1/18 More of The Same

More home talk. Everyone is making certain that we’re really prepared about taking Josie home. Just because we go home doesn’t mean she’s well. Josie is still a really sick little girl and requires lots of care. We’ll be performing all that care the nurses do now but in a very different environment at home. I think we know what we’re in for. And the docs have made it clear that if things are just too tricky at home, they won’t lock the hospital doors. One of the docs said today, “…Josie belongs in a hospital. She doesn’t need to be in a hospital, but she belongs in a hospital…”

I would say most folks would not opt for going home with a child in Josie’s condition. But we think it’s time so we’re going to give it a go.

Josie walked today quite a bit. We were doing laps in out tiny room. We would walk around the bed with her holding my hand and the bed side, then we would walk back all on her own with no assistance. We did that a half dozen times or so. She’s slowly getting stronger.

Still a low fever, vomiting, tummy aches, not feeling well. But a lot of this day was feeling good.