful for Josies is still a vibrant litlle girl that she is sick is true but never give up by saying Why me, why my baby why why. " We must keep the faith as Job did, The light of God has no penetrated yet on the darkness of the human condition YET, but it will get there. "Thanks" will teach you how to be Grateful and Why. Trust me you will never bbelieve it that you are extremely Blessed . You all have a Great Christmas I see Joel The wonderful Pastor every Sunday morning. His sermons give me Great Strenght and Hope in God.
Sent on Thursday, December 06, 2007 at 12:41:04 AM
dmvw35@hotmail.com


From Reuctitty,
Venezuela

I’d prefer reading in my native language, because my knowledge of your languange is no so well. But it was interesting!
Sent on Friday, December 07, 2007 at 6:46:32 PM
edgetlyNeek@highrelevantsearch.com


From Donna Broussard,
Reedsport , Or.

HI JOSIE,
LOOKS LIKE YOU ARE A BIG GIRL NOW. KEEP UP THE GOOD WORK, YOU ARE A BEAUTIFUL (BIG GIRL). LOVE TO ALL

DONNA @ GLENN

Sent on Friday, December 07, 2007 at 10:09:40 PM
donnabroussard@gmail.com


From Marilyn,
R.I. right now(Bradenton, 6 months)

Happy Belated Birthday, Josie!! Wow, 5 years--You are indeed a big girl, now. I've been neglectful, of your site. We just moved homes in R.I., and been really busy. Glad to hear things are going well for the NEW 5 year-old! Keep up that progress!!
Sent on Wednesday, December 12, 2007 at 9:12:02 AM



From Katie Thompson,
PICU

Hi Josie

I love to check in to your page and see how you are doing! I hope you had a fantastic birthday, so glad you didn't have to celebrate it on 5C like last year!
You look great! Next time you are at the U, stop by 5C to say HI. Everyone would love to see you!

Take care all!

Katie Thompson, RN PICU

Sent on Saturday, December 15, 2007 at 11:46:58 AM
kates102001@yahoo.com


From Sara & Gumper Carrigan,
Happy New Years to the entire Adams' family! We hope 2008 continues to bring you good things!

Sent on Monday, December 31, 2007 at 8:54:51 AM



From Ronize,
Kearny, NJ

Josie,

I hope you are doing well.
May God give you confort and many blessings.
Trust in Him, He loves you and will care for you always.
Stay strong and do not give up.

Sent on Monday, January 07, 2008 at 9:44:10 AM
rpaszk2003@yahoo.com


From Your Oregon Cousin, Jackie Harris,
Albany, Oregon

Dear Josie and Family; I am soooooo delighted to see your progress and continue to pray for your victory. My sister-in-law ( a most wonderful person) is currently waging a tough battle as I write this. She has been in ICU for a week now and desperately needs all the Divine Intervention I can find so I am appealing to your supporters to please find a moment to send some of those Josie-inspired prayers Sharron's way. She has Pneumonia and her Docs are doing all they can right now, much as yours have in the past. So I thank you all in advance for any of those great tried and true prayers we're all famous for. Well, my dear, I truly wish you and your family a fun winter at the rink, you certainly have deserved it! Ever in my prayers, Jackie and Family.
Sent on Thursday, January 10, 2008 at 11:14:24 PM
fordor40@comcast.net


From Jackie,

To all of Josie's prayer donors; Thank you from the bottom of my heart for your prayers for my sister-in-law, Sharron, who has been in ICU for over a week with Pneumonia. The Docs removed the ventilator and all the tubes on Sunday. She had not been coming out of her coma as quickly as she should have and was at a standstill. She began breathing ON HER OWN and nice, deep breaths at that! She even opened her eyes and is responding to questions with moans. She has been given a big first step and I feel sure your prayers have given her this boost. Please continue your prayers for her and for all who are in such need because you are making a difference, you are HEARD! Thank you all again, Sincerely, Jackie from Oregon

Sent on Sunday, January 13, 2008 at 10:36:20 PM



From Jackie,

To all of Josie's prayer donors; Thank you from the bottom of my heart for your prayers for my sister-in-law, Sharron, who has been in ICU for over a week with Pneumonia. The Docs removed the ventilator and all the tubes on Sunday. She had not been coming out of her coma as quickly as she should have and was at a standstill. She began breathing ON HER OWN and nice, deep breaths at that! She even opened her eyes and is responding to questions with moans. She has been given a big first step and I feel sure your prayers have given her this boost. Please continue your prayers for her and for all who are in such need because you are making a difference, you are HEARD! Thank you all again, Sincerely, Jackie from Oregon

Sent on Sunday, January 13, 2008 at 10:36:20 PM



From Christie Adams,
Sharpsburg, GA

Hi Josie and Family,

I have not written in a while but all of you continue to be in our prayers. Continued blessings of good health to all.

With Love,
Adams Family

Sent on Thursday, January 17, 2008 at 8:11:17 AM
gandcadams@yahoo.com


From Tammy & Dakota,
Keene, NH

HAPPY BIRTHDAY DEB!
Sent on Thursday, January 17, 2008 at 4:14:25 PM
camprn@verizon.net


From Christy Helinski,
Illinois

I hope all is well

Sent on Monday, January 21, 2008 at 2:36:30 PM
christinehelinski@sbcglobal.net


From Carrie,
Yakima Washington

Hello Josie and family
I am so glad that you are doing so much better. Glad you had a fun birthday and are now a BIG kid. I pray for you every day. It has been over a month since the last post and I am worried about you. Praying you are doing well.

Sent on Friday, January 25, 2008 at 12:30:49 AM
pep4u2@hotmail.com


From Antonia, Luke, Michael, Craig, Richard, Stephen ,
Berwick High School

Dear Josie, Just to let you know 6 of us from Berwick High School are trying to raise money for your fund because you were so strong and we look up to you. we really like the dragonfly idea because they are so pretty. we think its a great way to raise money.
we also like ther idea of giving £500 to spend on anything to give memories and special days.
lots of love

Antonia, Luke, Michael, Craig, Richard and Steven

Sent on Tuesday, January 29, 2008 at 6:19:15 AM



From Antonia, Luke, Michael, Craig, Richard, Stephen ,
Berwick High School

Dear Josie, Just to let you know 6 of us from Berwick High School are trying to raise money for your fund because you were so strong and we look up to you. we really like the dragonfly idea because they are so pretty. we think its a great way to raise money.
we also like ther idea of giving £500 to spend on anything to give memories and special days.
lots of love

Antonia, Luke, Michael, Craig, Richard and Steven

Sent on Tuesday, January 29, 2008 at 6:21:12 AM



From Antonia, Luke, Michael, Craig, Richard, Stephen ,
Berwick High School

Dear Josie, Just to let you know 6 of us from Berwick High School are trying to raise money for your fund because you were so strong and we look up to you. we really like the dragonfly idea because they are so pretty. we think its a great way to raise money.
we also like ther idea of giving £500 to spend on anything to give memories and special days.
lots of love

Antonia, Luke, Michael, Craig, Richard and Steven

Sent on Tuesday, January 29, 2008 at 6:24:40 AM



From Britta Bloomquist,
Virginia, MN

Josie! Hopping you are having a great new year! Tell your mom and dad we all want to know what you have been up to! Happy Valentines Day!
love britta!

Sent on Friday, February 01, 2008 at 12:26:58 AM
brittabitta@gmail.com


From melva,
port angeles wa

I just ran acrossed your web site and I want to tell you that I admire you for writing in such detail. I hope that Josie is doing better. Children are so brave and smart. We are waiting a transplant for my eight year old granddaughter who has luekemia which is taking place Feb.15,2008. They have a web site also "Caring for Kim and Kaylee". My thought and prayers are with you and your family and little Josie, hope the medication situation is better.
Sent on Thursday, February 14, 2008 at 3:49:22 PM
springy2@wavecable.com


From Stephanie Blachowiak,
Brooklyn Park, MN

Hi Adams Family,

I hope you're all doing well. You haven't written in a long time... so I'm assuming/hoping that no news is good news. Henry, I hope 3rd grade is going well!!

Take care,
Stephanie Blachowiak

Sent on Thursday, February 14, 2008 at 9:55:57 PM
steblachowiak@edina.k12.mn.us


From Sally Everitt,
Chippewa Falls, WI

It's FEbruary now... was wondering how Josie is doing?
Hope things are going smoothly and this is the reason that you do not have time to keep this site up. Thankyou for letting us all come into your lives and be able to pray for you all. You certainly are a very loving family and to be able to get thru all that has been going on you have to have a lot of stamina. It's family and friends that help to keep you together. May you be blessed even more thru your future.

Sent on Tuesday, February 19, 2008 at 10:26:53 PM
severitt@charter.net


From Amy,
Burbank

I'm hoping that things are okay. I'm worried because it's been a few months now since there's been an update. I hope that you're all too busy to update and that nothing serious is wrong.

Keeping you and your family in my thoughts and prayers...

Sent on Wednesday, February 20, 2008 at 1:05:36 AM
amy@cosabellaevents.com


From Holly Thiede,
SLP, MN

Hi Josie! Congrats on hitting the big 5 years! The cake in your photo looks very yummy! I am glad to see that you laced up the skates and spent some time on the ice with your big sis and brothers! Keep up the great progress!
I'll check back soon! Say, "hi" to Evie for me!

Sent on Wednesday, February 20, 2008 at 6:14:28 PM
HandThiede@aol.com


From Jill A,
the arena, where else

Was great to see Josie RUNNING around the arena on Tuesday night. Wow, what a difference! With that spunk, I am penciling her in as my starting center next year on the U6 girls team.
Sent on Thursday, February 21, 2008 at 9:34:46 AM



From Christie Adams,
Sharpsburg, GA

Still thinking about and praying for you Josie ~
Christie Adams
Mother of Eric Dx JDM 3/06

Sent on Friday, February 22, 2008 at 11:02:56 AM
gandcadams@yahoo.com


From April,
Shakopee, MN

Still thinking about you guys all the time. Hope no news is good news...
Sent on Wednesday, February 27, 2008 at 5:32:00 PM
bigapes@Hotmail.com


From The Aguilars (Ann),
living in Mexico, used to be Richfield

Hi--I'm sending you a newsletter and thought I ought to check on Josie. I'm glad to see she's moving forward. God is good. I will keep her in prayer. Lucas, Evan and Matt are adjusting well to Mex, learning to play soccer as there is no ice hockey (or any ice for that matter). Blessings to you all, Ann
Sent on Wednesday, February 27, 2008 at 7:15:25 PM
aaaguilar@usfamily.net


From Chris Marshall,
St. Michael, MN

Hello Adam's Family!

WOW! It seems like we just saw you guys at Christmas! Hard to believe it's March...although it still feels like January outside doesn't it?!...I just wanted to check-in and let you all know that we love you and think about all of you often! As usual, it looks like our little lady (Josie) is keepin' on, keepin' on! Josie...we sure are proud of you!

Hang in there guys! We hope to see you all again very soon!

Chris, Rachelle, Abby & Zach Marshall

Sent on Monday, March 03, 2008 at 2:17:07 PM
chris.marshall@charter.net


From Dawn Carpenter ,
Bemidji MN

Hello, thanks for the update on how Josie is doing! Things sound like they are going in a good direction. Just an idea for what it is worth- when our daughter had DM 22 years ago she was having trouble with calcinosis too. Not such big ones as you are dealing with, but they could be felt under the skin and seen on x-ray. We somewhere heard about using magnesium to halt the prosess, which it did and apparently dissolved the calcium deposits also. If I recall correctly, the regular docs never thought it would work but it did. We also took her off dairy and gave her a special kind of calcium, which I'm trying to remember what type exactly it was. We were doing other things at the same time, so they might have been helping also. Anyway, the nice part about using magnesium is that it is cheap, safe, (if a body reaches its tolerence point it causes loose stools, when the amount would be reduced) E-mail me for more details if you are interested. Thanks again for the update. -Dawn
Sent on Monday, March 03, 2008 at 10:05:42 PM
dawncarpenter90@hotmail.com


From Stephanie Blachowiak,
Brooklyn Park, MN

Hi Josie and Family,

I was so happy to read about the past few months. I've been wondering and hoping that everything is alright! It sounds like life is becoming more routine (which is GREAT!!). I'll keep praying and sending good thoughts your way!!

Take care and keep fighting!!

Sent on Wednesday, March 05, 2008 at 7:32:51 PM
steblachowiak@edina.k12.mn.us


From Kaia Burg,
Edina

dear Josie,
You Have a great smile. your cute and funny.

love, Kaia

Sent on Monday, March 31, 2008 at 8:52:20 PM
anitaburg@hotmail.com


From the Lunds,
across the street

Josie...so great to see you as you get stronger and stronger. We love you, Tom and Darlene..and Sugar Bear!
Sent on Monday, April 14, 2008 at 7:46:55 PM



From Bill,
Pittsburgh, Pa

Hello !!! I found this site in search for others with JM. I coordinate a golf outing each year in pittsburgh to raise funds for curejm.com as a close friends daughter has this horrible disease.

I would love to extend an invitation to Josie and your family as our guests. We generally have over 150 people attend, and have raised over $300,000 in 2 years at our event. Would love to talk to you further.

Sent on Thursday, May 08, 2008 at 9:18:35 PM
bill.rossi@nreis.com


From Jill,
stuck in my cube on a beautiful day

Josie you were lookin great last Saturday night. Hope to see you at the ball fields.
Sent on Friday, May 16, 2008 at 1:27:15 PM
jill@teamfriday.com


From Dena Bridges,
gastonia NC

My daughter was 6 when she was diagnosed with JDM. She is now 16 1/2 and in remission. One day you will look back and it will only be a memory.

Dena

Sent on Thursday, June 05, 2008 at 10:49:08 PM
dhbridgescma@aol.com


From pauline kerber,
jordan,mn

hi my name is pauline. Imeet a lady at the race track a week
ago. she told me about your little girl. my heart went out to you guys.my husbund was diagnosed with the same disorder
in july of 06.

Sent on Tuesday, June 10, 2008 at 12:03:06 PM
glenkerber


From pauline kerber,
jordan, mn

i left you a message the other day but did not compleat it my inter net went down so i dont know if it came though.
I had wrote that my husband had the same disease in july of 06. throug out his battle .he ended up getting pcp phonia (boop) and past a way in oct of 06. my prayers go out to josie and your family.you have one strong little girl her battle is a painfull one from what i seen in my hasband.i know strogle with raising my 12 childern on my own but that is nothing compaired to your battle. i found out after my husband passed away they had is disease supressed with . but reading your story about your little one i wonder how much one person has to go through. i just pray that the lord will give you all strength and hope. GOD BLESS YOU ALL
pauline kerber

Sent on Tuesday, June 17, 2008 at 11:14:22 PM
glenkerber@aol.com


From Karen Madsen,
Richfield

Josie,

Great to see this BIG girl (you) at the ball fields!! We continue to pray for you. I have my "Joy for Josie" bracelet on my dresser to remember you and say a prayer.

Love, Karen

Sent on Thursday, June 19, 2008 at 11:42:13 PM



From Tertia Christensen,
Wahpeton, ND

God bless you for sharing your story. We saw Dr. Vehe last week and he diagnosed my 3 year old daughter with JDMS. He suggested we visit your website. I am sure it will be something I will visit often. Best of luck to you. You are in our prayers.
Sent on Monday, July 07, 2008 at 10:49:59 PM
tertiakyle@yahoo.com


From Melby's,
East Bethel, MN

Hi Adams Family!
We thought about you while in South Dakota for a family vacation. Hope all is well - any news?
Blessings,
Brad & Connie Melby

Sent on Monday, July 14, 2008 at 10:36:54 AM



From Lynn Shadle,
Hi Josie! We hope your summer is great and filled with fun activities! We haven't written directly to you for quite some time, so want you to know we think you are awesome!! If I ever get my act together i will actually get those pictures out to you guys! You are amazing on the monkey bars by the way!!
Much Love!
Lynn Shadle

Sent on Wednesday, July 16, 2008 at 12:32:16 AM
lynnshadlegabriel@yahoo.com


From Katie Marshall,
Minneapolis

Hello Adams family! Just want you guys to know I'm thinking of you all, hope Josie's still trucking along on the path to recovery...

BIG hugs!
Katie & Lou

Sent on Friday, July 25, 2008 at 10:22:03 AM
katiemarshall7@gmail.com


From Stephanie Blachowiak,
Edina

How are you?? It has been fun seeing Henry at Concord this summer! I even got to see Josie! I'm anxiously awaiting an update!
Sent on Friday, August 15, 2008 at 10:30:05 AM



From Marla,
Illinois

We hope your baby is doing better...we'll say a prayer for your family
No need to answer back

Sent on Wednesday, September 03, 2008 at 8:34:23 PM



From ASHLEY,
DALLAS TX.

OMG!GOD BLESS JOSIE!I REALLY HOPE SHE STARTS FEELIN BETTER...
WEN I READ ABOUT WHAT WAS GOING ON IT HURT ME AND MADE ME BREACK DOWN INTO TEARS WEN I SSAW HER PICTURES...
I WILL HAVE HER IN MY PRAYERS, MUCH LOVE TO YOUR LIL SOLIDER.

Sent on Friday, September 12, 2008 at 3:23:25 AM



From Britta Bloomquist,
Virginia, MN

Glad to hear Josie is doing so good! I saw Dr. Vehe on Tuesday...wow he is such a good doctor! I checked Josie's page often to see how she was doing, and was glad to see an update now that things are going good. Keep us in the know! Hope school stays going good.
Sent on Saturday, September 13, 2008 at 2:34:34 PM
brittabitta@gmail.com


From Kathy D Colebank,
Duncansville, PA

Hi. It is so good to hear how Josie is doing again. Larry Sundquist (your dad)is my cousin. We hold you in our prayers.
Sent on Monday, September 15, 2008 at 6:24:40 AM
kdcnpa@atlanticbb.net


From Jack,
Msp

What a great family
Sent on Tuesday, September 23, 2008 at 11:38:00 AM



From Barbara,
NJ

What a story - I can't imagine this happening to my daughter. Stay strong & good luck.
Sent on Wednesday, September 24, 2008 at 4:08:16 PM



From may matysik,
Chandler Az

Hello I just came upon the pictures of your daughter and my heart went out to you and her. How is she doing now?
Sent on Friday, September 26, 2008 at 11:46:11 PM
maymat55@gmail.com


From katherine, a passer-by.,
portland, or

I was simply researching tongue ulcers on google and came across a picture of Josie. And so, I read through Josie's story. Astounding!

I will say many prayers for strength and endurance on this, what seems to be, long journey ahead of you and your family! You are a loved little girl!

~K

Sent on Sunday, September 28, 2008 at 12:41:54 AM
katherinemckern@mac.com


From Nicole,
Albuquerque

What a strong, beautiful little girl! May God bless over her (and you) always!
Sent on Thursday, October 02, 2008 at 3:53:36 PM
nic.algarra@gmail.com


From Devon,
Saskatoon, Saskatchewan, Canada

Hey there, I was just surfing, looking for information on my own alements and your page popped up. I always find it heartbreaking to see a child in discomfort.. that probably doesnt even begin to sum it up im sure. Anyhow, Ill put your little girl in my prayers. Hope you get better! Im sure you will!

Devon

Sent on Saturday, October 25, 2008 at 9:50:47 PM
deslauriers6011@siast.sk.ca


From Jeni,
Hays, Kansas

I happen to come across your blog and was touched my Josie's story. God Bless her brave little heart! I will pray for you!
Sent on Sunday, November 09, 2008 at 8:34:42 PM
juniper2007@yahoo.com


From Hilda,
Minnesota

Hi, I just got to your blog by accident looking for images of tounge injuries that could help me figure out my son's he's autistic and came from school yesterday with some huge blister and of course I can get any words out of him
Anyhow I wanted just to say hi and send you a big hug. hang in there, hope your little one is getting better

Sent on Wednesday, November 12, 2008 at 10:13:56 AM
hrnberdie@comcast.net


From Megan,
Williamsburg, Virginia

I hope everything goes well.
Sent on Tuesday, November 18, 2008 at 6:58:38 PM
mjackson318@cox.net


From Jocelyn,
NY

Hello Josie,

My name is Joci :) and I have been living with Dermatomyositis for 21 years!!! Lord i know all the things you are going through and feeling. Please dont ever give up. Mom keep being supportive no matter how bad things get and no matter how long it last :)

Sent on Saturday, November 29, 2008 at 8:38:14 AM
Jocelynthebrownfox@yahoo.com


From Anke Clews,
glastonbury, ct

Dear Josie,

It was so nice to meet you yesterday. You are so beautiful and sweet. Our thoughts are with you and your parents.

