From Chris Marshall,
Josie,
We want you to know that we think about you daily and we are so proud of you for fighting this disease. Your courage is a true inspiration! Stay strong little lady and fight on!
Love,
Chris, Rachelle & Abigail Marshall
Sent on Wednesday, August 10, 2005 at 12:18:25 AM
CRMarshall27@Comcast.net
From The Arnolds,
Hang in there, Josie!
Things will definitely get better, and hopefully soon!
We are thinking of you and your family -
Bob, Sarah, and Jillian Arnold
Sent on Wednesday, August 10, 2005 at 11:14:05 AM
rja@teemaster.com
From Katy LeBarron,
This 'dime-store' psychologist says give in to her every whim for now! My guess is that you wouldn't do it if it didn't feel right and she really needs you now! Let me know if there's anything I can do to help out with either Josie or Henry, Trip and Evie!
Sent on Wednesday, August 10, 2005 at 1:16:52 PM
From Jan guenther,
Wow Josie, someday you'll look back at this log and wonder how your parents handled it all. Hopefully any other little person who might have this disease can learn from this weblog and advances in treatment can be made. Meanwhile all these friends of your parents whom you don't know are sending you get well thoughts...we want you to feel better Josie!~
Sent on Wednesday, August 10, 2005 at 2:02:40 PM
From Leslie McKeown,
HI there Adam's family! This is Leslie and I was just checking in on you all... I am hurting so much for all of you and can't imagine what you must be going through. Please know you are in all of our prayers and the boys talk and pray about Josie alot. Of course we all want to help but don't know how best to do it. Do you think it would help if I came and took the "night shift"? I know I wouldn't be Josie's first choice:) but at least it could give you a break and being a nurse I feel confident that we'd be okay. (I am a night nurse you know!) If that doesn't work then I could just come and relieve you for a short while...We love you all and hope and pray that Josie makes a full recovery and that these big gun meds do the trick fast. Hand in there and God bless you all-The McKeowns
Sent on Wednesday, August 10, 2005 at 2:08:12 PM
From leslie mckeown,
Here's my email that I left off the last address...
Sent on Wednesday, August 10, 2005 at 2:08:54 PM
lesliemckeown@mn.rr.com
From Lisa Heilman,
Josie and Family, We are sending our prayers your way! Let us know how we can help.
Love,
Lisa Rich Lucas and Isaac
Sent on Wednesday, August 10, 2005 at 2:10:12 PM
lheilman@frontiernet.net
From Tami and Dan Greenshields,
I am so sorry to hear about Josie. Dan and I will keep her in our prayers. Dan will be in Mpls this weekend and will try to stop by.
Love, Dan and Tami Greenshields
Sent on Wednesday, August 10, 2005 at 3:21:34 PM
tgreenshields@qwest.net
From The Madsen's,
Hi Josie and the Adam's Family-
Thanks for the update about Josie. We all hope she feels better soon!!!
Love
Tom, Karen, Sarah, Emily and, Paul
Sent on Wednesday, August 10, 2005 at 4:12:15 PM
madsen@mcleodusa.net
From Rick and Ramona Friederich,
Hi Josie,
We just found out that you are not feeling well. We just read the entire website your parents made about you. We are so sorry that you are having to go through so much. We are thinking of you and hoping for the best for you. Tell your mom and dad, brothers, and sister they are also in our thoughts.
Sent on Wednesday, August 10, 2005 at 4:29:30 PM
SeamsRight@comcast.net
From Nona Bergh,
As a mother of a child that had leukemia, you are allowed to give in to her every whim. Please ask friends to take the other siblings to do special things and remember all the children when sending cards, gifts, etc. My son did not suffer because of giving in to his whims but my daughter was angry because everyone asked about Geoff not her. Josie and your family are in our thoughts and prayers. Thank you for doing such a great job on the website.
Sent on Wednesday, August 10, 2005 at 5:06:07 PM
nbergh@mn.rr.com
From The Nelsons,
Hey Josie! We love you and hope that you had a good day today. If you ever want to come and play (or your brothers and Eve want to come and play), give us a call and we'll come pick you all up. Take care sweetie, we're praying for you - your Mom and Dad too!
Love always, Shelly, Mark, Max and Sam
Sent on Wednesday, August 10, 2005 at 7:03:59 PM
shellymarknelson@yahoo.com
From Jill Saastad,
Hey Josie,
We are so sorry that you have to fight this disease-- we know you can do it, you are such a strong little girl! Hang in there Deb & Jay and Trip, Henry & Eve. We love you all and are sending you a big, enormous --HUG--. Love, The Saastads
Sent on Wednesday, August 10, 2005 at 8:14:48 PM
Saastad@mn.rr.com
From Sue Pearce,
You guys are in our thoughts and prayers.
Sent on Wednesday, August 10, 2005 at 9:39:32 PM
spearce7@msn.com
From Paul and Shelly Doran,
HI Adams,
We just want you to know that we are thinking about you and praying for you. We can't imangine what you are going through. Please let us know if there is anything that we can do!! We would love to help. Keep fighting Josie!!
Love,
Paul, Shelly, Joe and Sarah Doran
Sent on Thursday, August 11, 2005 at 7:55:42 AM
doran-home@mn.rr.com
From Anisa Carlson,
Josie - I hope you feel better today. How is your little Hippo doing? What did you name her? Here is a joke for you. Why did the dog climb the latter? To get to the Wroof?
Hang in there Josie! We are thinking about you.
Anisa and family
Sent on Thursday, August 11, 2005 at 11:33:30 AM
emilyjimcarlson
From Nancy Cullen,
Dear Deb abd Jay,
Sue Dornfeld called and told me about your lovely little daughter and the rare disease that she has. I am so sorry to hear the sad news.
Please let us know if there is anything we can do to help. Sue and I could certainly come over and help with the childen so that you may have a break.
You are in our thoughts and prayers.
Nancy and James Cullen
Sent on Thursday, August 11, 2005 at 4:53:03 PM
ncullen@mn.rr.com
From Dave and Sue Dornfeld,
Deb and Jay, I just wanted to let you know that we are thinking of you guys and praying for Josie everyday.
Take care,
Dave, Sue, Shannon, and Nicholas
Sent on Friday, August 12, 2005 at 8:42:35 AM
ddornfeld1@yahoo.com
From Jim & Wanda Hollensteiner,
Thank you for the weblog update, though Lisa has been keeping us informed. Last Sunday our little church in Dayton, MT, added their prayers for Josie's healing. We look forward to Josie and family returning to Flathead Lake... with love from J&W
PS who cares about what the psychologist say? Mom's intuitions are better. X
Sent on Friday, August 12, 2005 at 6:25:38 PM
wandahollensteiner@centurytel.net
From leslie mckeown,
Hi Josie and family-Just saw your update-I just stare at that CPK and will it to go down...You too, I'm sure. Glad to hear your nights are improving slightly. I have my sister and her family here and have shared your journey with Riley's folks. Let's just say you have many very powerful prayers coming your way. God Bless you all and much love. Leslie, Riley, Ben and Sam
Sent on Friday, August 12, 2005 at 11:11:53 PM
lesliemckeown@mn.rr.com
From Caroline & Ed Gaiser,
We are so sorry to learn of Josie's illness and the struggle she is going through now. We will keep her and all of you in our prayers. Thanks so much for these updates.
With love,
Caroline & Ed
Sent on Saturday, August 13, 2005 at 3:52:43 AM
c_gaiser@hotmail.com
From Paul and Shelly Doran,
Hi Guys,
We have been checking Josies updates everyday, thank you for keeping us all informed. We are all praying for the best. She is such a strong little girl. I hope she knows how many people are thinking of her everyday!! Let us know if we can do anything!!
Love,
Paul, Shelly, Joe and Sarah Doran
Sent on Saturday, August 13, 2005 at 9:34:42 AM
doran-home@mn.rr.com
From Maria Marshall,
Dear Adams Family,
Gary and I are thinking of you daily and remembering our fun trip to Florida. We truly love each and every one of you and we keep you in our prayers.
Sent on Saturday, August 13, 2005 at 9:02:19 PM
gmarshal@tds.net
From Katie Marshall,
As the youngest of 4, Josie Jo has always had to be a fighter... All the Adams kids do, whether it's Evie attempting to overpower a dog 3 times her size, Hen fighting for the privlage of playing with his big bro, or Trip BEING the big bro; they're all strong kids, and I believe that Josie's sweet spirit is stong enough to get through this, even though her body may be weak right now. Know that my prayers and thoughts are with you all in such a horrible time, and PLEASE call on me if there is anything I can do to help you guys through this ordeal. It breaks my heart to see such a genuine, generous, and loving family be dealt such a strange hand... But remember that God never gives us more than we can handle. All my love to each one of you and give Josie an extra kiss from me! ~Katie
Sent on Saturday, August 13, 2005 at 9:51:44 PM
thekatiemarshallproject@hotmail.com
From Jena Hollensteiner,
Hi,
I just spent two weeks with sister Lisa in Montana and virtually each day we'd get an update from her about Josie progress. We've all kept her in our individual and family prayers. Our thoughts and prayers go out to all of you and especially Josie during her difficult time. We look forward to full her recovery and also to seeing you all again in the Flathead. Thinking of you all and God Bless, Jena Hollensteiner
Sent on Saturday, August 13, 2005 at 11:49:58 PM
jena.hollensteiner@cbre.com
From Klara Varady-Bessko,
I'm Aggie Varady's mother. She's told me about Josie last week, also sent me Josie's Weblog.
Ever since my thoughts are with you daily, and I pray for her recovery.
Love,
Klara B.
Sent on Sunday, August 14, 2005 at 10:48:12 AM
bessko@attglobal.net
From DH,
Nice post today. We're glad to hear something might be working...We're all praying for you and your doctors to figure this out.
Love,
M,E,T & A
Sent on Tuesday, August 16, 2005 at 11:17:38 PM
mdhhsu@gmail.com
From Stellons,
We're thrilled to learn of the good news and know that Josie is getting thoughtful expert care.
We keep you all in our thoughts and prayers. Keep fighting, Josie!
Sent on Thursday, August 18, 2005 at 12:45:16 PM
stellone@aol.com
From Virginia Riebe,
Hi, I'm one of Lee's neighbors at Vizcaya. Over the years the proud grandmother has told us about your family..starting when Trey was born. We love Lee and feel for all of you during these dreadful days..although, (dare we hope?)there seems to be light.Every positive thought, with love, is being sent your way.
Sent on Thursday, August 18, 2005 at 7:58:35 PM
ginnahr@msn.com
From Joelle Syverson,
Dear Deb, Jay and Josie...We just learned about Josie's condition from Kris and Jeff. It just breaks our heart to read what Josie has endured so far. It was so fun to meet her and all of you at Fairhills. In fact, I have a couple pictures that I will mail to you.
We just want to let you know that we are praying for all of you!!! We will continue to check in on Josie's progress, you have handled this heartache with such grace! Stay strong and rest in Jesus!
Love, The Syversons
Sent on Thursday, August 18, 2005 at 10:34:32 PM
jsyverson@mn.rr.com
From Tammy Adams,
You, all of you, are in my thoughts daily! It's so hard, somtimes, to watch the struggle of our little ones as they endure the hardships of simply growing up, but this battle of Josie's has been heavy and unyeilding, frustrating and exhausting. This is certaily a time when I wish we were closer so that I may be of some help to you all, but I cannot. I can only send well wishes and pray that things improve with time, good medicine and the love you have for Josie and she for you. These times and this illness are mystifying and bewildering; Have courage Brother and Sister. My love to you and all the little ones.
PS: Dakota says he hopes Josie and things get better soon!
Sent on Friday, August 19, 2005 at 7:51:15 AM
Camprn@verizon.net
From Grampa and Gramma JackieHibler,
Hi, L'il Josie. You're too young to remember Gramma Jackie and me, but we are sending you our very best prayers and thoughts, every day. We will look forward to a visit out here in California sometime soon.
Love and hugs,
Granpa and Gramma Jackie
Sent on Friday, August 19, 2005 at 1:23:04 PM
edhib@sti.net
From John Hibler ,
As a parent who watched his child fight for life, your case and your words bring back so so many memories. Mine was even smaller than Josie. Mine was a premature birth. Michael, now twenty four was an emergency situation. I still remember the days spent on me knees in prayer, sometimes wondering if anyone out there was listening. My son Michael blew a hole in one lung on three different occasions during the first week of life. The doctors and nurses at Valley Children’s Hospital in Fresno California were the cream of the crop. Dedicated to life! I still remember asking what are his chances. They would answer we don’t know, we simply don’t know. We were encouraged to visit as much as possible. The powers that be (the doctors)explained that touch, human contact, with the parents can do miracles. The doctors and there PhD’s could not explain, but they knew it to be true. The days were long. Weeks seemed liked months. My X wife was in another hospital recovering from the emergency C-Section. I was amazed how strong my little childs grip was after being swooped into the world by doctors far ahead of what Michael or his parents would have wanted or dreamed. Finally after about ten days he began to put on weight. His color improved and the day came to take our wonderful little boy home. He is now six feet tall and as buff as the strongest tree! Through this experienced I learned a great deal about myself. My life has never been the same since. In a flash all that was important in my life changed. All the trivial challenges of life no longer mattered All that was important was Michael. It is my belief that children especially very young children are very close to the veil which separates us big people from our heavenly father. I truly believe these tender little people have spiritual wealth far beyond what you and I can understand. So it is with Josie, She is blessed and will be blessed not only by loving parents and family but by a loving heavenly father who is guiding the hands of doctors. Guiding the hands of people with great knowledge. All will be well. John
Sent on Friday, August 19, 2005 at 2:25:50 PM
john@johnhibler.com
From Nancy Busby,
Hi, Chip & Deb - My dear friend Lee sent me a link to Josie's Weblog. Jesus said He'd never leave her or forsake her, so I'm believing that right at this very moment, His angels have surrounded Josie with comfort and healing. God gave physicians their skill and chemists their intelligence to keep on developing new procedures and new drugs and new smarts for taking care of problems like these. He promised, He provided the help, and He'll see this through. Your faith certainly helps! I'll stand in agreement with all those who have already signed your guest book that Josie WILL recover fully and continue to be a blessing to your lives and so many others by her courage and tenacity to life! In Jesus' love and in mine, Nancy
Sent on Friday, August 19, 2005 at 3:54:56 PM
nbusby@advantexmail.net
From The Lunds ,
Checking in on Josie's progress...but no new news...Tom and I are praying for all of you...Love you much, our little family.
Sent on Friday, August 19, 2005 at 3:58:50 PM
lundlink4u@msn.com
From Frank and Toni Caracciolo,
We are friends of your Grammy Lee. We have been praying for you every day,Josie. Your latest test sound encouraging. We will continue to pray for your complete recovery beautiful child. God bless you.
Sent on Friday, August 19, 2005 at 5:25:14 PM
ftcaracciolo@aol.com
From Jackie Dornfeld,
Josie & Family,
Our thoughts are with you as go through this challenging time. We admire your strength and determination in successfully fighting this disease. If there is anything we can do to help, just let us know.
Love,
Jackie, Paul, Kelsey
Sent on Sunday, August 21, 2005 at 10:13:18 AM
jkdornfeld@mn.rr.com
From Tony Marshall and Kristin Adams,
Hello Everyone ! A note to let you know we are following the updates very closely and praying for every inch of improvement for the lil' warrior Josie ! We hope you feel our love and concern although it be from a distance. Keep up the battle Josie ! and Trip, Henry and Evie; we are very proud of all the things you do each day to help your Mom and Dad look after your 'lil sis ! Jay and Deb, we love you and pray for your continued strength !
love, Tony and Kristin
Sent on Monday, August 22, 2005 at 7:47:41 PM
Teespark @aol.com
From Jon,
Josie, you have no idea how many people are concerned about you and praying for your recovery. Hopefully some day you will read these notes and see how many people love you and your family. We know you are a tough little girl and will be well soon.
Love,
The Newberry's
Jon, Andie, Haley, Tyler and Boomer
Sent on Tuesday, August 23, 2005 at 10:22:59 AM
jon.newberry@libertymutual.com
From The McKeown's,
Hey there Josie-we are so glad to hear that you are feeling a little better. Lots of love and prayers are being sent your way. We love you! Ben, Sam, Riley and Leslie McKeown.
Sent on Tuesday, August 23, 2005 at 3:12:02 PM
lesliemckeown@mn.rr.com
From Gammie,
My dearest, darling Josie,
I haven't been able to type a message to you until now, but I've been talking to your Dad and Mom a lot. Always remember that Mrs. Mouse and I are thinking of you many times every day. When I can, I'll be coming to see you (and of course bring Mrs. Mouse along). Always remember how much you are loved.... and with all the prayers and your fighting spirit, you will prevail. With lots of love and hugs,
Your Gammie
Sent on Wednesday, August 24, 2005 at 6:51:24 PM
lee2beach@aol.com
From Sue Pearce,
So good to hear of her progress! She continues in our prayers!
Sent on Tuesday, August 30, 2005 at 7:12:12 AM
spearce7@msn.com
From Donna Abramson,
Dear Adams,
Our prayers are with all of you, I pray that Josie gets stronger everyday. It was wonderful to see her walk today. Please let me know if there is anything that we can do. God Bless you all!
Sent on Tuesday, August 30, 2005 at 5:09:14 PM
donnaabramson@hotmail.com
From Nancy Hanneman,
Hello, I am Donna Abramson's sister. (I was the "aunt in charge" when she and Wally went to Sweden)She had mentioned that Josie had been very ill, and sent me your web address today. What a path your family has been traveling. As an RN (I consult to Fraser's group homes)I know there are some docs out there who are less than lovely, sorry your sweet baby girl had to run into one of them. However, the doc in charge seems like a winner. Your family is in my prayers, Nancy
Sent on Tuesday, August 30, 2005 at 10:08:34 PM
nahanneman@hotmail.com
From Kris, Jill, Trigve and Annika,
Hey Josie and gang,
We have been out here rooting for all of you and hoping the news just keeps getting better every day!
Trust that if you need ANYTHING, we'd be glad to help!!!
Thinking of you and sending lots of healing wishes and thoughts Josie's way.
Glad to hear you are getting away and having some fun. (Iowa??)
Take Care and hang in there!
Sent on Thursday, September 01, 2005 at 9:48:26 AM
kris@teamfriday.com
From lesliemckeown,
Hi Josie and gang-Glad to hear there is some progress with labs and hope lesions start to heal...It was soooo nice to get together up North and see you and the kids. I'm sure things are a whirlwind this week with school starting. Keeping you in our thoughts and prayers. The McKeown's
Sent on Tuesday, September 06, 2005 at 8:02:43 PM
lesliemckeown@mn.rr.com
From The Madsens,
Adams, We are finally getting to the website after vacation and starting school and what wonderful news that levels are improving for Josie! We know you have a lot ahead yet but it is good to see the meds helping her body fight this disease. Way to go Josie!! Of course she is an Adams with a lot of determination and strong will and energy. We will continue to keep you all in our prayers and especially Josie. Glad to hear the other kids are adjusting to her needs. Hope to see you on the soccer fields. -The Madsens
PS: Jay, We'll be thinking of you doing the Ironman this weekend as we are sitting on the couch ;-) You will do great, we know. Best of luck.
Sent on Thursday, September 08, 2005 at 3:57:45 PM
madsen@mcleodusa.net
From June Jepson,
I'm sending wishes to Josie for the best care and healing possible. My thoughts and love are with you all.
Sent on Friday, September 09, 2005 at 9:38:09 PM
SSJepcaide@aol.com
From The McKeown's,
Hey Josie-can I come watch George of the Jungle with you? Can you believe I have not seen it yet? When you are big you will either LOVE or LOATH that movie. You looked so good at soccer the other night and I hope you grow stonger every day. Tell Mom and Dad to hang in there because this is hard on them too. You're so lucky to have such a loving sister and brothers. We love you very much too! Riley, Leslie, Ben and Sam McKeown
Sent on Sunday, September 18, 2005 at 8:40:09 PM
lesliemckeown@mn.rr.com
From Jim, Beth, Tony and Jack Stellon,
Josie:
You're in our prayers. We are hoping for your continued progress but more quickly. Best wishes for a speedy recovery!
Sent on Friday, September 30, 2005 at 3:36:05 PM
stellone@aol.com
From Gammie,
My darling little Josie, I can't wait to see you here in a couple of weeks. I've been waiting for a long time to see you, Trip, Henry and Evie (and of course, Mom & Dad). Don't forget, I'll have Mrs. Mouse with me. Hopefully, she won't be sleeping too much! I love you lots!!!!
Sent on Friday, September 30, 2005 at 7:58:23 PM
lee2beach@aol.com
From Nancy Busby,
Chip & Deb - Just read the latest update on Josie. I truly know how hard it is to pray for healing day after day for your little girl and not see it manifest...YET. I've been having some physical mobility problems too, and some dear people are standing with me on a scripture, Malachi 4:2 which says, "The sun of righteousness will rise with healing in its wings and you will go out and leap like calves released from a stall." I pray that for Josie too and look forward to you seeing her leap again! Love and blessings to you both,
Sent on Saturday, October 01, 2005 at 1:21:41 PM
nbusby@advantexmail.net
From leslie mckeown,
Josie and family-Have a WONDERFUL time in Florida! Forget all about Doctors and diseases and just ENJOY! Much Love-Riley, Leslie, Ben and Sam
Sent on Thursday, October 13, 2005 at 8:42:22 PM
lesliemckeown@mn.rr.com
From Stellons,
Great news about the bloodwork and we're hopeful the skin issues will be getting better soon. You make a very groovy clown, Josie! We miss seeing you at the hockey rink and we miss Trip being on Jack's team.
Sent on Thursday, November 03, 2005 at 11:39:24 AM
stellone@aol.com
From The McKeown's,
Hi there Josie and all-I'm glad to hear you had a good time in Florida and escaped the latest hurricane. Wow-a normal CPK-that's so encouraging! Hopefully you're at the top of the mountain. We've said so many prayers for you Josie and also the rest of your family. P.S. What an adorable clown you make!!Love, Riley, Leslie, Ben and Sam
Sent on Thursday, November 03, 2005 at 5:14:36 PM
lesliemckeown@mn.rr.com
From Katie Marshall,
Just wanted to let you guys know that I'm still thinking of you all daily, and praying for good news on your toughest little cookie! Thank you so much for the kind words about my mom, I don't think I need to tell you how important those kindnesses are in hard times.
Looking forward to seeing you all at Christmas!!
Katie & Lou
Sent on Thursday, December 08, 2005 at 9:22:44 PM
katiemarshall7@msn.com
From The Lotito's,
Hi Josie and Family,
We hope that all is going well we know that you are a little trooper. We miss you very much.
Love, Uncle Rob, Auntie Karen, Rebecca, Rachel and Robyn
Sent on Monday, December 12, 2005 at 9:52:51 PM
klotito@yahoo.com
From June Jepson,
Hi,
I have Josie's site on the toolbar at the top of my AOL screen. I think about you and Josie and your family a lot. Am glad to read your positive comments. I hope that, soon, very soon, all the comments will be positive and Josie can lead a normal and happy life without pain and without a calendar full of doctor's appointments. Much love, June
Sent on Saturday, January 14, 2006 at 8:14:47 PM
SSJepcaide@aol.com
From Scott Schwefel,
You guys and Josie are in our hearts and prayers, its gotta be stressful, and if we can help, call us on it, dinner or watch the kids, or whatever.
Schwef
Sent on Tuesday, February 28, 2006 at 5:30:25 PM
scott@insightstwincities.com
From The Heilman Family,
Adams,
We are always thinking about Josie and her strength in conquering this pernicious disease. The chemo treatments we pray are a promising outcome!
Love From,
The Heilmans
Sent on Wednesday, May 10, 2006 at 11:20:32 PM
rheilman@frontiernet.net
From Mona & Tim Belchak,
Deb and Jay,
We are concerned and saddened to hear about Josie's lack of improvement. We have had our kids in pain for short bits of time, but can't even imagine how little Josie is handling herself through all of this. You both are pillars of strength for her. We'll pray that God continues to give you strength to endure all that you face.
'He gives strength to the weary and increases the power of the weak.' Isaiah 40:29
Sent on Thursday, May 11, 2006 at 8:01:19 PM
tabinabq@comcast.net
From Tammy,
Good luck this weekend!!!!! I am wishing the ABX & surgery will work for a positive out come (quickly), Hope you feel better soon Josie! Hugs to all the kids (Thanks for the card Evie!!)& to you grownups too ~~Auntie Tammy
Sent on Friday, May 12, 2006 at 8:37:10 AM
camprn@verizon.net
From The Nelson's,
Hi guys,
I hope everything went well. You know you can call us for anything.
P.S.
Last Sunday was a P.R. for me.... I know Deb, running with the tubbies is not your speed.
Sent on Saturday, May 13, 2006 at 12:27:03 AM
sammax96@yahoo.com
From Sammy,
Josie - you are the princess of the world! And if you are a princess, you can overcome anything at all. Kick butt Josie! You go girl!
Love,
Sammy and the Carlson gang
Sent on Sunday, May 14, 2006 at 7:26:20 PM
emilyjimcarlson@msn.com
From Priscilla Moreno,
I'm so sad to see that Josie's condition is not much better and that she has to resort to these chemo drugs. I can't help but feel like this will be an intense short spurt of DM that will phase out. I certainly hope so. No child should have to deal with this. Just keep your faith that this can get better. My rashes went away, and my cpk's dropped from 8,000 to 70 over time. I'm even running up to 16 miles a week now when just a few months ago I was nearly crippled an could not stand up. She is young, and her body will go back to normal. Is she continuing ivig? I know it didn't seem to work at first, but they should give her extreme case a chance before canning it.
http://blog.myspace.com/priscillamoreno
Sent on Monday, May 15, 2006 at 11:16:05 PM
priscillamoreno@gmail.com
From Nirvana,
My Dear Josie!
You are such a beautiful little girl.Don't give up.
I'll be praying for you.
God Bless you.
love,
Nirvana
Sent on Friday, May 19, 2006 at 6:47:25 PM
nirvana_lesha@hotmail.co.uk
From Paula Vicker,
Jay & Deb -
Wish I could think of something witty to say, much like you do in your report. Just know we are all thinking of you and pulling for your entire family.
In our prayers...
Paula & Tom Vicker
Sent on Tuesday, May 30, 2006 at 3:48:47 PM
From Cyndi LaMoure,
Hi Josie- My daughter Michelle sees Dr. Vehe- we live in Bemidji. Michelle was diagnosed with JM in June 2004 when she was 5. Maybe someday you'll get a chance to meet.
Sent on Wednesday, June 07, 2006 at 8:00:58 AM
LaMoure@paulbunyan.net
From Chris Marshall,
Hi Josie! "Hello" to the rest of the Adams family too! I was thinking about you guys over this past weekend and just wanted to drop you a line to let you know that you are all still in our thoughts and prayers (especially YOU...Josie!) Fight the good fight little lady, better days will come!
Love you all!
Chris, Rachelle, Abby, & Zach
Sent on Monday, June 19, 2006 at 9:41:43 AM
CRMarshall27@Comcast.net
From Jackie Hempeck,
Hi Deb, this is Jackie (Stoick) Hempeck,
I just talked with Mary the other day and she shared with me about Josie. I am so sorry to hear of her struggles. What a great website you have set up to keep family and friends updated. I will keep little Josie in our prayers. I don't know if Mary shared with you or not, but I was just diagnosied with MS this past winter- another autoimmune disease. We always think it will be someone else, and not us, right!
Keep strong and trust in the Lord always!
Jackie
Did you follow Andrew Vetsch Caringbridge website- Maria and Ricks son? Sounds like he is doing well now.
Sent on Monday, June 26, 2006 at 12:00:53 PM
jhempeck@comcast.net
From christy,
JUST WANTED TO SAY keep thinking well and all things will get better, i just read this story and it is so sad, but just keep your head up high and stay string, you'll get through it, i am 22 and dealing with alot if the same things, not at all like she has though, but nothing they have tried for me has yet to have worked, i wish i could find someone to takj to also,its so hard and i have 2 kids and a husband. sometimes i wonder if i ever will get through it, but i always remeber there is always simeone out there alot worse off than myself, so just keep in being strong ,my prayers are with you all.
christy
Sent on Wednesday, June 28, 2006 at 11:14:14 PM
cnjvarner@aol.com
From Nancy ,
Chip and Deb - I continue to follow the events in your lives and stay believing for Josie's return to perfect, God-intended health. Your attitudes make a great difference in her recovery, there's no doubt...and I know she must see a family who loves her, who stand by her, and who remain hopeful for the physical manifestation of God's healing that will match this perfect little girl's soul! Be blessed, friends. With Love, Nancy
Sent on Sunday, July 09, 2006 at 4:58:36 PM
nancybusby@grandecom.net
From Jim and Joan Wobbleton,
Dear Deb and family
We are very close friends of your sister Karen and the family. We have been keeping track of the illness that Josie has gotten.
We have your family and Josie in our prayers.
I'm a nurse practitioner so I enjoyed the medical information that you provided in your Blog.
We also have met your mom and dad when they came to Marland the year the Karen moved to Calif.
Love and hugs to you all.
We are living in Murrells Inlet,SC. We're retired Air Force so we have a lot in common with Karen and her family.
Joan and Jim Wobbleton
Sent on Tuesday, July 25, 2006 at 1:39:58 PM
JWobb@aol.com
From Lynn Shadle Gabriel,
Dear deb,
My heart just aches for your daughter and the rest of the family. It physically hurts to imagine all that you are going thru. i am so sorry I did not know for i would have begun praying long ago for healing! for at the very least remission and control of and answers for these things. So, you are in my prayers a many number of times per day and also in the kid's prayers-when we pray together we have added Josie-I believe children's prayers are so pure and strong with no agenda.
On to our conversation. I really hope I didn't overstep my bounds at all. i hope you know i am not trying to say she has or doesn't hve something else also, i just really felt all this information and combination of knowledge and people in this week came to me for a reason. If there was anything that could potentially help I would just feel aweful if i thought maybe something and didn't offer it up. As far as celiac goes i'll be curious to hear what your thoughts are when you research it at all. a good place to look is the research center is www.celiaccenter.org it is the U of Maryland. Stanford has good info too. Interesting some have a skin condition as well and some who are not technically 'celiacs' benefit from a gluten free diet for one reason or another. you will see Autistic children benefit in various ways.these autoimmune diseases are so challenging and the wide varieties of symptoms or lak of them. Please just receive it as a thought of love because that is exactly what it is. Maybe something will end up helping, or maybe the connection was simply to meet this other family who has gone thru this. With my little bit of knowledge i think there's was a bit milder but i am just going to pass the Mom's e-mail on to you.She seems to be a type of person you would connect very well with.She gave me 2 addresses in case one didn't go thru but i have had success with her wok one which was the one in question. i'd try them both. Her name is Janet Ceaglske-Muhich Now you understand why i could not tell you what her name was! Anderson would be easier ;-) here they are:
janet.ceaglske-muhich@osteologic.com
HMUHICH@msn.com
Obviously , i did make it back from Duluth. I am very glad i went. It was clearly the right thing, and the kids did great! i did not break down and swing in to Target for a DVD player. that's a good thing! ;-) It was a trip well worth making.
I hope this note finds you at least partially rested and with things going well. I was happy for you to hear at least Josie was home. i can't imagine what it is like for you. After Blake spent 3 days in children's this winter I swore them off for life! That is difficult, so as i said my heart goes out to you.I am sure you hear 100 time, 'if there is anything i can do..." and i am also saying that and i mean it truly. If for some reason you do end up investigating a gluten free diet PLEASE use me as a recource! you would go broke trying to find the palletable items and 'Children's' is ill equipped to provide the food as well, we learned firt hand.Please know that i care and pray for all the best! I am looking forward to seeing you and i will have the "sweet monster" lovingly 'groggy' for you.;-)
Love and prayers
Lynn
Sent on Thursday, July 27, 2006 at 10:24:20 PM
lrshadle@earthlink.net
From Lynn Shadle Gabriel,
i forgot a question in my first e-mail. did you ever determine what the tummy splotches are? I am assuming you did, but to add to my celiac thing, there is a skin condition that can arise with that also. i think it would actually be a blessing if something like changing her diet would at least assist her immune system even a little. I will do my part and pray. and pray. and pray.
Love
Lynn
Sent on Thursday, July 27, 2006 at 10:29:35 PM
lrshadle@earthlink.net
From Priscilla Moreno,
I hope you not having updated yet this month means Josie is feeling much better. You guys are in my thoughts and prayers.
Priscilla
Sent on Friday, July 28, 2006 at 2:49:08 AM
priscillamoreno@gmail.com
From Lynn Shadle Gabriel,
Hi guys.
Lynn again. Dakota sends his love by the way ;-) . Sorry he is such a monster for you, but he really is a love believe it or not.
I can't get you off of my mind. I have been combing thru literature for Celiac and continue to find cross reference to Myocitis. The theory is, where there is one autoimmune, there could very well be another.( I am not implying a misdiagnosis, i am concerned about an aditional one and it is SO missed in the medical field). I pray that the Lord will speak to your heart and for elimination, just do a blood test. it would be such a blessing to maybe find a source and/or at least eliminate 'some' symptoms and gain some comfort for Josie. It literally broke my heart to see you see my kids and notice faith(who is not quite 2)and Josie's size. I hope i didn't add pain to pain. Things must be very busy there I can imagine, as i see you guys haven't updated the site for a while. I want you to know that your family is in our prayers on a regular basis for healing, for more answers, for stregth.
I would love to see you soon..without the monster in tow!
Love and prayers,
Lynn Shadle Gabriel
Sent on Wednesday, August 23, 2006 at 8:30:56 AM
lrshadle@earthlink.net
From Tammy,
HI folks, Tammy and Dakota are thinking of you today, again. Hope it is all as good as it can be. Love to you all~~T & D
Sent on Tuesday, August 29, 2006 at 7:50:04 PM
camprn@verizon.net
From Joan and Jim Wobbleton,
So glad that Josie is enjoying the blanket and the teddy bear we sent her.
I have talked with Karen on a regular basis and understand that Josie is having a rough time.
Our prayers for you and your family.
Love
Joan and Jim
Sent on Sunday, September 03, 2006 at 10:21:58 AM
jwobb@aol.com
From Rod Helm,
We are always thinking of you guys. Let us know if we can help with anything...running kids around, babysitting at our place...dropping everyone off if you want to do a long workout together..anything. I know things will turn out for Josie, but what a hard path for a little one to go through.
Love,
Rod, Jo, Alexa and Charlie
Sent on Thursday, September 07, 2006 at 3:32:24 PM
rhelm@rodhelm.com
From Eric and Kari Lleva,
We hope things will improve soon. We are praying for Josie's speedy recovery.
Sent on Friday, September 08, 2006 at 9:05:03 AM
e-james@msn.com
From Lisa Heilman,
Hey There Adams Family!! Just checking in to see if there was a new Josie update. I left a phone message to see if the other kiddos wanted to play today.
Thinking of you and sending our prayers!
Love
Lisa Rich Lucas and Isaac Heilman
Sent on Sunday, September 10, 2006 at 11:11:44 AM
lheilman@frontiernet.net
From Eric, Kari and Ingrid,
Josie, we hope you get better soon. You are in our thoughts and our prayers, as well as your mommy,daddy, brothers and sister so that they can keep up the great job they are doing.
Sent on Sunday, September 10, 2006 at 8:06:55 PM
e-james@msn.com
From Kathy,
Dear Jay and Deb,
I have met you through baseball as grandparent of Ben Nygaard. My heart goes out to you as you face the daily trials of Josie's condition and the needs of the rest of the family. If I can be a stand-in for grandparents at the house, please contact me. It is more than one family can sustain without the help of others. I can help with meals, transportation, or laundry. Until I hear from you, I will pray that God will be merciful and provide wisdom for those caring for Josie.
Sent on Tuesday, September 12, 2006 at 1:05:48 PM
kjosn@avvidtech.net
From Nona & Rob Bergh,
Our thoughts and prayers are with all the members of your family. Geoffrey had the IV immunoglobulins when he had chemo, it helped considerably. I hope Josie's results are the same. Please call to stay at your home with the kids day or night.
Sent on Tuesday, September 12, 2006 at 4:18:21 PM
nbergh@mn.rr.com
From Jon and Andie,
Our thoughts are with you guys. Hang in there Jay and Deb!
Call us if we can help in any way. Know that we and many others are there for you when needed.
The Newberry's
Sent on Tuesday, September 12, 2006 at 4:44:38 PM
jon.newberry@libertymutual.com
From Kris,
We're still wishing for comfort and relief for Josie and the whole family. I dream and hope for the day that you can look back and be done with all of this that Josie is going through. She will be a strong individual to be sure!
She's probably going to be the greatest MD specialist in the world!
As a parent, it is so hard to hear of her struggles and such a helpless feeling to stand by without answers.
We do stand by with hopes, dreams, wishes on stars and prayers for Josie's recovery.
Hoping to see Josie at a hockey rink/soccer field soon!!!
Sent on Wednesday, September 13, 2006 at 12:01:58 AM
kris@teamfriday.com
From Uncle Rob, Auntie Karen, Rebecca, Rachel & Robyn,
Sweet sweet Josie and family,
We are praying that they will soon find something that will help. We miss you all terribly and wish we could be there to help you in your time of need. We will continue to pray for you all. We love and miss you very much.
Sent on Wednesday, September 13, 2006 at 12:05:46 AM
From Katie Marshall,
still thinking of you all (as always...)
all my love to the Unstoppable Adams Family
-katie and lou
Sent on Wednesday, September 13, 2006 at 10:04:08 PM
katiemarshall7@msn.com
From Jill,
Hi sweet Josie!! I hope you come home really soon- the Richfield gang misses you. You have kept us moms and dads company- many evenings. It was nice to see you enjoy your new coloring book (Leslie is the greatest!) I hope each day is better than the one before!!
We are all thinking of you often- and your family too!
Jill S.
Sent on Thursday, September 14, 2006 at 2:08:14 AM
jill@gofurnitureMN.com
From The Nygaards - Jerry, Lisa, Emily, Sarah and Ben,
Josie,
Hey Josie, this is the Nygaard family. We want you to know how sorry we are that you have to be going through all this yucky stuff and to let you know that we are thinking of you often. You are an amazing little girl! We are praying for you and your family.
Love, the Nygaards
Sent on Thursday, September 14, 2006 at 7:33:06 AM
jerisany@mcleodusa.net
From Mike Nelson,
Josie,
My brother Mark told me about your family last night. We wanted to tell you that we think you are a special little girl and to let you know that you have friends in St. Louis, Missouri. We are thinking about you and praying for you. Stay brave!
Mike, Jenny, Margo, and Tatum Nelson
Sent on Thursday, September 14, 2006 at 7:51:12 AM
nelsonm@webstergroves.org
From The Madsens,
Adams - We can't stop thinking about all of you and we are praying. Keep on fighting Josie!! We are praying for all of the medical staff too. We live in a time when everything should just be able to be fixed so this is a lesson in patience for all of us and to remain strong that God will take care of everything. Love, The Madsens (Sarah's praying in Eau Claire too!)
Sent on Thursday, September 14, 2006 at 4:22:28 PM
From Lisa Heilman,
Hi there all. I'm checking the messages every day and praying for some good news. You are one tough cookie Josie!
Love, The Heilmans
Sent on Friday, September 15, 2006 at 9:24:07 AM
lheilman@frontiernet.net
From Kati and Mike,
Hi Josie and family,
Kati got to ride her bike with your sister Evie today. After a few miles Evie said that her strength was surprising her. Well, Josie, you can say the same thing about yourself! We want you on our team because you're so tough - and cute too!
See you soon,
Sent on Friday, September 15, 2006 at 9:09:50 PM
kcuw@usfamily.net
From Donna,
Deb and Jay,
Our hearts are heavy everytime we drive by your house, we are praying for all of you.
Sent on Friday, September 15, 2006 at 9:57:24 PM
donnaabramson@hotmail.com
From Barb Belchak,
Mona (my daughter-in-law) has been keeping me posted on Josie's on going battle of health issues. Josie has touched my heart and I am praying daily for Our Lord's healing power to touch her. Josie's Prayer - Jesus took my infirmities and bore my sicknesses. Therefore I refuse to allow sickness to dominate my body. The Life of God flows within me bringing healing to every fiber of my being. (Matt.8:17; John 6:63.)
Sent on Saturday, September 16, 2006 at 2:57:03 PM
bbbeulah@means.net
From Haley Newberry,
Hi, im so sorry....we are all here for you and Josie! Keep up with the updates....Happy (really cold) Fall!
Sent on Sunday, September 17, 2006 at 10:24:27 AM
tennisluvya@yahoo.com
From Thor Hsu,
Dear Josie,
I hope your sickness goes away soon and you feel better. That cat-thingy you have is really funny. The way they feed you is kind of cool.
I will say a prayer for you tonight when I go to bed.
Your friend,
Thor
Sent on Sunday, September 17, 2006 at 1:35:12 PM
thor.hsu@gmail.com
From Annika Hsu,
Dear Josie,
I hope you feel better soon and come for a visit.
I also had something like what you have (not really - says mom). It was good to see you and I hope you come home soon.
Love your friend,
Annika
Sent on Sunday, September 17, 2006 at 1:44:54 PM
annika.hsu@gmail.com
From Aggie Varady,
Jay & Deb,
I am devastated to hear that Josie continues to be so very sick. Mark & I discuss news of her progress multiple times daily. I cannot even begin to imagine the despair you must feel watching brave, sweet, innocent Josie suffering so much. There can be no greater test of your faith, not to mention endurance. We are in awe of ALL of you... the Adam's Family strength is an inspiration to everyone. I pray that you're assessment that she is on an upswing is correct, and that the Remicade works quickly & effectively tomorrow. God knows this child deserves a break. Hang in there and know that there are many, many people pulling for you.
P.S. I know that Mark, Bob, Andy & others are working on a plan to help you with some of your time constraints. PLEASE accept their offer without any hesitation. Everyone wem know desperately wants to help in some small way.
Sent on Sunday, September 17, 2006 at 4:32:23 PM
AIV1026@AOL.COM
From Matson family,
Josie, we hope you're smiling again soon. We would be happy to take Evie any time. I work in Edina and can help pick up the boys and transport to soccer. Just let us know what you need.
Marci, Steve, Evan and Emma Matson
Sent on Sunday, September 17, 2006 at 11:31:17 PM
marci@soncom.com
From Bob Marshall,
Dear Jay and Deb--
I am so sorry for all that you and your family, and obviously Josie, have been going through all these many months. I'm sure it has been absolutely heartbreaking for you and my heart goes out to each and every one of you. Good luck as you go forward. I am praying that Josie gets much better soon.
Love,
Bob
Sent on Wednesday, September 20, 2006 at 3:18:11 PM
robertm@rmlawoffices.com
From Amy Alvero,
I read your blog with tears in my eyes. I am amazed at the strength and resilience of Josie and the whole family. Our thoughts and prayers are with you all. Josie is a very determined fighter - keep getting better and better!
Sent on Thursday, September 21, 2006 at 7:55:51 AM
aalvero@mn.rr.com
From Amanda Strini,
Dearest Jay and Family,
I was searching the internet for some answers for something that's going on with my son and by chance happened upon Josie's sight. I read the entire website on the spot. From all of us here at McGuire AFB, NJ, you are in our thoughts and our prayers. We hope for some healing both physically and mentally for your entire family. If there's anything at all that we can do to help in any way, please let us know.
The Strini Family
Sent on Thursday, September 21, 2006 at 5:22:41 PM
strinibunch@yahoo.com
From Kris,
Thanks for the updates!
Wow. No kidding she's due for a break. Kind of puts things in perspective, doesn't it? I suppose you guys have all the perspective you need for a lifetime!
