1/9 More of the Same Again
103° overnight prompted more blood culture draws. They stopped her Vancomycin (one of her antibiotics) two days ago because its course is done. Josie does have a history of getting sicker after stopping Vanco when she’s been on it in the past, so we’re not too surprised.
What's making her spike these fevers and have the higher heart rate? This is a real mystery as y'all have read so many times in the past. Could be an undetected abscess, could be all the guts being manhandled during her previous surgeries, could be smoldering sepsis, it might be her body reacting to her new anatomy and the foreign bodies in her...idunno. Her higher fever today prompted another culture draw which led to some discussions about the need for so many cultures every time she has a fever. That fever has been there for so long and there have been dozens of cultures drawn with all but a few negative, and those positives could easily have been contaminates. Anyway, we agreed that they would not order cultures unless she demonstrates symptoms not normal to her pattern of fevers and high heart rate. Otherwise they’ll just let her keep her blood. So for Josie…102° and a 160 heart rate is now considered kind of normal. 98.6° and 95 heart rate are not normal.
Surgery stopped in and thought Josie looked pretty good. They’re now talking about mid February for the Whipplization, but we’ll see when she actually gets on the surgery schedule. They too were in agreement that we should back off on all the blood draws.
Physical Therapy was in and they took her down to the PT room for some exercise. She was swinging and throwing stuff, playing and walking. She took quite a few steps today which is a big deal for Josie. She has yet to get walking on her own but she’s doing it without much assistance which is way better than before…but she protests big-time before she does it. And that’s nothing new.
Only one more day on our great room, unless the infectious disease containment people have a miraculous change of heart…what do you thing our chances are with that?
What's making her spike these fevers and have the higher heart rate? This is a real mystery as y'all have read so many times in the past. Could be an undetected abscess, could be all the guts being manhandled during her previous surgeries, could be smoldering sepsis, it might be her body reacting to her new anatomy and the foreign bodies in her...idunno. Her higher fever today prompted another culture draw which led to some discussions about the need for so many cultures every time she has a fever. That fever has been there for so long and there have been dozens of cultures drawn with all but a few negative, and those positives could easily have been contaminates. Anyway, we agreed that they would not order cultures unless she demonstrates symptoms not normal to her pattern of fevers and high heart rate. Otherwise they’ll just let her keep her blood. So for Josie…102° and a 160 heart rate is now considered kind of normal. 98.6° and 95 heart rate are not normal.
Surgery stopped in and thought Josie looked pretty good. They’re now talking about mid February for the Whipplization, but we’ll see when she actually gets on the surgery schedule. They too were in agreement that we should back off on all the blood draws.Physical Therapy was in and they took her down to the PT room for some exercise. She was swinging and throwing stuff, playing and walking. She took quite a few steps today which is a big deal for Josie. She has yet to get walking on her own but she’s doing it without much assistance which is way better than before…but she protests big-time before she does it. And that’s nothing new.
Only one more day on our great room, unless the infectious disease containment people have a miraculous change of heart…what do you thing our chances are with that?

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