Sent on Sunday, November 30, 2008 at 12:42:17 PM
Ankeclews@aol.com


From Barbara Dean,
Bowen,Queensland, Australia

My dear Josie, what a brave girl you are. I am sitting at my computer trying to figure out what my skin complant is.Like you it has the Doctors puzzled. My face and lips become swollen and i get swellings every where.. But I am old enough to be your grandmother.. It is hard for me at my age, so I can just imagine what it has been like for you.. All my love and prayers shall be with you and your loving family...
Sent on Sunday, November 30, 2008 at 8:51:32 PM
barbarabeva@gmail.com


From Aden,
bandung, Indonesia

Dear Josie,
I just sight seeing, looking for lyrycs and Mp3 song with the title that i'm not so sure: "Can't stop thinking about you" by Sugarcreek. thanks.

Sent on Monday, December 01, 2008 at 8:05:49 PM
denawank@yahoo.com


From Donna Broussard,
Reedsport, Or.

We think of you often and pray for Josie. Have a wonderful Christmas and New Year. We are friends of your sister Karen and Robert.
Sent on Tuesday, December 02, 2008 at 8:17:46 PM
donnabroussard@gmail.com


From David,
Saint Joseph, Michigan

Hello David here...we had good luck with Stephen's calcinosis
treatment with (believe it or not) Fosamax...

David and Susan Dean
son Stephen Dean (jdms patient dia. 1997)

davidcd5@sbcglobal.net

Sent on Sunday, December 07, 2008 at 8:58:41 AM
davidcd5@sbcglobal.net


From Eric Sandell,
Perth. W.Australia

My feelings go out to this sweet little girl and I understand the trials that she has to go thru before she is better. Great advances have been made in this sphere and only time is the essence. She will recover like so many other young children with that complaint.Be positive, and happy, it means so much.
My love and thoughts to you all.Eric

Sent on Sunday, December 14, 2008 at 5:06:47 PM
ersandell@virginbroadband.com.au


From The Lancaster Family,
New Brunswick, Canada

What a brave, strong, beautiful little girl you are Josie. I just wanted you to know that you have touched the hearts of our family here in Canada. Always stay strong and try to keep that beautiful smile on your face!
Sent on Tuesday, December 23, 2008 at 3:36:37 PM
crystal_111@hotmail.com


From Katerina Poulios,
West Sussex , England

Hi Josie,
My name is Katerina and I am 8 years old on January 3rd. I came across your blog and couldn't stop reading it! Your life must be so hard but your doing extremely well and have so much courage. Keep smiling, do all the things that you love.
Keep fighting,All my love from Katerina

Sent on Friday, January 02, 2009 at 8:27:26 AM
katerina@sky.com


From Britta Bloomquist,
Northern MN

Hey Josie and fam!

I hope you are doing great and got some nice presents at Christmastime. Hopefully, this new year will bring lots of improved health for you and much more happiness. I saw our favorite doc last month at Gillette. Vehe is the man to have, and I am hoping they don't kick me out soon since I am soon to be 21! I wish I could see him forever!

Sent on Wednesday, January 07, 2009 at 10:57:57 PM
brittabitta@gmail.com


From Amanda Henning,
Brodhead, Wisconsin

Your little girl is beautiful and my thoughts and prayers are with you!
Sent on Thursday, January 08, 2009 at 3:58:57 PM
ahenn87@aol.com


From David Nicely,
Va Sterling

Josie,

Keep on fighting that disease, you came this far keep on going will be thinking of you and know you'll fiht it everyday.

Ben, Taylor, Cheryl & David Nicely

Sent on Friday, January 09, 2009 at 8:10:08 PM
www.cdnicely@hotmail.com


From christine,
Reading,Pa

GOD bless her little soul! Its truly amazing how children can endure more than a adult. I was sitting here looking on line for some answers to my sore throat with ulcers/canker sores thinking that I was going to lose it from the pain and then I come to her page. It put me in place real fast! I hate to see our children suffer. She is truly a trooper! Wish her the best from me and I hope they find a cure.
Sent on Tuesday, January 13, 2009 at 1:03:00 PM
QUIEREME1969@MSN.COM


From Kim,
England

Aww poor girl, I hope she get's better. I was looking on the internet from when my face swelled up, but I realise there are people far worse thsn me. I trully hope they find a cure or relief and it doesn't get worse. She is a very pretty girl too!
Sent on Wednesday, January 14, 2009 at 2:31:45 AM



From Kat,
New York

Thinking of you and hope you are doing well. We will keep watching to see how you are. God Bless!
Sent on Wednesday, January 14, 2009 at 8:38:03 PM
kathy.4x4ford@yahoo.com


From Vicki Hepler,
Clarkston, Michigan

Josie, you are a cutie. Hang in there. Lots of people are praying for you!

Vicki

Sent on Monday, January 19, 2009 at 9:44:18 PM
victoriahepler@comcast.net


From Jacki Colombari,
Basking Ridge, New Jersey

hi. My names Jacki Colombari and me and 2 of my friends recently suffered over a disese called Epilepey. I'd like to say that we know what your going through and all 3 of us have endered those long streefull hospital visits. I hope Josie will one day be cured
Sent on Saturday, January 24, 2009 at 7:38:15 PM
bcolombari@aol.com


From baylee,
idaho

dear family of josie

i am only 13 and i can say without a dought, this would be one of , NO the hardest thing to happen to you beautiful baby
i am truly sorry foa all of what you guys have bean through,
espesaily you little josie, you are such a fighter and i mean that with the utmost reaspect.
YOU little josie, are my hero.
my the lord be with you always, and i will think about you guys, and pray for little josie avery night
p.s. you are the most beautiful little girl iv'e ever sean.
love baylee

Sent on Sunday, February 01, 2009 at 7:48:52 PM
baylee__boo@hotmail.com


From Maryam ElAmin,
Chicago

I came upon this site by accident, but coulnd't help but read through it all... I really feel for her since I have a child of my own who looks to be about the same age as ur baby....
You all seem to have been so brave through all this... I pray for mercy upon her and wish u all the very best in your journey to her recovery.....
Stay possitive!

Sent on Monday, February 02, 2009 at 6:11:56 PM
jeera_indica@yahoo.com


From Shannon White,
Mississauga, Ontario, Canada

I was very sad reading your story but you seem so upbeat about things in a way that only a strength from a higher power can give a parent in times of trouble. As a parent myself I can only imaging what you all are going through. I pray for your daughter to get better, she is a beautiful little girl. Your blog stops in 2007, I hope things are better for Josie.
Take Care

Sent on Sunday, February 08, 2009 at 6:25:41 AM
shae_18_81@yahoo.com


From Emily,
Massachusetts

I came across your blog accidentally, and read every single entry and it brought tears to my eyes. My heart goes out to you, Josie, and your family. I noticed your blog only goes to 2007, so I hope you're on the road to recovery. Stay strong!
Best wishes,
Emily

Sent on Sunday, February 08, 2009 at 10:20:00 PM



From Ivone,
Los Angeles, CA

Get better Josie.


Sent on Wednesday, February 11, 2009 at 8:16:27 PM
garciaivn@yahoo.com


From Jose and Rosie,
Crowley Texas

Hello!

My daughter and I, wanted to say hello to Josie. We were looking through google images under fifth disease (I believe she currenly has) and we came across Josie. This has led us to this page so we wanted to send her big hugs. We hope you update the site soon :)


Sent on Thursday, February 12, 2009 at 4:58:19 PM
solelyj@aol.com


From Lauren,
Toronto, ON

Josie,
Wow... I never would have been able to survive this... You're a strong girl!! I hope you're feeling better!! Get well soon!!

<3 love you

Sent on Thursday, February 12, 2009 at 10:43:52 PM
lopanliu@yahoo.ca


From P. Romero,
Louisiana

God bless you little Josie, and her family. I, too, have dermatomyositis and can't imagine a little girl fighting it. I will pray for you. Take care and God bless you all.
Sent on Saturday, February 21, 2009 at 8:37:37 PM
phyllis64@gmail.com


From Scott, Jane, Cameron, Paige, Jacques Oh and Bonzo our dog,
Gloucestershire England

Hhi Josie & family. Your story is one of strength hope and family love. And from our family here in the Cotswolds of England to yours love and strength to you all.
Sent on Saturday, February 21, 2009 at 9:31:21 PM
lostboysandgirls@hotmail.co.uk


From CHRISTY,
DERBY,CT

HI JOSIE WHAT A BIG GIRL!!! I WANTED TO SAY HELLO AND WISH YOU WELL WITH LOTS OF HUGS!!! I CAME ACROSS YOUR STORY AND READ EVERY ENTRY I HOPE TODAY YOU ARE DOING WELL YOUR STORY BROUGHT TEARS TO MY EYES.
Sent on Saturday, February 28, 2009 at 10:45:59 PM
CCBUTTRFLY@COMCAST.NET


From Preetha ,
MI

My heart goes out to you and your little girl.may God be with you and give you the strength and encouragement you need. Hang in there and hold her as much as you can, nothing else is as important.
love to all of you

Sent on Sunday, March 01, 2009 at 3:28:15 PM
Pkanjira@umich.edu


From Jean,
Chicago

Hello,
I hope that your daughter is well by now. If not please contact me for two important sites to send you to. Antibacteriak, will not hurt the body and the bugs can not get immune to them. One is the Coil Machine and the other one is only 19.oo for one and 1/2 year of medicine invented by a genious who worked at NASA. I will have to look up his name for you .same things will not hurt the body, bugs cant get immune from them.

Sent on Tuesday, March 03, 2009 at 5:25:08 PM
bigdogjob@gmail.com


From Amy,
Welches, Oregon

I stumbled upon your website while searching google for images on fifth disease, and for some reason it had a picture of Josie which linked to your site.

I pray Josie is doing well. Looks like it has been a couple yrs since blog has been updated or else the link that brought me there has me looking at old data.

I hope & pray your beautiful little daughter is healthy & happy. Bless you all, Amy in Oregon

Sent on Saturday, March 07, 2009 at 5:59:01 PM
thecrombies@verizon.net


From Minneapolis,

Hi My name is YaLonda. My Daughter ZeMirah was diagnosed 2 years ago. I just wanted to stop by and say thank you for all the information. ZeMirah is currently being seen by Dr. Akin at Gillette Childrens Hospital
Please know you are not alone, You and your family are in our prayers.

The Johnson Family

Sent on Monday, March 09, 2009 at 2:25:37 PM
ylolar@qwest.com


From Kentucky ,
paris ky

you are in our prayers
Sent on Saturday, March 14, 2009 at 1:46:53 AM
joygoround@yahoo.com


From Charlina Hollie,
Augusta, GA

I would like to know if Josie's okay. I just found your blog and I see that it is from 2005. Is she okay...my prayers are with you all.
Sent on Friday, March 27, 2009 at 11:48:35 AM
charlina_hollie@yahoo.com


From Charlina Hollie,
Augusta, GA

I see that she is doing much better...Praise GOD!
Sent on Friday, March 27, 2009 at 11:50:33 AM
charlina_hollie@yahoo.com


From amy,
MD

Josie,
You are such a brave and strong angel. You are a real inspiration to many others young and old.

Love,
Amy & Jasmine

Sent on Thursday, April 02, 2009 at 9:00:45 AM
leighndem@yahoo.com


From ryan,
pittston

She is such a pretty little girl reminds me of my daughter...
I really really hope she gets better and you guys find out whats wrong and i will pray for her she doesnt deserve to go threw this... no little girl does... i hope only the best things for her.


Much love to you Josie hope you feel better sweetheart.

Love Ryan

Sent on Wednesday, April 08, 2009 at 3:56:21 AM
pounditman20@aol.com


From Jordan,
Lenexa, KS

I can't put into words the sympathy I have for Josie and your family. I read your whole blog, from the first word to last, and I want you to know I give you the best wishes! Your little girl is so brave and she just needs to hang in there! I can't even imagine what it could be like to have that disease. I have Tourettes Syndrome, so I know what it's like to have something hanging over your head. Josie, from what I have heard, is a sweet little girl and, like I said, I hope the best for her.
Sent on Sunday, April 26, 2009 at 11:38:01 AM
sk8rgiirl@gmail.com


From The Janettes,
New York City, NY, USA

We are doing a project for school, and stumbled upon this.
We found this really sad. Fighting disease.. It's like a survival book!
We will keep you in our prayers, and hope for the best.
Someday, you will use some kind of power to blow that disease up, and be able to go home and be happy again! We believe that you'll beat this disease!

From Gil, Libby, Brianna, and Kyle.

Sent on Sunday, April 26, 2009 at 2:53:32 PM
makxchan@yahoo.com


From Lynn,
St. Louis, Missouri, USA

I stumbled upon this page, and was at first struck by how beautiful Josie is! My prayers are with her and all of you. Josie, you are a hero for being so brave through all this. I hope all the treatments continue to help you more and more.

Sent on Sunday, April 26, 2009 at 9:00:45 PM
happyswimmers@yahoo.com


From Valerie,
New Hampshire

I stumbled across this by looking up canker sores, of all things, and from the minute I started reading I was so interested and so concerned for Josie. I could almost see her lying in bed, racing through the halls on her bike, and loving her physical therapy. You all have such courage and strength, and most especially love! Thank you for sharing your story
Sent on Saturday, May 02, 2009 at 10:25:34 PM
ctvas1388@yahoo.com


From Tabb,
Milwaukee WI

I stumbled upon your site while researching lateral Chest x-rays. My heart and thoughts are with you and your daughter. Good Luck.
Sent on Monday, May 04, 2009 at 2:42:15 PM



From NAOMI,
DALLAS, TX

JUST FOUND YOUR SIGHT WHILE RESEARCHING SWOLLEN EYES FOR MY 7 YEAR OLD SON. MY HEART ACHES FOR YOU AND WHAT YOUR FAMILY IS FIGHTING THROUGH. I PRAY FOR YOUR FAMILY AND JOSIE, THAT GOD WOULD GIVE YOU STRENGTH AND JOY THROUGH THE TRIALS YOU ARE WALKING THROUGH AND THAT JOSIE'S BODY WOULD BE RESTORED TO HEALTH, WHETHER BY MEDICAL BREAKTHROUGH OR CREATIVE MIRACLE.....
Sent on Wednesday, May 06, 2009 at 3:05:27 PM
NAOMITOMI@AOL.COM


From Tracy,
Moss Beach, CA

Like others, I have stumbled on your page and was instantly drawn to your adorable little girl. She is in my prayers tonight. Josie is one strong little girl!
Sent on Monday, May 11, 2009 at 11:46:34 PM
tracyguenther@gmail.com


From Marilee,
Reston, VA

I, too, stumbled across this while looking for photos on the "slapped cheek" rash for one of my daughters. All my best to Josie and your family. She is a beautiful little girl and I hope she's doing much better now.
Sent on Wednesday, May 13, 2009 at 10:14:21 AM
mmdean@yahoo.com


From Jan Garrett,
Scotland

Poor sweet wee angel, you have been such a brave and clever girl to have come through all those hospital visits and treatments and such a scarey time for such a wee girl : Bless your wee heart sweetheart - you are a star - wish you lots of happy, pain free days - you touched my heart : Lots of Love - Jan - Scotland X
Sent on Friday, May 15, 2009 at 2:13:07 PM
HouseGarrett@aol.com


From Cindy Thrasher,
Pittsburgh PA

Josie and family. When I came upon your family's story and read it . . . I was at a loss for words. Thank you for sharing your story of endurance. I will remember Josie in my prayers. I believe that sometimes is the best medicine. Please tell Josie that Cindy from Pittsburgh says "Hi" and I am wishing her to be well and that there are some grown ups who could take a couple of lessons from her! You are all in inspiration to everyone! Much love, Cindy :-)
Sent on Friday, May 15, 2009 at 5:48:11 PM
cdy29@comcast.net


From sophie,
Sunshine coast Qld

Hi Josie,

My name is Sophie, I'm a student nurse in Australia. I was looking at wound healing when i came across your story. It deeply moved me and I wish you will get better one day. You look like a very brave little pumpkin. Keep smiling, all my love, sophie

Sent on Monday, May 18, 2009 at 5:23:16 AM
kiambasa@gmail.com


From elena,
boston, mass

Hi Josie, I came across your blog by chance and I want to tell you how proud I am of you and your fight. You can do this and you are doing this. My sister has been diagnosed with Lupus and it is a hard, hard road -- my hat is off to you -- you go girl! God bless you and your family. I will keep you in my prayers -- keep the faith doll!
Love, Elena

Sent on Monday, May 18, 2009 at 9:26:55 AM
gleekokoukla@yahoo.com


From stephanie,
canada ontario

im really sorry to hear this my daughter have these little purple blue veins they just keep coming i been trying to found out what they are but every say they nothing but they just keep come so can u please email back and tell me how you started to tell that your daughter had this disease please
Sent on Tuesday, May 19, 2009 at 6:53:41 PM
sweet_stephanie69er2005@hotmail.com


From stephanie,
canada ontario

im sorry to hear about you daughter god bless u
Sent on Tuesday, May 19, 2009 at 7:03:10 PM
sweet_stephanie69er2005@hotmail.com


From krysten dupuis,
ashburnham, ma

im so very touched by what this little angel has gon through. i have to brothers who have autisim and severe cases of spinabifida and i thought that was rough for them i didnt know any other child to have as many surgerys as they have till now your poor baby. i hope all is well i look porward to read more.
Sent on Thursday, May 21, 2009 at 1:21:54 AM
kdupe06@yahoo.com


From Ireland,
Ireland

Hi, I am a school teacher now (Semi-retired at the age of 32), I worked in cutting edge research for Wyeth in the US for several years. You should check with the Doctors to see if the condition is caused by TNF (tumor necrosis factor. A New Drug for treatment of Arthritis + other conditions can be sucessifully treated by a drug called Enbrel. There are other new drugs about to hit the market from other companies too. Worth a look. Best of luck, hope everything works out. Cormac.
Sent on Thursday, May 21, 2009 at 4:35:03 AM
cormac1402@yahoo.co.uk


From Tiffany Sheets,
California

I came across your website by chance and I was deeply moved.
As a mother of a 2 year old about the age Josie was when your story started and one on the way I couldn't imagine the trials your whole family has gone through especially your brave little girl. My heart breaks reading this story and I have nothing but the best well wishes and hope for a cure to be found some day SOON. All my love to your beautiful family.
Tell Josie hello and that she's a beautiful brave little girl.

Sent on Thursday, May 21, 2009 at 7:31:09 PM
giggette@gmail.com


From Crystal Koski,
Redmond Wa

Hello I came across your blog and I was wondering how Josie is now.. i know its a bit older.. 2005 form what i see..

what has her progress been? I just Google Fifth Disease and images and came across this.. so i was naturally curious!!

She sure is a beautiful little girl! you been blessed!!

take care

Sent on Friday, May 22, 2009 at 1:09:53 PM
kikikoski@gmail.com


From JULIE LAWSON,
COVINGTON,VA

WOW. GOD BLESS YOU ALL. MY MOTHER HAS DERMATOMYTOSITIS BUT NOTHING LIKE JOSIE'S. SHE WAS TOLD IT IS A CONNECTIVE TISSUE DISEASE.IT HAS AFFECTED HER HEART AND LUNGS. GOD BLESS YOU ALL. JOSIE IS SOOOOO CUTE.
Sent on Friday, May 22, 2009 at 11:53:06 PM
JALRN4@AOL.COM


From Gabbie,
Brisbane-Australia

She is defintely a lucky girl to overcome that it loked horrbile. Her condition looked very sore. she definely is an angel sent from heaven. Shes a beautiful little girl. I would like to know how shes going now that shes obviously a bit older
Sent on Saturday, May 23, 2009 at 3:22:30 AM
Gabrie.Wilon@yahoo.com


From tobi,age 9,
naples,fl

dear josie, i feel encouraged after reading about your treatments. i hope you get better soon.maybe we can meet some day,and get to know each other and have some fun!!! you are quite the young lady.
Sent on Saturday, May 23, 2009 at 10:33:28 AM
heyjudes14@yahoo.com


From Teri,
Overland Park, KS

Hello to you and your amazing family! I happened upon your site by "mistake" but really I think more by fate. What I have read so far is truely an amazing journey you have all been on. This little one, you call Josie, is one special little punkin'. I can't even begin to imagine the strength she holds in her little heart! She is a fighter and with the strength she gets from her incredible family, she WILL overcome this. I see many ugly things as a nurse, but Josie has truely touched my heart.
God's strength and peace be with you and I pray that your days of hospital and treatment-less days are in your near future! Bless you, Josie!