As soon as Josie can have some "dolphin and friends" crackers we'll bring her a basketfull...maybe a truck?
So, did the guy with the radioactive syringe look odd in any way? Seems like a strange way to administer something that the terrorists would like to get ahold of. YIKES.
I'm hoping you all catch a break here pretty soon.
Day or night, give us a call if you need help!
Sent on Friday, September 22, 2006 at 7:44:39 AM
kris@teamfriday.com
From Stellons,
The strength of your whole family amazes me. We offer much love, unconditional support and as many stickers as possible. You are always in our prayers.
Sent on Friday, September 22, 2006 at 5:20:57 PM
StellonE@aol.com
From The Hays Family Zach, Elliott, Wendy,
Dear Amazing Adams Family,
Thanks for sharing Josie's amazing journey with us. Know that you are in our hearts, thoughts and prayers.
Love,
Zach, Wendy and Elliott
Sent on Friday, September 22, 2006 at 11:12:51 PM
wshortha@vischool.org
From Gammie,
Hi Josie, It's Gammie here. I have something in the mail for you. I hope it will make you happy, so think of me when you look at it. I love you so much, and I can't wait until you can come and visit me at the beach again. Give hugs to Evie, Henry and Trip - and of course your mom and dad.
Sent on Saturday, September 23, 2006 at 9:58:04 AM
lee2beach@aol.com
From Joan Wobbleton ,
Reading the blogs and wondering how all of you are managing to cope. Especially Josie.
We think about her everyday and pray for something like a miracle to make the doctors know how and what to use to treat her and make it better.
Hugs and Prayers for all
Joan and Jim Wobbleton
Murrells Inlet,SC
Sent on Sunday, September 24, 2006 at 10:28:13 AM
jwobb@aol.com
From Mona,
Awesome! Glad to hear that you guys are home! Enjoy this little break and just be a family.
Sent on Sunday, September 24, 2006 at 5:52:11 PM
tabinabq@comcast.net
From Nona and Rob,
Jay and Deb, Thank you for your continual updates. No words can express my surprise and moan that happened as I read the latest news. Our Prayers and thoughts are with you and your family.
Sent on Monday, September 25, 2006 at 4:46:48 PM
nbergh@mn.rr.com
From ~Mona and the crew,
Sorry your home visit was so short. So grateful that Deb is maintaining a balanced emotional/mental state and was watching with an investigative eye. A true gift from God -Mom's Intuition! Hang in there!!!
Sent on Tuesday, September 26, 2006 at 10:23:47 AM
tabinabq@comcast.net
From Lori Swetala and Family,
Hello Josie and Family. just catching up on this hard last mohth's activities on the website. There is a fabric heart ornament Deb gave me (and others) once and I hung it by our coats. It's our prayer heart for Josie. Our prayers are with your family, and hopefully some home cooking too...
Sent on Tuesday, September 26, 2006 at 2:42:30 PM
lswetala@yahoo.com
From Kris,
Wow, unbelievable. Hoping for a longer homecoming next time! Thanks for the updates and keep hanging in there!
Sent on Tuesday, September 26, 2006 at 3:53:42 PM
kris@teamfriday.com
From LaMoure Family,
Josie-- its the LaMoure family we met in June with other JM kids - (We live in Bemidji) and want you to know that our thoughts and prayers are with you and we hope you get better so we can see you again.
Sent on Wednesday, September 27, 2006 at 8:52:08 AM
LaMoure@paulbunyan.net
From Jacqueline Krainz,
I just read your story and it breaks my heart -- JOSIE you are the strongest little girl I know-- GOD bless you -- hang in there -- I will be praying for you. I also have a son that has JDMS so I know the battle --you have amazing parents.
Stay strong and we are all looking forward to that cure for JDMS one day-- soon.
Jacqueline Krainz
Sent on Wednesday, September 27, 2006 at 9:08:00 AM
jckrainz@gmail.com
From Dan Anderson,
Jay, thanks for giving me the web address. I have shared this site with a few colleagues at CPC. On days when I cannot get to the hospital or when I do not see Josie, I can stay up to date. I am glad that, (at least as of noon yesterday) Josie was doing better. We will walk this journey with you and your family, praying that God's kindness will strengthen your family
Sent on Wednesday, September 27, 2006 at 9:24:06 AM
danderson@cpconline.org
From Dan Martin,
I found you through the JDM board. We are in the San Francisco area and have a daughter who is about to turn 6. She was diagnosed in mid 2004 and recently entered remission. We feel very lucky and it is beyond heart breaking to see your ordeal. It seems like you are getting the best care...if you ever end up in the San Francisco area and want to get the girls together drop us a line.
Sent on Wednesday, September 27, 2006 at 9:51:59 AM
jakesmyboy@gmail.com
From Doggie Prescott,
Hi JoJo,
I hope youe feeling better and can't wait to see you soon. I miss your pats on my head.
lick, lick
Prescott
B's dog
Sent on Wednesday, September 27, 2006 at 4:14:55 PM
r_anderson33@hotmail.com
From Lori & Emily,
Josie,
We read on the JDM board that you were having a hard time. After reading some of your blog we would say that is an understatement! We will add you to our prayer list for a quick recovery and an easier time with all that has happened to you!
Emily was diagnosed with JDM Sept 20, 2002 at the age of 7. Thankfully she is doing well now, and weaning off the methaltrexate! She had a tough time in the beginning too. Nine weeks after her port was inserted for treatment a hole mysterioiusly appeared and she had to have it replaced. Any side effect you could think of from the prednisone & methatrexate she got:( infections on her toes, sores under her eyes, hair loss, pneumonia secondary to a cold....the list goes on, we too wondered what was going on. There is a light at the end of the tunnel. We hope and pray that you see yours soon!!!
Stay strong and keep that wonderful smile on your face. We will be rooting for you!!!
God Bless!
Lori & Emily:)
Sent on Wednesday, September 27, 2006 at 4:20:45 PM
emmyrocks88@hotmail.com
From Sherri McGurran,
Josie and Family,
Our daughter, Maggie, was diagnosed with JM January 2004. Faith, family and friends have helped us through this difficult journey. From what I have read, you have an abundance of all. We are praying for you.
Sent on Wednesday, September 27, 2006 at 7:56:42 PM
smcgurran@hotmail.com
From Debbie T,
Hello, I just wanted to write you and send my love to Josie and your family. I will keep you all in my thoughts and prayers. I can't even imagine what you must be going through but I felt the need to reach out. I must commend you on your blog. The time you are spending documenting each and every day is inspiring to say the least. I hope and pray that things will improve for Josie. She is such a beautiful little girl. Please send her our love, I will check back in from time to time. I hope that one day there will be a cure, and wouldn't it be wonderful if in any way the blog you are keeping will help to find that cure. With Love and in Friendship; Debbie
Sent on Wednesday, September 27, 2006 at 11:35:08 PM
avarose04@msn.com
From Sharlene,
Our family prays for a speedy and problem free recovery for Josie.
Sent on Thursday, September 28, 2006 at 6:09:46 AM
ballardfamily@bigpond.com
From John and Denise Lueker,
I read the blog and our hearts go out to you. It made us think of the ordeals we went through and the anguish and know that you are not alone. It is tough now but it will get better. Wishing you and your family the best
Sent on Thursday, September 28, 2006 at 8:59:19 AM
JDAVLUKE@consolidated.net
From Jill Mickelson,
Be brave Josie. There are soooo many people praying for you and wishing you the best. My little girl, Gracie, also has the same disease that you have. She is brave just like you and is feeling good right now. You will feel better too!
Hugs,
Jill and Gracie
(Wisconsin)
Sent on Thursday, September 28, 2006 at 9:55:30 AM
jillmickelson@aim.com
From Naomi Larson,
Hi to Josie and your family,
I met you last summer at Jeremy Stalcar's exciting baseball game. (I am Kay's big sister.) As we were talking today she talked about you and she let me know about your 'blog'. She has told me about you, and that she loved to have you sit on her lap, and she loved camping with your family and friends. Well, I want you to know our family will be praying for you. We will be praying that Jesus will be right there with you, to help you heal and to give your mommy and daddy everything they need for each day! It was fun to hear about the big 'purple' visitors you had...maybe relatives to Barney!!
Sent on Thursday, September 28, 2006 at 10:01:52 AM
naomilarson@yahoo.com
From Franklin,
Josie, Today I started reading about your "adventure" and I want you to know that I think you are a strong little girl. I have had polymyositis for 22 years and I have had my ups and downs but your situation is so much more involved than mine. I used to be a first and second grade teacher and I know about children. I will pray for you and I know some day you will overcome all of this. God bless you.
Franklin
Sent on Thursday, September 28, 2006 at 11:55:45 AM
fhg687@msn.com
From Michelle Shewbridge,
Josie and Family - our thoughts and prayers are with you. Our little girl Rachel (6) was diagnosed with JDM in May '04. We truly believe a cure will be found one day. Until then, stay strong and fight!!
Love,
The Shewbridge Family
(Chris, Michelle, Taylor & Rachel - MD USA)
Sent on Thursday, September 28, 2006 at 12:28:20 PM
chrisshew@comcast.net
From Marie Gorham,
Hey Deb, I have been keeping track of you and Josie through the Richfield grapevine. We miss Josie at Fraser and are praying for her complete recovery!
Would a visit from Kathryn and I help?
Sent on Thursday, September 28, 2006 at 2:25:10 PM
mthereseg@aol.com
From Andy, Brigid and Katie Laske ,
Adams Family:
I wanted to let you know that the Laskes have been thinking alot about you all and Josie. I have been reading your blogs but we have struggled to know how we can help out.
If there is anything that we can do for your family please let us know. We would be happy to watch the kids or even take them to one of the gopher games coming up.
I'm glad to see things are looking a bit better. We admire your strength. You are in our thoughts,
Andy
Sent on Thursday, September 28, 2006 at 5:03:20 PM
andrew.laske@target.com
From Scott Olson,
Hello Josie,
My name is Scott Olson,
My wonderful friend JanSport Guenther form GearWest talks about you, and how your fighting the disease.
keep up the fight girl!
When you get well, I would love to have you visit my farm in Waconia and see all the animals, birds, inventions,
Then you can try out my latest invention SkyBike, and we can walk around the chicken coup and find fresh eggs
Thinking postive thoughts of you!
Your new fan,
Scotty Olson
Sent on Thursday, September 28, 2006 at 5:21:31 PM
scott@rowbike.com
From Joce,
Dear Josie and parents ,
Words cant express the overwhelming feeling that I have for you guys. I send prayers and hope for you . My DM has never been anything close to poor Josie's .
Only good thoughts for you .
Joce
Sent on Thursday, September 28, 2006 at 6:01:22 PM
efsjm@hotmail.com
From Darlene Lund,
That was a Berkey bump...he thinks He is a lap dog too, just like SB...what is with these dogs. Thanks for sharing him with us! Josie...get better so I can get those 3 or 4 little kisses I give you...I'm loveing you. (Grandma) Darlene
Sent on Thursday, September 28, 2006 at 6:55:14 PM
lundlink@mac.com
From Becca and Gary,
Josie,
We pray for you and your family everyday. Stay strong, I know that you can fight this latest twist.
Hugs,
Becca and Gary
Sent on Friday, September 29, 2006 at 9:12:23 AM
r_anderson33@hotmail.com
From Kay Stalcar,
Hi, Josie, Deb & Jay
I have been reading and keeping tabs on all that you have been going through. I can't believe what a long road this has been. Just wanted you all to know that I am thinking about you and praying for you all. We love you Josie and hope that you can come home again soon.
Love your pal, Kay (the go-gurt lady)
Sent on Friday, September 29, 2006 at 1:53:38 PM
kstalcar
From Christy Reynolds,
Hello Josie- My little girl Natalie is 3 and also has JDM. She was diagnosed around the same time you were, June 27,2005. I'am sorry to hear that your having such a hard time. Keep your chin up, things will soon get better. I asked Natalie if there was anything that she would like to say to you? Her reply was that she would like to make you a card to mail to you. That would make you feel better! Our thoughts and prayers are with you and your family- Christy and Natalie from Texas
Sent on Friday, September 29, 2006 at 2:33:18 PM
Richard.Reynolds13@verizon.net
From Jacquelyne DenUyl,
Hi Josie! You're one tough little girl, you just keep fighting. Our son has JDM, he's now 19 and strong enough to go to college. We're fundraising through Cure JM foundation for research to help all kids with JM. We are inspired by your courage. May you gain strength every day.
Jacquelyne DenUyl
Sent on Friday, September 29, 2006 at 8:40:39 PM
DenUyl@aol.com
From Scotty Van Eerden,
Hello, My name is Scotty Van Eerden and I am running the Chicago Marathon to help find a cure for JM. I am 14 years old and I absolutely pray that God will perform a miracle on your daughter. Even though you don't know me, I am praying for your daughter, your families, and all lives that have been affected by JM. Blessings to ya'!
Sent on Saturday, September 30, 2006 at 9:19:42 AM
runningtowin1116@yahoo.com
From Marilyn and Gordon,
Dear Chip and Family,
We met all of you at Ed's memorial service, and we've been "visiting" Josie's website fairly regularly. We are truly amazed by all of your strength and courage!! And Josie really deserves a medal of honor! Our thoughts are with you in this latest test of nerves and frustrations. Heads up once again. Better days are definitely coming!
Sent on Saturday, September 30, 2006 at 10:19:35 AM
Marilyn@wilmots.org
From Connie,
We hope that leak will heal without more surgery.
Sending loads of healing thoughts -
Connie and Madeleine
www.caringbridge.org/tx/madeleine
Sent on Saturday, September 30, 2006 at 3:02:26 PM
cgoldtx@aol.com
From Ed & Caroline Gaiser,
Dear Josie,
We are praying for you, your mom and dad & your brothers & sister. We are so happy you are feeling better. You are a very brave girl and are an inspiration to all of us.
We had a great visit with your Grandma Lee out here in California. Get well soon!
Love, "Aunt Caroline & Uncle Ed"
Sent on Saturday, September 30, 2006 at 3:51:40 PM
c_gaiser@hotmail.com
From Tom and Beth Goodchild,
From our family to yours. Josie, what a strong brave little girl you are! Keep up the good work mom and dad! Our thoughts are with you all
Sent on Saturday, September 30, 2006 at 9:29:51 PM
Tbgoody@msn.com
From MCAMBIAR,
Dear Adams's
IT HAS BEEN SOOOO LONG SINCE I HAVE TALKED TO YOU - BUT I HAVE HAD CONTACT WITH LEE AND TAMMY
I AM SO SAD ABOUT JOSIE
THERE IS NOTHING I CAN DO, BUT FEEL FOR YOU
LOVE MINDY
Sent on Sunday, October 01, 2006 at 9:53:30 PM
mcambiar2yahoo.com
From Leslie McKeown,
HI Josie-
When you're older you will read this and marvel at what your little body went through. I hope this time is someday just a faint memory. Isn't it special that so many people care about you and your family? We all just love you so much and want you to be well. There is a funny story that I want to tell you about your "Welcome Home" party after a trip to the hospital. A bunch of your family's friends came over to welcome you home and have some pizza. You were not able to eat anything by mouth and had a bag of TPN infusing-how fun is that? You sat at your kitchen table, surrounded by food, and held onto 2 little packs of M&M's that you were going to eat when your tummy was healed up. You said you were going to keep them in bed with you so no one would eat them. You didn't complain one bit. I kept watch wondering if temptation would get the best of you and you would sneak a taste. You just held onto that candy. You are so brave Josie and we adults who love you say it is just not fair that you have been handed this disease. But, we know that you are so very strong and determined. Hopefully someday soon you will eat those M&Ms!
I have you and your family in my prayers and I love you very much! Leslie McKeown
Sent on Sunday, October 01, 2006 at 11:13:37 PM
From Mari,
My son and I are researching your daughter's struggle. We are torn for words. My daughter, his sister, was diagnoised almost 2 years ago. Our story can not compare to your story, and I have brought the family together to view your blog and although we have suffered through tough times, I can no longer state that they were tough. Our lifes had changed and our family changed. Ariana could not walk, could not climb stairs, could not swallow normally, could not sit up, gained 30 pounds, and grew hair everywhere!
That being said, we have not gone through anything that your family is going through. We were lucky enough to have Loma Linda Childrens Hospital driving distance from us, and through their care and experimenting with my daughter, Quint's sister, she is now one of the best soccer players on my team. Just know that you can fight this disease! I can only advise you that it is all about finding the right doctors, and finding the correct medicine.
Quint is sitting next to me and said you need to give this family some help, what can we do to help? Check out cellcept. Not commonly used for dermatomyosits, it is used for transplant patients to help their body to not reject it's new organ. In our case it was used so that My daughter would not reject her own immune system.
I can go on and on for hours, I just want to let you know that I am so proud of you as parents, I have never seen such a severe case of this darn disease, and the fact that you take time in your lifes to share and educate is amazing! My husband is a documentary film producer, and though we could have filmed and shown our struggle, it was always to close to home- to emotional.
Thank you for sharing your story, and may God Bless you and your family.
I WILL NEVER FORGET YOUR DAUGHTER, AND I WILL NEVER STOP THINKING ABOUT HER.
Mari
Sent on Monday, October 02, 2006 at 9:45:01 PM
mariberkemeier@earthink.net
From The Arnold Family,
Hi Josie -
Jillian can't wait to see you when you get home, and hopefully that will be soon.
Your Mommy and Daddy are pretty incredible people, too!
Our thoughts are with you all -
Bob, Sarah, and Jillian Arnold
Sent on Wednesday, October 04, 2006 at 11:15:03 AM
rja@teemaster.com
From Carlson's,
Wow - Josie - what a month it has been for you! We hope you are home soon and that your tummy gets better in time for Halloween! It sounds like you deserve a truck full of candy!!
Our thoughts and prayers are with you Josie!
Sammy, Nisi, Emily and Jim Carlson
Sent on Wednesday, October 04, 2006 at 11:26:11 AM
emilyjimcarlson@msn.com
From Grandpa & Grandma Lund,
Josie...we can't believe it...we're gone for a few days and we thought you'd be home to greet us...we're so sorry you're not up to snuff...but we know you are made of good stuff and you'll soon leave all this behind. we love you. Tom and Darlene Lund
Sent on Wednesday, October 04, 2006 at 7:15:40 PM
lundlink@mac.com
From Andrew Ferrara,
Hi there Josie! Neither you nor your parents know me but you're such a strong-willed courageous little girl. Hang in there! We're rooting for you here in Rhode Island. You are such an inspiration to me and my loved ones. Let us know what you like/are interested in and we'll send you something ASAP. I have just recently returned from Iraq and I greatly admire your inner strength.
Drew
Sent on Wednesday, October 04, 2006 at 9:12:25 PM
drewferrara@gmail.com
From Sara Ollivia,
Josie's an angel...
all of you stay strong and my prayers are with everyone in this family.
Sent on Thursday, October 05, 2006 at 5:58:14 PM
Sara_o09@yahoo.com
From Tim and Mona Belchak,
It is awesome to see Josie up and painting!
Praying that things continue in this trend!
Sent on Friday, October 06, 2006 at 8:55:38 AM
tabinabq@comcast.net
From Aggie,
Please, please, PLEASE let this be the beginning of better days for little Josie. You are in my thoughts all the time. I pray for you every day...
Sent on Friday, October 06, 2006 at 10:48:08 AM
aiv1026@aol.com
From Kay ,
Josie,
Been thinking about you, I am so glad that you are feeling better. Hope you can come home soon.
Sent on Friday, October 06, 2006 at 2:45:14 PM
From Kay Stalcar,
Josie,
Been thinking about you, I am so glad that you are feeling better. Hope you can come home soon.
Sent on Friday, October 06, 2006 at 2:45:42 PM
kstalcar@cojlbc.org
From Joan and Jim Wobbleton,
We read the blogs and try and understand what all of this means for Josie. It's been so hard for all of you so I guess you must just go hour by hour or minute by minute. It's too hard to plan when dealing with this awful disease.
blessings and prayers for all.
May it all come to healthy ending with a healthy little girl.
Joan and Jim
Sent on Friday, October 06, 2006 at 7:57:59 PM
jwobb@aol.com
From Lynn Gabriel,
Dear Josie,
Hi there Josie. I have never met you, but your Mom takes great care of my dogs! As I know she is taking care of you. I have a little boy who is exactly the same age as you and he, Blake, and his sister Faith and I pray for you all the time to get better! Josie, I know you are going to be healed and feeling better soon. We are looking forward to meeting you!
God Bless You
Blake, Faith, Lynn Stan, Dakota Gabriel
Sent on Sunday, October 08, 2006 at 1:12:18 AM
lrshadle@earthlink.net
From ~Mona and the crew,
Praise God for your awesome day!!!!
Seeing Josie up and around filled my heart with joy!
Keep it up, Josie!
Sent on Wednesday, October 11, 2006 at 7:30:15 AM
tabinabq@comcast.net
From Stellons,
Stickers?! Josie is hunting for stickers?! We can solved that problem! We'll stop by the house this evening with a package. At least there is one problem we can readily cure!
We send much love to you all.
Sent on Wednesday, October 11, 2006 at 10:24:08 AM
StellonE@aol.com
From Aggie,
Dearest little Josie,
We're all hoping that today is just as great, if not better, than yesterday. My heart filled with joy to see you walking with a smile on your face. Fingers crossed that the worst is over.
P.S. Uncle Mark send lots of love from South Africa. He's so worried about you...
Sent on Wednesday, October 11, 2006 at 11:08:03 AM
aiv1026@aol.com
From Sue A. Awes,
Hi, my name is Sue Awes and I am the education coordinator at Fraser School. I was here when Josie was doing so well in Eda's room. I remember when she came she was so weak but then later she was pulling a wagon full of her friends. I know Josie will be doing this again just as soon as she feels better. You can tell she is ready to go from the picture where she is walking down the hall. Tell Josie we are thinking about her all the time at Fraser School and we know she will be back to play in the gym with her friends. I know this must be a difficult time for you and your family. Please let us know if we can help in any way. Our thoughts and prayers are with Josie and the family.
Sent on Wednesday, October 11, 2006 at 4:47:43 PM
suea@fraser.org
From Lynn Gabriel,
Dearest Josie,
Good for you! We are happy to see you gaining your strength! Every day, both at all meal times and bed time when we say grace and bed time prayers and leave an open oportunity for Blake and Faith to pray for whatever they want they both "individually"(at bed time they are not in the same room) they say "and Josie". Faith just began doing this as she is not 2 yet. We are pulling and praying for you! Stickers are the best aren't they? We like them too! do you stick them on your Mom and Dad? We do too. sometimes it makes them sparkly.
Love,
Blake, Faith, Lynn, Stan Gabriel (and Dakota!)
Sent on Wednesday, October 11, 2006 at 10:18:56 PM
lrshadle@earthlink.net
From Bill Hittler,
Josie: I hope that the "Comet's Nine Lives" book is a fun one to read with your mom and dad. We look forward to seeing you soon (at home)!
Sent on Thursday, October 12, 2006 at 11:50:39 AM
whittler@halleland.com
From Kay Stalcar,
Hi Josie,
I am so glad that you had such a good day on Tuesday! Nikki has been asking about you alot, she wants to come and visit you, she has been praying for you. Keep fighting and getting better.
Sent on Thursday, October 12, 2006 at 12:38:30 PM
kstalcar@cojlbc.org
From Darlene Lund,
Hi Josie, just checking in to see how our mouse is...and you look beautiful standing up there. I love you. dj
Sent on Thursday, October 12, 2006 at 7:02:59 PM
lundlink@mac.com
From Jill, Kris, Trig and Annika,
Josie your looking like your almost ready to strap on a pair of hockey skates! Maybe you and your mom can lace them up together this winter - won't be long now with the snow flying. If we have to we could probably put some double runners on that IV stand. I haven't seen your mother skate yet but if she needs double runners we could probably rig that up too! Glad to see you smiling and happy. I'll have Kris send over some dolphin crackers when your up to it. Take care.
Jill, Kris, Trig and Annika
Sent on Friday, October 13, 2006 at 12:16:35 PM
jill@teamfriday.com
From Kris Duryea,
PHEW!!! Two positive posts in a row?!?!
GO JOSIE GO! The photo of the kids is awesome! It's good to see Josie up and smiling!
Can't seem to stop using the exclamation point!!!
Glad to hear Josie is feeling better.
Sent on Saturday, October 14, 2006 at 12:30:42 AM
kris@teamfriday.com
From Maria&Gary Marshall,
Dear Adams Family
We are sending all of you our love.
Wish we lived closer as we would offer more in the way of help with meals and schedules. What an inspiration Josie is to us all. We pray for healing and comfort for you darling. We carry you in our hearts daily and we carry the rest of you too! We deeply,deeply care from afar, feel our love. Maria and Gary Marshall
lease enter a message
Sent on Saturday, October 14, 2006 at 7:58:19 AM
From Dan Anderson,
Dear Jay and Debbie ~ and Precious Josie,
I did not get back to UM this week after Monday. I see this has been another challenging week. I share with you some of the anxiousness and frustrations you must at time be feeling. God says to us, "When you pass through the waters, I will be with you. When you go through the raging river, it will not sweep over you." I pray that God's presence and love will keep you from going under and will carry you to the safety of solid ground. I hope to see you on Monday
Sent on Saturday, October 14, 2006 at 10:24:02 AM
danderson@cpconline.org
From Janis,
Well, Josie, I just got caught up on your crumby sickness. You sure are a brave little girl. Wish I could send down a fairy godmother to make all your troubles go away. I liked looking at all your pictures and seeing your baby doll and stuffed animals. I bet you have a lot of them by now. And, it was very cool to see those Viking players visit you. That must have been very special. I think you are becoming very famous because of how good a patient you are. I don't think I could be as brave. I know they will soon find a good way to treat your illness so you will feel better. I have you in my prayers every day. Say hello to your family from me. They are super special people too. Bye for now. Love you. Janis (I used to work at Southdale Pet Hospital with your Mom) She is the best Veterinarian we ever had!
Sent on Saturday, October 14, 2006 at 3:38:04 PM
marti009@umn.edu
From Joce,
Hi guys , I just want to say how I find that your family is all very special . God's given you incredible fortitude . I find that I cannot check everyday because it upsets me to see all that you are going through. I pray for that little angel of yours .
God bless
Joce
Sent on Saturday, October 14, 2006 at 10:01:15 PM
efsjm@hotmail.com
From Leigh Anne,
Hello Josie!
My daughter's name is Caitlin and she is three! She has JDMS like you. You two would make great friends. You have some things in common. I see you like to color, Caitlin loves to color. Hang in there Angel, we are all praying for you and your family. You are beautiful, strong, amazing and sweet. We here in Maine will be keeping a close eye on you and your recovery!
Thank you for sharing Josie's life with all of us. It's a huge help in so many way's to a family going through the some of the same things that you are. Please know that we are praying for all of you.
Caitlin was diagnosed in January 2006. Although we have not had even half the trials that you have we do know your struggles and heart aches. Please email me if you would like to chat sometime.
Leigh Anne, Caitlin and Justin
Sent on Sunday, October 15, 2006 at 3:20:14 PM
supajut@verizon.net
From Janet Ceaglske-Muhich,
Hi Josie & Family;
You have a friend that wanted me to read your Blog. Lynn Shadle Gabriel...she met me at a R.O.C.K.(raising our celiac kids)meeting in Plymouth, MN. My daughter was diagnosed with Dermatomyositis on November 13, 2000. Her Birthday is December 5. I noticed Josies is December 2. She was almost 4 years old when we found out. Reading your blog has brought back many memories... We also have Dr. Vehe, he is a great doctor!! It is 2006 and Michelle has been medicine free since January of 2004. It took four years for us to get through the JDMS. The only Blog we had was "Julia's" and I'm thankful at the time that we had that one. I noticed there are more Blogs now so you seem to have a greater support group than we did. Michelle had always had tummy issues (constipation mostly and a protruding belly)when we had her JDMS and we assumed that they were because of the medications she was on (prednislone, Methotrexate, plaquenil).... but this past year she was having constipation and diareha every day and missing school(the school said it was anxiety)(and we were medicine free).... after many months, the doctors put it together and gave her a celiac panel (blood test)which tested high and then she had an endoscopy done which proved the celiac disease was correct. She was diagnosed with this in Mid-june of 2006. It is October now and we have gone from stomach aches, constipation & diahrea daily to having it maybe once a month. I realize you're under a lot of stress now, but if they are doing and endoscopy at some point (I know from reading your information that they want to, but can't at this point), you may want them to check for celiac also, it would have saved us many more months of testing and years tummy issues (celiac is another autoimmune disease)!!! The greatest thing about this celiac disease is what my daughter had to say to me when we found out....."Mom, all I have to do is eat different, I don't have to take any shots or medicine". Having already gone throught JDMS made this disease a breeze! If you need anyone else to talk to, just e-mail!! (If you don't want to deal with the celiac issue now, I totaly understand, I know I wouldn't have wanted to the first two years of Michelle's JDMS, but keep it in the back of your mind for when she starts to get better!!) My thoughts are with you!!
Sent on Sunday, October 15, 2006 at 4:09:33 PM
hmuhich@msn.com
From Shelly, Mark, Max and Sam Nelson,
Hi Jo,
Your Dad has put some super cute photos of you up on your blog. The pink PJ pictures of you walking around the hospital and smiling with your brothers and sister are great. I especially love the pink hand up above your head! Hope to see some more pictures like those soon, kiddo!
Love you tons,
Shelly, Mark, Max, Sam and Lucky too.
Sent on Sunday, October 15, 2006 at 8:04:18 PM
shellymarknelson@yahoo.com
From Karalyn, Tallie, Ryan & Bailey,
Dear Josie and family,
Our hearts and prayers go out to you!! My little Tallie (6) has Dermatomyositis as well. Hang in there, Josie; you are one tough little cookie.
HUGE hugs from Tallie, her mom, and her little brother and sister, too.
http://tallie.blog-city.com
Sent on Sunday, October 15, 2006 at 8:10:30 PM
karalynh@gmail.com
From Tracy Caraker,
Dear Josie,
I hope you get better very very fast! I look forward to more web updates! Keep tough and smile and laugh as much as you can. Laughter is the best medicine!
Sent on Sunday, October 15, 2006 at 8:17:26 PM
tcaraker@tampabay.rr.com
From Deanna,
This morning my daughter sent me this link so that I could learn about Josie's battle and say prayers for her. My granddaughter also has this terrible disease. My prayers are with you all. I hope they find out the problem and can fix it. God Bless you.
Sent on Monday, October 16, 2006 at 6:36:41 AM
dlkearns@firstam.com
From Kathleen McJunkin,
I have been trying to keep up with Josie through my occassional calls to SPH. No one ever mentioned surgeries, and now yet another one. My prayers have been with her, but there will be extras tomorrow. I wish you all the best.
Kathleen
Sent on Tuesday, October 17, 2006 at 10:43:38 AM
mcju0002@tc.umn.edu
From The Dorans,
Hi Josie,
We sure miss you!! You look like you are doing pretty well, and have been hard at work coloring lots of pictures. After you are feeling a little better, I will bring you some new nail polish down to the hospital, and we will paint your toenails again, like we did when we were camping this summer. Do you think your dad will let me paint his nails again too? Probably not, huh!! We love you and pray for you everyday.
We will come and see you soon,
Paul Shelly, Joe and Sarah Doran
Sent on Tuesday, October 17, 2006 at 12:40:06 PM
doran-home@mn.rr.com
From Steve, Katy and Sam LeBarron,
Dear Josie, Deb, Jay, Trip, Henry and Evie,
We'll be with you all in spirit tomorrow as Josie jumps over the next hurdle! What a beauty!
Sent on Tuesday, October 17, 2006 at 7:32:02 PM
From Erika,
Love you, love you, love you Adams'! We're constantly thinking about you all and hoping and praying for miracles. We'll keep Josie and the whole medical team in our thoughts tomorrow afternoon. And of course you two amazing parents. Your littlest girl (and your three other cuties) are so very lucky to have you!
Please tell Josie that she looks beautiful in her picture on the 16th and very elephanty in her picture today. What's with the purple donut on the trunk? Part of a cool, new game? Can other people play, too?
Hang in there. People everywhere are sending their love and prayers your way. We look forward to hearing positive news soon. XOXOXOE,M,T&A
Sent on Tuesday, October 17, 2006 at 11:13:01 PM
erika_hsu@yahoo.com
From Kris, Jill, Trigve and Annika,
I am at a loss for words. Josie you have been through more than anyone I know. Your smile in that photograph is beautiful.
There will be countless friends wishing, praying and hoping for the best outcome possible on this day of surgery. Josie, at age three you have brought a community of people together to cheer you on - and an outpouring of love like I have never seen before. We continue to hold you and your amazing family in our hearts and prayers.
Sent on Wednesday, October 18, 2006 at 12:52:23 AM
kris@teamfriday.com
From Wendy Short-Hays,
Good Luck today! We are hopeful that you receive some good news. Keep swingin' for the fences!!!!
Love,
Zach, Wendy and Elliott Hays
Sent on Wednesday, October 18, 2006 at 6:47:24 AM
wshortha@vischool.org
From Lily (Josie's toddler teacher from Fraser),
Hi Deb, Jay and Josie,
Just wanted to let you know you will all be in my thoughts and prayers today. I was hoping to see Josie back at school this fall, but since she's been so sick, I have been following the updates on her web site. She has been through so much - I hope what they are planning works so she can get well and go back to the business of being a kid!! I also hope to see her back at school again!! Miss you Josie!
Sent on Wednesday, October 18, 2006 at 7:47:26 AM
roseflowerbear@comcast.net
From joan and jim Wobbleton,
Thinking of all of you and praying for a successful surgery and finding what is bleeding. Praying for strength for all of you each and everyday that goes by.
The blogs are wonderful information and there is humor in the educational information that either jay or deb have interjected.
God Bless
Joan Wobbbleton
Sent on Wednesday, October 18, 2006 at 8:17:00 AM
jwobb@aol.com
From Amy & Alex Alvero,
Josie, we will have you, your surgeons and your family in our thoughts and prayers today. We wish only good news from the surgery. It has been great to see you looking so much happier in the pictures the past few days!
Sent on Wednesday, October 18, 2006 at 8:59:03 AM
aalvero@mn.rr.com
From Mary Waters-Cryer,
Josie's Fraser School family is so appreciative of this site to keep us updated on her condition. We are keeping all of you in our thoughts and prayers continually. Josie is a strong little girl and seems to be quite a trooper through all of this. We are praying that her strength brings her successfully through surgery today.
If there is anything that we can do to help, please don't hesitate to call.
Sincerely,
Mary Waters-Cryer, Director, on behalf of Fraser School
Sent on Wednesday, October 18, 2006 at 10:40:54 AM
maryw@fraser.org
From Mary Krafft,
Dear Deb,
Thank you for the message this morning about Josie's surgery today. Please know that there are many people at Fraser thinking of Josie, you, your family and the surgical team. It is our hope that the surgery will have a successful outcome.
Your friends at Fraser
Sent on Wednesday, October 18, 2006 at 11:28:31 AM
maryk@fraser.org
From Jocelyn,
Josie- Your mom just told me you had a blog today, so I decided to check it out! I loved looking at all of your pictures. I liked the picture of you, Sheila, and Meghan with the elephant nose! It looks like you were having a lot of fun~ I hope you start feeling better! Say hi to Evie and your brothers for me.
I miss you,
Jocelyn
Sent on Wednesday, October 18, 2006 at 12:18:33 PM
jlian1@fairview.org
From Jim & Carol Larson,
Just wanted to let you all know that you are in our hearts and on our prayer list every day. I am also having our church pray for lttle Josie and your family. You are one brave and touching family. We are Shelly Dorans parents and I have met you and two of your children. Thank you for keeping everyone posted as to Josie's condition. Most of us cannot even imagine what you have all been through. You have definalty taught all of us a big lesson on how to be so grateful for our health and that of our family. Your courage is there for all of us to look at, and we wonder how we might handle such a situation. God gives strenght when needed and you have all certainly shone us that. God be with you all and know that many are praying for you all. With Love, Jim & Carol Larson
Sent on Wednesday, October 18, 2006 at 12:59:56 PM
larsunhome@aol.com
From Aggie Varady,
There are hundreds, maybe thousands, of people saying extra prayers for you today Josie. We're all hoping that your surgery goes well & sometime soon you'll be going home with your family. There is no one braver than you, Angel. You are in our thoughts constantly. We'll be checking the blog later for some good news hopefully...
Sent on Wednesday, October 18, 2006 at 1:23:40 PM
aiv1026@aol.com
From Jean Moore,
Hi there,
I am a MOPS mentor who just got a request to prayer for you all. I just prayed and will keep you in my prayers tomorrow. I can't imagine what you are going thru but I pray for God to heal Josie both after surgery and then to continue on to heal the disease. Love you!
Jean Moore
Sent on Wednesday, October 18, 2006 at 2:12:31 PM
jmmcmoore@earthlink.net
From Jean Moore,
Hi there,
I am a MOPS mentor who just got a request to prayer for you all. I just prayed and will keep you in my prayers tomorrow. I can't imagine what you are going thru but I pray for God to heal Josie both after surgery and then to continue on to heal the disease. Love you!
Jean Moore
Sent on Wednesday, October 18, 2006 at 2:13:34 PM
jmmcmoore@earthlink.net
From Sue A. Awes,
Hi, this is Sue from Fraser School. I looked at my watch all through my meeting wondering how Josie is doing. I can't imagine what you are going through right now but I know she will be fine. Josie is a stong little girl that wants to play,do play dough, and have fun. Josie has alot more to do and she wants to get better and do it. My thoughts and prayers are with all of you. Tell Josie we are pulling for her to get better and come back and play.
Sent on Wednesday, October 18, 2006 at 2:48:13 PM
suea@fraser.org
From Lynn Gabriel,
dear Josie,
we have spent the whole day praying for you and tending to our watches to be aware of and continue praying for your surgery. You are such a beautiful courageous girl. WE hope that very sparkly outfit will bring a smile to your face!Jesus loves you, this we know, for the Bible tells me so.. He is watching over you. we look forward to making fun foam shapes with you!
All our love and prayers!
Lynn, stan, Blake and Faith Gabriel
Sent on Wednesday, October 18, 2006 at 7:46:41 PM
lrshadle@earthlink.net
From Lynn Gabriel,
wow. I just read the post, i have been staying up checking periodically in order to adjust my prayers accordingly. Miraculous healing it has been and miraculous healing it will remain. I Ipray the Lord hold all of you tonight and give you rest and healing as well.
God Bless you and Keep you
Lynn
Sent on Thursday, October 19, 2006 at 12:29:26 AM
lrshadle@earthlink.net
From Ed & Caroline Gaiser,
Dear Chip & Deb,
Ed & I continue to send good thoughts your way tonight, and that Josie will come through this and be better than ever. Our love and prayers to you, Trip, Henry, Evelyn, & especially Josie.
With Love,
Ed & Caroline
Sent on Thursday, October 19, 2006 at 2:46:57 AM
c_gaiser@hotmail.com
From Leigh Anne,
Wow, our first prayer has been answered. She made it through like a champ. We are continuing to pray here in Maine for her and a "miricle" cure. She is in many prayer chains in different churches here as well. Me, my husband and our baby girl Caitlin are thinking of you and your family a lot right now. Josie and your family are in quite a few conversations with others. JDMS is so rare anywhere but especially here that I try and teach the public about our specail girls as often as I can. People don't understand the disease none the less realize how serious this nasty disease is.
Please give Josie a big hug and hello from Caitlin in Maine. She hopes that her boo boo's feel better soon. (exact words from a three year old)Also one from us. God Bless and we will keep on tracking your special girl.
Sent on Thursday, October 19, 2006 at 6:04:07 AM
supajut@msn.com
From Brad, Cheryl, Missy, Jack & Chance,
Josie Girl, Evie, Henry, Trip, Deb and Jay,
Our thoughts and prayers go out to you. You guys have really been troopers. We will continue to pray for healing and strength.
Sent on Thursday, October 19, 2006 at 6:38:44 AM
From Paula Vicker,
Adams family -
Know that you are in our thoughts and prayers daily. Glad to hear everything went well.
Keep strong...
Sent on Thursday, October 19, 2006 at 6:53:27 AM
pvicker@mn.rr.com
From Nona,
Josie is in my heart and prayers.
Sent on Thursday, October 19, 2006 at 7:53:42 AM
nbergh@mn.rr.com
From Jean Stumpf, from PHS,
All the staff at PHS is sending their love and prayers your way -- we've been watching the blog and following Josie's story closely, and are so appreciative of the updates. I'm relieved the surgery is over, and will hold little Josie in my prayers for a full-on recovery.
Sent on Thursday, October 19, 2006 at 8:12:20 AM
jstumpf@pediatrichomeservice.com
From LaMoure Family,
Prayers from Bemidji
Sent on Thursday, October 19, 2006 at 9:35:12 AM
lamoure@paulbunyan.net
From Dawn Wise,
I got to know Josie through this website. Katy LeBarron told me about her and I offered to say prayers and send postitive energy to her and her family and friends. You are all very brave and courageous. I am also going to inform my friends and family of Josie so they can send prayers and good thoughts. Take care, all of you. :-)
Sent on Thursday, October 19, 2006 at 12:42:05 PM
wised@mn.rr.com
From Jim & Diane Deutsch,
Josie,
Hope all goes well in healing after the surgury. We just had our 4 year old granddaughter Natalie from Vermont visiting. Get back to being a fun 4 year old.
Sent on Thursday, October 19, 2006 at 12:43:44 PM
pgajim@pga.com
From Kathleen McJunkin,
You certainly have got my prayers. Dr. Christopher Boys is one of our clients here. All the best to everyone!!!! Kathleen
Sent on Thursday, October 19, 2006 at 12:56:50 PM
From ~Mona,
Deb and Jay,
Thanks for the pictures. The two of you look great! And little Josie looks pretty good too considering all she has been through. Your smiles are so precious! You've been in our prayers all week and will continue to be in the coming days...prayers for a quick recovery and for strength for your family. God bless you all!
Sent on Thursday, October 19, 2006 at 2:07:57 PM
tabinabq@comcast.net
From jacqueline Krainz,
I have to tell you that I think of Josie alot and pray that she will get better very Soon! Josie is one strong little girl -- I know that she will win this battle. She has the strength to make a full recovery. This weekend we will go for the Chicago Marathon like many other parents and families of children with JM. We are all there to raise money and awareness so that our children like Josie can one day have a cure.I can't wait for that day. Love, Jacqueline Krainz
Sent on Thursday, October 19, 2006 at 3:21:25 PM
jckrainz@gmail.com
From Kris, Jill, Trigve and Annika,
It is comforting to see that hint of a smile on Josie's face - even after surgery!!!
What a wonderful gift.
Keep healing Josie! We are behind you all the way!!!
I work with a cheese specialist whos wife is a PICU nurse at the U--do you know LeeAnn? Her husband (joe) works at Kowalski's! We are grateful for all the dedicated and skilled medical personnel, too!!!
Sent on Thursday, October 19, 2006 at 4:12:49 PM
kris@teamfriday.com
From tricia wendorf,
Just read Josie's story on the weblog for the 1st time - tears in my eyes - what a brave little girl. We'll stay strong for you, Josie and we want you to feel better soon!
The Wendorf Family
Steve, Tricia, Kyle, Gavin and Meghan
Sent on Thursday, October 19, 2006 at 4:53:04 PM
tleewendorf@yahoo.com
From Sue A. Awes,
I am glad to hear that she is through surgery. I know from here on you will hear good news. Thank you for the updates. Those thoughts and prayers are still coming to make Josie better.
