6/5 Drug Day

Today was Josie’s IVIG-and-Big-Steroid-Bolus Tuesday. Our awesome home health nurse was here much of the administering Josie’s dope and it all went smoothly. Earlier in the day though Josie was a real peach. She was in one of those moods where she was just looking for the slightest thing to give herself the OK for a major tantrum. She was complaining about the most ridiculous things…sorry, I can’t remember any of them…I just remember how petty and absurd they were. This was a couple hours before all the drugs. I thought it’s a bad sign being soooooooo crabby before the big steroid thing, but the drugs came and there wasn’t a hint of ‘Roid Rage all day long. She was a model child all day. A little npaski in the afternoon set the girl up for another good stretch this evening. In fact she was in such a great mood she was actually playing and laughing with ALL her siblings tonight…music to a parent’s ears having all the kidlets laughing together without a computer or Xbox in sight. Nice.

Tomorrow Josie meets with Dr. Vehe again and we’ll get his take on her newer splotches. Now she’s got some new marks on the back of the lower part of her upper arm (tricep area) which look a little strange, kind of like irritation from rubbing on something. Maybe that’s exactly what it is…tomorrow we’ll take a closer look.

The other three kids are in their last week of school and everyone’s excited for summer break, save maybe Deb and me. I kinda like school. It reduces daytime stress quite well.