Sent on Sunday, May 24, 2009 at 5:31:46 PM
tbandy68@hotmail.com


From Lindsay,
Connecticut

I happened to come across the blog like many others did while i was looking up some information on a rash my daughter has. When i started reading i just couldn't stop! Your family is amazing and a true inspiration to others. Josie seems to be quite a tough cookie and a trooper to deal with all that she has. You have a beautiful daughter and i will keep your family in my thoughts and prayers!
I wish the best for you and your little girl and hope that she recovers soon. Please keep us all updated with how she is doing!

Sent on Tuesday, May 26, 2009 at 8:00:35 PM
lviolette2@att.net


From Jen Bethel,
Lincoln UK

What a brave little girl my thoughts are with you all.
Jen Bethel

Sent on Wednesday, May 27, 2009 at 8:37:10 AM
jem.bethel@btinternet.com


From tope lawal,
london, uk

hi im 16 from london
all im gonna say is if ur christian take her to a church (a true one) not one of them scams if u already go to a church have faith let it not b faltered wat ur doing is amazin
x tope

Sent on Thursday, May 28, 2009 at 8:00:20 PM
facepicture@hotmail.com


From Tonya ,
cookville tx

WOW! Josie you are such a pretty and tough little girl. God Bless you little Angel.

Tonya F

Sent on Friday, May 29, 2009 at 12:13:01 AM
tonyafagg@hotmail.com


From Stacy,
Olathe, KS

I accidently found this blog searching for something on the interent and want you to know that my prayers are with you Josie and your whole family. I can't even image the things you have experienced at your young age I have a 6 year old and don't even know what you may have went through and you are very lucky to have the parents you have and stand by your side and love you unconditionally. Please keep fighting and GOD BLESS!
Sent on Friday, May 29, 2009 at 11:08:40 PM
gerberadaisy3@yahoo.com


From Sally,
United Kingdom

Hello
I've just come across Josie's blog while searching children's rashes - wow, did my son's rash pale into insignificance once I saw what you and Josie have endured.
You all have my utmost admiration - it's not easy watching your child ill.
My thoughts are with you.


Sent on Sunday, May 31, 2009 at 8:52:03 PM
thebeers@ntlworld.com


From Suzanne Edison,
Seattle, WA

Dear Josie,

You don't know me but my daughter also has JDM. She is now 8 1/2 (her birthday is just a day after yours ! 12/3/2000) and has been fighting it since she was 4 1/2 but only diagnosed at 6 yrs. old.

I think you are incredibly brave to be taking all those medicines and going to school and doing all that you can. Hooray for you and for the support of your family.

Enjoy your summer vacation, 1st grade is great but harder than kindergarten.

another JM mom,

Suzanne Edison

Sent on Monday, June 01, 2009 at 2:47:41 PM
seedison@seanet.com


From Stanislas Giroux,
Nancy, France

So much emotion in your shots... That's breathtaking.
All my thoughts to your incredibely courageous little girl!
SG-

Sent on Tuesday, June 02, 2009 at 4:23:47 PM
stanislas.giroux@xenondesigns.net


From ,
ur a tough co0kie
Sent on Tuesday, June 02, 2009 at 11:20:55 PM



From Tracy Pestka,
Kenosha, WI.

I am just some random person who stumbled upon your website. I am basically speechless! My throat is aching from the pain of holding back tears. I am a nursing student, and I work in hospital in Racine, WI. I work with babies in the NICU, and have experience in many other areas as well.

I have skimmed thru what I think is one of the saddest stories I have ever encountered. I am sorry for anyone that would have to go through such heartaches. Josie is an inspiration as well as you, her family. There is not much I can say, I am sure you are not short on sympathy or prayers, but I simply felt the need to tell you that I will never forget Josie and her IRON STRONG family. Things may not ever be easy for you, but know that there is love and thoughts and prayers with you where ever you may go. I am certain that you and Josie have touched more lives than you could ever possibly imagine!!!

There will be better times for you all. May love and peace be with you and may you continue to find new strength with each day.........

Sent on Wednesday, June 03, 2009 at 3:22:08 AM
trayann83@hotmail.com


From Lisa,
Orem, Utah

This is an inspiring story of a very strong family. Thank you for being so open and sharing about this. I really enjoyed reading your blog!! :)
God be with Josie. And with your family.

Sent on Wednesday, June 03, 2009 at 5:31:09 AM
lisabug77@hotmail.com


From Sue,
SJ. Michigan

Just a short note on calcinosis, Stephen had a mild case compared to Josie. He took Fosomax and we used warn water to soak his knees and elbows when they became inflamed. Warm water was a miracle. We believed the Fosomax helped to lessen the calcium by tricking the body into thinking it had made enough calcium. Stephen's calcinosis lasted about 2 years. He still has some places where there are deposit of calcium but they are just there so far.

Sent on Wednesday, June 03, 2009 at 7:29:24 PM
sdean1@hotmail.com


From Tony MacCulloch,
Hamilton, New Zealand

Warmest greetings from New Zealand to you Josie and your amazing family.
I came across your weblog in the course of preparing a teaching session for students enrolled in a BHSc nursing program here in New Zealand. I needed some 'real life illustrations that could add meaning to a session on sustaining the heart of nursing.....a session that explores the meaning and value of compassion, empathy and other associated qualities so crucial for nurses to convey.
My own experience as a grandfather of a lovely grandaughter who was massively brain damaged during a mis-managed breach delivery, has given me added insight into the challenges situations like yours bring.
So I just wanted to offer my own words of acknowledgment, admiration, empathy and compassion for you all. I can only imagine what its really like. But I can see that you somehow seem able to find amazing strength and joy to both ride out the roughest times and float joyfully in the calm ones.
I believe that the students I share this story with tomorrow will indeed be moved and I trust inspired to give their best to becoming compassionate nurses. Nurses who can work with, support and empathise with people like you and your family in a meaningful way.
Thank you for sharing your journey in such a full and generous way.
Warmest wishes
Tony MacCulloch

Sent on Thursday, June 04, 2009 at 4:17:55 AM
tmac@internet.co.nz


From Kimberley Dunbar,
Enfield Connecticut

I hope you get better Josie, and Josie's mom, Hang in there, your doing a really great job, and don't let anyone tell you any different for your daughter. I know what its like to be disabled, I was born with Spina Bifida, and spent 21 years of my life in and out of Shriners Hospital in MASS, although my mom didn't have to do a lot of home care like you, your a lot like her, so good job! Your family is a great inspiration, Keep Safe, God Bless !
Sent on Friday, June 05, 2009 at 9:12:00 PM
kdunbar37@cox.net


From Tracy Duval,
NC

Dear Josie and family,
I stumbled across your site while trying to research DM. My DR's believe they have finally found a diagnosis for me but we are waiting for muscle biopsy results. I was feeling scared and a bit sorry for myself.

After meeting Josie and reading her well-wriiten story (Kudos to Dad) I am feeling better about my own situation. I just wanted you to know how much I appreciated all of the information and detail about Josie's continuing journey. When I begin to feel frightened or angry at all the drugs (that haven't seemed to work) I just think of what your family has gone through and it gives me strength. Whether I am diagnosed with DM or some other autoimmune disease, I wanted you to know that you have made a tremendous impact on how I plan on dealing with it! Keep up the fight Josie!

And thanks Dad for posting information about this disease no one seems to understand.

God Bless,
Tracy

Sent on Saturday, June 06, 2009 at 2:43:48 PM
tracylduval@gmail.com


From farah,
Washington DC

I wanted you to know I read your page and tell Josie she has another fan. Let her know she is beautiful and I adore her. You guys have a gorgeous family.

From Mom of a "jeckle and Hyde" wonderful Price Boy, his little brother and proud Daddy of the 2.

Sent on Monday, June 08, 2009 at 5:42:01 PM
buzzalot@gmail.com


From Vickie W,
Warren, Michigan, USA

Josie,
You are just a beautiful little girl. You have this big bright smile and are so strong.
Your family really loves you very much. I want you to know that you give strength and hope to a lot of people out on the web. So keep up the good work. May you and your family be blessed always!
Hugs Vickie

Sent on Tuesday, June 09, 2009 at 5:38:39 AM
vickiew2000@aol.com


From Kristi Tanguay,
West Dover, Vermont

I was searching the internet for a picture with smiles and a picture of you popped up.. so I decided to over view the blog. and Oh my lil girl you are so beautiful!!! with everything that you have been through your a strong little girl.. your in my prayers Josie. God bless lil girl.. <3
Sent on Tuesday, June 09, 2009 at 9:36:15 AM
sunshinechick142@yahoo.com


From Ashley Hilton,
Philadelphia, PA

Hi, there!
My name is Ashley. I am a high school teacher in Philadelphia, PA, and I actually happened upon your blog by pure accident- I was looking for a picture on Google to self-diagnose a minor skin rash on my leg! Well, then I began to read about your amazing Josie, not to mention to reflect on the strength of your entire family! I am SO glad that you have taken the time to share this little girl's story, pains, and triumphs with "us"! I am truly inspired by the courage in Josie's eyes. Thank you for posting so many pics of this beautiful, brave little girl! I can only imagine how difficult and taxing the experience of a long-term illness must be on your family, but you seem to handle it with grace, humor, and appreciation for each other. You will be in my prayers everyday! Hang in there!!! Much love, Ashley

Sent on Saturday, June 13, 2009 at 11:38:47 PM
ashleyjhilton@gmail.com


From Jessica Duong,
Mobile, Al

wish the best of luck with her treatment. <33
Sent on Tuesday, June 16, 2009 at 2:10:42 PM
omgitbjessie@yahoo,com


From Gina,
Bettendorf, Iowa

I'm not sure how I found your page but I'm glad I did. What an ordeal your family has been through. Josie is such a strong and beautiful little girl. I suffer from chronic hives and thought that was rough...wow. I can only imagine the nightmare that Josie has gone through and continues in. You did a great job on your blog and I think you should make it into a book for Josie to have when she is older.

Hopefully research will be done soon to find a cure for this disease and to help your little girl get completely well again. Your family will be in my prayers.

Gina

Sent on Tuesday, June 16, 2009 at 11:34:16 PM
gina_robinson1@msn.com


From Marilyn Wilmot,
Warwick, R.I.

Josie,

You are one remarkable young lady!!! The trauma that you and your family have endured has far exceded what most people endure in an entire lifetime! You have one great team of supporters, family, not to mention doctors! My husband and I admire you --your spunk and determination is a lesson from which we could ALL benefit.

You have an amazing Dad, who through thick and thin, has continued to allow us to follow your illness, and progress, over the years, through this log. And YOU are a courageous person and a great sport to allow us to be a part of your life. Your mom and dad are wonderful parents, as I'm sure you are aware. Don't ever forget that!

We wish you luck with this latest nasty development and we will continue to support you. Keep strong, and carry-on the battle!!

Sent on Thursday, June 18, 2009 at 12:28:45 PM
mcfwilmot@hotmail.com


From samantha stakenburg,
queensland, australia

i am a university lecturer, i teach nursing and i came accross josie's story. you are an amazing mother and most of all josie has strength and courage that is inspirational. when reading your beautiful daughters story it all ties in to what i am trying to teach my students to understand, the impact not only on the physical but emotional aspects of chronic illness and how it has impacted on josie and your family. i thank you for your candidness. As a health professional i now, thanks to you understand just that little bit more.

samantha stakenburg
lecturer
registered nurse

Sent on Monday, June 22, 2009 at 8:54:35 PM
s.stakenburg@cqu.edu.au


From Melanie,
Columbus, Ohio

Josie, I will pray for you. You have been through so much more than most people living in this world. And you have handled it better than someone 10x,s your age. God bless you. You are a beautiful little girl with an enormous heart. Good for you. Take care.
Sent on Wednesday, June 24, 2009 at 1:57:23 PM
melaniefeucht@gmail.com


From Upender Singh,
Michigan

Her life is a story of hope and determination.Keep posting
Sent on Wednesday, June 24, 2009 at 3:48:02 PM
upender_singh@hotmail.com


From JL Mealer,
Arizona

Take care of this sweet girl.

My prayers are with all of you.

Sent on Thursday, June 25, 2009 at 1:58:53 PM
jlmeal@yahoo.com


From Megan,

I'll miss being your neighbor, dear Josie. I'll continue to pray for you and your family.
Sent on Saturday, June 27, 2009 at 5:29:07 AM



From Darren,
Ontario, Canada

I just read all of these blogs after I was looking for a cause for my canker sore on google that is almost gone and found your page. Josie looks like such a little sweetheart and does not deserve this hand she was dealt but I'm praying for her to be happy and comfortable and also for you the parents to have some type of relief in the time to come. You seem like amazing parents and a child with a condition like this is lucky to have you. I envy your internal strength in dealing with this and I will continue to pray for the whole family. Best of luck.

Darren

Sent on Saturday, June 27, 2009 at 3:26:10 PM
dc06pz@brocku.ca


From Rowab Pritchard,
Llandovery, Wales, Britan

i only have one kiddny and i thought that was bad looking back at photos of my operations but gee wiz there are some cracking tubes there. i am really interested and i am behind you and your family all the way
Sent on Monday, June 29, 2009 at 5:22:55 AM
rowan.giggle@googlemail.com


From Aimee G,
U.S. Colorado

I know i can never know what you and your family have gone through. but i can trully say i am so sorry! I'm sorry for everything your family and your daughter have went through. it must have been really hard! not must have been it was really hard! I have no clue if u have a religion but I'm Christian, so i will keep you, your family, and your beautiful, loving, and caring daughter in my prayers. i know i may only be 15 going on 16 soon, but i do understand that these things are hard to go through. and i REALLY and trully hope things start getting wayyyyy better for every1 and your daughter. you will be in my prayers and know that people are out there who care about whats going on and wish you, your family, and your daughter the best! :)
Sent on Tuesday, June 30, 2009 at 11:57:42 AM
bubble_cub@comcast.net


From Bruno Cercas,
Portugal

Just to send a big hug, and wishes of getting better...
it's so bad that a little girl as to pass trough all of this.. =(
best wishes..
Bruno

Sent on Thursday, July 02, 2009 at 9:50:07 AM
trip_T_mind@hotmail.com


From Carmelo Seminara,
Phila.Pa

Hi, I can not even begin to understand what you guys are going through. God Bless You and your family. Though we do not know each other, I along with my wife and little girl will pray for little Josie as we watch how she struggles with the terrible disorder. She is an inspiration to us ALL. Please don't forget that there are wonderful people out there that genuinely care about your struggle.

Blessings to you all, Carmelo and Melissa Seminara, Phila.Pa.

Sent on Monday, July 06, 2009 at 10:15:18 AM
carmelo.seminara@phila.gov


From Lynne,
Winnipeg, Manitoba

I have been deeply touched by Josie's story. Her life has been a very interesting one to say the least. My heart goes out to her and your family. I have prayed for her and will continue to think about her and pray for her. I don't know why these things happen to our little ones. I am frustrated with that, cause, seriously they don't need it or deserve it. I am bewildered also so very happy to hear the she is happy. Isn't it so wonderful to be a child? Children are so adaptable. They can do anything when they have the love and support of their parents or people that love them. You do. You really show that you are terrific parents. You are great parents. Be encouraged and know that there are a ton a people that have been deeply affected by Josie. What amazing things will happen through her. Just know. I don't know if you believe in God but I believe that he knows Josie and loves her and has big plans for her. God bless you.
Sent on Tuesday, July 07, 2009 at 9:52:07 PM
comfortwrap@gmail.com


From Jamie and Abby Voyen,
Mahtomedi, MN

WOW What an amazing little girl. Our at the time 11 year old was diagnosed with Dermatomyositis, MCTD, JRA and Raynauds. We have gone through nothing like you guys have but yet a huge blow, struggles, sadness and yet we find strength everyday from friends and family and other stories like yours. We also see Dr. Vehe and he is the one that gave us your page to view. Good luck and I will check in often.
Sent on Wednesday, July 08, 2009 at 9:12:39 PM
jamievoyen@comcast.net


From Kathy Hubbert,
Port Charlotte, FL

You have the face of an Angel but the strong will of a lion. I will pray that God gives you continued strength to fight this terrible disease. Wish I could send you some Florida "sunshine" to cheer you up. The love and strengh of your family will help you during this very trying time.
Sent on Friday, July 10, 2009 at 6:27:56 PM
raykathy@embarqmail.com


From Stacy Leeper,
Edgewood, Washington

Wow. I came across your story and am inspired by your strength and all you have gone through. I will be praying for Josie and your family on a consistent basis. She is one tough little cookie! I pray for God's strength to envelop you all. You have been through much. Again, wow.
Sent on Saturday, July 11, 2009 at 7:35:19 PM
leepergirls@yahoo.com


From tragedy,
concord, ca

oh my god, i wish there was something i can do. i showed my boyfriend and both cried......i really didn't know what was going on in life around this country but ill look more often now that's for sure, lol. sounds like a very painful and annoying thing u all go through. u all are very strong and i hope for the best for all your kids. the pictures are amazing i'm wondering how such sweet people can get it so bad, well anyway much love to u and your daughter. gl (good luck) Josie!!! your doing great.
Sent on Saturday, July 11, 2009 at 10:26:29 PM
XxmymindfreakxX@yahoo.com


From Christy Martin,
Mi

I stumbled across this blog merely by accident, or was it? I've been touched by Josie's experience. My heart goes out to you in the deepest most sincere way from one mother to another! God Speed on a happy,healthy life richly deserved!
Love, Christy ( MI mother of 2 young daughters.)

Sent on Monday, July 13, 2009 at 7:20:54 PM
chrismike927@yahoo.com


From Amanda Reed,
Ticonderoga'NY

I was surfing the web for tatoos and came acrost her page. I have read most of it and got to thinking. I have not been throw the samething as ya'll but my now 2 year old was in the hospital for RSV/Perferated small bowel/E-Coli sepsis/tracia melasha(SP)and 2 surgerys. He is doing great now growing like a weed. But I know how scarey it can be watching whats going on and not being able to take the pain or sikness away for them. I hope all is well now and she is growing by leeps. My prayers are with ya'll and her.
Sent on Monday, July 13, 2009 at 11:26:08 PM
angelove1980@hotmail.com


From Anna Walker,
Brooklyn, NY

I stumbled across your blog while looking for some information on Lyme disease. I'm so touched by your story and send each of you love and strength from Brooklyn.
Best wishes,
Anna Walker

Sent on Tuesday, July 14, 2009 at 1:05:03 PM
acwalker@ymail.com


From nathalie jane mongcopa,
Philippines

hi there..im nathalie from the philippines,,,i accidentally read ur blog..and i was realyy prod of how u made her smile..even things arent that good for you..God will bless you and your family for caring and loving God's little angel josie...i will be very happy to hear one day that she is fine and hoping to see her sweet smile once more,,,your such an awesome family...im proud of u...
Sent on Thursday, July 16, 2009 at 11:11:57 PM
mongcopa@yahoo.com.ph


From Bonnie Mansfield,
Indian Harbour Beach, FL

I ended up on your website by accident but could not leave without reading about Josie. She is such a little angel. You are very brave and I will lift you up in my prayers.

Blessings to you and yours!

Sent on Friday, July 17, 2009 at 6:02:49 PM
pita@cfl.rr.com


From Regina ,
New York

Me too. I saw your blog by accident, but it caught my attention. God bless your family. You are certaily some special strong people. And off course God bless Josie, and lets pray for a cure for her condition.
Sent on Friday, July 17, 2009 at 9:40:46 PM
regina_360@hotmail.com


From Inahlee,
Washington

My father and I were surfing the web and noticed your blog. What a terrible situation for such a precious treasure! I can't tell you how sorry I am. I'm studying to be a doctor as well, and was deeply touched. I'm sure it must be terrible for two loving parents to watch all this happen. Keep your faith up and never let her go! She's a strong fighter and she's in my prayers. Though trials will come and go, hang on through the chaos; it'll end and I hope soon. My prayer is that she'll grow up healthy and well to teach other suffering children to hold on as she did.

May the Lord be with you,
Inahlee

Sent on Sunday, July 19, 2009 at 12:38:25 AM
zhonzyre@gmail.com


From laura dorr,
michigan

I was online searching for infections of the toe cause i had got an infection in my big toe. I was looking up pictures and came across josies page. All i have to say is wow i dont think my toe is such a big issue no more. This girl of yours must be a strong girl cause i could not bear to see the pictures and not cry. I will pray for josie and your family everyday and hope that they will find a cure for her. love laura
Sent on Monday, July 20, 2009 at 11:07:20 PM
nyketa@gmail.com


From Teresa Weaver,
St Louis MO

What an incredible story! My heart really goes out, my son is about the same age as Josie and I have to say that I am amazed at how your entire family dealt with all this while keeping a positive attitude! I have 2 young children, and I couldn't imagine seeing either of them hospitalized and in pain. She is a very tough girl! With a very caring and loving family. I hope to see a positive update sometime soon.
Sent on Tuesday, July 21, 2009 at 12:48:13 AM
aries4279@yahoo.com


From Michele,
NYC

Hi, as I was looking for answers to a rash that I have developed I came across your site and your little angel. I am sorry for all the pain that this disease has caused you and your family. I admire your strength, honesty and determination to fight. I know god will continue to give the strength to fight this battle. Josie is in my prayers. Sending you love and hugs, Michele
Sent on Tuesday, July 21, 2009 at 11:21:46 AM
misscotrona@yahoo.com


From Michael and Krystal Ayotte,
North Carolina

Josie,

My husband and I are very proud of you for staying strong and not giving up through your fight. Continue to stay strong and you will be in our prayers.