Sent on Thursday, October 19, 2006 at 6:23:21 PM
suea@fraser.org
From Dan Anderson,
Oh my! I assume the two pictures posted today were not taken today. Picture one (with the three of you( was taken pre op and picture two (Debbie and Josie) post op? Am I correct? You need not reply, I will stop by on Friday and get my answer in person. . . and, I will pray for clear fluids ~ and as you asked, for a miracle for Josie. My love and prayers are with you all!
Sent on Thursday, October 19, 2006 at 6:23:44 PM
danderson@cpconline.org.
From Erika,
Ode to Josie
We know a small girl named Josie;
Whose cheeks are so sweet and rosy;
She is brave, strong and true,
Even silly, who knew?
And she is just as pretty as a posy.
That Josie she's one of a kind;
A better patient you never will find;
She practices her letter(s);
Waiting for her tummy to get better;
This kid deserves a break - we need not remind.
Dear Josie we all love you so;
You're the very best and we want you to know;
As you rest and get well;
Think of M&Ms - their good smell;
And we'll pray to see you with a healthy glow!
Sending happy thoughts your way ... xoxoxoE,M,T&A:)
Sent on Thursday, October 19, 2006 at 9:22:56 PM
erika_hsu@yahoo.com
From RIley McKeown,
Hi guys. Just got back from Mark and Shelly's. We talked about Josie alot. I logged on to see what is new today, but I guess I'm a little early. Leslie, Ben and Sam are in Florida, so I'm bachin' it this week. Tell Josie I'll have my pink toenails until she comes home!!!
Thinking about you guys alot,
Riley
Sent on Thursday, October 19, 2006 at 11:46:10 PM
RMcKeown1@mn.rr.com
From Maria and Gary Marshall,
Dear loved ones
You have the strength of the Ironman and Ironwoman.
Thank you for updating for all of us who love you all
Josie we carry you every minute of the day in pray and loving thoughts.
Love,Maria and Gary Marshall
Sent on Friday, October 20, 2006 at 6:41:31 AM
gmarshal@tds.net
From Jan g,
Deb, Jay Took a look to see what is happening. Hearing words is not like seeing pictures. Wow. What a plucky little sick girl and what strength you both have. There is no one who has kids and doesn't feel a little of the pain and hardships you both are faced with....it's really difficult to know what to do, and I don't know how words can help. Don't be too hard on yourselves...we all are trying to send support and strength and hope. jan
Sent on Friday, October 20, 2006 at 9:55:32 PM
From Aggie & Alexa,
Hoping tomorrow is as good as today, if not better! Everyone is frantically praying that this latest procedure will hold up & Josie will be going home sooner than the doctors expect... we all know that Josie keeps beating everything that is thrown at her. She is truly a miracle. And the strength of the entire Adams' Family is such an inspiration to the rest of us mortals. Along with everything else, witnessing your hardship puts all of our menial complaints into perspective. Sending Josie all the love & healing energy in our hearts as often as we can
Sent on Friday, October 20, 2006 at 10:32:14 PM
aiv1026@aol.com
From The Nesseths,
Anna prayed for Josie tonight.
She said, "Pray for Josie. Make her tummy feel better. God fix her."
We're praying for that too.
All our love,
Vernie, Greg, Anna and Erika
Sent on Friday, October 20, 2006 at 10:41:47 PM
kristin_nesseth@hotmail.com
From Marilou Pederson,
Thinking of you all and praying for the very best results from this surgery. You are an amazing family.
Sent on Friday, October 20, 2006 at 11:07:48 PM
mariloupederson@hotmail.com
From Joan Jim wobbleton,
We look every day for an update on Josie. So glad to have just read the post op report. You do a fine job of recording the information. We do hope and pray that all goes well for Josie. Even though the NG tube is inserted under anesthesia I know that having that thing is a nusiance for her. But I expect she is a trooper and puts up with what ever she has to do to improve. I can't imagine how you and Deb are dealing with your life. Home,kids,job,hospital,meals,etc. I wish we could be there to help. I think having Larry and Suzanne around must be a comfort.
God bless and keep the blogs coming. That is the only way we know what and how Josie is doing. We all worry.
Joan and Jim Wobbleton
Sent on Saturday, October 21, 2006 at 7:51:12 AM
jwobb@aol.com
From Grandma and Grandpa Lund,
Hello, Our Little Family....we keep checking in...we are so grateful for the wisdom that your Doctor's have been blessed with...we continue to pray for their gifts. We love you, Jay, Deb, Trip, Henry, Evelyn, and Josie. Tom and Darlene
Sent on Saturday, October 21, 2006 at 9:07:52 AM
lundlink@mac.com
From Barb Blahoski,
Dear Dr. Deb and Family,
Wow, you guys have been through a LOT! Reading about your ups and downs is heartwrenching.. I'm amazed at your stamina through it all. I guess I shouldn't be surprised, you are always so darn positive! Keep up those good thoughts.. and know that many, many people are praying for you.
Barb and Lily
Sent on Saturday, October 21, 2006 at 1:48:44 PM
bblahoski@yahoo.com
From RIley McKeown,
Hi guys, just got on Josie's blog with Ben,Sam,Max,Sam,Drew and Brady as we are having a big sleep-over tonight. We saw the pictures and Sam said "we are all going to say a big prayer for Josie tonight." She looks great and I hope you are all doing OK as well. Let me know if we can help with the kids or whatever.
Take care,
Riley
Sent on Saturday, October 21, 2006 at 11:09:23 PM
RMcKeown1@mn.rr.com
From Joan &Jim Wobbleton,
Good news from your end of the picture. Josie and mom look like both are feeling improved. Now lets just pray that it continues to go the way it should. Her skin looks good so lets just hope.
Thanks for the update. We look many times a day to see how she is doing.
Will continue to keep you all in our prayers and thoughts.
Josie you go girl!!!!
Joan and Jim Wobbleton,
Murrells Inlet,SC
Sent on Sunday, October 22, 2006 at 7:52:28 AM
jwobb@aol.com
From Erika,
Sweet Josie ... YOU GO GIRL!!!
xoxoxoxoxoxoxoxoxoxoxoxoE,M,T&Axoxoxoxoxoxoxoxoxoxoxoxoxoxo
Sent on Sunday, October 22, 2006 at 9:48:03 AM
erika_hsu@yahoo.com
From Lynn Gabriel,
dear, dear Josie!
Miraculous healing! You truly are receiving a miracle! God bless you Josie, you are a very special girl! we are soooo glad to see you healing and looking so vibrant and beautiful! Blake and Faith are glad you like your bracelets! They had so much fun making them for you. You are just an angel and we are looking forward to seeing you as you are getting better. we keep praying protection over you. We are sending smiles and hugs to you!!!
Lots of Love!
Lynn -Blake Faith and Stan
Sent on Sunday, October 22, 2006 at 9:57:26 AM
lrshadle@earthlink.net
From Leigh Anne,
Go Josie, Go! How cool is that post. Makes me cry...wonderful tears. More prayers coming from Maine...hang in there family. Josie is so lucky to have you all.
Leigh Anne, Justin and Caitlin
Sent on Sunday, October 22, 2006 at 3:42:36 PM
supajut@msn.com
From Olivia Diaz,
Hang in there Josie! We both have the same thing, but I don't have it that rough. You are a really brave girl,and have been a really good romodel for everyone. It will all get better soon.
Olivia Diaz
Sent on Sunday, October 22, 2006 at 5:12:27 PM
diazoe96@hotmail.com
From Jon,
Josie, Deb and Jay,
You have no idea how many people are waiting each of your updates and hoping for even a little positive news for you all. We're so glad to hear this week went well. Let's shoot for many more weeks with improvement.
Love, Jon, Andie, Tyler and Boomer
Sent on Sunday, October 22, 2006 at 7:12:41 PM
jnewberry1@mn.rr.com
From Lisa Heilman,
Dear Josie,
We just got home from Disney tonight. We've been thinking about you the whole time we've been gone. I'm glad that we are hearing good news about your surgery and that you are feeling well.
We brought you home a little something from Disney! Hopefully you can get your self there some time soon! I know that Mickey is waiting to see you!!!
Love you guys!! I'll call this week.
Lisa Rich Lucas and Isaac!
Sent on Sunday, October 22, 2006 at 9:50:38 PM
lheilman@frontiernet.net
From EPH,
Surely in life's dictionary, Josie's picture appears by the words tenacious, brave and strong. And by the word love ... yours and Deb's. You two (plus the amazing Trip, Henry and Evie) are everything this little girl needs. Take care of each other. We are all with you in spirit.
E.
Sent on Sunday, October 22, 2006 at 11:20:30 PM
erika_hsu@yahoo.com
From Vickie Hanson,
Keep your faith and you are a very brave young girl.
Sent on Monday, October 23, 2006 at 7:09:52 AM
pinball@tampabay.com
From Deanna Kearns,
Dear Josie,
You are such a brave little girl. Keep fighting and put this behind you so you can just be a little girl again. Our prayers and thoughts are with you. Stay strong family, we are all trying to help in our own little way. Bless you all.
Deanna Kearns
Sent on Monday, October 23, 2006 at 9:09:02 AM
d.l.kearns@att.net
From Darlene and Tom,
Josie...we love having your Grandma and Grandpa here...they are troopers...just like you...be strong. We love you Grandma and Grandpa Lund.
Sent on Monday, October 23, 2006 at 10:17:53 AM
dlund@lssmn.com
From Jill & Gracie,
We are all praying for Josie to show some improvements. Many of the JM families are keeping close track of how she is doing. Since I live in WI I feel like we are close neighbors.
You are doing such an amazing job being informed on her treatment, surgeries, etc.. Know that you are doing all you can from your end of things.
Working for a cure!!!
Sent on Monday, October 23, 2006 at 11:16:48 AM
jillmickelson@netscape.net
From Franklin,
Josie, We just want to let you know we are thinking of you and praying for you. You are a very strong little girl.
Love from your friend,
Franklin-PM
Sent on Monday, October 23, 2006 at 3:07:30 PM
fhg687@msn.com
From Katie Marshall,
thanks for keeping this blog updated, I'm sure I'm not the only one checking it like it's my job... just wanted to say hi and I'm thinking of you all, have asked friends, coworkers, and strangers on the steet (ok, all but!) to pray for Josie. All my good vibes are with you guys, I know she'll pull through this! If she's feeling up to it, I'd love to come by the hospital and maybe bring my guitar to lighten things up a bit with some tunes!
take care, stay strong~
xoxo
Sent on Monday, October 23, 2006 at 9:44:15 PM
katiemarshall7@msn.com
From bill and donna,
The power of prayer is amazing. Josie's story and brave smile say much about her stamina and spirit. Can't wait to deliver the Notre Dame football shirt, directly from the stadium, to her!
Sent on Monday, October 23, 2006 at 10:31:39 PM
From Grandma Lund,
Hey Josie...want to use my skin to repair that old hole...I'm very tough and I have lots of extra skin just waiting to be put to better use...let me know and I'll give you all you need. Love you, Grandma Darlene
Sent on Tuesday, October 24, 2006 at 8:44:36 AM
dlund@lssmn.org
From Stellons,
Our prayers are always with you and we are using all our leprechan wishes for you, too. (Leprechans are big at the Stellon house, too.) Can't wait to see you at a hockey game soon!
Sent on Tuesday, October 24, 2006 at 10:17:27 AM
StellonE@aol.com
From Sue A. Awes,
I am very sorry to hear about this turn of events with Josie. She has had more than enough to deal with. I hope that the new hole could fix itself so that Josie can get well. We are praying for Josie's recovery and I know it will be soon. Take care.
Sent on Tuesday, October 24, 2006 at 11:05:04 AM
suea@fraser.org
From Becky and Eric (friends of Katie Marshall),
Josie,
We are rooting for you. What a brave girl. Our thoughts and prayers are with you.
Sent on Tuesday, October 24, 2006 at 12:25:35 PM
thefabulousmissb@yahoo.com
From LaMoure Family - Bemidji MN,
Josie - Michelle is requesting to watch you swing on Julias playset again. Let her prayers be heard.
She says Dr. Vehe has made her better and Betty is the best so she will pray for them to find the right medicine for you too.
Sent on Tuesday, October 24, 2006 at 12:38:18 PM
lamoure@paulbunyan.net
From Jill Saastad,
Keep fighting Josie- you can do it. I hope and pray for your healing and for the pain to go away.
We love you very much!
Jill, Steve, Ali, Drew, & Brady
Sent on Tuesday, October 24, 2006 at 12:57:22 PM
ssaastad@mn.rr.com
From Karalyn,
Hang in there, Josie. We are pulling for you, all the way from Seattle. We think about you all the time, sweetie.
All our love, Karalyn, Tallie, Ryan & Bailey
Sent on Tuesday, October 24, 2006 at 12:59:21 PM
karalynh@gmail.com
From Joni Wilken,
Hello Josie - I'm so sorry you're having such a hard time. You are such a strong little girl and I just want you and your mommy and daddy to know that I'm thinking of all of you and praying very hard for you.
Joni / Gracie Jasper's Grandma
Sent on Tuesday, October 24, 2006 at 1:16:44 PM
petewilken@sbcglobal.net
From Kay Stalcar,
Josie,
You hang in there, you are such a sweet little girl! We are praying for you. We know that God will take care of you.
Sent on Tuesday, October 24, 2006 at 1:33:19 PM
From Deanna Kearns,
Hang in there little one. We are all saying big prayers for you and thinking of you.
Sent on Tuesday, October 24, 2006 at 2:48:01 PM
d.l.kearns@att.net
From Shelly and Mark Nelson,
WE LOVE YOU DEB AND JAY!
Sent on Tuesday, October 24, 2006 at 3:11:57 PM
From jan g,
oh guys, my eyes well up reading this. Wishing you all the strength to make it through all this. Jan
Sent on Tuesday, October 24, 2006 at 5:58:48 PM
From Leigh Anne,
Josie the Princess..... You are a tough little girl. You are fighting battles most adults would have lost by now. I pray that you remain stong and so do your parents, brothers and sister, family and friends. You are a special gift and I pray God takes good care of you and see's you through this. I pray he makes you stronger and more healthy than ever before.
Caitlin the Princess say's that she hopes your booboo's feel better and maybe if your mommy kisses them like her's does, than maybe you would feel better. (her words, not mine) She is blowing you big kisses and hopes to color together sometime.
Take care family....
The Gorecki's
Sent on Tuesday, October 24, 2006 at 7:38:04 PM
supajut@msn.com
From All About Children Peds,
We are ALL following your blog and praying for you. We are thinking about you.
Sent on Tuesday, October 24, 2006 at 8:22:07 PM
mariloupederson@hotmail.com
From Sandy Judge,
Deb: This is Sandy Judge, however you may remember me as Sandy Weber. Voni has kinda kept me up to date on your precious Josie. Tonight is the first night I was able to check out your website. (Voni gave me the address last week.) Your little girl is one tough cookie--but you probably already know that. She is adorable and even when she has bad days, she is enduring more than most adults could ever think of. My prayers are with Josie that she recovers as quick as possible from this horrible disease. Also, I am keeping you, Jay and your other children in my thoughts, as you need strength too. Take care, and I will check back to check on Josie.
Sent on Tuesday, October 24, 2006 at 9:25:29 PM
kastju@msn.com
From Bob and Sarah,
Josie -
We think of you daily, and hope that you will feel better tomorrow. You are a strong, brave little girl, and we know you'll get a break soon.
Jay and Deb - your strength is inspirational. We know how hard this must be on you and your family, and you are all in our prayers.
Take care and God Bless,
Bob, Sarah, and Jillian Arnold
Sent on Tuesday, October 24, 2006 at 10:11:37 PM
rja@teemaster.com
From Cary Hopkins,
Hello,
My name is Cary and I found out about you from the curejm site. I have been reading your blog and I want you to know that I will pray for Josie.
I also want to say that I saw your picture, Mommy, and you look like such a strong person. My daughter has not been through the terrible problems that your daughter has had to endure but she has been through some pretty hard stuff. When I look at your picture I just feel like I know what you are going through. It is so hard being the mom of a sick child but it's a special blessing as well. Please know that you are not alone.
Sincerely,
Cary - Texas
Sent on Tuesday, October 24, 2006 at 10:44:16 PM
calvinistcary@yahoo.com
From Lynn Gabriel,
Dear Josie,
You are doing an amazing job at healing and are a wonderful patient! Keep up the good work and "keep the Faith!" Believe Josie, believe. We are praying for you all day and all night long. Your are doing great.
all our love,
Blake, Faith, Lynn and stan
Sent on Tuesday, October 24, 2006 at 11:20:54 PM
lrshadle@earthlink.net
From A,my Alvero,
I pray for a calm, painfree day for Josie so that her insides can heal. It must be terribly, terribly hard to keep having these rounds of pain. We are sending our best healing thoughts your way.
What can we do to help? Give blood? Take the other kids? Clean your house? Bring groceries? We are here and would love to help.
Sent on Wednesday, October 25, 2006 at 6:20:34 AM
aalvero@mn.rr.com
From Grandpa and Grandma Lund,
Josie...we're at loss for words...WE KNOW YOU CAN DO IT...YOU ARE STRONG AND A FIGHTER AND WE'RE COUNTING ON YOU TO BE STRONG...BE STRONG Josie, BE STRONG Josie, BE STRONG! Josie...give those Doctors a chance to show you they can make you better...they can make you better, Josie. I believe it and so does Grandpa Tom!!! We love you, Josie.
Sent on Wednesday, October 25, 2006 at 9:39:01 AM
dlund@lssmn.com
From Julie Aldrich,
Josie,
We are so sorry for all that you are going through. We read about you every day and pray for you every night. Please know that you are in our thoughts and we can't wait for you to come home soon. Ashley wants me to send you kisses and hugs and let you know she misses you very, very much.
Sent on Wednesday, October 25, 2006 at 9:52:46 AM
jaldrich@emtengineering.com
From Kris, Jill, Trigve and Annika,
Keep fighting Josie!
There are better and brighter days ahead - we all keep hoping and praying that this recovery will speed up for you--and your family. You parents are marathon runners and you are too!! They can tell you about that mile that seems impossible to finish and yet they keep putting one foot in front of the other. Hopefully the toughest mile is behind you. In our hearts you and your family are the Gold medal winners - even while you are still running the race! Imagine all of us on the side of the course cheering you on...it's a bright sunny fall day and you have the strength to keep going. We will keep cheering - day and night.
Go Josie Go!!!! You are AMAZING!
Sent on Wednesday, October 25, 2006 at 10:57:52 AM
kris@teamfriday.com
From Ruth Christ,
Dear little Josie,
I just found out about your condition today...I used to take care of you on Sunday mornings in the nursery at church. I am sorry that you aren't feeling well. I have been reading your story that your dad is writing. I have never known anyone so strong and brave. Do you know how much Jesus loves you?
Sent on Wednesday, October 25, 2006 at 1:58:15 PM
ruthc@cpconline.org
From Sue A. Awes,
I am so sorry to hear about your new challenge with Josie. I can understand when Josie says enough with all this. She has been such a brave little girl. Since the fungus is gone Josie has a chance to beat this. And she will. Josie is a fighter and she wants to get better. I pray for Josie every day that Josie sees improvement.
Sent on Wednesday, October 25, 2006 at 4:57:33 PM
suea@fraser.org
From Chris Marshall,
Well Josie...
Looks like it's the bottom of the 9th inning, Josie's at the plate, Mom, Dad and the rest of the family are all on the bases waiting for you to knock one out of the park and bring everyone home! Victory, sweet victory!
Keep fighting little lady...YOU ARE MY HERO~
Hugs, Kisses, and Prayers!
Chris Marshall (and family)
Sent on Wednesday, October 25, 2006 at 5:02:27 PM
crmarshall27@comcast.net
From Marie Gorham,
We send our love and prayers. We are keeping tract of Josie with the blog and Richfield friends. Josie, you are a strong girl! Marie, Mark, Kathryn, Rebecca, Greg, and William Gorham
Sent on Wednesday, October 25, 2006 at 5:12:12 PM
mthereseg@aol.com
From lynne,
hey guys. wow. haven't checked in awhile. sending you lots of love. wishing i could wrap you all in my arms and make everything ok or even slightly better. love, lynne
Sent on Wednesday, October 25, 2006 at 6:12:01 PM
lceciljohnson@yahoo.com
From Tracy Caraker,
Hello Deebers family! I just want you to know that I'm sending all the positive energy I've got to you all. You are truly very strong people (even when you don't feel like you are). You are all my hero's ;) I'll be watching every day to see how Josie's doing. Hang in there! Brightest Blessings!
Sent on Wednesday, October 25, 2006 at 8:45:27 PM
tcaraker@tampabay.rr.com
From jan,
hey deb & jay, amazing postings but so sad a content. I really should read your skating rink blog instead. we are all wishing wishing a positive turn with Jose...deb I just put you in the catalog upside down in your handstand picture and again, I was wishing for Jose, late last night at the Ad agency's office. warm hopes... Jan
Sent on Wednesday, October 25, 2006 at 8:51:42 PM
From bill,
We're praying for everyone.
Sent on Thursday, October 26, 2006 at 7:29:18 AM
From Kris,
Jay and Deb,
My heart goes out to you. As you hold Josie's hand in yours - I hope that you feel some love and support also holding you.
Sent on Thursday, October 26, 2006 at 7:36:22 AM
kris@teamfriday.com
From Tom and Darlene Lund,
Josie, Jo Jo, we love you, Grandpa and Gramdma Lund
Sent on Thursday, October 26, 2006 at 7:36:25 AM
lundlink@mac.com
From Lisa Heilman,
Dearest Adams Family,
We are thinking about you all the time and praying and praying for one of these repairs to work. We are so sad that Josie is in so much pain it is absolutely heartbreaking. Please know that you have so many people sending prayers your way. I check the blog multiple times a day hoping for a little good news. We are here for you whatever you need whenever you need it.
Love - Lisa Heilman
Sent on Thursday, October 26, 2006 at 7:38:47 AM
lheilman@frontiernet.net
From Nona,
I am praying for Josie and your family.
Sent on Thursday, October 26, 2006 at 7:49:47 AM
From Paul & Shelly Doran,
Jay and Deb,
We are so sad to see Josie in so much pain. We love you guys and are praying for Josie, and for you, as you watch her go through this, and have to make all these difficult dessions about her care.
JoJo, The Dorans sure love you!!
Paul, Shelly, Joe and Sarah
Sent on Thursday, October 26, 2006 at 8:00:29 AM
doran-home@mn.rr.com
From Erika,
We're all praying for miracles. Sending you love and hope every minute of the day.
Love, E,M,T&A
Sent on Thursday, October 26, 2006 at 8:04:04 AM
From LaMoure Family,
Josie
We're praying for you, sending our love and strength to you and the doctors your mommy and daddy and the rest of the family. I just got the pictures printed from Julias house last night 10/25 as Michelle wanted to hold the picture of her JM friends while she prayed for you. Josie she's holding you tight and saying the loudest prayers.
Sent on Thursday, October 26, 2006 at 9:37:52 AM
LaMoure@paulbunyan.net
From ,
Deb and Jay I am just at a loss for words-what can go wrong next? Just spoke with Grandpa and glad to hear last night's repair seemed to go well. Please God let it hold! We are just so torn up and God only knows how you must be feeling. We love you all so very much and our hearts are breaking with yours. Whisper in Jose ear that we love her and know she is a fighter. I am praying as fervently as I ever have to bring healing to her body and peace and comfort to you both. I'm wrapping my arms around you all now and giving you a great big hug!!Leslie
Sent on Thursday, October 26, 2006 at 9:38:52 AM
From John Thompson,
Josie,
What an inspiration you are to everyone that your life touches! Keep fighting! Many prayers for strength!! May God find a way to bless you during this difficult time!
John Thompson
Diagnosed with DM in April 1977
Sent on Thursday, October 26, 2006 at 10:00:13 AM
jtsalescom@bellsouth.net
From Sarah Lyman, Chad & Savannah Mellies,
I'm a relatively new Mom of a 7 month old girl and my heart goes out to you all for what you are going through. I can't begin to imagine what you are dealing with. Josie and your family are obviously incredibly courageous and strong-willed!
Take care and good luck. You are in our prayers.
Sent on Thursday, October 26, 2006 at 10:39:26 AM
slyman1972@hotmail.com
From Mike,Jennifer, Drew & Madeline Morgan,
Josie, Deb & Jay,
Rod Helm sent me Josie's page last week and Jennifer and I have been following you these last 10 days closely, Josie is in all our thoughts and prayers. You have a very, very brave little girl there, you must be so proud of her.
Stay strong for her.
Mike, Jennifer, Drew & Madeline Morgan
Sent on Thursday, October 26, 2006 at 11:06:43 AM
mmorgan@ieccovers.com
From Mike and Matthew Sandell,
Deb and Jay, I just read the update and Matthew and I will
be saying prayers tonight for all of you.You Adams' are
incredibly strong, especially you Josie.Let us know if
we can be of any help. Mike and Matthew Sandell
Sent on Thursday, October 26, 2006 at 12:05:06 PM
kitt3@earthlink.net
From Lynn gabriel,
My heart aches for all of you. I last read around 11:30 last night, as it appears surgery was beginning. when I woke and read at 7:30a.m. I cried. I am so sorry for this precious girls path. I am sincerely sorry. Please know we are praying hourly in our house for your family. May God hold you near and tight. sorry , I just couldn't write earlier, instead I have been praying.
All our love and support,
Lynn, Stan, Blake , Faith
Sent on Thursday, October 26, 2006 at 12:14:31 PM
lrshadle@earthink.net
From Kay Stalcar,
Jay & Deb,
Just wanted to let you know that I am praying for you guys. I am so sad that Josie is having to stuggle so much. Thanks again Deb for letting me visit with Josie on Tuesday night we had such a good time with the lip gloss and glittery sun glasses. We love you guys! Tony, Kay, Jeremy, Derek & Nikki
Sent on Thursday, October 26, 2006 at 12:27:35 PM
kstalcar
From Gigi (H.S.) and Eda PS3,
Our thoughts and prayers are with Josie and your family. Eda and I just love Josie and her fine young spirit.
Sent on Thursday, October 26, 2006 at 1:08:21 PM
gigik@fraser.org
From Sue A. Awes,
I am so glad this last surgery went well. I knew Josie was a fighter and this proves it. This is the turning point that we have all been praying for. This is going to be the last tough battle and Josie will get her health back like the doctor says. We are praying now for Josie to get her strength back so she can celebrate her birthday. Take care.
Sent on Thursday, October 26, 2006 at 2:14:10 PM
suea@fraser.org
From Leah Nelson,
Hi Guys:
I'm thinking of you and sending positive thoughts your way. Let me know if I can help in any way with babysitting, etc.
Sent on Thursday, October 26, 2006 at 2:22:09 PM
lnelson55402@yahoo.com
From Tom and Darlene Lund,
Josie...That Birthday Clock is ticking off the hours for us to celebrate your birthday...and I'll bake the biggest cake you can imagine...4 layers with double frosting...so get to eating and using those plates...just a soon as you can!!! Grandpa and Grandma Lund
Sent on Thursday, October 26, 2006 at 2:44:10 PM
djlund@lssmn.org
From Ed & Caroline Gaiser,
Dear Chip & Deb, We just read your latest posting & are so thankful Josie's latest surgery went as well as could be expected. After all the heartbreak she and you have been through, you're more than overdue for this little girl to be on the road to full recovery. Ed & I continue to pray for her AND for you & all of your family. We wish we were closer and could be of some help to you. We send our continued love & prayers from Fresno, California. Caroline & Ed
Sent on Thursday, October 26, 2006 at 3:45:09 PM
c_gaiser@hotmail.com
From Tricia Wendorf,
We are here if you need anything. We will continue to have hope and pray for healing.
Thinking of you all,
The Wendorf Family
Tricia, Steve, Kyle, Gavin and Meghan
Sent on Thursday, October 26, 2006 at 3:47:57 PM
tleewendorf@yahoo.com
From Tammy,
HANG TOUGH GIRL!It's hard, but keep on going. Love to you and the folks, brothers and sis. (MWAH!) Big Kisses to all.
~Aunti Tammy
Sent on Thursday, October 26, 2006 at 4:38:20 PM
camprn@verizon.net
From Lynn gabriel,
There seems to be such a feeling of peace. I am so happy to hear things went as well as they could.there aren't words to express what we wish we could do for you or how much we hope for full recovery and healing every minute. You are an amazing little girl enduring all that you have, with an equally amazing family. Know that we care. On to healing for good this time. God Bless you
Lynn, Blake Faith, and stan
Sent on Thursday, October 26, 2006 at 4:44:03 PM
lrshadle@earthlink.net
From Mary Waters-Cryer,
Jay and Deb -
I just cannot imagine what you are going through minute to minute - Josie has been such a strong little girl through all of this - it's amazing!
On behalf of Fraser School, once again, your family has remained in our thoughts and prayers minute to minute.
Sincerely,
Mary Waters-Cryer
Director, Fraser School
Sent on Thursday, October 26, 2006 at 4:58:10 PM
maryw@fraser.org
From Kevin & Cynthia Benner,
Dear Josie,
I'm a friend of Marks. I recently heard of your situation. My wife (Cynthia) and I are so sorry things have been so hard for you. you are in our prayers. You sound like quite the fighter. Hopefully we'll have a daughter some day with all your spirit. I look forward to her meeting you. Maybe you can babysit.
Love,
Kevin & Cynthia
Sent on Thursday, October 26, 2006 at 5:12:23 PM
kevin.benner@nomadventures.net
From John Hibler ,
Chip,
You and your little treasure are in our prayers daily. I just wish we lived closer so we could be more support. Be strong, with lots of love,
John
Sent on Thursday, October 26, 2006 at 5:52:55 PM
johnhibler@mail.com
From Sharon,
To Josie and Family
I have read your blog a few times and my heart fills with love for you all. You are truely an amazing family.
Sending you prayers from New Zealand.
Kia Kaha(stay strong)Josie.
Lots of Love and bigs hugs
Sharon and Natasha (dx april 2000 at age 4)
Sent on Thursday, October 26, 2006 at 6:35:13 PM
slegge-murray@linz.govt.nz
From Mark Francis,
Jay, Deb and Josie,
You are so couragous. Someone IS listening to the prayers. I believe absolutley that help is on the way. Have faith.
Revelation 21:4 & 5
4. He will wipe away from them every tear from their eyes. Death will be no more; neither will there be mourning, nor crying, nor pain, any more. The first things have passed away."
5. He who sits on the throne said, "Behold, I am making all things new." He said, "Write, for these words of God are faithful and true."
Sent on Thursday, October 26, 2006 at 6:58:18 PM
From Mark Francis,
Jay, Deb and Josie,
You are so couragous. Someone IS listening to the prayers. I believe absolutley that help is on the way. Have faith.
Revelation 21:4 & 5
4. He will wipe away from them every tear from their eyes. Death will be no more; neither will there be mourning, nor crying, nor pain, any more. The first things have passed away."
5. He who sits on the throne said, "Behold, I am making all things new." He said, "Write, for these words of God are faithful and true."
Sent on Thursday, October 26, 2006 at 6:58:19 PM
From Wendy Short-Hays,
Deb and Jay,
Stay strong, take care of yourselves when you can. You are amazing people.
Love,
Zach, Wendy & Elliott Hays
Sent on Thursday, October 26, 2006 at 9:02:30 PM
wshortha@vischool.org
From Jen Weers,
Josie and Family: My heart breaks each day as I read your posts, but can feel the strength and love your family has. Please know the entire Cure JM community is sending love, prayers, and good wishes daily.
Our very very best,
Jen and Julia Weers
Sent on Thursday, October 26, 2006 at 9:22:27 PM
jen@weersconsulting.com
From The Meyers,
Jay,Deb,Trip,Henry, Evie and especially Josie
Just checking in on you and would like you to know that our thoughts and prayers are with you during this very difficult time, please let us know if there is anything we can do for you. Josie, you are a fighter, you keep fighting.
Mary, Mike, Jacy and Johnny
Sent on Thursday, October 26, 2006 at 9:32:57 PM
meyerpainting@msn.com
From Carlson's,
Hello Adams family - what a week it has been for you all!! Especially Josie! Wow - what can a person even say. I am sure no words will make you feel better Josie. O.K.... this is gross but as I am writing now, our dog Brannigan is dragging his butt along the floor and smearing poop remnants on the carpet! NICE! It is really time for a haircut doggy... poop keeps getting stuck in his fur. O.K....time to go clean the carpet. Sorry, I am way off the subject... but thought you might get a checkle out of my mess since you have dogs.
So while I am cleaning up doggie doo, I will be thinking about you Josie and wishing I could wave a magic wand and take all your troubles away. And for the rest of you Adams folks, I am sure watching such a precious, wonderful little girl like your little Josie suffer has got to be the hardest thing you will ever go through in your life!!! So hang in there!! We are thinking about you all and wishing there was something we could do!
Emily, Jim, Sammy and Nisi Carlson
Sent on Thursday, October 26, 2006 at 10:10:48 PM
emilyjimcarlson@msn.com
From Jackie and Kelsey Dornfeld, Paul Perseke,
Dear Josie and Family,
Josie, you are a very strong little girl. We have been reading about your story daily. Our thoughts and prayers are with you and your amazing family. You will pull through this.
Our love,
Jackie, Paul, Kelsey
Sent on Thursday, October 26, 2006 at 10:45:08 PM
jkdornfeld@mn.rr.com
From Manny,
My thoughts are with you I feel that Josie is stronger than most may imagine I pray that she begins to regain her strenght and brings you the miracle your waiting for.
Manny
Sent on Thursday, October 26, 2006 at 11:00:29 PM
vider13@aol.com
From Cynthia Benner,
Dearest Josie!
We don't know each other but we are friends of your dad's friend Mark Gibbon. Although reading through your blog I feel like I have gotten to know the unique, rare and amazing little girl that you are. I am sorry to learn of all this 'sickness stuff' you're having to deal with. Sometimes we have to go through all this 'stuff' for things to be better later on. And sometimes we feel like it's taking forever for things to get better. And sometimes it might even feel like you are trying to run a marathon in a jumping chair and mostly staying in one place. But hang in there because where ever your at and whatever your doing, you mere presence in giving so much love to everybody around you. You are making them smarter to appreciate and love the people around them even more. So when things get tough always remember how much you are loved and the 'sickness stuff' won't feel as bad.
You and your family will be in our prayers for the Lords blessing, strength and speedy recovery!!
Sent on Thursday, October 26, 2006 at 11:20:54 PM
cynthia.benner@medica.com
From Millie Stoick,
I just heard about Josie and will keep her in my prayers and thoughts. She is one strong and brave little girl. I will also pray that you all have the strength to keep up with all of Josie's health problems and know that one day she will be up and smiling at you.
Larry & Sue - give us a call when you can.
Sent on Thursday, October 26, 2006 at 11:46:59 PM
stoickmillie@earthlink.net
From The Grams,
Josie, I hope you can feel the love our family is sending to you and your family right this very minute! You are one amazing kid, and family, and we hope to hear about you getting better very soon.
Lot's of hugs to you!
Tom, Anke, Conner (5) and Sasha (3)
Sent on Friday, October 27, 2006 at 12:46:37 AM
tom@tvgrams.com
From The Neebe's,
Hey Josie, Aggie and Mark told us about your big fight with some nasty bugs! They also told us about your brave mom, dad, sister and brothers. We live far away in South Africa and we know a little bit about tough kids - and we can tell that you are one of the toughest! So from us down South, we pray for you and your family to stay tough and not give up. Our thoughts and faith in goodness are with you all. Love Mike, Pam, Ryan and Micaela
Sent on Friday, October 27, 2006 at 4:47:59 AM
mike@invesme.co.za
From Pam Neebe,
Hi Josie,
I have a beautiful healthy girl of 8. I thank God everyday for her! Today and everyday from now on, when we laugh together, I pray that our joy will find it's way to you and make you whole. God bless.
Sent on Friday, October 27, 2006 at 6:40:24 AM
pjnibs@icon.co.za
From Deanna Kearns,
Hey Josie,
I read your blog again this morning and I am thrilled that things are going as well as they are. Keep on fighting Honey. Our prayers are with you and your family. I know this is very hard on them too. We'll keep the prayers going and know that you are in our thoughts.
Caitlin's Grammy
Deanna Kearns
Sent on Friday, October 27, 2006 at 7:09:16 AM
d.l.kearns@att.net
From Appley Adams,
My Dear Jay & Deb,
I am so pleased that you included me in Josie's web page. My love and thoughts are with you.
What is the reason you have to deal with this sickness? We may never know the answer to this. You are a very brave girl. Wish there would be something I could do!
Sent on Friday, October 27, 2006 at 7:25:58 AM
appley.adams@verizon .net
From Joseph Riley,
Josie,
I hope you will be feeling better. I will pray for you.
Love,
Joseph Riley (age 7)
Sent on Friday, October 27, 2006 at 8:02:07 AM
justpatriley@adelphia.net
From The Riley Family,
Dear Josie,
We are so sorry that you have been sick. It sounds like you have so many friends and such a great family and good doctors. Our family will pray for your healing and for your family's encouragement. God's love to you.
Justine Riley (Erika Hsu's cousin) and family
Sent on Friday, October 27, 2006 at 8:25:23 AM
justpatriley@adelphia.net
From Alycia,
I do not know you. I was sent this blog by someone who does, and am so incredibly grateful that I have had the honor to hear Josie's story.
I am praying for you and for Josie. I am very sorry to hear that your family and Josie are suffering. Josie seems like an amazing little girl. My heart is full of pride for a child that I do not know. I am amazed by her strength and resilience. I am truely humbled.
In the work that I do I see many people give up in the face of much less adversity. To know that there are people like you in the world, gives me such hope.
Stay strong and know that when you need it, you can find love and energy, even from strangers.
Sent on Friday, October 27, 2006 at 10:08:51 AM
alykay74@yahoo.com
From Lori Smith,
Josie, Deb & Jay -
(received by forwarded message - Aggie's Bday wish)
I reviewed your blog & just thought I'd let you know we are thinking of you! Stay strong & always hopeful. I wish you additional courage & happiness. Keep smiling Josie - you are a beautiful girl!
Lori & Ed Smith
Lancaster, PA
Sent on Friday, October 27, 2006 at 11:31:38 AM
From David Lamb,
I have never seen such brave and beautiful young lady. When you are better come to Utah and see the big mountians. I have three little girls who love to make a new friend.
Best of Wishes:
David & Barb Lamb
801-492-9745
Sent on Friday, October 27, 2006 at 12:21:19 PM
dlamb@gopfs.com
From LMcGowan,
Bless you little Josie. You are loved by many.
Sent on Friday, October 27, 2006 at 12:44:06 PM
lamcgowa@hacc.edu
From Jim, Beth, Tony and Jack Stellon,
There are lots of prayers and hopes being sent for you as you rest and work on healing, Josie. You are a strong, brave girl with much love all around you. We're cheering for you, too.
Sent on Friday, October 27, 2006 at 3:56:35 PM
StellonE@aol.com
From Jill Schut,
We met you at the Weer's home at the picnic this summer.
Maddie is our 7 year old, diagnosed when she was 2. She has just officially gone into remisssion, so try to remember that there is liht at the end of the tunnel, even if it seems very far off. We will be meeting with the local KIT group in Maple Grove tomorrow and will share Josie's story with them and ask for their prayers and support. We will all be praying for Josie and youyr family. Feel free to contact me at JSchutMykkanens@aol.com if we can do anything at all. Kevin, Jill, Maddie and Emma Schut
Sent on Friday, October 27, 2006 at 4:20:31 PM
JSchutMykkanens@aol.com
From Sue Dornfeld,
Jay and Deb,
We are sending our love and prayers to Josie.It's hard seeing Josie hooked up to all those tubes,but that is what will make her better. She is a fighter.Lisa and I would like to come and sit with either you of over the weekend,if you would like some company.
Sent on Friday, October 27, 2006 at 5:41:40 PM
sue dornfeld@yahoo.com
From Raffaella Selvaggio,
Dear Josie:
My Mom is in heaven so I asked her to send all the angels to watch over you every second of the day. She promised me they would help you stay strong and overcome this disease. I believe that you will fight back and show the world that you have the gift of FAITH & LOVE and will win the battle.
All of US LOVE YOU Josie!
Raffaella Selvaggio
Sent on Friday, October 27, 2006 at 8:50:58 PM
raff333@comcast.net
From Karen Madsen,
THANK YOU, Jay, for the time you take to update us on Josie's blog with all of the details and at times a little humor too! It is a gift to all of us to be able to keep up with her status and care. Love, Karen
Sent on Friday, October 27, 2006 at 10:04:43 PM
madsen@mcleodusa.net
From Sarah Trombley,
Hi! My name is Sarah Trombley and my sister Carolyn is friends with Mary. She shared your story with me and I just want you to know that I will continue to pray for her everyday and I will keep up to date on the weblog.
Sent on Friday, October 27, 2006 at 10:25:23 PM
bsgtroms@paulbunyan.net
From jeannie,
My 10 year old son was diagnosed 2 mo. ago with jdm. My heart and prayers are with you. I pray that god will place his hands on your precious child and heal her body. I pray that you will know gods presence in these painful times and that he will bring hope and courage to your hearts as you walk through this difficult path.
Sent on Saturday, October 28, 2006 at 11:11:55 AM
jeanine@comteck.com
From Tom and Darlen,
Josie, your Mommie and Daddy are so strong and we pray for you and love you so much. Grandpa and Grandma Lund
Sent on Saturday, October 28, 2006 at 1:54:13 PM
lundlink@mac.com
From Dan Seftick,
Hi!
I learned about Josie from Jill Schut at our support group meeting this evening. I am the Minnesota rep for The Myositis Association. Want you to know that Josie and all of you are in our thoughts and prayers. I would like to encourage our members to send cards or write to Josie in our next newsletter. Is that okay with you? Please let me know how else I can help!
Sent on Saturday, October 28, 2006 at 8:34:08 PM
dseftick@cpinternet.com
From The Whites,
Dear Josie and your wonderful parents,
We received a link to your blog from our friend Aggie who thinks so highly of you. We can certainly see why after reading about your journey and seeing the sometimes difficult pictures of you. We are so touched by you and amazed at your strength. We have faith in God that he will heal you and give you a normal life with your sister and brothers and that you will be running and playing with them soon!
You are God's precious little child and he loves you and wants the best for you. We believe that with all our hearts and will be praying for you all!
Love,
Becca, Bob, Ben, Elise & Anna White
Lititz, PA
Sent on Saturday, October 28, 2006 at 8:49:32 PM
rrbeawhite@dejazzd.com
From Lynn Gabriel,
dear josie,
we pray that your transition back to full conciousness is one of comfort, relief,peace and full healing. May God's healing hands be resting on you. You are absolutely amazing and strong, smart and beautiful!
Love
Blake, Faith, Lynn and stan
Sent on Sunday, October 29, 2006 at 12:45:42 AM
lrshadle@earthlink.net
From Christine DM/ILD,
Dear Josie .....I have read your Blog and I am praying for you to get well soon,and for all the love and strength that everyone is sending to build you up....
Chin up little one,and fight the battle,love to the family too,
Christine and Family in UK. xx
Sent on Sunday, October 29, 2006 at 5:17:41 AM
chrisbrucenixon@blueyonder.co.uk
From Tom and Darlene Lud,
Josie, Jo Jo, we're looking forward to seeing you today, we pray for God's richest blessings to awakefullness and seeing Mommie and Daddy...you are our truest inspiraton. We love you, Grandpa and Grandma Lund
Sent on Sunday, October 29, 2006 at 8:55:01 AM
lundlink@mac.com
From Dan & Tami Greenshields,
Josie, What a tough kid, hang in there, both Tami and I are thinking of you in our prayers. The faith and love that have displayed in the Blog is so powerful and inspiring.
