6/20 Things Are Going Great

Josie’s confidence is growing. She’s really ramping up on her walking and mobility. The improvements are coming faster than ever now…and it’s all good from the walking standpoint. Her flexibility in her feet is improving too. Another visit with Physical Therapy tomorrow should go very well. They may have some splints to continue aiding her feet as they get more and more flexibility.

All this wanting to get around is causing another minor complication…she doesn’t want to be hooked up. With her feeding tube, Josie is hooked to her food bag and pump for at least 22 or 23 hours each day…but hauling that thing around is a serious style cramper so she wants it off. It’s been off for way longer than a couple hours each day for the past few…and that means Josie’s not been getting enough calories. We’re logically thinking that this might be a good thing…she’s walking more and burning more calories and taking in fewer calories…the perfect dieter…so one might think her appetite might improve, right? Not really with this one. She’s never craving any food. She says she’s hungry but only wants a bite or two. She has no extra craving for sweets or ice cream or anything the other rascals are always itchin’ to get. Her desire for food can’t be like anyone else around. Being deprived of food for the better part of the last year…the most recent 20% of her life…must have altered her normal food desire from a mental perspective, one which I can only speculate upon. But we’ll keep throwing food her way and eventually she’ll start taking it in more and more…or so that’s the thinking.

We see Dr. Vehe tomorrow to check out that skin which is still not really improving much. Wonder what he’ll have to say. I know he’ll be impressed with Josie’s physical progress though.