Josie's Adventure: 1/31 Getting Stronger

Josie's Adventure

Our beautiful daughter, Josie has come down with a very rare disease called dermatomyositis which is an autoimmune disorder where her body attacks the capillary blood vessels of the skin and muscle. Josie's case has become particularly nasty and, of course, everyone wants to know what's going on -- So I've started this blog. All the pictures are links to larger images. Thanks for visiting and please sign our guest book whenever you want. We'll read 'em all.

Wednesday, January 31, 2007

1/31 Getting Stronger

Josie had a really fun day. Still some bouts of nausea and vomiting but not too much. Most of the day she was full of sass and fun….happy and energetic and bouncing around. She was singing and even dancing in her bed. She sang a song to her doctors which she learned just yesterday. Every day she seems to be getting better and stronger. Josie had some fun with her physical therapy team this afternoon too…she seems so much stronger now than she was when we arrived in August. It’s so nice to see.

This is all good, and we need to keep ramping up all the way to the big day in a couple weeks when her strength and grit will truly be tested. She’ll need all that strength.