Love always,
Dan & Tami
Sent on Sunday, October 29, 2006 at 10:05:28 AM
dang@sharebuilder.com
From Sandy Judge,
Jay, Deb and Josie: You have had a few trying days. It sounds as though Josie is doing as well as can be expected and we hope that today, Sunday, she is taken off some of those tubes and drugs. Hang in there, Josie! There are lots of people praying for you!
Sent on Sunday, October 29, 2006 at 3:23:07 PM
kastju@msn.com
From Megan Wenaas,
Deb & Jay:
We just found out about Josie's Weblog - please know we're praying for Josie and the entire family. Please let us know if there is ANYTHING we can do.
Hugs, love and prayers,
Megan, Jason, Bridget & Molly Rose Wenaaas
Sent on Sunday, October 29, 2006 at 5:36:47 PM
MMWenaas@gmail.com
From EPH,
We've got everything crossed at the Hsu household ... including four pairs of eyes! We're hoping that today was a good day, and that you two are a little more rested, or at least rejuvenated after maybe some alone time. Okay maybe not alone, but at least away from the hospital at the same time. Sending you lot's of love and encouragement, E,M,T&A
Sent on Sunday, October 29, 2006 at 7:37:25 PM
From Colleen McVaney,
To the Adams family,
My name is Colleen McVaney, I live in Colorado and am a friend of Sue Pearce's. We are praying for Josie, that she would get better and also for your family to hang in there during this difficult time.
Sent on Sunday, October 29, 2006 at 9:50:11 PM
tallcolleen@dgcomputing.com
From Kris, Jill, Trig and Annika,
Josie,
I am amazed that you are still smiling for the camera! (Us photographers LOVE that!)
We are all hoping that the medicine and the nurses and doctors will make your tummy feel better soon.
Your spirit, strength and smile amaze us! Someday you will know how much you have inspired all of us to dream bigger, wish and pray harder, and love and laugh more often!
Sent on Sunday, October 29, 2006 at 10:45:58 PM
kris@teamfriday.com
From Karalyn, Tallie, Ryan & Bailey,
Don't give up, guys. They say it's always darkest before the dawn; there has to be a reason that tired old cliche came to be so widely repeated. Don't give up.
Sent on Monday, October 30, 2006 at 1:13:17 AM
karalynh@gmail.com
From Gigi and Eda,
Hi Josie, we are so proud of you, you are working so hard to get better, keep up the good work! Are you feeling good enough for a little visit? We miss you at fraser and would love to see you if it is o.K.
We (Gigi & I) were wondering if we could visit you on Tuesday October 31st after school (around 4:00 P.m) or some other time this week? We sure love and miss you!!! Eda &Gigi
Sent on Monday, October 30, 2006 at 8:16:30 AM
gigik@fraser.org
From Tom and Darlene Lund,
Josie, we were thrilled to see you and I even got in those funny little kisses...we're praying for you. we love you, Grandma Darlene and Grandpa Tom
Sent on Monday, October 30, 2006 at 8:32:07 AM
dlund@lssmn.com
From John Gamoke and family,
Josie,
You are a strong girl. We are awed by your strength. Our thoughts and prayers will be with you. You and your family are an inspiration to everyone.
God Bless you all.
Sent on Monday, October 30, 2006 at 8:33:35 AM
gamokechrysler@aol.com
Good to see that smile, Josie!
Keep being strong - our thoughts and prayers are with you -
Bob, Sarah, and Jillian Arnold
Sent on Monday, October 30, 2006 at 10:13:27 AM
rja@teemaster.com
From The Christofferson's,
Deb,Jay, and family,
Our prayer for you is that God will give you strength for each new day and that you will feel His presence in all this. We know that God is holding Josie in the palm of his hand.
Sent on Monday, October 30, 2006 at 11:51:14 AM
From Dawn Carpenter ,
I was given this link about Josie by a friend. After reading through the entries, I want you to know that I will be keeping Josie and her family in my thoughts and prayers. What your little Josie has gone through is almost hard to believe, and she is still smiling! Pretty obvious that she has a family that loves her very much... Twenty years ago our daughter was diagnosed with dermatamyositis. I read your account and the memories come back. Elevated enzymes, calcinosis, muscle wasting, the unusual rashes and other symptoms are all familiar to us. Today our daughter is healthy and she and her husband became parents to baby Freddie last March. He is very healthy and our daughter is a very happy mom. We got help from many sources (some non-typical) and would be happy to share any info that might be helpful. Please feel free to contact me.Thank you for sharing Josie's story.My love and prayers to all of you!
Sent on Monday, October 30, 2006 at 11:56:53 AM
dawncarpenter90@hotmail.com
From T. Egger,
Jay and Deb,
Sorry youre having to go through all this. Praying for Josie everyday for over a year now. Still holding out for a miracle.
Tom
Sent on Monday, October 30, 2006 at 1:03:29 PM
tomegger@mindspring.com
From Sue & Ron ,
Please enter a message
Dear Josie,
Please know that we add our thoughts and prayers for you and your whole family.
Ron and Sue (a.k.a. Papa Ronnie and Gramma Suzie to Molly Rose and Bridget W.)
Sent on Monday, October 30, 2006 at 3:20:16 PM
wencomm@usfamily.net
From Verla Atwell,
Sun City, Az.
Dear Josie and family,
I am a church friend (actually their deacon) of the Larson's, Shelly Doran's parents. Carol sent me a note asking me to pray for all of you and I called her and told her I would be praying for all of you, and I am. I just can't imagine how any of you are getting through this but want you to know that you are all an inspiration for all of us that are praying for you. I just couldn't quit reading all of the blogs you have put on your site. I feel so privileged to be a part of the ones praying for you. I cling to Hebrews 13:5 when I am going through trials: I will never leave you or forsake you, so we may say boldly "The Lord is my helper; I will not fear." I know it must be hard for you but keep hanging in there and fighting. We love you and are prayiang connstantly for you.
Sent on Monday, October 30, 2006 at 8:10:20 PM
memaw-v@hotmail.com
From Carlson's,
Mpls.
Just sending some Halloween wishes your way! We are thinking about you and hope things improve soon!
Emily, Jim, Sammy and Nisi
Sent on Monday, October 30, 2006 at 9:54:42 PM
emilyjimcarlson@msn.com
From Leigh Anne,
Maine
Good Evening Josie,
I am sending you the biggest hug from Maine. I had read that your family had visited Maine not too long ago. I really hope that they enjoyed their time here. Maine is a nice place to visit but a much nicer place to live.
Caitlin wanted me to tell you that she liked your Swiper tattoos in some of your pictures. They make her laugh to see them. Caitlin had to go have some blood drawn today for her JDMS. She was brave like you, no tears or anything.
Get well soon Josie, I would love for you and your family to come back to Maine sometime. Maybe than you and Caitlin can play together.
Stay strong Josie, stay positive family and know that we are all thinking of you!
Leigh Anne Gorecki
Sent on Monday, October 30, 2006 at 10:05:51 PM
supajut@msn.com
From Kay Stalcar,
Richfield
Hi Josie, Jay & Deb,
Just wanted to let you know that we are thinking about you. Let us know if there is anything you need.
Sent on Tuesday, October 31, 2006 at 10:36:11 AM
kstalcar@cojlbc.org
From Sue A. Awes,
Fraser School
Happy Halloween Josie from Fraser School. We just had our sing a long and we wish you were here. We made treat bags and walked around to all the classrooms to get candy. We wish we could send you a treat bag full of candy. It sounds like you will be ready soon for something fun to eat. Get well soon Josie!
Sent on Tuesday, October 31, 2006 at 11:22:11 AM
suea@fraser.org
From Kris Tovson,
Golden Valley
Josie, Jay,Deb, and all of the Adams Family,
I just found out about Josie, her serious condition, and your Josie's Weblog website. I am so sorry Josie is so sick, and you all have my thoughts and prayers as you fight through these difficult times until Josie feels better. I will keep in touch through your website. I hope and pray things go well for
Josie and you all get some good news you are so deserving of.
Kris Tovson
Sent on Tuesday, October 31, 2006 at 11:41:39 AM
ktovson@ci.golden-valley.mn.us
From Judy Lewis,
Fort Myers, FL
God bless you all. I cannot start to know what your going through with your little Josie, but I will keep her and your family in my prays.
The disease that we share is hard enough on an adult's like myself and others, but for a child it is a double whammy.
Keep up your courage and know that "this to shall pass", some day soon there will be a cure for this mean disease.
Hugs to you and your family,
Judy DM 2002
Sent on Tuesday, October 31, 2006 at 1:38:43 PM
jbayjudy@aol.com
From Anne,
Chaska
Hello,
I received this link from your neighbor Megan. She is praying hard for you and now I am too. Your story and your strength touch more people than you know. Hope you get some good news soon.
Sent on Tuesday, October 31, 2006 at 2:31:53 PM
anne_farrar3@yahoo.com
From Jill, Kris, Trig and Annika,
Jay, Deb, Trip, Henry, Evie and Josie,
Hang in there - Live Big, Live Strong! May the spirit of love surround you everywhere!
Jill, Kris, Trig and Annika
Sent on Tuesday, October 31, 2006 at 4:20:54 PM
jill@teamfriday.com
From The Heilman Family,
Lakeville MN
Happy Halloween Josie! I was glad I was able to come and visit you on Saturday night. You probably don't remember because you were sleeping. I hope you were able to dress up as a dog eating a cheeto like your Mom said you wanted to!! Lucas was a dementor from Harry Potter and Isaac was a gladiator. You are so brave and courageous!
We love you
Lisa Rich Lucas and Isaac
Sent on Tuesday, October 31, 2006 at 7:56:45 PM
lheilman@frontiernet.net
From the LaMoure Family,
Bemidji, MN
Josie - Just know that we're thinking of you. When you get better you need to request your very own trick or treat day so you can get all the candy and eat it. Now thats a great idea for a welcome home. Tell mommy and daddy and all the neighbors when its your day to go home and you can eat again that all the neighbors need to be prepared for your trick or treat day. You can dress up in your costume and knock on all the doors. Take care Josie.
Sent on Tuesday, October 31, 2006 at 8:16:33 PM
LaMoure@paulbunyan.net
From Verla Atwell,
Sun City, Az.
Verla says:
Hi Josie, Jay, Deb, Trip, Henry, and Evie,
Just wanted to say how beautiful and cute you looked tonight on the blog Josie and it was so nice to see your brothers and sister in their costumes too. I know you aren't feeling good but you are the bravest little girl I know and you have the most loving family. We all appreciate the updates so that we know better how to pray for all of you. I really don't know how you do everything you do but THANK YOU for keeping us updated. We will all rejoice the day we know you are completely healed Josie and home from the hospital. Take good care. We love each and everyone of you. Love and prayers.
Sent on Wednesday, November 01, 2006 at 12:30:40 AM
memaw-v@hotmail.com
From Joan Wobbleton,
Murrells Inlet,SC
What a cute hulla outfit. Josie you look so sweet and it's like you are just waiting to feel better and get right up with the kids and do what ever they are doing. Boy, how hard is it to just not be able to go and do and play? I can't imagine. We pray that God will be merciful and give you healing,and strength,and endurance to stand all of this pain and surgery. It's hard to imagine one so samll having to go through all you have gone through and still wear a smile. God bless you and keep you strong. Keep your family strong.
Love to you to your family.
Joan and Jim Wobbleton
Murrells Inlet,SC
Sent on Wednesday, November 01, 2006 at 7:51:06 AM
jwobb@aol.com
From Patrick Walsh,
Chanhassen
Dear Adams Family,
I was reading Josie’s Blog, as I do most every day, feeling helpless. I wanted to do something to help. But I’m not a clinician, what could I do?
I thought to myself, you could send a get well card. Well that got me thinking, a friend of mine once organized a get well card campaign for his mother and it did wonders for her spirit. Maybe I should ask all of my friends to send Josie a card? Then I remembered that I don’t have that many friends, and some of them don’t even like me (I.e. Kris & Becca).
So I thought that all of these wonderful people leaving wonderful messages for Josie would also like to take part.
I contacted the hospital and they said cards would be welcome (no plants, no flowers, and no latex balloons). Send cards to:
U of M Children’s Hospital
420 Delaware St SE
Minneapolis, MN 55455
Rm. 413 Unit 5C
Josie Adams
I am asking all of my family and friends to send cards in hope of refreshing Josie’s spirit. Please do the same.
(Jay, if this is a bad idea I hope you can delete this entry)
Sent on Wednesday, November 01, 2006 at 7:59:25 AM
pwalsh@pchealthcare.com
From Elaine Bicanic,
Julian, CA.
Dearest Josie, I am your cousin Anna Chapp's kindergarten teacher. Yesterday your Aunt Mary told me all about you and gave me your website. I think you have to be the cutest patient in that hospital! I will pray that you have better days ahead and that you keep fighting! You are in my thoughts and I wish I could meet you! Love, Mrs. "B."
p.s. Your Halloween costume was very cute -- aloha nui loa!
Sent on Wednesday, November 01, 2006 at 9:57:53 AM
ebicanic@sdcoe.net
From The Rynersons ( the whole fam damily) (( as Brad always says...)),
Richfield
Hey there Josie Girl ( the lovely Hula-Hula ray of sunshine ), Evie ( Black Cat, I presume? ), SANTA ??? ( very seasonally appropriate, Hen ) and Trip... Mr. Construction guy - You guys are such a great bunch!! Keep up the good work big bros and sissy- it is very obvious you bring your courageous little sis much strength and joy. Same goes for the rents. May God continue to bless your family with the strength and positive attitude which has been so inspirational for us all. We are praying for you, Josie, and your family. Thanks Jay, for keeping up the updates.
Sent on Wednesday, November 01, 2006 at 10:19:42 AM
Rynersonelectric@yahoo.com
From Tom Doran,
Eagan
Hey, checkin the page for the day. Good Halloween Pic. My mom and cousins in Madison Lake are praying for her.
Sent on Wednesday, November 01, 2006 at 10:27:40 AM
From Jocelyn,
Burnsville Peds Rehab
Josie- Kate and I say hello and we are amazed at what a fighter you are! We miss seeing you here at our clinic.
Mr. Ed hasn't gotten much use lately- he can't wait until you can come back and ride on him! Take care!
Sent on Wednesday, November 01, 2006 at 11:17:06 AM
jlian1@fairview.org
From Kelly,
Bloomington, MN
Hi, I am a co-worker of Jim Hembd and he has been sharing some of Josie's story with me and I've been reading more on the website. I just wanted to let you know that she is such a precious child and her strength is truly amazing. I continue to pray for her, along with so many others, and I know that God has a special plan for her life. KEEP THE FAITH! Many blessings to your family! ~ Kelly
Sent on Wednesday, November 01, 2006 at 11:41:08 AM
kgamble@toplastics.com
From Erin Hilton,
Woodbury, MN
Hi-
You don't know me, but Megan (Wenaas) is my best friend and I spent the day on Sunday with her and the girls while Jason was working. Megan forwarded me your site so I could learn about what is going on after she had mentioned you and I just wanted to let you know that if there is anything I can do to help, please let me know. Your entire family will be in my thoughts and prayers.
Sent on Wednesday, November 01, 2006 at 11:55:40 AM
erinhilton@yahoo.com
From Becca,
Central America
Hey Josie,
You are the most couragous person I know. The Halloween pics are great of you and your brother's and sis. Gary, Prescott and I are thinking about you daily.
B, Gary and Prescott
Sent on Wednesday, November 01, 2006 at 5:37:14 PM
From Crystal,
Milo, Maine
Hi Josie-
Thank you for being so strong. I have never met you, but I want you to know that I love you with all of my heart. You are a gift from God. Please be well!
Love,
Crystal
Sent on Wednesday, November 01, 2006 at 6:32:25 PM
mattandcrystal1@verizon.net
From Sammy,
Minneapolis
Hi Josie - here is a joke from Sammy.
There are 4 copy cats in a tree. One jumps off. How many are left in the tree? NONE. Get it? Because they are copy cats... so when one jumped off... so did all the rest.
We hope your Halloween was fun. It was too cold for us!!
P.S. Happy Late Halloween!
Love Sammy Carlson
Sent on Wednesday, November 01, 2006 at 7:34:52 PM
emilyjimcarlson@msn.com
From Glenda Massey,
Fort Worth, TX
Josie,
I have a little granddaughter that is very much like you. Natalie was diagnosed with JDM on June 27th, 2005, shortly before your diagnosis. She will be four on December 19th. Your pictures remind me a lot of "Na Na." She is in a "flare" right now and is having to take lots of meds too. Natalie and all her family are praying for you and wishing you a speedy recovery.
Sent on Wednesday, November 01, 2006 at 9:11:55 PM
glendamassey@sbcglobal.net
From Alexa & Aggie,
San Francisco
Hi Josie,
I will save some of my Halloween candy for when you are feeling better. Oops my Mom says it will be stale, so I promise to send you a big bag of your favorite candy soon!! I liked your hula outfit alot. I was Medusa, a mean witch who turns people to stone if you stare into her eyes. She has snakes on her head instead of hair!! If you want to borrow my costume one day, I will save it for you. My Mom tells me everyday when she picks me up from school how you are doing. I am waiting for the day she tells me you are all better. Then we will come to visit you in Minneapolis. Or maybe you can come here. I have a trampoline, a dog named Karma, and 2 cats Liam & Jezebel. I also have a beautiful dapple pony with a white mane & tail but it's been kind of yucky cause he's been having bell aches too & some icky diarrhea!! But I will let you ride him when you come to visit. Please get better soon so we can play!
Love, Alexa
Sent on Wednesday, November 01, 2006 at 11:19:57 PM
aiv1026@aol.com
From Aggie,
San Francisco
Hi Josie, Evey, Trip, and Henry,
Loved the Halloween pictures... you guys looked great! We had a good time trick-or-treating in this really cool neighborhood where they have contests to see which yard is the scariest, best-decorated, and even Jack-o-Lantern carving. We carved a bunch of pumpkins over the weekend. Can you believe that was the first time Uncle Mark ever did that? I bought one of those big, white Cinderella Pumpkins. Word of advice... don't try to carve on of these! They are just wayyy too hard!
Alexa had a terrific idea just before she went to bed. She mentioned last year on her spring break we went up to Ely to go dog sledding. It was really, really fun! They come up with these silly names for the dogs... Alexa's favorite was Meathead. Hopefully little Jo-Jo will be feeling better by then and we can all go dog sledding together. What do you guys think? Good idea??
XOXOXOXOXO
Sent on Thursday, November 02, 2006 at 12:04:15 AM
aiv1026@aol.com
From Cynthia Benner,
Minneapolis, MN
Hello Josie,
Just thinking about you and wanted to see how you're doing. Thanks for the update. Hope you're feeling better soon.
Thoughts & Prayers!
Cynthia Benner
Sent on Thursday, November 02, 2006 at 10:09:01 AM
cynthia.benner@medica.com
From Tom and Darlene Lund,
MN
Josie, Jo Jo, we're checking in on you...we think you are about the bravest girl we know...especially one who is soon going to be 4 years old. We're praying the pain will go away the your tum tum will began to get better. We love having Berkey...he is funny...Smokey hiss at him once in a while and then the three of them lay on a blanket in the living room and sleep...We love you JO JO. Get better fast. Grandpa and Grandma Lund
Sent on Thursday, November 02, 2006 at 10:20:35 AM
From Marilyn Wilmot,
Bradenton.
Josie,
I love the hula costume!! You look sooo cute. It's nice that your whole family could be there to help celebrate the event. They must so proud of you--you are an inspiration to all of us, and you are one tough little girl! Keep up the good work.
Sent on Thursday, November 02, 2006 at 11:55:35 AM
From Amber Westerberg,
Edina
Dear Deb and Jay,
I have been thinking and praying for you so often since I heard the news of Josie. I am soooo sorry for all of you. My heart breaks for you. I am thankful that I can read about your journey and know how to pray for Josie specifically.
Sent on Thursday, November 02, 2006 at 2:45:32 PM
awesterberg@usfamily.net
From Deb Gronholz,
Nisswa
Dear Deb, Jay, Josie, Trip, Henry & Evelyn,
Sunday was the first day I went on your website...I'm embarrassed to admit that since I had known about Josie's illness from the very beginning. I spent 2 1/2 hours reading each and every blog. I really had no idea the extent of your suffering! What an inspiration you all are, especially your little Angel, Josie. She is touching many lives. I want you to know that I have been praying for you all along, and will continue to lift you in prayer each day.
Deb
Sent on Thursday, November 02, 2006 at 8:52:22 PM
grizwald@nisswa.net
From Deanna Kearns,
Largo, FL
Hi Josie,
Come on and fight little one. I know you are tired of all of this and you should be, butwe are all praying for you and with the combined strength of all of our prayers we are hoping to take away all of that pain you are in and help you get well again.
Thinking of you,
Deanna Kearns (Caitlin's Grammy)
Sent on Friday, November 03, 2006 at 6:33:14 AM
d.l.kearns@att.net
From jan g,
I have tears in my eyes, I can't stop from crying in my office, my heart is with you guys. J
Sent on Friday, November 03, 2006 at 9:11:04 AM
From LaMoure Family,
Bemidji, MN
Josie,
We hope you got the cards the kids made along with the picture of you and the other JM kids at Julia's house. Know that we continue to think of you very day. God sure did make you and your family with amazing strength and courage.
Sent on Friday, November 03, 2006 at 11:42:05 AM
LaMoure@paulbunyan.net
From tdoran,
She's got grit.
Sent on Friday, November 03, 2006 at 11:43:19 AM
From Kristina,
San Diego, CA
I am praying for you Josie...Don't lose hope. Our Lord Jesus loves her so much! Keep faith in Him and He will come through for you. My church believes in miracles (and have seen people healed!) and I have added you to our prayer list.
"And whatever things you ask in prayer, believing, you will receive" Matthew 21:22
Sent on Friday, November 03, 2006 at 12:39:58 PM
krisl247@yahoo.com
From The Wenaas Family,
Right next door to you! :)
Deb & Jay:
Continued prayers for Josie. We're praying hard! We love you guys!
Megan
Sent on Friday, November 03, 2006 at 1:09:37 PM
MMWenaas@gmail.com
From Jean Stumpf,
Pediatric Home Service
Just a quick note -- know that the staff at PHS are thinking about Josie often and following your blog to check up on her. Thank you, Jay, for your thorough updates. I wish she were having an easier time of it, and am blown away by her steadfast nature and the number of little, elfin smiles she manages in spite of her ordeal. And that hula outfit was absolutely adorable! Anyway, my best wishes to your entire family --
Sent on Friday, November 03, 2006 at 1:14:33 PM
jstumpf@pediatrichomeservice.com
From EPH,
Josie …
Josie you are such a beautiful girl,
When you’re feeling better we’ll go for a whirl…
On a bike, in a car, on a scooter or on skates,
Whatever you choose there’ll be no debates.
You’ll get to pick, you’ll be in charge
Making decisions and living so large!
You look like a princess, so little and sweet
I hope in your dreams it’s a prince that you meet.
And he tells you that you are so brave and so strong
Then he sings you a very princessy-like song!
On the pain in your tummy we don’t want to dwell
We’ll all just be happy to see you feel swell
And bossing around your brothers and sister
Even Monty and Birky (who can be like a twister)
Until then, you just rest,
Mom and Dad know what’s best:)
Every day and at night we all pray for you, Jos,
From the bottom of our hearts to the tips of our toes!
Love, EMT&A
Sent on Friday, November 03, 2006 at 1:15:39 PM
From Kathy Davis Colebank,
Pennsylvania
Dear friends,
Actually we are relatives. I am Ken and Hazel Davis' daughter. Debbie, your father, Larry, is my cousin. I knew Larry well when I was a child, although he is several years older than I am. He and Suzie were at my dad's funeral in April. I always liked Larry and Suzie. I am sorry that I didn't know you better, Debbie, but my mother tells me she always had a real soft spot for you.
My sister, Candie and I, are both ordained Presbyterian ministers. Ken is an ordained Baptist minister. We are all praying for your family and for Josie.
May God surround all of you with his presence, comfort and love during these really tough times.
Josie is one amazing little girl and you are terrific parents. I imagine it is really tough to find all the time and energy you need for work, Josie and her siblings.
Sorry I signed the book without a note earlier. I must have hit the wrong button before I got a note written.
I will continue to hold all of you in prayer.
Kathy
Sent on Friday, November 03, 2006 at 3:25:56 PM
kdcnpa@atlanticbb.net
From Jamie and family,
Honolulu
Prayers and love to Josie and family. Each day I hope to read good news about Josie. Our daughter Jamie presented with JDM at 6 months old and we lived in the hospital for 6 weeks while Jamie lingered, almost dying, while doctors tried to figure out what was going on. She had severe muscle weakness, lots of crazy gastro and liver involvement, edema, cloudy lungs, etc. Each day seemed to bring something else with it. We were in a "fog," too, not knowing where we were headed. Our journey was just a glimpse of what you're going through. After returning home and things 'calmed' down, I realized that it takes a special kind of family to experience and endure these things. Your family is a champion and I truly respect and admire your strength. Thank you for taking the time to share each day with us. By doing so, you pass strength on to our family as well.
Love to you all,
Acoba family
Sent on Friday, November 03, 2006 at 7:51:04 PM
vacoba@hotmail.com
From Karalyn, Tallie, Ryan & Bailey,
Seattle, WA
Still thinking of you, each and every day. Tallie said she wishes she could tell Josie that she knows how much an IV hurts and how it can be really scary in the hospital sometimes and she wishes she could come and visit and tell Josie not to be afraid. She said she wishes she could sing a song for Josie to help her "feel still." She also said that when she's at the hospital, sometimes she likes to pop bubble wrap, and she hopes that Josie will soon feel well enough to pop bubble wrap, too. All of our best thoughts and wishes are with you guys.
Sent on Friday, November 03, 2006 at 9:37:39 PM
karalynh@gmail.com
From Joe Doran ,
Richfield MN
Dear Josie,
I am thinking about you every day and am praying for you. I am coming to see you soon and can't wait to go camping together again. You can paint my nails next year :)
Sent on Friday, November 03, 2006 at 9:42:40 PM
jpd@mn.rr.com
From Lynn Gabriel,
victoria, MN
Dear Josie,
Blake and Faith want to say hi. They like to look at your pictures on your blog that your daddy keeps updated on how you are doing. They love to see you, and even though you can't hear their words, they are saying that "God is healing you". we think you are amazing and precious! We are of course praying for you all the days long. I am sure that when you say your prayers, you know exactly what to ask Jesus for because you can feel your ouies. as your dad says, you really are a champ! You should be very proud of yourself and who you are. You are very special with the most beautiful smile!especially as a beauitful Hula girl! Great outfit!
Take good care
keep on believing and asking Jesus to make you better, He will.
Our love,
Blake Faith Lynn Stan
Sent on Friday, November 03, 2006 at 11:53:40 PM
lrshadle@earthlink.net
From The Arnold's,
Minneapolis
Hi Josie -
Your strength is amazing! We are very proud of you. Keep fighting, and the pain will go away soon. With your birthday coming soon, I'll bet you get lots of presents!
Our prayers and thoughts are with you and your family.
Love,
Bob, Sarah, and Jillian Arnold
Sent on Saturday, November 04, 2006 at 7:03:29 AM
rja@teemaster.com
From Leigh Anne,
Maine
Hello Family,
I can totally relate the noise factor and the activity in Josie's ICU. I work in a NICU with all those tiny baby's and there is never a dull or quiet moment. The good thing with all that activity is that she is where she needs to be. Beeps and alarms and people...they are all there for her.
Please tell Josie that we are thinking of her and wishing her a strong and painless day! I am sorry that she hurts, I wish I could take it all away, we ALL do.
Much love to your family, and most of all Josie.
Leigh Anne, Justin and Caitlin (active JDMS fighter)
Sent on Saturday, November 04, 2006 at 7:58:19 AM
supajut@msn.com
From lynne,
bloomington
hang in there guys. we are with you in spirit out here. reading everything everyday, keeping you with us throughout our days. appreciating your courage and strength. and yes, jay, i would be crying "uncle" long ago. josie is amazing as are you and deb. love, lynne
Sent on Saturday, November 04, 2006 at 8:53:18 AM
lceciljohnson@yahoo.com
From Michelle Shewbridge,
Aberdeen, MD
Josie & family,
I read your story everyday..and everyday I say a prayer for you. My little girl Rachel (6) has JDM too. I wish so much I had a magic wand and could make everything better. You are such a strong and beautiful little girl. You are in our thoughts everyday. Stay strong and god bless you and your family.
Hugs,
The Shewbridge Family
Sent on Saturday, November 04, 2006 at 6:06:26 PM
chrisshew@comcast.net
From Joan and Jim Wobbleton,
Murrells Inlet,SC 29576
Have been wondering if you or a family member have thought about starting a Josie fund that we as friends could send contributions.
I'll bet that grandma Suzanne would know about how to start one.
If there is one started it would be helpful to have the address so we could do something.
Please let us know if there is one or will there be one in the future.
God bless all of you but especially that wonderful little girl Josie.
Sent on Saturday, November 04, 2006 at 7:22:59 PM
jwobb@aol.com
From Mary Doran,
Haiti
Hi Josie. I am writing to you from Haiti. I hope your tummy feels better real soon. I am praying for you. I love you. Mary Doran
Sent on Saturday, November 04, 2006 at 7:31:19 PM
From Verla,
Sun City, Az.
Dearest Josie, Jay, Deb, Trip, Henry, and Evie,
I just can't believe what is happening with you but you are all amazing. Just thought I would send a prayer: Dear Heavenly Father, we don't understand what is happening or why your precious little Josie is going through this but we know that you are with her and her family. We lift her up right now and ask for complete healing soon. Let each one of them feel your loving arms around them and please comfort and strenghten them and give them your peace. You are an awesome God and Father and I know you will anser this prayer, not because of who I am or who they are but because of who YOU are. By your Son's stripes we are healed. Praise god!!!! Bless them and we give you all of the glory in advance. In His precious name we pray beleiving. Amen
Sent on Sunday, November 05, 2006 at 1:40:36 AM
memaw-v@hotmail.com
From Leslie,
So nice to hear Josie is taking an interest in her surroundings. It is amazing to see those younger pictures of her. Please know that you are surrounded by prayers and hugs. Riley and I both talk about how we just think about Josie constantly and we are praying so fervently for time and healing. I actually bought special music that the kids and I listen to in the car as we think and pray about Josie. She's on our minds all of the time and is so dearly loved. Please be reassured about the narc dependence/weaning. If done right it really is not traumatic and she needs those narcs now. I'm sure they are very skilled at it and will go super slowly as they wean one and bump an alternate up. It's actually a "sick" things we nurses take pride in doing well because it is a tricky manuever to be sure. Hang on and hang in...Love you all!
Sent on Sunday, November 05, 2006 at 7:05:44 AM
From Lily (from Fraser),
Hi Deb, Jay and Josie,
Just wanted to let you know I am still checking back each day to see how Josie is doing. Thank you Jay for taking the time to write and let us all know how she is doing. I still think of and pray for Josie many times each day. I love the new (old) pictures of Josie - I remember the days of duct taping her diaper so she wouldn't take it off!! Praying for good things to come for all of you!!
Sent on Sunday, November 05, 2006 at 8:15:38 AM
From lynne,
bloomington
wow. another tough night. thanks jay for the old pictures of josie - that was refreshing. glad to hear she was coloring last night.
i love that you have your own room. thanks for the update. josie, you are amazing. love, lynne
Sent on Sunday, November 05, 2006 at 8:32:19 AM
lceciljohn
From Gabos Family,
Plymouth
Hello Jay and Deb and Josie,
We heard about Josie's illness from DH yesterday and have been reading through your blog since then. We are so amazed at what you have been going through. We understand a little how it feels to struggle through something like this - our daughter Kendall was diagnosed last year at age 2 1/2 with what is called a Giant Cell Fibroblastoma - basically a cancerous tumor that she has had since birth on her buttocks. In February, two weeks after the birth of our son, Cole, she had four surgeries to have it removed - about a fist size hole in her butt cheek! I have to agree with you that it is amazing to see how strong our children are when we all know that as adults we wouldn't be able to handle all the pain and the tests and the hospital stays! Kids are definately more courageous than we think they will be and they are the reason that we have to stay strong. I'm sure Josie is your inspiration and each day is one that will make her and your family stronger. We will be praying for Josie and for your family that the struggles you are going through will soon turn into triumphs over this illness. Please let us know if there is anything that we can do to help.
Love and prayers,
Mark, Julie, Kyle, Kendall and Cole Gabos
Sent on Sunday, November 05, 2006 at 11:28:45 AM
mngabos@comcast.net
From Karalyn, Tallie, Ryan & Bailey,
Seattle, WA
Sweet girl, stay strong. You are amazing.
Sent on Sunday, November 05, 2006 at 12:23:49 PM
karalynh@gmail.com
From Tom and Darlene,
US
We're home josie...and we're so worried about you, the first thing Grandpa and I did was read about you...Mon and Dad...we'd love to serve you...612/861-5519, Iove you all Grandpa and Grandma Tom
Sent on Sunday, November 05, 2006 at 5:54:53 PM
lundlink@mac.com
From bill,
We are continuing to send positive wishes and prayers your way. Donna and I had a chance to see our daughter at school this weekend and offered some special prayers for Josie and family at the Dominican Chapel at Providence.
Sent on Sunday, November 05, 2006 at 7:10:28 PM
From The Heilmans,
Lakeville
We just want you to know that we are checking in on you and continuing to send prayers your way. Jay, we so appreciate that you share with us all the details about Josie. It is such a loving gift to her and to all of us. We especially loved the pictures of Josie so healthy and happy! Glad to hear that in spite of all the things going on that she felt like coloring and chatting again.
Love to all.
Lisa Rich Lucas & Isaac (and Murphy)
Sent on Sunday, November 05, 2006 at 9:06:04 PM
lheilman@frontiernet.net
From Amina,
Chanhassen, MN
Josie,
You are one beautiful and brave precious child.
A friend from Westwood sent a link to your web paged and asked me to pray for you. You are such an inspiration and your family is so loving.
I pray that things go well for you and that God heals you.
God bless you and your family.
Amina Rinkes
Sent on Sunday, November 05, 2006 at 10:42:20 PM
amgharbi@yahoo.com
From Jamie & family,
Honolulu
Hooray for a good day! Hoping for more to follow!
Sent on Monday, November 06, 2006 at 12:53:24 AM
vacoba@hotmail.com
From Lynn Gabriel,
victoria, MN
HALLELUJA!!! You go girl! You keep confusing those doctors in a good way. they'll figure out that it is Jesus. It's a good thing those nurses have you to tell them how it is all done over there. Keep an eye on them. ;-) I think you will be ready to graduate from med school after this ordeal, it's an education beyond what they get in med school for sure. Keep believing Josie! God is healing you. Sass away, look out world here comes Josie!
Love
Blake, Faith, Lynn, Stan
Sent on Monday, November 06, 2006 at 1:29:39 AM
lrshadle@earthlink.net
From Riley McKeown,
Richfield, MN
Hi Josie, It's soooooo good to hear you had such a good day yesterday. I'm going to come see you soon. I need a new coat of polish on my toenails. Hope your days keep getting better and better. We love you Josie.
Riley and family
Sent on Monday, November 06, 2006 at 4:00:41 AM
RMcKeown1@mn.rr.com
From Mike Hotz,
Minneapolis
So happy to see Josie's smile and read the news of the day!
Bless you all!
Sent on Monday, November 06, 2006 at 6:45:19 AM
mikeh@cpconline.org
From lynne,
blmgtn
yeaaaa! so glad for a better day. so so happy to read that this morning. hope today is a good one too. i love to see her coloring and think of hearing her ordering everyone around. just love it. hang in there. love, lynne
Sent on Monday, November 06, 2006 at 7:11:04 AM
lceciljohnson@yahoo.com
From Janis and roger,
minneapolis
The first thing I do everyday is read about our beloved Josie. Today the sun was shining and the news was heart warming and positive. I feel I have been given a special gift. It is so wonderful and helpful for all of us out here to read Jay's blog. I am sure you are very tired when you write it, Jay, but it is so appreciated by us. It is amazing how this little girl has touched so many by her feisty battle against such a nasty disease. I hold in prayer this beautiful Adams family, each one by name, and feel your strength will prevail. I continue to live by the rule, "don't bring the future into the present", and will be grateful for this good news all day.
Sent on Monday, November 06, 2006 at 7:56:24 AM
marti009@umn.edu
From The Rynersons,
Richfield
Dear Josie and Family, and staff at Childrens- Thanks for " MAKING OUR DAY! " Keep it Up! Halleluia!! Thank you God !
Sent on Monday, November 06, 2006 at 8:07:09 AM
rynersonelectric@yahoo.com
From Gigi &Eda,
Fraser
It is wonderful that Josie is feeling so much better!!
Go Josie go!! Eda and I were wondering if Josie would like us to visit on Tuesday again. We would like to be on a regular schedule of every Tuesday around 4:00 for 10 or 15 minutes or so. Maybe Josie would enjoy the predictablility of it?. What ever you think is right or good is fine with us. Thank you so much for your daily updates they are the Best- really well writen and so informative. Josie is always in our prayers and on our minds. We so want to see Josie back at Fraser having fun. Please let us know if it is o.k. for Tuesday. H.S.phone (Gigi) is 612-798-8325. I am in the classrooms from 9-12:30.
Sent on Monday, November 06, 2006 at 8:15:16 AM
gigik@faser.org
From Jill & Gracie,
Wisconsin
Way to go Josie!!! You are a fighter aren't you. We are an amazing little girl! We will be sending you a box of fun things that will keep you busy while you get better.
BIG HUGS,
Jill and Gracie(dx 11/2000)
Sent on Monday, November 06, 2006 at 8:19:02 AM
jillmickelson@aim.com
From Leigh Anne,
Maine
My Dear Josie,
How amazing you are! Good for you. Fight, fight, fight! Your dad really made our day here by telling us about your day's. I dare say that you are my hero Miss Josie! I hope today brings you an even better day than before. Don't do too much though, keep your strength to heal. Caitlin wants me to put you on a plane so you can come to our house. She wants you to see the snow. When we woke up this morning the ground was covered with that beautiful white fluffy stuff. I knew it was the start of a really great day!
Hang in there, the positivity and prayers are doing what we had hoped. So are you...keep up the good work.
Much Love,
Leigh Anne, Justin and Caitlin (current JDMS fighter)
Sent on Monday, November 06, 2006 at 9:17:50 AM
supajut@msn.com
From Kris,
Richfield
Way to go Josie!!!
We have some art stuff to bring to the hospital for you.
I got these cool pens that write on windows--perhaps you can put the nurses orders on the window!
I think Riley and Joe (along with Paul) have started something...perhaps you can paint ALL the boys toenails as soon as you are able! You tell us the colors you want and we'll get the boys to agree! (or else!)
Annika would LOVE to help you paint toenails! I guess you can paint mine, too--since I'm not much of a makeup kind of gal! I would be honored to wear polish for Josie!!!
Keep up the fight! We are still sending constant wishes for healing and relief~
Sent on Monday, November 06, 2006 at 10:01:40 AM
kris@teamfriday.com
From Joan and Jim Wobbleton,
Murrells Inlet,SC
Wow what a girl to be up and coloring and telling the nurses what to do. We can only hope and Pray that each minute of each day the Good Lord is holding you in his hands and making you able to deal with all that you have to endure.
Jay the blogs are wonderful. My husband and I read them each and every day and continue to be inspired by what is going on in your life. The blogs are so informative and with some humor.
Prays for the whole family and especially Josie and the doctors who have to make the right decisions.
Joan and Jim Wobbleton
Sent on Monday, November 06, 2006 at 10:06:22 AM
jwobb@aol.com
From The Camerons,
Chaska, MN
Josie and Family,
We have heard about you through Lynn Gabriel and have been very moved by the trial you are going through. My girls, Annika (4) and Kiera (3) pray for Josie often--at dinner, bedtime, just now as we looked at your updated pictures. I just wanted you to know that we are one of many families praying for you!
The Camerons
Sent on Monday, November 06, 2006 at 10:25:19 AM
taria@chaska.net
From Carol Larson,
Arizona
Good Morning from Arizona..I arrived home last night and I can't stop thinking about your little angel, and your whole family. You people are so amazing. I prayed for Josie most of the night on Saturday, as I knew it was a horrific day. Wow..I'm so glad she has had a better day and you can try to relax a bit. She looks much better. Thank you Jay for all the updates. What a great thing for you to do and with such courage and even a little humor. It was such a priviledge to meet you both and little Evie, and Henry and Trip. Evie is adorable and so smart. Shelly just loves you all so much as here own family, and I can understand why. God be with you all and I am praising God for the good news. Lets all pray that it continues. Love Carol
Sent on Monday, November 06, 2006 at 10:31:55 AM
larsunhome@aol.com
From Kay,
Richfield
Dear Josie,
You are making me smile today! I am so glad that you had such a great day yesterday. Keep up the good work. Jay, thank you so much for letting us all know what it going on. We will keep praying for you all. Jojo I am waiting to get my nails painted again too!
Sent on Monday, November 06, 2006 at 10:54:29 AM
kstalcar@cojlbc.org
From Mary Doran,
Haiti
HI Josie. I am so glad you are feeling a little bit better. We are working hard in Haiti. I think of you often. I am praying for you. I love you. Mary
Sent on Monday, November 06, 2006 at 2:48:29 PM
From Stacey Mitchell,
Fort Worth, TX
Hello. I just wanted to first let you know that I'm starting a prayer chain for little Josie, I hope you don't mind. I have friends in Virginia, Idaho, Indiana and here in Texas that will pray for her. My niece, Natalie, is the same age as Josie and was diagnosed with JDM just a few days apart from Josie. I want to thank you so much for keeping such a detailed log of Josie's journey. I realize little is known about this disease and many will benefit from the information you all have shared. I will certainly keep Josie, and all others fighting this terrible disease, in my thoughts and prayers. Bless you all and keep staying strong. You all are an incredible family!
Sent on Monday, November 06, 2006 at 3:08:09 PM
stacey.mitchell@verizon.com
From Sarah Madsen,
Eau Claire, WI
Hi Josie and the rest of the Adam's gang! It's Sarah Madsen, Tom and Karen's daughter. I was home this last Sunday from UWEC and they informed me the severity of Josie! You're all in my prayers- my bible study will be praying for you guys and your day to day lives! Much love, Sarah
Sent on Monday, November 06, 2006 at 3:29:12 PM
madsensl@uwec.edu
From Anita Burg,
Edina
Dear Deb and Jay,
Please let me know if I can help you out in any way! I could pick up your kids from school, bring them to my house, bring them to your house......with all your time in the hospital with Josie it must be so tough. Call me! 952-925-4985. I can leave work as early as 2:30 some days if I know in advance.
Take care....I'm praying for you!
Love,
Anita
Sent on Monday, November 06, 2006 at 4:45:12 PM
aburg@vischool.org
From Jocelyn,
Burnsville
Josie- I read you stood up today! Next time will you count to 10 for me? I'm excited to read you are standing :)
Sent on Monday, November 06, 2006 at 6:00:00 PM
jlian1@fairview.org
From Jennifer Terwilliger,
Edina, Mn
Josie,
I am Tom Lund's daughter (across the street) and I want you to know I have been praying for a miracle for you! I read the information from today (Mon, Nov 6th) and I praise God for the encouraging news. I pray that from this day forward, you will continue to get better and better!
You have a beautiful smile!
I will continue my prayers for you.
Sent on Monday, November 06, 2006 at 8:33:38 PM
nift@comcast.net
From Stellons,
Richfield
Way to go, Josie! We're praying for you!
Sent on Monday, November 06, 2006 at 8:50:43 PM
stellone@aol.com
From Teresa Vortouni,
Irvine, California
Hi,
I read your entries everyday! I hold my breath before I read each one, I am so happy your family is having a good day for once. I have Josie in my prayers with my daughter every night and daytime. She is such a beautiful little girl. My daughter is 7yrs old and was diagnosed on 4-27-06 with jdm, two days before her birthday, it is such a roller coaster for me I can't even imagine what it is like for your family. God bless you all, you will be in my prayers.
