1/21 Snowball Fight!

Liver tests came back today with mixed results. ALT and AST enzyme levels have increased quite a bit to 264 and 223 respectively. Her total bilirubin level is a little lower at 6.3 mg/dL down from a high of 7.4 a week ago. Josie’s distended tummy is really causing her continued discomfort. Her liver is so big…it, along with her large spleen, is causing her intestines to be pushed aside causing her size-large tummy.

Her flaring Dermatomyositis symptoms have calmed a bit and she looks much better, but still some concern there. We’ll wait a little longer to see how things shake out before any further treatment changes are made.

Her fever stayed down today but that didn't keep those uncomfy feelings from creeping back to Josie many times. More vomiting too.

Josie was pretty active today. One of her nurses brought in a bin of snow from the outside. They were in the room and had themselves a snow fight. Of course they did their best not wo make too big a mess, but they still had a lot of fun with the snow. Other than that it was a pretty low-key day.

We’ll probably have lots of home discussions tomorrow to determine if and when Josie will head home this week or next or maybe not at all.