Sent on Tuesday, July 21, 2009 at 12:49:26 PM
twisted_skies13@yahoo.com


From Lisa,
California

Josie, I only read through some of the blog, but I can already see what an AMAZING little girl you are! You've endured so much in your short life, and I can't imagine all the pain you've suffered, but through it all- you're able to smile and enjoy the little things life has to offer. =-) We can all learn a lot from you! I just wish I could hug your sweet self and let you know that I care, even though I don't know you- I wish I did. I hope that you and your family are doing well today. Blowing you "get well" kisses from California. -Lisa
Sent on Tuesday, July 21, 2009 at 1:12:11 PM
catchmeifyewcan@aol.com


From Ariana Berkemeier,
Lake Arrowhead, California

Hi Josie!!
For the past couple of years, we've been reading about your story on your blog. Back in 2005, during a skiing trip, my family was seeing something differnet about me. I was slower and I counld't ski down the hill. A couple months past, I started to get red and purple skin on my eye-lids and on my skin. We went to numerous eye doctors and got all of these eye drops. When my symptoms got worse,we just went to a different doctor. I started to notice that I wasn't running as fast, and had a hard time performing everyday tasks. My redness was spreading to my legs and arms. Finally, one person diagnosed me with dermatomyositis and recommended me to see another doctor. When we went to see her, see placed to on the ground next to a chair and told me to stand up. When I couldn't stand up, she told me that I had to go to the hospital. I stayed at the hospital for four days. I had to go to weekly doctor's appointments, and had to do physical therapy. She then started me on kemo therapy and steroids. I started to get weight gain, and hair growth. I was on kemo for 2 years. After all that, I stil couldn't walk up stairs, or do sports. After a long and painful journey, I've been in remisson for 2 years now. I stil have the pink purple eyes and, but I am now a happy teenager that does daily sports and can do everything that a normal person can do!!!We continue to look at your blog, and just pray for you, all that we can, your story is remarkable, and I'd wish to continue to write to you to help you in your troubled times. It's nice to no that that there are other kids that have the same thing as me, and maybe some day they can find a cause to this horrible sickness! My hopes and best wishes are for you and your wonderful family of yours!!
Best Wishes,
Ariana Berkemeier

Sent on Thursday, July 23, 2009 at 8:00:32 PM
arianaberkemeier@gmail.com


From alecia donahue,
new jersey

My name is alecia and I am a level 4 nicu nurse who stumbled upon your blog online. I am so moved and captivated by your daughters story and hope you are all doing well. Your courage and stamina is remarkable and I hope Josie is doing well but most of all I comfortable.
Sent on Friday, July 24, 2009 at 10:15:18 AM
adonahuern@yahoo.com


From Monica,
Italy

I can't express the feelings had reading this blog.

Every day must be an unique treasure to live for you and your wonderful daughter.
Every day you'll find the strongness you need in her smile.


A big hug.




Monica

Sent on Saturday, July 25, 2009 at 5:05:37 PM



From Jennifer Kristy,
Cool, CA

I saw Josie's story as I was looking for pictures of skin rashes so I could try to identify what I might have. Instead of identifying my issue I feel like I've found some new friends.

Josie, what courage you must have, Mom and Dad as well. Your parents have made your story and struggle come to life for me and I'm sure for others as well. Our own problems and struggles in life can seem so much smaller when others tell of their own. I hope you don't mind if I follow your story moving forward. Keep fighting little darlin!

How old are your brothers and sister? What are their names? I think I must have missed some details along the way. There was so much to read.

Until next time, you all will be in my prayers.

Sent on Saturday, July 25, 2009 at 9:39:37 PM
jkristyk@yahoo.com


From Someone who cares,

I'm so sorry to see everything your daughter has been through. It breaks my heart. Consider checking out lyme.net Just a thought.
Sent on Sunday, July 26, 2009 at 9:19:12 PM



From Jen ,
new jersey

Hello. I came across your page when I was searching images of various mouth diseases for a condition my mother has. When I got onto your page I couldn't stop reading. God Bless your family, especially Josie, such a little warrior. I have a daughter who was born 9/20/04, my only child, so your story really touched me. She was hospitalized last summer 7/1/08 overnight for a heat stroke (only one night) and that seemed terrifying until I came across Josie's story. I admire your family's strength and solidarity. Keep fighting the good fight. Josie, you are my hero, and a model for us all. God Bless you, big girl! :-)
Sent on Monday, July 27, 2009 at 8:05:12 AM
mrsmosko@aol.com


From Steve,
Oregon

I did a google search for "dark red bugs" that seem to be everywhere in our garden and I came across this site. I have spent the better part of three hours reading about Josie and your family. What an amazing little girl you have. Such strength. You are all in my thoughts and in a twisted way you have inspired me.
Sent on Thursday, July 30, 2009 at 4:49:43 PM
steve@SteveNicholsConsulting.com


From Dwyane,
Australia

Hi guys,
I was just net surfing and you page caught my eye.
Josie is one of those people that need more medals than a WWI veteran. You also need to be greatly credited for you courage and love. I wish Josie you and your family the very best for the future, and please tell Josie that she is gorgeous.

Sent on Thursday, July 30, 2009 at 9:51:23 PM
melsin6@bigpond.com


From Michelle,
Cleveland

Hi Josie, hang in there babe! you are such a precious, brave little girl! I love your birthday picture ;o)
Sent on Friday, July 31, 2009 at 9:50:14 PM



From Katy,
London

I stumbled upon Josie's page accidentally but I couldn't help to read the entire blog from start to finish. I am so happy that she is continuing to persevere. She must be a very strong little girl, indeed, and is undoubtedly beautiful. I just wanted to say that your story is moving and that there are people out there (even strangers) that have been touched by it.

Wishing you hope and joy. Your family and Josie deserve it.

Sent on Saturday, August 01, 2009 at 9:33:38 AM
katymcgrewmusic@yahoo.com


From Charles,
Singapore

Hi Josie, I can't help but marvel at your amazing feat in fighting such a horrible illness. Such must definitely be the work of God and thus, Believe that He will continue to watch over you and things will surely get better.

Love,
An unknown doctor from a faraway place =)

Sent on Saturday, August 01, 2009 at 10:28:53 AM
charles_njh@hotmail.com


From MADRIA,
L.A

HEY MY NAME IS MADRIA I WAS CRYING ALL DAY ABOUT THIS SAD SAD STORY I CANT IMAGINE WHAT SHES GOING THREW ITS SO VERY SAD TO SEE A LITTLE GIRL SUFFER LIKE THAT MY PRAYERS ARE WITH U AND THE FAMILY AND SPECIALLY JOSIE I HOPE SHE IS BETTER NOW IN 2009
Sent on Sunday, August 02, 2009 at 10:39:17 PM
MADRIA_CHEAIRS87@YAHOO.COM


From Edilasio Manuel,
Brockton Ma

Hello josie
I've praid so that you will be cured from this disease, just want to let you know that there is no doctor or surgeon like the Lord and that in Jesus name you're healled
and Mom and Dad i'm also very proud of you for being so strong.
lots of love
God bless

Sent on Tuesday, August 04, 2009 at 6:44:12 AM
god_sol@hotmail.com


From Samantha Holt,
Hawkes Bay New Zealand

Hey Josie,
Hang in there hun. Things will get better. You are a strong little girl and you will be cured.

Sent on Monday, August 10, 2009 at 2:04:43 AM
samanho@iona.school.nz


From Morena J. S.,
Italy (milano)

Hello,
i'm from Italy, Milano.
Josie, I hope you can enjoy good health in your future...
you are a beautifull baby, and it is right that you can run, play and have fun like all children.
You are a brave little girl, you have so much strength and good will.
You are a great example for us, we admire your strength Josie.
Good lucky...



Sent on Monday, August 10, 2009 at 3:07:54 PM
pinkynails@live.it


From Kevin McLeod,
Devon, Alberta, Canada

I came across your blog while searching for images of blue-green algae of all things where I came across the picture of Josie in the lake. We have grandchildren and I couldn't help but click on the picture of this sweet little girl. I started reading your blog and I couldn't stop. Your family is such an inspiration of love, devotion and strength. My wife and I will pray for you daily. I just want to hug you guys. Thank you for sharing this very trying and loving journey.
Sent on Monday, August 10, 2009 at 8:19:03 PM
aimenviro@telus.net


From Adam,
Bethlehem, PA

I found this site by searching for help with male-pattern baldness (yes you can laugh ;) Keep that in mind....

I'm very touched by your story. Don't let anything keep you down. Embrace what you've been given and make the absolute best of it. My heart and thoughts to you.

....my baldness seems so not important now.

Sent on Tuesday, August 11, 2009 at 12:58:35 PM
adamshive@hotmail.com


From Brittany Reynolds,
Upland, CA

Josie, you are an amazing little girl with so much courage! You are inspiration to me and I am sure so many more. Stay strong and keep fighting!

xoxo
Brittany

Sent on Wednesday, August 12, 2009 at 2:49:10 PM
Britneh@gmail.com


From Lisa Barnett,
Louisiana

Like a number of other visitors, I came across this site while looking for something else. I stayed up until 1:00 am last night reading it, and had to come back tonight to finish reading your story. I cannot imagine having to deal with something like this. Your children are all beautiful; the best of luck to your family and God bless...
Sent on Friday, August 14, 2009 at 9:50:28 PM
southpohl123@yahoo.com


From Wendy Ferretto,
Reno, NV

What an amazing little girl you have! Thank you for sharing her story. I will keep her in my thoughts and prayers for she is truly an inspiration.
Sent on Friday, August 14, 2009 at 10:46:52 PM
wandrews12@hotmail.com


From Melissa Csorba,
Glassport Pennsylvania

I hope you are doing well sweetheart. I cannot say I know what your going through or it will be ok, because I dont know what your going through..but I do know you are the strongest little girl in the world. You truly inspire me, I feel if Josie can make it through everything she has been through I can make it through anything. Thanks for giving me strength when I thought I would give up.
Sent on Monday, August 17, 2009 at 1:50:40 PM
mkcsorba@aim.com


From Stephanie Miller,
Chico, California

Hi, I am a disabled RN who now doesw wildlife rehab in Chico,Ca. I take pictures to use for post cards, which I send to the armed forces, and other disabled people. I just came accross your site as I was looking for avian diseases. Would you allow me to send Josie pictures, with a short story included, like the ducks that formed a gang and went bad? Or the time we caught a skunk in the trap we were hoping to catch ground squirrels in, on Sunday morning, and how my dad didn't smell good enough to make it to church? The stories all have a happy ending, and are just long enough to fit on a 5.5 x 4 postcard.
This is something I can do at home when I have the energy for it, and helps me feel productive. If you would like a sample let me know. My favorite job was taking care of disabled children at home, I really miss it. Stephanie

Sent on Tuesday, August 25, 2009 at 3:24:50 PM
sqrlgrl1@sbcglobal.net


From Zulma Gunther,
Ohio

Hello, I just want to said that I admired you for been so strong, I can't imagine how This is affection all of your family, Josie is a beautiful litle girl am glad to read your blog and find out that she is doing better, I will keep your family in my prayers.
Josie you can do it! there is somuch for you to see that by looking at your pictures I can tell that you are a very special girl and good has a plan for you.
Take care
V/R
Zgunther and family

Sent on Thursday, August 27, 2009 at 7:52:59 PM
zulgunth@yahoo.com


From Polly,
Cincinnati

Josie is such a strong little girl! I am glad to see for the time being she isokay. All my prayers are with her. your family is so wonderful, I can see she has alot of support. Hang in there Josie!
Sent on Sunday, August 30, 2009 at 8:11:16 PM
MrsCamery@yahoo.com


From Carol,
Nisswa

Thanks for the update. I was wondering how the little sweetie was doing. Good Luck in the first grade Josie! You are a brave little girl.
Sent on Monday, August 31, 2009 at 9:09:15 PM



From Erika,
Seattle, WA

Hi Josie,
My name is Gary, I am two years old. I was diagnosed with JDM in May. (Ok so it's not really me, it's my Mom). We just want to say you are amazing. You are such a fighter. We are praying for you and your family. Keep up the good fight. Amazing blog Jay and Deb.

The Bradford
www.garyvsjdm.com

Sent on Saturday, September 05, 2009 at 12:39:47 PM
roberika2@msn.com


From Cindy,
Becker Minnesota

Hi, My son was diagnosed with Dermatomyositis at 3 years of age and fought it for 2 years. He had mostly muscle involvement. His CK was 33,000 at one point. We also saw Dr. Vehe at the U of M. He was in remission for 9 years, but it is now back and active at age 14. Dr. Vehe is still there, although we now go to Gillette in St. Paul. Thanks for your story. I'm glad your daughter is doing better.
Stay Strong,
Cindy

Sent on Monday, September 07, 2009 at 4:24:39 PM
cindys@mywdo.com


From Diane,
Virginia

My prayers are with you all! I can only hope and pray that they find a cure for this illness. I have Lupus and have never been through anything that this poor little girl has gone through in her young years! My heart goes out to her and to you the parents that have to endure the pain in watching your child suffer.

I hope each day brings Josie a better and promising life!

Sent on Wednesday, September 09, 2009 at 2:02:13 PM
dbosserman@rockingham.k12.va.us


From Lindsay,
Lancaster, Ohio

I stumbled upon your website by accident and have found myself reading for over an hour. I am so sorry you all have to go through this hardship and I sincerely hope Josie feels better soon. It seems, from afar, that you have a wonderful and supportive family and I wish you all the absolute best.
Sent on Thursday, September 10, 2009 at 12:07:44 AM
lindsayphotography@hotmail.com


From Patricia Hagan,
New Hampshire

God Bless you and your family. I am a Nursing Professor at a Catholic college in New Hampshire, teaching Pediatrics. I have spent the entire day reading your blog. What can I say? You've have given the world of Nursing a gift... If it is alright with you your daughter's story will become a critical focus in our class. Josie will teach the next generation of nurses more than I ever can.
Sent on Thursday, September 10, 2009 at 7:29:50 PM
usnrnurse@msn.com


From Marie F.,
Belgium

Hello Josie and family!
First of all, I would like to say that your courage is enormous!!! I feel so much sorry for you all guys, and i wish very much luck, success, and I will think of you!
They will certainly find something against it, I'm sure of that.
Love,
Marie (from Belgium)
ps. sunday i'm going to the church, and I will burn a candle for ya'll!

Sent on Saturday, September 12, 2009 at 4:34:34 AM
rozefreak@gmail.com


From Pablo Ortega,
Houston, Texas

Awww.. this really gave me a huge lump in the throat.. I hope she fully recovers.. just trust in the lord and he will heal her. I hope things are better now.. SHE IS A FIGHTER WOW.. SHE HAS BEEN THROUGH SO MUCH God bless the fighting little girl.. I admire her.
Sent on Sunday, September 13, 2009 at 6:09:56 PM
ohouston713@yahoo.com


From Christie Arena,
Florida

Hi, My name is Christie Arena and i would really appriciate if you would read this =)
I somehow found myself on this page and i don't even know how to express in words how reading all these updates and seeing all these pictures absolutely ripped my heart out. You are obviously a very loving mother and an amazing women ! It seems as if Josie is the hospital a lot and is taking a lot of medications, and im sure all that gets very expensive and it would make me very happy to be able to help you, your family and Josie. After seeing all of this i would be absolutely honored to run a school fundraiser to raise money for Josie to possibly help in ANY way that I can. Please e-mail me back at LiveLoveLaugh@luckymail.com . When i see a story as sad as this with a family so determined and strong, it really does put a smile on my face and want to be apart of making everything better! Hope to talk to you soon

Sent on Wednesday, September 16, 2009 at 12:38:37 AM
Livelovelaugh@luckymail.com


From Fay,
Michigan

Hi, i was just searching the net because i wanted to join a radiology program, and one link led to another, and i just found myself on your page. Your daughters pure innocence and strength just captured my attention. I just wanted to let you know after visiting your page, my prayers are with you and your family on her well being. I cant imagine what your going through. My daughter was hospitalized for 3 months when she was 4 months old, and I felt like my world ended.. her cause wasn't nearly as sever as your daughters., and little more then a year later, I still cringe and cry over it. I just believe you have to be strong, and your daughter is really lucky to have such amazing, strong, faithful, and loving people in her life. May God always be on your side, and remember everything happens for a reason.


And Josie always remember you are a beautiful princess!


God speed

Fay Ajami

Sent on Wednesday, September 16, 2009 at 1:24:06 PM
fnajami2003@yahoo.com


From Joyce Peterson,
Macclenny, Fl

Josie I went to your website to look up hernias because I think my son may have one. You are a miracle. I felt led to pray for you. You are one strong little girl who has endured more than some 40 yr olds that I've met. Praise God for you and your family. Your parents are tough too. God has plans for you and Jesus is praying for you right now in heaven. I will look in on you to see how you are doing from time to time. I have two little miracles too. You really made me feel like a whimp when I saw the picture of you camping with the pic line. I didn't even want to give myself shots of heprin. I should have visited your site while I was pregnant with my daughter. You have encouraged me and I'm glad I met you.

Love in Christ,
Joy

Sent on Thursday, September 17, 2009 at 9:33:27 PM
iam4gvn@nefcom.net


From amber,
australia

Hi, came across your web site, wow never herd of this one, but it must be hard for josie and yourself, dad and other siblings. I have two children myself one year old and 12 year old. I cant even think how painful this would be. There is nothing worse than seeing your own child sick and in pain. My thoughts are with you guys. Get better soon, keep fighting this.
Amber Thompson-Australia
xxxxx

Sent on Saturday, September 19, 2009 at 9:52:25 PM
ambernina@hotmail.com


From Carole the catlover,
Sydney, Australia

I was looking for calcinosis in GOUT for uni, I study podiatry. I have never heard of this Josie's disease, (we have a professor who mutters darkly when obliged to talk about 'so and so's disease. She dislikes people naming diseases after themselves. Check out 'Morton' he's big in podiatry...)but it is a bit different with a living person. For those of us with a bit of a professional interest, could you post an x-ray, or even email one to me.....I'd like to be able to differentiate from Gout.....the interesting thing is that children don't get gout unless they have a rare enzyme error. I hope you find a cure soon, and I will you well. Carole
Sent on Saturday, September 19, 2009 at 11:23:41 PM
carolethecatlover@yahoo.com


From Nicolas Kadima,
Toronto

Hi Josie. I accidentally came upon your blog while searching on Google. I just wanted to say hello and re-assure you that things will work out fine. You rock!
Sent on Sunday, September 20, 2009 at 11:17:27 AM
nkadima@rogers.com


From Jennifer Rainerson,
Maple Grove

What a journey your family has been on. And what a miracle Josie is! Thank you for sharing this with me. I am speechless. I am looking forward to working with Josie at Concord and to get to know her better.
Sent on Thursday, September 24, 2009 at 9:31:55 AM
jlrainer@comcast.net


From angelle bommarito,
new orleans, la

Hi... I must say I stumbled on this page about 1 1/2 hours ago... and I feel so much pure love and support jumping out of my computer. You have a very beautiful family. I hope things have gotten better for Josie since May... I will keep you all in my prayers. I have learned so much from reading your blog.

For almost a year now my 7 year old daughter McKenna has been experiencing some of the intial symptoms your Josie started with. I am driving myself sick trying to make a decision as to which doc to believe, what is her TRUE diagnosis,
contact dermatis, allergies, and now this May she was told she has Amyopathic Dermatomyositis... she has had a negative muscle biopsy, normal labs, a questionable ANA... which when further tests were done... came back negative. All of this started with a crusting... reddened spot on her eyelids that for a couple of years would come and go with the seasons... along with "shiners". We dismissed it as allergies... then this past March she had a very strange swelling to her eyelids... fevers that were 100-101... over the course of a few days her lids got very leathery... crusty... but her eyeballs themselves never were affected. We thought ( and was told by a few MDs) it was an allergy from something she must have rubbed on her eyes.

Well... to make a long story shorter for times sake... In May she did see a Rheum MD and was clinically DX with Amyopathic Dermatomyositis... We did start her on Plaquenil... although I was very opposed to it initially... but caved. She started the med at the end of May.