Teresa Vortouni (daughter Alyssa Vortouni)
Sent on Monday, November 06, 2006 at 10:14:20 PM
flos4life@cox.net
From Tricia Wendorf,
Richfield
This is the break we were asking for! Great news, Josie - so glad you had a good day. We'll pray for lots more!!
Tricia, Steve, Kyle, Gavin and Meghan Wendorf
Sent on Monday, November 06, 2006 at 11:08:17 PM
tleewendorf@yahoo.com
From Jamie & family,
Honolulu
Tears of joy for another great day!
Sent on Monday, November 06, 2006 at 11:22:08 PM
vacoba@hotmail.com
From Paul,
Richfield
Hey Josie,
You look great!!
We are so relieved to hear you are feeling better these last couple days.
I can't wait for the next fingernail session with you. Will you paint two nails this time?
Keep battling kid. You are an inspiration to us all.
Love,
Paul
Sent on Tuesday, November 07, 2006 at 12:30:35 AM
paulddoran@mn.rr.com
From Verla,
Sun City
THANK YOU GOD!!!!!! PRAISE THE LORD!!!!!! We are praying believing that you will conitinue to heal Josie and comfort the family and give them their strength. Amen.
Dear Josie, Jay, Deb, Trip, Henry, and Evie,
We ae so thrilled to hear that You Josie have had two good days in a row. Continue to fight and get better. You must all be glad to have some good news and see Josie doing better. Thanks Jay for the wonderful updates. Take good care all of you. We love you and are praying for you. You are all an inspiration to the rest of us.
Sent on Tuesday, November 07, 2006 at 12:42:05 AM
memaw-v@hotmail.com
From Paula Vicker,
Jay & Deb -
I was so excited to read the good news over the past couple of days... Even better days are ahead. Be strong!
Sent on Tuesday, November 07, 2006 at 6:05:01 AM
From joan jim wobbleton,
murrells inlet,SC
WOW!!!!! WHAT CAN BE SAID FOR 2 DAYS OF FEELING BETTER? PRAYER IS POWERFUL. KEEP PRAYING!!!
IT'S SO GOOD TO SEE HER SMILING AND BEHAVING LIKE SOMEONE WHO DOES FEEL A LITTLE BETTER.
WE WILL WATCH AND SEE AND PRAY.
JOAN AND JIM WOBBLETON
Sent on Tuesday, November 07, 2006 at 7:22:07 AM
jwobb@aol.com
From The Belchaks,
Albuquerque, New Mexico
Great News!!!!
Keep it coming, Josie!!!
Much Love,
Tim & Mona
Sarah, Jacob & Caleb
Sent on Tuesday, November 07, 2006 at 7:52:44 AM
tabinabq@comcast.net
From Deanna Kearns,
Florida
Hey Josie,
I'm so proud and relieved that you have come such a long way. It is great to see you smiling. I know you aren't out of the woods yet, but you are such a little fighter that I know you will be soon. I'm still praying for you every day and hoping for the best for you. Hang in there parents. You both amaze me.
Thinking of all of you,
Deanna Kearns
Sent on Tuesday, November 07, 2006 at 9:53:00 AM
d.l.kearns@att.net
From Swetalas,
Beautiful Residential Richfield
We're still out here prayin' for your family!
Sent on Tuesday, November 07, 2006 at 10:14:26 AM
dswetala@hotmail.com
From Marilyn,
Florida
Great news!!! We will continue to monitor daily, and hope the trend continues. Looking good!!
Sent on Tuesday, November 07, 2006 at 11:02:08 AM
MCFWilmot@hotmail.com
From Beth Stellon,
Richfield
I'm not entirely convinced this turn around isn't the work of leprechans. Josie just needed to win them over with that great smile!
Sent on Tuesday, November 07, 2006 at 11:41:59 AM
stellone@aol.com
From Aggie & Alexa,
San Francisco
Jo-Jo YOU ARE OUR HERO!!!!
Every morning the first thing I do is check your blog (and pray for you). And every night before I go to bed I check again (and say a prayer for you again). In between, I think about you all day long & hope that you're having a good day. You should have a cape like SuperMan with a big "G" in the middle for SuperGirl!!! I think you have as much, if not more, strength than the old guy!
Please tell your daddy how much we all appreciate his updates. I get so worried when we don't hear anything, even for a day. Oh, I almost forgot... Alexa wants to know what your favorite animal is so that she can draw you a picture & sprinkle it with magic fairy dust to make you all better! She is sure it will help. Whenever she has something difficult to do, she puts some on her head to remind the fairies to stick close to her. She swears it works!
Sent on Tuesday, November 07, 2006 at 11:48:44 AM
aiv1026@aol.com
From Ed & Jackie Hibler,
you know where!
It's Grampa and Gramma Jackie!
Happy for the improvig news. We watch your daily blogs with keen interest and deep anxiety.
No little girl or her parents should have to go though all this incredible stuff.
Our daily prayers are with you all. Hugs to y'all!
Love and hugs,
Gramps and Grams
Sent on Tuesday, November 07, 2006 at 1:00:35 PM
edhib@sti.net
From Wes Browning,
Athens, TX
I am so sorry for what Josie and the family are going through. I'm trying to write but more tears come than words. My daughter has JDM also and I am so encouraged by the story of others. No matter what life throws at us God will always continue to bless. And I pray he continues to bless your family. Sincerely, Wes Browning, father of Gracey
Sent on Tuesday, November 07, 2006 at 3:06:51 PM
wesbrowning@yahoo.com
From Tom and Darlene Lund,
us
YES!! Josie...you're our Miracle...we are looking forward to visiting you. We love you, Grandpa and Grandma Lund
Sent on Tuesday, November 07, 2006 at 5:11:20 PM
dlund@lssmn.org
From Becca(Rebecca Lotito),
Julian,Ca
Hey Josie,
It is Becca in CA.I hope you get better soon. Hope to vist you soon.
Love Becca
Sent on Tuesday, November 07, 2006 at 9:11:48 PM
biloxibaby94@yahoo.com
From Tracy Caraker,
Spring Hill, FL
YEAH JOSIE!
It's so wonderful to see your smiling face again! Hang in there Princess. You're doing WONDERFUL!
Mom & Dad, you've got an amazing little girl. The courage you have shown is amazing to all of us. Not only is Josie an inspiration, but you are too. Take care!
Sent on Wednesday, November 08, 2006 at 6:09:04 AM
tcaraker@tampabay.rr.com
From Lisa Moruzzi,
Saugerties, NY
I just wanted to let you know I've been reading about Josie ever since my daughter Danielle was diagnosed on August 16th, 2006 at age 11. I pray that your little Josie wins her battle with DJM. I know how tough it can be.
God bless your family and stay strong.
Lisa Moruzzi
Sent on Wednesday, November 08, 2006 at 6:13:21 AM
LJMoruzziRN@hvc.rr.com
From lynne,
blmgtn
hi josie, jay and deb. thanks for the good posts back to back. i love the pictures. she looked like a different girl yesterday, sitting up coloring! and your comments, jay, about mothering were so good. keep it up guys. you are doing great. josie, you are amazing. sending love to you. lynne
Sent on Wednesday, November 08, 2006 at 7:02:08 AM
lceciljohnson@yahoo.com
From Shelly Doran,
Richfield
Josie,
I love the picture that your dad posted today. You look just like ET when he was hiding in the closet, only you are much cuter!!
It is good to see you smile, keep up the fight!!
Love,
Shelly Doran
Sent on Wednesday, November 08, 2006 at 10:20:46 AM
doran-home@mn.rr.com
From Leslie Mckeown,
Da-Dada-Daaaa!!!It's SuperJosie!! It's also super that you are feeling well and getting stonger! I wish I could have come to see you last night with Riley but I sure was thinking about you. Did he give you a big kiss like I told him to? I hope he told you it was from ME! I sure love you Josie and your whole family, too. Keep those nurses on their toes (and those doctors too.) Tell Daddy thanks for keeping us up-to-date and tell Mommy that I am really thinking about her and hoping she is getting a little rest.
Sent on Wednesday, November 08, 2006 at 1:23:35 PM
From Lindsay Sumrow,
Minneapolis
Dear Precious Josie and Family,
Little One, you are an inspiration to me and my family as we have kept up with your struggles and triumphs. Our hearts and prayers are with you and your family and we look forward to hearing about the many more triumphs to come!!!
Sending bundles of love your way,
Lindsay
Sent on Wednesday, November 08, 2006 at 2:14:27 PM
lsumrow@moneygram.com
From The Wenaas Family,
Right next door!
Keep up those great smiles, Josie!! We love you and are continually amazed by your strength and gusto!!
Hugs and love,
Megan, Jason, Bridget & Molly Rose
Sent on Wednesday, November 08, 2006 at 3:25:28 PM
MMWenaas@gmail.com
From Cynthia Benner,
Minneapolis, MN
Woo-Hoo! Way to go Josie!
Sent on Wednesday, November 08, 2006 at 5:31:56 PM
cynthia.benner@medica.com
From Ruth Taylor,
Cologne, MN
Deb and Jay,
I attend Westwood and heard about Josie through Lynn Gabriel in our Mops group. My family and I consider it such a privilege to be able to pray for sweet Josie and your family. My kids, Ellie (4) and Logan (2), remind me several times daily that we need to "check on Josie" so off to the computer we go. We have poured over her story and every one of her pictures and have grown to love your beautiful little girl. Thank you so much for sharing her story and pictures. What an incredible journey this has been for y'all thus far! We will continue to pray for Josie and your family and will eagerly watch for new updates.
Just as God told Joshua (many times): "Be strong and courageous! Do not tremble or be dismayed, for the Lord your God is with you whereever you go."
Blessings to you,
Ruth, Mickle, Ellie & Logan Taylor
Sent on Wednesday, November 08, 2006 at 11:22:36 PM
taylornmn@gmail.com
From Aggie,
Hang in there, Josie. I see today wasn't a great day, but I think that nasty old blood blister in your belly is realizing it's no match for you. I think it's getting ready to leave your tummy & then you'll be feeling better again. I wish I was there to give you, your mommy, and daddy big hugs. I know you all are so very tired. But keep fighting the fight little girl, and we'll all keep cheering for you from all over the country. XOXOXOXOXO
Sent on Thursday, November 09, 2006 at 1:14:23 AM
aiv1026@aol.com
From Leigh Anne,
Maine
Hello Josie,
I am sorry that your belly hurts today. I hope that it feels better really soon. Hang in there princess. You are doing just fine.
The snow is all gone here in Maine. Now it is raining. Caitlin is wearing her new footy pajama's, they have snowmen on them. She loves footy pajama's. Do you?
Take care little one, we are thinking of you often. We hope that you feel better soon.
Leigh Anne, Justin and Caitlin
Sent on Thursday, November 09, 2006 at 6:55:54 AM
supajut@msn.com
From Beverly Holsing,
Aberdeen, S D
Dear Friends,
Leslie has kept us informed daily about Josie and her family. Both Gene and my bible study groups are keeping all of you in our prayers. The Lord is gracious and merciful and hears us when we come to Him. We happen to have a cousin (Deb Holsing) who had the same disease and struggled at that same hospital. This was in the late 60's early 70's. She is now a music teacher, married and the mother of two beautiful daughters! Our prayer is that God would give Josie the same healing and restore her to health. Take care and may God hold you close in the shelter of His loving arms.
Bev Holsing (Leslie's Mom)
Sent on Thursday, November 09, 2006 at 10:21:11 AM
bholsing@nvc.net
From Jennie Korsbon,
Minneapolis, MN
Hello Adams family,
I just wanted you to know that your family and Josie are in my thoughts daily. I have been praying for you. Josie I know that we do not know each other but I hope you get better real soon. Stay strong!!!
Jennie Korsbon
Sent on Thursday, November 09, 2006 at 1:28:32 PM
jenniekorsbon@mn.rr.com
From Mira,
Canberra, Australia
Hi there
we read your news daily and pray for the best all the time. With regard to Josie getting a bit more exercise, I thought I should mention, in case it has been overlooked, the need for daily stretching to prevent contractures while she has been sedentary. Our son needed to wear splints to bed to stop his calf muscles contracting (we noticed he had trouble walking normally first thing in the morning and then the physio realised it was his muscles shortening overnight. The splints (we called them 'foot beds' gently stretched the muscles while he slept). Kind regards, and best wishes to you all, Mira, Les and Michael (aged 8)
Sent on Thursday, November 09, 2006 at 7:17:10 PM
lesmira@bigpond.com.au
From Karen, Bill, Jake, Nate and Luke Brown,
Eden Prairie, MN
Dear Josie, Deb and Jay,
I finally logged on to your webpage and have a small glimpse into your lives and Josie's situation. She is so adorable. Your love for Josie just shines right through your webpages. Just wanted you to know that the Brown family is thinking of you and praying for you.
Sent on Thursday, November 09, 2006 at 10:37:33 PM
klebrown@comcast.net
From Rosalie Davis,
Philadelphia
I just want you to know I check your blog everyday and Josie's is in our prayeres. May God give you the strength to get through this.
P.S. Grandmother of Alexandra Hackney - age 11
It will be three years next week for Alex and her
battle with JDM.
Sent on Friday, November 10, 2006 at 11:51:44 AM
JRD1221@aol.com
From Carlson's,
Minneapolis
Glad to hear things are going a litle better! Our thoughts and prayers are always with you.
Love Emily, Jim, Sammy and Nisi
Sent on Friday, November 10, 2006 at 12:45:27 PM
emilyjimcarlson@msn.com
From Lynn Gabriel,
Victoria,MN
Dear Josie and family,
We pray that the CT scan proved an internal miracle. that all is well and gone.We love to see your precious face each day when we check in to see how you are doing! You are a brave and strong girl Josie! Blake is wanting you to play trains with him when you are feeling better. ;-)
God Bless you and keep you.
Love
Lynn, Blake Faith Stan
Sent on Friday, November 10, 2006 at 3:57:14 PM
lrshadle@eartyhlink.net
From Sheryl Brown,
Aberdeen, SD
Josie was brought to our attention in my Bible Study. We are praying for Josie. What a precious little girl. oh, how I pray that God will touch her with his healing hand, give wisdom to the Doctors and give you all strength for this trial you are going through.
A friend in Christ
Sent on Friday, November 10, 2006 at 9:41:51 PM
svb@abe.midco.net
From Tom and Darlene Lund ,
us
Josie, jo Jo...we're pulling for you! Keep up the good work of getting better. We love you...just like that old bumble bees eyes say...he has a great smile to greet you. Grandpa and Grandma Lund
Sent on Saturday, November 11, 2006 at 8:15:08 AM
lundlink@mac.com
From Megan Wenaas,
Right now? Chicago. Normally, right next door!!
Hi Jo Jo!!!
It's Megan from next door!! I'm in Chicago right now taking care of my mommy who also had surgery (not the kinds you've had, but surgery regardless.) My little brother (like Henry and Tripp to you) was nice enough to let me use his computer to check up on you!!!
Please know the prayers are coming fast and furious from all over the Country, and Chicago's got a huge contingent of prayers coming your way.
We love you and your family sweetie!!! Keep on fighting!!
Love,
Megan
Sent on Saturday, November 11, 2006 at 9:42:29 AM
MMWenaas@gmail.com
From Jill and Gracie,
Wisconsin
Hey sweet Josie!
We sent your package out on Thursday so hopefully you should get in soon. Just a little something to keep you busy. Know that we are thinking of you and praying often. Gracie made you a card and put her picture in it so you can see what she looks like. Every time we go to church she says a special prayer for you!!!
BIG BIG HUGS!!
Jill and Gracie (11 yrs. old)
Sent on Saturday, November 11, 2006 at 10:48:46 AM
jillmickelson@netscape.net
From Marilou,
Edina
We are all still reading about you, thinking about you, pulling for you and admiring your sweet pictures and strong family. We pray tomorrow will be a better day.
Sent on Saturday, November 11, 2006 at 9:31:38 PM
mariloupederson@hotmail.com
From Dorans,
Richfield
Hi Josie,
It sounds like you are still in a lot of pain. We are so sad to hear that. You are such a wonderful little girl and have so many people accross this world praying for you and hoping you will catch the break that you so deserve. Just know that we all love you and want you to come home!! We are constantly thinking about you.
Love,
The Dorans!!
Sent on Sunday, November 12, 2006 at 12:41:26 AM
doran-home@mn.rr.com
From McKeown & Doran,
Wacota, SD
Jay, Deb and family
Paul and I are reading your blog at about 3:00am Sunday morning from South Dakota. We are pulling for you and your family; of course. PLEASE let us know if there is ANYTHING we can do for you!!!!! We have been thinking of you on our entire trip.
Riley and Paul
Sent on Sunday, November 12, 2006 at 3:20:05 AM
From Caroline & Ed Gaiser,
Fresno, CA
Dear Chip & Deb,
We're sending loads of love and prayers to you, Trip, Henry, Evie & especially Josie. We pray that Josie will come through this latest crisis and feel better soon. She is an amazing little girl with incredible strength and courage.
Love to you from Fresno, California,
Caroline & Ed
Sent on Sunday, November 12, 2006 at 3:57:33 AM
c_gaiser@hotmail.com
From Leigh Anne,
Maine
Hi Josie!
It's raining here in Maine. Pretty cold too. If it keeps it up, when the temp drops tonight we could get some snow! Caitlin wants to come and see you still. She wants me to tell you that she hopes you feel better. When is your birthday? Caitlin's is in August, on the 26th to be exact. I was just wondering if your day's were near each other.
Hang in there kiddo. I know you hurt and I know you must be tired. Try and think happy thoughts. Caitlin likes a show with charecters named Peep, Quack and Chirp. They make her laugh and when she isn't feeling well, they help to chear her up.
We are thinking of you, take care and hang in there.
Much Love,
Leigh Anne, Justin and Caitlin (current JDMS fighter)
Sent on Sunday, November 12, 2006 at 12:22:10 PM
supajut@msn.com
From Mary Doran,
Haiti
Hi Josie! I have not been able to read about your progress since Wed. I'm sorry your tummy still hurts. I am thinking of you every day, and I send my love and prayers to you. Say hi to Mom and Dad from me. Love you. Mary Doran
Sent on Sunday, November 12, 2006 at 3:47:46 PM
From Mary Doran,
Haiti
Hi Josie! I have not been able to read about your progress since Wed. I'm sorry your tummy still hurts. I am thinking of you every day, and I send my love and prayers to you. Say hi to Mom and Dad from me. Love you. Mary Doran
Sent on Sunday, November 12, 2006 at 3:47:51 PM
From Robin G,
Saint Louis, MO
Dear Josie,
I have had pancreatitis and that is why your info showed up in my mailbox and now I am praying for you. I'm sorry that you have to suffer in this way but am praying for a complete recovery and peace to you and your family. God be with you! -- Robin G
Sent on Sunday, November 12, 2006 at 7:44:05 PM
robbob2930@yahoo.com
From tom and darlen ,
richfield, Mn
Dear Adams you are in our prayers and we want Josie to get better...we know Josie is a blessing to all of us. we love you. tom and darlene Lund
Sent on Sunday, November 12, 2006 at 7:44:24 PM
lundlink@mac.com
From lynne,
blmgtn
hi guys. back from the weekend. sorry to read that josie is slipping. so sorry to hear about her pain, blood and all. sounds like everyone there, and that's quite an amazing team, is doing the best they know to do...
love, lynne
Sent on Monday, November 13, 2006 at 7:33:45 AM
lceciljohnson@yahoo.com
From Gammie,
Bradenton, Florida
My Beloved Josie,
I can't believe it's been a week since I left your bedside. When you picked up little "Horny" that I brought, watching you hold him to your face, seeing how soft he was, melted my heart. It was hard to see you in such pain, but when you squeezed my fingers and held on, looking into my eyes, and I saw your strength, I knew you'd get better ...and you did. A few days later when I saw you sitting up and coloring, I felt all the prayers were being answered. Your dad tells me now you've had a step back, but with all your "moxie" and the continuing prayers, you'll soon be well. I know you will. When you do, you'll be able to come to my house again. This time, maybe we can go and see Mickey and the gang, and of course we can have fun at the beach. Tell Mom and Dad I loved being with them and spending some time with Trip, Henry and Evie, too. Always remember how much I love you....
Sent on Monday, November 13, 2006 at 9:17:11 AM
lee2beach@aol.com
From Andria,
Austin Texas
Hello Deb and Jay,
I just wanted you to know that I am thinking of you all. Josie and your whole family are in my prayers.
Love from Texas,
Andria
Sent on Monday, November 13, 2006 at 12:32:26 PM
akmdvm@yahoo.com
From Anne Coblentz,
Novi, MI
Hi Josie, My name is Anne, I am Ray Alexander's niece. I read how you are doing every morning. I think you are the strongest and bravest little girl I have ever known, not to mention the cutest!!! I know you will be feeling so much better very soon. You are so special Josie and so is your family. Please know that you are in my prayers, and God Bless you.
Get better soon.
Anne
Sent on Monday, November 13, 2006 at 7:53:40 PM
lcoblentz@twmi.rr.com
From Rebecca Lotito,
Julian,Ca
Dear Josie, This past weekend Rachel,Robyn,Anna and myself had a bake sale fund raiser for you. We raised $2,303.00. I hope this will help with anything you and your family need. Don't worry we are not done! We are having a dinner at the American Leagon and we are trying to get a motor cycle ralley ride going over to Arizona. We are praying that you start to feel better soon. You are such a trooper. I can remember when I was in the hospital and know it is not any fun. We miss you and your family very much. Love your cousin Rebecca
Sent on Monday, November 13, 2006 at 9:15:50 PM
klotito@yahoo.com
From Mary Doran,
Haiti
Hi Josie. I am so glad you are finally able to drink a little water. I will be heading back to Minnesota today. I hope your day continues to be a good one. I love you. Mary Doran
Sent on Tuesday, November 14, 2006 at 6:26:34 AM
From Vickie Hanson,
Largo, Florida
I have been following this Angel. She is a gift from Heaven.
Prayers are with you Josie. I work with Deanna Kearns who isCatlin's grandmother
Sent on Tuesday, November 14, 2006 at 6:57:08 AM
pinball@tampabay.rr.com
From Harry Ward,
Crofton, MD
Josie,
Our thoughts and prayers are with you and your family as you struggle daily with these formidable challenges. I'm so proud to read your story and know that there are young people of such great strength in this world. You are a true inspiration to every one of us in our daily approach to life. I'm sure that times will get much better for you in the near future.
Love,
Harry, Brittain and Tayler Ward
Sent on Tuesday, November 14, 2006 at 6:59:58 AM
harrypward@earthlink.net
From lynnnne,
blmgtn
good morning josie. nice to see your smiling face! and i love that you are loving water. wow. how simple is that! thanks for making mesmile this morning. love, lynne
Sent on Tuesday, November 14, 2006 at 7:07:17 AM
lceciljohnson@yahoo.com
From Leigh Anne,
Maine
Dearest Josie,
I am so glad that you are feeling better today. And WATER! How wonderful for you. I hope that your good day continues. We are thinking of you always and are sending you lots of love and happy thoughts. Hang in there kiddo, you are doing a great job!
Love, Leigh Anne, Justin and Caitlin (current JDMS fighter)
Sent on Tuesday, November 14, 2006 at 7:12:53 AM
supajut@msn.com
From Joan/Jim Wobbleton,
Murrells Inlet,SC,
You just never know about Josie. It is wonderful to see her in that pink hat having a drink. I'll bet it is like being in a desert and being so parched and now to have a sip of this liquid necter.
We get up every morning here on the east in SC and go to the computer and read the blogs. It is with fear and anticipation that we read the comments of the day before. Thank you Jay for your willingness to share this time of your families life with the world.
We continue to pray and tell others to do it also.
Looking forward to the name of the fund that we could contribute something to Josie.
Joan and Jim Wobbleton
Sent on Tuesday, November 14, 2006 at 8:09:57 AM
jwobb@aol.com
From Gigi and Eda,
Fraser
Good morning Josie- way to go on the water drinking- I love water;especially cold water! We are so happy you are feeling better! We posted your photo- the one with your
pretty face and all the stuffed animals friends; it says "Go Josie Go!!". Everyone at Fraser loves you.
Eda and I would like to visit you on Wednesday this week if it is o.k. with you. We would like to come 4:00 please have your mommy give us a call if it is o.k. with you.
Sent on Tuesday, November 14, 2006 at 8:27:24 AM
Gigik@fraser.org
From Mary,
Fraser
Dear Deb and Jay,
Just a sugestion...When my daughter, Hannah, was hospitalized at Children's about 11 years ago, a Child Life Specialist suggested her older brother (age 10 at the time) tape record reading Hannah's favorite books. When he wasn't at the hospital, the tapes were played. The sound of his voice and the stories calmed Hannah immensely. Perhaps this is a way Josie's siblings can help in her care.
With continued prayers...
Sent on Tuesday, November 14, 2006 at 10:15:48 AM
maryk@fraser.org
From Kay Stalcar,
Richfield
Dear Little JoJo,
I am so glad you are feeling alittle better. I am so sorry you had such a rough weekend. I love you little pink hat, it's a great color for you. I hope to come and see you again soon, I will bring you some new lip gloss and nail polish.
Sent on Tuesday, November 14, 2006 at 10:48:36 AM
kstalcar@cojlbc.org
From Stellons,
Richfield
Josie, you look super in your pink hat and enjoying your water. We're cheering for you!
Sent on Tuesday, November 14, 2006 at 11:37:13 AM
StellonE@aol.com
From The Farina's,
Florida
Josie,
We think of you often even though we have never met but we have heard of you and think you are so very strong and beautiful. God Bless You and God keep you stronger than anyone could ever expect!
Sent on Tuesday, November 14, 2006 at 6:15:42 PM
dawg_04_98@yahoo.com
From The Madsens,
Richfield
Josie,
We are lifting our water glasses with you to clink a cheers for this upward trend!
Peace, The Madsens
Sent on Tuesday, November 14, 2006 at 10:56:13 PM
madsen@mcleodusa.net
From The Murray Family,
Carver,MN
Josie, We heard about you from Lynn Gabriel / my mops leader at Westwood Church. My daughter Lauren (3 years) and I pray for you every night. We wish you a speedy recovery!
Sent on Wednesday, November 15, 2006 at 12:10:14 PM
jenette_g@hotmail.com
From Sheila Laughlin,
Lynchburg, Virginia
Hi Josie!
You don't know me, but I found you because my aunt, Mary Beth works with your aunt in California.
The day I went to your weblog, you were feeling so very yucky. You are such a brave little girl!
I was glad to see that you have had a couple of days of not feeling so yucky and got some ice chips! Yay Ice Chips!
I will be watching your weblog and praying for you!
Sent on Wednesday, November 15, 2006 at 2:34:27 PM
squeebles@mindspring.com
From Ken Davis,
Franklin TN
Josie,
Somewhere back a generation or two my blood shares a common source with the precious blood that flows in your vains, Josie. Your grandpa Larry is my cousin. Larry's mother is my fathers sister. Josie, I am encouraged by our kinship that I might have even a hint of the fight and spirit you have.
I am sitting in a hotel room, amazed at your beautiful pictures,amazed at your strength and grace, and the strength and grace of your parents and those who love you. One peek at your face and I add my name to that list. I am amazed at the tears that stain my desk, as I pray for all of you. You inspire and humble me. I will visit your site often. I will pray daily.
My love and thoughts and prayers to all of you from a distant relative who is closer now.
Ken Davis
Sent on Wednesday, November 15, 2006 at 3:18:28 PM
ken@kendavis.com
From Ashley Aldrich,
Josie, I miss you and hope that you feel better really soon. We are sending a present to you at the hospital. Hope you get better soon Kisses and Hugs.
Love Ashley Aldrich
Sent on Wednesday, November 15, 2006 at 7:58:54 PM
BugAldrich@yahoo.com
From Lynn Gabriel,
victoria, MN
dear Josie,
You are truly God's child. It is absolutley amazing what you go thru every day. That mom and dad of yours, and all of those wonderful doctors and nurses sure take good care of you.You are such a darling angel and so strong and smart and beautiful. You keep doing your job of healing and resting and laughing and we will keep up our job of praying.
We love you Josie. Blake still want to tell you all about trains! they are his favorite thing. what is your favorite thing?well, you can tell him all about it.Keep smiling!
Love
Lynn, Stan, Blake, Faith
Sent on Thursday, November 16, 2006 at 8:27:09 AM
lrshadle@earthlink.net
From Jenean Erickson,
Surprise, AZ
I am Shelly's aunt and have joined your prayer team for Josie. We have someting in common --- my 48 year old son has polymyositis and sclerodoma - has had a very similar course of illness although muscle and connective tissue (not capilliary) have been attacked. His weight (lost muscle) went from 200+ to 143. Recently he had surgery for ruptured appendix and last week, another surgery for bowel obstgruction. Through it all we are confident God has a plan. Many are praying. We know your pain and still we know God is faithful.
Sent on Thursday, November 16, 2006 at 10:57:40 AM
jeneanerickson@cox.net
From The gang at All About Children,
Eden Prairie
Hi Josie and family, We read your blog almost daily to keep up with how you are doing. Know that you are thought about every day by all of us! Hoping for continued good days.
Sent on Thursday, November 16, 2006 at 2:56:07 PM
sorry, we don't have one
From The Christian's,
Richfield
Hi Josie,
You are quite possibly the bravest little person we have ever known about. We are reading about you every day and are so happy that you are feeling better. God Bless!!
Sent on Thursday, November 16, 2006 at 3:01:37 PM
carmenlchristian@msn.com
From Priscilla Moreno,
San Francisco, CA
Hi Josie!
I just picked up your birthday present today and will be sending it soon! I'm glad to read things are starting to look better. I wanna see some smiles in those pics!
Quick question for the padres...has she experienced any hair loss??? The reason I ask is because as I recovered, I lost about half of my hair (with the exception of the monkey face prednisone hair). The theory is that 'after' the disease, your hair sheds as the body's way of renewing itself.
Tomorrow marks the 1 year anniversary of my diagnosis with dermatomyositis. It's been a long journey, and as painful as it has been, I'm a better person because of it. Josie will get better and grow up with a unique perspective on life -- one that will help her enjoy and live it up to the fullest. Now that I'm back at work in corporate America, I realize just how much I had been missing out on before DM. My problem wasn't that I thought I was dying...it was that I wasn't living. Now that I am doing better, I continuously remind myself of what's important in life and am thankful for it.
Please tell little Josie happy birthday for me! I will be thinking of her.
Sincerely,
Priscilla Moreno
http://blog.myspace.com/priscillamoreno
Sent on Thursday, November 16, 2006 at 5:38:20 PM
priscillamoreno@gmail.com
From Rebecca White,
Lititz, Pennyslvania
Just checking up on the little angel! We are so thankful that she is doing better and will pray hard that things continue to look up!
Rebecca White (friend of Aggie)
Sent on Thursday, November 16, 2006 at 8:03:14 PM
rrbeawhite@dejazzd.com
From jan g,
as always, we are monitoring your site among fitting skis at the store. Or, when it gets too busy shelping skis to schools for the xc ski kick off, I have to check in at night- hoping for a good title on your blog-always. J
Sent on Thursday, November 16, 2006 at 9:25:15 PM
From bill,
plymouth mn
we're thrilled to hear about positive results and good days. when we visit the grotto this weekend we'll light a candle for josie and her amazing family.
Sent on Thursday, November 16, 2006 at 11:13:18 PM
From Lynne ,
bloomington
hi you guys. thanks for the great picture and reasonably good news today. i love to see josie with a smile, and deb and of course, birke. i seem to wake up with you all these days and keep you in me throughout the day. sending big love and hugs. lynne
Sent on Friday, November 17, 2006 at 7:40:41 AM
lceciljohnson@yahoo.com
From The Lotito's,
Julian,Ca
Dear Josie and Family,
We are so happy to hear that you have been doing a little better. We loved seeing the picture of you and Burkie! We will be there to see you two weeks from today. We continue to pray you get alittle stronger each and every day. See you soon. Love and prayers to the whole family. Your cousins can't wait to see you.
Love, Uncle Robert, Auntie Karen, Rebecca, Rachel & Robyn
Sent on Friday, November 17, 2006 at 10:02:04 AM
klotito@yahoo.com
From Jane Brumbaugh,
St. Paul
I have checked in on Josie's blog this week and just had to comment how wonderful I think that a big yellow lab got to prance into the ICU to visit. Josie, you deserve it! My yellow lab is jealous, I'm sure.
It was a privilege to spend a short period of time playing a small role in Josie's care on the GI service. I learned a tremendous amount from Josie and you as parents. Josie could not have better advocates.
Josie, keep up the hard work.
I hope this weekend is a peaceful one and may you have a Happy Thanksgiving.
Gratefully,
Jane (the intern from GI last month)
Sent on Friday, November 17, 2006 at 1:40:43 PM
brum0036@umn.edu
From Kris,
Richfield
"Philosophy, is a walk on the slippery rocks
Religion, is a smile on a dog..." and a happy mom and especially a kid who deserves a smile like Birkie is giving her in the photo! What a great way to end the day--Birkie appears to be the happiest dog in the universe and Josie appears to know why he is! ;-)
You are awesome!!!!
Hooray for good days!!
Sent on Friday, November 17, 2006 at 11:37:19 PM
kris@teamfriday.com
From JOAN WOBBLETON,
MURRELLS INLET,SC
WE HATE THOSE BAD BLACK DAYS.
THAT'S JUST NOT WHAT THE DOCTOR ORDERED.
GLAD THAT SHE HAD THE VISIT WITH THE DOG. PETS ARE GREAT THERAPY FOR EVERYBODY.
PRAYERS FOR ALL INVOLVED IN HER CARE THAT THEY WILL MAKE THE RIGHT DECISIONS. IT'S A CRAP SHOOT AT HOW BEST TO MANAGE THE BLEED. WHAT ABOUT A LAPROSCOPIC LOOK INSIDE RATHER THAN SURGERY? JUST A THOUGHT.
JOAN
Sent on Saturday, November 18, 2006 at 8:08:03 AM
JWOBB@AOL.COM
From Dan Seftick,
Hi Josie,
You are truly a brave and wonderful girl. We continue to pray that you will get stronger and better real soon! Our prayers are with the doctors and nurses who work so hard to make you better. Keep fighting and smiling when you can!!
Dan Seftick
Sent on Saturday, November 18, 2006 at 10:07:06 AM
dseftick@cpinternet.com
From Jane & Tony Myhra,
Lake Shore, MN
Josie, Grandma and Grandpa have been keeping us posted each time they return home. We are thinking of you often and you are always in our prayers.
Burkie looks like he was very happy to see you Josie just as you were happy to see him.
Love,
Jane & Tony
Sent on Saturday, November 18, 2006 at 11:13:12 AM
tony.myhra@cryotech.com
From TOM AND DARLENE,
JOSIE...WE LOVED SEEING THE BERKIE...ISN'T HE GREAT...AND HE'S LOVING YOU!! I'M GIVING BLOOD JOSIE, SO YOU USE WHAT YOU NEED...I'VE GOT LOTS. LOVE YOU, GRANDPA AND GRANDMA LUND
Sent on Saturday, November 18, 2006 at 1:18:25 PM
From Aggie,
San Francisco
Oh Josie,
I am so sad to hear about your awful day yesterday. I know you are so tired of being so very sick. I wish every single person who's out here pulling for you could just take a little bit of your suffering on so that you would get some relief. I'd circle back around to the front of that line a hundred times for you, love. I'm staying up just a little bit more waiting for your daddy to post today's update & hoping that you had a better day. Praying that you're sleeping soundly this very moment...
Sent on Sunday, November 19, 2006 at 1:25:21 AM
aiv1026@aol.com
From Tom & Darlene ,
Hey Josie, Dora is the BEST! And so are you!!
Sugar Bear says Hello too. Loves and Hugs from the Lunds.
Sent on Sunday, November 19, 2006 at 7:25:08 AM
lundlink@mac.com
From lynne,
blmgton
good morning. sorry to hear about the tough day yesterday. sounds so hard. glad to know she was finally better towards evening. and i love that she stayed up late with her dad, especially given the day she had. have fun with more dora! love, lynne
Sent on Sunday, November 19, 2006 at 8:39:20 AM
lceciljohnson@yahoo.com
From MIra,
Canberra, Australia
Hi
does Josie like the Wiggles or Hi 5? Otherwise, what episode of Dora have you not seen yet (sounds like you need something different to watch!) We are forever grateful to Hi 5 for helping to distract our son when he was younger and in pain, but I'm not sure if you know them in the States (yet)?
cheers,
Mira and Les (Michael's parents)
and by the way, its just great to hear things have settled down a bit today!!!!!
Sent on Sunday, November 19, 2006 at 8:15:26 PM
mira.mihajlovic@dest.gov.au
From Kris, Jill, Trig and Annika,
Richfield
Hang in there Josie!!! We all wish you could feel better faster.
Sent on Monday, November 20, 2006 at 7:23:45 AM
kris@teamfriday.com
From Joan / Jim Wobbleton,
Murrells Inlet,SC 29576
You just never know when you sign on to read the day before blog how her day has gone.
All we are asking for is a simple miracle. One that will make it all go away. If only it was that simple.
Tell Josie I've sent her a surprise. She should be getting it any day. Also a little something in the box for the other 3. We hope she enjoys it.
Praers for all.
Joan
Sent on Monday, November 20, 2006 at 7:59:03 AM
jwobb@aol.com
From Leigh Anne,
Maine
Great News!
We are so glad that everything is looking up. We are so sorry Josie that you are feeling pretty crummy. It's no fun to not feel good. Take care sweet heart. You are still on all of our minds every day!
Leigh Anne, Justin and Caitlin (current JDMS fighter)
Sent on Monday, November 20, 2006 at 6:30:14 PM
supajut@msn.com
From Sue Dornfeld,
Edinas
Ded andJay,
Josie is a fighter and a beautiful little girl.She is surround
by her loving family and has the prayers of everyone who knows
and loves her so much!
Our love for all of you
Sue and Dave Dornfeld
Sent on Monday, November 20, 2006 at 9:23:03 PM
sue dornfeld@yahoo.com
From The Melbys,
East Bethel, MN
Hi Josie,
You are an amazing girl - and funny too. We are so proud of you. We will continue to pray for you - for strength, for no more pain, for joy, and for your mommy and daddy as they are very special people who have taught us so much as we follow the blog.
Jay and Deb - is there something practical you need? Let us know please. All our love and prayers - Brad & Connie
Sent on Monday, November 20, 2006 at 10:24:49 PM
bradley.l.melby@ampf.com
From Patrick Murray,
Carver, MN
Josie, my daughter Lauren just celebrated her 3rd birthday yesterday. Although it was a special day for her, all I could think about was how much we would have enjoyed your company for some princess birthday cake and fun. We are glad that you are doing better today and pray for you each and everyday. We wish you and your family the very best, especially over the holidays. Hang in there kiddo. Patrick Murray (Lauren's dad). P.S. We loved your Halloween costume!!
Sent on Monday, November 20, 2006 at 11:34:03 PM
epatmurray@hotmail.com
From The Lotito's,
Julian,Ca
Hey Josie,
I am so happy to see you are having a few ok days in a row. We start our journey home to see you in 5 days. The girl's can not wait any longer. Keep taking those little steps and before you know it you will be taking them down the hall! We love and miss you terribly. Love always, Uncle Robert, Auntie Karen, Rebecca, Rachel and Robyn
Sent on Tuesday, November 21, 2006 at 8:59:22 AM
klotito@yahoo.com
From gigi,
fraser
Hi Josie, nice to hear things are better again! We know where you put your tatoo!! good choice, you rock!
We were planning on visiting today but Eda started getting a sore throat last night and isn't feeling too good. We decided we probably shouldn't risk you getting Eda's bug so we will wait and visit next week instead. I brought some "Over the hedge" stickers for you, I will put them in your front door for your daddy or mommy to bring to you, o.k.? Have you seen the movied "over the hedge" yet? it's pretty funny. I like the cat that lives in the ladies house the best. He reminds me of my 2 little pug doggies; Pebbles and Pearl. They have flat faces and make funny sounds when they breath.Pebbles is the smallest dog but she is the mom, Pearl is more like her daddy and bigger. Pearl is a champion agility dog, she can do tricks and is very smart. I love the photo of you and your dog; he looks like a really good dog!! I hope you have a nice Thanksgiving!! Say Gobble gobble to your family for me.
Love Gigi and Eda
Sent on Tuesday, November 21, 2006 at 9:06:49 AM
gigik@fraser.org
From Lynne and Jamie Swanson,
Deb and Jay,
We want you to know we are thinking about you and keeping you in ours prayers daily. She is a fighter! We'll keep in touch.
Sent on Wednesday, November 22, 2006 at 12:44:30 AM
calwarbird@msn.com
From Leigh Anne,
Maine
Time certainly will tell! We will be waiting patiently to hear the results from today's team meeting.
Josie! You are doing a great job! We are all thinking of you. Take care little girl. Hope you feel better real soon!
Leigh Anne, Justin and Caitlin (current JDMS fighter)
Sent on Wednesday, November 22, 2006 at 7:07:33 AM
supajut@msn.com
From Kay Stalcar,
Richfield
Josie,
Everyday I am thinking of you and you are in my prayers. So many people ask me how you are doing and are praying for you. I hope you have a great Thanksgiving, I hope that it will be a great day for you. I am looking forward to your birthday party, I think that it will be great fun. Keep being strong!
Sent on Wednesday, November 22, 2006 at 9:41:44 AM
kstalcar@cojlbc.org
From Jamie and family,
Honolulu
Josie and family,
Glad to hear things are 'stable' for now. Have a wonderful Thanksgiving knowing you have many friends thinking of you.
With lots of aloha,
Acoba family
Sent on Thursday, November 23, 2006 at 12:30:49 AM
vacoba@hotmail.com
From Lynn Gabriel,
victoria, MN
As I sit and think about our thanksgiving tomorrow, I know that one thing included in our grace, is going to be a prayer for you dear Josie, as it is every day here. We think of you so often and pray for your complete healing. I just want to give you a great big hug! You endure so much each day I know I can't even begin to imagine. So many things to be thankful for, for a wonderful family and friends who lift you up in prayer and hug and loveyou, for doctors and nurses who are amazing every day. Remember the Lord has traveled this road before you and He understands and loves you. Keep believing Josie, keep your faith. We love to see your hats and tattos and things, you must feel like quite a real princess with all the things you receive in love to bring a smile to your face. You are a precious princess. Keep healing.
God Bless you
Lynn,Stan, Blake and Faith
Sent on Thursday, November 23, 2006 at 12:44:32 AM
lrshadle@earthlink.net
From Ed & Caroline Gaiser,
Fresno, CA
Hi Josie,
We keep you in our hearts and prayers as Thanksgiving approaches. We send lots of love and hopes that you feel better real soon. You are a brave and inspirational little girl. Love to you and all of your family.
"Aunt Caroline & Uncle Ed"
Sent on Thursday, November 23, 2006 at 1:59:01 AM
c_gaiser@hotmail.com
From Lisa Heilman,
Lakeville MN
Dear Adams Family,
On this Thanksgiving Day there is so much to be thankful for - Family, Friends, Health...We hope that your day is filled with love and the knowing that so many people are thinking of you on this day and praying for Josie's recovery.
Love,
Lisa Rich Lucas and Isaac
Sent on Thursday, November 23, 2006 at 7:26:12 AM
lheilman@frontiernet.net
From Katie Marshall,
Minneapolis
Happy Thanksgiving, Adams Family! Will Josie get an IV drip of gravy today??! EEEW! Hope you all have a good day, I am thankful for modern medicine and all of its (albeit sometimes limited) wonders.
