Josie's Adventure: 1/15 Another Day

Josie's Adventure

Our beautiful daughter, Josie has come down with a very rare disease called dermatomyositis which is an autoimmune disorder where her body attacks the capillary blood vessels of the skin and muscle. Josie's case has become particularly nasty and, of course, everyone wants to know what's going on -- So I've started this blog. All the pictures are links to larger images. Thanks for visiting and please sign our guest book whenever you want. We'll read 'em all.

Monday, January 15, 2007

1/15 Another Day

Here we are, another day under the belt, and we’re about in the same boat – nothing new to speak about. Feeling good then bad, low fever, stomach pain, snoozing, etc.

Josie did have a great physical therapy session today. She was walking (with assistance) a fair amount, and stood for over 10 minutes holding a rail for balance…not bad at all. A long way she’s come in that regard.

But a lot of the day she was holding the cup to her face much like yesterday and every day she feels bad.

If the rest of this week goes well, we’ll try to get Josie home early next week. We’ll see how that prediction holds up.