We also got rid of our pet cat... which was very difficult... but so many people insisted that she must be allergic... although we had her scratch tested and everything came back -. No allergies!!!

at the end of the summer she was around a kitten for 2 days... and wouldn't you know it... her eyes had a flare up... only red and crusty... no swelling like in the spring... so my thoughts were... maybe it was the cat. I started to read more on the DX, and medication. I started to think... maybe she does not have this DX of Amyo..Derm. Why is my little one on this medication... she has not c/o leg pain, joint pain, she does not have any gottron's papules, or 'purple' classic rash... i started doubting everything!!!!!

2 1/2 weeks ago I TOOK HER OFF OF THE PLAQUENIl...... her eyelids are still a bit crusty... not so red.... and her MD is currently out of the country until mid October... this week she had a boil pop up on her thigh, and an abcess under her baby tooth... the thigh boil has healed and we are scheduled to have her tooth removed on Wed. of next week... she is on Bactrim for 10 days.

I feel I need to make the right decision for my daughter... but I am stuck with what to do! Your blog opened my eyes to what McKenna's future may bring... do you have any advice... does anything I have typed sound familiar to you? I have more details but did not want to over type. I also documented McKenna's 2 " swelling eye flare up" fro this March and April... can I share those photo with you to see if you can comment what you think...
thank you for taking all of your time to blog for Josie... and now for McKenna!

angelle

Sent on Friday, September 25, 2009 at 12:03:27 PM
angellepb@cox.net


From Christy and Morgan Fellers,
Tennessee

Dear Josie,
We ran across your information while I was on the computer with my Mommy. I read lots of your story and looked at many of your pictures. You seem like a very brave girl! I am 5, just a bit younger than you I think. I will be praying for you to get better.
Love,
morgan faith fellers (and her Mommy Christy)

Sent on Friday, September 25, 2009 at 6:27:59 PM
cmfellers@milligan.edu


From Brie Elizabeth,
Holland MI

I wish i could do more to help... shes gorgeous = )
Sent on Saturday, September 26, 2009 at 3:25:11 PM
brieblank@hotmail.com


From Kathy Gordon,
San Diego, CA

Hi Josie,

I was so happy to see your blog for the first time today. I hope that you are enjoying first grade. I would love to know more about you. I know that you have a great family. Your parents and your brothers and sister love you, I can see. I know that you're brave; you've been through a lot. I wonder: what is your favorite animal? what's your favorite color? do you like art and math and music? do you like to read?
I have two sons. Max is 15 and Jonny is 10. They wish they had a little sister like you. I'm sending my love and prayers for you and your family. Happy Autumn!

Sent on Sunday, September 27, 2009 at 6:11:24 PM
kmg59@cox.net


From Diana Noland,
Los Angeles

Dear parents of Josie,
I am a nutritionist and quickly read through the blog of Josie's adventure.
My heart felt for Josie and your family.
I humbly submit you may want to get another opinion of medical treatment to get to the root cause of her medical condition and restore her to wellness.
The long pharmaceutical lists and prolonged treatment that has not resolved her imbalances is heartbreaking.
Please look at the website www.functionalmedicine.org to look at a fresh approach to medicine that is gaining strength for chronic diseases (even a bill attached to the new healthcare bill currently before Congress).
At least a fresh set of eyes on her case would be worth pursuing.
There are several doctors who are masters at finding root causes, and possibly can break Josie's cycle of disease.
Blessing you to find answers for your daughter.
Diana

Sent on Tuesday, September 29, 2009 at 9:40:17 AM
nolandrd@mac.com


From Danielle B.,
Tampa, FL

I was looking for Willy Wonka Pictures. Pics of Grandpa Jo to be exact and came across a pic of your daughter. I could help but to visit and see more and read more. It just instantly brought me to tears. I hate to children suffering. I am a proud mom of 3 children. I hope and pray for your family that they will find a cure or some relief it looks so family. She is such a brave and beautiful little girl to keep fighting. All my love to your family.
Sent on Tuesday, September 29, 2009 at 12:11:46 PM
Danielle.m.bunch@fnis.com


From Rachel,
West St. Paul, MN

Hello. My name is Rachel. You don't know me, but I stumbled upon your blog after a completely unrelated google search.

I read quite a bit if your blog, though. I was captivated by the pictures and the sheer amount of struggle your family has been though. I also noticed that you were at the U of M. I'm from West St. Paul, so you're close to home for me!

I wanted to say that I admire your strength as parents. Your patience and faith during such a long, difficult time is truly inspiring. I am not a mother yet, but have never even thought of how I would deal if my child was not a normal, healthy child. But now that I've read about your journey, it has become a reality to me. I feel better prepared. You have to fight, you know?

To Josie, I say "KUDOS!" You are an amazing little girl! You are probably more mature than many of my peers. What strength you have! Keep on fighting, girl!

Thank you for sharing your amazing story with the world.

Sent on Saturday, October 03, 2009 at 1:08:48 PM
muzikrocks321@hotmail.com


From Joe Allen,
sacramento CA

We are so sorry to learn of Josie's illness and the struggle she is going through now. We will keep her and all of you in our prayers. Thanks so much for these updates.

Sent on Saturday, October 03, 2009 at 2:34:37 PM
Aerialthoughts@gmail.com


From Rachel Billington,
Manchester, England

I came a cross this just by searching google for my tattoo ideas, and im glad i looked at this because josie you are one brave girl!

I can't imagine what you are all going through and how you deal with it all. I take my hat off to yous, because i know that if this was me i wouldn't have been able to deal with it.

I read quite alot of the blog and it amazes me how strong you have all been, especially you josie, i hope that this gets better soon because you don't deserve it. Stay srong little one, thinking about you always love from Rachel Billington x

Sent on Saturday, October 03, 2009 at 3:39:41 PM
rachelb_08@hotmail.com


From Peggy,
bc, canada

Josie, you and others like you are the reason I decided to go into nursing. My prayers are with you every day on your road to recovery. Please let us know your current health status. You are an inspiration to all in the health care system and to parents with sick children. We are thinking of you daily even in Canada.
May you continue to get better daily.

Sent on Sunday, October 04, 2009 at 12:12:43 AM
peggyordoug@ msn.com


From Marcella Baker,
Pittsburgh PA

I just spent the morning viewing your blog. To be honest, I'm not even sure how I found it. God Bless you all. I cannot imagine how you all have dealt with all of this, You inspire me. All of you.

My prayers are with you.
Marcella Baker

Sent on Monday, October 05, 2009 at 11:04:19 AM
mlbakerpitts@hotmail.com


From Becky Hufstedler,
Jonesboro, AR

I stumbled upon your blog while googling house shutters..go figure. Anyway, I was intrigued and could not stop reading about your precious little girl. You don't know me and I don't know you, but I will pray for your little Josie. She must be an inspiration to so many. I don't know if I could as brave as her and I am 30 years old. God Bless you, Josie
Sent on Monday, October 05, 2009 at 10:16:35 PM
hufstedlerb@mail.jps.k12.ar.us


From Kayla Hoffman ,
Des Moines Iowa

I was doing a research paper for school and came across your page. I had no idea it could get so bad. She is a strong young lady. I wish her the best. Let the angels be with her as she goes through life.
Sent on Wednesday, October 07, 2009 at 4:37:47 PM
monkeytoes@mchsi.com


From Stephanie Bumpers,
Mobile, AL

I am so amazed at your little girl! Go Josie! I am a nursing student here in Mobile, AL and I was doing some research on the Jackson-Pratt drain and looking at the pictures and saw this little girl with all these tubes. I have just spent the last hour or so reading about your family's journey. Dad you are doing a great job at posting and informing! I wish I had more time tonight to read it ALL! So I guess I will just have to save your blog page and come back to it. I am so amazed at how she is doing and the long road she has traveled. Now only to get the calcium deposits down!!! She is such a pretty girl and has such a positive attitude. Thank you for having your experiences posted and available and the pictures are great!!! Can't wait to read more and see her progress!
Sent on Wednesday, October 07, 2009 at 11:00:00 PM
slmcclain@aol.com


From Cristine Brewer,
Houston, TX

I wish you the best. I have a sick child as well. It is a very hard road. You daughter is very beautiful. It's so sad our children have to go through this. Our situation is very different, but as a mom I can relate to the situation.

We have twins that are 5 yrs, boy/girl. They both arrived in this world in a normal state. Our son started to go through some changes after his first b-day. I was told when he was 3 that he had autism. I have gone all over the country seeking medical treatment. It's really hard. He is non verbal and still not potty trained. He knows how to sign three words. It's very hard to help your child if you don't know what is bothering them.

Again, I wish you the best of luck. She's so beautiful. My heart aches for what you are going through. Stay strong.

I just stumbled onto your site looking for something about breast tissue and was pulled in.

Good luck

Cristine

Sent on Wednesday, October 07, 2009 at 11:39:16 PM
bigelvis1485@aol.com


From franzia,
los angeles

I'm deeply moved by this. I don't know how I ended up at this site. Seems like I was meant to view it though. You and she are remarkably brave. She's just a doll! I wish her the best and your family as well. It's a beautiful blog, strange to say it, but it really is. xo
Sent on Friday, October 09, 2009 at 2:19:32 AM
cyang2498@sbcglobal.net


From Sarah,
Port Coquitlam, BC, Canada

Your little girl is so adorable! I am so sorry to hear about this terrible disease she has. I hope she is doing better. Best wishes to your family, and God bless :). Take care.
Sent on Tuesday, October 13, 2009 at 1:02:45 AM
drummer_girl_16@hotmail.com


From nikki,
Washington D.C

well i really dont know very much on Josie's disease but i really hope and pray that she recovers.... if their is anything i can do like send cards or even a balloon i will because i'm not what i would do if one of my family member with this disease.... so have a nice life and more years to come!!!!
your new friend nikki washington

Sent on Thursday, October 15, 2009 at 2:44:39 PM
smithlashay@rocketmail.com


From Melissa,
Salt Lake City

I don't know your family, and came across your page on accident, but just know that your little girl is in my prayers.
Sent on Tuesday, October 20, 2009 at 7:42:42 PM



From Cinthia Satornino,
Richmond, VA

Stay strong. I wish you well and Josie strength. What a beautiful girl blessed with wonderful people caring for her. Best wishes that you meet every challenge with as much grace, beauty and strength as you have met all the ones you've faced so far. You are an inspiration.
hugs.

Sent on Friday, October 23, 2009 at 10:31:30 PM
cinthia@sweetkarmastudio.com


From Barbara Carroll,
Huntersville, NC

Hi Josie and Family,

I just stumbled onto this site today. I am a 52-year-old female with dermatomyositis. My disease has been challenging but the compassion I feel when I see children with this disease puts my brain in warp drive and I know this is even harder for your mom and dad and all of those who love you. I will be praying for you Josie and hope that things are moving in a better direction for you. I hope that research will help all of us with juvenile dermatomyositis and dermatomyositis to have healthier bodies someday soon. Josie, I will carry you in my heart and my mind and my prayers. Warmest blessings from a new dermatomyositis friend. : )

Sent on Saturday, October 24, 2009 at 6:55:00 PM
bcarroll1@carolina.rr.com


From Susann L,
Iowa

I also found this page by accident, but know that I think of you often, Josie. You are a brave girl. Stay strong and live life to the fullest.
Sent on Tuesday, October 27, 2009 at 6:11:18 AM



From Christy,
Corpus Christi, TX

Wow!!! You are one AMAZING girl Josie. I somehow stumbled across this blog and I could not stop reading it. You are soo strong!! You are such an encouragement to EVERYONE who reads this blog. And YOUR PARENTS!!! You are extremely blessed to have parents that are there for you all the time. I can only imagine how hard it has been for you as well as your family. Ever since I read this blog me and my family have had you in our prayers. I hope you keep getting better!!! I will keep praying for you and your family!!! God Bless....
Sent on Wednesday, October 28, 2009 at 12:52:26 AM
elizonkris09@yahoo.com


From Jessica Seabolt,
Nashville Tennessee

Hi there Josie My name is Jessica and i live in Nashville Tennessee. I was reading about all your troubles and i hope that you are feeling better. You are a real fighter Little Lady. Hope you get better soon
Sent on Wednesday, October 28, 2009 at 5:07:58 AM
Jessica.woodard@kroger.com


From J,
California

Hi,

I was typing around and looking for "Retina detachment scleral buckle pus infection" for my partner and i saw the images of "pus" that caught my attention about jo jo. She is such a strong girl! We hope she is doing much better from your last entry! :)

Sent on Saturday, October 31, 2009 at 3:23:02 AM
chaz


From Sky Reno,
Missouri

Wow this little girl truely is a surviver, she truly has been through hell i hope she is getting better. I would like to see updates on how she is doing.
e-mail me if you can at vflytrap10@yahoo.com

Sent on Saturday, October 31, 2009 at 11:50:34 PM
vflytrap10@yahoo.com


From tracy,
columbia sc

This is so sad and disheartening that with today's medical technology that noone has been able to stop Josie's sufferings. I have you tried airing her case on medical mysteries or some program like that? I am praying for you all.
Sent on Monday, November 02, 2009 at 11:20:03 AM
tigerbabe140@gmail.com


From Louise Randell,
Mackay - Australia

Hi Josie, I just wanted to pop in and say what an amazing little girl you are, and so so brave. I saw your photo and you remind me of my little girl, Lily Mae. I am sending you all my good wishes today. I hope you are enjoying school.

Louise Randell

Sent on Thursday, November 05, 2009 at 7:35:37 PM
louise.randell@aapt.net.au


From Melanie,
Houston, TX

I stumbled across your page looking for information about skin disorders (my daughter has eczema), and all I can say is what an inspiration Josie and her parents are. I cannot imagine how exhausting fighting this disease must be. Hang in there, and know that you are in my prayers
Sent on Friday, November 06, 2009 at 8:14:57 AM



From Angel Kho,
Canada

Josie, you are the most courageous person in this world. I will be telling your story to all of my friends and ask them to pray for you. Keep fighting and one day you will overcome it.

God Bless You.

Jeff, Angel, Ilia and Tessa

Sent on Saturday, November 07, 2009 at 4:02:43 AM
angel_roc@hotmail.com


From Eva,
San Francisco, Ca

I came across your blog, and I would just like to let you know that I hope things are looking up for you all, especially Josie! Very unfortunate that she had to go through all this, but thank God she is blessed with such strong will power! Much love to you and your family<3
Sent on Saturday, November 07, 2009 at 6:51:57 PM
evateves28@yahoo.com


From Kristine and Coley Wilcox,
Lake Arrowhead, Ca

Take care Josie and stay strong... Happy Thanksgiving and Merry Christmas
Sent on Monday, November 09, 2009 at 6:41:09 PM
kristine597@aol.com


From Kathy Weiler,
Minneapolis, MN

Josie - we were just checking in on you after many many months. Maddie says she sees you at school in the first grade and that you are doing well. Perhaps we can get you both together to play sometime. We are thinking of you.
Love the Weilers

Sent on Monday, November 09, 2009 at 9:29:27 PM
kathy.weiler@earthlink.net


From christine,
warwick, rhode island

I stumbled accross your site by accident and had to read about josie's life and struggles... she is an incredible little girl... reading about how she gets by everyday with everything on her plate, with a smile.. and loving going to school and laughing and playing with other kids.. that is truely inspiring.... you have been blessed with Josie... I will continue reading and keeping up on her progress...I wish you all well.... I am a nursing student and her story only reinforces why I want to become a good nurse...keep plugging, hopefully soon there will be a light at the end of the tunnel...
Sent on Wednesday, November 11, 2009 at 11:44:41 AM
caa32768@yahoo.com


From chrsitne,
warwick, rhode island

so Josie,
what are some of favorite things to do? Do you have favorite colors, or a favorite book? I think you are a very special and very strong girl, keep it up!!! My kids have always told me that I can find the up side in just about anything, well my moto has always been a smile or laugh a day will always a bad day better.... it has always worked. and just seeing your smile definitly works..... keep smiling..... our hearts are with you....

Sent on Wednesday, November 11, 2009 at 11:56:05 AM
caa32768@yahoo.com


From Natasha ,
Alberta, Canada

I came upon this blog by accident, but as a Paramedic student I found it captivating and heartbreaking all at the same time!

THe last update was May 2009, I hope that Josie and your entire family are continuing to heal from your long ordeal.

God Bless & Many Prayers!

Sent on Thursday, November 12, 2009 at 9:21:36 PM
nschiebs@gmail.com


From Ivonne,
Florida

I was searching in the internet for some medical information that I need and I just get in shock for all the things that Josie went through and just going to add her and as well your family in my prays and I very sure that God will protect her every where she go.

God bless you all.

Sent on Sunday, November 15, 2009 at 12:49:35 AM
yvocohen@hotmail.com


From Patti Epstein,
Madison, WI

For those of us who check in on your site, the lack of any posts since May is worrying...Please post!
Sent on Sunday, November 15, 2009 at 5:44:51 PM
pepstein@bgmlaw.com


From Christina Bilher,
New York, NY

Josie! I randomly came across your page and read your entire blog! Stay strong because you are an angel. Never give up hope and know that your family loves you. God Bless!!
Sent on Sunday, November 15, 2009 at 8:48:04 PM
Coloratura718@gmail.com


From Sarica,
Australia

God Bless you brave girl....Hang in there.
:)
Lots of love and wishes
Sarica

Sent on Monday, November 16, 2009 at 11:21:16 PM
saricagw@yahoo.com


From jesse Y.,
okanagan valley. BC .Canada

This is a unbeleveible story.
i couldnt imagen how hard it has been for every one.
To be with josie everyday and then write about it is amazing.
josie is very strong,
i hope everything works out
no one deserves it more then you!


Sent on Tuesday, November 17, 2009 at 1:41:01 AM
jesseis.here@hotmail.com


From Shelia Lintner,
California

Good morning Josie and family
I was looking up why a ehit cell count would be high and came across Josies story WoW . Hope this note fine you having a great day today. God bless you all

Sent on Wednesday, November 18, 2009 at 12:40:19 PM
slintner04@yahoo


From Caroline Larson,
Chinle, Arizona

Hi Jay and Deb and Josie!
I read your webpage on Josie and her condition, up to the last post in May of this year. I was wondering if you have thought at all about using alternative medicine (herbs, dietary supplements, nutritional changes) for her? Most people who constantly go to the doctor and hospital are unaware that others have treated similar conditions with all natural means. If you haven't considered it, I would invite you to do so, as I believe that for every illness God provided a remedy (not man-made). I did some research on calcinosis and discovered two things that might help tremendously. You mentioned she is taking calcium. There is a strong relationship between calcinosis and severe magnesium deficiency. The relationship when giving calcium supplementation should be calcium 2:1 magnesium. Phosphorus, sulfur, vitamin D, zinc, and other trace minerals are needed by the body to balance these out. I believe she would benefit tremendously from a liquid form of colloidal minerals (available from Now Foods or other herbal supply stores). Also, there is a strong indication that Chickweed Salve applied to her sores would greatly help her skin; as well as Chickweed tea given as a drink; or mixed into her food as an herbal extract (taken internally) would benefit her tremendously.

As you know, when changing her diet, one needs to start slow and increase as she tolerates the herb well. Try applying the chickweed salve in one place for several days; and if it works, use more. Try giving her 5 drops of pure Chickweed tincture a day and note the reaction. If you would like to learn more, I could send you links to webpages that talk about it, or a Chickweed information flyer to print out.

If you're not interested, I'll understand. I went through something similar when my son was 8 months old, and got Viral Meningitis. After 13 days in the ICU, he was released from the hospital, but he was a mess. He couldn't hold his head up, walk, talk, or eat. It was like my beautiful little son (who was so smart, lively, active, walking and talking) turned into a two month old again. I begged the doctor for something to help with his energy and appetite, and when drugs were the only offering, I turned to alternative remedies.

The best one we discovered was an all-natural childrens vitamin-Mineral supplement developed by Shaklee called Liquil E. It saved his life. He quickly regained his appetite, his energy recovered. But his motor skills were a year behind everyone else's. He walked again a year later, and potty-trained with his baby (11 mo) sister. He entered Kindergarten a year later than others because he still had developmental problems, but in the 10th grade made up for it, and graduated at age 18. Now he is a strong, healthy 32 year old with a wonderful wife and six children. Who would have thought it possible, when he was so sick and weak, we thought he would die overnight?