Love to you all~
Katie and Louise
Sent on Thursday, November 23, 2006 at 9:00:43 AM
katiemarshall7@gmail.com
From Kraft family,
MN
Hello Adams Family and happy Thanksgiving. Hope you get some time today to spend some quality family time. The Krafts, and many others, will be counting you all as one of our blessings today and send our positive thoughts and prayers to Josie and the whole Adams fam.
Sent on Thursday, November 23, 2006 at 9:38:21 AM
From The McKeown's,
at the farm
Happy Thanksgiving Josie and family-As we sit around the table today counting our blessings, we will include you and all of our wonderful friends among them. Wishing you a day of peace!
Sent on Thursday, November 23, 2006 at 11:22:46 AM
From Kathleen McJunkin,
Apple Valley, MN
Hi Deb & Jay,
Happy Thanksgiving! I hope the day is going well for you all. I am not sure if you got my message yesterday so I will repeat it. I have e-mailed my nephew, Brian Gilbertson, who is a magician, to see if he could possibly be at your party on a volunteer basis. Maybe he could make balloon animals to raise some funds. I spoke with my sister today and she said he has to be back from Florida by Dec. 2nd (Josie's special day), so maybe it will work out for him. Just wanted you to know that he is legitamate if you hear from him. Love, Kathleen McJ
Sent on Thursday, November 23, 2006 at 11:46:58 AM
mcju0002@tc.umn.edu
From Christi,
Richfield, MN
Hello Adam's, I work at Fraser, however I don’t know if we have met. I read Josie's blog and think of her often. Keep fighting!
If you are interested, I am a Reiki practitioner and would like to try some energy healing with Josie. Email me if you would like more information or think I could help.
Take care!
Sent on Friday, November 24, 2006 at 5:42:32 PM
campfire1111@gmail.com
From Molly Tereck,
Loveland, Ohio
Hi Josie and family!
We wanted you to know that we are thinking of you and sending healing thoughts and prayers your way! We heard about you from CureJM. Our daughter, Annalise, has JDM. She is 10 and was dx. 2 years ago. She has 2 brothers,8 and 4. We live in Loveland, Ohio (a suburb of Cincinnati). One of our dear neighbors just moved back to Chaska, Minnesota. We miss them but Minnesota's gain!!! It is like spring here today and we put up our Christmas lights outside before it gets cold again. We hope you are feeling lots better soon.
Molly,Chuck, Annalise, Jack and Mark Tereck
Sent on Friday, November 24, 2006 at 9:28:05 PM
mtereck@fuse.net
From cheryl hoeppner,
mission viejo, california
Hi! I have dermatomyositis and I have been keeping up on your daughter and praying for her daily through the board. I saw your note about Charcot Leyden Crystals. I don't know if this helps, but here is a definition:
Charcot-Leyden crystals
Wikipedia, the free encyclopedia - Cite This Source
Charcot-Leyden crystals are microscopic crystals found in people who have allergic diseases such as asthma or parasitic infections such as parasitic pneumonia or ascariasis. They vary in size and may be as large as 50 µm in length. Charcot-Leyden crystals are slender and pointed at both ends, consisting of a pair of hexagonal pyramids joined at their bases. Normally colorless, they are stained purplish-red by trichrome. They consist of lysophospholipase, an enzyme synthesized by eosinophils, and are produced from the breakdown of these cells. They are indicative of a disease involving eosinophilic inflammation or proliferation, such as is found in allergic reactions and parasitic infections.
Friedrich Albert von Zenker was the first to noice these crystals, doing so in 1851, after which they were described jointly by by Jean-Martin Charcot and Charles-Philippe Robin in 1853, then in 1872 by Ernst Victor von Leyden.
References
J. M. Charcot, C. P. Robin: Observation de leucocythémie. Comptes rendus de la Société de biologie, Paris, 1853, 44.
Ernst Victor von Leyden: Zur Kenntnis des Asthma bronchiale. [Virchows] Archiv für pathologische Anatomie und Physiologie, und für klinische Medizin, Berlin, 1872, 54: 324-344; 346-352.
I stand in prayer for you and your family daily. At 53, i am not nearly as ill as josie. I know the Lord must have a huge plan for her little life. God bless!
cheryl H
Sent on Saturday, November 25, 2006 at 1:33:21 AM
choepp@cox.net
From Tom and Darlene Lund,
usa
Josie, we are so proud of your...your body is doing what it can do best and that is heal...as slow as it might be. We love your smile and hope to see it again soon. Berkie wandered over to our house yeterday and decided to stay...he is a good fried for Sugar Bear. Josie...we love you. Grandma and Grandpa Lund.
Sent on Saturday, November 25, 2006 at 6:56:14 AM
lundlink@mac.com
From lynne,
blmgtn
hi. i love you guys. sending love. healing...patience....wow. what a teacher josie is...with the lessons to be revealed when we get them, i guess. love, lynne
Sent on Saturday, November 25, 2006 at 8:30:30 AM
lceciljohnson@yahoo.com
From Lauren Murray ( 3 year old friend),
Carver, MN
Josie,
Hello, I pray for you every night before bed. I hope you feel better! I know your birthday is coming up very soon! I have a little something I am sending for you for your special day! XOXO
Your 3 year old friend,
Lauren Murray
Sent on Saturday, November 25, 2006 at 11:17:58 AM
jenette_g@hotmail.com
From Valerie Carlson,
Burnsville
Hi - I am Darlene Lunds daughter. I have read your entire blog from beginning to end. I am inspired and amazed by your strength and love. I pray for healing and peace to your entire family!
Sent on Saturday, November 25, 2006 at 8:56:44 PM
valerie20c@yahoo.com
From jan,
wow jay and deb, the question also is, where is this journey taking you both as well, I am sure you all will be leaving the ICU someday with profoundly different-ok, maybe slightly altered, priorities and outlooks than you both once had. More than just an outlook on injury recovery. Little Josie, we all are hoping and hoping for the best with you. Look at your mom standing upside down in the catalog. Jan
Sent on Sunday, November 26, 2006 at 8:16:27 AM
gearwest@gearwest.com
From Tanya and Nkki,
Cypress, TX
Josie and Family,
I heard of Josie on Cure JM website.
My 14yr old daughter has JDM. NIkki went thru some bad stuff a year ago when she was first diagnosed. But not anything like you and your family. We can't even begin to imagine. We send you blessings that you get stronger everyday. You are a SPECIAL little girl with a special life ahead of her.
God Bless you and your family.
Sent on Sunday, November 26, 2006 at 2:51:11 PM
tmg1016@yahoo.com
From Leigh Anne,
Maine
Happy Thanksgiving Josie and Family!
When we went around the table asking what we were all Thankful for we spoke about YOU! You are amazing as everyone has told you lately. We said a couple extra special prayers for you and your family and I believe that they will help. Stay strong Josie...we are still here thinking of you in Maine!
Caitlin wants to know what you asked Santa for this year. We all know how good of a girl you have been this year! She is in the living room singing right now. She askes about you every day. She sends a big hug to you and hopes that you feel better!
Love,
Leigh Anne, Justin and Caitlin
Sent on Sunday, November 26, 2006 at 8:23:17 PM
supajut@msn.com
From Karalyn, Tallie, Ryan & Bailey,
Seattle
Still thinking about you guys, and still reading about Josie every day. Hang in there; I can only imagine how difficult all of this is, but truly, you are doing an amazing job of holding it all together. As always, all of our best from Seattle.
Sent on Monday, November 27, 2006 at 9:47:24 AM
karalynh@gmail.com
From Dan Andnerson,
Edina
Jay, you write so well. I hear the exasperation behind your words ~ the frustration of unanswered questions, the uncertainty of Josie’s future, the challenge of not knowing and not knowing how to arrange life, the longing for healing. I wish I could do something to make things better. I wish God would intervene in a miraculous way. I wish the medical team could find solid solutions and directions. I do know that God walks with us through the fiery trials and the turbulent waters. I pray for Josie, and for you and Deb ~ and for all your family members ~ that God’s presence will give you some measure of strength and peace.
Sent on Monday, November 27, 2006 at 10:58:30 AM
danderson@cpconli
From Jennie Korsbon,
Minneapolis
Hi Deb and Jay,
I wanted to wish you a belated Happy Thanksgiving. Please Josie my best. She is so tough, I am sure she is your inspiration! Please let me know if I can do anything,REALLY.
Best wishes,
Jennie Korsbon
Sent on Monday, November 27, 2006 at 12:20:01 PM
jenniekorsbon@mn.rr.com
From The Arnold's,
Hang tough, Josie and Adams Family.
We're all pulling for you.
Sent on Monday, November 27, 2006 at 2:20:38 PM
From Gigi &Eda,
fraser
Hi Josie, Eda and I would like to visit you on Wednesday around 4:00 P.M. Is that o.k. with you? Sorry to hear you had so many tummy aches these last few days. I hope you are feeling better today. See you in 2 days!!
XXO Gigi and Eda
Sent on Monday, November 27, 2006 at 3:26:55 PM
gigik@fraser.org
From Amy & Michael Egan,
Minneapolis
Hello!
We are friends of Michael Hsu's and he just told us of Josie's heart breaking and inspiring story. What an amazing girl she is. Please know that your family is in our thoughts and prayers.
Love,
Amy Matthews & Michael Egan
Sent on Monday, November 27, 2006 at 8:42:52 PM
amy_matthews73@hotmail.com
From The Lotito's,
Julian,Ca
My Dear Josie,
We are so excited to get there tomarrow. Our plane lands late so we will come over first thing Thursday. The girls can't wait to see you. You are such a fighter! We are so proud of you. See you in 2 days. Love, Uncle Robert, Auntie Karen, Rebecca, Rachel and Robyn
Sent on Tuesday, November 28, 2006 at 9:45:04 AM
klotito@yahoo.com
From Cynthia Benner,
Minneapolis, MN
Hey Guys!
Just checking in and wanted to express that we continue to pray for all of you.
Cynthia & Kevin Benner
Sent on Tuesday, November 28, 2006 at 1:05:40 PM
cynthia.benner@medica.com
From Stephanie Zajkowski,
Quakertown, PA
Josie and Family,
We just found our way to your site as our daughter Kaitlyn who is three was recently diagnosed with JDM. Josie is a beautiful girl and sounds like a realy fighter!! Please know that your whole family is in our thoughts and prayers.
The Zajkowski Family
Sent on Tuesday, November 28, 2006 at 8:39:15 PM
szajkowski@comcast.net
From a friend who cares,
Minnesota
My Prayer to you Josie:
I said a prayer for you today,
and I know God must have heard.
I felt the answer in my heart,
although he spoke no word.
I didn't ask for wealth or fame,
(I knew you would not mind)
I asked him to send you treasures,
of a far more lasting kind.
I ask that he be at your side,
at the start of each new day,
to give you health and happiness,
and friends to light your way.
I asked for blessings just for you
in all things great and small.
But it was his care for you,
I prayed most of all
-author unknown
Sent on Tuesday, November 28, 2006 at 10:26:06 PM
From Kris,
Richfield
Hang in there everyone. We are just wishing the patience would result in some better days. We want Josie to feel better and get back to keeping up with (or passing) Evie, Henry and Trip!
Sent on Tuesday, November 28, 2006 at 11:10:18 PM
kris@teamfriday.com
From Tra,
Hi Josie! I'm so happy that you're feeling a little better! I wish I could be there for your birthday so I could give you a big hug & kiss. Hang in there sweet thing!
Sent on Wednesday, November 29, 2006 at 5:49:58 AM
From Jen and Julia Weers,
Rosemount
Just wanted you to know that our prayers continue to be with your whole family.
Sent on Wednesday, November 29, 2006 at 7:29:11 AM
jen@weersconsulting.com
From Paula Vicker,
Deb & Jay -
Just want you to know we are thinking and praying for the entire family... glad to see things are looking up a little!
Thank you for keeping us in the know.
Sent on Wednesday, November 29, 2006 at 7:45:09 AM
pvicker@comcast.net
From Joan / Jim Wobbleton,
Murrells Inlet,SC
Hello to the Adams family.
We've been reading the daily blogs. We talked with your Aunt Karen yesterday and she and the family are real excited to be coming to see you today. They will get on the plane in Calif and be in Minnesoto this evening. I know they'll be glad to see you. Have a nice time with them and tell them all about the hospital and especially the good nurses and the good doctors. I hope that you are feeling well enough to have a little company.
We pray that God will hold you in the palm of his hand and keep you mending. Even though we don't know what is going on inside of your tummy. (That little black box is holding secrets from everybody) When you talk about a zipper why can't they do a laproscopic and take a look see at the innards.? We've come a long way in the medical field and yet we can't do a very simple thing like take a real look inside. Where is NASA when we need them.
Have a better day today than yesterday.
Love Joan and Jim Wobbleton
Sent on Wednesday, November 29, 2006 at 8:04:16 AM
jwobb@aol.com
From Rose Spielman,
Coon Rapids
A friend emailed me your blog site. I have only been reading the blog for a few days and have become interested in your story. I am keeping you in my prayers. I'm wishing Josie a happy birthday and am hoping that next year she will be home for her special day. Josie is a very special little girl with more courage than most adults exhibit.
Sent on Thursday, November 30, 2006 at 6:25:27 AM
egfrose@comcast.net
From Christy and Natalie,
Texas
Hello Josie,
My family and friends are praying for you. My name is Natalie and I was dx with JDM at the same time you were. I'am having a flare now, but nothing like what you and your family are going through. I pray you will get better soon! Happy 4th Birthday Josie. I too will be turning 4 on Dec. 19th.
God Bless You and Your Family-
Christy and Natalie-TX
Sent on Thursday, November 30, 2006 at 11:12:29 AM
Richard.Reynolds13@verizon.net
From Margaret,
Minneapolis
Jay and Family
Josie - I don't know you but I know your dad from work! My prayers are with you!! You sound like a real fighter.
Love, Margaret (formely from Kenwood Park/Reserve Master, MPRB staff)
Sent on Thursday, November 30, 2006 at 3:05:09 PM
mjaeger@minneapolisparks.org
From Susan Casteel,
Shawnee Kansas
I am a friend of Jen & Patrick Murray. Jen told me about Josie and I so sad to see this little girl in so much pain. I look at your blog everyday hoping to see that she is all better. My prayers are with you!!!!!
Susan Casteel
Sent on Thursday, November 30, 2006 at 4:57:19 PM
scasteel@abboptical.com
From Steve,
Eden Prairie
Get well soon, Josie!
Steve from the Sun-Current.
Sent on Friday, December 01, 2006 at 12:33:29 PM
spease@acnpapers.com
From Drew Saastad,
Richfield MN
Hi Josie I hope you have a great birthday!!
I hope you get better and get out of the hospital soon!!
How did you like the Vikings players? I hope I can come see you again!!
Sent on Friday, December 01, 2006 at 12:49:50 PM
From Mark,
Richfield
Happy Birthday Josie!!!
Sent on Friday, December 01, 2006 at 2:25:49 PM
From Mike and Louise Wobbleton,
Jamesville , NC
Just wanted to wish Josie Happy Birthday. And to let you all know we are still praying for Josie and the Doctors that are working with her. Josie Happy Birthday again.
In Christian Love,
Mike and Louise Wobbleton
Sent on Friday, December 01, 2006 at 3:13:59 PM
mlwobbleton@net-change.com
From Sharon Keegan,
7320 York
Dear Deb, Jay and family:
You have all been in my prayers this past month. I am sorry to hear Josie is so sick again. I started working on a portrait of Josie from your neighborhood party on Mike's deck two years ago... happier times. I'll try to send the draft to you, she is such a little sweetie. God Bless you all in this shadow time.
Sharon Keegan (Mike and Matthew's friend)
Little Josie.jpg
Sent on Friday, December 01, 2006 at 4:00:44 PM
keegandesign@comcast.net
From Grandpa and Grandma Lund,
us
Josie, your birthday is tomorrow! Happy Birthday! we are loving you and know that you are in the Great Hands and Doctors, Friends and God. We know God loves you so much. We pray for you and Evelyn, Henry and Tripie...Your Mon and Dad has wonderful strength that God has given to them...and we love them too. Old Birkie says I love you Jo Jo and your tummy rubs. We love our little familiy. Grandpa and Grandpa Lund and Sugar Bear adn Smokey Bear
Sent on Friday, December 01, 2006 at 4:11:50 PM
lundlink@mac.com
From Ed & Caroline Gaiser,
Fresno, CA
Hi Josie,
Even though we can't be there for your special day, we will be with you in spirit. We pray that you will feel better and can enjoy your big day. Your are a very special little girl who inspires us all. Much love, from "Aunt Caroline & Uncle Ed" from Fresno, California
Sent on Friday, December 01, 2006 at 5:20:25 PM
c_gaiser@hotmail.com
From Sue ,David, Stephen(dx94) Rachel and Sarah,
St.Joseph , Michigan
We are surley praying for Josie and your family ... Everyday we visit your site , we appreciate the fact that you are sharing her progress. We want Josie to get better, she is a part of our life. A birthday wish from our family ... Happy Birthday Josie......
Sent on Friday, December 01, 2006 at 8:03:08 PM
dcdean@qtm.net
From Chris Marshall,
Maple Grove, MN
J-ust an awesome little girl!
O-ne heck of a fighter!
S-he's got grit!
I-nspirational beyond belief!
E-veryone is praying for you!
Stay strong little lady and fight on!
Love,
Chris, Rachelle, Abby & Zach Marshall
Sent on Friday, December 01, 2006 at 9:17:30 PM
crmarshall27@comcast.net
From Verla,
Sun City, AZ
Hi Josie and all of the Adams family, Just want to wish you a "HAPPY bIRTHDAY" JOSIE. My prayer for you is that you will be well enough to enjoy your very special day, that it will be filled with God's love and blessings, and that you Jay will be able to tell us all very soon that Josie is on the way to complete healing. You all just amaze me even though I know your strength comes from the Lord. May God bless you all and give you comfort and strength and COMPLETE HEALING TO YOU BEAUTIFUL JOSIE. KEEP UP THE GOOD FIGHT JOSIE. We love you all so much and pray for you constantly. Wish I could be with you for the big party but will be there in my thoughts and prayers. Love and prayers, Verla
Sent on Friday, December 01, 2006 at 10:18:14 PM
memaw-v@hotmail,com
From Jamie & family,
Honolulu
Happy Happy Birthday, sweet Josie. We think of you each day and pray for better days.
Sending you lots of aloha and happiness!
Sent on Friday, December 01, 2006 at 11:31:49 PM
vacoba@hotmail.com
From Teresa and Alyssa and family,
Irvine, California
Happy birthday!! We are praying for you every day....my daughter is 7 years old and had jdm, we read your blog every day and are thinking of you every day, you are a beautiful brave little girl! Love the Vortouni family
Sent on Saturday, December 02, 2006 at 1:09:27 AM
flos4life@cox.net
From Lynn gabriel,
victoria, MN
Happy Birthday Josie! You are 4!!Wow,what a big, big girl you are! We pray for a miracle for your birthday sweet girl. I hope you have a "feel good" day. blake and Faith send their best 'Happy birthday' tune your way today. I pray that this year will be a year of healing and comfort and 'joy'!
Much love,
Blake, Faith, Lynn, Stan, and "the naughty one"Dakota
Sent on Saturday, December 02, 2006 at 1:19:26 AM
lrshadle@earthlink.net
From Riley McKeown,
Richfield, MN
Happy birthday Josie!! We love you very much.
The McKeowns
Sent on Saturday, December 02, 2006 at 4:45:41 AM
RMcKeown1@mn.rr.com
From The Krainz,
Brookfield, Ct
Happy Birthday JOSIE- Being 4 is so much fun --
Our family wants to wish a very special day.
Get well Soon!!!
Jackie, Roland, Austin, Gerard
Sent on Saturday, December 02, 2006 at 8:14:12 AM
jckrainz@gmail.com
From Joe Doran ,
Richfield
Dear Josie,
I hope you have a great birthday and I hope you are feeling better. I can't wait to see you again. We are praying for you.
Joe
Sent on Saturday, December 02, 2006 at 8:23:20 AM
jpd@mn.rr.com
From Kris,
Currently, New Ulm!
Happy 4th Birthday Josie!
We are hoping and praying for a miracle birthday gift to you, and to all of us--lots of healing in your tummy and feeling better. I hope the nurses and doctors are good at singing "happy birthday" to you!
Hang in there Josie! You're everyone's hero!
Sent on Saturday, December 02, 2006 at 8:39:22 AM
kris@teamfriday.com
From Paula,
Happy 4th Birthday Josie! I hope you feel better today and you and your family have a good time celebrating.
Sent on Saturday, December 02, 2006 at 10:09:17 AM
From Joce,
Canada
Dear Deeber Family ,
Our thoughts are with you during these trying times. I send only good wishes to you. I have experienced high heart rates of 250 and I pray for Josie .
May god hear all our prayers and put her on the road to recovery .
Joce
Sent on Saturday, December 02, 2006 at 10:11:55 AM
efsjm@hotmail.com
From Joni,
Aviston, Illinois
Hello Darling Josie. Happy birthday you sweet girl. I am saying extra prayers for you and hope that you will begin to heal very soon.
Sent on Saturday, December 02, 2006 at 12:06:32 PM
petewilken@sbcglobal.net
From Haley Newberry,
Edina
Hey Josie, hope your spagetti dinner goes well! And I hope I can help out, get better soon!
Love Haley Newberry
Sent on Saturday, December 02, 2006 at 2:21:34 PM
-
From The Wenaas Family,
Right Next Door
Happy 4th Birthday Josie!!! Keep on fighting!! We love you and are praying for you!
Sent on Saturday, December 02, 2006 at 2:43:11 PM
MMWenaas@gmail.com
From Jerry, Lisa, Emily, Sarah and Ben,
Richfield, MN
Happy Birthday Josie! You've got more friends than any four year old I know. We are thinking of you today and everyday and lifting you up in our prayers. We praise God for you! What a blessing you are to so many people during this courageous journey! We are looking forward with great anticipation to your big event and feel privileged to call you our friend!
Love,
Sent on Saturday, December 02, 2006 at 2:47:54 PM
From Patrick, Jenette, Lauren & Evan Murray,
Carver, MN
Happy Birthday!!
We hope you are having a good birthday and feeling better!!!!
We are glad you like your Dora doll!!!
Happy 4th Birthday!!!
XOXO
Love,
Lauren Murray
Sent on Saturday, December 02, 2006 at 3:28:37 PM
jenette_g@hotmail.com
From Gracie,
Wisconsin
Dear Josie,
Hi this Gracie!!! HAPPY BIRTHDAY JOSIE XXXOOOOO
I hope you feel better. My prayers are with you.
Love,
Gracie 11 Years old
(Wisconsin)
Sent on Saturday, December 02, 2006 at 4:43:36 PM
jillmickelson@netscape.net
From Emily Kraft,
Edina, Minnesota
Josie, Happy birthday! I hope your birthday was very special. I hope you get well soon!
Love, Emily Kraft
Sent on Saturday, December 02, 2006 at 4:46:30 PM
dlkraft@aol.com
From Kathleen McJunkin,
Apple Valley, MN
Josie,
We hope you are doing better today on your birthday (Happy Birthday in other words). Our prayers are continuing as well as those of the congreation of Grace Lutheran Church in Apple Valley. Love,Kathleen, Jim, Jeremy,Jill, Heather & Steven McJunkin (Cubby & Snickers too)
Sent on Saturday, December 02, 2006 at 8:31:27 PM
mcju0002@tc.umn.edu
From Debra Tryanowski,
Wallington, NJ
Happy Birthday, Josie!!!! I am a mother of a child with JDM who visits your page every day. Even though I do not know you personally, you have a big place in my heart. I pray for your recovery and remission all the time. You will continue to be in my thoughts in prayers always.
Sent on Saturday, December 02, 2006 at 10:16:23 PM
avarose04@msn.com
From Pat Friedberg,
Florida
I live across the lake from Grandma Lee - we share a large heron, a few turtles and a number of geese - I've offered to pay their fare back to where they belong but they seem to prefer Florida to the icey wastes of the northern states.
Lee sends on your blog and sadness and hurt for all your pain follows my every reading. In Israel, just a few months ago, I stood at the Western Wall in Jerusalem and picked up a prayer book which opened on a prayer for those who suffer. I read it and thought of Josie, a child I have not met, but a child, because of your blog, I have come to know. If God lives anywhere he must live there, so now, I think, I know,
he's heard the prayer for Josie.
Happy Birthday Josie
Sent on Sunday, December 03, 2006 at 7:48:43 AM
prfriedbe@gmail.com
From Stephanie Larson,
Minneapolis
Hello, you don't know me but I am on Hether Pfeiffer's email list and she sent a notice. I just had to write. Very recently, our family walked alongside our friend as he went through very difficult, soul-searching 8 months fighting an aggressive cancer, and I learned a lot about how prayer & support is so important during times like these. Most of us just traipse along in our life, making our happy plans for the future, oblivious that just "next door" someone is fighting for their lives.
I just wanted you to know that I am saying prayers for Josie and that you have my true and heartfelt empathy. My son is almost the same age. He is a real praying little guy and I know when he sees this site that he will pray for her. From your blog I can see that you're incredibly brave throughout this battle... but I know that it must seem like a roller coaster at times. God bless you.
Stephanie Larson
Sent on Sunday, December 03, 2006 at 1:35:13 PM
stephlarson@mn.rr.com
From Olivia,
Ilinois
Oh Josie, wish I could go to that benifit but it's my mom's birthday.Any other day I am sure my family would go but your still in our thoughts.Your a little trooper so keep going.
Happy Birthday!!!
From: Olivia
Sent on Sunday, December 03, 2006 at 5:56:10 PM
diazoe96@hotmail.com
From ,
Las Vegas-Wi originally
May God bless your baby Josie with the most beautiful healing angels he has to offer. Dear Josie has been stronger than I would have been through all of this. Mom and Dad you two are amazing people with strength I can only hope to have some day. I check in on Josie's progress from time to time and I pray for you all. I am spreading the word for more prayers. I know God is listening.
Sent on Sunday, December 03, 2006 at 6:22:54 PM
From Shelly and Mark Nelson,
Josie, you looked so sweet on TV tonight. Your Mom was very pretty and your Dad cleaned up pretty nicely too. Their love and admiration for you was HUGE. I'm so glad that your story was on Channel 9 so that even more people can begin to pray for you!!!
Sent on Sunday, December 03, 2006 at 9:34:44 PM
From Judee Dufresne,
Lindstrom Mn.
Josie, you are so incrediby strong and beautiful and so blessed to have such a loving family to be with you while you are going through such tough times. I will be praying the 91st Psalm with your name and my prayers and heart are with you and your family. May God bless and heal you right now, In Jesus name, amen.
Sent on Sunday, December 03, 2006 at 9:51:56 PM
dufresnedesign@frontiernet.net
From Leslie McKeown,
Richfield
Josie-So many of my ICU friends at Abbott have heard about your courageous struggle and we sit down together to check on how your day went. Many of the ICU rooms here had your tv story on and you could hear the comments from room to room about what a beautiful little girl you are. I think by now most of South Dakota is praying for you, too!!! My parents and a sister live there and check on you often. Thank you for sharing your story with so many. God continues to hold you in the palm of his hand. Much love to you and you family. Leslie
Sent on Sunday, December 03, 2006 at 10:04:16 PM
From Paul and Shelly Doran,
Richfield
Josie,
Paul and I watched you on TV tonight, and you looked so pretty with your big pink bow in your hair!! We are thinking about you all the time! Keep up the fight.
Love,
Shelly
Sent on Sunday, December 03, 2006 at 11:05:20 PM
doran-home@mn.rr.com
From Lawrence and Sharon Johnson,
Cottonwood, MN
Our prayers are with you as Josie continues her fight in battling this dreadful disease. We have only one young daughter (4 1/2 years old) and her name is Josie as well. Once we heard your story we hugged her and wouldn't let go.
Larry, Sharon, and Jose
Sent on Monday, December 04, 2006 at 6:23:48 AM
johnsoncats@charter.net
From Lawrence and Sharon Johnson,
Cottonwood, MN
Our prayers are with you as Josie continues her fight in battling this dreadful disease. We have only one young daughter (4 1/2 years old) and her name is Josie as well. Once we heard your story we hugged her and wouldn't let go.
Larry, Sharon, and Jose
Sent on Monday, December 04, 2006 at 6:24:31 AM
johnsoncats@charter.net
From Jen Weers,
Rosemount, MN
Jay and Deb: THANK YOU THANK YOU THANK YOU for being so very very brave and doing the Fox 9 story on Josie. What you did will help MY child, and so many others who need the awareness in order to fight JDM. I can't tell you how grateful I am. I look forward to seeing you again, Deb, and meeting you, Jay on Saturday night.
Our continued prayers,
Jen and Julia Weers and family
Sent on Monday, December 04, 2006 at 8:34:16 AM
From Mike Brunner,
Savage, MN
Deb, Jay and family--
Your wonderful friend, Kristin Smith, told us about your beautiful little girl Josie. We know just a little about what you are going through as our youngest son, Joey, was diagnosed with cancer in May 2005. Now, Joe is doing well after 6 weeks of chemo at Children's Minneapolis. The best thing we can do for you and Josie is to send our prayers and ask our great "support family" to do the same. They've done wonders for us and we'll let them loose to help Josie get better. God Bless.
The Brunner Family www,caringbridge.com/mn/joeybrunner
Sent on Monday, December 04, 2006 at 10:47:47 AM
brunner4192@yahoo.com
From ,
Richfield
Hi Josie,
Glad to hear you are feeling a little better and are helping out your talented crew of caregivers at the U. You are such a smart little girl and a true inspiration! Your mom and dad did such an awesome job sharing your story on TV last night.
Keep fighting Josie- We all love and miss you very much!
The Saastads
Sent on Monday, December 04, 2006 at 10:52:45 AM
From Tricia (Kathner) Thompson,
I just heard about Josie today. I had no idea your family was going through this. I am so sorry to hear about all Josie has been through. I will keep checking your website to find out how things are going.
Sent on Monday, December 04, 2006 at 1:04:18 PM
tricia.thompson@richfield.k12.mn.us
From Kay Stalcar,
Richfield
Josie,
What a little fighter your are! We are all so proud of you, Keep it up. We have been praying for you and your family. Jay and Deb, see you on Saturday!
Sent on Monday, December 04, 2006 at 2:45:01 PM
kstalcar@cojlbc.org
From Amy,
Platteville, WI
God bless you and your little girl! What a trooper. I am praying for you and Josie, she is lucky to have a wonderful group of people in her corner. I will be praying that your fundraiser is a smash hit.
Sent on Monday, December 04, 2006 at 3:12:28 PM
fraileya@uwplatt.edu
From Dena Waskiewicz,
Concord, NC
What a wonderful journal you are keeping. I especially love the hats and colorful costumes! What a little ham she is. :) Hugs to you, sweetie!
Sent on Monday, December 04, 2006 at 4:23:14 PM
waskiewiczrn@carolina.rr.com
From Marie from OH,
Sun Prairie
I hope you are feeling better and Santa brings you all that you ask for. I'm praying for you and your family too have a wonderful holiday season and that you feel good for a while.
Sent on Monday, December 04, 2006 at 4:45:28 PM
bungeem@yahoo.com
From Chris Borgen,
Minneapolis, MN
To the Adam's family,
I am a Sigma Chi and met Jay many years ago when I was still active in the chapter. So when I saw your hardship I wanted to wish you my prayers and wishes for a Happy Holiday season!
My son Josiah, was at Childrens when he was born for over three months due to complications associated with pre mature birth! If there is one word of advice I can give you is to stay strong and have faith that Josie will make it through this hard time! Sounds like the Dr.'s up there have not changed much in 17 years, We were told two different times that Josiah was not going to make it due to his complications, and two times he proved them wrong! Children are truly little miracle machines, it is amazing what they can go through and still find a way to smile! Josiah will be turning 18 in January, and when we do get a chance to see his old Dr.'s, they look at him and say he is a walking/talking miracle! So with that, keep your head up and stay strong!
In Hoc,
Chris Borgen
Sent on Monday, December 04, 2006 at 5:08:26 PM
chrisb@industrialprotectioncorp.com
From Claire,
L.F. M.N
Hi!Josie My name is Claire I have dermatomyositis just like you. My doctors name is Dr. Vehe. I am 9 years old . I realy want to meet you.I am in remission .I am praying for you.I am comming to your found raiser. I hope you will go into remission just like me.
Sent on Monday, December 04, 2006 at 5:49:19 PM
luannsosidesports@hotmail.com
From Anna Bryant,
Roanoke, VA
My heart goes out to you Josie. Big prayers coming your way for you and your family. You have such a strong will sweety, that will carry you through. May God give you and your family the strength you will need. My little boy insisted on seeing all of your pictures, I know you will be in his prayers as well. He is 5 and his name is Logan.
Take care sweet Josie!!
Anna, Tommie and Logan
Sent on Monday, December 04, 2006 at 6:12:25 PM
logansmom612@yahoo.com
From Sheri,
New York
My heart aches for you and your family. I will say some prayers for Josie and her family. I pray that the Lord will give the whole family strength. She looks like a tuff little girl. God Bless you all...
Sent on Monday, December 04, 2006 at 8:31:25 PM
nortyred00@yahoo.com
From Shana,
Queen Creek, AZ
Josie, our thoughts and prayers are with you! You are such a brave gal! My little girl drew you a picture and we are sending it to you tomorrow! Rest up and take each day at a time!
With all our love,
The Millers, Nicholas, Shayna, Cody, Kayla, Olivia
Sent on Monday, December 04, 2006 at 8:56:26 PM
horsecrazed15@hotmail.com
From Margaret Knudsen,
Shoreview, Mn.
Dear Josie, I was just reading your Weblog and understand what you are going through. I too had Dermatomyositis and am now in remission. I did not have the severe case that you have but did suffer about four years with a rash and side effects from medication. I came down with it as an adult so I could understand better what was happening to me. I will keep you in my thoughts and prayers. Hang in there, you will get better. If your parents want to e-mail me I would love to hear how you are doing. Love and prayer to you and your family.
Sent on Monday, December 04, 2006 at 10:17:47 PM
mmmknudsen@yahoo.com
From Lucille Skluzacek,
6320 Vincent
Hello, sweet Josie,
I was at your home tonite to bring you a little present. I hope you will like it. I also sent you a card to tell you that each evening I kneel and pray a rosary for you, my daughter, my granddaughter and myself. I have been begging our Lord for some time, I am sure HE knows I mean business!!! Much love to our sweet Josie,
Lucille
Sent on Monday, December 04, 2006 at 10:20:55 PM
LSkluzacek@aol.com
From Jared Berg,
Boulder, CO
Josie, Jay and family,
My wife and I read every entry from bottom to top today. We hurt, prayed, learned, fell in love, and most of all were truly inspired by the amazing strength of Josie and her family!
With all our heart,
Jared, Sara, Brent Kyle and Kieren
Sent on Monday, December 04, 2006 at 11:36:28 PM
Jared@TriEndurance.com
From Maryann Kieffer,
Rapid City, SD
What a beautiful bright spirit! I pray a hedge of protection around you and your family. That God be at work in your lives and that others see His light shining through in such difficult times. That He ease any worries from family and His will be done in all of your lives. Keep holding strong to each other and may there be a peace come over you knowing that He is in charge and is looking out for you. In His Grip~Maryann
Sent on Monday, December 04, 2006 at 11:48:40 PM
maryannkieffer@yahoo.com
From Natalia Haala,
Woodbury
Hello--
I saw your story last night on Fox9 and I was touched. I too was diagnosed with dermatomyositis three years ago and have been through your difficult journey. As I read the journal I could relate so much with what Josie is going through; the hospitalizations, blood work, uncertainty and fear.
I will be praying for Josie as she goes through this painful disease. I will be praying that one day soon she will be able to do little girl things.
Sent on Tuesday, December 05, 2006 at 12:27:41 AM
natalia_haala@hotmail.com
From Kristin Erickson,
Brooklyn Park, MN
Hi Josie and family,
I just heard about your situation from my friend Heather -- what a journey you have been on! You are all amazing and courageous, from what I have been reading. I will add you to my prayers, and get you into my "prayer chain" (my good friends)... it is the season for miracles! I hope to make it to Josie's party next weekend...
Blessings to you all
Sent on Tuesday, December 05, 2006 at 8:28:18 AM
kplayagirl@aol.com
From Jessica Dahms,
Marshall, MN
Wow...I don't even know what to write! I just read your entire blog...I've smiled with you, cried with you, asked "Why?"...
We are no strangers to the University of MN. Our son was diagnosed with ESRD (End Stage Renal Disease) on Jan. 10th, 2005 at 2 days old. We were at the U from January-June of 2005, came back for a week in August of 2005, and then again in December for Gavin's life-saving kidney transplant. All in all it was 7 months of hell. We will be praying for your family as Josie continues to fight...
Hugs from Marshall,
Tony, Jessica, & Gavin Dahms
www.caringbridge.org/mn/gavindahms
Sent on Tuesday, December 05, 2006 at 9:05:57 AM
jessdahms@hotmail.com
From Gigi &Eda,
Fraser
Hi Josie, did you have a fun birthday? We hope Bella is behaving and not taking up too much of your bed. We are sorry to hear your hurting so much lately. Sounds like your doctors and mommy and daddy are working hard to get the right combination of drugs to help you. Eda and I will keep reading your blog and when you feel better we will come and see you again. We don't want to keep you from sleeping when you need to -because sleeping is very importand for your body to heal. If you still want to see us this week we would love to visit though- so just tell your mommy if you want us to come anyway; she can call us and let us know. Hope you are feeling better real soon.
xxo Gigi & Eda
Sent on Tuesday, December 05, 2006 at 2:16:26 PM
gigik@fraser.org
From June Kuntze,
Edina, MN
I couldn't stop thinking about Josie today after reading her story last night. The information about her benefit was forwarded to me by a friend who attends CPC. I have a special needs son who has had his share of hospital stays and complications. It is extremely exhausting and life-consuming and my heart goes out to your entire family. I will pray for sweet Josie and both of you parents for strength and courage. Don't be afraid to trust your instincts and ask the tough questions doctors may not like to hear. Bless you.
Sent on Tuesday, December 05, 2006 at 7:08:35 PM
Jbkuntze@juno.com
From April Thornburg,
St. Louis Park
Hi Josie
Remember me, April, I babysat you when you were just a few months old. You are quite the fighter, girl! I know you are putting up the fight of your life right now, keep fighting! You are you have a lot of people that love you and your family who are praying for you each and everyday. Those prayers do not go unanswered! Be sure to stay strong Josie, you will WIN!
My Love and Prayers go out to you Deb, Jay, Trip, Henery, Eve, & Josie
Sent on Tuesday, December 05, 2006 at 8:01:57 PM
bigapes@hotmail.com
From Sara & Gumper Carrigan,
Rosemount, MN
Josie-
We have you in our thoughts and wish only the best for you and your family.
Love,
Sara & Gumper
Sent on Tuesday, December 05, 2006 at 8:29:38 PM
sjcarrigan@charter.net
From Ann Aguilar,
Richfield
We are praying for Josie! May God the healer bring you healing here on earth.
Sent on Tuesday, December 05, 2006 at 8:43:48 PM
aaaguilar@usfamily.net
From Sarah Madsen,
Eau Claire, WI
Josie,
I showed some girls from my college your clip from the news and they were all moved by your courage and strength. You're a fighter... keep it up. Much love... you're in my thoughts daily!
<>< Sarah Madsen
Sent on Tuesday, December 05, 2006 at 9:42:33 PM
madsensl@uwec.edu
From aggie,
San Francisco
Hello Jay & Deb,
I am in so much trouble with my daughter for not getting Josie's birthday card out on time! It's en route now, and we hope it will bring a smile to our little angel's face. Saw the very moving Fox 9 segment. I hope it will recruit some new suppporters for Josie's cause. If only Josie could have some pain-free days, my Christmas prayers will be answered. Try to stay strong not only for Josie, but Trip, Henry, and Evie, too. I'm so concerned about the toll this is taking on all of you...
Sent on Wednesday, December 06, 2006 at 12:37:42 AM
aiv1026@aol.com
From Katie Krueger,
Richfield
Josie,
You are in our thoughts and prayers. What a strong, beautiful girl you are. We hope you feel better really
soon!!
Karl,Katie,Zach & Max Krueger
Sent on Wednesday, December 06, 2006 at 11:12:49 AM
kkrueger5@comcast.net
From Karen Herman,
Edina, MN
My name is Karen Herman, and I am Trip's Sunday school teacher. We are thinking and praying for Trip and Josie every day. The 5th grade boys in our group, Nikki Abramson leads also, are praying for Josie and Trip. Nathan, one of our boys, just asked me how Josie was doing. These boys are prayer warriors and are lifting up Josie in God's care and warmth like a cozy blanket!!! We are all praying and thinking of you at this challenging time. We are happy to have Trip in our group and miss him when he is not able to attend. Hello Trip, praying for you too, keep your chin up and keep in God's Word, the Bible and continue being a disciple for God....Big doG for Him!!! Karen And Nikki
Sent on Wednesday, December 06, 2006 at 12:48:02 PM
kbherman@comcast.net
From Kathleen ,
Hi Deb,
This was my nephew's reply. He may show up to do balloon animals so you may want someone to be prepared for an organized way to do this. Kathleen McJ
From:
To:
Date:
5 Dec 06, 12:37am If I'm available that night I might be able to stop by. I'd want to have
them collect some kind of donation for their fund so I don't get mobbed with
too many kids in a line......it looks like they already have a sponsor for
inflatables
Brian
Sent on Wednesday, December 06, 2006 at 12:48:41 PM
From Holly Thiede,
St. Louis Park, MN
Thinking of you today, Josie! You are such a strong young lady!
Sent on Wednesday, December 06, 2006 at 4:51:29 PM
HandThiede@aol.com
From The Murray Family,
Carver, MN
Josie,
We are hoping your surgery went well today!! We are praying for you every day!
Love, Jenette, Patrick, Lauren & Evan Murray
Sent on Wednesday, December 06, 2006 at 8:35:59 PM
jenette_g@hotmail.com
From Jim and Jen Ware,
Rogers, MN
Jay and Deb,
We've been thinking about you and praying for you for a while, but just started reading the blog. We're so proud of the two of you, and even more amazed at Josie's fighting sprit. Our family is praying for all of you every day. May God give you strength, endurance and patience while Josie rebounds!
Love,
Jim, Jen, Lauren and Jonny Ware
Sent on Wednesday, December 06, 2006 at 9:20:56 PM
jimandjenware@yahoo.com
From Kevin & Heidi Barthel,
St. Michael, MN
Hi Deb & Jay and of course Josie. You all sound incredibly strong--I hope messages from friends help to "fuel your engines." Such a tiny little body to endure such "complications.." Jay, you're an incredible writer and I'm sure your story serves as inspiration to many. Deb, I hope you can feel my "HUG" by reading this message. Your family will be in our prayers daily!
Sent on Wednesday, December 06, 2006 at 11:57:38 PM
heidibarthel@charter.net
From Cindy Scriver,
Edina
I only learned about Josie yesterday and have read every entry you have posted. It kept me up late last night. My heart breaks for her!
My son Grant is in class with Tripp and we are praying for all of you as a family. We wish we could be at CPC this weekend but we'll be there in spirit!
Keep fighting Josie...you are a true inspiration to all of us! God bless you!
The Scriver Family
Mike, Cindy, Mitchell, Grant, Chad and Chester
Sent on Thursday, December 07, 2006 at 8:06:48 AM
cmscriver@mn.rr.com
From old friend,
Centreville, VA
Hi Deb,
So sorry to read about Josie's ordeal in the hospital. I have sent you an e-mail. I know exactly what you are going through. I see so many of the same things from when Andrew had his horrible years. You are amazing - taking care of a sick child in the hospital and a family at home - truely amazing. Miss you - I want to help.
