6/10 Trouble Might be Brewing

What a terrific weekend we had…the first real weekend of summer. Today we even hit to pool for the first time, along with everyone else in town, on this fine 89° sunny day. Josie’s been saying Hi to lots of great folks who she hasn’t seen in a very long time. It’s so nice for her to be out and about like a normal kid again. She had a great time at the pool even though she had to keep her PICC arm dry and had to play in the shady part of the pool.

But all is not totally well with Josie. As the heat rises so too does the redness of her rash on her face and arms. Perhaps it’s the sun, or it might be the actual sunscreen we use on her, but whatever it is it’s clear her skin is less than well and that bugger of a disease is with her and firmly active.

Also today Josie’s been battling a fever and the pukes. It started last night. Overnight she was at 102.9° and vomiting. Not a good sign. A little Tylenol and things settled down pretty well…and that’s been the call all day long. After a few hours the fever is back at between 102° and 103°. We’ve been alternating about every five or six hours between Tylenol and Motrin and it seems to be working OK at treating the symptoms. But the symptoms (vomiting and fever) might very well be pointing to something bad or even very bad. Perhaps it’s coincidence (hopeful) but this is a suspicious time to be getting some fevers just a few days after that pancreatic tube was yanked from her tummy. Overnight and tomorrow may reveal more and we’ll give the docs another call tomorrow with Josie’s info.

Aside from the bad skin and big fevers, Josie’s broken leg is healing admirably. She’s been up on her feet much of the days (about 1/3 to ½ the time) and her strength is improving nicely. Her flexibility is still a challenge but we’re working on that too.