So you can tell, I'm am very interested in the outcome of your little Josie. Let me know what you think.
Until then, God bless you and your family! Caroline

Sent on Thursday, November 19, 2009 at 5:04:06 PM
naturesolutions@mail.com


From Robin,
San Antonio, TX

Hello, I just want to tell you that I came across your webpage while doing research on dermatomyositis. I am preparing for a group presentation on this disease for school. I found your website very interesting and I received a lot of information on this disease just from reading through your webpage. At the same time, I was in tears just reading what she is and has gone through, but I am amazed at the way she is fighting this disease. She is such a strong little girl. Keep fighting this disease and thank you for sharing with the world.

God Bless,

Robin Collier

Sent on Saturday, November 21, 2009 at 8:52:01 AM
robina426@yahoo.com


From Sara,
Richmond, VA

Josie, you have an indomitable spirit and a courage unlike any I've heard of, Your story is terrible and inspiring. It brought me to tears on more than one occasion. I have the utmost admiration for you and your family and hope that everyone is doing well and staying strong. Thank you for sharing this. It certainly helps put all sorts of aches and complaints into a brand new perspective :-)
Sent on Sunday, November 22, 2009 at 8:23:47 PM
saranherbert@gmail.com


From Shelby S.,
Tennessee

Hello, my name's Shelby.
I stumbled across this blog and I'm almost crying...I just want you to know that your daugther is beautiful and strong. I'm going to pray for her every single night and visit your blog every day!! I want your Josie to have a fighting chance, I want to see her grow up into a beautiful lady and have the happy life she deserves. Josie, you're in my heart forever now, I'll post in your guestbook later.

Sent on Sunday, November 22, 2009 at 11:23:54 PM
miserystrainwreck@live.com


From google,
google

I forgot what I was googling and I some how got into this blog. All I want to say is I wish her luck and hope she'll defeat this disease one day and live happily and joyful as ever. Best wishes.
Sent on Tuesday, November 24, 2009 at 1:03:08 AM
google


From Joseph,
Los Angeles

Wow, amazing blog. Thanks for sharing your stories! Please update sometime to let us all know how Josie is doing.
Sent on Tuesday, November 24, 2009 at 5:03:16 PM



From Chelsea Collins,
Cork, Ireland

Hello Josie,
I'm Chelsea, I have 4 young children,Nadia 14, Cillian 11,Sophie 3 and Emma 2.We live in Ireland. Ive recently been diagnosed with rheumatoid arthritis, and while googling health issues found your parents website about you.I just had to write a note to say what a strong and beautiful child you are, and to praise your parents for being such wonderful people. I hope this finds you well, and I wish you lots of happiness for the future.
Warm wishes,
Chelsea Collins

Sent on Wednesday, November 25, 2009 at 2:58:34 PM
chelseacollins1@gmail.com


From Tuomas Koskipahta,
Helsinki, Finland

Hang in there Josie! Believe me, everything is gonna be fine! Me and my Family wish that one day youre gonna be alright!

Greetings From snowy Finland, The Home of santaclaus ;)

Sent on Thursday, November 26, 2009 at 5:19:12 PM
stuude92@hotmail.com


From Theresa Curry,
Alexandria VA

Even though I see children like Josie all the time, your blog has brought tears to my eyes time and time again. I write a quarterly newsletter for families with Juvenile Dermatomyositis children. Would you be willing for me to interview you about your experience? I am particularly interested in how you balanced life with your other children and also how the process of creating and keeping the blog had an impact. You can find our website at www.myositis.org. Please email me and I will be back in touch.
Sent on Monday, November 30, 2009 at 10:47:29 AM
theresa@myositis.org


From S. Robles,
California

Our hearts and prayers go out to you Josie. You are one tough little girl. You are doing awesomely - and we hope that hospital days will be no more - soon.

love,
from California
The Robles Family

Sent on Monday, November 30, 2009 at 10:23:16 PM
ZenSwirl@gmail.com


From Chanda Weems,
California (for now)

Hello! You do not know me. But I came across your blog post while looking up diseases for a college biology class I have. I must say Josie you are the strongest fighter in this world with parents that are the most awesome! I about died reading about all that has played throughout your years. I truly hope all goes much better in the future for you dear heart! And I send you my guardian angel to watch over you and your family! Take care sweetie! And to the parents: It is good to know you didn't give up hope where most would have long time ago. You all are so courageous and strong. My heart goes out to you! Cyber hugs for your family!
Sent on Tuesday, December 01, 2009 at 12:11:39 PM
navywife29@gmail.com


From Mona Belchak,
Albuquerque, NM

Just happened to check in on you guys and love what I'm reading!!! Thanks for the update! You ROCK, Josie!!
Sent on Wednesday, December 02, 2009 at 9:46:13 PM



From Thomas Wilson,
United Kingdom, Yorkshire, Doncaster,Hatfield

I came across this website purely by coincidence and found myself compelled to read it! it truely is inspiring that a little girl could put up with all thtose tests and drugs and painful procedures and still come out a well-rounded child! I have a neice the same age, and couldn't imagine the start of her life going the same way as Josie's has. You should really be proud of her, and i am sure you are. Also, the biggest respect to you, for coping throughout, as i know i wouldn't have been able to stay strong. I found myself on the brink of tears reading some of the posts, and seeing the pictures, especially the first swelling ones, so again, the biggest respect to both of you and the rest of your family! Thoughts and prayers are with you, and little (or big now) Josie, and the rest of the family, and, if there is a God, i am sure she will make a full recovery.
Sent on Friday, December 04, 2009 at 6:46:46 AM
tomwilson1992@hotmail.co.uk


From naeimeh,
Iran, isfahan

hi,
i was searching for GI radionuclide scan, ( I am a med student) and came by a pretty little girl under so many tubes, in which i go interrested to see wat the matter was, n here i am...
It should be really hard for you. May god bless you all.
you have a bright soul, and are so white hearted. I love your familly, n hope everything will be ok for dear josie. i will be following her every day improvement.
She has a very beautiful glance and such a cute smile. :)
we all love you Josie :* Get well sooon :*:*:*

Sent on Friday, December 04, 2009 at 11:33:28 AM
naeimeh.hosseini@gmail.com


From Jerome Little,
Elizabeth City, NC

My heart goes out to you little one. Please keep fighting and you can beat this thing.
Sent on Saturday, December 05, 2009 at 7:18:45 AM
jeromelittle@roadrunner.com


From Lindsey Page,
Columbia, TN

My 8 year old daughter (Riley) and I stumbled upon your blog this evening. I was actually looking up canker sores because Riley has one on her gum. But I saw a picture of Josie's sweet face and we clicked that link. I am so glad we did. We have not read all of the entries yet but we were looking over her history. I am amazed at the things she has gone through. Our hearts go out to Josie and your family. We send you love, prayers, health, and comfort.
We are so moved and don't have words other than we wish you well. We will pray for you all and keep visiting to get updated on progress.
Sincerely,
Lindsey and Riley

Sent on Saturday, December 05, 2009 at 10:15:02 PM
breathtakingmoments@ymail.com


From David Basart,
Ridgecrest, CA

You are stronger then you think every day fight and every day you will be closer to victory.

With patience and determination the ant swallows the elephant. All things are possible when you believe.
God bless you little angle.


Sent on Sunday, December 06, 2009 at 9:54:40 PM
dsbasart@msn.com


From Chris Bishop,
Seattle

Best wishes from Seattle. Glad to see that every day Josie is doing better.
Sent on Tuesday, December 08, 2009 at 1:42:21 PM
ccbishop@mac.com


From Raquel,
NH

Hello, my name is Raquel, and I have been touched by Josies story. I pray that your strength may not lessen but that it may keep going strong.
I have a question whether natural treatments have ever been considered.
God's blessings to you Josie and family!
Raquel Akens

Sent on Wednesday, December 09, 2009 at 12:54:27 PM
anarel_89@hotmail.com


From chloe,
ireland;kinsale

i fell so sorry for her but she will get threw it everyone does just hope for the best and your wishes will cime true
Sent on Saturday, December 12, 2009 at 3:05:58 PM
xxchloexx97@hotmail.com


From chloe,
ireland;kinsale

i fell so sorry for her but she will get threw it everyone does just hope for the best and your wishes will cime true
Sent on Saturday, December 12, 2009 at 3:05:59 PM
xxchloexx97@hotmail.com


From Corri,
Windsor Ontario

AAAAWWE!!! Your poor little girl...i was googling cold sores and i came across your page...i almost know what she's going through...i am now 37 but when i was 8 years old my mouth was filled with canker sores...i had them on my tongue, the roof of my mouth, and in the back by my throat, the inside of my cheeks and inside my lips, for two weeks. my face and mouth did not swell but i remember the pain and the discomfort i went through, i drank water and liquids for a week and that was even hard. so i can relate to what your little girl is goin through. (some what, mine was miled compared to Josies). and i can't imagine what you parents are going through, you two are obviously very strong...Josie you are in my prayers, keep fighting beautiful, your strong. God will take this away from you...and bless you parents.
Sent on Monday, December 14, 2009 at 5:30:51 PM
tlc.me@hotmail.com


From Karlee,
Hey Josie and family,

I just came across your blog and I thought I would wish you a Merry Christmas! I hope everything is still going well and that you're all still staying strong through this!
I can tell Josie is a strong, beautiful girl and won't ever stop fighting!
Hope the holidays treat everyone well.

Sent on Monday, December 21, 2009 at 12:23:37 AM



From Nidya,
California

Hi Josie,

I came accross your page while researching eczema. My son has eczema, it's mild but it breaks my heart. Reading your story, however, and seeing pictures of what you have gone through, breaks my heart even further. You're a strong person already and I am happy to know you have a strong and supportive mother as well. Needless to say I broke in tears and started praying for you. May God grant you and your family strength and perseverance always.

Sent on Monday, December 21, 2009 at 11:51:51 PM
hrpu@hotmail.com


From Mari,
North Carolina

Dear Parents and Josie,

I came across your website while I was looking for information about pediatric fungal infections. I am a scientist working on fungal infections and autoimmune diseases. Josie, I am so sorry that you have to go through all these... So many drugs, especially those anti-fungal drugs that are really tough ones. I am working day and night to understand how we can fight back to fungal (and other types of) infections in immunosuppressed kids like Josie.

Josie, get better soon: you are on my prayer. I am here fighting too. Merry Christmas to you all.

Sent on Wednesday, December 23, 2009 at 1:19:02 PM
shinohara.immuno@gmail.com


From Angela,
Warren, Michigan, USA

Josie you are one strong little girl and you should be very proud of yourself. In fact I do not know anyone any braver than you! Jesus is with you every single day watching over you! Continue to be strong. There is a lot of people praying for you more than you can imagine. Josie I will pray for you and your family so that all of you will be BLESSED and that 2010 will be a better year for you than 2009.
Sent on Wednesday, December 23, 2009 at 1:26:33 PM



From Hengameh Keramati,
Montreal, Canada

Josie is an amazing strong spirited girl! In each pic you can still see how strong she is! I never seen adults even be this courageous, yet Josie's will is incredible and quite inspirational! Reading about her situation brought tears to my eyes, i had to send prayers her way, and i can see that God has a plan for her. Josie shines through our hearts and i don't even know her personally. I truly wish that she will be cured very soon... i hope that she will have better days than bad ones through this journey...
Sent on Thursday, December 24, 2009 at 3:15:55 AM
hengamehkeramati@yahoo.ca


From AJ,
PA

Hey Josie,

I came across your blog and read all about your struggles and triumphs. I just wanted to say that you are very brave and strong and you fighting your disease gives many others strength. I wish the very best to you and your family and i know deep down that you will pull through and be ok! Merry Christmas Josie!!

Sent on Friday, December 25, 2009 at 8:16:48 PM
aj.espinosa@yahoo.com


From Jacqueline,
Brisbane

Stumbled across your website. Josie's fighting spirit is an inspiration for us all. May God bless you and your family abundantly in 2010.
J

Sent on Friday, January 01, 2010 at 3:41:46 AM
jacsin@gmail.com


From Patti,
Edmonton, Alberta, Canada

Hi Josie & family,

I was up late last night, killing time before ringing in 2010 and by the power of Google happened upon the blog of your experiences. As a mother of two (knock on wood)medically sound children, I cannot fathom the strain this has put on you and your family, and how frightening this must have been. Your pluck and will to keep going are an inspiration to all families who think they are up against the challenge that will be their demise. I hope that things remain under control for a nice long time so you can enjoy just being a kid, in as much as you are able.

Namaste,
Patti

Sent on Friday, January 01, 2010 at 3:05:52 PM
chai_vylet@hotmail.com


From Xak,
Missouri

Wow, what a harrowing and amazing journey you've been on. I came across your page by chance looking up Fifth's Disease, which linked to the original diagnosis-seeking time line. So a hello and a hope for a cure for your little girl from Missouri.
Sent on Saturday, January 02, 2010 at 3:46:33 AM
xakana@yahoo.com


From libbe jonkman,
the netherlands

Lovely little Josie, and family,
I have seen jours weblog page (sorry am very bad read and write englis) but jou are an bautyfull daugther and i whise your family an happy new yaer. Greetings from Libbe Jonkman the Netherlands (www.libbejonkman.nl)medical inventor.

Sent on Tuesday, January 05, 2010 at 10:41:05 AM
welkom@libbejonkman.nl


From Laura,
Victoria British Columbia

Hello,

I just happened on your blog as I was perusing the web looking for some help with a minor skin irritation. I saw Josie's pictures, then clicked on your blog.

I want you to know that I'm praying for her!

Laura
Victoria, BC

Sent on Wednesday, January 06, 2010 at 1:40:56 AM



From Amelia,
Portsmouth

Your story is very sad but it is so nice that you seemed to give so much support. I hope she is well and have a great holiday some time soon.
Sent on Thursday, January 07, 2010 at 10:33:37 AM
funkymonkey08@hotmail.co.uk


From Cathy,
Ohio

FYI Have your Drs. looked at Stephens Johnson Syndrome??? Hopefully your little girl will be better soon :-)
Sent on Friday, January 08, 2010 at 6:10:18 PM



From Rachel,
New York, United States

Hi there,

I came upon your daughters blog by randomn and I have to say, it really touched my heart. I'm 16 years old and I can't imagine anybody living like this, let alone a little girl! She looks like such a happy and beautiful child. I was in tears when I saw all those rashes on her and the pictures of her swollen face. Your daughter has taught be a vauable lesson about bravery. You yourself as well as your husband and family are very brave. Supporting your daughter through thick and thin. With holding all those comments or stares from people. I have a very rare allergy. My allergy is that I'm actually literally allergic to water. It's a very rare allergy that maybe 100 people have in the united states! It's called aquagentic urticeria.. (don't know the spelling) but its bascially when your whole body touches water for at least 10 minutes, you start getting hives on your face and chest and back area. Mine isn't as severe as some but to some that have it worse, it's quite painful and quite itchy but mine isn't itchy and painful at all thank god but the not being able to go to the beach or the pool with my friends is really hard. Even sweat causes hives around my back and chest area. I do gymnastics so therefore, people are always asking about the red dots that appear. And there's no known cure for this allergy. So I definatly know what you're daughter is going through. It's hard to be so different at times. Your daughter is really an angel and so are your family being so supportive. I really really hope your daughter gets better! I will pray for your daughter and as well as your family always.

-Rachel-

Sent on Friday, January 08, 2010 at 9:29:18 PM
chorachel12@yahoo.com


From The Phillips Family,
Herndon, Va

Hi! I came across your page when I was looking for pictures of a rash that my 4 year old daughter has. I'm sure it's something common--like viral or something. In any case, I couldn't stop reading about your beautiful daughter. I'm very sorry to hear of her condition, but she sounds like she's in very capable hands and has a very loving family to help her along the way! ;) My little girl, Katie (the 4 year old; we have 3 children all together), asked what was wrong with Josie. I told her that she is just a little bit sick, but the doctors are helping her to get better. And she said "well, I wish I could give her a hug." I told her that I bet she'd like that. So Josie, if your mommy reads this to you, please know that Katie is thinking about you and hopes you feel better soon!
Sent on Wednesday, January 13, 2010 at 9:11:28 AM
tphillips117@verizon.net


From Sean Damon,
Peoria, IL

Wow, what a horrible thing for anyone to experience. Especially to a young Child like this Angel. She sure is a brave one and your story is very heartwarming.

My fingers are crossed that she will get better soon nd have this horrible disorder under 100% control. If there is anything I can do, please don't hesitate to ask.

What a great site and VERY inspirational story. Your strength is highly admired.

God Bless

Sean

Sent on Sunday, January 17, 2010 at 12:01:20 PM
seandamon@seandamon.com


From Linda Newman,
Lewiston, NY

To Josie and her family . . . I stumbled upon this blog last week quite by accident and have spent the last four days reading every entry. Jay and Deb, you two are amazing. Never, in all the entries I read, did I see you guys even once doubt your child's strength and courage and ability to pull through. Nor did you ever seem to lose your faith that Josie would get thru this and come out on the other side. I am sure you had your doubts and fears and had bad days, but you never let on. This has got to be the most uplifting spirit in the face of adversity, with crisis after crisis, that I have ever seen. God bless you both and God bless little Josie (but, of course, we know He already has). I am so happy that your posts are getting further and further apart, for that only means that life has settled down into a more "normal" course for your family. May God continue to bless you all!

Peace and Love,
^^Linda^^

Sent on Sunday, January 17, 2010 at 9:54:42 PM
GramLin99@aol.com


From Hollands,
Alberta

*Big Hugs* I wish there was something I could do.
Makes me so sad to see a child who does not feel well.
I can't imagine what you must be going through.
Me and my family wish you all of the best.
=)

Sent on Monday, January 18, 2010 at 10:50:23 AM



From Lacy St.Germain,
Cochrane, ON, Canada

What a beautiful child you have..
Sorry to hear that your child is really sick.. poor baby. is there a cure for this disease. im so suprised she has made it through all of this. thats the sickest child i have ever seen. such a strong little girl. hope she is doing well as of today. Good luck with everything and say hi to her for me.
what a little angel <3

Sent on Monday, January 18, 2010 at 11:43:08 PM
lacy.dior@hotmail.com


From Klaudia D.,
Sherman, CT

I wish your family to be as strong as you are right now. Keep up an amazing work. Hopefully, your daughter’s body will win with this unpleasant disease very soon.
I am writing this e-mail to advise you on “taking care” of calcinosis.
In the cap, put 2 tablespoons of flex seeds pour over with half a cup of hot water (these measurements are approximate) and let it sit on the side until flex seeds turn into gluey substance. Next, transfer the gluey substance together with seeds into gauze and put on the calcinosis. Bandage the compress well and try to keep it warm. Change compresses frequently, until the calcinosis brakes and drains. It may take couple days for the calcinosis to break. If it is possible apply seeds while warm to touch.
This treatment helped me with getting rid off of some kind of under skin infection, perhaps you can find it useful as well.
Please keep in mind that I am not a doctor, therefore, before you try the treatment ask your doctor what she thinks about it.
I wish your entire family all the best.
K. D.

Sent on Wednesday, January 20, 2010 at 9:46:42 PM
jowmic@charter.net


From Ashley,
columbus ohio

I found your blog completely by accident... I was "google"- ing trying to figure out what is going on with my head, I’ve basically had a massive allergic reaction to something and my head is covered in scabs and bumps, and one area is now bald. Lol. Luckily I have tons of hair so you cant tell but, I was wondering if my hair would grow back so I was searching and I cant even tell you what I searched, for but in google images there was a picture of a scab with little hairs in it and oddly enough it looked like what my head was producing for the last week or so. So, curiosity got the best of me I clicked on it and it linked me to you blog, hours later after reading all that you have dealt with in the past 5 or so years, I’m not all that concerned if my hair grows back and just very appreciative of my health, and amazed and just speechless about your family’s positivity, courage, strength, perseverance, and just general out look on the situation. At times I found myself laughing at what I was reading especially the part about being a picker, I come from a long line of pickers. Lol. So I can relate to the urge. Normally I would have never posted a message but I was just touched and needed to tell you. You guys will forever be in my thoughts and I wish you all the best of luck, and to Josie you are a beautiful little girl and I wish you all the happiness in the world. Have fun with the rest of 1st grade and good luck in second (it was my favorite, we had a class hamster). God bless you all!
Your new friend,
Ashley Cook

Sent on Sunday, January 24, 2010 at 12:12:46 PM
aacook889@aim.com


From Angelina,
Folsom, PA

Dearest Miss Josie - I stumbled onto your page while I was looking for something here on the internet. I'm glad I saw it and I'm glad your mother has documented what a beautiful strong "big" girl she has in you. I have 4 kids myself and I know sometimes kids think parents can handle anything, but in truth we are only as strong as you 'guys', I mean that you make us stronger and help us through things we sometimes dont think we can handle, - I am so proud of you, and everything you have accomplished, you are an AMAZING "big" girl with so much courage , I admire you and your wonderful family - God Bless and take care sweetheart!
Sent on Monday, January 25, 2010 at 5:16:11 PM
cnucths2@yahoo.com


From Jessica,
ok so my son was really sick last year, knee pain, strange red spots, pediatrician doesn't think they are anything....
Sent on Tuesday, January 26, 2010 at 11:40:17 AM
jbaker@gloucester,k12.ma.us


From Lydia,
Malaysia

God bless Josie and family. im really touched to read the blog.
Sent on Tuesday, January 26, 2010 at 9:28:30 PM
diarie09@gmail.com


From Mark McDaniel2,
California

I came acros the picturs of Josie and I'm so saddened by this. She is adorable! What a horrible time in her life. She looks like a strong girl I pray for a wonderful future for her, and her family.
Sent on Friday, January 29, 2010 at 8:00:28 PM
mcdaniel2@llnl.goc


From Paula,
Hong Kong

I've read your blog, it is so unbelievable to know how tough is Josie and also mammy and daddy have done a great job for her, may God bless all of you!

