6/18 She’s Got The All Clear

Josie had a nice visit with her orthopedic Doc this afternoon and she got the green light –all systems go for working out on her broken leg. It’s still a little sore and she’s still limping on it, but that’s more a function of not using it for a few weeks and still dealing with not walking for so many months. Physical therapy can now move forward as fast as Josie will allow rather than holding her back due to that leg. Her heel cords are still really tight with little flexibility, but it’s slowly improving.

She’s been continuing to get stronger. Over the weekend she was moving around a lot, walking and riding her little tricycle around the house. She’s even working on getting herself up and down a stair or two…this wasn’t even a thought a couple months ago. She’s getting back to the walking comfort she had just before she broke her leg. She’s clearly more cautious though…watching where she steps, and super careful when dogs cruise by.

Her skin is still a bit of a problem. We’re seeing a few things here and there that aren’t looking the way we’d like. Her little hot spots from before are not really improving…but they’re not dramatically worse either. They’re just there and not going away. We’ll see what they look like after tomorrow’s IVIG and steroid bolus. Josie visits with Dr. Vehe on Wednesday for another look see. It would be fantastic if we could get to an every-other-week or even a once-a-month visit schedule, but that’ll have to wait as she’s not nearly well enough or the disease inactive enough for that…which kind of stinks.

Josie’s been coming and going with a mild fever over the last couple days…and that’s resulted in a few vomiting spells. It’d been quite a while since she had the barfs and, as usual, there’s no real apparent reason for it now, so we’ll just work through it and all will likely be fine in a day or two or three.

She’s been real punchy with her siblings lately…pretty much running the roost. She takes about zero grief from anybody (including Mom and Dad too much of the time). She’s quick to argue, and a lot of times she argues just to argue, which drives me a little nutty. And she knows how and when to lay on the drama…to the nth degree. Josie was in prime form late in the day on Saturday at Trip’s soccer tournament…the third game of the day. She went off on Deb, and Deb had had it up to her eyeballs with the sibling bickering and the demanding four-year old. Deb reached her breaking point and so they were outa there. It’s all good though.

We’ll keep you posted on progress this week with the results of her doctors’ appointments.