Maria
Sent on Thursday, December 07, 2006 at 9:29:10 AM
mariavet@cox.net
From Kevin & Heidi Barthel,
St. Michael, MN
After reading Josies's story and listening to Deb on the Channel 9 newsclip, Josie has "grit + spirit = SPIT!" It's the stuff that can make a mother "cuss" under her breath when your child is healthy, but in Josie's case it's a wonderful blessing! Deb, remember when you'd jump on the uneven bars when the palms of your hands were half-gone -- SPIT made you do it! Dad (Jay) must have passed on a healthy dose too! Our love and prayers for all of you!!!!!!
Sent on Thursday, December 07, 2006 at 10:19:16 AM
heidibarthel@charter.net
From Kathleen McJunkin,
Apple Valley
Couldn't get an evite response through for my parents, Kermit & Shirley Pietz. They are planning on coming even though I can't be there. I will be dropping off 3 French Silk pies and various candy for the bake sale. Dr. Kruse has also donated a gift certificate for a weekend of boarding for the silent auction. Have a great party. I will try to stop by. Kathleen McJ
Sent on Thursday, December 07, 2006 at 2:17:15 PM
mcju0002@tc.umn.edu
From Maria,
Elk River, MN
Jay and Deb,
I'm so sorry I never heard about Josie until now...Scott just sent me his group email. I've read the site and watched the video clips and I'm sitting here in my office crying. I'm so sorry you all have to be going through this pain - I have a little 4-yr old girl, too, and my heart and prayers are with you. I will think about you and send my love to you and her each moment...I admire your strength and know that God is with you and Josie every moment.
With Love,
Maria (Schwefel) Johnson
Sent on Thursday, December 07, 2006 at 2:44:32 PM
maria.johnson@bsci.com
From Charlotte Monmont,
Edina
My son, Max, is in class with Trip and we would be more than happy to help in any way we can. Please don't hesitate. I only read about Josie yesterday (Max had mentioned that Trip's sister was "sick with a disease with a very long name" but we had not realized to what extent and what a long fight this has been for you all). You are all very much in our thoughts - better days have to be just around the corner for you.
Sent on Thursday, December 07, 2006 at 8:51:48 PM
charlottemonmont@msn.com
From Nicole Ensrud,
Edina
Hi - I heard about your beautiful amazing daughter through one of her sibling's teachers at Concord. You all are in my family's prayers now. Thank you for being so willing to share her story so now we can join in praying for her and supporting you.
Sent on Thursday, December 07, 2006 at 9:53:07 PM
nicoleandbruce@msn.com
From Rick Vetsch,
Centreville, VA
Jay, Deb, Josie and family
Wow. Just read the entire blog. You are experiencing life in a tremendous way. It's obvious through your words, photos, and tone you are all giving this one spirited fight. Much of your experience is familiar to Maria and myself with our Andrew. I believe very few are provided the opportunity to be hero's - models for all the rest of us by which to live, act, and learn the value of the gifts we have. Josie is obviously your hero, and now mine also. Our thougths and prayers always.
Sent on Thursday, December 07, 2006 at 11:34:15 PM
mariavet@cox.net
From Fred Clayton,
St. Paul, MN
Josie,
I know the fighting spirit of your parents and trust you are blessed with the same to take you to the end of the battle and into recovery.
Love,
Fred, Trevor & Linda
Sent on Friday, December 08, 2006 at 7:49:17 AM
clayt004@umn.edu
From Angie Rogers - Hockey Mom from the Dynamo Grizzlie Team,
Burnsville, MN
To All of You,
I've read the entire blog and all I can say is "Wow". Your strength is very inspiring. Your family is in my thoughts and prayers.
Sent on Friday, December 08, 2006 at 12:09:38 PM
angie.rogers@pattersondental.com
From Deanna Kearns,
Largo Florida
Hey Josie,
I was really hoping that things would be looking up for you by now. Keep on fighting Little One. Please know that you are in my heart and my prayers.
Deanna Kearns
Sent on Friday, December 08, 2006 at 12:34:27 PM
d.l.kearns@att.net
From The Stattine Family,
Edina
Dear Adams Family,
I have recently heard about Josie through CPC and Concord school. We have watched the news clip and have read Josie’s sight and our hearts and prayers go out to your entire family. We can’t imagine what you all are going through. Josie sure sounds like a fighter and we are sorry that she has to go through all of this! Please know that we are praying for Josie to get stronger and better. You are truly an amazing family! We will continue to visit the website and check on her progress. Once again our hearts and prayers are with you.
Judd, Christina, Olivia, Tommy and Sophia Stattine
Sent on Friday, December 08, 2006 at 3:22:24 PM
christinastattine@mn.rr.com
From Leslie,
Richfield
HI Josie-
It looks like the nurses are taking good care of you...That "spa bed-bath" in your picture looks nice and relaxing. Hopefully the water and towels were really warm!
I think of you so often and hope you have a good day. Jay and Deb-I wish I could make it this weekend to give you a great big hug. Something interesting-not only did my cousin have JDM but another juvenile from my home town also had it when I was growing up (both in the 70's) At the time we couldn't say Dermatomyocytis but knew it was serious. You're doing so much for bringing awareness to a whole lot of people and I'm is praying a cure is close at hand. Love to you all
Sent on Friday, December 08, 2006 at 4:09:33 PM
lesliemckeown@comcast.net
From Nancy Manning,
St. Louis Park
Jay...
My heart goes out to Josie, you and your family. You will be in my prayers from now on. Please know how much I care.
Nancy
Sent on Friday, December 08, 2006 at 6:57:48 PM
nimanning@juno.com
From Sheldon Q Sather,
Stillwater
So much courage and strength. I held my daughter and said a prayer for you and your family tonight. Jay if you see this, it has been a while since we have seen each other. I just found this through Rob F. Words fail me. My 3 year old asked me why I was crying. I told him a little girl his age is very sick. He asked me why. It is not fair Jay. It just is not fair. Find and keep the strength.
Sheldon and Anne Sather, Jackson (3.5), Lili (14mo)
Sent on Friday, December 08, 2006 at 8:22:55 PM
asather@comcast.net
From Janet Meliti,
Anchorage Alaska
Hello there Litte Josie Ijust found out about you today from Sean Foxes Mommy Iguess you two are at the same hospital. Iread about theese rare autoimmune disorders before alot theese past couple of years especially. Autoimune disorders are a very hot topic .
My son Matthew who just turned 4 yrs old last month on Veterans has a rare syndrome known as Prunebelly Syndrome they are born with little or no Abdominal muscle with alot of other anomalies to there gi tract, urinary tract etc. You can go to www.prunebelly.org to learn more about this rare life threatning syndrome. We try to raise more awareness each day so we can get funding for more research for better care options etc. It has another name it is known by also the two dr's names who discovered it but more commonly known as Prunebelly be cause there skin is really wrinkly.
I hope you feel better soon Josie.
Sent on Saturday, December 09, 2006 at 2:58:16 AM
jmeliti11@hotmail.com
From Nisi Carlson,
Minneapolis
Hi Josie - I hope you are feeling a little bit better today. I can't wait for your party and I wish you were going to be there!
Nisi Carlson
Sent on Saturday, December 09, 2006 at 8:52:30 AM
emilyjimcarlson@msn.com
From Tammy & Dakota,
Keene, New Hampshire
Greetings, Josie and all the Adams Family. Way cool glowing thingies! We miss you all and would so very much like to be at the party tonite. Another time!!!!watch for the package (hopefully it will arrive on time). Happy Birthday to Evie! We are keeping the Faith here. Lots of Love, hugs and toothy grins, (between the tears).
Sent on Saturday, December 09, 2006 at 3:59:25 PM
camprn@verizon.net
From Sarah Madsen,
Eau Claire, MN
HI Josie!!!
Thinking of you on your special night... I'm sure it's wonderful. I hope your visit with Goldie was a fun one! Wish I could have been in town to support you, but you're with me in spirit. All my love and prayers go to one special someone tonight-- YOU.
Sarah xoxo
Sent on Saturday, December 09, 2006 at 8:32:49 PM
madsensl@uwec.edu
From Sammy & Nisi,
Minneapolis
Hi Josie - Your party was great! We wish you could have been there. We got a big huge stuffed animal (a Manatee which is kind of like a dolphin). We named her Josie after you - the sweet little girl who inspired us!
Love Sammy & Nisi Carlson
Sent on Saturday, December 09, 2006 at 9:22:46 PM
emilyjimcarlson@msn.com
From Thomas Lund, Tom & Darlene ,
across the street
Josie, we loved your party...it was grand. Matthew played the trumpet for you and Goldie Gopher danced around and the bounce thing was in full blast! We ate spegettie and bought cookies and honey and I don't know what all. Grandpa and I loved it and we prayed for you and sang Joy to the World...because you bring us Joy, Josie. Love and hugs for a good nights sleep. Tom and Darlene Lund
Sent on Saturday, December 09, 2006 at 9:31:29 PM
lundlink@mac.com
From Lisa Heilman,
Lakeville MN
Dear Josie! We are home from your party and it was so fun! The boys had a great time - Isaac got his face painted - he wanted it to be lacrosse - but she misunderstood and painted on a cross. He still liked it and I thought it was fitting! We loved the slide show your Daddy put together and your Mommy did such a fabulous job talking about you. You are really something special and you brought together so many people tonight.
Sleep Well
Love Lisa Rich Lucas and Isaac
Sent on Saturday, December 09, 2006 at 9:48:12 PM
lheilman@frontiernet.net
From Beth Stellon,
Richfield
Josie, you're positively glowing! :)
I didn't get to stay for the party but it was fun to see all the people who care about you and your family so much there working to put it all together. Jack was able to be there to celebrate YOU! We hope you and your family understand how much you are all loved.
Keep glowing!
Sent on Sunday, December 10, 2006 at 12:46:41 AM
StellonE@aol.com
From Tammy Melloy,
Minneapolis
Dear Josie,
Maddy, Albert, Cullen and I attended your beautiful party tonight. I was so overwhelmed with emotion, I couldn't even talk to anyone or I'd start bawling- I'd become completely unglued! It was SUCH a beautiful thing to see all these people come together in support of your family. I felt like the moment I stepped out of my car into the parking lot, I just floated in the building on a sea of love. There really are angels, and they bake cookies, serve spaghetti, and shaved ice in my favorite flavors!What a loving gesture to a loving family. I can't think of anyone more deserving. I have known your Mom since she was 14 and I have always known her to be a champion in everything that she does. She tries to do her best and then she'll do just a little bit more! I admire her so much and strive to be like her! You must have those champion bloodlines yourself, kiddo, from yer Ma and Pa, to get through this ordeal, and get through this you will. Hang tough, ya'll! You are such an inspiration to all of us. I saw your Mom perform her first ariel (a cartwheel with no hands!) and I'll never forget the look on her face! I believe in you and I believe in love. You are so loved. Good health, strength, and comfort to you, little girl and to your family, too! We can't wait to see you at the skating rink again sometime soon! Be well....much love, Tammy, Maddy, Albert, and Cullen
Sent on Sunday, December 10, 2006 at 4:51:03 AM
TMELLOY@mn.rr.com
From Joan /Jim Wobbleton,
Murrells Inlet,SC
Good morning to the Adams family. It's the day after the big JOSIE party. Because we live in SC we couldn't make the party so we are enjoying seeing the blogs and the guest book. Hope the auction went well and raised a lot of money.
Loved seeing Josie and the gopher. I think that PT will be nnecessary to start reeducating those unused muscles in the bbody. Maybe warm whirlpool to the feet and legs would help. It should be nice for her to feel the warm water on her extremities. Keep us informed about the outcome of the aauction and party. We pray for help in understanding what tto do and how to manage all the symptoms that Josie has to ddeal with on a daily basis. We pray for strength to the whole Adams family and friends who are providing help on a daily basis.
Joan and Jim Wobbleton
Sent on Sunday, December 10, 2006 at 7:51:07 AM
jwobb@aol.com
From Shelly Nelson,
Richfield
What wonderful friends you all have. I was amazed at how many people came to not only eat dinner, buy baked goodies and cards, and place bids on the ENORMOUS amount of items in the silent auction, but to also help out in so many ways. Josie, you all, and this event will also stick with many of US for a lifetime, too! We pray for your healing, and wish you home soon, Josie. XOXO
Sent on Sunday, December 10, 2006 at 7:59:18 AM
From JAN,TERRELL,KEN,EMANUEL,
waukon,iowa
SO PRAYING FOR YOU ALL AND WISHING ALL THE BEST. THE NEWS STORY WAS GREAT!! SHE IS A BEAUFAL LITTLE GIRL. I SEND YOU ALL THE PRAYERS YOU NEED.. THE BAUMLER
www.caringbridge.org/ia/terrell
Sent on Sunday, December 10, 2006 at 10:01:52 AM
j_baumler@yahoo.com
From TomKari,
Saint Michael
A simple prayer...
“Father, I ask you to bless Josie and her family.
Show them a new revelation of your love and power.
Holy Spirit, I ask you to minister to their spirit at this very moment.
Where there is pain, give them your peace and mercy.
Where there is self-doubt, release a renewed confidence through your Grace.
In Jesus precious name. Amen.”
Sent on Sunday, December 10, 2006 at 11:54:42 AM
mayberrymn2003@yahoo.com
From Cathy Patterson,
Virginia
We will be praying for you Josie!
You are a brave little girl and your family is very brave too.
Hugs,
Cathy, Jeff, Casey & Dylan
Sent on Sunday, December 10, 2006 at 2:04:46 PM
thrddyfan@yhoo.com
From Patrick McClure, D.C.,
Mariposa
Hi. My name is Patrick McClure. I am Jacklin Hiblers chiropractor. She shared with me what is going on with Josie , so this morning I came to your website. Such a precious child. Her courage and inner strength are so evident in the photos. I want to let you know that my prayers are with you, Josie's parents, with Josie, the medical staff and all the others whose hearts have joined with Josie's. I pray that His peace, strength and healing will bring a miracle to you all. There is no way for me to truely know or understand all that you are going through, but I pray for God's strength in your lives. When our youngest son was in ICU with his life in the balance I firsthandedly experienced the grace and comfort of the Lord. He is with you all.... My warmest regards. Patrick
Sent on Sunday, December 10, 2006 at 2:33:34 PM
pvmcsurf@sti.net
From Francesca Madden,
Chicago
Dear Josie,
I am an oooold friend of your Aunt Megan Wenaas and she told me all about you. I just want to send you a BIG BIG HUG and tell you that you are such a brave little girl. My daughter Sofia is 5 months old and I hope she becomes a strong, beautiful little girl like you. I have a special angel in heaven and I will tell him to give you a very warm kiss tonight so if you see him you know that I sent him to you.
All our love, Matt, Francesca and Sofia Madden
Sent on Sunday, December 10, 2006 at 6:03:27 PM
From Lynn gabriel,
Victoria,MN
Well, 'Dear Josie', wow! the impact you have on so many people's lives and the love and selflessness that you have inspired! I pray that someday you will understand the incredible affect you are having on so many and bringing out the very best in all of them. from family to friends to strangers, you are a very special angel that God has chosen for incredible things.. Keep the faith Josie, the Lord is with you every step of this journey. Thank you for giving us the opportunity to share our love and support with you and your family by having this circle of love party in your honor. Just goes to show that God is so good, and the world really is good too. filled with good hearts. Keep up the fight Josie, we will take you on an awesome train ride as soon as you can go! They will blow their whistle and puff their steam just for you-you can bet that Blake and Faith will make sure of that!
We love you precious girl,
and God loves you the most,
Lynn Stan Blake and Faith Thank you for being you.
Sent on Sunday, December 10, 2006 at 8:55:25 PM
lrshadle@earthlink.net
From Lynn gabriel,
victoria, MN
HI again Josie,
I am sorry that I forgot a very important thing in my last e-mail. I wanted to tell you that I got to talk to Goldy after he saw you at the hospital and of course asked him how you were doing when he was there. Well, Goldy Gopher was VERY HAPPY that he got a high five from you! I just wanted you to know that.
Love
Lynn
Sent on Sunday, December 10, 2006 at 9:43:31 PM
lrshadle@earthlink.net
From Karen Madsen,
Richfield
Josie,
We had a blast celebrating you last night!! There may have been a lot of sweets at the bake sale but they still didn't add up to how sweet you are to us. It may have been named a silent auction but it was not silent at all with all of the cheers for you! The snow cones may have been cold but everyones hearts were warm with the love in that place. Some of our shirts may be stained with spaghetti sauce but we may never be able to wash it out because of the reminder of a warm and wonderful evening. The cards from you and Henry may have been blank but they tell a much greater story than words could ever say. There may have been a lot of sweat on the brows of hot air jumpers but not the as much sweat and grit as you have put into fighting this disease. Your family was amazing in the love they showed for you with what they shared with us at the end of the evening. (Mom said she wasn't the writer in the family but we discovered she is quite the public speaker. Perhaps because of the passion she has for you!) We will keep praying for you, Josie. We know God's timing is perfect but we wish he'd hurry up and start giving you some good days!!! Love, Karen and the Madsens
Sent on Sunday, December 10, 2006 at 9:51:12 PM
From Lori, Jim, Lisa, & Leanna,
Santa Ynez Valley, Calif.
Hi all!
We just want to send your family & Josie a gentle hug!
Our daughter, Leanna, is 9 & has had JDMS since age 4. Our other daughter, Lisa, is almost 17, and had different rare disease call RSD (reflex sympathetic dystrophy) from age 9 to 14. We all wanted to tell you we are thinking of you and praying for Josie's recovery.
The JDMS site & Cure JM have been wonderful for us - glad you are posting there. Your blog is great...no one should have to go through all this. Your (& Josie's) spirit is strong. We will keep you all in our hearts & prayers!
Love, The Thompsons
Sent on Sunday, December 10, 2006 at 9:53:28 PM
dragonmusic1@aol.com
From Lindsey, Craig & Kiley Gorski,
Edina, MN
Sweet Josie, we hope and pray for your little body to heal and feel better. Kiley has missed seeing you in the gym at Fraser. To Josie's family - there is nothing we could possibly think of to say that could sound appropriate. Until we read the flyer at Fraser on Friday, we had no idea what Josie and you are going through. We do not know Josie well, but she would often come up to me when I was picking up our daughter, Kiley, at Fraser. She seemed such a gentle soul. I have to laugh that one of the last times I saw her, she was wearing her favorite Dora sandals on the wrong feet! Having a special needs child, people often tell me that "God never gives you more than you can handle". I'm not sure if its true or not, but I hope (and it appears to be the case from your blog) that God has given Josie and your family extraordinary strength. Bless you all, but especially Josie.
Sent on Sunday, December 10, 2006 at 10:40:32 PM
lindsgorski@hotmail.com
From Leslie McKeown,
Richfield
HI there Josie, Jay and Deb-
Sounds like the benefit for Josie was a huge success! I'm so envious of those who were able to go and share in all the positive energy. Glad to hear Josie was able to have a private audience with Goldie Gopher. Strange thing about the Red Man Syndrome-funny though-when I saw her latest picture that's the first thing I thought of with her red, shiny cheeks and all that Vanco. It used to happen more frequently years ago when all IV's were not on pumps and the rate of infusion "got away from you" (meaning the Vanco infused to fast). I'm sure they are doing this but Benadryl pre-med before Vanco really curbs the discomfort, redness, and itching. Just a thought-I've had a few pt's with Red Man's that say their feet and hands feel like they are "on fire"-do you think this could be some of Josie's foot pain? Benadryl really has seemed to help in those cases. Just my 2 cents-I'd best leave it to the experts. Lots of love to you all! Leslie
Sent on Monday, December 11, 2006 at 2:44:10 AM
lesliemckeown@comcast.net
From Tina Tiliks,
Chicago, Illinois
My thoughts and prayers are with Josie and your entire family. Your little girl is 1 of the bravest people on this planet. Best wishes for a quick and complete recovery!
Sent on Monday, December 11, 2006 at 9:54:37 AM
From Selina Thomas,
Chicago, IL
I was forwarded the e-mail about Josie from a friend. She looks like a sweet and wonderful child. I am so sorry that she has to go through this. No child should ever suffer. Please know that my prayers are with her and with her family. I imagine this is incredibly difficult for you. No parent wants to see their child in pain, and I am sure that you have wished it were you several times. I hope that her recovery comes soon.
Sent on Monday, December 11, 2006 at 10:39:17 AM
sthomas@isba.org
From Megan Wenaas,
Right Next Door
Josie:
We were so honored to be a part of your celebration on Saturday. We wish you could have been there, but we know the doctors are doing everything they can to get you home as soon as possible. Please know we love you very much and we continue to pray for you daily. I've got your song in my car and I listen to it all the time. Bridget & Molly Rose know the lyrics and they sing it too. We hope you can hear our voices. We're singing to you, sweet girl!!
We hope you can come over soon and play with Bridget & Molly Rose like Evie has been. I've got lots of movies and I'll make you whatever your heart desires!!!
We Love You Josie!!!
Megan, Jason, Bridget & Molly Rose Wenaas
Sent on Monday, December 11, 2006 at 11:06:34 AM
MMWenaas@gmail.com
From Linda Schwefel,
Deb and Jay, what an incredible evening on Saturday. The love and support that filled the room was like nothing I've ever seen. You are both so strong and courageous, must be where Josie gets it. I have played Josie's song countless times (and sobbed with every note), what an amazing tribute to your beautiful daughter. We will keep the prayers coming, know that you are in our hearts always and not a day goes by without thinking of you all. Stay strong and keep the faith. Love Linda
Sent on Monday, December 11, 2006 at 1:09:13 PM
lschwefel@aol.com
From Tia,
Maryland
My prayers are with you and your family.
Sent on Monday, December 11, 2006 at 1:09:53 PM
venetiajordan@yahoo.com
From Jess W,
Crystal, MN
Josie you are in my heart and Prayers. You are a very strong little girl.
Sent on Monday, December 11, 2006 at 1:39:13 PM
Jessnjackson@yahoo.com
From The Blood Family,
Tampa, Florida
Josie and Family,
I am praying for all of you and will keep you in my thoughts.
Josie, You are a very brave little girl. You fight this sweetie and get better soon.
Sent on Monday, December 11, 2006 at 1:46:14 PM
bloodgrlak@yahoo.com
From Tammy Bishop,
Buffalo, MN
Josie,
You're a beautiful little girl! I want you to know that I'm praying for you and your family! Stay strong, God is with you!
Sent on Monday, December 11, 2006 at 2:31:23 PM
Tammylynnb2003@yahoo.com
From Shari,
California
Lord, I lift little Josie up to you now. Please have mercy upon her pain and suffering and offer her comfort in this time of trial. Please watch over Josie's family as well, give them strength and hope to see their daughter/sister through this disease and on to better days. Please have a guiding hand upon the souls, hearts and hands of Josie's caretakers. And for those that come in contact with Josie's journey through the media or internet, as I have, please humble our hearts...that we might be thankful for our health. In all these things I pray, In Jesus name...Amen
Sent on Monday, December 11, 2006 at 2:43:16 PM
Sorcha4sca@yahoo.com
From kelliann,
mascote,fl
I pray you are healed very soon...
Sent on Monday, December 11, 2006 at 5:26:11 PM
jsanchez262@cfl.rr.com
From Michelle Brunner,
Detroit Lakes
My heart goes out to your family. I have children myself and can't imagine what you are going through. Even though I don't know you, I truly feel for you and Josie. My thoufhts and prayers are with you!
Sent on Monday, December 11, 2006 at 7:34:49 PM
momuvtwo2002@yahoo.com
From Kathy Santini,
Plainfield, Illinois
To beautiful, little Josie...not a day will go by without you in my thoughts and prayers. Kathy in Illinois
Sent on Monday, December 11, 2006 at 8:18:46 PM
kalsan333@comcast.net
From Ann Schular,
Hello Josie and Family,
I have been reading your journey. You are sure one tough kid. Don't give up Josie!!! You have a lot of people praying for you. I am praying for you too. I miss playing dinosaurs with you and of course our fun squishy ball. When I come back to work which is January 9th, I will stop by to say hi and to show you pictures of my baby girl Madelyn Marie. I am thinking of you Josie. Merry Christmas!!!
Sent on Monday, December 11, 2006 at 8:42:17 PM
From Stephanie Blachowiak (Henry's teacher),
Brooklyn Park, MN
I'm am so touched by your journey, Josie! You are such a stong, brave young lady. You are a fighter and an inspiration to all of us who "sweat the small stuff". I hope you experience pain-free days soon. You are in my prayers.
Sent on Monday, December 11, 2006 at 10:17:36 PM
steblachowiak@edina.k12.mn.us
From Leigh Anne,
Maine
Good Morning Josie,
I hope you are feeling better today. The weather here in the big state of Maine is a little nicer today than it has been. The sun is shinning and the temps are going to be in the 50's! Just when you think winter has arrived. Caitlin is very excited for Santa Clause. She is hoping that there is a lot of snow for him and his sleigh!
We are thinking of you often and hope you feel better soon! Much sooner than later!
Love, Leigh Anne, Justin, and Caitlin
Sent on Tuesday, December 12, 2006 at 6:34:30 AM
supajut@msn.com
From auntie,
A humble request...it would be so wonderful to read the speach Deb made at the benefit, again. Any chance it could be included here? With Love (great), Respect (incredible), and Joy for Jose (always), Katy
Sent on Tuesday, December 12, 2006 at 12:57:07 PM
From Steve, Katy and Sam LeBarron,
Edina
Thank you for allowing us the opportunity to give something back to Josie this weekend as she has given countless things to the rest of us by example. Still in our prayers daily!
Sent on Tuesday, December 12, 2006 at 8:06:52 PM
From Caroline & Ed Gaiser,
Fresno, CA
Hi to you all, Deb,Chip, Trip, Henry, Evie & especially Josie. We were thrilled to see how well the fund raiser turned out. We were so sorry that, because of distance, we couldn't be there. You all have such a wonderful support system around you back there. It helps us out here to feel a little less anxious. You are all such an inspiration to us. We were so pleased to see that, possibly, things are turning the corner for Josie. We pray that they are. You continue to be in our prayers daily. With Love, Caroline & Ed
Sent on Wednesday, December 13, 2006 at 3:44:49 AM
c_gaiser@hotmail.com
From Lori,
West St Paul
I'm keeping Josie and your family in my prayers. She's such a sweet looking girl.
God Bless you all and Happy Holidays~
(I'm a friend of Megan's)
Sent on Wednesday, December 13, 2006 at 9:18:56 AM
ljhansn@pressenter.com
From Joey Benedict,
Albany, Oregon
My dear freind Bev Holsing asked for me to log onto your web to add Josie to my prayer list. I believe you know her daughter Leslie or she is a nurse in the hospital. I have watched Josie's progress daily and am impressed with your reports Dad. Your doing a great job! My heart goes out to Josie and the whole family. I can't imagine what you are going through. Josie is in my daily prayers and God is with her I know. What a precious, brave little gir.
Sent on Wednesday, December 13, 2006 at 2:30:12 PM
joeykb@proaxis.com
From Olivia Diaz,
Illinois
I heared everything went smoothly at the party. Well I wanted to tell you there is a specialist in Chicago who has studied this disese for years. She is the top doctor and I didn't know if you knew anything about it. I deeply hope this helps you out.
Olivia Diaz
Sent on Wednesday, December 13, 2006 at 6:47:31 PM
diazoe96@hotmail.com
From The Bowlby's,
edina
Josie-
Each day as we read more of your story, we realize what an amazing girl you are. Keep up the fight! We have you in our thoughts and prayers!
With love,
The Bowlby Family
(Grace is in Henry's class)
Sent on Wednesday, December 13, 2006 at 8:35:46 PM
mbowlby@comcast.net
From Jo Hendrick,
Thomasville NC
I am a pediatric nurse with 21 years under my belt I received an email from a friend in TX with a part of your blog and Pics of Josie--my namesake! My heart goes out to her and your family. I am emailing everyone I know and asking for prayers for Josie and your family. I recently went through something like this with my husband. He is 49yrs old and the MDs expected him to spend the rest of his life in a NSG home d/t muti system failure set off by a minor surgery(long story) but he is home and doing well. Prayer is a very strong weapon(if you will) against these horrible challenges we face. I want you to know that your family is in the prayers of many people here in NC now. I will be reading your entries daily and praying for good news.
Sent on Thursday, December 14, 2006 at 8:19:44 AM
johendrick@yahoo.com
From Laurie M,
Edina
My mom just told me about Josie's article in the Richfield Sun. She knew we'd be interested in it because my daughter Kelli also had dermatomyositis. She was treated for two years starting when she was 6 years old by Dr. Vehe. (He's the best!) After reading her article I went to Josie's blog and it was startling to see how much we have in common! Up until last year, we were regulars at Fairhills for 6 years. We also attend CPC, and when I looked you up in the CPC directory, found that my parents live less than a block from you. I wonder how this awful and extremely rare disease can affect BOTH of our little girls. Kelli's disease was much less severe than Josi's, and she is now 15 and completely healthy. We pray for the same outcome for Josie. Thank you for sharing your difficult journey. We will be following Josie's progress, and know you are all being lifted up in prayer by our family.
Sent on Thursday, December 14, 2006 at 9:13:38 AM
Lauriekm@comcast.net
From Christy Reynolds,
TX
Josie- I thought you might like to call Santa Claus. Here's his phone number 1.800.972.6242. He counts down the 12 days until Christmas. There's a different message each day!
Merry Christmas Josie!
Christy and Natalie(dx2005)-TX
Sent on Thursday, December 14, 2006 at 11:18:19 AM
Richard.Reynolds13@Verizon.net
From Michelle Darr,
Blaine, MN
Adams family,
For the past 2 weeks I have been reading your journal every day. Josie- you are an amazing little girl. I have your brother, Henry in my PE class at Concord and he gave me a bracelet today that says "Joy for Josie". I will wear it everyday and pray for your recovery.
Sent on Thursday, December 14, 2006 at 1:02:47 PM
micdarr@edina.k12.mn.us
From Maria Vetsch,
Virginia
Hi Deb and family,
I have been reading up on Josie's progress. Celebrate those small signs of progress when they happen. Andrew has had many of the same medications for extended periods of time. We had many of the same worries -- today Andrew is 11 years old and no one would ever know that he endured the months/years of medical issues that he did between the ages of 2 and 5. I have every hope that Josie will make it through this - especially with having you and Jay there to get her through it. Love and prayers,Maria
Sent on Thursday, December 14, 2006 at 1:47:20 PM
mariavet@cox.net
From Team Jacobs,
Mason City, IA
God Bless you and your family. I see that you have an amazing group of supporters pulling for Josie's recovery. I recently stumbled onto your website, and over the course of 2 hours I read your complete weblog of Josie's ordeal. Wow, in that short period of time, Josie crawled into our family's heart. I have cried for her pain, and also for yours. Like you, I am a parent of 4 children (age: 6, 4, 2, 1) and I know how hard the daily grind is of raising 4 healthy children, but you folks have added another dimension to parenting...super-juggling.
My children ask many times a day about Josie's recovery. They have looked at her pictures on the weblog, and have colored her pictures of Dora because it's obvious that girl is a Doraholic! We would love to send some of our creative art if possible...just let us know the address.
There are, I'm sure, so many complete strangers to you in this guestbook, and yet we are all linked by one common thread...your daughter, Josie. She is an inspiration to me and my family, and I hope I can infuse some of her strength and character into my life.
Josie has been added to our preschool, church, kindergarten, and night time prayer lists. We will continue to watch her progress, and pray for her healing. How wonderful it would be to someday see a picture of Josie on a swingset, or swimming at the lake!
One last thing...Your accounting of Josie's daily fight is remarkable. You are very candid, and have a gift for telling her journey through this sickness. I find myself logging on first thing every morning to see what the previous day held for your family. Even in the midst of this trial, you tell her story vibrantly.
We would love to help your family in some way, but are not sure of your needs. Please let me know how we can help.
Every day, we will be watching Josie's progress, and praying for her.
Also praying for your strength to get Josie through this.
Sincerely,
Brenda Jacobs
Sent on Thursday, December 14, 2006 at 3:55:46 PM
rb_jacobs@yahoo.com
From Katie Larson,
St. Paul
I just wanted to let you know that Josie and is in my thoughs and prayers each day. I am a third year medical student who did the pediatric GI rotation back around halloween. I learned a lot about Josie through the four weeks I was on the rotation, but continue to learn each day. I want to say thank you for keeping up the blog. I have learned more from it than any textbook could teach someone. I have learned not just about dermatomyositis, but even more about what it is like to be a patient and to be the family of a patient. This is something that cannot be taught in the classroom. Josie is a fighter and will continue to be in my thoughts and prayers, and I know that throughout my career as a physician (hopefully as a pediatric GI doc) I will always remember her as an inspiration. Thank you and keep fighting -Katie
Sent on Thursday, December 14, 2006 at 5:53:54 PM
lars2698@umn.edu
From Judee Dufresne,
Lindstrom Mn
I hope you all feel lifted up in prayer, because Josie is on my mind frequently. I pray Psalm 91 over your whole family.
Sent on Thursday, December 14, 2006 at 10:04:04 PM
dufresnedesign@frontiernet.net
From Jamie & family,
Honolulu
Hooray for the saucy attitude! If you're gonna have attitude, you gotta show it when you're 4! Aloha!
Sent on Thursday, December 14, 2006 at 10:19:55 PM
vacoba@hotmail.com
From Holly Thiede,
St. Louis Park, MN
Sounds like Josie had a good (crabby!) day today!
Hoping there are many more to come!
Sent on Thursday, December 14, 2006 at 10:33:17 PM
HandThiede@aol.com
From Kris,
Richfield
COOL! Crabby is good! The party was AMAZING!! The only thing missing was Josie--so when the time comes-we are going to throw a big party for Josie so she can boss us around and go on the jumpie thing FIRST!
The response to this story is truly heartwarming! The community of friends, family and complete strangers coming together to help out was a beautiful thing to see. Josie-you sure have a big fan club out here.
For those of you at the party and those of you sending wishes and donations from far off lands--here is the link to the photos that I took at the party. ENJOY and I hope these bring a smile to your corner of the Josie fan club map!
http://picasaweb.google.com/teamfridayPHOTO/JOYForJosiePARTY
(Make sure to copy and paste the whole string of letters!)
Sent on Friday, December 15, 2006 at 12:08:22 AM
kris@teamfriday.com
From Stephanie Blachowiak,
Edina
Hi Adams Family,
I read your updates every morning. This morning, I was so happy to read that Josie was crabby yesterday!! It's great to hear that she's showing signs of her old spunky personality. That determination to get just what she wants (lots of water)demonstrates what a fighter she is. I'm sure that fighting spirit has been serving Josie well throughout her adventure! I pray for continued progress and that Josie's able to move to another floor in the near future.
Even though I've never met Josie, I hope that she can someday come to visit us here in 2nd grade at Concord. All the kids here in our class are thinking about her and sending good vibes your way. We're all wearing the "Joy for Josie" bracelets that Henry brought.
Keep fighting, Josie!!
Stephanie Blachowiak
Sent on Friday, December 15, 2006 at 8:07:21 AM
steblachowiak@edina.k12.mn.us
From Vicky "vix" Risken,
Eden Prairie
Deebers, Jay and Josie,
I want you to know I am thinking of you always - I am so impressed with your strength Josie and all of your fortitude and patience. You guys are so inspiring. I am holding you in my heart and soul always. love, Vicky
Sent on Friday, December 15, 2006 at 9:37:02 AM
risken1@yahoo.com
From The Himes',
Richfield
Hi Adams',
We think about you guys a lot and wish we could've made it to Josie's big party. Sounds like it was a great time. We're amazed at Josie's strength and grit. What a girl she is. Good to see she's crabby now too! :) We hope for the best for all of you.
Love,
Lisa, Adam, Jack, Sam and Lou Himes
Sent on Friday, December 15, 2006 at 11:03:17 AM
lisa_himes@hotmail.com
From Maria Johnson,
Elk River
Jay and Deb,
I'm following your updates daily and just wanted you to know that I'm sending prayers and love your way. It seems like the best way to be dealing with this is tackling it head on, with full grit and participation - which is what you are doing. Your learning and writing of everything is so powerful (for us reading it) I'm hoping it's providing you the same source of strength - conquering each small issue as it comes up. I've read all the entries, and there is a lot of love and energy flowing your way - thank God for giving us all the capacity for changing circumstances through our willpower, love and compassion. My kids (7 and 4) say prayers for Josie at night, and I say a special prayer for you and Deb: God Bless you today and everyday, and continue giving you strength and hope - even when you feel exhausted.
Love,
Maria (Schwefel) Johnson
Sent on Friday, December 15, 2006 at 12:44:03 PM
mariaj@sherbtel.net
From Holly Thiede,
St. Louis Park, MN
Just checking in to see how Josie's day is going. Evelyn passed out the "Joy For Josie" bands in class today, and we are all wearing them!!!
Sent on Friday, December 15, 2006 at 2:57:21 PM
HandThiede@aol.com
From shirley bostick,
boynton beach,fl
Sorry to hear about your daughter. My name is Shirley Bostick, my daughter passed away from dermatomyositis, on October 29, 2006,she was 9 years old. Her name was Pricilla Bostick, she was at Joe Dimaggio hospital, in Hollywood Florida.
Sent on Friday, December 15, 2006 at 6:20:10 PM
louisefowler@bellsouth.net
From Jacquie Schmitz,
Victoria, Mn and Naples Fl
Dear Deebers and Jay,
Jeff Schmitz is our son. We met you at their wedding and have started to look at the blog. We had not known much about Josie.
She and you are our in our thoughts and prayers constantly. May the God of all comfort and mercy help you face these difficult days. Take refuge in Him. God bless you all six. Jacquie and Norm
Sent on Saturday, December 16, 2006 at 5:17:49 PM
jacquieschmitz@yahoo.com
From Bailey,
Cottage Grove, MN
Dear Josie,
My name is Bailey. I also have Dermatomyositis (diagnosed Sept 2006). I call it JDMS (Juvenile DermatoMyoSitis). I am 6 years old. I have three older brothers. I am the youngest sister just like you. Keep up the good work on walking. I understand that it is hard to do. I have prayed for you and I will pray for you tonight. I would like to hear from you. Please send an email. My Mom and Dad's names are Michele and Eric. Mom helped me with this note. I hope you feel better soon. Sincerely, Bailey
Sent on Saturday, December 16, 2006 at 6:40:20 PM
mcraton@com cast.net
From Lauren Murray ( 3 year old friend),
Carver, MN
Josie,
We are thinking of you and praying for you. It sounds like you are on the road to recovery. We pray that this trend of healing continues. Hugs and Kisses, Lauren Murray & Family
Sent on Saturday, December 16, 2006 at 11:17:56 PM
jenette_g@hotmail.com
From Kay Stalcar,
Richfield
Hi Josie,
It was great to see the new picture your dad took yesterday, so fun to see you up and smiling. We missed you at your party last week, can't wait until we can have one with you there! Jay and Deb it was great to spend time with you on Friday...
Kay
Sent on Sunday, December 17, 2006 at 9:59:31 AM
From lundski's ,
us
Dear Josie, we are so please to read that at least for the monent you are doing much better...we are sorry for all of your pain and we are hoping that you will be getting better and better every day. Do you remember the ice rink that Daddy built last winter...he is doing it again! Josie, we don't have any snow yet... and only a few days until Christmas...what would you like Santa to bring you? Santa know's where you are...so are you being naughty or nice? We are anxious to see you. We love you, Grandpa and Grandma Lund
Sent on Monday, December 18, 2006 at 8:33:48 AM
lundlink4u@msn.com
From Rita Juran,
St. Paul, Mn
Your family is amazing, especially Josie. Thank you for sharing your couragous story. Your family is an inspiration to me. Josie is an incredible hero. Peace and love, Rita Juran
Sent on Monday, December 18, 2006 at 9:42:35 AM
rita.juran@ci.minneapolis.mn.us
From Sandy and Chuck Hoyer,
Richfield, MN
Ever since Christ the King I've been following Josie's progress. Chuck and I were responsible for the snow cone machine. I wanted to let you know you've got more prayers here from fellow Richfieldites. Bless you all.
Sent on Monday, December 18, 2006 at 11:03:41 AM
sandy@lightntrax.com
From Lynn Gabriel,
Victoria,MN
Dear Josie,
I try to address these to you so that as you grow up you will know that this was all for you. Miracle. You are truely a miracle in every sense of the word! The Lord ahs been doing his work on you and since the Joy for Josie event you have received a miracle in healling. I wish I could remember where this verse is in the bible at this moment, but i do remember the verse: "Where two or more are gathered in His name..." well there were more than 2...700 ish! That many people, faith believing, the Lord is answering our prayers in a big way! Keep the faith Josie, He is with you and loves you and so do MANY people whom you know and love and those you don't know and have never even met. Now we all say 'thank you'. I am so glad that you are feeling a bit better and we are just one step closer to having that train blow his whistle in honor of you! You keep following Dr.'s and Mom and Dad's orders as they all try to help you on the healing path. You are doing awesome!
Love and Hugs
Blake, Faith, Lynn, Stan
Sent on Tuesday, December 19, 2006 at 12:53:43 AM
lrshadle@earthlink.net
From Joe Sarafolean,
Hastings, MN
I am praying for Josie and your family and I pray that the doctors can cure this disease and get Josie as soon as possible. I was at the Joy for Josie event (with the St. Thomas/Visitation students). I was proud to spend time with so many people who support the cause. I will continue praying and I wish you and your family a blessed Christmas.
Sent on Tuesday, December 19, 2006 at 1:42:45 PM
joesarf1@yahoo.com
From Mira,
Canberra
Hi Jay
I just have to mention that the daily and weekly steroids ma be the cause of Josie's surgery not healing. I was surprised to see she was still getting them as they are notorius for preventing healing. Our son's muscle biospy 'dehisced' ie, split open to the bone and took 3 months to heal (from the base of the wound up). It was not until his prednisolone was down to 15 mgs per day that it started to heal. Cant they give Josie methotrexate instead of the steroids? I know its catch 22 but especially with the whipple surgery coming up, I think assisting (or not preventing) healing may be the priority.
I dont wish to add to your concerns but I am puzzled why the doctor's have kept Josie on the steroids and seemed to have 'crossed their fingers' in a wish that she would heal anyway; healing certainly didnt happen with our son while he was on steroids. Kind regards,
mira
Sent on Tuesday, December 19, 2006 at 10:41:50 PM
lesmira@bigpond.com.au
From The McKeown family,
Richfield
Josie, I was thinking about you so often today. I was looking throught old photos from over a year ago when you came along with all of the adults to Jill's cabin in Nisswa. All of us grown ups got the chance to spoil you and enjoy that special time with you. It made me so sad to think you have been battling for so long and that your family has, too. God's timing is perfect but when we feel down we wish He'd hurry up and give us an answer. He sure is giving us an example of how to live along the way. Keep up the fight Josie! We all love you so very much!
Sent on Wednesday, December 20, 2006 at 1:23:02 AM
lesliemckeown@comcast.net
From Leslie McKeown,
Josie-it's me Leslie again :) I have to tell you a funny story. Sam and I were looking at your webpage like we do every day before school to check up on you. We enlarge your little pictures and smile and talk about you and how funny you are. The other morning Sam disappeared for awhile and when he came back he had painted his thumbnails (badly at that). I didn't get it at first and I told him he needed to remove the polish before school. He said he couldn't because when he folded his hands to pray at chapel that day in school he would see his thumbs and remember to say a prayer for Josie. We're all praying for you, painted fingernails and all! Love, Leslie
Sent on Wednesday, December 20, 2006 at 1:30:53 AM
From Michelle Darr,
Blaine, MN
Hi Josie and family,
I woke up this morning and read your journal and I have had you in my thoughts every since. You have touched my heart and I can't stop thinking about you. I pray for your recovery and look forward to seeing you come to Concord.
