Josie's Adventure: 1/14 A bad and Uneventful Day.

Josie's Adventure

Our beautiful daughter, Josie has come down with a very rare disease called dermatomyositis which is an autoimmune disorder where her body attacks the capillary blood vessels of the skin and muscle. Josie's case has become particularly nasty and, of course, everyone wants to know what's going on -- So I've started this blog. All the pictures are links to larger images. Thanks for visiting and please sign our guest book whenever you want. We'll read 'em all.

Monday, January 15, 2007

1/14 A bad and Uneventful Day.

Not much to say about today besides it was awful for Josie. She was feeling nauseas most of the day holding the cup to her face much of the time. Her fever was hovering around 100° from wake to nighty night. She was uninterested in anything, even watching Snow White or Dora, of course standing and walking were completely out of the question. Other than that really nothing happened today worth talking about. I could go into detail about poop texture and odor, or the vomit color, but I think the interest level wouldn’t justify the effort.

Talked with the GI guys and they're theorizing now that Josie does better and is better after her Friday IVIG and steroid bolus. I’ve not seen that pattern but I'll be looking from now on. She did do well yesterday, just one day after those meds, and that certainly jives with the hypothesis. Interesting theory and one which we'll watch carefully.