Sent on Sunday, January 31, 2010 at 11:23:57 AM
paulwly@yahoo.com.hk


From Willy,
New orleans, LA

I am a doctor and a father. What a brave young woman you have got!! She is such a blessing from God. God bless.
Sent on Monday, February 01, 2010 at 3:29:06 PM
ywchi@yahoo.com


From Henrica,
Canada

Just wanted to say I just came across your web blog .. I hope things are going well for Josie. My thoughts and prayers are with you all.
Henrica

Sent on Monday, February 01, 2010 at 7:00:17 PM
hforli@sympatico.ca


From Miguel Murillo,
Portland, Oregon

I just happened to stumble over your blog while surfing the internet and just skimmed it over a little... I have never heard of this disorder before and it does look pretty intense.

Josie is so lucky to have such a loving a caring family. She is a brave little girl and I wish her all the best! I hope things get better for her. She is a beautiful little princess and she has way more strength and bravery than I do.

Sent on Monday, February 01, 2010 at 9:13:33 PM
mmurillo707@gmail.com


From Susan Costen Owens,
Dallas, TX

Hi,

I came across your site by accident, but I might be able to shed some light on a reason the calcinosis. After people have had bowel surgery on the small intestine, it becomes much easier for the calcium binding molecule called oxalate to be absorbed in the colon. I don't know if anyone tested the calcium goop to see if it was calcium oxalate, but it might be. I run an internet group with 2900 people on it who are reducing problems caused by oxalate by lowering the oxalate content of the diet. The website is at www.lowoxalate.info. I'd be glad to acquaint you or your doctors with the medical literature that might link these issues. We've seen pretty astonishing changes even in hereditary disorders when reducing oxalate in the diet. If I can be of any help PLEASE contact me. We have had listmates with calcium related bumps that have gone away with the diet but none as bad as these pictures.


Susan Costen Owens
Trying_Low_Oxalates@yahoogroups.com
www.lowoxalate.info

Sent on Tuesday, February 02, 2010 at 4:37:14 PM
lwo@iadfw.net


From R. Nelson,
Atlanta, Georgia

I stumbled over this site while surfing the web. My thoughts and preyers are with your family. I hope Josie gets better.
Sent on Thursday, February 04, 2010 at 4:06:11 AM



From Lorna Roden,
Plymouth, UK

I am a Medical Student from the UK, studying at Peninsula Medical School. I happened to come across your page when searching for information about drainage devices. It makes me feel so motivated to do well, to succeed, and to use this success to go on and help people like your Josie reading this story. I've always said to myself that Paediatrics wasn't for me. My mother is a Nursery School Teacher and I've worked with her a few times and always said to myself that I'd never do anything with children. I think my mind has been changed. Maybe this blog isn't supposed to be upsetting but it hurts my heart to know there's pain like this and that my life is so easy compared to the life you and your family lead.

Thank-you for opening my eyes and making me realize why I'm here and who for.

Sent on Sunday, February 07, 2010 at 1:11:30 PM
lorna.roden@students.pcmd.ac.uk


From Carol,
NY

I am a breast cancer survivor and inventor of Its My Secret Jacket a jacket for surgical drain management. Doing a search I came across your blogs. I will add your little angel Josie to my daily prayers. You are all so brave.
Sent on Sunday, February 07, 2010 at 1:58:55 PM
carolh2991@aol.com


From Carol,
NY

I am a breast cancer survivor and inventor of Its My Secret Jacket a jacket for surgical drain management. Doing a search I came across your blogs. I will add your little angel Josie to my daily prayers. You are all so brave.
Sent on Sunday, February 07, 2010 at 1:59:08 PM
carolh2991@aol.com


From Amanda Davidson,
Sheridan, Ark

hey josie, i read your blog and it made me cry your such a trooper im praying every day for you god blesses your little precious heart hope the lord sends you a miricle. because your are every mother's little miricle
Sent on Sunday, February 07, 2010 at 4:37:39 PM



From Mary Jones,
Atlanta, Georgia

I stumbled across your blog and read non-stop for hours. After signing off, I couldn't stop thinking about Josie and how tough she is. You are all in my thoughts and prayers. Little Josie is such an inspiration. It breaks my heart to see someone so sweet and small facing such big, serious challenges. She sets a new standard for pain tolerance. Next time I want to whine about a stomach ache, I will think about Josie and all that she has been through.
Sent on Tuesday, February 09, 2010 at 4:14:50 PM
mpj6686@gmail.com


From Audreia Stevens,
Moorhead, MN

I know its hard to suffering from a disease and tryna find a cure. My niece Anyia Stevens has cerebral palsy, when she was born she was dead. the docters hook her up to a machine for 1-2 months freezing her brain, there was nothing we could do.... coming to the hospital as she layed there not moving eye's not open her body was just limp. But we prayed and god gave us a miracle she survive she 1yrs old now doing well.It be better if she was with us the state took her from my sister...why take a child away from their mother?.Im writing this to let you know you have a beautiful daughter and to remind her everyday to thank god that she is still here I do for my niece through all the tears and the pain god will always be there...And to me Josie's you and my niece are miracle baby's you two showing the world that even though were young or even a baby we can fight to...So keep on fighting cause god has a plan for us all!!:):)...You and my niece are The Miracle childern of the world inpiring others to face there fears and reality this is to anyia and josie!!:):)

Love

Sent on Wednesday, February 10, 2010 at 10:05:31 AM
lilmimi162004@yahoo.com


From Sophie,
London

I came across your page whilst looking for something else - a solution to a problem which has been dwarfed entirely by Josie's story. What a beautiful little girl. I know I would love her to bits by here cheeky little face. And you sound like a wonderful mother, a lovely family. My heart goes out to you all. I wish her better and you an easier life. You are coping so well. Good luck to you all and a gentle hug for Josie. x
Sent on Wednesday, February 10, 2010 at 10:10:41 AM



From Kels&Dan,
Buffalo

Josie,
Kelsey and Danielle here coming to you live from Buffalo NY. we saw your page and hope you are doing better now. i bet those blisters hurt. your very strong and beautiful!

Sent on Thursday, February 11, 2010 at 10:43:12 AM
karatedannie@aol.com


From Yuzz Yusof,
Kuala Lumpur, Malaysia

Hello Josie and family
Reading your blog is truly a true inspiration for all, you are so strong and I know its hard for the family. I will pray that you will be healthy and everything will be back to normal. May God bless you and the whole family.
Visit my blog at www.blossominch.blogspot.com
Hugs
Yuzz and family

Sent on Friday, February 12, 2010 at 1:51:23 AM
yuzzyusof@gmail.com


From Kimberly Garnett,
Randolph, NJ

Wow! I just came across this page searching for something else. Josie is such a beautiful child and certainly deserves to be well! I don't have time this am to read through all the blogs but I'm wondering if you have considered food sensitivities. There are so many illnesses that develop as a result of them. I know because I have food allergies. Check out a new website called Gluten Free Society: www.glutenfreesociety.org
This is the most informative website I've found on auto immune disease. They are still in the process of getting all their web pages up but if you are interested you can sign up for a newsletter and they will let you know as more becomes available. This maybe something that you can consider. Send me an email if you have any questions. God bless!

Sent on Monday, February 15, 2010 at 8:07:04 AM
Americanlady18@gmail.com


From Danielle,
Ft. Lauderdale, FL

I'm so glad to hear you doing better, May it stay that way.. May god bless you and all of your family.
Sent on Monday, February 15, 2010 at 9:43:52 PM
danielle728@gmail.com


From Parthina,
Oklahoma

Wow, I think you are a blessing to this world, a reminder of what life is really about... each other.. family... smiles.. :) :) :)

(I'd leave an email but you know how spammers are.. it's not personal) ºóº
♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥

Sent on Tuesday, February 16, 2010 at 12:04:11 AM



From Diane Hart,
Mentor, Ohio

Love your Italian food, Josie!
Sent on Tuesday, February 16, 2010 at 9:34:00 AM
dmdpickle@aol.com


From Francesca,
England

My goodness, just happened upon your blog while searching for slapped cheek syndrome.
My thoughts are with your whole family, you must all be so strong, including Josie. I hope things are better, she deserves a break!
xx

Sent on Thursday, February 18, 2010 at 2:49:35 PM
goliafoxlet


From Francesca,
England

My goodness, just happened upon your blog while searching for slapped cheek syndrome.
My thoughts are with your whole family, you must all be so strong, including Josie. I hope things are better, she deserves a break!
xx

Sent on Thursday, February 18, 2010 at 2:50:11 PM
goliafoxley.01@googlemail.com


From Dayna,
San Antonio, TX

You don't know me but I stumbled across your blog today. It has to be one of the most heartbreaking things I've ever seen or read. I am so sorry for all that your daughter, yourself, and your family are dealing with. Josie seems so very strong (I don't think I could smile as much as she seems to...even on a good day), I hope that everything gets figured out, and that she soon will be able to stay away from the hospital. You and your family are truly amazing. My thoughts are with y'all. Stay strong and keep your courage.
Sent on Saturday, February 20, 2010 at 11:56:57 AM
cramer.dayna@gmail.com


From Jenna,
Ohio

Dear Josie and family,

I found this blog while doing research on illnesses. The pictures I found shocked me but not as much as the age of Josie. I went though a greusome disease while I was in first grade but not nearly as terrible. She's a real trooper through all of this and I wanted to know if there's anything I can do to keep everyone's spirits up? I am a theatre major and if you happen to be in Ohio can let you know about awesome shows going up (child appropriate). If there's anything you can think of please let me know,

Have a great weekend,

Jenna

Sent on Sunday, February 21, 2010 at 12:21:39 PM
jp311607@ohio.edu


From Kyrie,
eugene, OR

O wow hun. I am soo glad she's doin better. No one should have to go thru somthing like this, She's a very STRONG and speacil girl in my eyes. And shes soooo lucky to have a mother like u that stuck by her thru it all.
I wish the best for her!!!!

Sent on Monday, February 22, 2010 at 6:47:11 PM
kyrieroll@hotmail.com


From Natalie,
Springfield, OR

Wow hun, U are an amazing lil girl! I want u to kno that u have an AMAZING fam that loves you and cares deeply for u!
U keep up the good work and keep fighting!
No one should ever have to go thru something like u are.
I will be praying for u, and ur in my heart!
BEST WISHES HUN!

Sent on Monday, February 22, 2010 at 6:51:01 PM
kyrieroll@gmail.com


From Crystal,
Rochester NY

I was just searching this sight for ideas on friendship tattoos when I ran into your daughters page, I read the entire thing and am just simply overwhelmed with sadness. My sympathy goes out to you and your family! We pray for Josie and hope things will get better before they get worse! xoxo
Sent on Tuesday, February 23, 2010 at 3:56:01 PM
Prettyblues_24@yahoo.com


From Linda Gillan,
Everett wa

Hi, I was searching for pictures of the same kind of rash I developed and came across this site. Josie is a strong little girl and I will pray for her complete healing. God allows things for a reason but we will never know until we face Him.
Hang in there Josie and thanks for sharing.....my rash is nothing compared to what you go through. God Bless

Sent on Wednesday, February 24, 2010 at 1:00:07 AM
snohomishvalley@yahoo.com


From Stacie Scalisi,
New York

I too stumbled onto Josies page completely on accident, but was compelled to read ever last bit on such a beautiful little girl and a supportive family. I would like to learn more about Josies condition so if you have any web sites that would help let me know. Good Luck Stay Brave!!!
Sent on Wednesday, February 24, 2010 at 1:19:40 PM
stacielsca23@aol.com


From Susie Pesch,
Apple Valley, Ca

My 12 year old daughter and I were surfing the internet looking at photos of rheumatoid arthritis and osteoarthritis ~ she has a school research paper that she has to do on scoliosis and we were being curious ~ we happened upon your site and we are both amazed at all that your family has been through. Josie is a beautiful little girl, and as most children who are severely afflicted with an ailment seem to be, no doubt she is courageous and inspiring. Well, we just want to say that her story has touched our hearts and God bless you and your family. Give love to Josie for us.
Sent on Thursday, February 25, 2010 at 10:22:11 PM
Boxycarbabe@yahoo.com


From Keith Lock,
Orlando, FL

God Bless you and your family!!! What strenght, what LOVE!
Sent on Sunday, February 28, 2010 at 1:44:11 AM
Hitch@cfl.rr.com


From DELORES,
HOLDEN,MA USA

HI JOSIE,

MY LOVE AND BEST WISHES ARE BEING SENT TO YOU YOU ARE A WARRIOR FOR SURE. LOVE DELORES

Sent on Monday, March 01, 2010 at 4:18:09 PM
dkender15@hotmail.com


From Kaye Hunt,
Valdosta, GA

Josie,
I read your blog and I am so proud of your courage! Keep it up. You are a beautiful little girl!
K.Hunt

Sent on Saturday, March 06, 2010 at 9:14:08 AM



From jo,
usa

she endures so much. her childhood is eclipsed with such illness. Have you tried CoQ10. it could help. look for a healer, a shaman.
Sent on Saturday, March 13, 2010 at 1:01:13 AM
c@t.com


From jo,
usa

sorry, it looks like i'm going to have to cure her. have you tried herpes treatment?
Sent on Saturday, March 13, 2010 at 1:06:24 AM
c@t.com


From jo,
usa

essentially, she caught herpes from you guys. try CoQ10. run it through your doctor. he body is attacking her reaction. the Coq10 will purge her of the cogent. i'm sorry this is such a burden for you and for her.
Sent on Saturday, March 13, 2010 at 10:28:09 AM
hbo173@hotmail.com


From Jo,
usa

so i think you can start limiting and stopping the medications if you use CoQ10, 20 mg daily. this will work.
Sent on Saturday, March 13, 2010 at 7:30:22 PM
hbo173@hotmail.com


From Gerardo Quiñones,
Milton, MA

As a parent, I admire your courage and fortitude to stand by your child no matter what. I am amazed by Josie's strenght and courage. Her bravery reminds me of the person I admire most in this world - my mother.

Do not surrender even when defeated,
and do not be a slave even in bondage,
trembling with fear advance bravely,
and attack with fury, though badly wounded.

Be as stubborn as a rusting nail,
that refuses to yield though old and ruined,
and do not envy the peacock's plumage,
that drops in fear at the first noise.

Be as a god that never cries,
or as a devil that never prays,
or as the oak whose mighty canopy,
needs of water but does not beg it.

Even when it rolls to the dust,
let your head scowl and bite,
and scream for vengeance.

- Pedro Palacios Almafuerte
Argentinian poet 1854-1917


Sent on Thursday, March 18, 2010 at 7:19:21 PM
yayo@comcast.net


From Crystal,
Constantine

I am sorry for your daughter! I hope this thing that she has gets better no parent should have to go though this... I am dearly sorry
Sent on Wednesday, March 24, 2010 at 4:36:08 PM
crystal


From Crystal,
Constantine

I am sorry for your daughter! I hope this thing that she has gets better no parent should have to go though this... I am dearly sorry
Sent on Wednesday, March 24, 2010 at 4:36:26 PM
crystal_lynn53@hotmail.com


From Indianapolis,
Indianapolis IN

Hello

I have looked around and didn't see anything mentioned. Could this have happened due to a vaccine reaction?

Thanks
Mike

Sent on Wednesday, March 24, 2010 at 11:05:36 PM
chawtoe@hotmail.com


From Michelle ,
far from every where ):

Josie you do not know me but i have a disease also it is nothing like yours i only have a mild case of bechets i am only 17 and was diagnosed when i was 15 I feel your pain but i feel so sorry that such a beautiful little girl has to go through such pain. I can not find the words to explain how truly sorry i am for you. I know it seems tough when you go through the flares but you are strong and I know you can do it your family and friends love you. I stopped going to school when i was a freshman in high school my teachers were not the most understanding but the principle was so i am now graduating an entire year early because they helped me so much i know what ever your hopes and dreams are you can achieve it. You are one very gorgeous girl and my heart is with you every day. Never give up it is up to you to make your self amazing, never give up and always look at the bright side.and if you ever want to talk to me you can email me. Sincerely, Michelle
Sent on Thursday, March 25, 2010 at 10:17:41 PM
michellerichards76@yahoo.com


From Michelle Richards,
hiddenvalley

Hey Josie It's Michelle Richards again, I hope you are doing better. I get sick quit often and the only thing that keeps me going is my family and to me it looks like you have a very loving family that is with you through everything. My heart is with you. sincerely, michelle please get better.
Sent on Friday, March 26, 2010 at 2:53:38 PM
michellerichards76@yahoo.com


From Jacqui Powell,
Miramar, Florida

My heart goes out to Josie and your family. I do understand, I was diagnosed with dermatomyositis/ polymyositis in 1998. After years of trying to get it under control, it went into remission, but it has returned. I am positive and am trying to enjoy life.
Sent on Wednesday, March 31, 2010 at 6:46:52 AM
jacquifpowell@gmail.com


From a stranger,
Vermont

I came across these heartbreaking images of your beautiful duaghter in the throws of a bout with this obviously frustratingly painful disease, and being a mom, had to look, hoping it wasnt true. I was so sad to see it is... I have to say, I am brought to tears to realize this dear childs hardships, and feel so sad and angry to imagine this happening to an innocent child. I admire your ability to normalize this for her and accept it, fight it,and deal with it so confidently and bravly, as is evident in your posts.For that, she id desearvedly blessed.Please know, Your struggle gave me pause, and reminded me to not for a moment take for granted the fortune of my own children's health, and I sincerely hope you someday have such a luxury. I hope so much this note finds you all very well and content, and you can somehow find some small additional comfort in a strangers compassion and concern for your beautiful daughter.
Sent on Friday, April 02, 2010 at 10:08:57 PM
tikiamber@ymail.com


From Brooke,
Scituate, MA

Josie's story has touched my heart. I couldn't imagine having the strength to endure the suffering that her family, and Josie, have endured. I wish her the best in all of her struggles and hope that she lives a long, happy, HEALTHY life! To Josie: YOU are a wonderful, strong, beautiful little girl. I admire you for your corageous efforts in being so high-spirited through the tough times, and it is those times that will define you! Remember that, and keep your chin up!
Sent on Saturday, April 03, 2010 at 10:53:14 AM
brooke_ashley_davis@yahoo.com


From Aimee Carl ,
St Louis MO

I just happened by. Trying to do some research for my GodDaughter. Josie is an angel and her life and her story has really been an inspiration. Best of luck and may her spirit and health keep on! Thank You for sharing. Prayers and happy thoughts for Josie & your family.
Sent on Sunday, April 04, 2010 at 9:00:52 PM
joybeeme78@gmail.com


From Shannon Binkhoelter,
Owensville, Missouri

Poor little baby girl. I didn't have time to read all this but I am assuming she is doing better by the beach pic:) She is an adorable looking little girl and it's so sad to see her all swollen like that. I bet it was painful. I know how scary it must be for you as a parent and the grandparents as well. I have three small kids and my two year old almost died twice in Jan of 2010. He had febrile seizures and stopped breathing. He's okay but just thinking about that terrible feeling in my heart makes me feel for you and your little one. I hope everything worked out and she is clear and free of this condition. We will be thinking of this baby girl always:)
Sent on Wednesday, April 07, 2010 at 3:57:05 PM
smbinkho@student.eastcentral.edu


From Haley Mansell,
Hampden Maine USA

I have dermatomyositis. It is not as bad as yours but when I was on prednizone therapy I got compression fractures in my spine. They are healed now and I am in high school.
You are a strong young woman.

Love,

Haley(me) Haiden(my bro) Ron & Deb (my grandparents and legal guardians)

Sent on Saturday, April 10, 2010 at 3:17:14 PM
fashionfevergirl@hotmail.com


From ali,
indiana

get better, she is sooo cute :))))i cried when i read your story.
Sent on Sunday, April 11, 2010 at 6:48:19 PM
hotpink6@comcast.net


From Kelvyn McCarroll,
Newcastle, NSW, Australia

Hi there Josie

I'm from Australia and I have twin girls who are 4yrs old. I came across your blog when I was researching stuff for an assignment.

