1/11 Questions

More fevers and more questions than answers. Still wondering what’s causing the fevers? Why is she so distended? Why does she have liver disease? Why are her drains flowing and then not flowing and then flowing again? Why are her blood inflammation markers high, yet they don’t jive with other lab values? Why is her spleen so swollen? Why is she vomiting a dozen or more times every day?

Josie had another CT scan today. The thought is that perhaps there is an abscess in there which might be causing the fevers…infection. No results yet. I’m predicting nothing remarkable…just like the others. This is good news…I think. It could also mean they might not be diagnosing some other freaky thing we don’t know about, but that thought’s nothing new - we’ve been thinking that off and on for a long time now.

We’re getting used to our sweet suite. Actually we’re not. We may move tomorrow to a slightly larger isolation room down the hall. Still, Josie’s going to be trapped in the hospital for at least until Feb 1. The only chance she would be allowed to leave is if Evie and Trip don’t show signs of the chicken pox, and of course if she’s feeling better and fit to go home…it’s a real judgment call and it could go either way.

Even though she had fevers this morning she was rarin’ to go. She played with the PT people for a long time and was all full of it. She was even talking to the nurses and everything. She was laughing and giggling, she pulled our Rheumaologist’s tie, she talked with the GI doc for the first time (I think ever)…she was really spunky. Not so tonight. She’s feeling like you would think she’d feel with a 102° fever. Not so good.

Looking forward to the new room…and the CT results.