Sent on Wednesday, December 20, 2006 at 2:02:28 PM
darrboys@aol.com
From Laryssa,
Beacon,NY
Josie and Family~
Everyday, I follow your courageous journey and battles. I cry, smile and find myself feeling angry at times, that a beautiful young girl has to endure so much.
My father was diagnosed with Dermatomystits and I clearly remember his battle with the flare-ups, meds etc..and he was a grown man (62).
I have forwarded your blog on to many..the more prayers the better. SO many are pulling, praying and thinking of you and your family.
I tucked my three young sons in tonight and hugged them tighter than usual.
You are all in my prayers and I will be following your journey everyday.
Thinking of you,
Laryssa & family
Sent on Wednesday, December 20, 2006 at 7:28:02 PM
galcj3@optonline.net
From Vicky,
Eden Prairie
Deebers, Jay and Josie,
What a picture, little sweetie, heartbreaker. I am so impressed by your love, caring and patience for each other as you press through this - I find myself being able to stay calm in the storm and so much more patient myself by thinking of you all. You are on my mind always, I am praying for you and wishing I could lift some of Josie's pain. You are so amazing, all my best, love, Vicky
Sent on Wednesday, December 20, 2006 at 7:52:03 PM
risken1@yahoo.com
From Janet Meliti,
Anchorage Alaska
Hello there Josie Iam so sorry hear from the newst postings that you are feeling awful and things are really quite serious for you again. It sounds like from reading your history that things have never been really good for you so sorry Josie.
Ican tell and see from your pictures and postings that you are so miserabley not well. Iso hope you can get to and feeling some what better soon. Underneath it all you can tell by the pictures that you are sweet pretty little girl.
Janet Matthews Mom from Prunebellysite www.prunebelly.org.
Sent on Thursday, December 21, 2006 at 2:25:53 AM
jmeliti11@hotmail.com
From Stephanie Blachowiak,
Edina, MN
Hi Josie and Family,
I am so sorry to hear that things haven't been the best these past few days. I read your weblog first thing every morning and keep you in my thoughts all day. I laugh at your Dad's funny words and cry when I imagine all that you go through each day. You have endured so much. I just wish all those smart doctors and experts could solve your mysterious case. I'm sure the answers are right around the corner.
Don't forget, when you get better, you have to come visit us in 2nd grade. We talk about you every day and hope that you are healthy soon.
Take care and keep fighting!!
Sent on Thursday, December 21, 2006 at 8:19:22 AM
steblachowiak@edina.k12.mn
From Amee LiaBraaten,
Edina, MN
We have continued to have you as our daily prayers. We are always in awe of your strength and love. Know your story reaches all of our hearts.
Sent on Thursday, December 21, 2006 at 8:53:54 AM
amee@liabraaten.info
From shirley bostick,
boynton beach,fl
My name is Shirley Bosick, i accidently came across your web site early in the week and i been thinking about your daughter Joise. My daughter Pricilla suffer with dermatomyositis for over two years. She was seven years old when diagnois with the rare disease. Pricilla probably had the disease about two to three months before actually hearing a real name to her symptoms. The doctors at Joe Damaggio Children Hospital, believe the disease could have started about around the time of July 01, 2004. We where told in like the middle of September 04. The doctors at first said vasculitis,at that hospital. We took Pricilla to three hospitals,her doctor,and dermatologist before she made it to JDCH. Everyone of the doctors where diagnois her wrong and treating her for the wrong things. After going to one hospital three times, they finally had her ship to JDCH. Pricilla did pretty good at first,after the first few treatments with chemo-therapy. Later on she began to get weaker and unable to move. I am calling it chemo, but it is the same medicines your daughter is taking or similar. I was looking over her old discharge papers, today and how many times she was in and out of JDCH. Pricilla had several surgeries and had duodenal perfuration. She had stomach complications. Pricilla was very strong, had a great attitude, well like by all the staff members. She was a fighter, was never sick until we received this diagnois. Pricilla was released from the hospital the last time in August 06. Pricilla had to have twelve hours a day nurse at the house with her she had got that weak. This last time Pricilla was home for about a month before complaining about severe stomach pain. We took her back to the hospital JDCH again. She past away on October 29, 2006, she never return home not to live. It is a lot more to this story in order to tell someone all of it i would have to write a book. I can tell you this much Pricilla suffer before she die, she had to take a lot of pain medicines,off and on the ventilator. She had severe dermatomyositis, she would get better but their would also be setbacks. Pricilla's father was their with her 24 hours a day seven days a week, he left only maybe a few times and only for a few hours. He was her nurses, they did not have to change one diaper or do her bandages he did it he did a lot. I the mother was their on weekends with the other two sisters, We where her entertainment she love movies, lots of movies. I believe the medications is what hurt Pricilla, she was doing find at first able to walk move around just a little weak. The medications damage my daughter's stomach. The doctors don't have much experience dealing with this disease. Most only had seen this disease probably onces in their life. I know how you feel. I had to watch my daughter suffer, couldnot do anything about it at all. We are all suffering right now we are in pain, in shock, and total disbelief, i still can't believe she has past. The hospital where Pricilla Damarise Bostick, was at is Joe Dimaggio Children Hospital, i do not know if the doctors where your daughter at could ask questions from the hospital where my daughter was. I wish your daughter only the best, and i also believe that she is not as sick and weak as Pricilla was least at the end of disease. I also believe she has great family support, and lots love.
Sent on Thursday, December 21, 2006 at 3:19:22 PM
louisefowler@bellsouth.net
From Sarah Madsen,
Eau Claire, WI
If God brings you to it, he will pull you through it!
Saw that and thought of you guys... keep trucking!
Sent on Thursday, December 21, 2006 at 6:53:45 PM
madsensl@uwec.edu
From Kathy Weiler,
Minneapolis
JOsie - we check in on you every day. Keep fighting little girl - I just know one of these days we will check in and it will only be good news!!! Our thoughts, prayers and hopes are with you...we think of you often and as my friend likes to say we send "good vibes".
To your mom and dad hang in there we can only imagine how tough this is on you adn your family..Let us know if we can help in anyway. The Weilers (A concord Family from Minneapolis)
Sent on Thursday, December 21, 2006 at 7:53:52 PM
Kathy.weiler@woodburyfinancial.com
From A friend,
Dear Jay,
Thank you from the bottom of my heart for all the work you do to keep us informed with Josie's condition- her day to day ups and downs. However, I understand that as a father and a husband you have many family-man needs to meet... take a break from the website! Update us every other day. We appreciate it, but don't let it keep you boggled down.
James 1:2-4
Sent on Friday, December 22, 2006 at 12:19:11 AM
From Connie Auer,
South Dakota
Josie & family,
Everyday my husband & I pray for a cure for the rare disease of jdm. Next we pray for Josie's healing & daily grace for her family.Then we pray for our own precious daughter & her battle with jdm. I just wish Josie's doctors would consider taking her off the immuno-suppressants for a few weeks while her "insides" are healing. Pancreatitis can be a result of the immunosuppressants. We are praying for divine wisdom for the doctors working on Josie. God bless you all & take away the pain & vomiting from Josie.
Sent on Friday, December 22, 2006 at 11:15:37 AM
cauer@spearfish.k12.sd.us
From jackie krainz,
ct
Hi Josie,
Been reading your blog every day -- just wanted to know if you recieved the doodle bear and card we sent you for your birthday-- Merry Christmas Josie--i'm sure Santa will be visiting you soon
The Krainz family
Sent on Friday, December 22, 2006 at 8:17:52 PM
jckrainz@gmail.com
From Judee,
Lindstrom
Thank God for the improvements, and I am praying you get to move tomorrow. For Christmas more than anything I pray for Josie to completely heal and be moving home. In Jesus name, Amen
Sent on Friday, December 22, 2006 at 11:52:55 PM
dufresnedesign@frontiernet.net
From Britta Bloomquist,
Virginia, MN
Hi. was just surfing the web and came upon your blog. I am 18 and am suffering with Spondyloarthropathy, maybe Sjogren's Syndrome, and now am headed off to the U of MN on Jan 9, for testing for Multiple Sclerosis. Dr. Vehe is also my doctor!!! I see him at Gillette though! I have been seeing him for about two years now, and he is WONDERFUL! I love your blog, it is so detailed esp with the pictures. I hope Josie feels better soon. It is tough to be in pain, but I can't imagine what it is like for someone at such a young age. God Bless and Merry Christmas!
Britta Bloomquist
Sent on Saturday, December 23, 2006 at 12:29:53 AM
bitts75@hotmail.com
From Jenette, Patrick, Lauren & Evan Murray,
Carver,MN
We are delighted that Josie is improving. She is such a fighter. We pray she will be home with her family soon. We want to wish Josie and family a Merry Christmas.
Sent on Saturday, December 23, 2006 at 3:35:07 PM
jenette_g@hotmail.com
From Holly Thiede,
St. Louis Park,MN
Great news....moving to the floor tomorrow! Standing (for 5 minutes) while doing arts and crafts...more good news! We will keep our fingers crossed! Yeah Josie!
Sent on Saturday, December 23, 2006 at 3:46:14 PM
HandThiede@aol.com
From Stephanie Blachowiak,
Brooklyn Park
Hi Josie and Family,
After I read your good news this morning, I had a smile on my face all day. I'm so happy to hear that you're feeling a bit better. It is great that you're moving to another floor - just in time for Christmas! I'll be praying that everything goes smoothly. Keep fighting, Josie!!
I hope you all have a Merry Christmas!
Stephanie Blachowiak
Sent on Saturday, December 23, 2006 at 8:56:55 PM
steblachowiak@edina.k12.mn.us
From Lynn Shadle Gabriel,
Victoria,MN
Dear Josie and family,
Wishing you a Merry Christmas! I pray that you receive a miracle on this miraculous day!. Great job doing your physical therapy! You sure get some cool visitors in the hospital..vikings, Goldy, and then Santa?! They all came to see you?! You are a very special girl Josie! Keep up the fight, you are doing awesome. We are sorry that it is no fun to feel crummy but you sure are smart, strong and beautiful, and precious! We love you and pray for you.
Remembering Jesus' birthday today. Merry Christmas!
Love,
Stan, Lynn, Blake , Faith and Dakota(the monster)
Sent on Sunday, December 24, 2006 at 12:20:52 AM
lrshadle@earthlink.net
From lcecil,
bloomingotn
merry christmas josie,! i love your new room!! wow, now you can watch dora and your dad can watch football? or whatever. it is awesome. hope santa surprises you and that you continue to feel better.much love, lynne
Sent on Sunday, December 24, 2006 at 7:14:06 AM
lceciljohnson@yahoo.com
From Anne Coblentz,
Novi, MI
Merry Christmas Josie, What a great room. And Santa came to visit you!!! How very exciting!! I want you to know that we are thinking of you and wishing you and your family a very Merry Christmas. I am also hoping the New Year brings you a speedy recovery. You and your family are in my prayers.
Ray Alexander' niece, Anne
Sent on Sunday, December 24, 2006 at 7:54:48 AM
lcoblentz@twmi.rr.com
From Michelle Darr,
Blaine
Josie and family,
Merry Christmas!!! What a room. I was showing my 6 year old and my 4 year old the picture of your room and the only word they could say was "COOL". We pray for you and your family every day and we hope you have a joyful holiday.
Sent on Sunday, December 24, 2006 at 8:08:14 AM
darrboys@aol.com
From Tracy Caraker,
Spr
Hooray for Josie! Wow, you've got all the cool stuff! Nice TV :) I'm glad to see you and your parents in a more comfortable setting. Get better FAST little one! We're all pulling for you! Much love and Merry Christmas!
Sent on Sunday, December 24, 2006 at 8:15:44 AM
From Tracy Caraker,
Spring Hill, FL
Hooray for Josie! Wow, you've got all the cool stuff! Nice TV :) I'm glad to see you and your parents in a more comfortable setting. Get better FAST little one! We're all pulling for you! Much love and Merry Christmas!
Sent on Sunday, December 24, 2006 at 8:16:01 AM
tcaraker@tampabay.rr.com
From The ,
Merry Christmas Josie!! We are so happy that you have moved out of ICU into that super cool room!! Hopefully we can come up and visit you soon! I bet Santa is going to want to take a break and hang out for a while tonight with you there!
Lots of love
Lisa Rich Lucas and Isaac!!
Sent on Sunday, December 24, 2006 at 8:26:03 AM
From bill,
plymouth minnesota
We wish all of you the best Christmas ever. Josie's move off the ICU is a big, postive step. Thanks for letting us join in the festivities at Joy for Josie. Josie remains in our thoughts and prayers.
Sent on Sunday, December 24, 2006 at 9:06:05 AM
From THE LUNDS,
US
WOW!!!WAY TO GO JOSIE!! MERRY CHRISTMAS WITH LOTS OF PRAYES AND HUGS FROM THE LUNDS. WE LOVE YOU AND OUR LITTLE FAMILY. TOM AND DARLENE
Sent on Sunday, December 24, 2006 at 10:43:21 AM
Lundlink@mac.com
From Leigh Anne,
Maine
Good for you Josie, a room fit for a queen and you certainly are. Merry Christmas Little Girl. We wish you all the Christmas miricles out there. Get better fast Josie! Can't wait to see you dance!
LOVE,
Leigh Anne, Justin and Caitlin
Sent on Sunday, December 24, 2006 at 1:13:14 PM
supajut@msn.com
From Katie Marshall,
Minneapolis
Congratulations on your fabulous new room!! How exciting! I can't even imagine how big Swiper must look on that TV screen! Merry Christmas to you all!
Love,
Katie & Lou
Sent on Sunday, December 24, 2006 at 1:28:53 PM
katiemarshall7@gmail.com
From Bev and Gene Holsing,
Aberdeen, S D
HI Josie,
We're Sam and Ben McKeown's Grandma and Grandpa! We check on you every day and keep you in our prayers. We're glad you are in a new room. It looks super!
I bet Santa even knows where you are!
Have a Merry Christmas and a Happier New Year
Sent on Sunday, December 24, 2006 at 2:23:38 PM
bholsing@nvc.net
From Ellie,
UK
Wonderful news that you made it onto the ward for Christmas Eve - I stumbled across this blog when another blog I read mentioned Josie, and since then have checked every day to see how she's doing. Thoughts and prayers with you all, God bless and best wishes for 2007, I hope it's a much easier one.
Sent on Sunday, December 24, 2006 at 2:36:21 PM
From Caroline & Ed Gaiser,
Fresno, CA
Dear Josie,
We're so happy that you've moved out of the ICU and to the "floor." You're on your way back! Our prayers continue to be with you. Merry Christmas and love to you and all the family.
"Aunt Caroline & Uncle Ed"
Sent on Monday, December 25, 2006 at 2:28:14 AM
c_gaiser@hotmail.com
From Leslie McKeown,
MERRY CHRISTMAS JOSIE!!! I am sure Santa Claus found you during the night because as I looked out the window at my hospital I could see Rudolph's red nose and Santa's sleigh flying over your hospital! I thought of you so much tonight and hope you have a great day-enjoying your family and all of your Christmas surprises. Now to hurry home and see if Santa left anything in his bag for Ben and Sam... Love you sweetie! Leslie
Sent on Monday, December 25, 2006 at 6:24:04 AM
lesliemckeown@comcast.net
From Judee Dufresne,
Lindstrom
Merry Christmas, I thank God you have been able to move to an awesome room, I still am praying that you will receive a miracle from God and you will be home very soon, Praise God.
Sent on Monday, December 25, 2006 at 4:44:24 PM
dufresnedesign@frontiernet.net
From The Graffts,
Chanhassen, MN
Josie, Deb & Jay and family;
Merry Christmas! Hope your daughter and family had
a nice Christmas. May God be with you. Our thoughts
and prayers are with you.
Sent on Monday, December 25, 2006 at 5:21:44 PM
grafft6726@earthlink.net
From gigi,
fraser
Merry Christmas Josie, Deb, Jay and the rest of the gang!
Wow, What a wonderful Chiristmas present you got!, your new room really rocks!! How cool to have that fancy pants room! I'm so glad you got to leave ICU and that you are feeling better (most of time). Eda and I hope you are feeling well enough for a visit real soon. Probably you will have a busy room with your brothers and sisters home on holiday vacation. Lots of kids at fraser will not be in school this week but Eda and I will work Wendsday -Friday. Maybe we could visit you this week or else next week- please have your mommy let us know when would be best. You will have to show us how great your favorite movies look on your new T.V's. xxo Gigi and Eda
Sent on Monday, December 25, 2006 at 5:35:33 PM
gigik@fraser.org
From Kris, Jill, Trigve and Annika,
Richfield
Merry Christmas to all of you!
A gift you have given all of us out here cheering for you is the gift of appreciation and perspective. Everyday you help us remember what is truly important in this world.
Keep up the healing Josie! We really really really want you to feel better.
Sent on Monday, December 25, 2006 at 7:08:56 PM
kris@teamfriday.com
From ,
Hi Josie!
We know Santa was very good to you - you've been a wonderful and brave little girl this past year.
We hope you and your family had a great holiday.
Keep up the good work - you'll be home in no time -
Love,
Bob, Sarah, and Jillian Arnold
Sent on Monday, December 25, 2006 at 10:37:33 PM
From Jamie & family,
Honolulu
Merry Christmas Josie and family!!! Glad to see you've been "upgraded" to a sweet suite! And just in time for Christmas. When Jamie first presented with dermatomyositis it was during Christmas time. Jamie's first Christmas was spent moving from the ICU to the children's floor. Nothing like spending time in the ICU to really appreciate the precious GIFT of life.
Sending lots of love and prayers your way, Jamie & family
Sent on Tuesday, December 26, 2006 at 12:03:04 AM
vacoba@hotmail.com
From Dawn ,
prior lake
Merry Christmas and I will send you " Good luck" for the new year.
Things will start to turn around and be peaceful for all. Love Dawn (the groomer from SPH)
Sent on Tuesday, December 26, 2006 at 1:46:29 AM
ibdawn@aol.com
From Brad,Cheryl,Missy,Jack and Chance,
Richfield, MN
Dear Josie, Evie, Henry, Trip, Deb and Jay,
As always, we are praying for healing and strength for Jo Jo, she has endured so much. She is an amazing girl and you are an amazing family. Jay, thank you for letting us glean some of your spirit from this blog. Your endurance
has reminded me of a marathon... ( and we all know how fond you are of those, and that you end it with flying colors! ) you told me once that God has blessed you with a good set of knees...keep up the good work. We love you guys.
Sent on Tuesday, December 26, 2006 at 10:23:36 AM
rynersonelectric@yahoo.com
From Kay Stalcar,
Richfield
Merry Christmas Jay,Deb,Trip,Henry,Evie & Josie,
It sounds like you had a very nice Christmas morning. Josie your new room looks great! I am so glad you were able to move. I pray that you guys will soon be able to take Josie home. Have a great New Year!
Love, Tony,Kay,Jeremy,Derek & Nicole
Sent on Tuesday, December 26, 2006 at 11:16:07 AM
kstalcar@cojlbc.org
From Brad Melby,
East Bethel, MN
Hello Josie & family,
We are holding you up in prayer that you will be healed and free from all pain. We pray often and plead that the Lord will heal - in His name.
Loving you all from afar.
The Melby's (Brad, Connie, Trenton, Alexa, Sondra)
Sent on Tuesday, December 26, 2006 at 1:08:32 PM
bradley.l.melby@ampf.com
From julie kunselman,
punxsutawney, pennsylvania
i think about josie all the time. my daughter was dx'd with jdm on sept 24, 06. it is so hard to see children go through something like this. they are supposed to be running around playing and having fun not just sitting around because they can't move. i hope that she makes a turn around and come home soon. i will continue to think and pray for her.
Sent on Tuesday, December 26, 2006 at 1:53:28 PM
julied@windstream.net
From Heather (Schmitz) Larson,
Edina, MN
Hi Deebers and Jay,
Jeff Schmitz is my brother. We met some time ago. I actually first learned about Josie from our friends the Pearce's, Brad and Sue. Although, I didn't put the connection to you, I was just praying for a 4 year old girl, Josie. I have a 4 year old girl, Kate. She spent Christmas and Christmas Eve sick, throwing up, coughing, etc. I know how much it hurts as parents when you see your little girl suffering. I can only imagine what this has been like for you and your family, day after day. Please know you and your family will be in my prayers and let me know if there is any other way I can be of help.
Sent on Tuesday, December 26, 2006 at 9:19:44 PM
heatherlarson3@yahoo.com
From Tom and Darle Lund,
us
Hi Josie...We are so glad you are up and doing some coloring...Maybe we should bring Sugar Bear...she would help you walk around. We love you, Grandpa and Grandma Lund.
Sent on Wednesday, December 27, 2006 at 8:37:03 AM
dlund@lssmn.org
From krissy,
eden prairie,mn
My family is praying for your family
Sent on Wednesday, December 27, 2006 at 3:38:16 PM
mamabear850@msn.com
From Judee Dufresne,
Lindstrom
I am asking in Jesus name for complete healing and for Josie to be home asap. I give God the glory for his answered prayer. By His stripes she is healed. I am so happy for the improvements. God bless you Josie.
Sent on Wednesday, December 27, 2006 at 7:28:53 PM
dufresnedesign@frontiernet.net
From Tom and Darlene Lund,
usa
Good news Josie...keep it up. Love you, Tom and Darlene, Sugar Bear and Smokey Bear
Sent on Thursday, December 28, 2006 at 9:49:10 AM
lundlink@mac.com
From The Wenaas Family,
right next door
Josie:
Your room looks so neat!!! Definitely promotes healing!! We continue to pray for you and hope that you'll be home soon!!!
Love,
Megan, Jason, Bridget & Molly Rose
Sent on Thursday, December 28, 2006 at 10:33:56 AM
mmwenaas@gmail.com
From jodi nelson,
Richfield, MN
Hi Josie and Family
I have been think a lot about you and your family this Christmas season. I have Dermatomysitis also. My is some what in remission, just a little active. I was 36 when I was diagonsised and nothing like what you are going through. My thoughts and Prayers are with you everyday. I would hope that things turn very soon. Take care.
Sent on Friday, December 29, 2006 at 12:25:26 PM
jjnelson@umn.edu
From Lynn Gabriel,
victoria, MN
I have tears of joy in my eyes as I read and see that you got outside Josie! Yea! Good for you , and good for you being strong enough to ask for what you wanted or hoped for-a little trip outside. You are one strong little girl my dear! I took Blake and Faith skating yesterday (since your dad mentioned that you are looking forward to a trip around the rink) and it was Faith's first time with her skates on-she is just barely 2 years old- and she can skate! Can you believe that?! I bed you were standing on your skates too when you were just 2. You girls need to stick together- you're tough! Blake sat out most of it, he isn't too fond of the cold. But I bet that fresh air felt like angel breath on you face. Keep up the great work.we love your new room by the way. We are looking forward to seeing it some day. Blake and faith have colds right now so we wouldn't htink of coming within a mile of you for a long time, but that's why we are sending you a note so that you know we are thinking about you and continuing our prayers!
God loves you in a special way.
Love Blake, Faith, Lynn and stan
Sent on Saturday, December 30, 2006 at 2:22:16 PM
lrshadle@earthlink.net
From Holly Thiede,
St. Louis Park, MN
I am so happy to hear that Josie got outside today!
She is one step closer to getting those ice skates on! :)
Sent on Saturday, December 30, 2006 at 10:20:48 PM
HandThiede@aol.com
From Dee Dee Woodard,
Las Vegas
What a wonderful picture of smiling faces to see on the website this morning! I pray that that smile of Josie's only grows as she gets better. My daughter Brooklynn (2 yrs old) and I pray for Josie every day and will continue to do so.
Sent on Sunday, December 31, 2006 at 9:13:52 AM
deedeelynn1@hotmail.com
From Janis and Roger,
Minneapolis
Dear Friends,
My morning ritual is complete now that I have read about sweet Josie and her family. I love the photo today of the "fabulous four". So many lives to be grateful for. You are all in our prayers every day as your journey to health continues. We will settle for nothing else! Have a blessed New Year's Eve whatever you do. You are loved and admired. Your pals, Janis and Roger
Sent on Sunday, December 31, 2006 at 9:36:54 AM
marti009@umn.edu
From Jen Weers,
What a wonderful sight to see this morning -- your family all together and smiles all around. I pray your 2007 brings healing and health. Happy New Year.
Jen and Julia Weers and family
Sent on Sunday, December 31, 2006 at 10:38:54 AM
From Madsen,
Richfield
Josie, Deb, Jay, Trip, Henry, and Evie,
HAPPY NEW YEAR!! We are praying 2007 is a year of less hospital and more healing. We plan on seeing you climb the backstops at the baseball games this summer!!!
Some may think the ball in New York is the greatest sight today but the picture of the four Adam's kids will be what we remember as special!
Happy New Year, The Madsens - Tom, Karen, Sarah, Emily and Paul
Sent on Sunday, December 31, 2006 at 12:24:01 PM
From Holly Thiede,
St. Louis Park, MN
It was sure nice to see the photo with all of the children together!
Happy New Year!
Sent on Sunday, December 31, 2006 at 9:17:56 PM
HandThiede@aol.com
From The Stattine Family,
Every morning we check out your website and the picture today has made our day!!!We pray for you and your family every day. Josie, you are a fighter and an amazing girl! Stay strong!!
Sent on Monday, January 01, 2007 at 9:45:03 AM
From Leigh Anne,
Maine
Happy New Year Josie And Family! May This Year Bring You Nothing But Positive Things In Your Lives!
Much Love,
Leigh Anne, Justin and Caitlin
Sent on Monday, January 01, 2007 at 10:41:09 AM
supajut@msn.com
From Deanna Welch,
Edina, MN
What a beautiful picture of the four kids, and what a blessing to be able to spend time together. Your family is in my thoughts and prayers daily. May God bring you healing and peace this year!
Sent on Monday, January 01, 2007 at 11:54:05 AM
deawelch@edina.k12.mn.us
From Mark, Shelly, Max and Sam Nelson,
Richfield
What a wonderful gift that room is. We are celebrating with you that all of you are able to hang out with Josie in a more comfortable setting. Josie, you are so amazingly tough to be able to have come this far with your adventure. We love you and are proud of your fighting Adams' spirit. Can't wait to see you biking around Richfield!
Sent on Monday, January 01, 2007 at 1:49:59 PM
From Marilyn Wilmot,
Bradenton, Fl.
A HAPPIER NEW YEAR, to the Deebers! We are glad to see Josie's siblings able to visit with her, and Josie able to venture out in the world(or at least the immediate area)!!Hang in there, everyone!
Sent on Monday, January 01, 2007 at 3:04:38 PM
Mcfwilmot@hotmail.com
From Britta Bloomquist,
virginia, MN
Hey Josie and Family~
Glad to read that you are feeling better and getting out and about and out of bed! I pray that the New Year brings you less pain and more joy to your life. Dr. Vehe is also my rheumatologist-he is a really great doctor. I have a lot of respect for him and for all the great things he has tried on me. I hope you have many more steps forward than back these coming days. Just remember to take one day at a time--that is my motto that I have to live by, as I suffer from another autoimmune disease called Spondyloarthropathy.
Love, Britta
Sent on Monday, January 01, 2007 at 9:36:44 PM
bitts75@hotmail.com
From Verla,
Sun City, Az
Dear Adams family, "HAPPY NEW YEAR 2007"!!!! What a way to start the New Year by taking a ride on a bicycle through the halls without any tubes and no medication Josie!!! It was a wonderful sight to see!! It was great to see you outside for a walk also Josie and to see you with your brothers and sister. I am so glad your family can all be with you more now and that you have such a nice room. Thank you so much for writing the day's activities for all of us Jay. I read it every day and pray for all of you often through each day. You are all a very strong family and we feel very privileged to be a part of your daily lives. It was so nice of the doctor to sit with Josie so that the rest of your family could have an evening out on New Year's Eve. I am praying believing that you wil all be able to spend a lot of nights out as a whole family very soon. May God bless you and hold you tight in His arms. You are very brave Josie and a wonderful and beautiful girl. Keep up the good fight!!! Your whole family is very special!!!!
Sent on Tuesday, January 02, 2007 at 12:36:17 AM
From Kay Stalcar,
Richfield
Happy New Year Adam's Family!
It was so great to see the picture of Josie riding the bike in the hallway! I am so glad she is having some better days! That room is such a blessing for you all, I am glad that you can all spend time together as a family with Josie. I pray that the great days will continue so Josie can come home soon.
Sent on Tuesday, January 02, 2007 at 12:52:57 PM
kstalcar@cojlbc.org
From Dorans,
Richfield
Josie,
It is great to see you riding a bike!! Your hair looks like it is blowing in the wind you are going so fast!! You are such a brave litte girl, and we think about you all the time! We pray that this year brings you less pain and a lot more bike rides!!
Love,
Paul, Shelly, Joe and Sarah Doran
Sent on Tuesday, January 02, 2007 at 10:49:39 PM
doran-home@mn.rr.com
From Stellons,
Richfield
Hi, Josie!
What an awesome room, cool bike and neato Dora the Explorer stuff! You really know how to put it all together!
You are always in our prayers and we miss seeing you. Please get well soon so we can see you out at the baseball fields.
By the way, you might need to explain to your dad that the lip gloss helps your lips so they don't get chapped. Good thinking, Josie! Be sure to keep him on his toes.
Sent on Wednesday, January 03, 2007 at 10:00:37 AM
StellonE@aol.com
From Jo Ellen Smith,
St. Louis, Mo
Dear Josie, My name is Jo Ellen, I have a daughter that has JDM also. Her name is Lyndsie, she is almost 19 years old. We found your web page on CureJm. We have been watching your progress for several months. You are such a strong little girl and very lucky to have such a wonderful and supportive family. You hang in there and get better soon.
Sent on Thursday, January 04, 2007 at 2:51:23 PM
josmith312@aol.com
From Janet Meliti,
Anchorage Alaska
Hi there Josie its been a few days since i wrote anything but i have been reading the latest updattes about your health sounds like a lot has been going on. It is nice to know that you have a found abit of strength again to be up at times. Its been great to see the new photos of you with family and you have had alot of friends family with alot lately.
I sure hope they can get things under control foryou again and you can have that surgery in February and it does noy get delayed again. it sure would be nice if could get better enough to have it sooner. Iknow all about the the thing with high fevers etc that seem to never end sometimes with a child with the rare disorder of Prunebelly syndrome. He is actually not doing to good now as i do this post a fever that just wont go away and a couple of other things that have popped up again theese past fewdays.
You and your family keep fighting may God give you the comfort strength and peace you need to get through this this and become stronger than ever.
Love Janet Matthews Mom from Prunebellysite. www.prunebelly.org
Sent on Friday, January 05, 2007 at 3:40:17 AM
jmeliti11@hotmail.com
From Nancy Hanneman,
Eden Prairie
Josie,
It has been a long time since I have signed into your guestbook. I check your blog almost every day. What a journey! Certainly not a path of your choosing, but I am amazed and awed by the grace in which you are traveling. You are in my prayers every day. (I am Donna Abramson's sister)
Sent on Friday, January 05, 2007 at 6:30:41 PM
nahanneman@hotmail.com
From Deanna Welch,
Edina, MN
Glad to hear Josie's feeling better and great to see her smile in the picture. Sorry about Henry's chicken pox, however! I hope the rest of the kids can somehow escape them. I look forward to seeing Trip in class next week! You are all constantly in my thoughts and prayers.
Sent on Saturday, January 06, 2007 at 8:52:37 AM
deawelch@edina.k12.mn.us
From Sue Moen,
Sumner WA
I cannot imagine the pain and suffering you and Josie have endured. I will be praying for you all daily. God is so good and it's impossible to understand how or why these terrible things happen but keep the faith. Deb, I am a friend of your folks and have known your mom since we were 4 and 5 years old. I heard about Josie in their holiday note. I will be following your daily blog entries. Thanks for keeping all your friends and family informed.
Sent on Saturday, January 06, 2007 at 5:34:21 PM
sumick@comcast.net
From Becca(Rebecca Lotito),
Julian,Ca
HI, Jojo
It is becca in CA. I happy you rode that bike. I told the kids in my class that you rode the bike and they were really happy. Grandpa sent me the JOY FOR JOSIE bands to give to my calss. They all are really loving them. Your new room is the best. Well I have to go to bed for school. Get better JOJO. Love Becca
Sent on Sunday, January 07, 2007 at 8:37:14 PM
biloxibaby94@yahoo.com
From Joan/Jim Wobbleton,
Murrells Inlet,SC
I love seeing Josie hugging the bear and smiling. Can you imagine with all she goes through each and everyday that she is able to smile for the camera. I think most kids would tell Dad to take the camera and stuff it. What a trooper she is. Also what a wonderful thing you are doing for the world. Jay you are recording a case study of how to manage a difficult case. It may go down in the archives of medical history. You can impart a lot of medical jargon that the docs love. You certainly have a wonderful way to make each and everyone of us want to get up in the morning and read your blogs. We worry,smile,have tears,and continue with our prayers for you and the whole family. It's hard to imagine having to get up each and every morning and know that your little one is not at home but in the hospital. You can't get tired. You can't not go to the hospital, you can't call out sick. You just put on your shoes and go. I know God is giving you the strength to do this monumental task. Your blogs are also a way of getting rid of a lot of daily thoughts. It's wonderful. We will miss them when she is better. It's amazing how many of us have this routine with you and Josie and the family.
God bless and keep slowly improving.
Joan and Jim
Sent on Monday, January 08, 2007 at 7:37:45 AM
jwobb@aol.com
From Auntie Tammy,
Keene, NH
EEEEEEEEEEWWWWWWWWWWWWWwww........ Chicken Pox!!! bleckkkk....
Sent on Monday, January 08, 2007 at 7:59:45 AM
From Michelle Darr,
Blaine
Morning Josie,
I wanted to say that I love the last couple of pictures of you!! They make me smile.
Sent on Monday, January 08, 2007 at 10:27:04 AM
micdarr@edina.k12.mn.us
From Chris Marshall,
Maple Grove, MN
Hi Josie & Family:
Well..I'm writing a tad bit late this year but I just wanted to let you guys know that we really missed seeing all of you at Christmas this year. Christmas at Uncle Bob's was fun but it just wasn't the same without the Adams family around! I kept waiting to see little Joise in her latest and greatest princess outfit! I have a big smile on my face right now just thinking about her...
Best wishes to you guys in 2007! We'll keep praying for improvement. One step, one day at a time. You guys stay positive!
Josie: Fight on little lady...fight on!
Love,
Chris, Rachelle, Abby & Zach Marshall
Sent on Monday, January 08, 2007 at 3:05:00 PM
crmarshall27@comcast.net
From Marla Dziedzic,
Arnolds Park, IA
Josie,
You are an amazing little girl. My daughter, Molly, also has JDMS and it is a tough disease. Thank you so much for sharing this website. We are praying for you and your family.
God Bless,
Dean, Marla, McKenzie, Molly & Jackson Dziedzic
Sent on Monday, January 08, 2007 at 8:42:53 PM
dziedzic@mchsi.com
From Melanie Liljenquist,
Minneapolis
My name is Melanie and I am a member of CPC. Just wanted you all to know that I am praying for you all and thinking of you often.
Sent on Tuesday, January 09, 2007 at 1:38:25 PM
toddandmel1@msn.com
From tom and dj lund,
Richfield
Josie, Jo-Jo...we are counting on your to chipper up! You are doing so great and we just love you...we love your bad hair day...can you believe it I have those EVERY DAY! So we're loving you and our little family across the street! Grandpa and Grandpa Lund
Sent on Tuesday, January 09, 2007 at 4:45:13 PM
lundlink@mac.com
From Wendy Kessler,
Edina, MN
Dear Adams,
We are thinking of your family often, we are very happy to have Evie come to play tomorrow and would like to help in any way that we can.
Love,
Wendy, Chuck, Grace & Sophia Kessler
Sent on Tuesday, January 09, 2007 at 7:34:31 PM
wendykessler@aol.com
From Jeff Scramstad,
Bemidji, MN
Hi Josie!
I can only imagine the emotional roller coaster, pain and suffering you and your parents go through on a regular basis; you are much too young to experience this kind of ordeal! One day, you will reflect on all that you experienced throughout your young life, and everything else that you face will seem so "inconsequential." It's wonderful to see all the messages that people have posted! It is a testament to all who pray for you, your family, and your return to a childhood full of love, laughter, and playing in the backyard with friends and siblings!
May God continue to watch over, protect, and bless you and your family!
Jeff Scramstad
Sent on Wednesday, January 10, 2007 at 8:51:35 AM
jdscramstad@prodigy.net
From Cindy Schmitz (Praught),
Albertville, MN
Hi Deb and Jay and family,
I heard about the crisis that you are going through and have been reading your webblog alot lately. Our family has been praying for your family and for Josie's healing. If I can be of any help let me know.
Sent on Friday, January 12, 2007 at 9:55:33 AM
bschmitzfamily@aol.com
From Linda Schwefel,
Hi Jay and Deb, its Linda. I start my day looking at Josies blog, I am hopeful that each day there is some progress and more answers, it is also a reminder of how blessed we are when our children are healthy. Sounds like pretty tight quarters now, hang in there...hopefully you'll be headed home soon. We'll wait a bit until she's out of 'isolation' and then stop by for a visit. You are in our prayers daily. xoxo
Sent on Friday, January 12, 2007 at 10:34:47 AM
lschwefel@aol.com
From Callyn Mack,
Mahtomedi, MN
Josie,
My 6-year old daughter Callyn prays for you everyday! We pray for complete healing for you. God bless you sweetie.
Love,
Alyssa and Callyn Mack
Sent on Friday, January 12, 2007 at 5:53:29 PM
mackalyssa@yahoo.com
From Britta Bloomquist,
Virginia, MN
Glad to hear that Josie is feeling better! Next time Dr. Vehe is in, tell him hi from Britta!!! Or give him a tug on his tie for me!! ;-) Keep your spirits high!
Sent on Saturday, January 13, 2007 at 12:36:52 AM
bitts75@hotmail.com
From Becca, Gary and Prescott,
Utila, Honduras
Hi Josie!
The island has been without internet for the last week and it was painful not to be able to read about your progress every day. I was thrilled to read that you are feeling better today! Gary and I gave Prescott our dog a haircut....hmmmmm not the best cut but it works for the island! I wish I could bring Pressy to see you...he sends his kisses.
Hugs,
Becca, Gary and Prescott
Sent on Saturday, January 13, 2007 at 3:24:56 PM
r_anderson33@hotmail.com
From Holly Thiede,
St. Louis Park, MN
Hi Josie! I LOVE your new photo! What a great smile!
I am sorry that you are not in the cool room anymore. I am keeping my fingers crossed for something even better...home!
Sent on Saturday, January 13, 2007 at 6:39:45 PM
HandThiede@aol.com
From Ava Schneeberger,
Richfield MN
Dear Josie,
Ava and I have been thinking about you a lot lately. Ava has made some pictures for you and would like to bring them to you. We heard about the chicken pox thing and we'll be patient. Please let your Mom and Dad and brothers and sister know that you are they are in our prayers. We will be in touch soon to find out when we can visit you!
Lots of hugs and kisses,
Ava Gina and Steve
Sent on Saturday, January 13, 2007 at 6:51:35 PM
gigi7705@yahoo.com
From The Murray Family,
Carver, MN
Josie & Family,
We are thrilled to see Josie is doing better. We pray she continues this positive trend and can go home soon!
Keeping you in our thoughts and prayers,
Jenette, Patrick, Lauren & Evan Murray
Sent on Sunday, January 14, 2007 at 10:59:28 PM
jenette_g@hotmail.com
From Jennifer Corniea,
Minneapolis
Hi jay and deb-
We are praying for Josie's full recovery. I love watching her progress every day on your her blog! Lots of love!
Jennifer and Jay Corniea
Sent on Monday, January 15, 2007 at 12:19:50 AM
jencorniea@mn.rr.com
From Lyndsie Smith,
St. Charles, Missouri
Hi. I'm really sorry to hear about Josie. I read your blog about her a lot. I was really interested in it after my mom told me about her. I was diagnosed in August 2005, still on medications and monthly hospital visits. Give her a big hug for me, because I want her to know that everyone is thinking and praying for her and I want her to realize that she isn't alone.
Love,
Lyndsie Smith, 19
Sent on Monday, January 15, 2007 at 11:56:39 PM
LyndsieNS18@aol.com
From Becca Anderson,
Utila, Honduras
Josie,
I am praying that you will be able to go home next week!
Hugs,
Becca
Sent on Tuesday, January 16, 2007 at 8:15:44 AM
From Tom and Darlene Lund,
Proud USA
Josie, we are rooting for you, we read your news every day and pray for you and love it see your smiles. That's the way to work at walking...remember the step down into the TV room...it's still there Josie...get strong so you can go up and down...and all around. We love you Josie. Grandpa Tom and Grandma Darlene
Sent on Tuesday, January 16, 2007 at 9:39:47 AM
lundlink@mac.com
From Marilyn,
Bradenton, Fl.
Great news, about the possibility of Josie's return home, next week!!! We will certainly keep our fingers crossed! You are always in our thoughts.
Sent on Tuesday, January 16, 2007 at 4:28:10 PM
mcfwilmot@hotmail.com
From Leigh Anne,
Maine
Hi Josie!
Sorry it's been so long since we last wrote. We are so glad to see that you are doing so well. I see you have up and down days but I hope they become few and far between soon.
Take care darling Josie. We are still thinking of you all the time. Hope all stays well....
Leigh Anne, Justin and Caitlin
Sent on Tuesday, January 16, 2007 at 7:19:28 PM
supajut@msn.com
From Holly Thiede,
St. Louis Park, MN
Hi Josie!
I am keeping my fingers crossed for home!
Sent on Tuesday, January 16, 2007 at 9:56:31 PM
HandThiede@aol.com
From Maria Vetsch,
Centreville, VA
Hi Deb and Jay,
The trend seems to be in the right direction - even talk of possibly going home. Have you asked about doing a day visit to take Josie home for a few hours? We were able to do this with Andrew - after 4 months in the hospital, we got him stable enough to go on a day trip to visit home. I took all the IV meds with me and hooked them up or changed them at home - Andrew was on continuous IV meds as well as the TPN. Once we started the home visits, I notice a much improved mood in Andrew and I swear it helped him recover faster. He had to learn to walk all over again - just like Josie. Going home sped that process also. One thing that still sticks in my brain is that at the end of the 1st home visit he said, "I think it's time to go home" - he meant the hospital. He had been in the hospital so long and we made his room so homey, that he really thought that was home. Hopefully, your home visit will be to stay. We continue to pray that all will work out and the family will be together again soon.
Maria
Sent on Wednesday, January 17, 2007 at 7:33:13 AM
mariavet@cox.net
From Kris,
Richfield
Josie,
You are one amazing kid! Somehow I have a feeling that you are destined for great things in the future--you've already done great things as a kid!
Way to go in PT!!! Keep hanging in there during the tough times...hope they keep getting fewer and farther between!
Thanks to the kids from around the world that have added notes to this BLOG! It's really touching to see people connecting--who are also struggling with JDM or something else--helping and cheering eachother on to better health!
We are hoping the best for all of you.
Sent on Wednesday, January 17, 2007 at 8:50:03 AM
kris@teamfriday.com
From Holly Thiede,
St. Louis Park, MN
Hi Josie!
My name is Mrs. Thiede and I am your sister, Evelyn's
Kindergarten Teacher.
Today, we were listening to some music in class (Pachelbel/Canon and Gigue in D) and Evie got a huge smile on her face! She said that the song made her think of you! Something about watching photos of you while the music was playing in the b |