Josie's Adventure: 1/26 Uneventful

Josie's Adventure

Our beautiful daughter, Josie has come down with a very rare disease called dermatomyositis which is an autoimmune disorder where her body attacks the capillary blood vessels of the skin and muscle. Josie's case has become particularly nasty and, of course, everyone wants to know what's going on -- So I've started this blog. All the pictures are links to larger images. Thanks for visiting and please sign our guest book whenever you want. We'll read 'em all.

Friday, January 26, 2007

1/26 Uneventful

Not much going on this day. Josie's temperature was up again to over 102° and that's never encouraging but she came back down to earth after more blood cultures (which have all not grown out yet).

They decided to wait until Monday for the liver biopsy. Still no strong thought one way or the other as to what's going on with her liver and spleen or its cause. We'll learn more on Tuesday or Wednesday after the results are in.

Later today Josie started feeling better and was enjoying herself with Momma. Trip, Henry and I stopped in tonight to say hello and Josie was very happy to see her brother Trip. She gave him a big giant hug and was holding his hand. It was very cute.

Trip, Henry and I are off to Albert Lea, MN for a Squirt hockey tournament. Deb'll be holding down the fort with Josie. I'll check in from there if I can.