I just wanted to say that I think you are one pretty cool kid! Your mum and dad seem seem really nice - and your brothers and sister seem really great.

I loved the photos of your knee when it leaked, and whilst it looks really painful, I can see why you had some fun with it.

You are a georgeous looking, lovely girl with a really fabulous outlook on life and I hope everything continues to improve for you and your family. Now I know this blog is here, I will check in now and then to see how you are going.

Best of luck with school this year and I look forward to reading updates about you and your brothers and sister.


Sent on Wednesday, April 14, 2010 at 10:35:21 PM
k.mccarroll@optusnet.com.au


From Kateland,
Woodburn, OR

I accidentally came across this site, but can't help but to read about your Daughter's story. It's so sad, but I'm glad that her Disease seems to be under control for the most part. I hope you guys have a wonderful year. -Kateland
Sent on Thursday, April 15, 2010 at 1:43:56 AM
Zoe_zaden@yahoo.com


From catherine,
Knysna

hi there. i stumbled upon Josie's page while surfing the net the other day. My heart goes out to you and your beautiful girl. May god be with her and help her as well as you through this difficult ordeal. I am a 18 year old high school student and take for granted the days where we stress about everyday minor things. Josie is a strong girl and shows us that life is precious.

Keep fighting Josie!

xxx

Sent on Saturday, April 17, 2010 at 2:21:16 AM
Cathy.leach.92@gmail.com


From Olivia,
Ohio

She is just absolutely adorable. I hope things have gotten much better for her & your family.
Sent on Tuesday, April 20, 2010 at 7:00:27 PM



From Athais,
Harrisburg PA

I was engaged to a man that had this disorder. He said it was 'calcium deposits' but now I know the real name for it - calcinosis. Jimmy passed away from an accident before we could get married. The one thing that attracted me to him was his strength. I believe it was from all that he went through with the calcinosis. After having dated Jimmy, I never stereotyped people by how they looked. May Josie educate people in the same manner as Jimmy educated me. Enjoy her. She is a beautiful young lady.
Sent on Monday, April 26, 2010 at 12:15:21 PM
JadeLight3@yahoo.com


From Amy,
London, England

Hi, I am an osteopathic student in England studying the effects of dermatomyositis lor an exam tomorrow and stumbled across this page- it's certainly stuck in my head now!

Best of luck!

Sent on Sunday, May 09, 2010 at 6:43:21 PM
Carnabystreetmods@hotmail.co.uk


From amanda,
ny

oh my goddddd i saw your blog and it made me cry. i really hope your daughter will eventually be cured of this horrible disease. my tears however, were mainly of happiness for the love and caring and you show your daughter. it makes me so happy to see that you care for her so much. i'm so moved by you guys. good luck with Josie <3333
Sent on Wednesday, May 12, 2010 at 10:42:25 PM
i dont have one


From breanna and allyssa,
california

i'm so sad for you. i just wanna cry. poor thing.


Sent on Wednesday, May 26, 2010 at 3:35:32 PM
breanna.brooke@yahoo.com


From Rachel,
Ontario, Canada

Josie is just gorgeous and an inspiration. Josie congratulations on being such a wonderful little lady :)
Sent on Monday, May 31, 2010 at 6:52:57 PM
myzershopper@gmail.com


From Samantha,
united states

hi my name is samantha im 13 and i was wondering if the disease she has is jdm if so i have jdm as well
Sent on Saturday, June 12, 2010 at 4:02:31 PM
sammies_club@yahoo.com


From Caroline,
Pembroke Pines, FL

josie is beautiful!! she definitely deserves the best. chronic illness is so not cool, i deal with it and my friend has dermatomyositis so it's tough on her too. hang in there please...chronic illness doesn't have you<3
Sent on Friday, June 18, 2010 at 1:04:50 PM
cutelittlecarrotcake@gmail.com


From Tiffani,
Griffin, Ga USA

I to have dermatomyositis I Live in Georgia usa. umm I was diagnosed at the age of 7 I am now 20 years old. I dont k now if they have her on celebrex it has worked great wonders for me. I am also on IVIG, Plaquinal, Prednisone, I think thats all for that. I have never had the calsifications but have had friends with them that i attedned camp with. Just kno that there are others there to support you guys Im here if yall have any questions. From 1st-9th grades i was in a wheel chair full time now i jsut use a scooter for long distance. Josie, Hang in there sweetie Much love
Tiffnai

Sent on Friday, June 18, 2010 at 1:10:47 PM
tiffanihortman@bellsouth.net


From C Young,
GA

I found your blog by total accident. I am beginning to read all your posts. I will comment as I read through the blog.

Josie is such a darling, I wish her the best.

Sent on Tuesday, June 22, 2010 at 6:43:52 AM
keeper504@gmail.com


From shiniel stevens,
south africa. Cape town

i hope she has recovered.
Sent on Wednesday, June 23, 2010 at 1:06:05 AM
shinielj@gmail.com


From Shannon,
Pocatello, Idaho

Thank you for sharing your story! It is truly inspirational! Josie is a beautiful spirt, and she reminds us how important it is to never give up on each other! Hope this finds you all well. Josie is so lucky to have such a loving family! May the future find you in good health and happiness!
Sent on Saturday, June 26, 2010 at 12:45:26 AM
ssimmons920@yahoo.com


From Helga,
Wallasey, UK (nr Liverpool)

ooops didnt sign the book before I clicked the link!
Well, having sobbed my heart out, all I can say is what a brave little girl you are Josie and your family. Big,special loves to you all. No recent posts so I'm hoping thats a sign that all is quiet?

I wish I had some words of wisdom but all I can say is 'trust' as you never know what lies ahead (and I mean that can in terms of good things waiting for you). I started visiting humpteen Rheumatologists when I was 11 and thought I was never going to see any light....but it does come albeit in small mercies at first.

Stay well and strong

helga xxx :)


Sent on Monday, July 05, 2010 at 3:09:25 PM
ambersyard@me.com


From FCF,
AZ

Hello, what a moving story. Thank you for sharing it with the world. Josie, you're beautiful both inside and out and I hope you're doing well in life. No recent posts, I am curious how your family is, how Josie is. It's amazing to not know someone but to feel connected to them just because you care. I wish you and your family the best in life and God Bless your beautiful hearts and souls.
Sent on Tuesday, July 13, 2010 at 12:43:08 AM



From Sara,
Ashland, VA

So very very glad to see you're doing better. I hope the lack of updates means things are going well still!! You're an amazing little girl, Josie, with the most awesome parents and family! Love to all.
Sent on Saturday, July 17, 2010 at 3:52:30 PM
saranherbert@gmail.com


From Alison Weir,
Eastsound, WA

I read Josie's story about 8 months ago, practically all in one sitting. I was happy that the last entry was very positive, after so many setbacks. I was hoping there would be other updates, but nothing since last year. Perhaps this means everything is going well. I hope so, because like so many of the other people who have posted messages, I felt a strong connection to Josie and her family. My thoughts are with you.
Sent on Sunday, July 18, 2010 at 9:57:50 PM
weir50@gmail.com


From Hilde Kinthaert,
Brugge, Belgium

Hi Josie,

I'm Hilde and I live in Brugge, Belgium. I've been reading your story today and I'm wondering how you are.

love,
Hilde

Sent on Monday, July 19, 2010 at 7:38:11 AM
hilde.kinthaert@just.fgov.be


From Robin,
Lake Isabella, CA

Hi I'm Robin, hope all is well. I found your blog while looking up the calcinosis for my mother. She has had this for 20 years and it has slowly progressed. But after seeing your daughters pictures of the areas, my mothers looks just like hers. My mother is 68 and we are desperate to find something to help her. Did you find that the pamidronate helped at all? We are in california. If you can let me know of anything new, please let us know. The last blog was from 2009. Thank you again for any information. I really hope Josie is doing better. She looks like a very happy little girl...Our prayers go out to you.
Sent on Sunday, July 25, 2010 at 11:22:02 AM
robinons@verizon.net


From sheila collins,
illinois

in 1987 my step mother died of a mysterious illness. Cause of death accute heart failure. She was 32 yrs of age & 3 months pregnant. 2 yrs ago my sister now 32 was diagnosed with lupus. she had joint pain rashes. most recent body pain every where, fever, severe headaches. She is now in the hospital her face is swollen. I found your sight about your daughter. My sisters swelling is like your daughters minus the swelling on the mouth. I am very upset being I researched this illness in June & gave my sister the info to have the doctor read it. She could have been treated for this a month ago. Before all the swelling acured. Best of luck to your daughter. My heart breaks for her & for my sister. I pray for a cure.........
Sent on Monday, August 09, 2010 at 8:25:15 PM
sheilaturpen@yahoo.com


From Maxine Gratton,
North Bay Ontario Canada

wow, i can hardly start to imagine how hard it must be to see your little girl like this everyday. it breaks my heart. You are obviously a very strong person and your daughter seems to be in very good hands. No child deserves any of this!!

Keep your chin up Josie & Family!!

Sent on Tuesday, August 17, 2010 at 3:21:08 PM
maxine.gratton@hotmail.com


From kate,
philly

i was looking for info on canker sores when i seen josies pic. my heart goes out to you. she is such a beautiful little girl. i have 5 five kids, and i can only imagine how hard this must be for your family. i will keep you all in my prayers...that they find a cure for this disease,and for you stay strong until they do.
Sent on Friday, August 27, 2010 at 4:35:44 PM
shimmerlynx@aol.com


From jimgratton,
hailburyont

Hi how u do to day i like to meetcan u email me some time oswe can talk ilike to hhere fromu ok jim on facbook jimgratton2009@hotmail ok
Sent on Saturday, August 28, 2010 at 10:41:23 PM
jimgratton2009@hotmail.com


From Carrie.,
Dubuque, Iowa

Oh my goodness, this just breaks my heart. I could only imagine how hard it would be to sit back and watch your daughter go through something so hard without being able to fix it. You indeed but have a lot of strength... just don't let go of that, she needs you every second of the everyday!!
Sent on Saturday, September 11, 2010 at 3:42:18 PM
Carrie.jenaman@gmail.com


From Flavia Alcina,
Louisiana

Hi Josie, I have a granddaughter with the same disease. She suffered with it for four years taking meds that did nothing for her. We went to all kinds of doctors. Finally a friend lead us to a doctor in Texas who was sure of what she had. And she was right. She is doing well for now. It is a everyday battle but dont give up. We are praying for all children like this. We are praying for a cure. But for now we travel a long way from home just for treatment. You see we live in Louisiana and no doctors here have any knowledge of dermatomyositis. Our thoughts n prayers are with you God bless



Sent on Sunday, September 12, 2010 at 11:12:37 PM
lady_flav@hotmail.com


From Donna A,
Chippewa Falls, WI

Our thoughts and prayers are with you all.
Remember to take care of yourselves also.

Sent on Tuesday, September 14, 2010 at 8:48:48 AM
Danderdl@Yahoo.com


From sweety,
trichy

hi h r u
Sent on Wednesday, September 15, 2010 at 11:56:20 PM
princesses sweety 9992@gmail.com


From spencer family,
rockport ma.

was researching fifth diease and came across you site,

hope your little princess gets well soon,

Sent on Thursday, September 30, 2010 at 2:45:09 PM



From Stephenie Wilkinson,
Palm Bay, Fl.

What a brave and beautiful little girl :0) I could not imagine having to watch my child go through something like this. My heart goes out to you Josie. Life is so precious, and your making the most of it. I think you are an inspiration. Good luck with everything..
Sent on Thursday, October 07, 2010 at 1:11:38 AM
stephenieandkevin@yahoo.com


From Melanie,
Nc

Glad to hear how well Josie is doing in school. What an inspiration you all are as a family. I would love to read a more recent update if and when you get the time. Sending good thoughts to you Josie!

Melanie

Sent on Tuesday, November 02, 2010 at 8:00:57 PM
dewieee@yahoo.com


From April and Vivien ,
Indiana USA

We found your site looking for something else. My Granddaughter and I read the blog and it was very upsetting to read about the things she is going through. We are hoping to read more updates that she is getting better. Our prayers are with her. Good luck and God bless you.
Sent on Friday, November 05, 2010 at 7:08:44 PM
altafern1@yahoo.com


From kyle duncan,
greenville ms

i read a little bit of the blog. seeing the pictures of your little girl made me cry. no child should have to endure something like that. i'm sure you hear it all the time but i am so sorry for what your family has to go through but mostly that, that little girl has to go through something like that. she has got to be a strong young lady! i have two kids of my own my oldest is Aiden Graham he is 17 months and Jewel Marie she is 7 months. i pray that everything is ok with her and your family.
Sent on Saturday, November 06, 2010 at 11:22:41 PM
kduncan@myself.com


From Katerina,
Europe (Like you guys most probably)

Hang in there buddy,

I think you are lucky to be surviving from this disease, and it makes me think how lucky I am to be well. You are practically well, but the teeny, weeniest bit Ill, Sorry, am I going over the top? But be happy and enjoy your life while you can Josie. We think of you everyday -

Love ya, and hang on tight with those hands
Katerina
xxx

Sent on Sunday, November 07, 2010 at 3:22:33 PM
rosiepoulios@o2.co.uk


From Chloe Golembesky ,
CLU- Thousand Oaks, Ca

This breaks my heart. My prayers will be with her! I affirm healing and health will be soon to come!
Sent on Thursday, November 18, 2010 at 1:04:46 PM



From ilham ,
london

I hope ypur daughter gets speeedy recovery, it has earlly sadened me however ur doing a great job.

student nurse

Sent on Monday, November 22, 2010 at 10:22:33 AM
muslimah4_life@hotmail.co.uk


From Dakota Guinn & Mark Montoya,
Phoenix, Az

Stay strong Josie! You are very very brave!
Sent on Thursday, November 25, 2010 at 11:29:55 AM
d_guinn13@yahoo.com


From Jenna ,
Australia

Reading Josies story has given me hope, i havent been able to walk for four years and have been pretty down, after reading Josies story im almost shocked at the fact im complaining when Josie has clearly been through so much more. I hope things go well for you all and i want you to know her story has inspired me and my friends, i think everyone should hear about how brave this little girl is. Good luck for the future, my thoughts are always with you xox
Sent on Saturday, November 27, 2010 at 4:26:09 AM



From Carly,
Indiana

My son is going thru something very similar. very stressful for all of us. He has severe mouth ulcers and swelling of the lips. All test are negative and it seems to continue to reoccur every 3 months
Sent on Friday, December 03, 2010 at 7:37:09 AM
carly31@gmail.com


From Mimi Chai,
Boston, Ma

Dear Josie and family:
I am doing a little presentation on Dermatomyositis and came across your page when I was looking through pics of calcium deposits. Yours definitely caught my eye because it was gross and reminded me of my knee! :D
I am filled with tears as I am writing to you. I am 32 and have a daughter who will turn 2 on the 19th of this month. I, too, have Dermatomyositis and I have been in remission for many years now. I know exactly what you are going through. It hurts me to see that you have so many calcium deposits and as if that's not bad enough, look at the size of them. It did make me laugh tho when I read that the calcinosis popped and oozed. How "you pop it, gross yourself out, then want to do it again."
I checked myself into the ER one night because my knee was hot and swollen and I couldn't walk, bend, or straighten them. I had no idea what was coming. The doctor made 2 little incisions in my upper and lower knee cap and it just started oozing. Unlike yours, mine was not that thin. It was a thicker ooze and when you squeezed it, it felt like you were squeezing a tube of toothpaste. It was definitely fun to squeeze and see (for some people I might add)!!
I have had several calcium deposits taken out and I will be back on the 16th of this month to remove the ones on my knee and elbow. I am removing them because it's preventing me from kneeling and don't they hurt so much more when you bump into a table or something hard? For me, there's a shock that runs through my body when that happens.
I was diagnosed with Dermatomyositis in 1986 and I was 7 at the time. My mother didn't think I was going to make it. And who would have guessed, here I am, sitting here writing to you. I feel honored and grateful.
I haven't been taking any medication for Dermatomyositis since 1990. Minus other medical problems not relating to Dermatomyositis ( or could it all be related? I'm not sure), I am overall in good health.
I want you to know that you WILL get better. Mom, Dad, Josie WILL get better.I am your living proof.
I have so much more I'd like to share with you. Please email me if you have any questions. I would love to hear from you and share my younger pictures with you.
Happy belated birthday and happy holidays!
Love,
Mimi

Sent on Friday, December 03, 2010 at 8:24:53 PM
mimi_chai@yahoo.com


From tiffany,
St. Louis

im sorry to hear about josie's condition.
she looks like such a sweet little girl,
i wish there was something i could do to help you out
i will keep josie and you all in my thoughts and prayers
keep us updated!

Sent on Friday, December 03, 2010 at 11:38:20 PM



From Beth Adams,
England

hi josie it's beth here. you look like a good friend 2 chat 2 so. I would like 2 have u as a friend. thanks alot. And i hope you like the sound of me.
Sent on Monday, December 06, 2010 at 2:53:29 PM
bethadams101@hotmail.co.uk


From Kelsi Chiesa,
Newport News, Virginia

I just want to say thank you for all your courage through this terrible disease and tell Josie I say hi and feel better! <3
Sent on Thursday, December 09, 2010 at 8:40:45 AM
kelsi524@yahoo.com


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Norfolk Island

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Sent on Sunday, December 12, 2010 at 6:19:19 AM
johnvatsonss@gmail.com


From KdishtFazzina,
Experienced various problems looking at the site in Chrome on the Apple pc, but I still enjoyed your website!
Sent on Tuesday, December 14, 2010 at 5:15:21 PM
kqishgfazzina@gmail.com


From rachat de credit,
France

J'ai appris des choses interessantes grace a vous, et vous m'avez aide a resoudre un probleme, merci.

- Daniel

Sent on Tuesday, December 21, 2010 at 5:16:05 AM
robsoncamillef@live.fr


From Mie,
Austin, Texas

Not exactly sure how I stumbled onto this page, but Wow! What an incredible story! :) Josie is a strong girl, and has an awesome life ahead of her! Cheers for her positive outlook on life! :) God makes no mistakes! Looks like she's surrounded by an incredible for of love! Incredibly uplifting!

Josie and your whole family will be in my prayers!

Stay strong, tough, and positive little Josie! :)

-mie

Sent on Tuesday, December 28, 2010 at 12:22:14 AM
mierichardson@mac.com


From Ryan Hutton,
Glasgow

Josie,

You are a very strong, brave and beautiful big girl, I hope that you feel better real soon.

To Josie's Mum & Dad,

You guys are in my thoughts and prayers, I hope your baby makes a full recovery and soon. I can't even begin to imagine what you are all going through and I don't know the words to say but I pray to God that Josie gets well soon. Hospital staff are amazing people and they perform miracles on a daily basis.

I found Josie's page when running a google search on the surgery I am having done next week.

Best Wishes,

Ryan

Sent on Thursday, December 30, 2010 at 8:13:49 PM
the_boy_247@hotmail.com


From Jill Schut,
Cokato, MN

We are always thinking of Josie! We meet her at the Weer's home a few years back when all the JM kids met. Maddie is now 11, and still flaring on and of, but currently off IVIG, but still on all meds. We are thrilled to hear how well things were going in 09, hope all is well in 11.
Sent on Thursday, January 06, 2011 at 10:54:56 AM
jillschut@aol.com


From North Dakota,
Streeter

omg!! that is so sad i never heard of her before but i was looking on google for facts on my bookreport when i saw a picture i clicked on it and it was so sad :(
Sent on Tuesday, January 11, 2011 at 5:07:43 PM



From Bridgette,
Hey there, im actually really interested in reading your blog, because Josie is actually going through alot that i am. Im 13 from Australia, and i also have Dermitomysitis, i suffer with calcionosis and what not im also on Prednisone, Metholtrexate and used to have Iv-IG transufsions, i hope to hear back from you.
x bridgette

Sent on Wednesday, January 12, 2011 at 2:47:06 AM
bridgi74@hotmail.com


From Yolanda Helfrich,
Ann Arbor, MI

Hello,
I found this website while looking for photos of calcinosis for a lecture on dermatomyositis. What a wonderfully written story about a truly awful disease course for Josie and your family. It sounds like you have had really good rheumatologic care. I wonder if you have ever considered a visit with dermatologist Dr. Jeff Callen in Louisville. He is the dermatologic expert on dermatomyositis. I wonder if he might be able to add anything to Josie's care. Best of luck to all of you, and especially to Josie!

Sent on Friday, January 14, 2011 at 1:39:54 PM



From C